new to group

[Guest guest]

Having had asthma for 58 years, I've had laryngitis many times--coupled

with asthma. For me, it signals a chest infection. In those

situations, I've never had a nebulizer or an emergency inhaler work.

You're going to have to get enough antibiotics to knock it out cold.

Pray that it's not a viral infection (like some pneumonias) because

antibiotics do not work with viral infections.

Doctors have been warned against over-prescribing antibiotics because

more antibiotic-resistant bacteria is occurring. So, many doctors,

erring on the side of caution, don't give enough antibiotics to clear

out our chest infections. IMHO, this caution may account for a portion

of the increasing mortality rate among asthmatics. Plus, not giving

enough antibiotics exacerbates the problem of antibiotic-resistant

bacteria as some of the bacteria lives on to develop resistance. That

can come back to haunt us when we need antibiotics the next time.

If your chest is filled with crud because of an infection, then nothing

(not Advair, not Albuterol) works until it can reach your airway

tissue. If your airways are blocked by infection, then the topical

medicines (even the steamy ones) may not work or may take a long time

to work. It's as if you're trying to baste a turkey that is sealed in

plastic wrap--you can try to do it, but it won't succeed very quickly

if at all. The prednisone reduces inflammation, but if your airways

are plugged with infectious mucus, then it may take a while to clear.

Our emergency inhalers function by dilating our bronchial tubes. To do

that they must be able to have contact with the nerve tissue that

responds to them. But if that tissue is sealed off --or blocked

by--infectious mucus --then the inhalers aren't very effective. To

answer your inquiry (based on my repeated experience) it takes at least

seven or eight days to respond to the antibiotics (if they are strong

enough)--and weaning off of prednisone doesn't take all that

long--maybe a week--just be sure to do it gradually in accordance with

your doctor's directions. Good luck.

On Wednesday, January 23, 2008, at 03:28 , ceciliamartin1943 wrote:

> Hi everyone,

>

> I am new to group and have questions. I have had attacks

> of " Bronchitis " , " Asthma " , " Asthmatic Bronchitis " , Asthamatic

> Brochonchitis with bronchospasms " , " Restrictive Airway Disease " (all

> terms my doctors have used over the years)and have primarily only

> been treated with Proventil inhalers over the years until this year.

> On January 2 I woke with a bad headache after being exposed to my

> stepson and his family a few days earlier who was sneezing coughing

> and blowing his nose a lot when my husband and I visited. I also

> started having the scratchy throat. By Friday I had lost my voice,

> was having trouble breathing and was coughing violently non-

> productively. I went to the doctor's office that day. Peak Flow

> normal for me is supposed to be about 475 and I was only able to do

> about 225. I was given Z-pack (antibiotic), Prednisone 40 mg per day

> and would take that for 3 days then taper down to 30 mg etc. By

> Tuesday I still was no better. Went back to the doctor's office, my

> peak flow was under 200 this time, x-ray's, ecg, and lab work was

> done. Intitial impression was vascular edema in the bronchial area.

> Prednisone was increased to 40 mg. Nebulizer with abuterol was 4

> times a day and Advair 1 inhalation daily was added. Still no return

> of voice it keeps going away. I am finally on 30mg a day of the

> prednsone, still on nebulizer 4 times a day. I was wondering if

> anyone else has had an attack similar and how long it took them to

> get weaned off the prednisone and how long to get their voice back.

> I do see my family doctor on Friday. He has said also that once I

> get over this he will be sending me to a pulmonologist.

>

> Any thoughts comments feedback will be appreciated. Thanks.

>

> Cecilia

>

>

[Guest guest]

Hi Cecilia,

Welcome to the group!

Alana

>>>> Hi everyone,

>

> I am new to group

[Guest guest]

Cecila,

You need to see the pulmonary specialist now. Treating lungs is all they do.

They have

seen thousands of patients with the same problems. Your primary hasn't the same

experience. They can do baseline testing now and when you are well to determine

the

severity of your illness. The primary doctors can be great but a specialist is

always the

correct doctor to call with breathing issues. I never even call my primary as

her treatments

were not adequate and put me in danger.

CALL TODAY.

Angel

-- In asthma , " ceciliamartin1943 " wrote:

>

> Hi everyone,

>

> I am new to group and have questions. I have had attacks

> of " Bronchitis " , " Asthma " , " Asthmatic Bronchitis " , Asthamatic

> Brochonchitis with bronchospasms " , " Restrictive Airway Disease " (all

> terms my doctors have used over the years)and have primarily only

> been treated with Proventil inhalers over the years until this year.

> On January 2 I woke with a bad headache after being exposed to my

> stepson and his family a few days earlier who was sneezing coughing

> and blowing his nose a lot when my husband and I visited. I also

> started having the scratchy throat. By Friday I had lost my voice,

> was having trouble breathing and was coughing violently non-

> productively. I went to the doctor's office that day. Peak Flow

> normal for me is supposed to be about 475 and I was only able to do

> about 225. I was given Z-pack (antibiotic), Prednisone 40 mg per day

> and would take that for 3 days then taper down to 30 mg etc. By

> Tuesday I still was no better. Went back to the doctor's office, my

> peak flow was under 200 this time, x-ray's, ecg, and lab work was

> done. Intitial impression was vascular edema in the bronchial area.

> Prednisone was increased to 40 mg. Nebulizer with abuterol was 4

> times a day and Advair 1 inhalation daily was added. Still no return

> of voice it keeps going away. I am finally on 30mg a day of the

> prednsone, still on nebulizer 4 times a day. I was wondering if

> anyone else has had an attack similar and how long it took them to

> get weaned off the prednisone and how long to get their voice back.

> I do see my family doctor on Friday. He has said also that once I

> get over this he will be sending me to a pulmonologist.

>

> Any thoughts comments feedback will be appreciated. Thanks.

>

> Cecilia

>

[Guest guest]

That is not always the case. My family dr is great and knows my whole health history. He knows that in treating my asthma that there is quite a bit more going on than just that. I can't stand my pulmonologist. I used to see him every 2-4 weeks and he would listen to my lungs, say yep they sound horrible, you are at risk of dying, keep on your same meds and come back in a couple of weeks. He never did anything different so I stopped going to him. My GP doesn't have any more answers for me either (I am steroid dependent and have tried just about everything to get off) but at least he has a pleasant bedside manner and the copay is lower.Angel wrote: Cecila,You need to see the pulmonary specialist now. The primary doctors can be great but a specialist is always the correct doctor to call with breathing issues. I never even call my primary as her treatments were not adequate and put me in danger.CALL TODAY.Angel .

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi ,

I know what you mean -

I tried everything for the colitis -

and still ended up on 6MP and Remicade.

I would have probably been steroid dependent, also,

but I cannot take them -

I was put on 40 mg. and had a massive reaction -

I am steroid intolerant.

What's really scary is the nurse told me that was actually a low

dose -

Doctor usually starts people on 60.

I would have been in serious trouble.

Alana

>>>> (I am steroid dependent and have tried just about everything to

get off)

[Guest guest]

,

Here in MA, USA the cost is the same. If you don't like your pulmonary

specialist CHANGE.

The first one I went to when I was well as my primary wanted a baseline was an

idiot. I

was sent when I was well for evaluation. He did nothing, no testing and said I

had a

rhinitis (stuffy nose). Treated me as if I was wasting his time. His parting

words were call

me IF you get really sick. Told my primary and she doesn't send anyone to him

anymore.

The second pulmonary doctor is fabulous. He treats me with care and doesn't take

my

symptoms lightly.

My primary saved my life by reading a cat scan that showed ovarian cancer that

the

radiologist missed. The written report discussed the abnormality in the body of

the report

but nothing under impressions. She found it in stage 1A. It was a rare kind

(only 8%) that

cannot be treated as it doesn't respond to chemo or radiation. The specialist

who sent me

for testing also ignored it. I think my primary is beyond great but not for

pulmonary

issues.

Angel

-- In asthma , wrote:

>

> That is not always the case. My family dr is great and knows my whole health

history. He

knows that in treating my asthma that there is quite a bit more going on than

just that. I

can't stand my pulmonologist. I used to see him every 2-4 weeks and he would

listen to

my lungs, say yep they sound horrible, you are at risk of dying, keep on your

same meds

and come back in a couple of weeks. He never did anything different so I stopped

going to

him. My GP doesn't have any more answers for me either (I am steroid dependent

and have

tried just about everything to get off) but at least he has a pleasant bedside

manner and

the copay is lower.

>

> Angel wrote: Cecila,

> You need to see the pulmonary specialist now. The primary doctors can be

great but a

specialist is always the

> correct doctor to call with breathing issues. I never even call my primary as

her

treatments

> were not adequate and put me in danger.

> CALL TODAY.

> Angel

>

>

>

> Recent Activity

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[Guest guest]

It depends on your insurance. I pay $20 to see my primary care and $35 to see specialists. That can be a huge difference when going every two to four weeks! I really should get a new pulmo. I just dread having to do all the test over again. Plus right now I am dealing with some weird kidney problem that they are trying to get to the bottom of and that is definitely taking priority.Angel wrote: ,Here in MA, USA the cost is the same. If you don't like your pulmonary specialist CHANGE. .

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

HI all, I thought it was interesting reading both your cases... In general I would have to say most family non specialists are a waste of time and money for severe respiratory illnesses like asthma. I've had times where I'd gone to 3 or 4 GP's in a row and they had no clue whatsoever and then first visit I go into an asthma specialist and they spot things right away. To me the visit to the pulmonologist was the most useless visit of all because all they did was try to look for wheezing, and some people even on a deathbed you can't hear them wheeze very well. I think it's a bit rare for most GP's to be able to treat asthma effectively but if yours can, I'm really happy for you. Pulmonologists...haven't had luck with them so I can't say anything good so far, but so far the

visits where I did have productive things happen were with people who work mostly with asthma and/or allergy type cases only. To be honest I feel like there's a LOT of doctors in all these areas that really don't know what the hell they're doing and just take people's money and don't try hard... wrote: That is not always the case. My family dr is great and knows my whole health history. He knows that in treating my asthma that there is quite a bit more going on than just that. I can't

stand my pulmonologist. I used to see him every 2-4 weeks and he would listen to my lungs, say yep they sound horrible, you are at risk of dying, keep on your same meds and come back in a couple of weeks. He never did anything different so I stopped going to him. My GP doesn't have any more answers for me either (I am steroid dependent and have tried just about everything to get off) but at least he has a pleasant bedside manner and the copay is lower.Angel <angelstarartist> wrote: Cecila,You need to see the pulmonary specialist now. The primary doctors can be great but a specialist is always the correct doctor to call with breathing issues. I never even call my primary as her treatments were not adequate and put me in danger.CALL TODAY.Angel . Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi Beth,

My son was first diagnosed with Pachygyria, and to be honest they are still not

sure between the two,

Have you tried the lissencephaly website? i've added the link just in case you

have seen or heard of it. docs sometimes use this name as a collective name to

cover conditions such as pachygyria..

http://homepage.ntlworld.com/foliot/liss/lisslinks.html

I hope this is helpful!! these conditions are so alike you will probably find

out alot from here also.

So welcome to the group anyway,

Mum to 7yrs PMG/ Lissencephaly G-tube servere seizures and breathing

problems

To: polymicrogyria@...: troutmanbeth@...: Fri, 1 Feb

2008 07:05:40 -0800Subject: new to group

Hi,I have just signed up to be in this group. My daughter is diagnosed with

Pachygyria and this is the closest thing I could find to it. Pachygryia means

having thick (and less) gyri in her brain than typical. Neurons are clumped

together and nothing is where it should be. She is however, functional though

delayed across the board. Anyone on this list with PACHYGYRIA? Thanks,

Beth

[Guest guest]

My daughters original dx was pachygyria, to be changed sometime later when her

scans were reviewed by Dr Pilz, the UK " expert " on these type of brain migration

disorders.

Dom, father to Chloe, aged 6 diffuse bilateral pmg, G tube, 2 ops on each hip,

epilepsy, cannot sit, walk, talk etc, however a happy smiley (most of the time)

little girl

new to group

Hi,

I have just signed up to be in this group. My daughter is diagnosed with

Pachygyria and this is the closest thing I could find to it. Pachygryia means

having thick (and less) gyri in her brain than typical. Neurons are clumped

together and nothing is where it should be. She is however, functional though

delayed across the board. Anyone on this list with PACHYGYRIA? Thanks, Beth

[Guest guest]

Here is a followup to my original post.

I finally was seen by a pulmonologist. He says I have COPD (Chronic

Obstructive Pulmonary Disease) and is leaning towords Emphysema as

the cause. He does not believe I have Asthma. I go for pulmonary

function tests and lab work this week and will be starting in

pulmonary rehab sometime in the near future.

Since I do not have asthma I will be dropping from the group.

However, I want to thank everyone for their input when I had

questions and for the information I have gained by reading this board.

Have a great day.

Thanks

Cecilia

>

> Hi everyone,

>

> I am new to group and have questions. I have had attacks

> of " Bronchitis " , " Asthma " , " Asthmatic Bronchitis " , Asthamatic

> Brochonchitis with bronchospasms " , " Restrictive Airway Disease "

(all

> terms my doctors have used over the years)and have primarily only

> been treated with Proventil inhalers over the years until this

year.

> On January 2 I woke with a bad headache after being exposed to my

> stepson and his family a few days earlier who was sneezing coughing

> and blowing his nose a lot when my husband and I visited. I also

> started having the scratchy throat. By Friday I had lost my voice,

> was having trouble breathing and was coughing violently non-

> productively. I went to the doctor's office that day. Peak Flow

> normal for me is supposed to be about 475 and I was only able to do

> about 225. I was given Z-pack (antibiotic), Prednisone 40 mg per

day

> and would take that for 3 days then taper down to 30 mg etc. By

> Tuesday I still was no better. Went back to the doctor's office,

my

> peak flow was under 200 this time, x-ray's, ecg, and lab work was

> done. Intitial impression was vascular edema in the bronchial

area.

> Prednisone was increased to 40 mg. Nebulizer with abuterol was 4

> times a day and Advair 1 inhalation daily was added. Still no

return

> of voice it keeps going away. I am finally on 30mg a day of the

> prednsone, still on nebulizer 4 times a day. I was wondering if

> anyone else has had an attack similar and how long it took them to

> get weaned off the prednisone and how long to get their voice

back.

> I do see my family doctor on Friday. He has said also that once I

> get over this he will be sending me to a pulmonologist.

>

> Any thoughts comments feedback will be appreciated. Thanks.

>

> Cecilia

>

[Guest guest]

Hi Cecilia, I would not drop from the group........................ I have seen 3 pulmonary specialists and several regular docs and they all have different opinions on why I wheeze and cough. One thing for sure................ They'll give you plenty of steriods and anti-biotics, schedule you lots of tests and visits, bill your insurance company for all they can. They will treat your symptoms but forget any of them giving you any hope of curing your condition; Not enough money made in doing that. If fact, they'll tell you to just give up and keep coming back as your condition is irreversable. Well, if you listen to them, get ready for a life of worsening illness. Keep in touch with others and be pro-active in finding ways to get yourself better. Don't give up. ceciliamartin1943 wrote: Here is a followup to my original post.I finally was seen by a pulmonologist. He says I have COPD (Chronic Obstructive Pulmonary Disease) and is leaning towords Emphysema as the cause. He does not believe I have Asthma. I go for pulmonary function tests and lab work this week and will be starting in pulmonary rehab sometime in the near future. Since I do not have asthma I will be dropping from the group. However, I want to thank everyone for their input when I had questions and for the information I have gained by reading this board.Have a great

day.ThanksCecilia >> Hi everyone, > > I am new to group and have questions. I have had attacks > of "Bronchitis", "Asthma", "Asthmatic Bronchitis", Asthamatic > Brochonchitis with bronchospasms", "Restrictive Airway Disease" (all > terms my doctors have used over the years)and have primarily only > been treated with Proventil inhalers over the years until this year. > On January 2 I woke with a bad headache after being exposed to my > stepson and his family a few days earlier who was sneezing coughing > and blowing his nose a lot when my husband and I visited. I also > started having the scratchy throat. By Friday I had lost my voice, > was having trouble breathing and was coughing violently

non-> productively. I went to the doctor's office that day. Peak Flow > normal for me is supposed to be about 475 and I was only able to do > about 225. I was given Z-pack (antibiotic), Prednisone 40 mg per day > and would take that for 3 days then taper down to 30 mg etc. By > Tuesday I still was no better. Went back to the doctor's office, my > peak flow was under 200 this time, x-ray's, ecg, and lab work was > done. Intitial impression was vascular edema in the bronchial area. > Prednisone was increased to 40 mg. Nebulizer with abuterol was 4 > times a day and Advair 1 inhalation daily was added. Still no return > of voice it keeps going away. I am finally on 30mg a day of the > prednsone, still on nebulizer 4 times a day. I was wondering if > anyone else has had an attack similar and how long it took them to > get weaned off the prednisone and how long to get

their voice back. > I do see my family doctor on Friday. He has said also that once I > get over this he will be sending me to a pulmonologist.> > Any thoughts comments feedback will be appreciated. Thanks.> > Cecilia>

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Ah...welll....I've looked at the other respiratory illness forums and a lot of them aren't this good and supportive of each other so I suggest you stay here too...Forums for other lung diseases, if its' a rare disease or something sometimes those people have so little communication with each other. A lot of the principles in this forum won't really cure you but will help to allieve suffering and are applicable in many cases to other lung illnesses. Long wrote: Hi

Cecilia, I would not drop from the group........................ I have seen 3 pulmonary specialists and several regular docs and they all have different opinions on why I wheeze and cough. One thing for sure................ They'll give you plenty of steriods and anti-biotics, schedule you lots of tests and visits, bill your insurance company for all they can. They will treat your symptoms but forget any of them giving you any hope of curing your condition; Not enough money made in doing that. If fact, they'll tell you to just give up and keep coming back as your condition is irreversable. Well, if you listen to them, get ready for a life of worsening illness. Keep in touch with others and be pro-active in finding ways to get yourself better. Don't give up. ceciliamartin1943 <ceciliamartin1943> wrote: Here is a followup to my original post.I finally was seen by a pulmonologist. He says I have COPD (Chronic Obstructive Pulmonary Disease) and is leaning towords Emphysema as the cause. He does not believe I have Asthma. I go for pulmonary function tests and lab work this week and will be starting in pulmonary rehab sometime in the near future. Since I do not have asthma I will be dropping from the group. However, I want to thank everyone for their input when I had questions and for the information I have gained by reading this board.Have a great day.ThanksCecilia >> Hi everyone, > > I am new to group and have questions. I have had attacks > of

"Bronchitis", "Asthma", "Asthmatic Bronchitis", Asthamatic > Brochonchitis with bronchospasms", "Restrictive Airway Disease" (all > terms my doctors have used over the years)and have primarily only > been treated with Proventil inhalers over the years until this year. > On January 2 I woke with a bad headache after being exposed to my > stepson and his family a few days earlier who was sneezing coughing > and blowing his nose a lot when my husband and I visited. I also > started having the scratchy throat. By Friday I had lost my voice, > was having trouble breathing and was coughing violently non-> productively. I went to the doctor's office that day. Peak Flow > normal for me is supposed to be about 475 and I was only able to do > about 225. I was given Z-pack (antibiotic), Prednisone 40 mg per day > and would take that for 3 days then taper down to 30 mg etc.

By > Tuesday I still was no better. Went back to the doctor's office, my > peak flow was under 200 this time, x-ray's, ecg, and lab work was > done. Intitial impression was vascular edema in the bronchial area. > Prednisone was increased to 40 mg. Nebulizer with abuterol was 4 > times a day and Advair 1 inhalation daily was added. Still no return > of voice it keeps going away. I am finally on 30mg a day of the > prednsone, still on nebulizer 4 times a day. I was wondering if > anyone else has had an attack similar and how long it took them to > get weaned off the prednisone and how long to get their voice back. > I do see my family doctor on Friday. He has said also that once I > get over this he will be sending me to a pulmonologist.> > Any thoughts comments feedback will be appreciated. Thanks.> > Cecilia> Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi Cecilia,

I guess I should leave the group, too, then.

My allergies and other auto-immune conditions are the major problems

for me right now.

Just my opinion, but, you seem very nice, and I don't think you

should have to leave.

Would the group owner consider expanding the group to allow all auto-

immune diseases?

This is one of the nicest groups I have ever been in.

I mean -

nice

friendly

helpful

positive

supportive

non-judgemental

How many groups have all those qualities?

Seems to me, the dynamic we have here is what ALL yahoo groups should

be striving for.

Alana

>

> Here is a followup to my original post.

>

> I finally was seen by a pulmonologist. He says I have COPD

(Chronic

> Obstructive Pulmonary Disease) and is leaning towords Emphysema as

> the cause. He does not believe I have Asthma. I go for pulmonary

> function tests and lab work this week and will be starting in

> pulmonary rehab sometime in the near future.

>

> Since I do not have asthma I will be dropping from the group.

> However, I want to thank everyone for their input when I had

> questions and for the information I have gained by reading this

board.

>

> Have a great day.

>

> Thanks

>

> Cecilia

[Guest guest]

Hi Bethie and welcome to SydBand.

It can be a bit quiet here on the weekend but either tonight or

tomorrow you are bound to hear from some of those who have been to

SIOS, I believe a few of the new bandits had their ops through there.

Danna

[Guest guest]

HI

How old is your daughter? Grace is just eight. Are you in the UK to?

Tony

[Guest guest]

HI

Grace has a diet that is very natural and as yet we have not ventured don

gluiten free

I am looking into diet though

Chelation sounds horrid! I would be scared of it to.

Tony

[Guest guest]

HI

Grace has a diet that is very natural and as yet we have not ventured don

gluiten free

I am looking into diet though

Chelation sounds horrid! I would be scared of it to.

Tony

[Guest guest]

HI Tony and other newbies

I'm Melinda, I live in Massachusetts and have a beautiful 15 year old

daughter on the spectrum. I don't post much but I try to read all.

Welcome!

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

HI Theresa

Our daughters have a similar age gap my youngest will be two in a few months

time.

We have been waiting fir ages to have Grace assessed and eventually gave up

the wait and went private, saw the same doctor but without the 18 month wait!

Are you also in the US or UK?

Tony

[Guest guest]

Hello Tony!

Welcome to the group. Hubby and I took our honeymoon in the south east of

England; London, Canterbury, Dover, the touristy things LOL. Such beautiful

countryside, we loved it there and hope to visit again some day.

You'll find that a large number of our group are in the States, but we have

regularly posting members from Australia, Canada, Japan, some in UK. I can't

remember where else, a few other places.

How old are your daughters?

Sandi (Allie's mom)

Houston, Texas, USA

In a message dated 4/28/2008 11:35:48 A.M. Central Daylight Time,

TBrown@... writes:

HI

I am Tony, married to Dan live in the south east of England and have two

daughters the eldest of which Grace has just been diagnosed with autism.

Hope to get to know others form the list

Tony

[Non-text portions of this message have been removed]

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

welcome to the group

TBrown@... wrote: HI

I am Tony, married to Dan live in the south east of England and have two

daughters the eldest of which Grace has just been diagnosed with autism.

Hope to get to know others form the list

Tony

[Guest guest]

Hello Tony!..Welcome, I am fairly new to this group too. But I will

tell you it is a great place to get informationa and to just get out

stuff that only we would understand. My duaghter was diagnosed in

Feb...it has been rough for awhile. Hopefully all out children

recover soon.

>

> HI

>

> I am Tony, married to Dan live in the south east of England and

have two

> daughters the eldest of which Grace has just been diagnosed with

autism.

> Hope to get to know others form the list

>

> Tony

>

>

>

>

>

>

>

[Guest guest]

Tony, Sorry I live in the the U.S...and my little one is only 2..I

noticed her decline right after her first birthday. She has been non-

verbal for over a year now.and just in the past 2 weeks(we started a

few suppliments and a GF/CF diet)she has started to say HI and gives me

kisses. I cried the whole day! She is even paying with other kids!

Have you tried diet or chelation?..I am afraid of chelation(lol)..it

scares me, but I would do anything to get her to say momma..when that

day comes I might pick up and head to disneyland..

>

> HI

>

> How old is your daughter? Grace is just eight. Are you in the UK to?

>

> Tony

>

>

>

>

>

>

>

[Guest guest]

Tony, Sorry I live in the the U.S...and my little one is only 2..I

noticed her decline right after her first birthday. She has been non-

verbal for over a year now.and just in the past 2 weeks(we started a

few suppliments and a GF/CF diet)she has started to say HI and gives me

kisses. I cried the whole day! She is even paying with other kids!

Have you tried diet or chelation?..I am afraid of chelation(lol)..it

scares me, but I would do anything to get her to say momma..when that

day comes I might pick up and head to disneyland..

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> HI

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> How old is your daughter? Grace is just eight. Are you in the UK to?

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> Tony

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