Vitamins

[Guest guest]

RVKLA@... wrote:

>

> From: RVKLA@...

>

> I have a question for the group. Is anyone in here familiar with the

> theory pertaining to that vitamins " feed " the spirocetes?

> If so, is there any documented informaton on this subject?

> Thank you,

Dear : I sure hope it's not true because Dr. Burrascano's protocol

calls for significant vitamin intake. Based on his recommendations on

the Internet, I am currently on 12 different vitamin pills!

Lovette

[Guest guest]

The only thing I can say about vitamin and supplements are that I heard Dr.

Donta say that you should be careful what you take because " we don't know what

these things eat yet. " (something like that) There was a report about the

spirochete using some type of amino acid for survival. I must say I have to

agree with him a little. These bugs have learned to survive somehow.

Kathleen

[Guest guest]

Thank you for responding to my question.

Do you know where I might find the aticle that talks about the

connection with the amino acids and the spirocetes.

Thank you,

KAREN

[Guest guest]

Hi,

Do whatever you think your immune system needs.But don't forget the good brand

of chealted magnesium. The bottle will say done by the Albion method. If I

don't take it I have this horrible " electrical problem " where everything

shorts out and electricity runs here and there. MY limbs jump, it gets very

uncomfortable. So don't miss that one,

Connie

[Guest guest]

In a message dated 6/27/99 7:28:24 PM Eastern Daylight Time,

Prinny328@... writes:

<< but I'm such a pea brain and can't

remember. Is there a way to buy vitamins over the internet? Does anyone

have a 800#? Is this cheaper than buying at the health food store. Thank

you in advance. It is just sooo expensive for all the vitamins we have to

take!!!!! Thank you again. >>

do you have access to a local costco or other type warehouse.

...I buy oodles of supplements...and get a lot from the warehouse store..for

example echinacea and co-enzyme-q-10 and my acidolphilus..they have grape

seed extract....max epa...multivitamins...house brand and name brand...saves

a big bunch over health food stores...Bernadette

[Guest guest]

Hi ,

I don't know if this is the cheapest but I buy my vitamins from the

Vitamin Shoppe.

http://www.vitaminshoppe.com/

Although I get a catalog monthly, I do order direct over the internet, (I am

brave), I have ordered items at 3PM in the afternoon and they were delivered

the very next day by UPS! I was amazed. I don't mind shipping costs, saves

me a trip to the health food store.

There is also a company on the internet who will donate a portion of your

purchase price to a Lyme organization, I am sorry I don't have any more

information about it, I know Oronato is the one who pioneered the

service through the CFS foundation, if anyone has more information, please

share it.

Hugs,

Marta (NJ)

>From: Prinny328@...

>

>Hi everyone,

>I know this has been discussed before, but I'm such a pea brain and can't

>remember. Is there a way to buy vitamins over the internet? Does anyone

>have a 800#? Is this cheaper than buying at the health food store. Thank

>you in advance. It is just sooo expensive for all the vitamins we have to

>take!!!!! Thank you again.

>CHristine

[Guest guest]

Re Vitamins

I offered my local health food store a bulk sale and got my vitamins cheaper.

He looked for the biggest bottles he could find and then bec I bought so many he

gave me a break on the price.

Holly

BratDet@... wrote:

> From: BratDet@...

>

> In a message dated 6/27/99 7:28:24 PM Eastern Daylight Time,

> Prinny328@... writes:

>

> << but I'm such a pea brain and can't

> remember. Is there a way to buy vitamins over the internet? Does anyone

> have a 800#? Is this cheaper than buying at the health food store. Thank

> you in advance. It is just sooo expensive for all the vitamins we have to

> take!!!!! Thank you again. >>

> do you have access to a local costco or other type warehouse.

> ..I buy oodles of supplements...and get a lot from the warehouse store..for

> example echinacea and co-enzyme-q-10 and my acidolphilus..they have grape

> seed extract....max epa...multivitamins...house brand and name brand...saves

> a big bunch over health food stores...Bernadette

>

> ---------------------------

[Guest guest]

Hi , would just taking 2 or 3 multi vitamins a day work, or does it take

the heavier doses to work properly? Lynn

Ceallachqn@... wrote:

> From: Ceallachqn@...

>

> Hi Lynn,

> Yes, a one a day multi vitamin is ok if you are healthy. For those of us who

> need higher nutrition you could still take the one a day but add to that.

> For example, read what is in your multi vitamin. Then add extra of C to

> equal , say between 1000 mg. and 3000 mg. You need to spread this out over

> the day. Then, take pantothenic acid (a B vitamin). See that you are

> getting at least 500 mg. a day. 1000 mg. is probably better. Also up your

> other b vitamins. Be careful of niacin though. too much can give you the

> itchies. This is just an example. You may want to start out with less and

> that is fine. Read up on your supplements as you go along. The main thing

> is to keep your vitamins balanced.

>

> ---------------------------

[Guest guest]

Hi Lynn,

You know, I think it would depend on what is in your multi-vitamin.

Sometimes, with a multi you can too much of some things. Most of them these

days are set up to be reasonably balanced. I doubt that it would hurt you to

take 2 or 3 a day. I know that would be easier because then you wouldn't

have to think about it so much. You could try that and see if it makes a

difference for you. I would still encourage to read up on vitamins you are

taking.

[Guest guest]

Hi Lynn,

Roxanne is correct. This is why I indicated that it depends on the

multi-vitamin you are taking. You really should read the label and find out

exactly what you are taking. However, I have to admit, even though I am

touting doing your reading, that I used to just take my multi-vitamin several

times a day...I did make sure of how much of everything I was getting. There

is a lot of controversy over what is a safe dose of various vitamins.

When I told my doctor that I was taking 3000 mgs. of vitamin C a day he about

had a heart attack. I felt great though and I finally got my bladder

infections under control at that dose. This was a few years ago. I don't

take that much now....I only bump it up when I begin to feel ill.

[Guest guest]

Thanks , I will do that, I do need to read up, but not today, too worn

out. Lynn

Ceallachqn@... wrote:

> From: Ceallachqn@...

>

> Hi Lynn,

> You know, I think it would depend on what is in your multi-vitamin.

> Sometimes, with a multi you can too much of some things. Most of them these

> days are set up to be reasonably balanced. I doubt that it would hurt you to

> take 2 or 3 a day. I know that would be easier because then you wouldn't

> have to think about it so much. You could try that and see if it makes a

> difference for you. I would still encourage to read up on vitamins you are

> taking.

>

> ---------------------------

[Guest guest]

Okay, I will take what I am and add some magnesium. Lynn, thanks.

CREE8V1@... wrote:

> From: CREE8V1@...

>

> Lynn,

>

> I would discourage you from doubling or tripiling vitamins. There are some

> vitamins that are toxic in large doses and some that your body can deal with

> fine.

>

> Roxanne

>

> ---------------------------

[Guest guest]

Hello to all on the vitamin issue,

I think I am just going to quit saying anything about vitamins. Everyone

seems willing to chug every medicine on the shelf without question. Just

need an Ok from the doctor. Well, my doctor damn near killed me. I don't

take anything without question and research and that includes my vitamins. I

happen to take my vitamins and herbs 3 or 4 times a day depending on how I am

feeling. I have researched what I take and how much I take. If you think I

am a little peeved here, well, I am. Yes, some vitamins can be toxic like

Vitamin E and Vitamin A. But you need to be taking 10,000 units daily for at

least a week before you reach this point. Most multi-vitamins only contain

100 units of vitamin E. I usuually take 400 units per day. When I was

extremely ill I took 1000 units daily to help prevent scarring. The thing is

this....we each have to be responsible about what we eat and what we take.

Passing about information about taking vitamins or not taking them doesn't do

anyone any good unless you are actively doing your own research.

I am not advising anyone to take 10,000 IU of E or A. I am not advising

anyone. I wanted to raise some consciousness on this issue. To tell the

truth, I did most of my research when I was bedridden and totally worn out.

Well, I figure everyone will blast me now. I just kind of reached a boiling

point after reading all these posts cautioning about vitamins. I took it a

bit personally. So, I am done. No more vitamin talk.

[Guest guest]

:

When you talked about vitamins, I wonder if I was supposed to take them. I

take the calcium with Vitamin D, so I looked for the last letter from Mayo.

Sure enough it said to take vitamins. Nothing about how much so I just went

to the store and got One A Day for Women. I want to thank you for making me

aware to check about vitamins.

I never was good about taking them but now with supper, I take my calcium and

vitamin.

Thanks a lot.

Sue AIH

Wisconsin

[Guest guest]

Hi Geri,

I think what gets to me is when postings occur that (forgive me for this)

obviously have not been researched! I know I have a tendency to be a little

outspoken....but this has developed from years of goofy doctors trying to

tell me what to do. When their stuff didn't work I had to find my own way.

I have had good doctors, don't get me wrong on that but they are only good to

a point. They certainly mean well but if I had followed my doctor's advice

on everything - which included avoiding supplements and herbs - I would still

be on 40 mgs of pred and 100 mgs of Imuran.

When I was in the hospital having my baby I did it drug free because I knew

how my body would react to having drugs in it. They tried to talk me into

it. They wanted to give me a mega-dose of steroids because of the stress of

having the baby. I refused and was told that I could die. A megadose of

steroid is just as much stress on the body as having a baby. And what is

more, a megadose of steroid is not a natural occurence in the body! They

wanted to give me a shot of Pitocin to help my uterus contract after birth.

They said it was routine. I refused that as well and was told I could

hemorrage! My quibble with the medical profession is their insistence on

tinkering around with everything! They don't want anything to be left alone

and the thought there is help for problems that doesn't require a

prescription really bothers most doctors! There is a major brainwashing job

going on in the AMA and it bugs me.

If you think about it....what do the doctors know about nutrition and

supplementation when they say is ok to drink Coke all day? I am not meaning

to pick on you here Geri....10 years ago I was told the same thing - to go

ahead and drink my coke. I am sure a lot of us drink coke now and then just

to get some extra energy. Lac of energy is a major problem for people with

chronic illness. Drink a coke or caffeine and then maybe the laundry will

get done. I know all about it..... well I probably have said enough. I

don't know why I got so upset about this. I think that every now and then I

just flip out over these issues. I really am not fanatical. I have a stash

of chocolate chips in my freezer.

[Guest guest]

Here is my understanding on the subject of vitamins.

B vitamins, folic acid and vitamin C are water soluble. Excess intake of

these passes out with the urine. Too much vitamin C can result in

urinary discomfort, but other than there does not appear to be any harm

in taking too much of these vitamins.

Vitamin A, D, E and K are fat soluble. These are stored in the body fat

and too much of these can result in serious problems. This is the reason

you don't want to take too many multi-vitamins - you may be consuming

much more than the daily requirement for fat soluble vitamins. Vitamin D

is called the sunshine vitamin and is created by the body when exposed

to the sun, so in many cases, one does not need to take a vitamin D

supplement.

One A Day type vitamins are designed to not exceed the requirements for

the fat soluble vitamins and I believe they are non-toxic. Some of them

have mega-doses of the water soluble vitamins.

http://www.gicare.com/jptvt01.htm has a good discussion on vitamins and

http://www.gicare.com/jptmn01.htm discusses minerals.

Roselle50@... wrote:

>

> From: Roselle50@...

>

> :

>

> When you talked about vitamins, I wonder if I was supposed to take them. I

> take the calcium with Vitamin D, so I looked for the last letter from Mayo.

> Sure enough it said to take vitamins. Nothing about how much so I just went

> to the store and got One A Day for Women. I want to thank you for making me

> aware to check about vitamins.

>

> I never was good about taking them but now with supper, I take my calcium and

> vitamin.

>

> Thanks a lot.

>

> Sue AIH

> Wisconsin

>

> ---------------------------

[Guest guest]

,

Don't stop posting about vitamins! Your information is very helpful.

You've done the research that most of us haven't gotten around to doing.

Also, I assume (and hope) that everyone who reads anything posted here

takes what they read only as a guideline, or that the information opens the

door towards them asking questions on their own.

I mentioned Vitamin E because I read years ago that some vitamin could be

toxic and couldn't remember which one it was. Wasn't that the vitamin that

they used to recommend for acne? Anyhow, my father-in-law was a bit

obsessed with things like that and fed huge quantities of it (vit. E, I

think) to my brother-in-law when he was a teen until his doctor told him to

stop.

I've had almost zero guidance about what vitamins to take from any source

until I came online here. When I first got sick and saw the nutritionist,

she told me what to take and I promptly forgot it. Thus I took nothing for

several months. Fortunately, my husband's doctors were more attentive to

him so I began taking whatever he was taking. Through this group I learned

that I needed more calcium and I just learned that I should be taking

vitamin D - from you, I think. So, I just started taking it.

What you are saying makes sense and we do need to at least have someone to

head us in the right direction. I take vit E, incidentallly, but only 400

units daily. I don't eved know if I need it. I also take A, B Complex, C,

D and Calcium - 1200 mgs. daily though I guess I need to take more.

Haven't started yet.

Discussion is good. It adds balance. Don't be offended if anyone

questions or disagrees. That's healthy because it means that people are

thinking things out for themselves instead of blindly following any

direction they're led. I'd sure hate to have everyone take everything I

say as a guideline. All I hope to do is open the door to questions and

perhaps our doctors will see that we aren't going to passively accept

whatever happens to us.

Anyhow, your contributions have been very valuable and I know that everyone

agrees with me.

Take care,

Geri

[Guest guest]

Hi Geri,

I think it is great that you can do all that now and were able to do the

things you wanted earlier in your life. I can understand why you would not

be interested in nutrition and things along that line if it was something

that never seemed to affect you. For me, my diet has been the only thing to

help me get off meds and feel better.

I never had the opportunity to go go go. My get up and go got up and left 15

years ago when I was 19. My mother, who is also 64, runs circles around me.

There are times when I still get a little resentful about all that has gone

on. The one thing that makes me so happy is my daughter who is now 18

months. My husband and I have been married 9 years now and we had pretty

much figured that kids just weren't going to happen.

When you mentioned never having been on 100 mgs. of Imuran it just really hit

home again. That is part of what I am talking about. In 1993 my doctor had

me on 100 mgs. of Imuran and we were weaning off prednisone. I had normal

enzyme levels. He never wanted me to reduce or go off the Imuran. I was at

UCSD. Maybe others have been more fortunate with their doctors. I went

through 7 GI docs in 10 years. The person I saw at UCSD was the best. He

has now moved on to greener pastures and I see someone who is local to me. I

like him, but even he is hinting at going back on Imuran. My enzyme levels

are up about 10 points.

Sounds like you live in my neck of the woods. La Jolla is almost in my

backyard.

[Guest guest]

Geri:

I also asked at the Mayo Clinic about the diet coke and she said that it

would be ok. I use to drink five to six cans a day and now I drink about one

to two a day. I also try and drink alot of water. No coffee. Never have

drank it so why start at 49. It like I say, one Sharps beer is not going to

kill me once in a while, but the truck on the street could.

Sue AIH

Wisconsin

[Guest guest]

,

Research can be a luxury for some of us, especially those who are holding a

full-time job, have kids, and low energy to boot. When I first was

diagnosed, I couldn't do much else but research. My doctors weren't

telling me anything and were aloof bordering on rude. Nutrition and

vitamins, however, were not included in any of that research. They're not

something I've ever given much thought to since I've always been known as

the original high-energy kid - able to walk farther, faster, longer, stay

up later and work harder than just about anyone I knew. And, I never

seemed to get sick except for " little " things (that turn out to have been

related to AIH, most likely.)

Unfortunately, I agree with you. Not all doctors know what they're talking

about when it comes to nutrition. Not even GI doctors who should be

experts. Others are borderline crackpots or have an agenda. My husband

was seeing a doctor who prescribed the drug-of-the-day, sometimes meds that

were strictly contraindicated when taken with other drugs he HAD to take.

When he told my husband to stop taking potassium the week after he got out

of the hospital and was told that he had dangerously low potassium, that

cinched it. Now he's sticking with his cardiologist instead, for control

of his high blood pressure. His cardiologist orders labs frequently and

monitors the drugs that he prescribes. At my age, and as the mother of

six, and as an involved family member through the serious illnesses of both

of my parents, my mother-in-law and our son who died from Lou Gehrig's

Disease in late 1997, I've been exposed to many different types of doctors.

Some are outstanding, others have a great bedside manner that they sub for

knowledge. Others are slackers and should go into some other business.

You learn to be selective, and now that my life depends on selectivity, I

double check everything my doctors tell me - despite their apparent

expertise in treating AIH patients.

My doctors never did have me on 100 mgs. of Imuran and I had end-stage

liver disease with stage IV cirrhosis when I was diagnosed. I've only

taken 50 mgs. all along. I was reduced from 40 mgs. of Prednisone rather

rapidly down to 20 mgs. then started a slower process to 5 mgs., where

apparently I'll be from now on. I didn't have complications and other

autoimmune diseases to confuse the issue, and I'm now in remission.

Hopefully I'll remain there. Whatever my doctors did, it had to be

somewhat right. What they haven't done is give me any information about

diet and supplements (vitamins) except tell me to NOT take herbals in any

form for any reason. No problem. I'm not interested and probably never

will be, though I am a cheerleader for those who take them and who have had

good experiences.

Last summer I developed a sudden case of almost unbelievable giant hives.

I've rarely had hives in my life (one other time in my recollection) and

these were as big as saucers, bright red, raised and painful besides

itching horribly. The Dermatologist my Hepatologist sent me to for biopsy

wanted me to go back up from 10 mgs. (at the time) pred to 30 mgs. until

the problem went away. My Hepatologist said absolutely not. Instead he

had me start taking 15 mgs. but I was told to decrease at the rate of 1 mg.

a week after that. He's definitely conservative about meds. The only

changes or additions he's made to my meds (except for reducing pred) in a

year and a half have been reluctantly, at the suggestion of other doctors.

He didn't even want me to take Prilosec, telling me that he isn't satisfied

that it's entirely safe. But, he prescribed it because I really did need

relief from left sided pain.

Truth is, it wasn't a doctor who told me that Coke is okay. It was a

nutritionist at Scripp's Research Center in La Jolla. I was told that

despite weight gain from pred, I should not diet, based on my accounting of

what I usually eat and drink including Coke. I asked her specifically

about Coke and she said that I need the carbohydrates and at worst, it

won't hurt me. Coke only has 10% of the amount of caffeine in an equal

amount of coffee, which is something many people don't know, but I wasn't

told to avoid caffeine anyhow. I don't happen to drink coffee and only

rarely drink tea. I also was told that I require a high protein diet and

that I couldn't satisfy my needs with vegetarian protein sources. I have

to have almost a pound of protein daily, which is about 10 times as much as

I usually consume.

But, the nutritionist wouldn't have influenced me one way or the other

about drinking Coke. I smoke and my mouth gets dry. I'm not going to quit

smoking unless it keeps me from getting a transplant (and Scripps won't do

one if I smoke - luckily I don't need one right now.) I also wouldn't

quite drinking Coke unless I was told it was downright dangerous. So far,

no one has hinted at that. These are my big indulgences besides spending

too much time at the computer. The last thing I need is an energy boost.

When I'm fatigued, a case of Coke wouldn't help me - it's beyond that. On

the other hand, I'm at my energy peak hours after I've had the last Coke of

the day (I usually only drink two or three a day.) In fact, around

midnight is when I'm just getting rolling and I can go on like a dynamo

until dawn.

Right now it's 6:00 PM and all I've had to eat today is a bowl of

cornflakes, a smaller than usual glass of OJ and some veggies and cream

cheese/dill dip. And - about 3/4 of a can of Coke. So far today, I've

cleaned house, done two loads of laundry, spent an hour on the phone with

the IRS and now will get ready to go out to dinner. We probably won't be

home until close to midnight because I intend to go shopping before and/or

after dinner. I have a stack of e-mail to tackle after that. Some of my

friends and family wonder if I've dropped off the face of the earth and I

haven't told them that what I'm really doing is writing overlong posts to

the support group!

Better go while I'm ahead.

Take care,

Geri

PS: I'm 64 years old.

[Guest guest]

My goodness Geri, I have never been that active or perky since I was about 18.

I have told my children all these years that I have never felt well except when

I was pregnant three times. I have known that all along, but no one (Dr) would

listen. I suppose I was on my way to AIH by then. I have had days where i

feel well enough to go like crazy, but lately they have been few and far

between, hope I am not getting worse. Also, what is consider remission for

AIH? Thanks Lynn

Geri Spang wrote:

> From: Geri Spang <spangs@...>

>

> ,

> Research can be a luxury for some of us, especially those who are holding a

> full-time job, have kids, and low energy to boot. When I first was

> diagnosed, I couldn't do much else but research. My doctors weren't

> telling me anything and were aloof bordering on rude. Nutrition and

> vitamins, however, were not included in any of that research. They're not

> something I've ever given much thought to since I've always been known as

> the original high-energy kid - able to walk farther, faster, longer, stay

> up later and work harder than just about anyone I knew. And, I never

> seemed to get sick except for " little " things (that turn out to have been

> related to AIH, most likely.)

>

> Unfortunately, I agree with you. Not all doctors know what they're talking

> about when it comes to nutrition. Not even GI doctors who should be

> experts. Others are borderline crackpots or have an agenda. My husband

> was seeing a doctor who prescribed the drug-of-the-day, sometimes meds that

> were strictly contraindicated when taken with other drugs he HAD to take.

> When he told my husband to stop taking potassium the week after he got out

> of the hospital and was told that he had dangerously low potassium, that

> cinched it. Now he's sticking with his cardiologist instead, for control

> of his high blood pressure. His cardiologist orders labs frequently and

> monitors the drugs that he prescribes. At my age, and as the mother of

> six, and as an involved family member through the serious illnesses of both

> of my parents, my mother-in-law and our son who died from Lou Gehrig's

> Disease in late 1997, I've been exposed to many different types of doctors.

> Some are outstanding, others have a great bedside manner that they sub for

> knowledge. Others are slackers and should go into some other business.

> You learn to be selective, and now that my life depends on selectivity, I

> double check everything my doctors tell me - despite their apparent

> expertise in treating AIH patients.

>

> My doctors never did have me on 100 mgs. of Imuran and I had end-stage

> liver disease with stage IV cirrhosis when I was diagnosed. I've only

> taken 50 mgs. all along. I was reduced from 40 mgs. of Prednisone rather

> rapidly down to 20 mgs. then started a slower process to 5 mgs., where

> apparently I'll be from now on. I didn't have complications and other

> autoimmune diseases to confuse the issue, and I'm now in remission.

> Hopefully I'll remain there. Whatever my doctors did, it had to be

> somewhat right. What they haven't done is give me any information about

> diet and supplements (vitamins) except tell me to NOT take herbals in any

> form for any reason. No problem. I'm not interested and probably never

> will be, though I am a cheerleader for those who take them and who have had

> good experiences.

>

> Last summer I developed a sudden case of almost unbelievable giant hives.

> I've rarely had hives in my life (one other time in my recollection) and

> these were as big as saucers, bright red, raised and painful besides

> itching horribly. The Dermatologist my Hepatologist sent me to for biopsy

> wanted me to go back up from 10 mgs. (at the time) pred to 30 mgs. until

> the problem went away. My Hepatologist said absolutely not. Instead he

> had me start taking 15 mgs. but I was told to decrease at the rate of 1 mg.

> a week after that. He's definitely conservative about meds. The only

> changes or additions he's made to my meds (except for reducing pred) in a

> year and a half have been reluctantly, at the suggestion of other doctors.

> He didn't even want me to take Prilosec, telling me that he isn't satisfied

> that it's entirely safe. But, he prescribed it because I really did need

> relief from left sided pain.

>

> Truth is, it wasn't a doctor who told me that Coke is okay. It was a

> nutritionist at Scripp's Research Center in La Jolla. I was told that

> despite weight gain from pred, I should not diet, based on my accounting of

> what I usually eat and drink including Coke. I asked her specifically

> about Coke and she said that I need the carbohydrates and at worst, it

> won't hurt me. Coke only has 10% of the amount of caffeine in an equal

> amount of coffee, which is something many people don't know, but I wasn't

> told to avoid caffeine anyhow. I don't happen to drink coffee and only

> rarely drink tea. I also was told that I require a high protein diet and

> that I couldn't satisfy my needs with vegetarian protein sources. I have

> to have almost a pound of protein daily, which is about 10 times as much as

> I usually consume.

>

> But, the nutritionist wouldn't have influenced me one way or the other

> about drinking Coke. I smoke and my mouth gets dry. I'm not going to quit

> smoking unless it keeps me from getting a transplant (and Scripps won't do

> one if I smoke - luckily I don't need one right now.) I also wouldn't

> quite drinking Coke unless I was told it was downright dangerous. So far,

> no one has hinted at that. These are my big indulgences besides spending

> too much time at the computer. The last thing I need is an energy boost.

> When I'm fatigued, a case of Coke wouldn't help me - it's beyond that. On

> the other hand, I'm at my energy peak hours after I've had the last Coke of

> the day (I usually only drink two or three a day.) In fact, around

> midnight is when I'm just getting rolling and I can go on like a dynamo

> until dawn.

>

> Right now it's 6:00 PM and all I've had to eat today is a bowl of

> cornflakes, a smaller than usual glass of OJ and some veggies and cream

> cheese/dill dip. And - about 3/4 of a can of Coke. So far today, I've

> cleaned house, done two loads of laundry, spent an hour on the phone with

> the IRS and now will get ready to go out to dinner. We probably won't be

> home until close to midnight because I intend to go shopping before and/or

> after dinner. I have a stack of e-mail to tackle after that. Some of my

> friends and family wonder if I've dropped off the face of the earth and I

> haven't told them that what I'm really doing is writing overlong posts to

> the support group!

>

> Better go while I'm ahead.

> Take care,

> Geri

> PS: I'm 64 years old.

>

> ---------------------------

[Guest guest]

Hi ,

La Jolla is close to you? Where do you live. I ask

this as I live in Mission valley close to downtown san

diego.

Elena

--- Ceallachqn@... wrote:

> From: Ceallachqn@...

>

> Hi Geri,

> I think it is great that you can do all that now

> and were able to do the

> things you wanted earlier in your life. I can

> understand why you would not

> be interested in nutrition and things along that

> line if it was something

> that never seemed to affect you. For me, my diet

> has been the only thing to

> help me get off meds and feel better.

>

> I never had the opportunity to go go go. My get up

> and go got up and left 15

> years ago when I was 19. My mother, who is also 64,

> runs circles around me.

> There are times when I still get a little resentful

> about all that has gone

> on. The one thing that makes me so happy is my

> daughter who is now 18

> months. My husband and I have been married 9 years

> now and we had pretty

> much figured that kids just weren't going to happen.

>

> When you mentioned never having been on 100 mgs. of

> Imuran it just really hit

> home again. That is part of what I am talking

> about. In 1993 my doctor had

> me on 100 mgs. of Imuran and we were weaning off

> prednisone. I had normal

> enzyme levels. He never wanted me to reduce or go

> off the Imuran. I was at

> UCSD. Maybe others have been more fortunate with

> their doctors. I went

> through 7 GI docs in 10 years. The person I saw at

> UCSD was the best. He

> has now moved on to greener pastures and I see

> someone who is local to me. I

> like him, but even he is hinting at going back on

> Imuran. My enzyme levels

> are up about 10 points.

>

> Sounds like you live in my neck of the woods. La

> Jolla is almost in my

> backyard.

>

> ---------------------------

[Guest guest]

Geri

When do you sleep....

Luanne Ty's mom

[Guest guest]

Hi elena

La Jolla is not extremely close to me...I live in Temecula. My husband works

in San Diego - Navy. I have been in Mission Bay several times. You would be

the only other person I know near me who has AIH. Until I got on this list I

felt like an island! That is 15 years of island living!

[Guest guest]

:

My sister lives on Mission Bay. She got married in May and I was there for a

week. I love it but ofcouse too busy for a farm girl and a small town girl

like me.

I went to n one day and it is so nice there. They have an apple

festival for the whole month of October. I live about 60 miles from a town

on Lake Superior that has an Apple Festival on the first weekend in October.

We couldn't have it any longer because it would snow before the end of it. I

was there the weekend before I went to the doctor about being so sleepy all

the time. That is when I found out about AIH. I haven't gone back either.

Sue AIH

Wisconsin