new to group

[Guest guest]

Peggy

I have Reiter's too. I also have pain everyday. when they pain is at the worse it is hard to focus on anything but yourself and the pain, not selfish just selfproserving.

Joy in Dallas

[Guest guest]

Hi Joy,

I don't have Reiters, not sure what that is, I have

TCS tethered cord syndrome,a nd you are right, it is

hard to concentrate onanyone buy self. Thats what

happens with me too. The pain is 24/7. I don't know

what advice I have, just hang in there and keep in

touch ok?

--- Joy Denault wrote:

> Peggy

> I have Reiter's too. I also have pain everyday.

> when they pain is at the worse it is hard to focus

> on anything but yourself and the pain, not selfish

> just selfproserving.

> Joy in Dallas

>

_______________________________________________________

[Guest guest]

Hi Lois, Do you mind me asking what is Myofascial pain syndrome? I have chronic Sensory polyneuropathy which is a Peripheral Nerve disease which is progressive. For the pain I take 4000mg of Neurontin daily, it is a anti seizure drug when used with Dilantin, but the Neurontin works very well at masking nerve pain..( I don't have seizures) At bedtime I also take 40 mg of Elavil which also works very well for the burning pain of the Sensory nerves, plus it helps me to sleep... I also have Osteoarthritis in my neck, with bulging discs also Osteoarthritis of the lower back..I also takes other meds for Hypothyroid and GERD and Iron therapy for Anemia.. Well welcome to the group,

new to group

My name is Lois or Fibernut on the Internet due to my hobbies. I joined the group as I was recently diagnosed with myofascial pain syndrome,osteo- arthritis of the neck and right knee. In 99 and 2000 I had herniated discs and surgery on my neck. The second surgery I just did not bounce back as easily as the first . There was a 5 month delay due to workers comp needing a second opinion. Was put thru work hardening which only increased my pain. Then after 5 weeks they said I was never in the work hardening program to begin with and sent me back to work 12 hr shifts without any adjustment's. I'm not doing what I have been trained to do as an RN but to any job they had that did not require lifting. So I am still on workers compensation supplementing my job.Have started with a Rheumatologist who seems very good. Has been willing to try different things to increase my comfort level. Was put on Elavil, paxil and celebrex. Taken off of Vioxx due to my blood pressure being elevated. Well that didn't work and am back on the Vioxx with a blood pressure pill. Still have a lot of pain with weather changes and bumpy roads. Probably will not post much as keyboarding ability comes and goes.Thanks for being there! Lois aka Fibernut on # Knitspin Dalnet-----------------------------------------------------Click here for Free Video!!http://www.gohip.com/free_video/Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroupsManage your subscription with several special email addresses:chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest

[Guest guest]

At 09:59 PM 4/7/01 -0400, you wrote:

Was put thru work hardening

which only increased my pain.

Lois aka Fibernut on # Knitspin Dalnet

Hi Lois,

Welcome to the group. At one time I was also put into a work hardening

program, thanks to an HMO. I lasted less than a day. My rheumatologist

wanted me in a rehabilitation program, but in its infinite wisdom, the

HMO thought it knew better.

: I also have Sensorimotor Polyneuropathy. It's not one you hear off

often.

Hower

Central Pennsylvania

--- Si hoc legere scis, nimis eruditionis habes ---

[Guest guest]

Welcome and I hope the pain is manageable.

Kathy

[Guest guest]

do you belong to any of the PN support groups? )

Re: new to group

At 09:59 PM 4/7/01 -0400, you wrote:

Was put thru work hardening which only increased my pain. Lois aka Fibernut on # Knitspin DalnetHi Lois,Welcome to the group. At one time I was also put into a work hardening program, thanks to an HMO. I lasted less than a day. My rheumatologist wanted me in a rehabilitation program, but in its infinite wisdom, the HMO thought it knew better.: I also have Sensorimotor Polyneuropathy. It's not one you hear off often.

HowerCentral Pennsylvania

--- Si hoc legere scis, nimis eruditionis habes ---Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroupsManage your subscription with several special email addresses:chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest

[Guest guest]

No, I wasn't aware of them. Do you have info?

Thanks

At 10:35 AM 4/8/01 -0700, you wrote:

do

you belong to any of the PN support groups? )

----- Original Message -----

Hower

Central Pennsylvania

--- Si hoc legere scis, nimis eruditionis habes ---

[Guest guest]

No, I wasn't aware of them. Do you have info?

Thanks

At 10:35 AM 4/8/01 -0700, you wrote:

do

you belong to any of the PN support groups? )

----- Original Message -----

Hower

Central Pennsylvania

--- Si hoc legere scis, nimis eruditionis habes ---

[Guest guest]

if you go to Yahoogroups.com and click on health you then click on disease and letter P you will find about three or four groups on PN.. I am in just one group and it is PNSupportYahoogroups I have been with the group almost 3 years.. It is a friendly group we chat about the PN but it is mostly a support group and we don't dwell on just PN pain, we talk about a lot of other things too. Right now it is kind of quiet and we have quite a few new people that we have not got to know yet.. We have only two men in our group and both of them are called ! LOL I think you have to join Yahoogroups and get a user name and password, then you can join as many groups as you like..I am sure that the two Jacks would be happy if you joined as they are outnumbered by we ladies. ) )

From: Hower

To: chronic_pain

Sent: Monday, April 09, 2001 2:27 AM

Subject: Re: new to group

No, I wasn't aware of them. Do you have info?ThanksAt 10:35 AM 4/8/01 -0700, you wrote:

do you belong to any of the PN support groups? )

----- Original Message -----

HowerCentral Pennsylvania

--- Si hoc legere scis, nimis eruditionis habes ---Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroupsManage your subscription with several special email addresses:chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest

[Guest guest]

if you go to Yahoogroups.com and click on health you then click on disease and letter P you will find about three or four groups on PN.. I am in just one group and it is PNSupportYahoogroups I have been with the group almost 3 years.. It is a friendly group we chat about the PN but it is mostly a support group and we don't dwell on just PN pain, we talk about a lot of other things too. Right now it is kind of quiet and we have quite a few new people that we have not got to know yet.. We have only two men in our group and both of them are called ! LOL I think you have to join Yahoogroups and get a user name and password, then you can join as many groups as you like..I am sure that the two Jacks would be happy if you joined as they are outnumbered by we ladies. ) )

From: Hower

To: chronic_pain

Sent: Monday, April 09, 2001 2:27 AM

Subject: Re: new to group

No, I wasn't aware of them. Do you have info?ThanksAt 10:35 AM 4/8/01 -0700, you wrote:

do you belong to any of the PN support groups? )

----- Original Message -----

HowerCentral Pennsylvania

--- Si hoc legere scis, nimis eruditionis habes ---Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroupsManage your subscription with several special email addresses:chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest

[Guest guest]

This message came to me instead of going to the list.

Ray

new to group

> Hi every one,

> I have been reading your messages for a while, and you all seem like a

> very caring and helpful group....I have atypical facial pain or atypical

> trigeminal neuralgia. Any one else? It started 6 years ago (after an

> injury was injured several times over by a " professional " ). It has

> changed my life radically as you all know chronic pain will do. I am

> particularly having trouble with the inability to make a living. I feel

> unproductive, depressed, and extremely frustrated.(I've been in

> treatment for the depression since the beginning) I'm not ready to give

> up yet, but I am at my wits end! I really have difficulty with the loss

> of independence this has brought on. Thank goodness for my helpful

> family, I imagine I'd be in the streets if it weren't for them. It just

> seems to me there must be something I can do! Pain always gets the best

> of me, I can't even read for more than 15 minutes with out getting a

> migraine. I have found out I'm a pretty good artist however, and I can

> even paint when I'm in bed in pain! ( not as much eye strain), but its

> hard to make a living painting things....... Before I had a booming

> business as a beauty salon owner. After all attempts failed to hold on

> to my buss.I lost it, as well as my car, my home, social life,

> etc.Although I am not college educated, I just feel like if I were more

> productive, I would not feel quite so stuck.Like my future would be more

> hopeful...... This group seems to know a lot about the repercussions of

> having an invisible disability, the sometimes inexcusable behavior of

> doctors, and the never ending medications. I hope you can help me and I

> can help you as well. I've learned a lot about life, empathy, and what's

> really important, since this all started. I realize I may sound somewhat

> negative, but my true objective is to rise above my limitations and make

> he best of what I do have.I'd like to know what others are doing and

> would like some suggestions for anyone who has ideas on creating a new

> career for a chronic pain patient.

> Thanks,

> Lynnzee

>

>

>

>

>

>

[Guest guest]

ooops

sorry, I'm not sure how to use this forum. I've been getting ALL of the

messages in my email and can't seem to redirect them to " the list " . Know

there must be a way. can anyone tell me where I should send my messages

to the group? Must have missed something when I joined.

Thanks,

Lynnzee

[Guest guest]

In a message dated 5/19/01 4:54:55 PM Eastern Daylight Time,

kturbin@... writes:

> my true objective is to rise above my limitations and make

> >he best of what I do have.I'd like to know what others are doing and

> >would like some suggestions for anyone who has ideas on creating a new

> >career for a chronic pain patient.>>

Hello Lynnzee and welcome to the group. You are in the right place where

empathy and understanding is concerned. I was in a very deep funk last night

and this morning but I seem to be lifting somewhat. I dont' kid myself that

it won't come back but at least I have a plan of action.

I have a very limited income from Social Security Disability and SSI. I also

draw a small amount each month from my retirement annuity with Blue

Cross/Blue Shield. I have a whopping total cash income of $627.00 a month,

am on medicare and medicaid and food stamps. I have a grant to pay my

utility bills each month. So at least after paying $500.00 each month for my

rent, I can pay my phone and cable TV bills. No, I don't have enough money

left to live out the whole month, obviously. But I have wonderful friends

who help me out pretty often.

I like to be self sufficient and so I am struggling to make use of my other

talents. My job with Blue Cross was as a customer service representative and

I worked fixing problem hospital claims and getting them off suspense

reports. I can't sit in a chair for more than an hour, can't walk farther

than half a block without needing to rest, can't lift anything heavier than

15 pounds or carry it more than 10 feet without being in agony. So what can

I do to earn extra money with such disabilities?

I began to learn how to sew when I was about 10 years old. Both my mother

and my grandmother taught me. It had been a required skill in our family for

many many generations. My grandmother came from an old southern aristocratic

family and ladies didn't do menial housework. So they learned how to sew all

manner of things. I'm really good at it and love to do costuming and copying

original designs by famous clothes designers. So I began to advertise my

services and I can some pretty good money doing weddings, proms, Halloween

costumes, and all manner of SCA " garb. " I can work at my own speed and take

frequent rest breaks. Right now, I'm not making all that much money because

I'm new to the area. But I think that once I become fairly well known thru

advertising and word of mouth, I should be ok.

BTW, how do you know you can't make money selling your paintings? Try

painting esoteric, gothic, spooky, and sci-fi type paintings and get a table

at a sci-fi convention. You just might be surprised. Paint small sized

paintings and don't ask too much for them to begin with. As your reputation

builds, you'll make more money. You must have some kind of talent you can

use so USE it!!

Good luck!

Joyce

[Guest guest]

>X-eGroups-Return: lynnzee@...

>From: lynnzee@...

>X-WebTV-Signature: 1

>ETAtAhRA29HPce3dd+guNr4t49WPwl2CngIVAJsD60/si29fI4aHv8V+V8HrCKYP

>Date: Sat, 19 May 2001 11:06:41 -0400 (EDT)

>To: chronic_pain-owner

>Subject: new to group

>X-eGroups-Moderators: chronic_pain

>

>Hi every one,

>I have been reading your messages for a while, and you all seem like a

>very caring and helpful group....I have atypical facial pain or atypical

>trigeminal neuralgia. Any one else? It started 6 years ago (after an

>injury was injured several times over by a " professional " ). It has

>changed my life radically as you all know chronic pain will do. I am

>particularly having trouble with the inability to make a living. I feel

>unproductive, depressed, and extremely frustrated.(I've been in

>treatment for the depression since the beginning) I'm not ready to give

>up yet, but I am at my wits end! I really have difficulty with the loss

>of independence this has brought on. Thank goodness for my helpful

>family, I imagine I'd be in the streets if it weren't for them. It just

>seems to me there must be something I can do! Pain always gets the best

>of me, I can't even read for more than 15 minutes with out getting a

>migraine. I have found out I'm a pretty good artist however, and I can

>even paint when I'm in bed in pain! ( not as much eye strain), but its

>hard to make a living painting things....... Before I had a booming

>business as a beauty salon owner. After all attempts failed to hold on

>to my buss.I lost it, as well as my car, my home, social life,

>etc.Although I am not college educated, I just feel like if I were more

>productive, I would not feel quite so stuck.Like my future would be more

>hopeful...... This group seems to know a lot about the repercussions of

>having an invisible disability, the sometimes inexcusable behavior of

>doctors, and the never ending medications. I hope you can help me and I

>can help you as well. I've learned a lot about life, empathy, and what's

>really important, since this all started. I realize I may sound somewhat

>negative, but my true objective is to rise above my limitations and make

>he best of what I do have.I'd like to know what others are doing and

>would like some suggestions for anyone who has ideas on creating a new

>career for a chronic pain patient.

>Thanks,

>Lynnzee

[Guest guest]

Joyce:

how do you feel about either making or modifying a custom corset? I have several

areas in my back that cause me problems and the doctors are either not willing

to give me a back brace or are only willing to give me a turtle shell type

brace. I have a very specific design that I want to have made. I'm a bit like

you with the money issue but I am still working so I can pay you.

Please contact me off list and we can discuss it. There is no time constraints

so you'd be able to work on it at your convenience.

Jami

jamilynnjb@...

>>I can some pretty good money doing weddings, proms, Halloween

> costumes, and all manner of SCA " garb. "  I can work at my own speed and take

frequent rest breaks

__________________________________________________________________

Get your own FREE, personal Netscape Webmail account today at

http://webmail.netscape.com/

[Guest guest]

>Delivered-To: kturbin@...

>X-eGroups-Return: lynnzee@...

>From: lynnzee@...

>X-WebTV-Signature: 1

>ETAtAhRA29HPce3dd+guNr4t49WPwl2CngIVAJsD60/si29fI4aHv8V+V8HrCKYP

>Date: Sat, 19 May 2001 11:06:41 -0400 (EDT)

>To: chronic_pain-owner

>Subject: new to group

>X-eGroups-Moderators: chronic_pain

>

>Hi every one,

>I have been reading your messages for a while, and you all seem like a

>very caring and helpful group....I have atypical facial pain or atypical

>trigeminal neuralgia. Any one else? It started 6 years ago (after an

>injury was injured several times over by a " professional " ). It has

>changed my life radically as you all know chronic pain will do. I am

>particularly having trouble with the inability to make a living. I feel

>unproductive, depressed, and extremely frustrated.(I've been in

>treatment for the depression since the beginning) I'm not ready to give

>up yet, but I am at my wits end! I really have difficulty with the loss

>of independence this has brought on. Thank goodness for my helpful

>family, I imagine I'd be in the streets if it weren't for them. It just

>seems to me there must be something I can do! Pain always gets the best

>of me, I can't even read for more than 15 minutes with out getting a

>migraine. I have found out I'm a pretty good artist however, and I can

>even paint when I'm in bed in pain! ( not as much eye strain), but its

>hard to make a living painting things....... Before I had a booming

>business as a beauty salon owner. After all attempts failed to hold on

>to my buss.I lost it, as well as my car, my home, social life,

>etc.Although I am not college educated, I just feel like if I were more

>productive, I would not feel quite so stuck.Like my future would be more

>hopeful...... This group seems to know a lot about the repercussions of

>having an invisible disability, the sometimes inexcusable behavior of

>doctors, and the never ending medications. I hope you can help me and I

>can help you as well. I've learned a lot about life, empathy, and what's

>really important, since this all started. I realize I may sound somewhat

>negative, but my true objective is to rise above my limitations and make

>he best of what I do have.I'd like to know what others are doing and

>would like some suggestions for anyone who has ideas on creating a new

>career for a chronic pain patient.

>Thanks,

>Lynnzee

[Guest guest]

Hi Donna, I have Sensory Polyneuropathy in my feet, legs, hands, arms, and

face..which is a painful Peripheral Neuropathy.. Before I was put on medication

I was a painful wreck...I take Neurontin which is a anti-seizure pain medication

but works great for nerve pain..I also take Elavil at bedtime and it too works

great for the burning sensation of nerve pain... The Elavil also acts rather

like a sedative and helps me to sleep.. I also take other meds, for high blood

pressure, Hypothyroid, GERD, ( acid reflux disease) and depression..and Anemia.

I don't have Diabetes and alot of the members from the support group I am in,

some have Diabetes and some don't...Sorry to hear about the drop foot..do you

use a cane to get around?

)

New to Group

Hello Everyone,

I am new to the list--only a couple of days. My name

is Donna. I suffer from arthritis and well as

diabetes.

In July of last year I suffered a diabetic neuropathy

in my right lateral nerve. Due to the neuropathy, I

developed a condition called drop foot. I wear a

brace to keep me from falling because my ankle is

limited in its movement. If I do not take my

medication it feels as though I have put my foot in a

light recipatial. It is very painful. It now starting

to show in the left leg as well. I have actually

begged the doctor's to remove the leg because it so

painful. Now I just take

one day at a time. Each morning I hope I can get out

of bed and be able to put pressure on the foot.

It will be nice to talk others that have chronic pain

and get support for once. All my co-workers think

that I should go on disablity. Well thanks for

letting me vent.

Donna

up any

__________________________________________________

[Guest guest]

Hi Donna

I have Reiters' Syndrome and I think that's all. That's enough! My fiance,

however, has what you do. He had hip surgery about 2 years ago and they messed

with the nerve. He developed drop foot from it. He too wears orthodics. He

can be in a lot of pain if he doesn't take his meds. If you have any questions

you'd like me to ask him--feel free. I'll relay them.

Peggy

Donna Wilkins wrote: Hello Everyone,

I am new to the list--only a couple of days. My name

is Donna. I suffer from arthritis and well as

diabetes.

In July of last year I suffered a diabetic neuropathy

in my right lateral nerve. Due to the neuropathy, I

developed a condition called drop foot. I wear a

brace to keep me from falling because my ankle is

limited in its movement. If I do not take my

medication it feels as though I have put my foot in a

light recipatial. It is very painful. It now starting

to show in the left leg as well. I have actually

begged the doctor's to remove the leg because it so

painful. Now I just take

one day at a time. Each morning I hope I can get out

of bed and be able to put pressure on the foot.

It will be nice to talk others that have chronic pain

and get support for once. All my co-workers think

that I should go on disablity. Well thanks for

letting me vent.

Donna

up any

__________________________________________________

[Guest guest]

Hello April, and welcome to the group. I hope you like it here. We have

several members with disk injury and disk-related pain.

--

Robbie in FL, co-moderator chronic_pain.

AS/ReA 18 + years, and still going...

feralelf@...

[Guest guest]

Most, if not all of your other ailments can be related to your hypothyroidism.

If cancer is found during the frozen section, they will do a total thyroidectomy. Other than that, tumors are generally not removed from the thyroid gland. If they are all in one lobe, that lobe will be removed. The smallest amount that would normally be done would be about half of one lobe.

In any case, you want to make sure you have a surgeon who has done lots (200 or more) of thyroidectomies and has a complication rate of 1% or less.

$ynthroid is what most docs prescribe. But if you do not do well on it there are other choices. Cauley wrote:

Hi! I am in the Houston area. I wanted to introduce myself and hopefully get some good advice from all of you. I have endo, IBS, IC, Raynaud's Syndrome, Reiter's Syndrome (form of arthritis), RLS, infertility and suffer from panic attacks and severe anxiety. I consider endo to be my primary disease and the others all secondary to or caused by the endo. I am getting excellent treatment for all the above.During 2005, I put on 35 lbs., started running fevers a lot, severe fatigue. My GI dr said my TSH was too high, 3.69 and sent me to an endocrinologist. She put me on 0.05mg of synthroid, which helped with my energy lever a little so she kept me on it.Two months ago, I felt a lump in my neck. My endo dr., lin sent me to Dr. Don Quast who felt several

other small tumors in addition to the large one. I also have pain in neck, hoarse voice, hard to talk, sing, yell at son etc. I am having to repeat the thyroid uptake test as hospital messed something up. They won't say what but are repeating test for free, if that tells you anything.His plan is to remove tumors and probably thyroid and lymph nodes (which are swollen). I am at high risk for breast, ovarian cancer already due to family history and my history.Is this normal course of treatment? To remove thyroid during first surgery? Quast said that if there was only one tumor, it was benign and not hurting me so much he would probably just leave it. But since I have several and am in pain he wants to do all the above.I also understand I will have to take HRT, which I think is synthroid afterwards. Is this correct? Any advice on other things I need to consider

would be appreciated.Thanks,

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

Welcome to the group, !

Sounds like you've really been through it. I'm sorry I can't advise

you on thyroid removal but it does sound like some of your other

problems can be connected to hypothyroidism. You mentioned having

endo. This can be a sign that you have way too much estrogen in

comparison to progesterone. This was a problem I was having

(fibroid tumors, etc.) My doctor prescribed a progesterone cream

that seems to be helping a lot. If you do have high levels of

estrogen, that's not good with a history of breast/ovarian cancer in

your family. If you're interested, I can recommend a great book on

the subject.

>

>

> I have endo, IBS, IC, Raynaud's Syndrome, Reiter's Syndrome (form

of

> arthritis), RLS, infertility and suffer from panic attacks and

> severe anxiety. I consider endo to be my primary disease and the

> others all secondary to or caused by the endo. I am getting

> excellent treatment for all the above.

>

> During 2005, I put on 35 lbs., started running fevers a lot,

severe

> fatigue. My GI dr said my TSH was too high, 3.69 and sent me to

an

> endocrinologist. She put me on 0.05mg of synthroid, which helped

> with my energy lever a little so she kept me on it.

>

I am at high risk for breast, ovarian cancer

> already due to family history and my history.

>

[Guest guest]

I think there is a "Top doc" file in this groups "files". I believe it is created from dr recomedations from this boards members. You can also check out the Amercan Thyroid Associations list of "top doctors".

Hope this helps,

Hyperkim New to group

Hi my name is Dana. I live in ville, TX and I'm new to this group. Truth is, I'm new to online groups of any kind and I'm a little confused with how it works. So I ask everyone to be gentle with me while I learn the ropes. I've suffered with hypothyroid symptoms my entire life but wasn't diagnosed until about 2 years ago when I was 43. By that time, my symptoms had gotten so bad that I became disabled and unable to function. I was sleeping on average 20 hours a day and sometimes I would sleep 3 days in a row. The doctors I saw told me that I was sleeping because I was depressed and they prescribed every antidepression/antianxiety medication that was available. When that didn't work, they started giving me combinations of medications and progressively larger dosages. These medications never worked so without my doctor's advice, I took myself off everything and started looking for answers for myself. I spent a lot of time on the internet and read everything I could until I realized that I probably had a thyroid problem.

Once I was convinced of my thyroid problem, I needed to find a doctor who would treat my condition. It was hard finding the right doctor but I eventually did and she saved my life. She reframed my situation and reassured me that anyone would be depressed if they were sleeping all the time. She put me on high dosages of Armour and added Cortisone to help with my adrenals. Over the last 2 years, she has adjusted my dosages and added suppliments and a few other medications. I'm now able to stay awake for the entire day but I still have setbacks especially with stress. Unfortunately, when I called yesterday to make another appointment with my doctor, I found out that she died last week. Her death was sudden and quite unexpected. I'm not sure what I'll do without her. I need to find another good doctor who knows the thyroid. My son is also suffering with thyroid problems. I believe he has Hashimoto's but his treatment is the same.

I'm excited about finding this group and I hope to be able to share in the support and understanding as we all struggle towards wellness.

[Guest guest]

Were you a patient of Fran Rose? She would indeed be hard to replace. Log onto our site and look in "Files". We have a doctor list which we keep very well updated. Unless Dr. Elmore can be persuaded to keep you on the protocols your doc started, including the cortisone, there is no doc in the DFW area we can recommend at this time. The large doses of Armour are not a problem. But the adrenal issues are. Quite a few of us travel to Lubbock to see Dr. . If you have trouble navigating the site, email me privately and I will send you a

copy of our doctor list. Jan dgibb8 wrote: Hi my name is Dana. I live in ville, TX and I'm new to this group. Truth is, I'm new to online groups of any kind and I'm a little confused with how it works. So I ask everyone to be gentle with me while I learn the ropes. I've suffered with hypothyroid symptoms my entire life but wasn't diagnosed until about 2 years ago when I was 43. By that time, my symptoms had gotten so bad that I became disabled and unable to function. I was sleeping on average 20 hours a day and sometimes I would sleep 3 days in a row. The doctors I saw told me that I was

sleeping because I was depressed and they prescribed every antidepression/antianxiety medication that was available. When that didn't work, they started giving me combinations of medications and progressively larger dosages. These medications never worked so without my doctor's advice, I took myself off everything and started looking for answers for myself. I spent a lot of time on the internet and read everything I could until I realized that I probably had a thyroid problem.Once I was convinced of my thyroid problem, I needed to find a doctor who would treat my condition. It was hard finding the right doctor but I eventually did and she saved my life. She reframed my situation and reassured me that anyone would be depressed if they were sleeping all the time. She put me on high dosages of Armour and added Cortisone to help with my adrenals. Over the last 2 years, she has

adjusted my dosages and added suppliments and a few other medications. I'm now able to stay awake for the entire day but I still have setbacks especially with stress. Unfortunately, when I called yesterday to make another appointment with my doctor, I found out that she died last week. Her death was sudden and quite unexpected. I'm not sure what I'll do without her. I need to find another good doctor who knows the thyroid. My son is also suffering with thyroid problems. I believe he has Hashimoto's but his treatment is the same.I'm excited about finding this group and I hope to be able to share in the support and understanding as we all struggle towards wellness.

Relax. Yahoo! Mail virus scanning helps detect nasty viruses!

[Guest guest]

Yes, my doctor was Dr. Rose and she will be very hard to replace.

I've seen her office partner, Dr. Elmore once while Dr. Rose wasn't

working during a couple of months last year. The office staff

reassured me that Dr. Elmore was familiar with the same treatments

and as a bonus she was a provider on my insurance. I gave her a try

and it was a big mistake. Dr. Elmore reduced my dosages to a

fraction and it wasn't long before my old symptoms started coming

back.

I found Dr. Rose on a site called www.thyroid.about.com where they

have a list of " Top Docs " recommended for their treatment of the

thyroid. I've returned to that list for another search. I noticed

that Dr. Steve from Lubbock is listed and I've highlighted

his name to check into. He's not on my insurance so it would cost

me more to see him and the drive may wipe me out.

I found two other names on that list that look interesting. Dr.

Devries out of Dallas and Dr. Bessie Owens from Mesquite.

Does anyone have any information about these doctors?

I was told by my compounding pharmasist that his wife has Hashimotos

and sees a Physician Assistant by the name of Mike Sullivan who

works for Dr. Freeman out of Tiena Health in Irving. Apparently,

Mike sullivan worked with Dr. Rose at one time. Does anyone know

him?

Thanks,

Dana

-- In Texas_Thyroid_Groups , Jan

wrote:

>

> Were you a patient of Fran Rose? She would indeed be hard to

replace.

>

> Log onto our site and look in " Files " . We have a doctor list

which we keep very well updated. Unless Dr. Elmore can be persuaded

to keep you on the protocols your doc started, including the

cortisone, there is no doc in the DFW area we can recommend at this

time. The large doses of Armour are not a problem. But the adrenal

issues are.

>

> Quite a few of us travel to Lubbock to see Dr. .

>

> If you have trouble navigating the site, email me privately and

I will send you a copy of our doctor list.

>

> Jan

>

>

> dgibb8 wrote:

> Hi my name is Dana. I live in ville, TX and I'm new to

this

> group. Truth is, I'm new to online groups of any kind and I'm a

> little confused with how it works. So I ask everyone to be gentle

> with me while I learn the ropes.

>

> I've suffered with hypothyroid symptoms my entire life but wasn't

> diagnosed until about 2 years ago when I was 43. By that time, my

> symptoms had gotten so bad that I became disabled and unable to

> function. I was sleeping on average 20 hours a day and sometimes

I

> would sleep 3 days in a row. The doctors I saw told me that I was

> sleeping because I was depressed and they prescribed every

> antidepression/antianxiety medication that was available. When

that

> didn't work, they started giving me combinations of medications

and

> progressively larger dosages. These medications never worked so

> without my doctor's advice, I took myself off everything and

started

> looking for answers for myself. I spent a lot of time on the

> internet and read everything I could until I realized that I

> probably had a thyroid problem.

>

> Once I was convinced of my thyroid problem, I needed to find a

> doctor who would treat my condition. It was hard finding the

right

> doctor but I eventually did and she saved my life. She reframed

my

> situation and reassured me that anyone would be depressed if they

> were sleeping all the time. She put me on high dosages of Armour

> and added Cortisone to help with my adrenals. Over the last 2

> years, she has adjusted my dosages and added suppliments and a few

> other medications. I'm now able to stay awake for the entire day

> but I still have setbacks especially with stress. Unfortunately,

> when I called yesterday to make another appointment with my

doctor,

> I found out that she died last week. Her death was sudden and

quite

> unexpected. I'm not sure what I'll do without her. I need to

find

> another good doctor who knows the thyroid.

>

> My son is also suffering with thyroid problems. I believe he has

> Hashimoto's but his treatment is the same.

>

> I'm excited about finding this group and I hope to be able to

share

> in the support and understanding as we all struggle towards

wellness.

>

>

>

>

>

>

>

>

[Guest guest]

I don't know any of the drs listed. I am currently seeing Dr Sheila Horsley. I have heard she has hashi's herself. I know she is very open and willing to discuss alternatives as well as the main stream treatments. I do not know which replacement drugs she uses as I am hyperT. I have heard references to her prescribing levothyroxine and armour. She is located in Ft Worth. And I believe I saw her name on a few "top thryoid doc" lists. Let me know if you need more info on her.

Kim

aka Hyperkim Re: New to group

Yes, my doctor was Dr. Rose and she will be very hard to replace. I've seen her office partner, Dr. Elmore once while Dr. Rose wasn't working during a couple of months last year. The office staff reassured me that Dr. Elmore was familiar with the same treatments and as a bonus she was a provider on my insurance. I gave her a try and it was a big mistake. Dr. Elmore reduced my dosages to a fraction and it wasn't long before my old symptoms started coming back. I found Dr. Rose on a site called www.thyroid.about.com where they have a list of "Top Docs" recommended for their treatment of the thyroid. I've returned to that list for another search. I noticed that Dr. Steve from Lubbock is listed and I've highlighted his name to check into. He's not on my insurance so it would cost me more to see him and the drive may wipe me out.

I found two other names on that list that look interesting. Dr. Devries out of Dallas and Dr. Bessie Owens from Mesquite. Does anyone have any information about these doctors?

I was told by my compounding pharmasist that his wife has Hashimotos and sees a Physician Assistant by the name of Mike Sullivan who works for Dr. Freeman out of Tiena Health in Irving. Apparently, Mike sullivan worked with Dr. Rose at one time. Does anyone know him?

Thanks,

Dana

-- In Texas_Thyroid_Groups , Jan wrote:

>

> Were you a patient of Fran Rose? She would indeed be hard to replace. > > Log onto our site and look in "Files". We have a doctor list which we keep very well updated. Unless Dr. Elmore can be persuaded to keep you on the protocols your doc started, including the cortisone, there is no doc in the DFW area we can recommend at this time. The large doses of Armour are not a problem. But the adrenal issues are.

> > Quite a few of us travel to Lubbock to see Dr. .

> > If you have trouble navigating the site, email me privately and I will send you a copy of our doctor list.

> > Jan > > > dgibb8 wrote:

> Hi my name is Dana. I live in ville, TX and I'm new to this > group. Truth is, I'm new to online groups of any kind and I'm a > little confused with how it works. So I ask everyone to be gentle > with me while I learn the ropes. > > I've suffered with hypothyroid symptoms my entire life but wasn't > diagnosed until about 2 years ago when I was 43. By that time, my > symptoms had gotten so bad that I became disabled and unable to > function. I was sleeping on average 20 hours a day and sometimes I > would sleep 3 days in a row. The doctors I saw told me that I was > sleeping because I was depressed and they prescribed every > antidepression/antianxiety medication that was available. When that > didn't work, they started giving me combinations of medications and > progressively larger dosages. These medications never worked so > without my doctor's advice, I took myself off everything and started > looking for answers for myself. I spent a lot of time on the > internet and read everything I could until I realized that I > probably had a thyroid problem.

> > Once I was convinced of my thyroid problem, I needed to find a > doctor who would treat my condition. It was hard finding the right > doctor but I eventually did and she saved my life. She reframed my > situation and reassured me that anyone would be depressed if they > were sleeping all the time. She put me on high dosages of Armour > and added Cortisone to help with my adrenals. Over the last 2 > years, she has adjusted my dosages and added suppliments and a few > other medications. I'm now able to stay awake for the entire day > but I still have setbacks especially with stress. Unfortunately, > when I called yesterday to make another appointment with my doctor, > I found out that she died last week. Her death was sudden and quite > unexpected. I'm not sure what I'll do without her. I need to find > another good doctor who knows the thyroid. > > My son is also suffering with thyroid problems. I believe he has > Hashimoto's but his treatment is the same.

> > I'm excited about finding this group and I hope to be able to share > in the support and understanding as we all struggle towards wellness.

> > > > > > > >