Valtrex

January 13, 2003

We did Valtrex, and then Famvir, for about a year and a half with the

infamous Goldberg (many other things too - some quite outlandish). I

don't think it made a difference. What another doctor told me that Goldberg

never quite had an answer to is that 85% of the population has HHV6 in their

blood - it's very common.

January 13, 2003

What type of negative effect?

> Valtrex tends have negative effects during the third week which

may

> last for 5-7 days. The best time to assess whether it is doing

> something positive for your child is four to five weeks after

> commencing it.

July 5, 2004

In a message dated 7/5/2004 1:59:57 PM Central Standard Time,

gstone98@... writes:

My son is 12, and 105 pounds. He takes Valtrex 200mg once a day- one month

on- then time off for evaluation/deciding to do another round or not. He started

at 2 a day, but developed headaches.

That sounds like a really low dosage and kind of strange protocol. Valtrex

is usually given three times a day continuously until the body kicks in enough

to kill off the virus without it. If a child has headaches or feels ill

during the first 21 days, it is usually a good sign meaning that the Valtrex is

hitting something. Of course, if the headaches continued past the adjustment

period, perhaps another antiviral would be indicated.

My son, age 12 and a skinny 68 lbs, takes 500mg Valtrex twice a day and an

extra 375mg mid-day.

Gaylen

July 5, 2004

My son is 12, and 105 pounds. He takes Valtrex 200mg once a day- one month on-

then time off for evaluation/deciding to do another round or not. He started at

2 a day, but developed headaches.

-GA

Re: [ ] Tics- or PANDAS - Is my son needing

specialized doctors? another EBV cite

Here's another citation, noting that " Events

considered to predispose to or cause recurrent tonsillitis (RT) include

the misuse of antibiotic therapy in acute bouts, alterations in the

microflora, structural changes in crypt epithelium and certain viral

infections. Epstein-Barr Virus (EBV) infection usually occurs in early

childhood and can persist in palatine tonsil lymphocytes to induce

tonsillitis at a later date. " (1)

Ruling out EBV seems important for your son. Amalgam-fogged memory tells

me

that this can be done w/o surgery. If surgery occurs, you can stridently

demand that a tissue sample be saved and evaluated for EBV. 'Tis a nasty

virus if

persistently festering.

1: Int J Pediatr Otorhinolaryngol. 2001 Apr 6;58(1):9-15.

Detection of Epstein-Barr virus in tonsillar tissue of children and the

relationship with recurrent tonsillitis.

Endo LH, Ferreira D, Montenegro MC, Pinto GA, Altemani A, Bortoleto AE

Jr, Vassallo J.

Pediatric Otorhinolaryngology Service, State University of Campinas,

Campinas, Sao o, Brazil.

luiza_endo@...<mailto:luiza_endo@...>

Recurrent tonsillitis has been the subject of much investigation. Events

considered to predispose to or cause recurrent tonsillitis (RT) include

the misuse of antibiotic therapy in acute bouts, alterations in the

microflora, structural changes in crypt epithelium and certain viral

infections. Epstein-Barr Virus (EBV) infection usually occurs in early

childhood and can persist in palatine tonsil lymphocytes to induce

tonsillitis at a later date. We have examined the presence of EBV in

palatine tonsils in order to assess the relationship between this virus

and recurrent acute tonsillitis. Tonsils were obtained from 85 patients,

2--14 years old (mean 5.6 years old) who underwent tonsils and adenoid

(T & A) removal because of recurrent tonsillitis (RT) or T & A hypertrophy

(TH). Tissues specimens were processed for non-isotopic in situ

hybridization (ISH) using EBER 1/2 oligonucleotides (EBER RNA). The

indications for surgery were RT in 42 patients and TH in 43 patients. In

25 out of 85 cases

(29.4%) a positive EBER RNA reaction (15 RT and 33 TH) was found. The

chi(2)-test showed no statistically significant difference in frequency

of positive results between RT and TH group. We conclude that tonsils of

children can be colonized by EBV and that the virus may be implicated in

RT and TH.

Publication Types:

Clinical Trial

PMID: 11249975 [PubMed - indexed for MEDLINE]

Asmus wrote:

>Hi all,

>

>Hope everyone is well. We have been really struggling over here, so I

>havent been online much... quick update.

>

>le (7) - My previous " NT " daughter, just diagnosed bipolar and

>PDD. Armor thyroid helping food cravings with hypoglycemia somewhat~

>but frustration and explosive behavior a major problem.

>Diet-enzymes-suppliments show no noticable effects to date. I am having

>here krytopyrroles tested to see if she has pyrroloria(sp).

>

>Devon (5) - HFA - I cant believe this- but he now has tics. For a while

>I thought it was a stim. I realise now- no way. He cant control them.

>Whats wierd is they are primarily oral (although I think his

>eyeblinking may be one as well)- and they evolve. For instance- the

>first one was a quick/deep inhale while holding his mouth a certain

>way. Then it seemed to switch to holding his mouth open for a very long

>time, and then exhaling and saying " hey " . He would also grunt

>occasionally. Now he is growling really loud- almost like clearing your

>throat. We asked him if his throat hurt, and he did say no. Also- if

>you copy his tic, he will get upset. If he is walking or running, he

>will suddenly stop, and have a tic. Depending on the day, they rangle

>from every 5 seconds to once an hour. They are getting bad! I even did

>the vitamin A protocol just to see if the eyeblinking was related to

>that. I thought I saw some

>improvement- but I guess thats a whole other post.

>

>Some of you may remember me talking about his chronic tonsilitis- and

>how they wanted to take is tonsils out- well that never happened and

>the tonsilits hasn't gone away. This issue did arise a few months after

>back to back strep infections. We have tried different things- nothing

>is helping yet. I am getting close to trying homeopathy.

>

>I think my doctor would be willing to order whatever tests, but I dont

>know if he can interpret them. Anyone out there have this happen? Have

>any ideas what tests are appropriate to determine PANDAS and what

>treatment works- if any?

>

>Thanks much,

>

=======================================================

July 5, 2004

He is a poor metabolizer of medication. And the headaches were unbelievable and

about month 4. He does best with low dosages of most everything, and anything

time release specific he has problems with also. His Dr is Megson- she has

seen him for enough years that we together have found what dosage works for him.

He flares with physical & emotional stress certain times of year and then

recedes.

Just was posting his info- every kid is different & as well as every doctor's

protocol it seems

-GA

Re: [ ] Valtrex

In a message dated 7/5/2004 1:59:57 PM Central Standard Time,

gstone98@... writes:

My son is 12, and 105 pounds. He takes Valtrex 200mg once a day- one month

on- then time off for evaluation/deciding to do another round or not. He

started

at 2 a day, but developed headaches.

That sounds like a really low dosage and kind of strange protocol. Valtrex

is usually given three times a day continuously until the body kicks in enough

to kill off the virus without it. If a child has headaches or feels ill

during the first 21 days, it is usually a good sign meaning that the Valtrex

is

hitting something. Of course, if the headaches continued past the adjustment

period, perhaps another antiviral would be indicated.

My son, age 12 and a skinny 68 lbs, takes 500mg Valtrex twice a day and an

extra 375mg mid-day.

Gaylen

July 8, 2004

All kids are individual. With our son, if we try to stop the Valtrex, he starts

to have regressive symptoms again.

Jennfer

Ruston, Louisiana

Re: [ ] Tics- or PANDAS - Is my son needing

specialized doctors? another EBV cite

Here's another citation, noting that " Events

considered to predispose to or cause recurrent tonsillitis (RT) include

the misuse of antibiotic therapy in acute bouts, alterations in the

microflora, structural changes in crypt epithelium and certain viral

infections. Epstein-Barr Virus (EBV) infection usually occurs in early

childhood and can persist in palatine tonsil lymphocytes to induce

tonsillitis at a later date. " (1)

Ruling out EBV seems important for your son. Amalgam-fogged memory tells

me

that this can be done w/o surgery. If surgery occurs, you can stridently

demand that a tissue sample be saved and evaluated for EBV. 'Tis a nasty

virus if

persistently festering.

1: Int J Pediatr Otorhinolaryngol. 2001 Apr 6;58(1):9-15.

Detection of Epstein-Barr virus in tonsillar tissue of children and the

relationship with recurrent tonsillitis.

Endo LH, Ferreira D, Montenegro MC, Pinto GA, Altemani A, Bortoleto AE

Jr, Vassallo J.

Pediatric Otorhinolaryngology Service, State University of Campinas,

Campinas, Sao o, Brazil.

luiza_endo@...<mailto:luiza_endo@...<mailto:luiza_endo@...\

om<mailto:luiza_endo@...>>