Re: HELP

[Guest guest]

In a message dated 4/7/00 6:08:49 AM !!!First Boot!!!, shamisos@...

writes:

<< have always wanted to know this ..... If a person has one tube do they

ovulate every month and can they fall pregnant in any month OR do the

ovaries alternate so that one month you ovulate from the left and in another

month from the right. So you can only fall pg in the month that you ovulate

from the side with the tube. This will mean that i can only fall pg in the

months i am ovulating from the right tube. If anyone knows the answer to this

please let me know.

>>

First I want to say good luck on mOnday.

It used to be believed that ovulation alternated every month. Now, though,

it is known that it is just kind of random. The way my previous dr (the one

I liked) explained it is that the follicles kind of race, and whichever one

develops first " wins " and becomes the one. It is possible to o from the same

side for many months in a row, then suddenly o from the other side one month.

There is also a (very minimal) chance that the left tube can pick up from

the right side,and vice versa. However, it is not something to rely on. Did

this help any? I hope so.

Amy

[Guest guest]

Shamiso,

You are in my thoughts and prayers. I hope all goes well on Monday.

Love,

Jo-Ann

> Hie All

>

> Well, Monday is D-DAY for me. I get to find out if my one and only

precious tube is OK or if its blocked. I am sooooo nervous. I had my

pre op visit yesterday and i told the doc i wanted to have ivf

a.s.a.p. Well this is what he said. If the tube is blocked and there

is no way to unblock it, then we go straight to ivf. If the tube in

not blocked however and the tests show that i can conceive from it

this is what he suggests.

>

> He would like me to ttc naturally with 3 cycles. Each time he will

monitor me very closely from the time i ovulate and see if i

conceive.(WHY DIDN'T MY FIRST OB EVER DO THIS AFTER MY FIRST EP). He

feels he is happy with ivf only if there is no way that it is

possible

for me to conceive naturally because of the financial aspect

involved.

He clearly stated though that it was entirely up to me. So now i am

WONDERING WHAT TO DO. HHHEEEELLLLPPPP!!!!!!!!!!!!!!.

>

> I know that i will only be faced with this decision if and only if

my tube if fine but i would appreciate your input.

>

> I have always wanted to know this ..... If a person has one tube do

they ovulate every month and can they fall pregnant in any month OR

do the ovaries alternate so that one month you ovulate from the left

and in another month from the right. So you can only fall pg in the

month that you ovulate from the side with the tube. This will mean

that i can only fall pg in the months i am ovulating from the right

tube. If anyone knows the answer to this please let me know.

>

> I am really praying ALL goes well on Monday. By the way ALL the

blood tests the doc did came out absolutely fine so no problems

there.

Lets see what happens next.

>

> Thanx all for listening

>

> Love

>

> Shamiso

[Guest guest]

Shamiso,

Hi honey. I hope all goes well on your LAP Monday! I'll be pulling for you. Tht does sound like a delimma you are facing. Even a familar one, because I am trying to decide the same thing.

With only having one tube and the other being possibly damaged, I think I would go with IVF, but that is just what I would do. '

As far as which ovary you ovulate from each month I am under the impression that it is completely random. Also I know of a girl who ovulated on the side where she had no tube and still got pg! So the body is mysterious!

Keep us updated as soon as you can. Good luck! Kim

HELP

Hie All

Well, Monday is D-DAY for me. I get to find out if my one and only precious tube is OK or if its blocked. I am sooooo nervous. I had my pre op visit yesterday and i told the doc i wanted to have ivf a.s.a.p. Well this is what he said. If the tube is blocked and there is no way to unblock it, then we go straight to ivf. If the tube in not blocked however and the tests show that i can conceive from it this is what he suggests.

He would like me to ttc naturally with 3 cycles. Each time he will monitor me very closely from the time i ovulate and see if i conceive.(WHY DIDN'T MY FIRST OB EVER DO THIS AFTER MY FIRST EP). He feels he is happy with ivf only if there is no way that it is possible for me to conceive naturally because of the financial aspect involved. He clearly stated though that it was entirely up to me. So now i am WONDERING WHAT TO DO. HHHEEEELLLLPPPP!!!!!!!!!!!!!!.

I know that i will only be faced with this decision if and only if my tube if fine but i would appreciate your input.

I have always wanted to know this ..... If a person has one tube do they ovulate every month and can they fall pregnant in any month OR do the ovaries alternate so that one month you ovulate from the left and in another month from the right. So you can only fall pg in the month that you ovulate from the side with the tube. This will mean that i can only fall pg in the months i am ovulating from the right tube. If anyone knows the answer to this please let me know.

I am really praying ALL goes well on Monday. By the way ALL the blood tests the doc did came out absolutely fine so no problems there. Lets see what happens next.

Thanx all for listening

Love

Shamiso

[Guest guest]

Tasha,

Welcome to the list. I am biased toward the diet, as it has been a

miracle for us. 's seizures are reduced by 95% and he is off all

seizure medicine. Getting him off the medicine has been worth it for us,

but with the reduction in seizures, our lives are more like a " normal "

family. Not to mention how much better feels. He was also a picky

eater, but surprised us by adapting to the diet very well. There is lots

of ways to make the diet appetizing (it ain't all butter and mayo). Once

again, welcome to the list. Hang around & you will learn lots, as this

is a very well versed group on epilepsy.

Kathy in Tennessee

Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced

Mom to 'lil sis, a - 3

" Even to your old age and gray hairs I am He, I am He who will sustain

you. I have made you and I will carry you; I will sustain you and I will

rescue you. "

Isaiah 46:4

On Thu, 04 Oct 2001 21:36:01 -0500 " Tasha Catoire "

writes:

> hi,

>

> this is my first post. hopefully some of you can help us.

>

> we have a 14 month old girl, developementally she is around 6/7

> months. she

> has severe epilepsy. we started out with infantile spasms at 9 1/2

> months

> old. we got those under control and the hypsarthmia is gone. we had

> to

> change meds she was having breakthrough chin quivers/seizures. we

> tried

> zonigran and klonipan and this worked but the klonipan is preventing

> her

> from sleeping. since we have in the past tried every med i think

> known to

> man our last resort is lamactil and zonigran combo. so far so good

> but as

> probably most of you know it will take 4 weeks to get an adequate

> dose of

> the lamactil in her blood and wein her off of the klonipan and then

> we will

> know if all is good or not.

>

> anyway, our next step if this doesnt work is the vegus nerve

> stimulator i

> was told by our epileptologist. we were wondering about the keto

> diet? our

> little one is a picky eater and drinker and doesnt eat on demand or

> drink on

> demand and she has no sleep/awake schedule. the spasms still have

> her messed

> up. i am worried that we would have to resort to a tube to feed her

> on time

> and the correct amounts of food. i would love to hear from any

> parents who

> can give us some advice.

>

> we are very torn. if the VNS would work i think it would be great

> but if not

> we'd probably have to try the diet anyway, tube or not. we want to

> make the

> right choice and still give her quality of life as far as eating.

> she is

> just starting to put things in her mouth and really not holding her

> bottle

> but we dont want to discourage any thing she puts in her mouth and

> of course

> on the diet this would pose a problem.

>

> i cook her foods already lots of butter and cream, i am sure not as

> much as

> which would be now needed. she will only drink karo water really we

> are just

> trying to get her started on some juices. she is so picky. she eats

> small

> amounts and drinks about 12-16 ounces of fluid usually a day.

>

> i would love to hear anyones pros and cons meds vs. diet vs. VNS. we

> trust

> our doctor but we want to do whats best currently for her and we

> just arent

> sure what that is. maybe if we could have some input from parents

> with

> difficult eaters, i just cant imagine having the stress of making

> sure she

> will eat every drop and not miss a bite etc.

>

> if the drugs end up working that would be great but with her

> epilepsy

> probably going to change again, and again this will be an ongoing

> thing. her

> eeg is still severely abnormal and would love to hear from any

> parents who

> have a child with severe epilepsy.

>

> when we were changing meds last week she had at the most 10 seizures

> a day.

> tonic-clonic in nature they would either just prevent her from

> breathing for

> maybe 25-30 seconds or be a 1 minute g-mal. we have been able to get

> them

> down, today she had 3 small where she just stop breathing about 20

> seconds

> and we only knew that because her apnea monitor would go off when

> she was

> napping.

>

> thanks to all

>

> tasha

> mom to 14 month old with severe seizure disorder and partical

> agenesis of

> the corpus callosum

>

> tcatoire@...

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com/intl.asp

>

>

>

[Guest guest]

Hi Tasha and welcome to our group. The first thing that struck me about your

post was that klonipan was preventing sleep. I think klonipan is a brand

name of a drug called clonazepam and, if so, it is the same as what we call

Rivotril and is a very sedating drug in most circumstances (I stand to be

corrected here, if anyone knows different) I find it interesting to hear of

how different people react in different ways to the same drugs. Our Hannah

(4.5yrs) has used clonazepam since she was a few months old, but I am not

sure that it sedates her. On the other hand it does not seem to keep her

awake. We have tried to wean it 3 times and ran into trouble each time with

withdrawal seizures. Lamictal helped for a while, but then its effectiveness

declined and its wean caused many severe seizures. Glad she is totally off

it now, and it was great to see the improved awareness when it was weaned.

If you can avoid it, then think very carefully about using Lamictal. The

diet has a far better chance of being effective than any medication at this

point, esp if a number of drugs have been tried and failed.

As the parent of a child who is totally tube fed I cannot emphasize how easy

the diet is to tube feed. I know the decision to have a gtube placement is a

huge one, but if you do choose this option the diet will be a cinch to do.

Even w/o a gtube I would think that the diet is worth a shot before

considering surgical options for seizure control. In the end you have to

weigh the pros and cons regarding how much food would be eaten, or not

eaten, the risks of surgery, and the need to reduce seizures. I'd be

inclined to try the diet first and see how well it is tolerated, then

perhaps consider a gtube. I understand its easy for me to say this from the

point of view of a parent whose child already had a gtube placed well before

the diet started, but I hope you can reach a decision soon. Hannah was never

able to eat enough to maintain health and so the diet would not be possible

for her without the gtube. I do believe that we would have considered a

gtube to enable her to try the keot diet, as her epilepsy is severe and not

well controlled. Six drugs failed to help and the diet has given far better

control than any of the drugs. It halved the number of sz's we were seeing

each day, and has allowed us to totally wean one of the three meds she was

on at the start of the diet. I dont think Hannah will ever be med free, but

at least we now can reasonably expect to reduce the meds to a minimum.

Let us know what you decide Tasha. Look forward to hearing from you.

(Hannah's mum, Australia)

[Guest guest]

Logan's experience with Klonopin is about the

same as Tasha is experiencing. As we increased the

drug Logan became hyper to a point of being completely

out of control. He would not sleep or eat. Lucky for

us we were in the hospital and was able to stop it

cold turkey. He is on tranxene which is in the same

category but have had better luck with doing a half

dose reduction rather than going slower.

I can't give you any answers on the gtube but

from what I have heard is that if it is an option it

is a huge help.

Good luck,

Take care,

Kalii

Mom to Logan 4 (ketokid since 07/01, seizure free) and

big brother Cody 8.

__________________________________________________

[Guest guest]

Those calories sound high. weighed 65 pounds when he started the diet. He was eight years old. He had gained weight when he was on Tegretol...our most disliked medication. We started him on 1200calories/day....400/meal. A year later he weighed 52 pounds. Now we're at a good place. He is at 1500 calories/day, and maintaining at 55 pounds. We have really followed 's appetite. He has very rarely complained about being hungry. When he was at a higher ratio, he sometimes complained about being too full. It worked for us then to lower the ratio a bit. takes the Bugs Bunny vitamins and Calcium pills. He is a great pill taker also.

Good luck!

help

Hello,

I need help. We are just starting this keto diet. I wrote earlier that sydney was so pale and sleepy. She still is. But a bigger problem than this for me is the meal sizes. She is so tiny and under weight. I have to fight her to eat. She cries when she sees me coming with food. It is not the food itself . It is the amount. She has never eaten this much food. By the time I get one meal down her, it is time to start the next. I think they have overcalculated for her. She wieghs 29 pounds now. She is 39 in. tall. She is very active. They have her down for three meals and a snack. Her prot. for each meal is 5.3. Her fat 39.6. Her carb. 4.6. The snack is 4:1 100 calories. they have her on a 4:1.Her total meal calories are 396. the total for the day is 1188. The paper also has this info on it. Dietary unit 40 Kcal 29.70 a day and 9.9 a meal. ( i have no idea what any of this is) It also has protien for the day is 15.90. It may be figured right but syd can not keep this much food down. Maybe she should do two meals a day. I dont know. She loved to eat now she hates it. I have threatened her with everything I can think of. She tries to eat ,but half way through she starts saying Im full. My tummy hurts. Thats when the battle begins. If you can help me please e-mail or I will call any where to talk to one of you. Another thing is she is throwing up the cal mag zinc suppl. from whole life. It makes her gag. I wished I could give her a pill. She is a great pill taker.

, Mom to sydney,age4

(ketokid10-8), and tyler 5 months old "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

DEAR JESSICA:

Do you have a good keto team supporting you? To me, the calories do sound high- is 8 years old 50 pounds and eats 1280 calories per day. The lethargy can be common at the start-but I think her ketones are quite high. Some kids do not need 16, as well as others actually do better between 4 and 8-but this is not always the case.

My first question is will your dietician lower the calories-SLOWLY-unless they are looking for weight gain? I would really get on their case to help you out here.

Why not split the meals into 4 to 6 smaller meals spread evenly thru the day. Use whipping cream in lieu of butter. You can whip and freeze pops etc.

I am going to try to attach a meal planner for you-I have never done this before-but I know that their are many others who can help you out if I fail. I hope you have EXCEL:-) You need it to run the meal planner.

I give a calcium/magnesium supplement in pill form-is this what you mean by you'd rather give a pill or did you mean AED's vs the Diet.

The first month on the diet is such a tremendous adjustment for you both. The younger the child the faster the adjustment. Please hang in there and push them to help you out. I have found that if I didn't push I got nothing-so go get'em

Hugs

Diane

help

Hello,

I need help. We are just starting this keto diet. I wrote earlier that sydney was so pale and sleepy. She still is. But a bigger problem than this for me is the meal sizes. She is so tiny and under weight. I have to fight her to eat. She cries when she sees me coming with food. It is not the food itself . It is the amount. She has never eaten this much food. By the time I get one meal down her, it is time to start the next. I think they have overcalculated for her. She wieghs 29 pounds now. She is 39 in. tall. She is very active. They have her down for three meals and a snack. Her prot. for each meal is 5.3. Her fat 39.6. Her carb. 4.6. The snack is 4:1 100 calories. they have her on a 4:1.Her total meal calories are 396. the total for the day is 1188. The paper also has this info on it. Dietary unit 40 Kcal 29.70 a day and 9.9 a meal. ( i have no idea what any of this is) It also has protien for the day is 15.90. It may be figured right but syd can not keep this much food down. Maybe she should do two meals a day. I dont know. She loved to eat now she hates it. I have threatened her with everything I can think of. She tries to eat ,but half way through she starts saying Im full. My tummy hurts. Thats when the battle begins. If you can help me please e-mail or I will call any where to talk to one of you. Another thing is she is throwing up the cal mag zinc suppl. from whole life. It makes her gag. I wished I could give her a pill. She is a great pill taker.

, Mom to sydney,age4

(ketokid10-8), and tyler 5 months old "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

,

Nick wouldn't eat his food either. Our dietitian had us on 875

cal. We are now down to 650 cal. Nick is 20 months, 23 pounds

and 33 inches long but he is not active. I gave him 6 meals

a day just to make them smaller portions. I am now doing 5 meals

a day because it works better with our schedule. I use an excel meal

planner I got for free on the internet. I usually change his meals

around according to how well he is eating. His total grams can be

any where from just 32 to 87 just depending on the food choices.

I sometimes puree 5 meals together in the blender.

We are weaning him off depakote now and he is eating much better.

I hope you can find the right mix. I know the menu's my dietitian

made out were not palatable. There are so many possibilities in meal

planning that I am sure you can find something that would work for Sydney.

I see someone has already attached the meal planner. It is great.

Dianna mom to 20 months Keto fed since 6-2001

Fritzenschaft wrote:

Hello, I

need help. We are just starting this keto diet. I wrote earlier that sydney

was so pale and sleepy. She still is. But a bigger problem than this for

me is the meal sizes. She is so tiny and under weight. I have to fight

her to eat. She cries when she sees me coming with food. It is not the

food itself . It is the amount. She has never eaten this much food. By

the time I get one meal down her, it is time to start the next. I think

they have overcalculated for her. She wieghs 29 pounds now. She is

39 in. tall. She is very active. They have her down for

three meals and a snack. Her prot. for each meal is 5.3. Her fat 39.6.

Her carb. 4.6. The snack is 4:1 100 calories. they have her on a

4:1.Her total meal calories are 396. the total for the day is 1188.

The paper also has this info on it. Dietary unit 40 Kcal 29.70 a

day and 9.9 a meal. ( i have no idea what any of this is) It also has protien

for the day is 15.90. It may be figured right but syd can not keep

this much food down. Maybe she should do two meals a day. I dont

know. She loved to eat now she hates it. I have threatened her with everything

I can think of. She tries to eat ,but half way through she starts saying

Im full. My tummy hurts. Thats when the battle begins. If you can help

me please e-mail or I will call any where to talk to one of you. Another

thing is she is throwing up the cal mag zinc suppl. from whole life. It

makes her gag. I wished I could give her a pill. She is a great pill taker. ,

Mom to sydney,age4(ketokid10-8),

and tyler 5 months old

"The Ketogenic Diet....a realistic treatment option, NOT

just a last resort!"

List is for parent to parent support only.

It is important to get medical advice from a professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

How is Sydney with the cream? When isn't feeling

well or is just plain fiesty, it's hard to get her to

drink the cream (which I do mix with the Cal/Mag/Zinc

II).

Sometimes you have to play with what works. I have

meals that look " big " and meals that look " small. "

You could try the peanut butter cookie recipe in the

files. That doesn't look like much food -- but gives

a treat, too. I calculate it with diluted cream --

for cookies and milk.

Her calories actually do seem a little high. is

6 years old and weighs 40 pounds -- she's on 1100

calories.

Also, in the beginning it was hard to get to

finish, too -- same when she's sick. The fat just

plain doesn't feel good to their systems -- think of

when we " binge " and eat something high fat. . .I feel

really bloated and yucky afterwards (although going

down, cheesecake is graet!). Then she went through a

phase where she was done eating in about a minute flat

and begging for more. That's closer to where we're at

now -- but I use a lot of lettuce to fill her up.

Good luck. . . and keep asking questions.--D

=====

DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly

reduced) and (, 4), sdale, AZ

" I know God would never give me more than I can handle. . .I just wish he didn't

trust me so much. " -- Mother Theresa

__________________________________________________

[Guest guest]

Hi,

Per Freeman's book, page 131, calories for a 4 year old are 65-68

kcal/kg. For 29 pounds or 13.2 kg, that would be 858 to 898 kcal. So you

are right. The calculations are off.

They are probably using RDA figures instead of 75% of RDA.

If it should be 880, then they would instead calculate 1173 calories

using RDA, which looks like what they did.

You should have much better results with the lower calories.

The other possibility is that they want her to gain weight; i.e. to get

to the 50 percentile. At this weight, she may do better on the diet.

Doing the calculations in reverse, that would mean that at 1188 kcal/day

at 66.5 kcal/kg, they are using an ideal weight of 17.9 kg or 39.4

pounds. This would appear to be quite an increase.

The example in Freeman's book on page 128 is nearly exactly like your

daughter except the weight is slightly more at 33 pounds. They calculate

1020 calories per day.

You should talk to the dietician as soon as possible. If that is not

possible, I would cut down on all quantities by 25%. For example, if the

recipe calls for 20 gm of butter, use 15 grams instead. You will need a

calculator or a high school student to calculate all the numbers. It

won't be exact, but it will be very close and better than keeping what

you have.

Otherwise your daughter will start vomiting or get reflux or refuse to

do the diet which is a lot worse.

Bill

> Fritzenschaft wrote:

>

> Hello,

>

> I need help. We are just starting this keto diet. I wrote earlier that

> sydney was so pale and sleepy. She still is. But a bigger problem than

> this for me is the meal sizes. She is so tiny and under weight. I have

> to fight her to eat. She cries when she sees me coming with food. It

> is not the food itself . It is the amount. She has never eaten this

> much food. By the time I get one meal down her, it is time to start

> the next. I think they have overcalculated for her. She wieghs 29

> pounds now. She is 39 in. tall. She is very active. They have her

> down for three meals and a snack. Her prot. for each meal is 5.3. Her

> fat 39.6. Her carb. 4.6. The snack is 4:1 100 calories. they have her

> on a 4:1.Her total meal calories are 396. the total for the day is

> 1188. The paper also has this info on it. Dietary unit 40 Kcal 29.70

> a day and 9.9 a meal. ( i have no idea what any of this is) It also

> has protien for the day is 15.90. It may be figured right but syd can

> not keep this much food down. Maybe she should do two meals a day. I

> dont know. She loved to eat now she hates it. I have threatened her

> with everything I can think of. She tries to eat ,but half way through

> she starts saying Im full. My tummy hurts. Thats when the battle

> begins. If you can help me please e-mail or I will call any where to

> talk to one of you. Another thing is she is throwing up the cal mag

> zinc suppl. from whole life. It makes her gag. I wished I could give

> her a pill. She is a great pill taker.

>

> , Mom to sydney,age4

> (ketokid10-8), and tyler 5 months old

[Guest guest]

<< I'm in a lot of pain. Is there any help out there?? Please help. Rose >>

Hi Rose,

What kind of pain? There is, I would say a lot of help right here depending

on what is wrong.

Anne

[Guest guest]

Rose,

Can you tell us if it's burning or what kind of pain, and where?

Lona

: Hi-

:

: I'm in a lot of pain. Is there any help out there??

:

: Please help.

:

: Rose

:

:

[Guest guest]

What state do you live in? I have a list of vulvar specialists by state. I

could see if there is one in yours. We all know how hard it is to find a

doctor who can help, much less take us seriously.

Bunny /| |\

. .

( ! )

Reply-To: VulvarDisorders

To: <VulvarDisorders >

Subject: help

Date: Sat, 1 Dec 2001 18:15:23 -0500

Hi-

I'm in a lot of pain. Is there any help out there??

Please help.

Rose

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

: Dear Lona-

:

: My pain is mostly on the right side, burning, stabbing, sometimes itching.

: It's hard

: to sit. I've had it for approx. 3 months, been to numerous doctors, had

: many tests

: and nothing shows up. Only muscle spasm on the right side.

:

: I'm taking pain medicine but none really help. I'm trying heating pad

: which helps

: minimally.

:

: Thanks for caring,

:

: Rose

---------

Rose,

How old are you? Are you on hormones? Did your doctor check your pH and

did your Dr. look for yeast or for bacterial infections? If you are in

that much discomfort, and this is all new to you, you might want to look at

a second opinion. I had muscles spasms that were relived by internal

vaginal massage. Maybe a physical therapist could address this? Also, on

my webpage, health links, you will find the Menopaus list. There are a

number of women there from Canada who might be able to direct you to a

competent provider. I have so many questions. Have you had children? Are

you wearing and IUD or what do you use for birth control. Give us as much

information as you can about yourself and maybe one of us will know what

direction to send you in. When you do the hot packs, make sure they are

moist. I'll look forward to hearing from you and feel free to write me off

list.

Lona

lona@...

http://tahomagirl.com

[Guest guest]

Hi Rose.

Do you have any back, hip, buttock or leg pain? If so, how long have you had

it?

TKOPT

www.tomocklerpt.com

rose wrote:

> Hi Anne-

>

> I have vulvodynia, pain in the vulva, mostly on the right side. Sometimes

> it's burning, stabbing, raw and I feel it mostly when I'm sitting down.

>

> I've been to 2 gynaecologists who have both told me there is nothing wrong

> with me. I've had numerous tests done, blood, x'rays which showed muscle

> spasm on the rt. pelvic area, ba enema, sigmoidoscopy. Everything is

> coming

> back normal and I am still suffering.

>

> I'm trying different pain meds, with little relief. I'm trying the low

> oxalate with

> calcium/citrate supplement and am trying estrogen creme also, however, it's

> too

> early to tell if anything is working. I get good days, but mostly bad.

>

> I've been in this type of pain for approx. 3 months and would like to hear

> from

> someone who has a similar problem. I am desperate for help.

>

> Thanks for caring,

>

> Rose

>

>

> *****END OF MESSAGE*****

> -------------------------------------------------

> To post message: VulvarDisorders

> To Subscribe: VulvarDisorders-subscribe

> Unsubscribe: VulvarDisorders-unsubscribe

> List owner: VulvarDisorders-owner

>

> *****

[Guest guest]

Hi,

Yes, I have buttock and leg pain, for approx. 3 months.

Rose

----------

>

> To: VulvarDisorders

> Subject: Re: help

> Date: Sunday, December 02, 2001 7:56 PM

>

> Hi Rose.

> Do you have any back, hip, buttock or leg pain? If so, how long have you

had it?

> TKOPT

> www.tomocklerpt.com

>

> rose wrote:

>

> > Hi Anne-

> >

> > I have vulvodynia, pain in the vulva, mostly on the right side.

Sometimes

> > it's burning, stabbing, raw and I feel it mostly when I'm sitting down.

> >

> > I've been to 2 gynaecologists who have both told me there is nothing

wrong

> > with me. I've had numerous tests done, blood, x'rays which showed

muscle

> > spasm on the rt. pelvic area, ba enema, sigmoidoscopy. Everything is

> > coming

> > back normal and I am still suffering.

> >

> > I'm trying different pain meds, with little relief. I'm trying the low

> > oxalate with

> > calcium/citrate supplement and am trying estrogen creme also, however,

it's

> > too

> > early to tell if anything is working. I get good days, but mostly bad.

> >

> > I've been in this type of pain for approx. 3 months and would like to

hear

> > from

> > someone who has a similar problem. I am desperate for help.

> >

> > Thanks for caring,

> >

> > Rose

> >

> >

> > *****END OF MESSAGE*****

> > -------------------------------------------------

> > To post message: VulvarDisorders

> > To Subscribe: VulvarDisorders-subscribe

> > Unsubscribe: VulvarDisorders-unsubscribe

> > List owner: VulvarDisorders-owner

> >

> > *****

[Guest guest]

Hi again,

Are you a physical therapist? If so, is there anything you can recommend

to

ease my suffering when I sit? What exactly is causing this pain? Is it

nerves being

pressed or muscle spasm? I teach small children and have to sit at my job

most of

the day, please, please help.

Thank you in advance,

Rose

----------

>

> To: VulvarDisorders

> Subject: Re: help

> Date: Sunday, December 02, 2001 7:56 PM

>

> Hi Rose.

> Do you have any back, hip, buttock or leg pain? If so, how long have you

had it?

> TKOPT

> www.tomocklerpt.com

>

> rose wrote:

>

> > Hi Anne-

> >

> > I have vulvodynia, pain in the vulva, mostly on the right side.

Sometimes

> > it's burning, stabbing, raw and I feel it mostly when I'm sitting down.

> >

> > I've been to 2 gynaecologists who have both told me there is nothing

wrong

> > with me. I've had numerous tests done, blood, x'rays which showed

muscle

> > spasm on the rt. pelvic area, ba enema, sigmoidoscopy. Everything is

> > coming

> > back normal and I am still suffering.

> >

> > I'm trying different pain meds, with little relief. I'm trying the low

> > oxalate with

> > calcium/citrate supplement and am trying estrogen creme also, however,

it's

> > too

> > early to tell if anything is working. I get good days, but mostly bad.

> >

> > I've been in this type of pain for approx. 3 months and would like to

hear

> > from

> > someone who has a similar problem. I am desperate for help.

> >

> > Thanks for caring,

> >

> > Rose

> >

> >

> > *****END OF MESSAGE*****

> > -------------------------------------------------

> > To post message: VulvarDisorders

> > To Subscribe: VulvarDisorders-subscribe

> > Unsubscribe: VulvarDisorders-unsubscribe

> > List owner: VulvarDisorders-owner

> >

> > *****

[Guest guest]

Hi there Rose,

Hear are all the specialists I have on my list for Canada. Two of them are

in Toronto. I marked them with stars.

Vulvar Specialists In Canada

S. C. Bryson MD

Division of GYN Oncology

Ann Baillie Bldg

Kingston General Hospital

Kingston, ON K7L 2V7

Canada

Terry J. Colgan MD***

Toronto General Hosptial

Department of Pathology

4E-301, 200 St.

Toronto, ON M5G 2C4

Canada

Fax:

H. Gerulath MD***

Dept. of Ob/Gyn

St. 30 Bond St. 7AS

Toronto, ON M5B 1W8

Canada

Fax:

Mel E. siel MD

Department of Ob/Gyn

North York General Hospital

4001 St.

North York, ON M2K 1E1

Canada

Fax:

Agnes E. Reicher MD

1333 Sheppard Ave E Ste 329

Willowdale, ON M2J 1J1

Canada

V. Cecil MD

10829 Old River Rd.

Komoka, ON N0L 1R0

Canada

Fax:

Celine Bouchard MD

2600 Blvd Laurier Ste 280

Sainte-Foy, PQ G1V 4T3

Canada

Fax:

Michel Fortier MD

Centre dPlace de la Cite

2600 boul. Laurier, Bureau 280

Sainte-Foy, PQ G1V 4T3

Canada

Fax:

Onnis MD

4900 Cote St. Luc Apt 212

Montral, PQ H3W 2H3

Canada

Fax:

Michel Roy MD

Hotel-Dieu de Quebec

11 Cote du Palais

Quebec, PQ G1R 2J6

Canada

Fax:

Email: michel.roy@...

Marc Steben MD

4647 Verdun

Verdun, PQ H4G 1M7

Canada

Fax:

Email: marc.steben@...

Bunny /| |\

. .

( ! )

Reply-To: VulvarDisorders

To: <VulvarDisorders >

Subject: Help

Date: Sun, 2 Dec 2001 15:35:08 -0500

Hi,

If anyone knows, could you please tell me if there are any vulvodynia

specialists in the Hamilton/Toronto area.

Thank you in advance.

Rose

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi ,

Thanks so much, you're a sweetheart.

Rose

----------

>

> To: VulvarDisorders

> Subject: Re: Help

> Date: Sunday, December 02, 2001 11:19 PM

>

> Hi there Rose,

>

> Hear are all the specialists I have on my list for Canada. Two of them

are

> in Toronto. I marked them with stars.

>

>

>

>

>

> Vulvar Specialists In Canada

>

> S. C. Bryson MD

> Division of GYN Oncology

> Ann Baillie Bldg

> Kingston General Hospital

> Kingston, ON K7L 2V7

> Canada

>

>

> Terry J. Colgan MD***

> Toronto General Hosptial

> Department of Pathology

> 4E-301, 200 St.

> Toronto, ON M5G 2C4

> Canada

>

> Fax:

>

>

>

> H. Gerulath MD***

> Dept. of Ob/Gyn

> St. 30 Bond St. 7AS

> Toronto, ON M5B 1W8

> Canada

>

> Fax:

>

> Mel E. siel MD

> Department of Ob/Gyn

> North York General Hospital

> 4001 St.

> North York, ON M2K 1E1

> Canada

>

> Fax:

>

> Agnes E. Reicher MD

> 1333 Sheppard Ave E Ste 329

> Willowdale, ON M2J 1J1

> Canada

>

>

> V. Cecil MD

> 10829 Old River Rd.

> Komoka, ON N0L 1R0

> Canada

>

> Fax:

>

> Celine Bouchard MD

> 2600 Blvd Laurier Ste 280

> Sainte-Foy, PQ G1V 4T3

> Canada

>

> Fax:

>

> Michel Fortier MD

> Centre dPlace de la Cite

> 2600 boul. Laurier, Bureau 280

> Sainte-Foy, PQ G1V 4T3

> Canada

>

> Fax:

>

>

>

> Onnis MD

> 4900 Cote St. Luc Apt 212

> Montral, PQ H3W 2H3

> Canada

>

> Fax:

>

> Michel Roy MD

> Hotel-Dieu de Quebec

> 11 Cote du Palais

> Quebec, PQ G1R 2J6

> Canada

>

> Fax:

> Email: michel.roy@...

> Marc Steben MD

> 4647 Verdun

> Verdun, PQ H4G 1M7

> Canada

>

> Fax:

> Email: marc.steben@...

>

>

>

>

> Bunny /| |\

> . .

> ( ! )

>

>

>

>

> Reply-To: VulvarDisorders

> To: <VulvarDisorders >

> Subject: Help

> Date: Sun, 2 Dec 2001 15:35:08 -0500

>

> Hi,

>

> If anyone knows, could you please tell me if there are any vulvodynia

> specialists in the Hamilton/Toronto area.

>

> Thank you in advance.

>

> Rose

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp

>

>

>

> *****END OF MESSAGE*****

> -------------------------------------------------

> To post message: VulvarDisorders

> To Subscribe: VulvarDisorders-subscribe

> Unsubscribe: VulvarDisorders-unsubscribe

> List owner: VulvarDisorders-owner

>

> *****

[Guest guest]

Hi Rose,

Yes I am a PT but I aman alternative or non-traditional one.

I was asked to be apart of this list by one of my former patientswh who had

intractable pain in the crotch ( medical terms) for 1 and a half years. She did

so well that she urged me to add this new approach to the

group for discussion and concideration. I will attatch my very first post to

the group for you to review about the musculo skeletal asymmetries which can

cause alot of havoc with your pelvis.

I'de have to get my hads on you to see how much of your pain is coming from the

pelvic floor muscle but in the meantime ..get on the phone and start calling PT

departments.Ask to speek with the director and ask if

they have anyone on staff who is expert in:

MUSCLE ENERGY TECHNIQUE

COUNTERSTRAIN

PELVIC FLOOR DYSFUNCTION.

If the answer is no , ask if he/she is aware of anyone who is. If the answer is

no...keep dialing.

Many of the women on this site have positive experience with PTs in their area

so tell us where you live and you will get responses.

As you will reed n my first post, there are some major problems that can occur

when the pelvis is asymmetrical and the msucles put preasure on the peudendal

nerve and blood vessels. Since the Pubic bone is one point

of attatchment and the Sacrum is the other, dysfunction in the pelvis and sacrum

can cause all sorts of problems. Don't expect the average OB or pain Doc to

agree with this mechinism..it is not in their scope of

study...Osteopaths on the other hand my have an inkling but may still not

understand much moer than that.

The butt pain with the crotch pain with the leg pain all point to a msuclulo

skeletal problem as part of the problem..maybe the problem in total.

Watch for the orriginal post...coming soon to a computer near you.

TKOPT

rose wrote:

> Hi again,

> Are you a physical therapist? If so, is there anything you can recommend

> to

> ease my suffering when I sit? What exactly is causing this pain? Is it

> nerves being

> pressed or muscle spasm? I teach small children and have to sit at my job

> most of

> the day, please, please help.

>

> Thank you in advance,

>

> Rose

>

> ----------

> >

> > To: VulvarDisorders

> > Subject: Re: help

> > Date: Sunday, December 02, 2001 7:56 PM

> >

> > Hi Rose.

> > Do you have any back, hip, buttock or leg pain? If so, how long have you

> had it?

> > TKOPT

> > www.tomocklerpt.com

> >

> > rose wrote:

> >

> > > Hi Anne-

> > >

> > > I have vulvodynia, pain in the vulva, mostly on the right side.

> Sometimes

> > > it's burning, stabbing, raw and I feel it mostly when I'm sitting down.

> > >

> > > I've been to 2 gynaecologists who have both told me there is nothing

> wrong

> > > with me. I've had numerous tests done, blood, x'rays which showed

> muscle

> > > spasm on the rt. pelvic area, ba enema, sigmoidoscopy. Everything is

> > > coming

> > > back normal and I am still suffering.

> > >

> > > I'm trying different pain meds, with little relief. I'm trying the low

> > > oxalate with

> > > calcium/citrate supplement and am trying estrogen creme also, however,

> it's

> > > too

> > > early to tell if anything is working. I get good days, but mostly bad.

> > >

> > > I've been in this type of pain for approx. 3 months and would like to

> hear

> > > from

> > > someone who has a similar problem. I am desperate for help.

> > >

> > > Thanks for caring,

> > >

> > > Rose

> > >

> > >

> > > *****END OF MESSAGE*****

> > > -------------------------------------------------

> > > To post message: VulvarDisorders

> > > To Subscribe: VulvarDisorders-subscribe

> > > Unsubscribe: VulvarDisorders-unsubscribe

> > > List owner: VulvarDisorders-owner

> > >

> > > *****

[Guest guest]

Tom

maybe you could help me: I have lordosis and scoliosis -I guess my pelvis is

assimetrical because of this.

I´ve had pain on contact on the vestibule, hymenal area and urethra for 12

years now. I always assumed it was due to some infection, alergy or

irritation, because it seemed a problem of the mucous membrane, not a nerve

or muscular pain. But recently there have been discussions suggesting that

pelvis problems might result in the kind of pain I have.

I live in Brazil. Are you aware of any practicioner here who might help me?

thanks

antonia

>

>Reply-To: VulvarDisorders

>To: VulvarDisorders

>Subject: Re: help

>Date: Mon, 03 Dec 2001 21:57:58 -0500

>

>Hi Rose,

>Yes I am a PT but I aman alternative or non-traditional one.

>I was asked to be apart of this list by one of my former patientswh who had

>intractable pain in the crotch ( medical terms) for 1 and a half years.

>She did so well that she urged me to add this new approach to the

>group for discussion and concideration. I will attatch my very first post

>to the group for you to review about the musculo skeletal asymmetries which

>can cause alot of havoc with your pelvis.

>I'de have to get my hads on you to see how much of your pain is coming from

>the pelvic floor muscle but in the meantime ..get on the phone and start

>calling PT departments.Ask to speek with the director and ask if

>they have anyone on staff who is expert in:

>MUSCLE ENERGY TECHNIQUE

>COUNTERSTRAIN

>PELVIC FLOOR DYSFUNCTION.

>If the answer is no , ask if he/she is aware of anyone who is. If the

>answer is no...keep dialing.

>Many of the women on this site have positive experience with PTs in their

>area so tell us where you live and you will get responses.

> As you will reed n my first post, there are some major problems that can

>occur when the pelvis is asymmetrical and the msucles put preasure on the

>peudendal nerve and blood vessels. Since the Pubic bone is one point

>of attatchment and the Sacrum is the other, dysfunction in the pelvis and

>sacrum can cause all sorts of problems. Don't expect the average OB or

>pain Doc to agree with this mechinism..it is not in their scope of

>study...Osteopaths on the other hand my have an inkling but may still not

>understand much moer than that.

>The butt pain with the crotch pain with the leg pain all point to a

>msuclulo skeletal problem as part of the problem..maybe the problem in

>total.

>Watch for the orriginal post...coming soon to a computer near you.

>TKOPT

>

>rose wrote:

>

> > Hi again,

> > Are you a physical therapist? If so, is there anything you can

>recommend

> > to

> > ease my suffering when I sit? What exactly is causing this pain? Is it

> > nerves being

> > pressed or muscle spasm? I teach small children and have to sit at my

>job

> > most of

> > the day, please, please help.

> >

> > Thank you in advance,

> >

> > Rose

> >

> > ----------

> > >

> > > To: VulvarDisorders

> > > Subject: Re: help

> > > Date: Sunday, December 02, 2001 7:56 PM

> > >

> > > Hi Rose.

> > > Do you have any back, hip, buttock or leg pain? If so, how long have

>you

> > had it?

> > > TKOPT

> > > www.tomocklerpt.com

> > >

> > > rose wrote:

> > >

> > > > Hi Anne-

> > > >

> > > > I have vulvodynia, pain in the vulva, mostly on the right side.

> > Sometimes

> > > > it's burning, stabbing, raw and I feel it mostly when I'm sitting

>down.

> > > >

> > > > I've been to 2 gynaecologists who have both told me there is nothing

> > wrong

> > > > with me. I've had numerous tests done, blood, x'rays which showed

> > muscle

> > > > spasm on the rt. pelvic area, ba enema, sigmoidoscopy. Everything

>is

> > > > coming

> > > > back normal and I am still suffering.

> > > >

> > > > I'm trying different pain meds, with little relief. I'm trying the

>low

> > > > oxalate with

> > > > calcium/citrate supplement and am trying estrogen creme also,

>however,

> > it's

> > > > too

> > > > early to tell if anything is working. I get good days, but mostly

>bad.

> > > >

> > > > I've been in this type of pain for approx. 3 months and would like

>to

> > hear

> > > > from

> > > > someone who has a similar problem. I am desperate for help.

> > > >

> > > > Thanks for caring,

> > > >

> > > > Rose

> > > >

> > > >

> > > > *****END OF MESSAGE*****

> > > > -------------------------------------------------

> > > > To post message: VulvarDisorders

> > > > To Subscribe: VulvarDisorders-subscribe

> > > > Unsubscribe: VulvarDisorders-unsubscribe

> > > > List owner: VulvarDisorders-owner

> > > >

> > > > *****

[Guest guest]

Hi Tom-

Thanks for your reply. I will try and get booked in to see a PT who works

in those areas you covered. Wish me luck, and again, I thank you.

P.S. I live in Hamilton, Ontario Canada

Rose

----------

>

> To: VulvarDisorders

> Subject: Re: help

> Date: Tuesday, December 04, 2001 9:43 AM

>

>

> Tom

>

> maybe you could help me: I have lordosis and scoliosis -I guess my pelvis

is

> assimetrical because of this.

>

> I´ve had pain on contact on the vestibule, hymenal area and urethra for

12

> years now. I always assumed it was due to some infection, alergy or

> irritation, because it seemed a problem of the mucous membrane, not a

nerve

> or muscular pain. But recently there have been discussions suggesting

that

> pelvis problems might result in the kind of pain I have.

>

> I live in Brazil. Are you aware of any practicioner here who might help

me?

>

> thanks

>

>

> antonia

>

>

>

> >

> >Reply-To: VulvarDisorders

> >To: VulvarDisorders

> >Subject: Re: help

> >Date: Mon, 03 Dec 2001 21:57:58 -0500

> >

> >Hi Rose,

> >Yes I am a PT but I aman alternative or non-traditional one.

> >I was asked to be apart of this list by one of my former patientswh who

had

> >intractable pain in the crotch ( medical terms) for 1 and a half years.

> >She did so well that she urged me to add this new approach to the

> >group for discussion and concideration. I will attatch my very first

post

> >to the group for you to review about the musculo skeletal asymmetries

which

> >can cause alot of havoc with your pelvis.

> >I'de have to get my hads on you to see how much of your pain is coming

from

> >the pelvic floor muscle but in the meantime ..get on the phone and start

> >calling PT departments.Ask to speek with the director and ask if

> >they have anyone on staff who is expert in:

> >MUSCLE ENERGY TECHNIQUE

> >COUNTERSTRAIN

> >PELVIC FLOOR DYSFUNCTION.

> >If the answer is no , ask if he/she is aware of anyone who is. If the

> >answer is no...keep dialing.

> >Many of the women on this site have positive experience with PTs in

their

> >area so tell us where you live and you will get responses.

> > As you will reed n my first post, there are some major problems that

can

> >occur when the pelvis is asymmetrical and the msucles put preasure on

the

> >peudendal nerve and blood vessels. Since the Pubic bone is one point

> >of attatchment and the Sacrum is the other, dysfunction in the pelvis

and

> >sacrum can cause all sorts of problems. Don't expect the average OB or

> >pain Doc to agree with this mechinism..it is not in their scope of

> >study...Osteopaths on the other hand my have an inkling but may still

not

> >understand much moer than that.

> >The butt pain with the crotch pain with the leg pain all point to a

> >msuclulo skeletal problem as part of the problem..maybe the problem in

> >total.

> >Watch for the orriginal post...coming soon to a computer near you.

> >TKOPT

> >

> >rose wrote:

> >

> > > Hi again,

> > > Are you a physical therapist? If so, is there anything you can

> >recommend

> > > to

> > > ease my suffering when I sit? What exactly is causing this pain? Is

it

> > > nerves being

> > > pressed or muscle spasm? I teach small children and have to sit at

my

> >job

> > > most of

> > > the day, please, please help.

> > >

> > > Thank you in advance,

> > >

> > > Rose

> > >

> > > ----------

> > > >

> > > > To: VulvarDisorders

> > > > Subject: Re: help

> > > > Date: Sunday, December 02, 2001 7:56 PM

> > > >

> > > > Hi Rose.

> > > > Do you have any back, hip, buttock or leg pain? If so, how long

have

> >you

> > > had it?

> > > > TKOPT

> > > > www.tomocklerpt.com

> > > >

> > > > rose wrote:

> > > >

> > > > > Hi Anne-

> > > > >

> > > > > I have vulvodynia, pain in the vulva, mostly on the right side.

> > > Sometimes

> > > > > it's burning, stabbing, raw and I feel it mostly when I'm sitting

> >down.

> > > > >

> > > > > I've been to 2 gynaecologists who have both told me there is

nothing

> > > wrong

> > > > > with me. I've had numerous tests done, blood, x'rays which

showed

> > > muscle

> > > > > spasm on the rt. pelvic area, ba enema, sigmoidoscopy.

Everything

> >is

> > > > > coming

> > > > > back normal and I am still suffering.

> > > > >

> > > > > I'm trying different pain meds, with little relief. I'm trying

the

> >low

> > > > > oxalate with

> > > > > calcium/citrate supplement and am trying estrogen creme also,

> >however,

> > > it's

> > > > > too

> > > > > early to tell if anything is working. I get good days, but

mostly

> >bad.

> > > > >

> > > > > I've been in this type of pain for approx. 3 months and would

like

> >to

> > > hear

> > > > > from

> > > > > someone who has a similar problem. I am desperate for help.

> > > > >

> > > > > Thanks for caring,

> > > > >

> > > > > Rose

> > > > >

> > > > >

> > > > > *****END OF MESSAGE*****

> > > > > -------------------------------------------------

> > > > > To post message: VulvarDisorders

> > > > > To Subscribe: VulvarDisorders-subscribe

> > > > > Unsubscribe: VulvarDisorders-unsubscribe

> > > > > List owner: VulvarDisorders-owner

> > > > >

> > > > > *****

[Guest guest]

Hi Tom-

Thanks for your reply. I will try and get booked in to see a PT who works

in those areas you covered. Wish me luck, and again, I thank you.

P.S. I live in Hamilton, Ontario Canada

Rose

----------

>

> To: VulvarDisorders

> Subject: Re: help

> Date: Tuesday, December 04, 2001 9:43 AM

>

>

> Tom

>

> maybe you could help me: I have lordosis and scoliosis -I guess my pelvis

is

> assimetrical because of this.

>

> I´ve had pain on contact on the vestibule, hymenal area and urethra for

12

> years now. I always assumed it was due to some infection, alergy or

> irritation, because it seemed a problem of the mucous membrane, not a

nerve

> or muscular pain. But recently there have been discussions suggesting

that

> pelvis problems might result in the kind of pain I have.

>

> I live in Brazil. Are you aware of any practicioner here who might help

me?

>

> thanks

>

>

> antonia

>

>

>

> >

> >Reply-To: VulvarDisorders

> >To: VulvarDisorders

> >Subject: Re: help

> >Date: Mon, 03 Dec 2001 21:57:58 -0500

> >

> >Hi Rose,

> >Yes I am a PT but I aman alternative or non-traditional one.

> >I was asked to be apart of this list by one of my former patientswh who

had

> >intractable pain in the crotch ( medical terms) for 1 and a half years.

> >She did so well that she urged me to add this new approach to the

> >group for discussion and concideration. I will attatch my very first

post

> >to the group for you to review about the musculo skeletal asymmetries

which

> >can cause alot of havoc with your pelvis.

> >I'de have to get my hads on you to see how much of your pain is coming

from

> >the pelvic floor muscle but in the meantime ..get on the phone and start

> >calling PT departments.Ask to speek with the director and ask if

> >they have anyone on staff who is expert in:

> >MUSCLE ENERGY TECHNIQUE

> >COUNTERSTRAIN

> >PELVIC FLOOR DYSFUNCTION.

> >If the answer is no , ask if he/she is aware of anyone who is. If the

> >answer is no...keep dialing.

> >Many of the women on this site have positive experience with PTs in

their

> >area so tell us where you live and you will get responses.

> > As you will reed n my first post, there are some major problems that

can

> >occur when the pelvis is asymmetrical and the msucles put preasure on

the

> >peudendal nerve and blood vessels. Since the Pubic bone is one point

> >of attatchment and the Sacrum is the other, dysfunction in the pelvis

and

> >sacrum can cause all sorts of problems. Don't expect the average OB or

> >pain Doc to agree with this mechinism..it is not in their scope of

> >study...Osteopaths on the other hand my have an inkling but may still

not

> >understand much moer than that.

> >The butt pain with the crotch pain with the leg pain all point to a

> >msuclulo skeletal problem as part of the problem..maybe the problem in

> >total.

> >Watch for the orriginal post...coming soon to a computer near you.

> >TKOPT

> >

> >rose wrote:

> >

> > > Hi again,

> > > Are you a physical therapist? If so, is there anything you can

> >recommend

> > > to

> > > ease my suffering when I sit? What exactly is causing this pain? Is

it

> > > nerves being

> > > pressed or muscle spasm? I teach small children and have to sit at

my

> >job

> > > most of

> > > the day, please, please help.

> > >

> > > Thank you in advance,

> > >

> > > Rose

> > >

> > > ----------

> > > >

> > > > To: VulvarDisorders

> > > > Subject: Re: help

> > > > Date: Sunday, December 02, 2001 7:56 PM

> > > >

> > > > Hi Rose.

> > > > Do you have any back, hip, buttock or leg pain? If so, how long

have

> >you

> > > had it?

> > > > TKOPT

> > > > www.tomocklerpt.com

> > > >

> > > > rose wrote:

> > > >

> > > > > Hi Anne-

> > > > >

> > > > > I have vulvodynia, pain in the vulva, mostly on the right side.

> > > Sometimes

> > > > > it's burning, stabbing, raw and I feel it mostly when I'm sitting

> >down.

> > > > >

> > > > > I've been to 2 gynaecologists who have both told me there is

nothing

> > > wrong

> > > > > with me. I've had numerous tests done, blood, x'rays which

showed

> > > muscle

> > > > > spasm on the rt. pelvic area, ba enema, sigmoidoscopy.

Everything

> >is

> > > > > coming

> > > > > back normal and I am still suffering.

> > > > >

> > > > > I'm trying different pain meds, with little relief. I'm trying

the

> >low

> > > > > oxalate with

> > > > > calcium/citrate supplement and am trying estrogen creme also,

> >however,

> > > it's

> > > > > too

> > > > > early to tell if anything is working. I get good days, but

mostly

> >bad.

> > > > >

> > > > > I've been in this type of pain for approx. 3 months and would

like

> >to

> > > hear

> > > > > from

> > > > > someone who has a similar problem. I am desperate for help.

> > > > >

> > > > > Thanks for caring,

> > > > >

> > > > > Rose

> > > > >

> > > > >

> > > > > *****END OF MESSAGE*****

> > > > > -------------------------------------------------

> > > > > To post message: VulvarDisorders

> > > > > To Subscribe: VulvarDisorders-subscribe

> > > > > Unsubscribe: VulvarDisorders-unsubscribe

> > > > > List owner: VulvarDisorders-owner

> > > > >

> > > > > *****

[Guest guest]

Hola Antonia,

It is more likely that the asymmetrical Pelvis caused the scoliosis / lordosis.

When chronic msucle tighness clamps down on the normal fluid movement through

the floor, it can set up an enviroment for irritation and secretion....this in

turn can set up infection and more irritation, etc.This is

just one of many etiology for problems in the area.

I'm Sorry, I don't know of anyone in Brazil but get on the phone and start

calling, asking for someone who is expert in:

Muscle Energy

Counterstrain

Pelvic floor dysfunction.

Let me know if I can help screen someone if you find a prospect.

TKOPT

Antonia Dodsworth wrote:

> Tom

>

> maybe you could help me: I have lordosis and scoliosis -I guess my pelvis is

> assimetrical because of this.

>

> I´ve had pain on contact on the vestibule, hymenal area and urethra for 12

> years now. I always assumed it was due to some infection, alergy or

> irritation, because it seemed a problem of the mucous membrane, not a nerve

> or muscular pain. But recently there have been discussions suggesting that

> pelvis problems might result in the kind of pain I have.

>

> I live in Brazil. Are you aware of any practicioner here who might help me?

>

> thanks

>

> antonia

>

> >

> >Reply-To: VulvarDisorders

> >To: VulvarDisorders

> >Subject: Re: help

> >Date: Mon, 03 Dec 2001 21:57:58 -0500

> >

> >Hi Rose,

> >Yes I am a PT but I aman alternative or non-traditional one.

> >I was asked to be apart of this list by one of my former patientswh who had

> >intractable pain in the crotch ( medical terms) for 1 and a half years.

> >She did so well that she urged me to add this new approach to the

> >group for discussion and concideration. I will attatch my very first post

> >to the group for you to review about the musculo skeletal asymmetries which

> >can cause alot of havoc with your pelvis.

> >I'de have to get my hads on you to see how much of your pain is coming from

> >the pelvic floor muscle but in the meantime ..get on the phone and start

> >calling PT departments.Ask to speek with the director and ask if

> >they have anyone on staff who is expert in:

> >MUSCLE ENERGY TECHNIQUE

> >COUNTERSTRAIN

> >PELVIC FLOOR DYSFUNCTION.

> >If the answer is no , ask if he/she is aware of anyone who is. If the

> >answer is no...keep dialing.

> >Many of the women on this site have positive experience with PTs in their

> >area so tell us where you live and you will get responses.

> > As you will reed n my first post, there are some major problems that can

> >occur when the pelvis is asymmetrical and the msucles put preasure on the

> >peudendal nerve and blood vessels. Since the Pubic bone is one point

> >of attatchment and the Sacrum is the other, dysfunction in the pelvis and

> >sacrum can cause all sorts of problems. Don't expect the average OB or

> >pain Doc to agree with this mechinism..it is not in their scope of

> >study...Osteopaths on the other hand my have an inkling but may still not

> >understand much moer than that.

> >The butt pain with the crotch pain with the leg pain all point to a

> >msuclulo skeletal problem as part of the problem..maybe the problem in

> >total.

> >Watch for the orriginal post...coming soon to a computer near you.

> >TKOPT

> >

> >rose wrote:

> >

> > > Hi again,

> > > Are you a physical therapist? If so, is there anything you can

> >recommend

> > > to

> > > ease my suffering when I sit? What exactly is causing this pain? Is it

> > > nerves being

> > > pressed or muscle spasm? I teach small children and have to sit at my

> >job

> > > most of

> > > the day, please, please help.

> > >

> > > Thank you in advance,

> > >

> > > Rose

> > >

> > > ----------

> > > >

> > > > To: VulvarDisorders

> > > > Subject: Re: help

> > > > Date: Sunday, December 02, 2001 7:56 PM

> > > >

> > > > Hi Rose.

> > > > Do you have any back, hip, buttock or leg pain? If so, how long have

> >you

> > > had it?

> > > > TKOPT

> > > > www.tomocklerpt.com

> > > >

> > > > rose wrote:

> > > >

> > > > > Hi Anne-

> > > > >

> > > > > I have vulvodynia, pain in the vulva, mostly on the right side.

> > > Sometimes

> > > > > it's burning, stabbing, raw and I feel it mostly when I'm sitting

> >down.

> > > > >

> > > > > I've been to 2 gynaecologists who have both told me there is nothing

> > > wrong

> > > > > with me. I've had numerous tests done, blood, x'rays which showed

> > > muscle

> > > > > spasm on the rt. pelvic area, ba enema, sigmoidoscopy. Everything

> >is

> > > > > coming

> > > > > back normal and I am still suffering.

> > > > >

> > > > > I'm trying different pain meds, with little relief. I'm trying the

> >low

> > > > > oxalate with

> > > > > calcium/citrate supplement and am trying estrogen creme also,

> >however,

> > > it's

> > > > > too

> > > > > early to tell if anything is working. I get good days, but mostly

> >bad.

> > > > >

> > > > > I've been in this type of pain for approx. 3 months and would like

> >to

> > > hear

> > > > > from

> > > > > someone who has a similar problem. I am desperate for help.

> > > > >

> > > > > Thanks for caring,

> > > > >

> > > > > Rose

> > > > >

> > > > >

> > > > > *****END OF MESSAGE*****

> > > > > -------------------------------------------------

> > > > > To post message: VulvarDisorders

> > > > > To Subscribe: VulvarDisorders-subscribe

> > > > > Unsubscribe: VulvarDisorders-unsubscribe

> > > > > List owner: VulvarDisorders-owner

> > > > >

> > > > > *****