New to group

[Guest guest]

Hello! Welcome to the group. My name is . I have been in this

group for a little over a month now. You couldn't find a better

group of ladies or a better place to get your questions answered.

If there is anything that you would like to know, I'm sure that

everyone will do their best to answer all your questions.

Hugs,

> Hello Everyone!!

> I am very new to all of this. I actually just started researching

> having a reversal. I am very impressed with the results of this

> Doctor. I asked my OBGYN once to perform this surgery and he said

it

> is impossible..LOL..I actually believed this. I was told IVF was

the

> only way. I have never tired this but was going to in a couple of

> years until I found the web site on reversals. I have emailed for

> more information and will visit the hospital one day this week for

my

> surgery report. I was hoping I could be one of those that consider

it

> unlucky, and conceive after a tubal, but I think I want a child so

> badly I would never get that lucky. I have been a nurse for 4

years

> and have talked many young women out of tubals since you never

know

> what could happen. My husband died six months after I got mine,

and

> now I have remarried and love this man dearly and would love

nothing

> more than to give him a child of his own. I hope one day soon our

> dreams of another child in the house will come true. I have

learned

> alot from your postings and hope to continue to learn. I

congratulate

> all of you that have had the surgery and now have a bundle of

JOY!! I

> also wish everyone well in the processes of once again becoming

> parents. Also how does the buddy work and does anyone want one for

> sometime next year?

[Guest guest]

Welcome!

Here is a link to the thyroid section of about.com. This site has

loads of really great info on everything thyroid (hypo, hyper, cancer

etc.)

http://thyroid.about.com/

And here is some info about hives:

Hives Linked to Autoimmune Thyroid Disease

Research reported on in the journal Dermatology found that the

frequency of thyroid autoantibodies is significantly higher in

patients with chronic urticaria (hives) than in healthy controls. In

the study, all the patients with thyroid autoantibodies had so-

called " normal " test results. Researchers concluded that there is a

significant association between chronic urticaria and thyroid

autoimmunity, but only the thyroid antibody tests are relevant in

patients with chronic urticaria, versus thyroid function tests.

They also have links to more information about hives and treatment.

Again welcome!

Louise

> Hi everyone

>

> I am new to this group. My name is Nita, I live in Avondale, AZ

and I have autoimmune thyroid disease. I also have a gluten

intolerance. I have been on thyroid meds for the past 20 years. I

am currently covered in hives, which the doctor says is from the

antibodies. There probably are so many questions that I have that it

is hard to think of them all at once. I am going to see an

endocronoigist on Sept 13th. ( soonest I could get in). Any

suggestions on books or web sites that will help me with the many

questions that I have? Being gluten intollerant I am not sure what

diet to follow. This is such a mess. I am glad I found a group that

has some of the same things going on as I do. Other people have a

hard time relating to this.

>

> Thanks Nita

[Guest guest]

Welcome!

Here is a link to the thyroid section of about.com. This site has

loads of really great info on everything thyroid (hypo, hyper, cancer

etc.)

http://thyroid.about.com/

And here is some info about hives:

Hives Linked to Autoimmune Thyroid Disease

Research reported on in the journal Dermatology found that the

frequency of thyroid autoantibodies is significantly higher in

patients with chronic urticaria (hives) than in healthy controls. In

the study, all the patients with thyroid autoantibodies had so-

called " normal " test results. Researchers concluded that there is a

significant association between chronic urticaria and thyroid

autoimmunity, but only the thyroid antibody tests are relevant in

patients with chronic urticaria, versus thyroid function tests.

They also have links to more information about hives and treatment.

Again welcome!

Louise

> Hi everyone

>

> I am new to this group. My name is Nita, I live in Avondale, AZ

and I have autoimmune thyroid disease. I also have a gluten

intolerance. I have been on thyroid meds for the past 20 years. I

am currently covered in hives, which the doctor says is from the

antibodies. There probably are so many questions that I have that it

is hard to think of them all at once. I am going to see an

endocronoigist on Sept 13th. ( soonest I could get in). Any

suggestions on books or web sites that will help me with the many

questions that I have? Being gluten intollerant I am not sure what

diet to follow. This is such a mess. I am glad I found a group that

has some of the same things going on as I do. Other people have a

hard time relating to this.

>

> Thanks Nita

[Guest guest]

Welcome!

Here is a link to the thyroid section of about.com. This site has

loads of really great info on everything thyroid (hypo, hyper, cancer

etc.)

http://thyroid.about.com/

And here is some info about hives:

Hives Linked to Autoimmune Thyroid Disease

Research reported on in the journal Dermatology found that the

frequency of thyroid autoantibodies is significantly higher in

patients with chronic urticaria (hives) than in healthy controls. In

the study, all the patients with thyroid autoantibodies had so-

called " normal " test results. Researchers concluded that there is a

significant association between chronic urticaria and thyroid

autoimmunity, but only the thyroid antibody tests are relevant in

patients with chronic urticaria, versus thyroid function tests.

They also have links to more information about hives and treatment.

Again welcome!

Louise

> Hi everyone

>

> I am new to this group. My name is Nita, I live in Avondale, AZ

and I have autoimmune thyroid disease. I also have a gluten

intolerance. I have been on thyroid meds for the past 20 years. I

am currently covered in hives, which the doctor says is from the

antibodies. There probably are so many questions that I have that it

is hard to think of them all at once. I am going to see an

endocronoigist on Sept 13th. ( soonest I could get in). Any

suggestions on books or web sites that will help me with the many

questions that I have? Being gluten intollerant I am not sure what

diet to follow. This is such a mess. I am glad I found a group that

has some of the same things going on as I do. Other people have a

hard time relating to this.

>

> Thanks Nita

[Guest guest]

> Hi everyone

>

> I am new to this group. My name is Nita, I live in Avondale, AZ

and I have autoimmune thyroid disease. I also have a gluten

intolerance.

_______________________

I am a celiac, which I'm not sure is the same thing as gluten

intolerance. But, it is common for celiacs to develope auto-immune

thyroid disease. I would suggest a book called " Breaking the

Viscious Cycle " by Elain Gothschall. She claims her special diet

will cure celiac disease. It didn't for me, however I can now

tolerate the occasional exposure to wheat without getting as

seriously sick. I did benifit a lot from the diet anyway. It is an

excellent diet for curing intestinal ills. You did not say whether

you are continuing to eat wheat. If this is so, it might explain

your rash. Celiacs often develope a red and painful rash from

exposure to wheat. It is an auto-immune reaction.

Your intestines actually make up 80% of your immune system and takes

up the surface area of a tennis court. That is why it is so

important for celiacs to stay away from wheat. It is a tremendous

burden to the whole system and really is damaging to immune function

and overwhelming work for the adrenals just to handle the damage.

I would also suggest you read " Gail's Thyroid Tips " This is an

excellently researched article about thyroid treatment.

http://personal.bellsouth.net/w/u/wurmstei/

I don't think much of endocrinologists. The vast majority are very

rigid and backward in their ideas. They rarely prescribe Armour and

tend to undertreat hypothyroidism, fiercly adhering to lab results,

which are of dubious use for those with auto-immune thyroid disease.

Alternative D.O.s and holistic docs are much more open minded.

Tish

[Guest guest]

Hi Nita...

Welcome...

Yes.. it is nice to have a place to go where folks understand what you are talking about. It's difficult for someone without limitations to understand what it's like ....

I'm not the one to help you with the gluten intolerance. Others her are far more knowledgeable on that subject than I... but want you to know that you are welcome...

I'm not trying to come off as a know it all right now.. but I'm really curious about the meds that you are taking and dosage... and what you labs look like. There are times that symptoms are aggravated or relieved with the correct adjustment in type of thyroid hormone replacement and the dose.

If you'd like to explore that more, in fact, whatever questions that you have... just give us a holler and we'll see if any of us are able to help.. We've got a pretty good knowledge base here and quite a range of experience... You're more that welcome to share.

Topper ()

On Fri, 30 Jul 2004 05:55:34 -0700 "Nita Sage" writes:

Hi everyone

I am new to this group. My name is Nita, I live in Avondale, AZ and I have autoimmune thyroid disease. I also have a gluten intolerance. I have been on thyroid meds for the past 20 years. I am currently covered in hives, which the doctor says is from the antibodies. There probably are so many questions that I have that it is hard to think of them all at once. I am going to see an endocronoigist on Sept 13th. ( soonest I could get in). Any suggestions on books or web sites that will help me with the many questions that I have? Being gluten intollerant I am not sure what diet to follow. This is such a mess. I am glad I found a group that has some of the same things going on as I do. Other people have a hard time relating to this.

Thanks Nita

[Guest guest]

Hi Nita

Gluten intolerance is Celiac Disease, and it is another autoimmune disease, with antibodies. You should not consume anything that is wheat, oats, rye, all other grains, except you can have rice. Packaged goodies, many innocent looking things, including SOME canned soups and other canned foods have gluten in many forms, which you cannot have definitely. What sort of symptoms have you had with the intolerance and what med are you on for thyroid disease? Do you have recent labs, with the reference ranges? Do you feel very bad?

New to group

Hi everyone

I am new to this group. My name is Nita, I live in Avondale, AZ and I have autoimmune thyroid disease. I also have a gluten intolerance. I have been on thyroid meds for the past 20 years. I am currently covered in hives, which the doctor says is from the antibodies. There probably are so many questions that I have that it is hard to think of them all at once. I am going to see an endocronoigist on Sept 13th. ( soonest I could get in). Any suggestions on books or web sites that will help me with the many questions that I have? Being gluten intollerant I am not sure what diet to follow. This is such a mess. I am glad I found a group that has some of the same things going on as I do. Other people have a hard time relating to this.

Thanks Nita

[Guest guest]

They told me I can eat fresh rolled oats oatmeal, not packaged instant.

Where did you hear about oats? Oh, I would hate to lose that

>

>Reply-To: The_Thyroid_Support_Group

>To: <The_Thyroid_Support_Group >

>Subject: Re: New to group

>Date: Fri, 30 Jul 2004 17:40:21 -0500

>

>Hi Nita

>

>Gluten intolerance is Celiac Disease, and it is another autoimmune disease,

>with antibodies. You should not consume anything that is wheat, oats, rye,

>all other grains, except you can have rice. Packaged goodies, many

>innocent looking things, including SOME canned soups and other canned foods

>have gluten in many forms, which you cannot have definitely. What sort of

>symptoms have you had with the intolerance and what med are you on for

>thyroid disease? Do you have recent labs, with the reference ranges? Do

>you feel very bad?

>

>

>

> New to group

>

>

> Hi everyone

>

> I am new to this group. My name is Nita, I live in Avondale, AZ and I

>have autoimmune thyroid disease. I also have a gluten intolerance. I have

>been on thyroid meds for the past 20 years. I am currently covered in

>hives, which the doctor says is from the antibodies. There probably are so

>many questions that I have that it is hard to think of them all at once. I

>am going to see an endocronoigist on Sept 13th. ( soonest I could get in).

> Any suggestions on books or web sites that will help me with the many

>questions that I have? Being gluten intollerant I am not sure what diet to

>follow. This is such a mess. I am glad I found a group that has some of

>the same things going on as I do. Other people have a hard time relating

>to this.

>

> Thanks Nita

[Guest guest]

They told me I can eat fresh rolled oats oatmeal, not packaged instant.

Where did you hear about oats? Oh, I would hate to lose that

>

>Reply-To: The_Thyroid_Support_Group

>To: <The_Thyroid_Support_Group >

>Subject: Re: New to group

>Date: Fri, 30 Jul 2004 17:40:21 -0500

>

>Hi Nita

>

>Gluten intolerance is Celiac Disease, and it is another autoimmune disease,

>with antibodies. You should not consume anything that is wheat, oats, rye,

>all other grains, except you can have rice. Packaged goodies, many

>innocent looking things, including SOME canned soups and other canned foods

>have gluten in many forms, which you cannot have definitely. What sort of

>symptoms have you had with the intolerance and what med are you on for

>thyroid disease? Do you have recent labs, with the reference ranges? Do

>you feel very bad?

>

>

>

> New to group

>

>

> Hi everyone

>

> I am new to this group. My name is Nita, I live in Avondale, AZ and I

>have autoimmune thyroid disease. I also have a gluten intolerance. I have

>been on thyroid meds for the past 20 years. I am currently covered in

>hives, which the doctor says is from the antibodies. There probably are so

>many questions that I have that it is hard to think of them all at once. I

>am going to see an endocronoigist on Sept 13th. ( soonest I could get in).

> Any suggestions on books or web sites that will help me with the many

>questions that I have? Being gluten intollerant I am not sure what diet to

>follow. This is such a mess. I am glad I found a group that has some of

>the same things going on as I do. Other people have a hard time relating

>to this.

>

> Thanks Nita

[Guest guest]

Oats are included in that. Can't remember all the sites I've read it, but

it's been plenty of them. The rice is the only grain that can be eaten.

Well, there is another one, but I can't remember the name of the grain.

Re: New to group

> They told me I can eat fresh rolled oats oatmeal, not packaged instant.

> Where did you hear about oats? Oh, I would hate to lose that

[Guest guest]

Damn, no wonder I look bloated again

>

>Reply-To: The_Thyroid_Support_Group

>To: <The_Thyroid_Support_Group >

>Subject: Re: New to group

>Date: Fri, 30 Jul 2004 19:37:49 -0500

>

Oats are included in that. Can't remember all the sites I've read it, but

it's been plenty of them. The rice is the only grain that can be eaten.

Well, there is another one, but I can't remember the name of the grain.

Re: New to group

> They told me I can eat fresh rolled oats oatmeal, not packaged instant.

> Where did you hear about oats? Oh, I would hate to lose that

[Guest guest]

I do not know why some doctors believe that it is only wheat gluten, though

that one is the first one thought of and the most commonly eaten.

Re: New to group

> Damn, no wonder I look bloated again

[Guest guest]

I do not know why some doctors believe that it is only wheat gluten, though

that one is the first one thought of and the most commonly eaten.

Re: New to group

> Damn, no wonder I look bloated again

[Guest guest]

I do not know why some doctors believe that it is only wheat gluten, though

that one is the first one thought of and the most commonly eaten.

Re: New to group

> Damn, no wonder I look bloated again

[Guest guest]

My tests came back weird, so unless they do a biospy they will not know for

sure, but the low folic and b-12 are classic indicators. I have joined the

celiac list to get more info

>

>Reply-To: The_Thyroid_Support_Group

>To: <The_Thyroid_Support_Group >

>Subject: Re: New to group

>Date: Sun, 1 Aug 2004 10:52:51 -0500

>

I do not know why some doctors believe that it is only wheat gluten, though

that one is the first one thought of and the most commonly eaten.

Re: New to group

> Damn, no wonder I look bloated again

[Guest guest]

My tests came back weird, so unless they do a biospy they will not know for

sure, but the low folic and b-12 are classic indicators. I have joined the

celiac list to get more info

>

>Reply-To: The_Thyroid_Support_Group

>To: <The_Thyroid_Support_Group >

>Subject: Re: New to group

>Date: Sun, 1 Aug 2004 10:52:51 -0500

>

I do not know why some doctors believe that it is only wheat gluten, though

that one is the first one thought of and the most commonly eaten.

Re: New to group

> Damn, no wonder I look bloated again

[Guest guest]

My tests came back weird, so unless they do a biospy they will not know for

sure, but the low folic and b-12 are classic indicators. I have joined the

celiac list to get more info

>

>Reply-To: The_Thyroid_Support_Group

>To: <The_Thyroid_Support_Group >

>Subject: Re: New to group

>Date: Sun, 1 Aug 2004 10:52:51 -0500

>

I do not know why some doctors believe that it is only wheat gluten, though

that one is the first one thought of and the most commonly eaten.

Re: New to group

> Damn, no wonder I look bloated again

[Guest guest]

The only way that I knew that there wasn't an absorption problem was by

taking the tests again, after treating with the folic acid by mouth,

swallowed, (but the B12 was is sublingual), and then retesting the blood

counts. I redid the tests in almost exactly 3 months, and no longer was

showing the anemia, though I did NOT rerun the folic acid again. This was

also when my thyroid hormone levels got so much better. Go figure.

Re: New to group

> My tests came back weird, so unless they do a biospy they will not know

for

> sure, but the low folic and b-12 are classic indicators. I have joined the

> celiac list to get more info

[Guest guest]

The only way that I knew that there wasn't an absorption problem was by

taking the tests again, after treating with the folic acid by mouth,

swallowed, (but the B12 was is sublingual), and then retesting the blood

counts. I redid the tests in almost exactly 3 months, and no longer was

showing the anemia, though I did NOT rerun the folic acid again. This was

also when my thyroid hormone levels got so much better. Go figure.

Re: New to group

> My tests came back weird, so unless they do a biospy they will not know

for

> sure, but the low folic and b-12 are classic indicators. I have joined the

> celiac list to get more info

[Guest guest]

The only way that I knew that there wasn't an absorption problem was by

taking the tests again, after treating with the folic acid by mouth,

swallowed, (but the B12 was is sublingual), and then retesting the blood

counts. I redid the tests in almost exactly 3 months, and no longer was

showing the anemia, though I did NOT rerun the folic acid again. This was

also when my thyroid hormone levels got so much better. Go figure.

Re: New to group

> My tests came back weird, so unless they do a biospy they will not know

for

> sure, but the low folic and b-12 are classic indicators. I have joined the

> celiac list to get more info

[Guest guest]

yeah, I was on shots of b-12 for a month, then we added folic acid plus I

was taking 10 mg a day of folic acid and 25mg of b-12. That went on for 3

months. When I started with Friedman, I had to stop all supplements for a

week then get tested. My folic acid and b-12 were over the top but my

aldosterone, rein, transferrin and ferritin were still low.

>

>Reply-To: The_Thyroid_Support_Group

>To: <The_Thyroid_Support_Group >

>Subject: Re: New to group

>Date: Sun, 1 Aug 2004 13:27:30 -0500

>

The only way that I knew that there wasn't an absorption problem was by

taking the tests again, after treating with the folic acid by mouth,

swallowed, (but the B12 was is sublingual), and then retesting the blood

counts. I redid the tests in almost exactly 3 months, and no longer was

showing the anemia, though I did NOT rerun the folic acid again. This was

also when my thyroid hormone levels got so much better. Go figure.

Re: New to group

> My tests came back weird, so unless they do a biospy they will not know

for

> sure, but the low folic and b-12 are classic indicators. I have joined the

> celiac list to get more info

[Guest guest]

yeah, I was on shots of b-12 for a month, then we added folic acid plus I

was taking 10 mg a day of folic acid and 25mg of b-12. That went on for 3

months. When I started with Friedman, I had to stop all supplements for a

week then get tested. My folic acid and b-12 were over the top but my

aldosterone, rein, transferrin and ferritin were still low.

>

>Reply-To: The_Thyroid_Support_Group

>To: <The_Thyroid_Support_Group >

>Subject: Re: New to group

>Date: Sun, 1 Aug 2004 13:27:30 -0500

>

The only way that I knew that there wasn't an absorption problem was by

taking the tests again, after treating with the folic acid by mouth,

swallowed, (but the B12 was is sublingual), and then retesting the blood

counts. I redid the tests in almost exactly 3 months, and no longer was

showing the anemia, though I did NOT rerun the folic acid again. This was

also when my thyroid hormone levels got so much better. Go figure.

Re: New to group

> My tests came back weird, so unless they do a biospy they will not know

for

> sure, but the low folic and b-12 are classic indicators. I have joined the

> celiac list to get more info

[Guest guest]

yeah, I was on shots of b-12 for a month, then we added folic acid plus I

was taking 10 mg a day of folic acid and 25mg of b-12. That went on for 3

months. When I started with Friedman, I had to stop all supplements for a

week then get tested. My folic acid and b-12 were over the top but my

aldosterone, rein, transferrin and ferritin were still low.

>

>Reply-To: The_Thyroid_Support_Group

>To: <The_Thyroid_Support_Group >

>Subject: Re: New to group

>Date: Sun, 1 Aug 2004 13:27:30 -0500

>

The only way that I knew that there wasn't an absorption problem was by

taking the tests again, after treating with the folic acid by mouth,

swallowed, (but the B12 was is sublingual), and then retesting the blood

counts. I redid the tests in almost exactly 3 months, and no longer was

showing the anemia, though I did NOT rerun the folic acid again. This was

also when my thyroid hormone levels got so much better. Go figure.

Re: New to group

> My tests came back weird, so unless they do a biospy they will not know

for

> sure, but the low folic and b-12 are classic indicators. I have joined the

> celiac list to get more info

[Guest guest]

I've heard that you can't have natural thyroid imported but that you can have it made up for you by a compounding pharmacist.....

Topper ()

On Wed, 29 Sep 2004 05:22:15 -0000 "" writes:

I would just like to add, how good it is to be able to be a part of this group. I have found my experiences with thyroid disorders rather isolating. If anyone would like to know more about my personal stuggle my webpage is http://www.geocities.com/jgjuleg/fundmental_as_anything.html,As I am an Australian my problems are compunded as we do not have a very wide range of drugfs to chose from, so any suggestions for natural therpies would be appreciated.Jule G

[Guest guest]

Anyway I just wanted to introduce myself and say HI!

Hello ! I love this group - everyone here is real supportive and there is a TON of information.

If you find yourself overwhelmed by the emails, try digest or reading them on the web. I was away for a few days and WHOOOOOAAAA! lol of course, I still have them come individually because I have NO life and email is what I do Take care and welcome

(((Hugs)))