HELLO

December 19, 2000

, depending on a fibroid's location, it can cause back and sciatic pain.

You mention that you know you have a degenerated disc, so you already have one

cause for the back pain. However, it's also possible that the fibroid is

contributing to this. I would ask my GYN about the exact location of the

fibroid and whether she/he feels it can be contributing to the pain. Leonie

|--------+----------------------->

| | minnie43msn (DOT) |

| | com |

| | |

| | 12/18/00 |

| | 05:27 PM |

| | Please |

| | respond to |

| | uterinefibroi|

| | ds |

| | |

|--------+----------------------->

>--------------------------------------------------------|

| |

| To: uterinefibroidsegroups |

| cc: (bcc: Leonie J Finkel/New York/WSP & R) |

| Subject: hello |

>--------------------------------------------------------|

I just joined this group & wanted to say hello. I have a large

uterine fibroid. My symtoms are heavy period the fist few

daysconstipation, I saw someone on the group talking about siatic

nerve pain when I saw it I was concerned. Ive been seeing doctors

about my degenerated disc L-4 L5 and having really bad siatic nerve

pain. I was told it was from the degenerated disc pressing on tne

nerve can it be the fibrouid. Im in such bad nerve pain running down

my left side & im even going for nerve block shots can it be the

fibroud thats contributing to this? I told the neuro surgeon & he

didnt seem to think so. Does ayone have an opinion about this?

Thank you,

December 19, 2000

Thank you very much for responding, I will take your advice.

Thanks again

> , depending on a fibroid's location, it can cause back and

sciatic pain.

> You mention that you know you have a degenerated disc, so you

already have one

> cause for the back pain. However, it's also possible that the

fibroid is

> contributing to this. I would ask my GYN about the exact location

of the

> fibroid and whether she/he feels it can be contributing to the

pain. Leonie

>

> |--------+----------------------->

> | | minnie43msn (DOT) |

> | | com |

> | | |

> | | 12/18/00 |

> | | 05:27 PM |

> | | Please |

> | | respond to |

> | | uterinefibroi|

> | | ds |

> | | |

> |--------+----------------------->

> >--------------------------------------------------------|

> | |

> | To: uterinefibroidsegroups |

> | cc: (bcc: Leonie J Finkel/New York/WSP & R) |

> | Subject: hello |

> >--------------------------------------------------------|

>

> I just joined this group & wanted to say hello. I have a large

> uterine fibroid. My symtoms are heavy period the fist few

> daysconstipation, I saw someone on the group talking about siatic

> nerve pain when I saw it I was concerned. Ive been seeing doctors

> about my degenerated disc L-4 L5 and having really bad siatic nerve

> pain. I was told it was from the degenerated disc pressing on tne

> nerve can it be the fibrouid. Im in such bad nerve pain running

down

> my left side & im even going for nerve block shots can it be the

> fibroud thats contributing to this? I told the neuro surgeon & he

> didnt seem to think so. Does ayone have an opinion about this?

> Thank you,

>

September 1, 2001

<P> hi this is Sheila AKA Angelwings, I have a plan

with my mother that seems to have worked brilliantly

with the E.R. here in small town america...Blairsville

Georgia. A small mountain community. None of the

doctors here seems to know whar RSD is. I have had

full body RSD for 7 years and counting. Mom and I have

done some research with RSD. Nothing major..just the

things we have dealt with. and a few penpals that I

have with RSD. Well anyway, this is what my mother and

I do. A few months back I was have rib cramps and

heart palpataions(spelling is bad) and difficulty

breathing caused by the rib cramps. My son call

911..like a pro..was his 1st time. Then he called my

mother. By the time the ambulance got to my house,

less than a mile away. And got me checked out and on

my way to E.R...mom was already there informing them

of my problems with RSD..which meds I was on & nbsp; and

any other special problems they didnt understand...

they seemed to handle this quite well...now that they

werent in the dark about RSD. Mom has a scanner at

home and heard what my blood pressure was, and she

knew that it was high for me...way above normal. So

they took care of my problems..seems like they gave me

better treatment knowing that there was another person

that could speak up for me..and was saying the same

things I was...I didnt seem like I was some psycho or

drug addict, just wanting meds. Anyway what Im trying

to say is...make sure that you have a kind of buddy

system going on there. It seemed to have worked

wonders for me. Blairsville Georgia will be well

educated about RSD if I have anything to do with it

<P>hugzzz Angelwings_22000

<P> & nbsp; <B><I>snoopy199997@...</I></B> wrote:

<BLOCKQUOTE style= " BORDER-LEFT: #1010ff 2px solid;

MARGIN-LEFT: 5px; PADDING-LEFT: 5px " ><TT>Hi. I am new

to this group, sorta. I have been standing back and

just <BR>reading mainly. I'm a 27 yr old mother of 2

girls, ages 6 yrs and 22 <BR>months old. I was hit by

the bumper of a car while flagging for road

<BR>construction in Oct. 2000, and was finally

diagnosed with RSD in May <BR>of this year. I wish I

would of been diagnosed sooner, as the only <BR>thing

I was told to do from oct to May was put ice on my

knee. <BR>Needless to say, it has spread and It is

mainly my whole right side, <BR>back, left shoulder

and hand, left hip and knee, right knee, leg,

<BR>foot, shoulder, arm, hand, hip. lol I'm falling

apart here i guess. <BR>Has anyone been told when they

went to the ER, that if you keep going <BR>back there,

that they will put your name on the " junkie list " ? I

was <BR>just told that the other night. Has anyone

heard of this before? <BR>Tonia

<BR><BR></TT><BR><!-- |**|begin egp html banner|**|

-->

<TBODY>

<TD align=middle><FONT color=#003399 size=-1><B>Yahoo!

Groups Sponsor</B></FONT></TD></TR>

<TBODY>

<TR>

<TD align=middle><FONT face=arial

size=-2>ADVERTISEMENT</FONT><BR>

<TBODY>

<TR>

<TBODY>

<TD colSpan=2 width=184><IMG alt= " " border=0 height=70

src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/4.gif "

width=184></TD>

<TD rowSpan=2 width=116><IMG alt= " " border=0

height=221

src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/1.jpg "

width=116></TD></TR>

<FORM

action=http://rd.yahoo.com/M=210544.1579876.3135161.1261774/D=egroupweb/S=170506\

1589:HM/A=776683/R=0/*http://ads.track-star.com/adspace.ts

method=get>

<TD bgColor=#ff6600 width=1><IMG alt= " " border=0

height=151

src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/orgline.gif "

width=1></TD>

<TD align=middle bgColor=#ffcc00 width=183><INPUT

name=ts type=hidden

value=1;2;217;107_225_105_264><INPUT

name=startApplication type=hidden value=%20> <FONT

style= " FONT-FAMILY: Times New Roman,Times,serif;

FONT-SIZE: 12px; FONT-WEIGHT: bold " >You can, too!

Start here...<BR><IMG alt= " " border=0 height=5

src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/clear.gif "

width=5><BR>Height:<BR><SELECT name=feet size=1

maxlength= " 1 " > <OPTION value=3>3<OPTION

value=4>4<OPTION selected value=5>5<OPTION

value=6>6<OPTION value=7>7<OPTION

value=8>8</OPTION></SELECT> ft & nbsp; & nbsp; & nbsp; & nbsp;

<SELECT name=inches size=1 maxlength= " 2 " > <OPTION

value=00>0<OPTION value=1>1<OPTION value=2>2<OPTION

value=3>3<OPTION selected value=4>4<OPTION

value=5>5<OPTION value=6>6<OPTION value=7>7<OPTION

value=8>8<OPTION value=9>9<OPTION value=10>10<OPTION

value=11>11</OPTION></SELECT>in<BR><IMG alt= " "

border=0 height=5

src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/clear.gif "

width=5><BR>Weight:<BR><INPUT CHECKED name=weightUnit

style= " BACKGROUND: #ffcc00; COLOR: #000001 " type=radio

value=pounds>lbs. <INPUT name=weightUnit

style= " BACKGROUND: #ffcc00; COLOR: #000001 " type=radio

value=kilograms>kg.<BR><INPUT name=weight

size=5></FONT><BR><IMG alt= " " border=0 height=8

src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/clear.gif "

width=5><BR><IMG alt= " " border=0 height=19

src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/3.gif "

width=183></TD></TR>

<TR>

<TD colSpan=3 width=300><INPUT alt= " " border=0

height=29

src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/2.gif "

type=image

width=300></TD></TR></FORM></TBODY></TABLE></TD></TR></TBODY></TABLE></TD></TR><\

/TBODY></TABLE></TD></TR>

<TR>

<TD><IMG alt= " " height=1

src= " http://us.adserver.yahoo.com/l?M=210544.1579876.3135161.1261774/D=egroupmai\

l/S=1705061589:HM/A=776683/rand=474074396 "

width=1></TD></TR></TBODY></TABLE><!-- |**|end egp

html banner|**| --><BR><TT>Community email

addresses:<BR> & nbsp; Post message:

RSD-CRPS <BR><BR> & nbsp; List

owners: & nbsp; & nbsp; Debgena@... <BR><BR> & nbsp;

Jomal1@... and felicet867@...<BR><BR>Shortcut

URL to this page:<A

href= " http://groups.yahoo.com/group/RSD-CRPS " >http://groups.yahoo.com/group/RSD-\

CRPS</A><BR> & nbsp;

<A

href= " http://www.yahoogroups.com/RSD-CRPS " >http://www.yahoogroups.com/RSD-CRPS</\

A></TT>

September 2, 2001

Hi Tonia,

I think that it is quite possible that hospitals do keep such a list. As

others have said, I believe you need to be prepared if you find you need to

go to the ER.

After my last auto accident, the EMTs came over to the car and before they

even touched me I told them I had RSD. They had no idea, had never heard of

it. I was in quite a bit of pain, but tried to very briefly explain and got

strange looks. Finally, I just asked them to be very careful and only touch

me if really necessary. They continued to lean over me, lay things on me,

etc. despite my repeated requests.

I got to the ER (by myself, Doug had to pick up his parents, and then came to

the hospital), and NO ONE there had any experience with RSD. I was fairly

calm, I thought, but kept asking the nurses to remove things from my body (a

shoe, a sock, a barrette from my hair, etc. they were sooo painful). One of

the Drs. later told me he had a friend who had a patient with it and this

other Dr. told him that I wasn't crazy. They thought I was crazy. And, I

wasn't taking meds for the RSD at that point! Yet, they didn't want to give

me morphine, etc. and waited for over an hour and a half to give me any kind

of pain relief.

So, I guess the moral of the story is, try and have something with you (a

note from your Dr., a brief explanation of RSD, etc.) to give to the ER when

you arrive. Or, have an advocate to speak for you if that's possible.

Hugs,

Jo

September 3, 2001

Hi Tonia,

First I want to say welcome to our family. I hate that you have to be here at

all, but you will make some good friends here.

We have one rule. No saying SORRY. WE are not to blame, hence the rule.

That's it, otherwise just vent and stay in touch.

As far as your question, this is a problem with RSD patients. The remedy is

to carry with you at all times a note from your pain doc stating you have RSD

and what you take for medication. Just as a someone who has any chronic

condition should, like if you are allergic to any medications also.

Most ER's have no clue what you are talking about if you tell them RSD and

then if you tell them what you are taking they think no way could you be in

pain.

Why do you keep going to the ER? You may not be on the appropriate

medications.

What do you take for pain meds? Have you informed your pain doctor that you

have been to the ER yet?

Hugs and a pain free minute,

Deb

Deb Genatossio (Debgena@...)

National Planning Director for ASRSD/CRPS

American Society for RSD-CRPS Assistance Center

PO Box 1397, Abingdon, MD 21009

Toll Free Hotline: 1-866-OUR-PAIN

Main Office:

online membership: ASRSD_CRPS@ yahoogroups.com

http://www.americansocietyforrsd-crps.org

Listowner RSD-CRPS

Massachusetts Charter Director ASRSD_CRPS

September 3, 2001

Tonia,

Are you seeing a GP, neurologist, or pain specialist. The ER is not the

place to get treatment. They have very limited knowledge on RSD and could

cause you more pain in the long run. Please consider calling your doctor and

get better control before you lose control. I am worried that you are not

being managed correctly by the right doctors.

Glenn

September 19, 2001

Hi Selene, and welcome to our family. I know we always hate to have another

that's been diagnosed with this " monster " , but hopefully you'll find lots of

info and support within this group. They are truly wonderful people.

There are so many different things you can do other than simply take

medications. I read that you went to an Orthopedic surgeon, but I'm not

quite sure what other Drs. you've been to. If you haven't already done so,

try and find a pain management Dr. or clinic in your area. If you tell us

where you are, someone from the list is sure to know of Dr. for you. Then,

perhaps, since you're in the early stages, you can effectively treat this and

try and get back your life. It may be somewhat different, but hopefully

better than it seems right now.

The first and foremost thing is to find a Dr. to treat you properly.

And, when you have questions, ask us. We're here to listen, to offer

support, to answer whatever questions we can.

Hugs,

Jo

September 20, 2001

Hi Joe.

Thanks for the welcome and yes I am already finding that I wouldn't

wish this stuff on my worst enemy.

So far I have been to the Orthopedic guy Then came my stay in the

hospital, a visit to a Vascular surgeon, a Neurologist, and a Pain

specialist. Unfortunately I am on a blood thinner so there is

nothing the pain specialist can do. See the blood clot makes it hard

to find any treatments. If I go off the blood thinners then I might

have another clot that could kill me. Great choices there.

By the way I am in Rapid City, South Dakota and a military spouse so

going to other doctors isn't easy. I have to get the okay from the

base doctor first.

Well thank you again for the welcome.

Take care

Selene

March 20, 2002

Oh, Sandy, I am so sorry to hear about . Prayers are coming to you from

New Jersey. We love you both.

****************************************************************

This e-mail and any documents accompanying this e-mail contain information which

is confidential and/or legally privileged. The information is intended only for

the use of the individual or entity named on this e-mail. If you are not the

intended recipient, you are hereby notified that any disclosure, copying,

distribution, or the taking of any action in reliance on the contents of this

e-mail information, is strictly prohibited and that the documents should be

returned to Saiber Schlesinger Satz & Goldstein, LLC immediately. In this

regard, if you have received this e-mail in error, please notify us by return

e-mail or telephone () immediately, delete the e-mail and all

attachments and destroy all hard copies of same.

>>> " sandykmuenich " 03/19/02 11:45PM >>>

hello, we went to the doctor today to find out what was in the test

results from the ercp. it came back postive for cancer. its in the

bile duct oustside the liver. they did a mri and were waiting for the

results from that test, and go from there. thanks for all your

prayers.sandy billy wife

March 20, 2002