Re: I'm speechless!!

June 9, 2007

Hi Bonnie was the one driving.

Bill

Re: I'm speechless!!> > Not that I want to chime in and > cause commotion (of course I will)! > But while it wasn't "funny" in the literal sense of the word. > I have > to admit that there was some humor in the situation simply > because > of "fate". To be in that position at that very moment...those > are > odds not likely to be seen again. I can't imagine what the > poor guy > was thinking and feeling while it was happening And while I'm > sure > he won't now, he will smile about it in the years to come. > > But on another aspect of how we view things. My father was in > a > wheelchair and when I read that story, my first thought was > "wow, my > dad would have had fun on that ride". He would have talked > (bragged) > about it for years. It's just an example of why we all see > things > differently. Our experiences in life totally effect our > opinions > People ask me all the time how come I take my MS so lightly and > in so > much fun, it's totally because I grew up with a man that also > never > took life as anything but a fun ride...wheelchair or no wheelchair.> > Am I making any point? Maybe not..it's the MonSter in me...ha..> Mindy> > > >> > where did I say anything about you leaving the group ??> > > > a Coon> > www.farmfreshsoapsa ndcandles. com> > farmfresahsoapsandc andles@.. .> > > > > > > > > > a it was funny to me but I am still very happy he was > safe. It > would not have been funny at all if he was hurt. He was on Fox > news > this morning telling what had happened. > > My statements are never to offend anyone in this group. I am > sorry > But I don't plan to leave the group. I have been here since the > first > day Sharon started it. I consider everyone in the group good > friends.Word can hurt so I am sorry. > > Bill> > > > > > When I joined this list, it was because I thought it was a > SUPPORT > groups for people with MS and disabilities. I DID NOT join this > list > to laugh at other disabled people or find them 'comical'. > Obviously > Bill has never had to use a wheel chair. If he had, he would > know how > comical this ISN'T !!! I know this man's family and those who > witnessed it DID NOT find anything comical about it !!!!!!!!!!> > > > a Coon> > www.farmfreshsoapsa ndcandles. com> > farmfresahsoapsandc andles@.. .> > > > > > > > > > > > That was comical to hear that happened. I was very happy he > did not > get hurt. He is a famous guy on all the news channels.> > Bill> >> > > >

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June 9, 2007

Hey, who said I was kidding? This is an awesome place but more work then one man can handle. I'd offer room and board, he's have all the freedom he'd need to get a job, as long as he helped around here when needed...and I AM a good cook...I didn't get this body by being a bad one ROFL...just let him know the winters are long (we already have a woodstove in the barn, more then enough to keep someone warm) Hugs Akiba -- Re: I'm speechless!! Akiba~ You keep sayin' that an' I'm gonna take you seriously. I mean it...I'll tell him. LOL Luv & blessings...Val @};- Re: I'm speechless!!

Cassy...This is not for Charcot Marie Tooth but another form of MD. Have you had your liver enzymes checked? The reason I ask, I had a girlfriend from college (Melody) and she became a lab technician. Now she had always had these really muscular legs and calves (everyone thought she was an athlete). Anyways, she was at the lab one night..bored..and decided to test herself on some things. Well, her liver enzyme test came back at a nearly impossible figure. She tested again with the same result. The next day she called her Dr. and she was diagnosed with a form of MD with some name that starts with a PolyXXXXXX. 13 years late, she is in a wheelchair and has spent most of her life on some horrible drugs (can't have children because of them).When you guys mentioned the large calves, I thought of Melody.Anyways, if you suspect you have some form of MD...the best thing to do is get a referral to your nearsest MDA clinic. They will set you totally. Charcot Marie Tooth is done by a DNA test. MD is genetic in nature. My brother was offically diagnosed this way even though we pretty much all new because he was clumsy, had the high arches, and the CMT gait all his life. To put it simply, CMT is a form of MD that atropys the muscles from elbows to wrists and from knees to ankles and it worsens in adulthood. Many people do well and are very proactive with this disease. However, most will need walkin assistance in late forties.Hope that answers some questions.Mindy> > > >> > > > Mindy.I wont chime in on the....>

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June 9, 2007

Bill the whole thing breaks my heart...I feel SO sorry for Bonnie, she is going to have a hard time with this, I feel so sad for her and what she is and will go through. Candles lit for her, and her parents. Hugs Akiba -- Re: I'm speechless!! Hi Bonnie was the one driving. Bill Re: I'm speechless!!> > Not that I want to chime in and > cause commotion (of course I will)! > But while it wasn't "funny" in the literal sense of the word. > I have > to admit that there was some humor in the situation simply > because > of "fate". To be in that position at that very moment...those > are > odds not likely to be seen again. I can't imagine what the > poor guy > was thinking and feeling while it was happening And while I'm > sure > he won't now, he will smile about it in the years to come. > > But on another aspect of how we view things. My father was in > a > wheelchair and when I read that story, my first thought was > "wow, my > dad would have had fun on that ride". He would have talked > (bragged) > about it for years. It's just an example of why we all see > things > differently. Our experiences in life totally effect our > opinions > People ask me all the time how come I take my MS so lightly and > in so > much fun, it's totally because I grew up with a man that also > never > took life as anything but a fun ride...wheelchair or no wheelchair.> > Am I making any point? Maybe not..it's the MonSter in me...ha..> Mindy> > > >> > where did I say anything about you leaving the group ??> > > > a Coon> > www.farmfreshsoapsa ndcandles. com> > farmfresahsoapsandc andles@.. .> > > > > > > > > > a it was funny to me but I am still very happy he was > safe. It > would not have been funny at all if he was hurt. He was on Fox > news > this morning telling what had happened. > > My statements are never to offend anyone in this group. I am > sorry > But I don't plan to leave the group. I have been here since the > first > day Sharon started it. I consider everyone in the group good > friends.Word can hurt so I am sorry. > > Bill> > > > > > When I joined this list, it was because I thought it was a > SUPPORT > groups for people with MS and disabilities. I DID NOT join this > list > to laugh at other disabled people or find them 'comical'. > Obviously > Bill has never had to use a wheel chair. If he had, he would > know how > comical this ISN'T !!! I know this man's family and those who > witnessed it DID NOT find anything comical about it !!!!!!!!!!> > > > a Coon> > www.farmfreshsoapsa ndcandles. com> > farmfresahsoapsandc andles@.. .> > > > > > > > > > > > That was comical to hear that happened. I was very happy he > did not > get hurt. He is a famous guy on all the news channels.> > Bill> >> > > >

Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search.

Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online.

June 9, 2007

Okie dokie then. When I get ahold of him, I'll sure let you know. He has been talking about moving back west. You know, we're originally(sp?) from Idaho. Have long winters there as well. He's used to a different culture than the one here. Can't say I blame him. I hate it here, myself. But, I'll show him some pics of your land and stuff. I really think he'd be interested. I know it's not out west, but it's not here either. And I'll be sure to remember to tell him about your cookin'. He loves to eat!! Don't know where he puts all that food. We used to call him the bottomless pit, or Hollow leg.

Luv & blessings...

Val @};-

Re: I'm speechless!!

Cassy...This is not for Charcot Marie Tooth but another form of MD. Have you had your liver enzymes checked? The reason I ask, I had a girlfriend from college (Melody) and she became a lab technician. Now she had always had these really muscular legs and calves (everyone thought she was an athlete). Anyways, she was at the lab one night..bored..and decided to test herself on some things. Well, her liver enzyme test came back at a nearly impossible figure. She tested again with the same result. The next day she called her Dr. and she was diagnosed with a form of MD with some name that starts with a PolyXXXXXX. 13 years late, she is in a wheelchair and has spent most of her life on some horrible drugs (can't have children because of them).When you guys mentioned the large calves, I thought of Melody.Anyways, if you suspect you have some form of MD...the best thing to do is get a referral to your nearsest MDA clinic. They will set you tally. Charcot Marie Tooth is done by a DNA test. MD is genetic in nature. My brother was offically diagnosed this way even though we pretty much all new because he was clumsy, had the high arches, and the CMT gait all his life. To put it simply, CMT is a form of MD that atropys the muscles from elbows to wrists and from knees to ankles and it worsens in adulthood. Many people do well and are very proactive with this disease. However, most will need walkin assistance in late forties.Hope that answers some questions.Mindy> > > >> > > > Mindy.I wont chime in on the....>

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June 9, 2007

Y'all are in NC, if I recall...I understad not liking it, being from Idaho. I lived in Florida for years, it is SO different down there. rob and I were saying just today that one of the things I really do NOT miss from the more Southern area is some of the bugs...red ants, fleas, cockroaches...none of those here. We DO have bugs, yeah, there is something they call a "potato bug", looks like a solid red ladybug, They're Ok but very prolific for about a month. And there are ticks, but they're the big brown dog ticks not the itty bitty red deer ticks that carry lymes, and of course there are 'skeeters, here, there, everywhere...but all in all the bugs here don't "bug" me half as much as the bugs there did! And where we are there is almost NO light at night other then the moon and stars, which are SO big they're incredible! And I saw the first lightning bugs the other night...YAY!, I Love those! And the quiet...it is SO lovely and quiet! Sure, tell Mark there is a place for him here...if he's your bro he's gotta be a great person to know...maybe we can then entice Cassy to come here too...start an MS commune...wouldn't that be fun!!! Hugs All y'all!!! Akiba (watching vampires on the history channel...gonna need my woobie to keep nightmares away...) -- Re: I'm speechless!! Okie dokie then. When I get ahold of him, I'll sure let you know. He has been talking about moving back west. You know, we're originally(sp?) from Idaho. Have long winters there as well. He's used to a different culture than the one here. Can't say I blame him. I hate it here, myself. But, I'll show him some pics of your land and stuff. I really think he'd be interested. I know it's not out west, but it's not here either. And I'll be sure to remember to tell him about your cookin'. He loves to eat!! Don't know where he puts all that food. We used to call him the bottomless pit, or Hollow leg. Luv & blessings... Val @};- Re: I'm speechless!!

Cassy...This is not for Charcot Marie Tooth but another form of MD. Have you had your liver enzymes checked? The reason I ask, I had a girlfriend from college (Melody) and she became a lab technician. Now she had always had these really muscular legs and calves (everyone thought she was an athlete). Anyways, she was at the lab one night..bored..and decided to test herself on some things. Well, her liver enzyme test came back at a nearly impossible figure. She tested again with the same result. The next day she called her Dr. and she was diagnosed with a form of MD with some name that starts with a PolyXXXXXX. 13 years late, she is in a wheelchair and has spent most of her life on some horrible drugs (can't have children because of them).When you guys mentioned the large calves, I thought of Melody.Anyways, if you suspect you have some form of MD...the best thing to do is get a referral to your nearsest MDA clinic. They will set you tally. Charcot Marie Tooth is done by a DNA test. MD is genetic in nature. My brother was offically diagnosed this way even though we pretty much all new because he was clumsy, had the high arches, and the CMT gait all his life. To put it simply, CMT is a form of MD that atropys the muscles from elbows to wrists and from knees to ankles and it worsens in adulthood. Many people do well and are very proactive with this disease. However, most will need walkin assistance in late forties.Hope that answers some questions.Mindy> > > >> > > > Mindy.I wont chime in on the....>

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June 10, 2007

Val, I rather suspect that he told you "polychondritis," which is usually a relapsing syndrome,

and is autoimmune based--right along with MS, RA, Lupus--you know, all the really FUN

things! Love to you and to him; keep us posted, please,

n

--------- Re: I'm speechless!!

Cassy...This is not for Charcot Marie Tooth but another form of MD. Have you had your liver enzymes checked? The reason I ask, I had a girlfriend from college (Melody) and she became a lab technician. Now she had always had these really muscular legs and calves (everyone thought she was an athlete). Anyways, she was at the lab one night..bored..and decided to test herself on some things. Well, her liver enzyme test came back at a nearly impossible figure. She tested again with the same result. The next day she called her Dr. and she was diagnosed with a form of MD with some name that starts with a PolyXXXXXX. 13 years late, she is in a wheelchair and has spent most of her life on some horrible drugs (can't have children because of them).When you guys mentioned the large calves, I thought of Melody.Anyways, if you suspect you have some form of MD...the best thing to do is get a referral to your nearsest MDA clin

ic. They will set you up totally. Charcot Marie Tooth is done by a DNA test. MD is genetic in nature. My brother was offically diagnosed this way even though we pretty much all new because he was clumsy, had the high arches, and the CMT gait all his life. To put it simply, CMT is a form of MD that atropys the muscles from elbows to wrists and from knees to ankles and it worsens in adulthood. Many people do well and are very proactive with this disease. However, most will need walkin assistance in late forties.Hope that answers some questions.Mindy> > > >> > > > Mindy.I wont chime in on the....>

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.13/842 - Release Date: 6/9/07 10:46 AM

June 10, 2007

Val.Hope hes feeln ok.Is this something serious? Im behind on posts.Hopefully it

is something very treatable.Let us know k.Luv ya, cassy

[cop.girl@...] wrote:

n~

I think that's close, but it seems like he said polycon***. Because, I said

back to him, jokingly....Polly can what? Then he repeated it. But, by the time I

got home, I'd forgotten it. I should have written it down at the time.

Thanks though. I wish I could get a hold of him. He tells me he wants me to

help him find a girlfriend, then he makes himself unattainable. Oh,

brother....(literally)

Love and blessings....Val @};-

Re: I'm speechless!!

Cassy...This is not for Charcot Marie Tooth but another form of MD.

Have you had your liver enzymes checked? The reason I ask, I had a

girlfriend from college (Melody) and she became a lab technician.

Now she had always had these really muscular legs and calves

(everyone thought she was an athlete). Anyways, she was at the lab

one night..bored..and decided to test herself on some things. Well,

her liver enzyme test came back at a nearly impossible figure. She

tested again with the same result. The next day she called her Dr.

and she was diagnosed with a form of MD with some name that starts

with a PolyXXXXXX. 13 years late, she is in a wheelchair and has

spent most of her life on some horrible drugs (can't have children

because of them).

When you guys mentioned the large calves, I thought of Melody.

Anyways, if you suspect you have some....

June 10, 2007