New to group

[Guest guest]

Anyway I just wanted to introduce myself and say HI!

Hello ! I love this group - everyone here is real supportive and there is a TON of information.

If you find yourself overwhelmed by the emails, try digest or reading them on the web. I was away for a few days and WHOOOOOAAAA! lol of course, I still have them come individually because I have NO life and email is what I do Take care and welcome

(((Hugs)))

[Guest guest]

Welcome , it can all be overwhelming, but being newly dx'd I

have found this group to be warm and supportive and full of useful

information. hugs Deb in Ohio-

-- In Fibromyalgia_Support_Group , " sunflowergardens "

<Sunflowergardens@a...> wrote:

> Hi All,

>

> My name is , I am 34, I have 5 kids and live in

Illinois. I

> have been suffering with Cfids and Fibro since my last child was

born in 99.

> I do not get a lot of support at home. I am hoping that I will

be able to

> make some friends here that understand what I go through, like the

constant

> pain, brain fog, depression and anxiety to name a few. lol.

>

> Anyway I just wanted to introduce myself and say HI!

>

>

[Guest guest]

Welcome , it can all be overwhelming, but being newly dx'd I

have found this group to be warm and supportive and full of useful

information. hugs Deb in Ohio-

-- In Fibromyalgia_Support_Group , " sunflowergardens "

<Sunflowergardens@a...> wrote:

> Hi All,

>

> My name is , I am 34, I have 5 kids and live in

Illinois. I

> have been suffering with Cfids and Fibro since my last child was

born in 99.

> I do not get a lot of support at home. I am hoping that I will

be able to

> make some friends here that understand what I go through, like the

constant

> pain, brain fog, depression and anxiety to name a few. lol.

>

> Anyway I just wanted to introduce myself and say HI!

>

>

[Guest guest]

LOL! I am the same as you! I do email! I also work as a sub lunch lady at my kids school and would you believe even the couple days a week I work is to much for me sometimes?! That just frustrates me so! But I am so glad I joined this group and will be able to talk to people who understand! Thank You for the welcome!! HUG... Anyway I just wanted to introduce myself and say HI! Hello ! I love this group - everyone here is real supportive and there is a TON of information. If you find yourself overwhelmed by the emails, try digest or reading them on the web. I was away for a few days and WHOOOOOAAAA! lol of course, I still have them come individually because I have NO life and email is what I do Take care and welcome (((Hugs))) 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

HI Deb! Thank You for the welcome! I am really looking forward to being a member of this group! HUG... Welcome , it can all be overwhelming, but being newly dx'd I have found this group to be warm and supportive and full of useful information. hugs Deb in Ohio- -- In Fibromyalgia_Support_Group , "sunflowergardens" <Sunflowergardens@a...> wrote: > Hi All, > > My name is , I am 34, I have 5 kids and live in Illinois. I > have been suffering with Cfids and Fibro since my last child was born in 99. > I do not get a lot of support at home. I am hoping that I will be able to > make some friends here that understand what I go through, like the constant > pain, brain fog, depression and anxiety to name a few. lol. > > Anyway I just wanted to introduce myself and say HI! > >

[Guest guest]

Hello ,

Welcome to the group. It's so sad to hear of people who don't have support at home. You really need it. You have a busy life with 5 kids!

This group will support you, give information, and generally just be here for you. We understand fully what this disease does to us.

There are a lot of us who don't have support from our husbads, boyfriends, etc. I think mainly it's out of fear and ignorance. It's a good idea to give your husband some of the information that's available on the web. There is a great "Letter to Normals" that really explains things. It may be in our files of this group. If not let me know and I'll send it to you.

Kathleen

[Guest guest]

Hello ,

Welcome to the group. It's so sad to hear of people who don't have support at home. You really need it. You have a busy life with 5 kids!

This group will support you, give information, and generally just be here for you. We understand fully what this disease does to us.

There are a lot of us who don't have support from our husbads, boyfriends, etc. I think mainly it's out of fear and ignorance. It's a good idea to give your husband some of the information that's available on the web. There is a great "Letter to Normals" that really explains things. It may be in our files of this group. If not let me know and I'll send it to you.

Kathleen

[Guest guest]

Hello ,

Welcome to the group. It's so sad to hear of people who don't have support at home. You really need it. You have a busy life with 5 kids!

This group will support you, give information, and generally just be here for you. We understand fully what this disease does to us.

There are a lot of us who don't have support from our husbads, boyfriends, etc. I think mainly it's out of fear and ignorance. It's a good idea to give your husband some of the information that's available on the web. There is a great "Letter to Normals" that really explains things. It may be in our files of this group. If not let me know and I'll send it to you.

Kathleen

[Guest guest]

> Her hardest time is getting up

> in the mornings.

> I would appreciate any suggestions on what I can do to help her, and what

> she could do to try do have FMS be so overwhelming.

Loriann,

I don't know if this will help your sister, but what helps me is to

plan for some morning quiet time. I set my alarm early, and then turn

on the lights, put on my glasses, and sit up, but just do nothing for

30 minutes to an hour. I might read or watch tv, but I don't do

anything physical (except to go to the bathroom.) It seems to help if

my blood starts flowing and my body wakes up.

My husband has started doing this for me if I take a nap -- he wakes

me up about 30 minutes before I *must* get up and lets me get up

slowly. It really makes all of the difference for me.

--

Patti

pattirobinson@...

http://www.discoverytoyslink.com/pattirobinson

[Guest guest]

Dear Wayney,

Thank you for you responce. I love my sister and I see her in pain, I want to do all I can for her.

Bummer about your family.

hugs,

Loriann on IdahoWaynette Porter wrote:

Welcome. So many families have a hard time evenbelieving in how rough this can be so I applaud youfor wanting to help your sister. (My family is notone of the non-believing familes). I just have to saythat I like the Salonpas. It helps if I use it beforewhatever I am putting it on is screaming. Unfortunately, I can't cover myself in them. WayneyGOD IS LOVE

[Guest guest]

Welcome Loriann. Have your sister join us, we'd love to have her. How nice of you to seek out info and support for her.

Unfortunately, the sleep issue is something I struggle with too. Mornings are ROUGH. The only thing that gets me out of bed in the morning is knowing that feeding my husband and two kitties depends on it. My doctor put me on 10 mg of Doxepin (an anti-depressant) to help me sleep, but I think it's made the problem worse, actually. I go back to him next month so I will post anything I find out.Amy Swinderman Live aloha!__________________________________________________

[Guest guest]

I would suggest beginning with a saliva cortiosl test. We have found

that blood testing for adrenal fatigue is VERY unreliable, and as oyu

show low even oin that, you could have quite severe AF. You can order

your own sliva testing throughwww.canaryclub.org or www.salivatest.com

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

[Guest guest]

I've heard about saliva testing, but have never had it done because of the

expense. I know many people feel it's quite reasonable, but everything is

relative, and for us $150 is a HUGE amount of money. But I guess I'll see what

I can do to set the money aside and have it done. Clearly I'm not getting

anywhere with the blood tests. Question though.... after testing comes back,

if it indicated a problem.... what then? Do you show it to your Dr.? Do they

honor saliva testing? Or are you then left to self treat?

[Guest guest]

I've heard about saliva testing, but have never had it done because of the

expense. I know many people feel it's quite reasonable, but everything is

relative, and for us $150 is a HUGE amount of money. But I guess I'll see what

I can do to set the money aside and have it done. Clearly I'm not getting

anywhere with the blood tests. Question though.... after testing comes back,

if it indicated a problem.... what then? Do you show it to your Dr.? Do they

honor saliva testing? Or are you then left to self treat?

[Guest guest]

,

I have a good gynecologist who is " holistically " oriented and she orders all my

saliva tests thru Diagnos-tech labs and bills to my insurance. I recently had

the saliva adrenal testing PLUS the entire menstrual cycle female sex hormone

testing and it was all billed to my insurance. These docs may be hard to find,

especially depending on where you live, but it's worth the search.

Re: new to group

I've heard about saliva testing, but have never had it done because of the

expense. I know many people feel it's quite reasonable, but everything is

relative, and for us $150 is a HUGE amount of money. But I guess I'll see what I

can do to set the money aside and have it done. Clearly I'm not getting anywhere

with the blood tests. Question though.... after testing comes back, if it

indicated a problem.... what then? Do you show it to your Dr.? Do they honor

saliva testing? Or are you then left to self treat?

[Guest guest]

,

I have a good gynecologist who is " holistically " oriented and she orders all my

saliva tests thru Diagnos-tech labs and bills to my insurance. I recently had

the saliva adrenal testing PLUS the entire menstrual cycle female sex hormone

testing and it was all billed to my insurance. These docs may be hard to find,

especially depending on where you live, but it's worth the search.

Re: new to group

I've heard about saliva testing, but have never had it done because of the

expense. I know many people feel it's quite reasonable, but everything is

relative, and for us $150 is a HUGE amount of money. But I guess I'll see what I

can do to set the money aside and have it done. Clearly I'm not getting anywhere

with the blood tests. Question though.... after testing comes back, if it

indicated a problem.... what then? Do you show it to your Dr.? Do they honor

saliva testing? Or are you then left to self treat?

[Guest guest]

That's good to hear. I wonder if I contacted my Dr. if he would do that. He's

a pretty open guy. In fact, he was so puzzled by my combination of symptoms and

lab results that he basically said if I could come up with something to test or

wanted to look into, he'd be open to whatever. And that he would look into

things also. I didn't figure insurance would pay either way, but if they would

I'm all for it! Thanks for the suggestion.

[Guest guest]

That's good to hear. I wonder if I contacted my Dr. if he would do that. He's

a pretty open guy. In fact, he was so puzzled by my combination of symptoms and

lab results that he basically said if I could come up with something to test or

wanted to look into, he'd be open to whatever. And that he would look into

things also. I didn't figure insurance would pay either way, but if they would

I'm all for it! Thanks for the suggestion.

[Guest guest]

That's good to hear. I wonder if I contacted my Dr. if he would do that. He's

a pretty open guy. In fact, he was so puzzled by my combination of symptoms and

lab results that he basically said if I could come up with something to test or

wanted to look into, he'd be open to whatever. And that he would look into

things also. I didn't figure insurance would pay either way, but if they would

I'm all for it! Thanks for the suggestion.

[Guest guest]

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[Guest guest]

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[Guest guest]

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[Guest guest]

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[Guest guest]

Thank you I hope to learn a lot hereeidwriter@... wrote: Welcome Lia so glad to have you with us. Eva Get a sneak peek of the all-new AOL.com.

Choose the right car based on your needs. Check out Yahoo! Autos new Car Finder tool.

[Guest guest]

Well we are happy to have you welcome EvaSee what's new at AOL.com and Make AOL Your Homepage.