(unknown)

February 14, 2000

I just wanted to add that in less severe cases, as noted in my doctors

article, they do not use the balloon or estrogen.

February 14, 2000

ME NEITHER

I DON'T KNOW WHETHER TO GET A NEW DOCTOR OR A GOOD LAWYER

> (unknown)

>

> Hey guys, we will soon be having 2 more people joining us! Great isn't it?

>

> Ref the balloon method, my doctor didn't use one either because he said

> that that was the old method of keeping the uterus apart. Now they prefer

> not to use it at all. I was given oestrogen for 45 days. Nothing happened

> for me, I didn't get a period. Now that I visited the hospital and

> complained to them at what they'd done, he told me to continue taking

> these tablets for another 2 months because it doesn't hurt to continue. I

> don't know who to believe.

>

> Poly

>

February 14, 2000

Poly:

You wouldn't get a period being on estrogen so long. You need progesterone

to bring on the period. I never heard of 45 straight days on estrogen with

no ultrasounds to check the uterus. You need to get an ultrasound to check

the lining. Here's another example of doctors making outlandish statements,

who says it can't hurt? There are studies showing that extended periods on

high doses of estrogen can lead to uterine cancer. Ask them about that!!!

Celeste

February 15, 2000

I think what she meant was that it may not be because of a dr.'s

incompetance, but just that some people scar easier than others. But, there

has to be a procedure or some sort of trauma to the area for there to be

scarring. Anyhow, that's my understanding...

>

>Reply-To: Ashermansonelist

>To: " Ashermans " <Ashermansonelist>

>Subject: (unknown)

>Date: Tue, 15 Feb 2000 19:33:28 +0200

>

>Debbie, you wrote,

>

> " I'm trying not to blame anyone, as it seems this can develop by itself,

>with noone at fault sometimes "

>

>I didn't know that was the case! Has anyone else heard of Ashermans

>developing by itself?

>

>Poly

>

February 15, 2000

Celeste,

Thanks for your email. I'm going to go and see my doctor (the one that did

the surgery) tomorrow and I'll tell him what you told me. Thanks. You may

have saved my life! Ok then, I'll ask to have an ultrasound tomorrow too. Do

you know if It is ok to take progesterone for long periods?

Poly

Re: (unknown)

> From: Celjim@...

>

> Poly:

>

> You wouldn't get a period being on estrogen so long. You need

progesterone

> to bring on the period. I never heard of 45 straight days on estrogen

with

> no ultrasounds to check the uterus. You need to get an ultrasound to

check

> the lining. Here's another example of doctors making outlandish

statements,

> who says it can't hurt? There are studies showing that extended periods

on

> high doses of estrogen can lead to uterine cancer. Ask them about that!!!

>

> Celeste

>

> ---------------------------

February 15, 2000

Debbie, you wrote,

" I'm trying not to blame anyone, as it seems this can develop by itself, with

noone at fault sometimes "

I didn't know that was the case! Has anyone else heard of Ashermans developing

by itself?

Poly

February 15, 2000

Debbie:

As far as I know, Asherman's is almost always caused by infection due to

uterine surgery of almost any kind. I also developed it as a result of a

c-section. My OB/GYN (not the one who did the c-section) told me that

post-op antibiotics are not routinely given because taking them if an

infection is not present can cause more harm than good and it is rare for an

infection to occur following a c-section although it definitely happens as we

well know.

I had antibiotics during the surgery but in my case I developed an infection

post-op anyway. The biggest problem with this condition is that many times

the infection goes undetected and this is what causes the scarring to occur.

The lining heals itself and the result is scar tissue. When there are no

signs of infection (fever, smelly discharge) and it is not treated the

scarring develops.

I had no signs at all. The absence of a period is the only symptom I had and

of course by the time this happens the scarring has already formed. If you

had a routine c-section like I did, there probably wasn't neglect but who

knows for sure. I'm still not convinced myself.

Celeste

February 15, 2000

Poly,

I really don't know if my dr. was responsible for my Asherman's.

Developing this disease - is it always due to mismanagement of some sort?

I'm really curious as I thought it could develop simply due to scar tissue

and infection during a C-Section, could I be incorrect? Did my Dr. DO

something that I'm not aware of that has increased my risk of developing

this disease?

Debbie

February 17, 2000

I'M NOT REALLY WORRIED ABOUT WHAT SHE SAID I JUST HAVE GONE SINCE AUGUST NOT

KNOWING

EVEN IF IT'S THE WORST CASE SCENARIO JUST TELL ME SO I CAN DEAL WITH IT

> Re: (unknown)

> > > > >

> > > > > From: KMorri1966@...

> > > > >

> > > > > Kate,

> > > > > It might help you to move on if you switch doctors. I was kind of

>

> >in

> > > >the

> > > > > same boat as I believe a lot of my problems were caused by a huge

> > > > > oversight

> > > > > on my doctor's part. I still trust doctors immensely, especially

> >when

> > > > > several rose to the occasion and actually saved my life. It

> really

> > > >helped

> > > > > me

> > > > > to leave my doctor's office and move on. Too many bad memories -

> no

> > > > > matter

> > > > > whose fault it is.

> > > > > Ann

> > > > >

> > > > > ---------------------------

February 17, 2000

HE WANTS TO TYPE IT UP FIRST

HE'S SO DETAIL ORIENTED

> Re: (unknown)

> > > > >

> > > > > From: KMorri1966@...

> > > > >

> > > > > Kate,

> > > > > It might help you to move on if you switch doctors. I was kind of

>

> >in

> > > >the

> > > > > same boat as I believe a lot of my problems were caused by a huge

> > > > > oversight

> > > > > on my doctor's part. I still trust doctors immensely, especially

> >when

> > > > > several rose to the occasion and actually saved my life. It

> really

> > > >helped

> > > > > me

> > > > > to leave my doctor's office and move on. Too many bad memories -

> no

> > > > > matter

> > > > > whose fault it is.

> > > > > Ann

> > > > >

> > > > > ---------------------------

April 29, 2001

I like your list...I think these were the most annoying.

When diagnosed...

If you have to have cancer, this is the best one to get because it's so easy

to treat (my reply: if I have to have cancer, this is the best one to get

because I'd rather have a pain like you, in my neck rather then in my a$$).

When hypo...

You look great! Have you started a new ____ (this is when my eyes have

swollen to little slits and I look and feel like the blueberry girl from

Willy Wonka - what liars)

With the surgical scar...

Who did that to you!?! I hope they were sent to jail! (my reply: nope, the

surgeon that mugged me got off scott free).

Oh, and my all time favorite is the distant family members who ask " Do you

really have cancer? " (I have confessed recently to making up the whole thing

just for the thrill of it).

I guess I am a disgruntled ThyCan!

April 29, 2001

-Awesome-I enjoy the " you look great " lie myself....Finally a

disgruntled partner in thyca!-- In Thyca@y..., SmilinJoJo29@c...

wrote:

> I like your list...I think these were the most annoying.

>

> When diagnosed...

> If you have to have cancer, this is the best one to get because

it's so easy

> to treat (my reply: if I have to have cancer, this is the best one

to get

> because I'd rather have a pain like you, in my neck rather then in

my a$$).

>

> When hypo...

> You look great! Have you started a new ____ (this is when my eyes

have

> swollen to little slits and I look and feel like the blueberry girl

from

> Willy Wonka - what liars)

>

> With the surgical scar...

> Who did that to you!?! I hope they were sent to jail! (my reply:

nope, the

> surgeon that mugged me got off scott free).

>

> Oh, and my all time favorite is the distant family members who

ask " Do you

> really have cancer? " (I have confessed recently to making up the

whole thing

> just for the thrill of it).

>

> I guess I am a disgruntled ThyCan!

>

April 29, 2001

My scan was " negative " but tg high too. How is your doctor interpreting

that? Is your doc saying the high tg means recurrent disease even

though the scan was negative. Is more RAI being recommended?

wildflow91570@... wrote:

> Im wandering if anyone on here has had image problems?Since I had my

> last reoccurance,Ive really felt bad about myself.To some these

> things may seem trivial,or maybe its just someway I can keep my mind

> off cancer.I just can not bare to look in the mirror!My eyes are

> swollen ,my face and neck are swollen,my skins a mess,lets not even

> talk about my dry nasty hair!Ive been hypo for 7 weeks the scan came

> back negative but thyroglubulin is high.Does anyone know how long it

> will be before I look(and feel)normal after resuming sinthroid????

>

April 30, 2001

---Dr says that there is evidence of reoccurance...I understood this

as meaning that the ca is floating around in my blood but that it is

too minute to see on a scan.Some DRs would reccomend more RAI but

mine states that we'll keep an eye on it.This is not very comforting

considering I've spent the last 8 wks in hypo hell! In Thyca@y...,

Alyssa Dodd <dodd@t...> wrote:

> My scan was " negative " but tg high too. How is your doctor

interpreting

> that? Is your doc saying the high tg means recurrent disease even

> though the scan was negative. Is more RAI being recommended?

>

> wildflow91570@y... wrote:

>

> > Im wandering if anyone on here has had image problems?Since I had

my

> > last reoccurance,Ive really felt bad about myself.To some these

> > things may seem trivial,or maybe its just someway I can keep my

mind

> > off cancer.I just can not bare to look in the mirror!My eyes are

> > swollen ,my face and neck are swollen,my skins a mess,lets not

even

> > talk about my dry nasty hair!Ive been hypo for 7 weeks the scan

came

> > back negative but thyroglubulin is high.Does anyone know how long

it

> > will be before I look(and feel)normal after resuming sinthroid????

> >

April 30, 2001

I understand exactly. It is not very comforting to me either to be in

that " in between " place where the scan is negative but the tg high so you

sort of hav conflicting evidence. Mine's a bit further complicated by

the fact that the scan may likely have been negative because it was done

too soon after RAI and CT with contrast. So the residual may not even

be minute, it may in fact be significant in size and scope. My doctor

says " clean scan that's fantastic! " and doesn't even seem to want to

address the high tg (367.0). I have called and tried to get in to talk

with him about it but he seems to be avoiding me. I think ow's the time

to find an endo (there's none in this town) instead of just relying on

my ENT/surgeon. By " keeping an eye on it " does your doc mean scanning

every 6months instead of every year or something like that?

wildflow91570@... wrote:

> ---Dr says that there is evidence of reoccurance...I understood this

> as meaning that the ca is floating around in my blood but that it is

> too minute to see on a scan.Some DRs would reccomend more RAI but

> mine states that we'll keep an eye on it.This is not very comforting

> considering I've spent the last 8 wks in hypo hell! In Thyca@y...,

> Alyssa Dodd <dodd@t...> wrote:

> > My scan was " negative " but tg high too. How is your doctor

> interpreting

> > that? Is your doc saying the high tg means recurrent disease even

> > though the scan was negative. Is more RAI being recommended?

> >

> > wildflow91570@y... wrote:

> >

> > > Im wandering if anyone on here has had image problems?Since I had

> my

> > > last reoccurance,Ive really felt bad about myself.To some these

> > > things may seem trivial,or maybe its just someway I can keep my

> mind

> > > off cancer.I just can not bare to look in the mirror!My eyes are

> > > swollen ,my face and neck are swollen,my skins a mess,lets not

> even

> > > talk about my dry nasty hair!Ive been hypo for 7 weeks the scan

> came

> > > back negative but thyroglubulin is high.Does anyone know how long

> it

> > > will be before I look(and feel)normal after resuming sinthroid????

>

> > >

April 30, 2001

--I am seeing a ENT as well...Uno one thing that troubled me was that

on my scan there was a dark spot on my elbow-the nuc guy dismissed it

as " some of your saliva may have gotten on your sleeve " how weird is

that?I hope thats what it is!I would hate to think I got Thyca in my

funny bone (that would be no laughing matter)I guess that is the

standard procedure(6 mths of waiting)more Hypo too look forward to

with still no answers...- In Thyca@y..., Alyssa Dodd <dodd@t...>

wrote:

> I understand exactly. It is not very comforting to me either to be

in

> that " in between " place where the scan is negative but the tg high

so you

> sort of hav conflicting evidence. Mine's a bit further complicated

by

> the fact that the scan may likely have been negative because it was

done

> too soon after RAI and CT with contrast. So the residual may not

even

> be minute, it may in fact be significant in size and scope. My

doctor

> says " clean scan that's fantastic! " and doesn't even seem to want to

> address the high tg (367.0). I have called and tried to get in to

talk

> with him about it but he seems to be avoiding me. I think ow's the

time

> to find an endo (there's none in this town) instead of just relying

on

> my ENT/surgeon. By " keeping an eye on it " does your doc mean

scanning

> every 6months instead of every year or something like that?

>

> wildflow91570@y... wrote:

>

> > ---Dr says that there is evidence of reoccurance...I understood

this

> > as meaning that the ca is floating around in my blood but that it

is

> > too minute to see on a scan.Some DRs would reccomend more RAI but

> > mine states that we'll keep an eye on it.This is not very

comforting

> > considering I've spent the last 8 wks in hypo hell! In Thyca@y...,

> > Alyssa Dodd <dodd@t...> wrote:

> > > My scan was " negative " but tg high too. How is your doctor

> > interpreting

> > > that? Is your doc saying the high tg means recurrent disease

even

> > > though the scan was negative. Is more RAI being recommended?

> > >

> > > wildflow91570@y... wrote:

> > >

> > > > Im wandering if anyone on here has had image problems?Since I

had

> > my

> > > > last reoccurance,Ive really felt bad about myself.To some

these

> > > > things may seem trivial,or maybe its just someway I can keep

my

> > mind

> > > > off cancer.I just can not bare to look in the mirror!My eyes

are

> > > > swollen ,my face and neck are swollen,my skins a mess,lets not

> > even

> > > > talk about my dry nasty hair!Ive been hypo for 7 weeks the

scan

> > came

> > > > back negative but thyroglubulin is high.Does anyone know how

long

> > it

> > > > will be before I look(and feel)normal after resuming

sinthroid????

> >

> > > >

May 1, 2001

> --I am seeing a ENT as well...Uno one thing that troubled me was

that

> on my scan there was a dark spot on my elbow-the nuc guy dismissed

it

> as " some of your saliva may have gotten on your sleeve " how weird is

> that?I hope thats what it is!I would hate to think I got Thyca in my

> funny bone (that would be no laughing matter)I guess that is the

> standard procedure(6 mths of waiting)more Hypo too look forward to

>

>I'm a Nuclear Medicine Tech.... and I would have taken a static

(still) image of your elbow with the sleeve removed and skin washed!!

Every place is different...but after 15 years experience as a

tech...I wouldn't feel comfortable letting a patient like you leave

on the POSSIBILITY that it was saliva. Don't sweat it though...it's

an unlikely place for mets. Kim S. N.J. TT pap w/follic

2/00, RAI 60 mCi 3/00

> > > >

> > >

>

> > >

June 4, 2001

,

Congratulations on your pregnancy. I can relate to being nervous as H***. I was

the whole time that I was pregnant with my son, who by the way is now 16months

old and perfect. I have a b/u but there are others with unicornuate uteruses

here as well. The only advice I can offer is to try to relax and not worry too

much! I know that it is hard but worrying isn't good for the baby. And you want

to enjoy this pregnancy. I hope that all goes well and that you will deliver a

very happy, healthy baby.

Faith

June 4, 2001

Hi, . I just wanted to say welcome to the

group! And, congratulations on the pregnancy!

I can't really give you my full story yet, as I am

just trying this for the first time myself. I have

Uterine Didelphys (2 uterii, 2 cervices, vaginal

septum) and am 14 wks pregnant. So far, everything

seems to be okay. This site has been a great source

of reassurance and everyone is so positive that it

really helps.

I wish you the best of luck!

Take care,

kelly

--- jennifer dodson wrote:

> Hi my name is and I am 25 yrs old.

> I actually wrote to the site but I am not sure that

> it was posted correctly.

> My first pregnancy went just fine till I was 35

> weeks and my water broke.

> Went to hosp. and found that my daughter was breech

> as well as early, so we

> went in to the O.R. for a c-sec. This is where we

> found the unicornuate

> uterus.

> Later, as in 3 yrs later. I had a HSG done to

> deceide excatly the extent of

> my condition. And as far as I remember my uterus is

> half the size it should

> be and the right ovary is not attached to the

> uterus,the tube isn't either.

> So, as far as I know know it is fine for me to have

> another child I just

> have higher risks of MC's and preterm births, also

> breech babies and

> c-sec's.

> After 4yrs, we decided to take the chance and try

> again. To our surprise we

> got pregnant right away.Like the first time that we

> tried!!

> So now, I am 8 weeks prego today!

> And nervous as hell!! (excuse the lang.)

> I am having to go to a different doctor this time

> becasue my doctor retired.

> Which only makes it worse for us. hehe

> I go to my first prenatal ckup on the 13th of June.

> I just wanted some encouraging words. To ease our

> nerves. And since we now

> know what we are up against and what is in store for

> us, please I would like

> to hear your stories.

> Thanks,

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com

>

__________________________________________________

June 6, 2001

Hi ,

Welcome! And thanks for sharing your story.

I am 25 weeks pregnant. I found out at 8 weeks that I

have a bicornuate uterus. The way we found out was I

had very heavy bleeding, so we went to the hospital,

and on the ultrasound they could not tell if I had a

bicornuate uterus or an ectopic pregnancy. They

rushed me into surgery, where my uterine anomaly was

diagnosed. I still don't know exactly why I had that

bleeding (which I had again at 10 weeks).

This is my first pregnancy, so every day feels like a

" wait and see " kind of thing, which makes me nervous.

But everything's going well now, after the rough

start. I'm starting to allow myself to believe this

is going to work out.

Best of luck to you, and I look forward to hearing

more from you.

Ula

--- jennifer dodson wrote:

> Hi my name is and I am 25 yrs old.

> I actually wrote to the site but I am not sure that

> it was posted correctly.

> My first pregnancy went just fine till I was 35

> weeks and my water broke.

> Went to hosp. and found that my daughter was breech

> as well as early, so we

> went in to the O.R. for a c-sec. This is where we

> found the unicornuate

> uterus.

> Later, as in 3 yrs later. I had a HSG done to

> deceide excatly the extent of

> my condition. And as far as I remember my uterus is

> half the size it should

> be and the right ovary is not attached to the

> uterus,the tube isn't either.

> So, as far as I know know it is fine for me to have

> another child I just

> have higher risks of MC's and preterm births, also

> breech babies and

> c-sec's.

> After 4yrs, we decided to take the chance and try

> again. To our surprise we

> got pregnant right away.Like the first time that we

> tried!!

> So now, I am 8 weeks prego today!

> And nervous as hell!! (excuse the lang.)

> I am having to go to a different doctor this time

> becasue my doctor retired.

> Which only makes it worse for us. hehe

> I go to my first prenatal ckup on the 13th of June.

> I just wanted some encouraging words. To ease our

> nerves. And since we now

> know what we are up against and what is in store for

> us, please I would like

> to hear your stories.

> Thanks,

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com

>

__________________________________________________

July 7, 2001

Hi Sandy,

I was in a very similar situation to yours. I don't think you need to

be too worried. Thyroid cancer is generally very slow growing - the

time frame being years, rather than months. Also, papillary is one of

the least aggressive thyroid cancers. So a wait of a few weeks

shouldn't be too much of a problem. I had to wait six months after my

lump was found, because the tests were all inconclusive, and I had to

have them one at a time due to stupid insurance procedures. Then, my

doctor wanted to wait an extra month so he would have the opportunity

to have as an assistant a guy who wrote a textbook on thyroid surgery.

Only he was in Europe on vacation. I know it's a lot to deal with, and

the waiting is the hardest part, but you are going to be OK. Use the

extra time to learn all you can to prepare yourself for your upcoming

journey of recovery.

Bonnie, from Chicago

__________________________________________________

July 8, 2001

Hi Sandy,

I am also a 37 year old and living in California. In 1992 I was diagnosed

with thyroid cancer after an ENT, who was treating me for an ear infection,

decided to check my nose and throat since I was there. He found a lump on my

neck and it rollercoastered from there. I had a biopsy done in May and

didn't have the surgery until the end of August. I chose to wait until the

show I was working on wrapped. That seemed more important to me at the time.

Young and dumb. :} According to my doctor, I could have had it for years.

It's slow growing. I hope that everything works out for you and if you have

any more questions or just need to vent, don't hesitate.

tt 8/92

rai 9/92

July 8, 2001