Guest guest Posted November 26, 2006 Report Share Posted November 26, 2006 Dana: Lyme makes its way to the brain in 10 days in some cases. I really don't know how long I have had it. I got really sick in 1996 and was in deer tic area the summer before. But when I was 14 I was bitten by multiple tics that were on my body for a day or more so my doc thinks it was then. My symptoms were constant infections, sinus, flu, colds, feeling horrible. I had been a long distance swimmer and extremely athletic and suddenly I had no stamina. I found out after years of suffering that I had growth hormone deficiency and injecting growth hormone stopped the infections. I just had extreme fatigue, got heavy, had no exercise tolerance. Just felt very very old at 40. I was either very hot or very cold, had pains and aches, constant headaches and migraines, felt like I had the flu when I woke up every morning. I got a diagnosis of FM with no treatment and had to find growth hormone on my own. Got it from an endocrinologist in Kansas, who lost her license for overdiagnosing' growth hormone deficiency. She is the one who thought I could have Lyme and she had me tested. When I was positive she referred me to a Lyme doc in Missouri. Just tired all the time, memory going-feels like Alzheimers (Lyme has been found in the brains of Alzheimers patients during autopsy), MS symptoms. Tired but can't sleep, multiple endocrine problems, early menopause. -- Re: , you wanted to know about this?() , How long have you had Lyme? Also, maybe it would help some here to know what symptoms you had before you found out it was lyme? (only if you want to!) The problem is everyone reacts differently. Some are worse than others so that alone makes it a more difficult diagnosis. I thank God my son got an EM rash. By the time I realized, it was all over his body, including his face. Made the diagnosis very easy. And, now? He is still not the same and he supposedly only had active infection for about 4-6 weeks.....if I had followed what the doctors here prescribed, he would be even worse! 3-4 weeks of ABX's my a--! Our children deserve better than this! (sorry for the rant!) Dana > > > > So, this makes me wonder. How many of us have or have had a serious > > Illness (bacterial, viral)? > > > > I had meningitis with encephalitis. > > > > Anyone else have any big guy? > > > > Let's see...not a big guy, but definitely a suspect...tested positive > for cytomegalo virus in the timeframe that I had a full-term > stillbirth. Then had a miscarriage a couple of months later. > > Cytomegalo virus is implicated in adrenal issues in AIDS patients. > FORTUNATELY, I DON'T have AIDS or HIV. Guess I'll be happy sticking > with thyroid and adrenals! > > Also, I had shingles in college at age 20, which was considered to be > odd, due to my youth. > > Definitely need to test for mroe than the obvious, because it looks as > if my immune system was somewhat compromised YEARS ago! > > Warmly, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2006 Report Share Posted November 26, 2006 > I wasn't under that much stress either, you know aside form being a > teenager and all, but nothing other than that, no deaths in the > family yet, or major sickness.... Great question. Not like it's a > common thing in young people either. I don't think any of my > friends ever had it. Jackie > > But, that begets the question...why were we handling stress in such an > extreme fashion? Honestly, I really wasn't under THAT much stress! > > > > That was the same year that I got a viral cough thing that lasted 6 > weeks. > > Makes me wonder... > > Warmly, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2006 Report Share Posted November 26, 2006 > I wasn't under that much stress either, you know aside form being a > teenager and all, but nothing other than that, no deaths in the > family yet, or major sickness.... Great question. Not like it's a > common thing in young people either. I don't think any of my > friends ever had it. Jackie > > But, that begets the question...why were we handling stress in such an > extreme fashion? Honestly, I really wasn't under THAT much stress! > > > > That was the same year that I got a viral cough thing that lasted 6 > weeks. > > Makes me wonder... > > Warmly, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2006 Report Share Posted November 26, 2006 > I wasn't under that much stress either, you know aside form being a > teenager and all, but nothing other than that, no deaths in the > family yet, or major sickness.... Great question. Not like it's a > common thing in young people either. I don't think any of my > friends ever had it. Jackie > > But, that begets the question...why were we handling stress in such an > extreme fashion? Honestly, I really wasn't under THAT much stress! > > > > That was the same year that I got a viral cough thing that lasted 6 > weeks. > > Makes me wonder... > > Warmly, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 > It sure is looking that way! Jackie > > > > p.s. my grandmother also has had shingles a few times and is hypo, > treated with Synth-crap.....seems to be a common denominator. > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 > It sure is looking that way! Jackie > > > > p.s. my grandmother also has had shingles a few times and is hypo, > treated with Synth-crap.....seems to be a common denominator. > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 > It sure is looking that way! Jackie > > > > p.s. my grandmother also has had shingles a few times and is hypo, > treated with Synth-crap.....seems to be a common denominator. > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 , Can you send me your email? You are listed as private and I have the info. to send to you...sorry it took so long! If you can send me a blank email to: danaw36@... that would be much appreciated! Thanks Dana > > > > , > > I have also researched Mycoplasma's! let me > > know if you would like to have that info. too. > > > Well, Dana, if you have it handy...whenever you have a chance, I'd > appreciate it. No rush. If I have it, I'm sure it's not going anywhere! > > Warmly, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 , Can you send me your email? You are listed as private and I have the info. to send to you...sorry it took so long! If you can send me a blank email to: danaw36@... that would be much appreciated! Thanks Dana > > > > , > > I have also researched Mycoplasma's! let me > > know if you would like to have that info. too. > > > Well, Dana, if you have it handy...whenever you have a chance, I'd > appreciate it. No rush. If I have it, I'm sure it's not going anywhere! > > Warmly, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 , Can you send me your email? You are listed as private and I have the info. to send to you...sorry it took so long! If you can send me a blank email to: danaw36@... that would be much appreciated! Thanks Dana > > > > , > > I have also researched Mycoplasma's! let me > > know if you would like to have that info. too. > > > Well, Dana, if you have it handy...whenever you have a chance, I'd > appreciate it. No rush. If I have it, I'm sure it's not going anywhere! > > Warmly, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 When I had my shingles outbreak in my 20's, I suspect I was exposed via a woman in the accounting department. Her daughter (or granddaugher?) had chickenpox at the time. I only had contact with her a few times a week, but it seems I picked up something thru her as I came down with shingle just after that. I hope I never have a reoccurance. It was the most painful 2 weeks of my life. Yeeeowch! > Shingles are the same herpes virus as chicken pox. If > you are prone to get shingles, you need to avoid > children during the chicken pox " season. " Even > vacccinated children can carry the virus around... > ain't this fun? Marti > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 I've had shingle 4 times now. I din't get them the first time til after I had been diagnosed with hypo. I only took syn crap for about a month and then learned about Armour and switched. I had the last shingles attack about a month ago. And yes... my life is quite stressful at times. > > > It sure is looking that way! > > Jackie > > p.s. my grandmother also has had shingles a few times and is hypo, > > treated with Synth-crap.....seems to be a common denominator. > > > > Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Schoolteachers who are prone to shingles often have to choose another career. Marti jtb14789 wrote: When I had my shingles outbreak in my 20's, I suspect I was exposed via a woman in the accounting department. Her daughter (or granddaugher?) had chickenpox at the time. I only had contact with her a few times a week, but it seems I picked up something thru her as I came down with shingle just after that. I hope I never have a reoccurance. It was the most painful 2 weeks of my life. Yeeeowch! > Shingles are the same herpes virus as chicken pox. If > you are prone to get shingles, you need to avoid > children during the chicken pox " season. " Even > vacccinated children can carry the virus around... > ain't this fun? Marti > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 Schoolteachers who are prone to shingles often have to choose another career. Marti jtb14789 wrote: When I had my shingles outbreak in my 20's, I suspect I was exposed via a woman in the accounting department. Her daughter (or granddaugher?) had chickenpox at the time. I only had contact with her a few times a week, but it seems I picked up something thru her as I came down with shingle just after that. I hope I never have a reoccurance. It was the most painful 2 weeks of my life. Yeeeowch! > Shingles are the same herpes virus as chicken pox. If > you are prone to get shingles, you need to avoid > children during the chicken pox " season. " Even > vacccinated children can carry the virus around... > ain't this fun? Marti > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2006 Report Share Posted November 27, 2006 I have a gentleman in my department who is on medical leave from Shingles. Any suggestions to help ease the pain would be welcomed. He had heart surgery and that, he thinks, set it off. All over his back and part of his chest. Amy the Redhead Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Thanks for sharing ! I really hope that a few have been helped or are at least considering the possibility that they are infected. Your symptoms sound alot like mine do.....My son's brain was affected very early on....he used to be a straight A student and now has to work harder and harder and he was treated for 4 mos. My oldest also has vague aches and pains (FM symptoms) and very bad heel & ankle pain, ADHD, learning problems etc.....Both have red eyes, as do I and my husband. As soon as I am stable on HC, I will go back on the Salt & Vit. C protocal as that did help. The boys will be back on it as well. :0) Take Care Dana > > > > > > So, this makes me wonder. How many of us have or have had a > serious > > > Illness (bacterial, viral)? > > > > > > I had meningitis with encephalitis. > > > > > > Anyone else have any big guy? > > > > > > > Let's see...not a big guy, but definitely a suspect...tested > positive > > for cytomegalo virus in the timeframe that I had a full-term > > stillbirth. Then had a miscarriage a couple of months later. > > > > Cytomegalo virus is implicated in adrenal issues in AIDS patients. > > FORTUNATELY, I DON'T have AIDS or HIV. Guess I'll be happy sticking > > with thyroid and adrenals! > > > > Also, I had shingles in college at age 20, which was considered to > be > > odd, due to my youth. > > > > Definitely need to test for mroe than the obvious, because it looks > as > > if my immune system was somewhat compromised YEARS ago! > > > > Warmly, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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