questions

[Guest guest]

Patty,

Ask what chemo you are getting, side effects, how often you will get it, any special instructions the onc may have, is it ok to work, drive, ask about nausea meds. Will you hair fall out. Thats all I can think of at this time. You are in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: questions

Hallelujah! Patty I'm so glad they are going to help you.

I am newly diagnosed. I met with the surgeon yesterday. Because I am way underinsured, it is going to be a process. But I fould out yesterday, that through the Rose, they plan on getting my testing, my treatments and etc without me having to pay for it. I cant believe it. This is certainly not what I expected. She confirmed what I thought in terms of me being at least stage III. Now to get the tests done so we will know whether I have crossed that line and am actually a stage IV. I guess one of the good things is that I do know at this time is that the cancer is Grade I so it is not acting in a real aggressive manner at this time. Anyway, it still seems very unreal and very real all at the same time.

Patty

[Guest guest]

Patty,

Ask what chemo you are getting, side effects, how often you will get it, any special instructions the onc may have, is it ok to work, drive, ask about nausea meds. Will you hair fall out. Thats all I can think of at this time. You are in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: questions

Hallelujah! Patty I'm so glad they are going to help you.

I am newly diagnosed. I met with the surgeon yesterday. Because I am way underinsured, it is going to be a process. But I fould out yesterday, that through the Rose, they plan on getting my testing, my treatments and etc without me having to pay for it. I cant believe it. This is certainly not what I expected. She confirmed what I thought in terms of me being at least stage III. Now to get the tests done so we will know whether I have crossed that line and am actually a stage IV. I guess one of the good things is that I do know at this time is that the cancer is Grade I so it is not acting in a real aggressive manner at this time. Anyway, it still seems very unreal and very real all at the same time.

Patty

[Guest guest]

Patty,

Ask what chemo you are getting, side effects, how often you will get it, any special instructions the onc may have, is it ok to work, drive, ask about nausea meds. Will you hair fall out. Thats all I can think of at this time. You are in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: questions

Hallelujah! Patty I'm so glad they are going to help you.

I am newly diagnosed. I met with the surgeon yesterday. Because I am way underinsured, it is going to be a process. But I fould out yesterday, that through the Rose, they plan on getting my testing, my treatments and etc without me having to pay for it. I cant believe it. This is certainly not what I expected. She confirmed what I thought in terms of me being at least stage III. Now to get the tests done so we will know whether I have crossed that line and am actually a stage IV. I guess one of the good things is that I do know at this time is that the cancer is Grade I so it is not acting in a real aggressive manner at this time. Anyway, it still seems very unreal and very real all at the same time.

Patty

[Guest guest]

I had a chemo angel myself. My first day I was also scared, they put me in a room with a lady that was on her last treatment. She told me everything that was going to happen to me. I really appreciated that. One day after I got up the nerve to go without my wig, I was in the grocery store. This lady walked up to me and said, is this because of chemo, If so I was in your shoes a few months ago. It was the same lady that I had sat with on my first chemo day. We both laughed and talked for a long time.

Jeana

[Guest guest]

I had a chemo angel myself. My first day I was also scared, they put me in a room with a lady that was on her last treatment. She told me everything that was going to happen to me. I really appreciated that. One day after I got up the nerve to go without my wig, I was in the grocery store. This lady walked up to me and said, is this because of chemo, If so I was in your shoes a few months ago. It was the same lady that I had sat with on my first chemo day. We both laughed and talked for a long time.

Jeana

[Guest guest]

God is so so very good. Wow, great share moment.

Ren

[Guest guest]

God is so so very good. Wow, great share moment.

Ren

[Guest guest]

Thanks for sharing that, I am looking forward to my chemo angel.

Ren

[Guest guest]

Thanks for sharing that, I am looking forward to my chemo angel.

Ren

[Guest guest]

Thanks for sharing that, I am looking forward to my chemo angel.

Ren

[Guest guest]

Carol, I remember after my biopsy that the twinges were so bad sometimes I thought I was having a heart attack. It was like the muscles were cramping up. Ow did it hurt. So, I think that part is normal. Also, I would contact Lynley at the Caring Voice Coalition - X161 with help with finding medical insurance. She is in Washington DC I think until Thursday, but call and leave a message, she will get back to you as soon as she can. She may be able to help you in ways you haven't thought of yet! Take care. Leanne uip 1/03 Illinoiscarol pennington wrote: Hi EveryoneI hope someone can answer these questions I have. First I am no longer on Predisone, my Dr. doesn't want me to take it, says has to many side effects (you think. Well first, I have been having problems with my hair falling out, my teeth are more sensitive and the side I had the Lung Bio. It gets hards, I get twinges and sometimes hurt. It feels like that side of my body is turning to stone and then others it's perfectly OK. Also sometimes my body feels like I did 10 hours of exercise and of course I haven't done anything. I knoe I was on heavy meds when I was in the hospital but that was in Feb and March. I'm only on 2 liters or less of oxygen. I had a PFT test done, but of course when I went to

the county to the Dr. I asked her how the test was and this was her answer, It's fine for what you have. It was a cattle call that day, so I was pushed out of the ofc so fast I didn't have time to swallow. So what I need to know are these things that are happening the sort of norm for PF. Also I need to know what does the end stage mean or what is it. I read people here making ref to it. Also I was told if I don't have insurance I wouldn't get a transplant, my husband is on Medicare so I don't have any. I'm starting to get my disability check so could somebody tell me if there is a cheap insurance I could get I mean I could spend about 200.00 a month that's about all I have. If anybody could answer these questions I would appreciate it. Thanks Carol Sue PF 03/07

Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV.

[Guest guest]

Carol, I remember after my biopsy that the twinges were so bad sometimes I thought I was having a heart attack. It was like the muscles were cramping up. Ow did it hurt. So, I think that part is normal. Also, I would contact Lynley at the Caring Voice Coalition - X161 with help with finding medical insurance. She is in Washington DC I think until Thursday, but call and leave a message, she will get back to you as soon as she can. She may be able to help you in ways you haven't thought of yet! Take care. Leanne uip 1/03 Illinoiscarol pennington wrote: Hi EveryoneI hope someone can answer these questions I have. First I am no longer on Predisone, my Dr. doesn't want me to take it, says has to many side effects (you think. Well first, I have been having problems with my hair falling out, my teeth are more sensitive and the side I had the Lung Bio. It gets hards, I get twinges and sometimes hurt. It feels like that side of my body is turning to stone and then others it's perfectly OK. Also sometimes my body feels like I did 10 hours of exercise and of course I haven't done anything. I knoe I was on heavy meds when I was in the hospital but that was in Feb and March. I'm only on 2 liters or less of oxygen. I had a PFT test done, but of course when I went to

the county to the Dr. I asked her how the test was and this was her answer, It's fine for what you have. It was a cattle call that day, so I was pushed out of the ofc so fast I didn't have time to swallow. So what I need to know are these things that are happening the sort of norm for PF. Also I need to know what does the end stage mean or what is it. I read people here making ref to it. Also I was told if I don't have insurance I wouldn't get a transplant, my husband is on Medicare so I don't have any. I'm starting to get my disability check so could somebody tell me if there is a cheap insurance I could get I mean I could spend about 200.00 a month that's about all I have. If anybody could answer these questions I would appreciate it. Thanks Carol Sue PF 03/07

Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV.

[Guest guest]

Dear Carol,

           I know

that ‘turning to stone’ feeling very well after my lung biopsy –

I was told that a nerve had been ‘nicked’ & it can take months

or even a couple of YEARS to subside…luckily mine has finally calmed down

a lot since my biopsy in June this year, but it’s still there as a sort

of ‘shadow’ dead feeling!

          

Regards,

          

in Oz

            IPF:

Fibrotic NSIP/UIP?

              May

2007

From:

Breathe-Support [mailto:Breathe-Support ] On Behalf Of carol pennington

Sent: Tuesday, 25 September 2007

2:30 AM

To:

Breathe-Support

Subject:

questions

Hi Everyone

I hope someone can answer these questions I have. First I am no

longer on Predisone, my Dr. doesn't want me to take it, says has to

many side effects (you think. Well first, I have been having

problems with my hair falling out, my teeth are more sensitive and

the side I had the Lung Bio. It gets hards, I get twinges and

sometimes hurt. It feels like that side of my body is turning to

stone and then others it's perfectly OK. Also sometimes my body

feels like I did 10 hours of exercise and of course I haven't done

anything. I knoe I was on heavy meds when I was in the hospital but

that was in Feb and March. I'm only on 2 liters or less of oxygen.

I had a PFT test done, but of course when I went to the county to

the Dr. I asked her how the test was and this was her answer, It's

fine for what you have. It was a cattle call that day, so I was

pushed out of the ofc so fast I didn't have time to swallow. So

what I need to know are these things that are happening the sort of

norm for PF. Also I need to know what does the end stage mean or

what is it. I read people here making ref to it. Also I was told

if I don't have insurance I wouldn't get a transplant, my husband is

on Medicare so I don't have any. I'm starting to get my disability

check so could somebody tell me if there is a cheap insurance I

could get I mean I could spend about 200.00 a month that's about all

I have. If anybody could answer these questions I would appreciate

it. Thanks Carol Sue PF 03/07

[Guest guest]

Dear Carol,

           I know

that ‘turning to stone’ feeling very well after my lung biopsy –

I was told that a nerve had been ‘nicked’ & it can take months

or even a couple of YEARS to subside…luckily mine has finally calmed down

a lot since my biopsy in June this year, but it’s still there as a sort

of ‘shadow’ dead feeling!

          

Regards,

          

in Oz

            IPF:

Fibrotic NSIP/UIP?

              May

2007

From:

Breathe-Support [mailto:Breathe-Support ] On Behalf Of carol pennington

Sent: Tuesday, 25 September 2007

2:30 AM

To:

Breathe-Support

Subject:

questions

Hi Everyone

I hope someone can answer these questions I have. First I am no

longer on Predisone, my Dr. doesn't want me to take it, says has to

many side effects (you think. Well first, I have been having

problems with my hair falling out, my teeth are more sensitive and

the side I had the Lung Bio. It gets hards, I get twinges and

sometimes hurt. It feels like that side of my body is turning to

stone and then others it's perfectly OK. Also sometimes my body

feels like I did 10 hours of exercise and of course I haven't done

anything. I knoe I was on heavy meds when I was in the hospital but

that was in Feb and March. I'm only on 2 liters or less of oxygen.

I had a PFT test done, but of course when I went to the county to

the Dr. I asked her how the test was and this was her answer, It's

fine for what you have. It was a cattle call that day, so I was

pushed out of the ofc so fast I didn't have time to swallow. So

what I need to know are these things that are happening the sort of

norm for PF. Also I need to know what does the end stage mean or

what is it. I read people here making ref to it. Also I was told

if I don't have insurance I wouldn't get a transplant, my husband is

on Medicare so I don't have any. I'm starting to get my disability

check so could somebody tell me if there is a cheap insurance I

could get I mean I could spend about 200.00 a month that's about all

I have. If anybody could answer these questions I would appreciate

it. Thanks Carol Sue PF 03/07

[Guest guest]

Dear Carol,

           I know

that ‘turning to stone’ feeling very well after my lung biopsy –

I was told that a nerve had been ‘nicked’ & it can take months

or even a couple of YEARS to subside…luckily mine has finally calmed down

a lot since my biopsy in June this year, but it’s still there as a sort

of ‘shadow’ dead feeling!

          

Regards,

          

in Oz

            IPF:

Fibrotic NSIP/UIP?

              May

2007

From:

Breathe-Support [mailto:Breathe-Support ] On Behalf Of carol pennington

Sent: Tuesday, 25 September 2007

2:30 AM

To:

Breathe-Support

Subject:

questions

Hi Everyone

I hope someone can answer these questions I have. First I am no

longer on Predisone, my Dr. doesn't want me to take it, says has to

many side effects (you think. Well first, I have been having

problems with my hair falling out, my teeth are more sensitive and

the side I had the Lung Bio. It gets hards, I get twinges and

sometimes hurt. It feels like that side of my body is turning to

stone and then others it's perfectly OK. Also sometimes my body

feels like I did 10 hours of exercise and of course I haven't done

anything. I knoe I was on heavy meds when I was in the hospital but

that was in Feb and March. I'm only on 2 liters or less of oxygen.

I had a PFT test done, but of course when I went to the county to

the Dr. I asked her how the test was and this was her answer, It's

fine for what you have. It was a cattle call that day, so I was

pushed out of the ofc so fast I didn't have time to swallow. So

what I need to know are these things that are happening the sort of

norm for PF. Also I need to know what does the end stage mean or

what is it. I read people here making ref to it. Also I was told

if I don't have insurance I wouldn't get a transplant, my husband is

on Medicare so I don't have any. I'm starting to get my disability

check so could somebody tell me if there is a cheap insurance I

could get I mean I could spend about 200.00 a month that's about all

I have. If anybody could answer these questions I would appreciate

it. Thanks Carol Sue PF 03/07

[Guest guest]

I would like to have discussions with someone who has gone through seed therapy (Brachytherapy). I am contemplating choosing that one but would like to talk to someone who has gone through it already.Another one I am contemplating is External Beam Therapy using the IMRT form. If there is anyone who I could talk with who has been there and done that, please contact me.Craigc/o coffeygal_2000@...

[Guest guest]

Steve,Thanks for the info. I understand what you are saying about everyone being different and have taken that into consideration. Thanks again. Craig

> I would like to have discussions with someone who has gone through seed

> therapy (Brachytherapy) . I am contemplating choosing that one but would

> like to talk to someone who has gone through it already.

Can't help there, but I'm sure others will respond.

> Another one I am contemplating is External Beam Therapy using the IMRT

> form. If there is anyone who I could talk with who has been there and

> done that, please contact me.

Here, I can make a contribution. BUT: anything I or anyone writes about

personal experience is anecdotal and should not ever be relied upon as a

basis for one's treatment selection. Each of us is different. What helps

A might harm B, and vice versa.

In my case, Gleason 9 plus another Gleason 8 tumor and failed cryo, I

underwent IMRT (intensity-modulate d RT) in September - October 2004,

with adjuvant ADT (androgen deprivation therapy). 38 sessions, 62

segments each to the 83.4% isodose line. Total gland dose = 76 Gy.

Pelvic lymph nodes 45 Gy. Seminal vesicles 55 Gy.

So far, with the help of intermittent ADT, so good. PSA now <0.03 ng/mL

(the lab will not report any lower than that because it seems to confuse

too many medics).

Side effects: here's where the huge differences between patients arise.

My SEs were quite mild. Brief period of fecal urgency, no accidents.

For objective and above all reliable information go to the encyclopedic

site of the Prostate Cancer Research Institute (PCRI) at

http://prostate- cancer.org/ index.html and search on IMRT.

The newest form of IMRT is IGRT (image-guided RT), which employs a CT

scan before each session to locate the gland and other organs. It also

delivers the beam in a helical, 360-degree, fashion. IMRT uses a "step &

shoot" method from, IIRC, 5 positions in about a 190-degree arc.

Information can be found on the PCRI site.

Good luck.

Regards,

Steve J

"Find people who are more interested in helping you to learn than

teaching you what *they* think you need to know. Pay heed first to those

who will help you to learn, e.g., how to do an Internet Web search."

-- Young, PCa Mentor

Phoenix 5

[Guest guest]

Another site you might go to isd Prostatepointers. They have

several different ones, including one for seeds and probably one for

other radiation treatment. Have you been to a doc or docs that do

those?

>

> I would like to have discussions with someone who has gone through

seed therapy (Brachytherapy). I am contemplating choosing that one

but would like to talk to someone who has gone through it already.

>

> Another one I am contemplating is External Beam Therapy using the

IMRT form. If there is anyone who I could talk with who has been

there and done that, please contact me.

>

> Craig

> c/o coffeygal_2000@...

>

[Guest guest]

Another site you might go to isd Prostatepointers. They have

several different ones, including one for seeds and probably one for

other radiation treatment. Have you been to a doc or docs that do

those?

>

> I would like to have discussions with someone who has gone through

seed therapy (Brachytherapy). I am contemplating choosing that one

but would like to talk to someone who has gone through it already.

>

> Another one I am contemplating is External Beam Therapy using the

IMRT form. If there is anyone who I could talk with who has been

there and done that, please contact me.

>

> Craig

> c/o coffeygal_2000@...

>

[Guest guest]

Another site you might go to isd Prostatepointers. They have

several different ones, including one for seeds and probably one for

other radiation treatment. Have you been to a doc or docs that do

those?

>

> I would like to have discussions with someone who has gone through

seed therapy (Brachytherapy). I am contemplating choosing that one

but would like to talk to someone who has gone through it already.

>

> Another one I am contemplating is External Beam Therapy using the

IMRT form. If there is anyone who I could talk with who has been

there and done that, please contact me.

>

> Craig

> c/o coffeygal_2000@...

>

[Guest guest]

Hi Craig,

Steve is right to caution you about relying on anecdotes, but here is mine: Diagnosed with Gleason 7 (4+3), cancer in less than 10% of the biopsy samples, T2a, PSA 5.56 end of July 2008 at age 48. MRI revealed 1cc tumour confined to left lobe only. Prostate volume 28.88cc.

Started 40 sessions of IGRT early September and finished 4th Nov 2008 with a max of 82.3Gy, 25 sessions were directed at the prostate and seminal vesicles and the remaining 15 at the prostate only. Radiation delivered by Varian equipment and software. I felt virtually normal throughout the treatment though went to bed for an hour after each session - sometimes slept sometimes didn't. Had some urinary urgency, mostly during treatment sessions as I had to drink a litre of water before each session; never had an accident. I continued my social and sex life as normal throughout treatment. Had mild constipation during a lot of time during treatment but kept under control by flax seeds and a stool softener drink (also had Cicitradine suppositories during treatment to replace mucous lining). Expected fatigue was way less than I has feared though I took last 10 days of treatment off work, really as reward to myself rather than a necessity.

3 months after treatment PSA has halved to 2,8 which my Oncologist is very happy with (PSA should continue to fall over next 18months to not more than 0.8). Currently have no erection problems, no incontinence problems (i.e. ZERO, not when I laugh nor when orgasm, sneeze etc) and no bowel problems nor discomfort (had 3 or 4 days mild discomfort during weeks 6 to 8 after treatment).

Terry Herbert's suggestion that you look at www.yananow.net is a good one. I found the experiences there invaluable and I also contacted several guys from there direct. Oh and if you do decide on the IGRT route I advise you insist on local anaesthetic while you have the gold marker pellets inserted into your prostate - I wasn't given any and it was eyewatering to say the least! With anaesthetic it should be less painful than the biopsy.

Feel free to contact me direct if you have any specific questions and the best of health with your choice of treatment.

Malaga,Spain

Re: questions

Steve,Thanks for the info. I understand what you are saying about everyone being different and have taken that into consideration. Thanks again. Craig> I would like to have discussions with someone who has gone through seed > therapy (Brachytherapy) . I am contemplating choosing that one but would > like to talk to someone who has gone through it already.Can't help there, but I'm sure others will respond.> Another one I am contemplating is External Beam Therapy using the IMRT > form. If there is anyone who I could talk with who has been there and > done that, please contact me.Here, I can make a contribution. BUT: anything I or anyone writes about personal experience is anecdotal and should not ever be relied upon as a basis for one's treatment selection. Each of us is different. What helps A might harm B, and vice versa.In my case, Gleason 9 plus another Gleason 8 tumor and failed cryo, I underwent IMRT (intensity-modulate d RT) in September - October 2004, with adjuvant ADT (androgen deprivation therapy). 38 sessions, 62 segments each to the 83.4% isodose line. Total gland dose = 76 Gy. Pelvic lymph nodes 45 Gy. Seminal vesicles 55 Gy.So far, with the help of intermittent ADT, so good. PSA now <0.03 ng/mL (the lab will not report any lower than that because it seems to confuse too many medics).Side effects: here's where the huge differences between patients arise. My SEs were quite mild. Brief period of fecal urgency, no accidents.For objective and above all reliable information go to the encyclopedic site of the Prostate Cancer Research Institute (PCRI) at http://prostate- cancer.org/ index.html and search on IMRT.The newest form of IMRT is IGRT (image-guided RT), which employs a CT scan before each session to locate the gland and other organs. It also delivers the beam in a helical, 360-degree, fashion. IMRT uses a "step & shoot" method from, IIRC, 5 positions in about a 190-degree arc. Information can be found on the PCRI site.Good luck.Regards,Steve J"Find people who are more interested in helping you to learn than teaching you what *they* think you need to know. Pay heed first to those who will help you to learn, e.g., how to do an Internet Web search."-- Young, PCa MentorPhoenix 5

[Guest guest]

> I would like to have discussions with someone who has gone

> through seed therapy (Brachytherapy). I am contemplating

> choosing that one but would like to talk to someone who has

> gone through it already.

>

> Another one I am contemplating is External Beam Therapy using

> the IMRT form. If there is anyone who I could talk with who

> has been there and done that, please contact me.

Craig,

As Steve and said, personal anecdotes are not a very good

guide to treatment decisions, but here's mine.

I had a combination of three treatments, ADT, HDR brachytherapy,

and 3DCRT external beam therapy for a Gleason 4+3 cancer.

For _me_, the easiest of the three to take was the external beam.

I spent about a half hour at the treatment center, including

maybe 10 minutes in the actual treatment room, five days a week

for five weeks. There was no pain and side effects were minimal.

However my external beam treatment was less than it would have

been if I had not also had brachytherapy.

The HDR brachytherapy occurred in two sessions. They can't give

enough radiation in one dose without unacceptable side effects,

so they split it into two or three. Each session involved an

overnight hospital stay and, literally, a pain in the ass. There

was no severe pain and I never needed pain killers, but the

perineum was sore for a week or two and I sat on a doughnut

cushion. I also suffered some urinary restriction after the

second brachytherapy which caused me to get up as many as seven

times a night to urinate, and to take Flomax for about 5 months.

I think the choice of radiation modalities depends partly on your

preferences but also partly on your diagnosis. It is my

understanding that, if there is a chance that the cancer has

spread outside the prostate (mine did) you must have external

beam therapy, with or without brachytherapy " boost " . I don't

think that brachytherapy by itself will treat the area around the

prostate. There is now growing evidence that ADT is also

desirable before, during, and for a while after radiation if you

have an intermediate or high risk cancer.

As for IMRT, IGRT, Cyberknife, Tomotherapy, etc., I don't know if

they are all equal or not. They might be, or some might be

better than others. It's hard to get an objective opinion on

that because experience and trials are limited. In addition,

some radiation oncologists practice one method only and are keen

on treating every cancer with it. They've got a hammer in their

hands and your prostate looks just like a nail to them.

My own outcome is:

1. 5 years out I still appear to be cancer free (PSA = 0.08).

2. I have had some decline in potency and need Viagra for sex.

I also have hardly any ejaculate (a consequence of all the

treatments I believe.)

3. I have a some small bends in my penis ( " Peyronie's Disease " ),

probably caused either by radiation damage or by fibrosis

setting in due to disuse during ADT.

All in all, I can't complain. The big deal for me is that I have

some reasonable hope now of living longer than I otherwise

expected and dying of something other than prostate cancer.

Good luck.

Alan

[Guest guest]

Hi Craig,

My husband Bob had brachytherapy in September 2007. This followed a

course of five weeks of external beam radiation and was followed three

months later by 5 more days of radiation. His results appear to be

very positive, PSA currently at .17, 18 months after treatment. He

had no incontinence and felt pretty good throughout the process

(although he had the benefit of being retired!) and is feeling great

today, out there chopping wood and hacking ice off the roof.

Lingering side effects (we are grateful for Viagra) are from the

hormone treatments he underwent, not the radiation. As everyone here

says, you need to do your own research of course, every case is

different and anecdotal info is accurate mainly for the particular

anecdotee. But it was helpful for Bob to speak with others who had

gone through the process and he would be glad to speak with you, just

send us an email offline.

All the best to you,

Audrey

>

> I would like to have discussions with someone who has gone through

seed therapy (Brachytherapy). I am contemplating choosing that one but

would like to talk to someone who has gone through it already.

>

> Another one I am contemplating is External Beam Therapy using the

IMRT form. If there is anyone who I could talk with who has been there

and done that, please contact me.

>

> Craig

> c/o coffeygal_2000@...

>

[Guest guest]

Hi Craig,

My husband Bob had brachytherapy in September 2007. This followed a

course of five weeks of external beam radiation and was followed three

months later by 5 more days of radiation. His results appear to be

very positive, PSA currently at .17, 18 months after treatment. He

had no incontinence and felt pretty good throughout the process

(although he had the benefit of being retired!) and is feeling great

today, out there chopping wood and hacking ice off the roof.

Lingering side effects (we are grateful for Viagra) are from the

hormone treatments he underwent, not the radiation. As everyone here

says, you need to do your own research of course, every case is

different and anecdotal info is accurate mainly for the particular

anecdotee. But it was helpful for Bob to speak with others who had

gone through the process and he would be glad to speak with you, just

send us an email offline.

All the best to you,

Audrey

>

> I would like to have discussions with someone who has gone through

seed therapy (Brachytherapy). I am contemplating choosing that one but

would like to talk to someone who has gone through it already.

>

> Another one I am contemplating is External Beam Therapy using the

IMRT form. If there is anyone who I could talk with who has been there

and done that, please contact me.

>

> Craig

> c/o coffeygal_2000@...

>

[Guest guest]

Hi Craig,

My husband Bob had brachytherapy in September 2007. This followed a

course of five weeks of external beam radiation and was followed three

months later by 5 more days of radiation. His results appear to be

very positive, PSA currently at .17, 18 months after treatment. He

had no incontinence and felt pretty good throughout the process

(although he had the benefit of being retired!) and is feeling great

today, out there chopping wood and hacking ice off the roof.

Lingering side effects (we are grateful for Viagra) are from the

hormone treatments he underwent, not the radiation. As everyone here

says, you need to do your own research of course, every case is

different and anecdotal info is accurate mainly for the particular

anecdotee. But it was helpful for Bob to speak with others who had

gone through the process and he would be glad to speak with you, just

send us an email offline.

All the best to you,

Audrey

>

> I would like to have discussions with someone who has gone through

seed therapy (Brachytherapy). I am contemplating choosing that one but

would like to talk to someone who has gone through it already.

>

> Another one I am contemplating is External Beam Therapy using the

IMRT form. If there is anyone who I could talk with who has been there

and done that, please contact me.

>

> Craig

> c/o coffeygal_2000@...

>