Valtrex

[Guest guest]

Hi LeeAnn,

I have taken valtrex in the past, but it did absolutely nothing for me. Saturday

I got a prescription for FAMVIR. I only had one big cold sore and it was in my

nose - very painful. I took one pill on Saturday - filled the prescription

sunday - and today,Monday, it feels like the cold sore is almost gone, at least

it doesn't hurt anymore. WOW. I can hardly believe it worked that fast.

Joanne

[Guest guest]

Did not hurt or help me. It's a safe medication so there is little risk.

Regards, .

Valtrex

> I have been placed on valtrex an anti-viral. has anyone had

> experience

> with such a medication? ONe gram a day, which is 1000 mgs. Thom

[Guest guest]

Hi Thom

It won't do any harm to give it a try. It did nothing for me but every now and

then I hear from someone who was helped by it. So give it a try and see what

happeneds. & please let us know the

outcome

take care

Steve

Thom on wrote:

> I have been placed on valtrex an anti-viral. has anyone had

> experience

> with such a medication? ONe gram a day, which is 1000 mgs. Thom

>

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>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

I have tried it & so have a million other people -- most say it does nothing for

CFS. Once in a while I find someone who says it helps. If it clearly helped we

would know it by now.

Steve

Peggomatic@... wrote:

> I just got a prescription for Valtrex because I was reading that it seems to

> be good in initial tests for HHV-6 suppression and prevention of HHV-6

> reactivation. Then I went to pick up the drug and was shocked to find out

> that it costs about $3.75 a pill - $7.50 a day to take it. It's really too

> expensive for me right now, so I didn't get it, but I'm wondering if anyone

> has had a positive result with this drug. If so, how long before you

> noticed?

>

> Thanks!

> Peggy

>

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>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

In a message dated 01/24/2002 12:03:43 PM Pacific Standard Time,

jfloyd123@... writes:

<< I have tried Valtrex, Isoprinosine, Acyclovir, and Kutapressin for

anti-viral action, and feel by far the best when I take Valtrex. >>

Jennie,

Thanks so much for the reply. Are you still on Valtrex, and at what dose? I

am interested if it has helped anyone else on the list with EBV.

Take Care,

[Guest guest]

Who are you seeing that is prescribing all of this for you ?

Valtrex

Hi there -

I have tried Valtrex, Isoprinosine, Acyclovir, and

Kutapressin for anti-viral action, and feel by far the

best when I take Valtrex. I don't notice much with

Isoprinosine or Acyclovir, but Kutapressin gives me

painful welts on my thighs, and makes me feel

exhausted, so I stopped it after a one month trial.

Hope this helps - Jennie Floyd

__________________________________________________

[Guest guest]

Jennie,

You may be interested to note that Isoprinosine is relatively

weak as an antiviral in terms of any direct action, but can help be boosting

the immune system. I also believe, from personal experience that it takes a

long time for it to achieve any significant benefit.

Valtrex is simply Aciclovir delivered with the aid of the Amino

Acid Valine, hence the drug also being called Valaciclovir, that is Valine

and Aciclovir. However, what using Valtrex tablets does achieve is blood

concentrations of Aciclovir that can only be achieved with pure Aciclovir

using the IV route. This means Valtrex tablets will be more effective than

Aciclovir tablets.

I hope this helps to answer the question as to why Isoprinosine

and Aciclovir are send to be less effective than Valtrex.

Regards,

Andy

Valtrex

> Hi there -

> I have tried Valtrex, Isoprinosine, Acyclovir, and

> Kutapressin for anti-viral action, and feel by far the

> best when I take Valtrex. I don't notice much with

> Isoprinosine or Acyclovir, but Kutapressin gives me

> painful welts on my thighs, and makes me feel

> exhausted, so I stopped it after a one month trial.

>

> Hope this helps - Jennie Floyd

>

> __________________________________________________

>

[Guest guest]

In a message dated 01/27/2002 6:31:40 PM Pacific Standard Time,

jfloyd123@... writes:

<< I take 500 mg of Valtrex twice a day for two months, then one month off,

per the Cheney protocol. My internist, who has been treating my CFIDS since

1999, prescribes all my meds, although isoprinosine can be obtained legally

through Pharmex without a prescription. We have been rotating these over

several months, also per the Cheney protocol. >>

Jennie,

Where can I find the protocol for this? I looked on the DFW support group

website and can't find anything on anti-viral protocols. I am very

interested in what he thinks about Valtrex and EBV. I take it that it's

helping you. I see my doctor on Tuesday and am going to bring this subject

up.

Thanks,

[Guest guest]

Andy - thanks for your explanation of why Valtrex

works better thank acyclovir.

For those who asked, I take 500 mg of Valtrex twice a

day for two months, then one month off, per the Cheney

protocol. My internist, who has been treating my

CFIDS since 1999, prescribes all my meds, although

isoprinosine can be obtained legally through Pharmex

without a prescription. We have been rotating these

over several months, also per the Cheney protocol.

My internist is Beth McDougall, San Francisco,

415-566-1000. She treats many patients with CFS,

though that is not her specialty.

Hope this helps - Jennie F.

__________________________________________________

[Guest guest]

He prescribed Acyclovir for me two months ago when I couldn't tolerate the

Famvir he prescribed. I'll ask about Valtrex when I need to call his office

for a refill. Seems like it would work better all around. Does it carry the

same side effects as Acyclovir or more/different ones? I certainly don't

feel any different since starting the acyclovir.

Donna in NC

Re: Valtrex

>

>

> Andy - thanks for your explanation of why Valtrex

> works better thank acyclovir.

>

> For those who asked, I take 500 mg of Valtrex twice a

> day for two months, then one month off, per the Cheney

> protocol. My internist, who has been treating my

> CFIDS since 1999, prescribes all my meds, although

> isoprinosine can be obtained legally through Pharmex

> without a prescription. We have been rotating these

> over several months, also per the Cheney protocol.

[Guest guest]

Are you saying Chenny is prescibing VALTREX ?????

Re: Valtrex

Andy - thanks for your explanation of why Valtrex

works better thank acyclovir.

For those who asked, I take 500 mg of Valtrex twice a

day for two months, then one month off, per the Cheney

protocol. My internist, who has been treating my

CFIDS since 1999, prescribes all my meds, although

isoprinosine can be obtained legally through Pharmex

without a prescription. We have been rotating these

over several months, also per the Cheney protocol.

My internist is Beth McDougall, San Francisco,

415-566-1000. She treats many patients with CFS,

though that is not her specialty.

Hope this helps - Jennie F.

__________________________________________________

[Guest guest]

Donna,

Valtrex, also known as Valaciclovir, is simply a more effective

method of delivering Aciclovir where Valtrex in tablet form achieves blood

concentrations of Aciclovir that can only be achieved with Aciclovir through

the IV route. This means Valtrex is a cheaper, easier to deliver method of

achieving the required blood levels of Aciclovir, and removes the pain and

risks associated with intravenous infusion.

The side effects of Valtrex are reported as being the same as

Aciclovir with the addition of nausea in some cases.

Valtrex is simply known as a pro-drug of Aciclovir.

I hope this helps to answer your question.

Regards,

Andy

Re: Valtrex

> >

> >

> > Andy - thanks for your explanation of why Valtrex

> > works better thank acyclovir.

> >

> > For those who asked, I take 500 mg of Valtrex twice a

> > day for two months, then one month off, per the Cheney

> > protocol. My internist, who has been treating my

> > CFIDS since 1999, prescribes all my meds, although

> > isoprinosine can be obtained legally through Pharmex

> > without a prescription. We have been rotating these

> > over several months, also per the Cheney protocol.

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

I don't know what to make of the fact that Dr. Klimas at the

University Of Miami says that these type of anti-virals

" are completely inappropriate " for CFS and M.E.

Re: Valtrex

Donna,

Valtrex, also known as Valaciclovir, is simply a more effective

method of delivering Aciclovir where Valtrex in tablet form achieves blood

concentrations of Aciclovir that can only be achieved with Aciclovir through

the IV route. This means Valtrex is a cheaper, easier to deliver method of

achieving the required blood levels of Aciclovir, and removes the pain and

risks associated with intravenous infusion.

The side effects of Valtrex are reported as being the same as

Aciclovir with the addition of nausea in some cases.

Valtrex is simply known as a pro-drug of Aciclovir.

I hope this helps to answer your question.

Regards,

Andy

Re: Valtrex

> >

> >

> > Andy - thanks for your explanation of why Valtrex

> > works better thank acyclovir.

> >

> > For those who asked, I take 500 mg of Valtrex twice a

> > day for two months, then one month off, per the Cheney

> > protocol. My internist, who has been treating my

> > CFIDS since 1999, prescribes all my meds, although

> > isoprinosine can be obtained legally through Pharmex

> > without a prescription. We have been rotating these

> > over several months, also per the Cheney protocol.

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

Thanks Andy

Donna

Re: Valtrex

> Donna,

> <snip> The side effects of Valtrex are reported as being the same as

Aciclovir with the addition of nausea in some cases. Valtrex is simply

known as a pro-drug of Aciclovir.

I hope this helps to answer your question.

>

> Regards,

>

> Andy

[Guest guest]

we prefer not to go on and off of the valtex every couple of monts. We stay

on it for as long as a year per our bloodwork and symptoms, then switch to

famvir if still needed. it can be more detremental to the body to go on and

off like that.

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

[Guest guest]

, check this websit for antiviral protocol <A

HREF= " www.neuroimmunedr.com " >www.neuroimmunedr.com</A>.

click on articles than CFS . I can also send you some protocol info if you

e-mail me privately

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

[Guest guest]

Donna,

how can i get ahold of Cheney?

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

[Guest guest]

Donna, thank you so much!

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

[Guest guest]

Tina,

The new phone number in Asheville is 828-274-6665. His address is One

Vanderbilt Park Drive, Suite 230, Asheville, NC 28801.

Donna in NC

Re: Valtrex

> Donna,

> how can i get ahold of Cheney?

>

> Tina M. Hendrix

> Cure2000@...

> Vice-President, California Coalition

> Neuro-Immune Dysfunction Syndromes

> Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity,

CFS,

> etc.

[Guest guest]

What kind of positive effects are you gettin from the

Valtrex/Famvir? Is your bloodwork better? Do you feel

better, etc. Sorry if you have answered this already, but

I haven't been following lately due to new ISP. TIA

Mike

> we prefer not to go on and off of the valtex every couple of

monts. We stay

> on it for as long as a year per our bloodwork and symptoms, then

switch to

> famvir if still needed. it can be more detremental to the body to

go on and

> off like that.

>

> Tina M. Hendrix

> Cure2000@a...

> Vice-President, California Coalition

> Neuro-Immune Dysfunction Syndromes

> Autism Spectrum Disorder, ADD/ADHD, Learning Disorders,

Hyperactivity, CFS,

> etc.

[Guest guest]

Mike,

not sure who you were asking, but both blood work and symptoms much better

for my Autistic daughter, my ADD/learnign disabled/CFS daughter, and

CFS?Dyslexic me.

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

[Guest guest]

Hello KAthy,

just one thing that you may wish to try. Vitamins B2 and B6 - if you are low

in them it is difficult to get rid of the sores. Red and sometimes itching

tongue is also a sign of deficit (as well as headaches and cramps, though

this is not the only cause). Some meds and hyperthyroidism can cause the

deficit too.

Stania

----- Original Message -----

From: " Kathy ADSL Net " <kathryn@...>

" " <groups>

> My doctor has suggested that I may need to stay on Valtrex

> for one year if the massive cold sores I get on my lips,

> nostrils and even in my eye continue.

[Guest guest]

Kathy,

I have Meniere's Disease, a herpes disease of the ear. Doc has me on Valtrex,

same dose as you for a year. Just be sure to eat something with it or it will

irritate your stomach.

Beck

Kathy ADSL Net wrote:

> My doctor has suggested that I may need to stay on Valtrex

> for one year if the massive cold sores I get on my lips,

> nostrils and even in my eye continue.

>

> I have had CFS for 12 years, also Chronic Bronchitis, Asthma

> and Allergies.

>

> I have tolerated the 5 day 500 mg. 2x daily courses of

> Valtrex well.

>

> Any comments? No specialized testing available for me her.

>

> Thanks so much,

>

> Kathy

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

Beck,

That's really interesting. I didn't realize that Meniere's falls under this

type of medical category. And it's interesting to note that you have been

able to use Valtrex long-term. Thanks for sharing. I feel like such a rookie

with so much to learn!

[Guest guest]

In a message dated 1/13/03 1:59:42 PM Central Standard Time,

annabel@... writes:

> Valtrex tends have negative effects during the third week which may

> last for 5-7 days. The best time to assess whether it is doing

> something positive for your child is four to five weeks after

> commencing it.

>

Our doc (Dr. Goldberg) said that negative effects or " die-off " can

happen anywhere from day 1 until day 21 but he said this was mostly increased

emotionality, paleness, not feeling well in general or acting

drunk/silliness. My son has had periods of all of those plus the strange

hand thing. Have you ever heard of a temporary loss of motor function due to

killing off a virus?

Today is day 18 and he has had no problems at all. The doc's nurse said the

doc didn't think the weak and " funny " feeling hand could be related to a

viral thing but I wonder especially since all three times the problem

happened a few hours after his first dose of Valtrex for the day and on the

first day when I delayed the second dose by a few hours, it improved about

the time you'd expect the first dose to wear off. This doc mainly deals with

younger and lower-functioning kids so I'm thinking he just may have not had

the opportunity to see what it does to a kid who writes. I'm hoping this is

a sign that the virus is affecting his motor function like my gut says it is

and that we'll see big improvements in that area but who knows.

Overall, he's been significantly calmer on the Valtrex but that could be

because he isn't feeling very well.

He had a three-week " die-off " period of extreme emotionality and tantrums

(very strange for him) with Lauricidin followed by big improvements in focus

and overall health. He's still taking two scoops a day of Lauricidin along

with 375mg 3x per day of the Valtrex. I'm looking forward to a few days from

now when the " die-off " period is supposed to be over and we will hopefully

see some improvements.

Gaylen