Re: What they say...

[Guest guest]

Your child won't be able to go school without vaccines! When talking about homeopathy....Oh, I don't believe in witchcraft! You need to control your child... Your child doesn't look like they have autism. The GFCFdiet and the doctor's who believe, are quacks (from our OLD-and now fired, pediatrician!) Well-they took the mercury out of the vaccines (never mind that IL has until 2010 to do so, and they are replacing them with aluminum.) Valtrex for a three year old-that can't be safe! Like I would do anything to harm my child! Drives me nuts. Thanks for the opp to vent, Stan!Stan Kurtz wrote: I'm writing a piece called "They say" that addresses some of the most common beliefs that the popular folks assert on us.What are some of the existing beliefs that rile you up?Example: (It bothers me when people say...) Vaccines are always safe. or Autism Treatment does not have enough science behind it. or Autism is genetic. or The rates are rising because of better diagnosis.Send me examples of things that have bothered you and I will include as many good ones as I can. Let your voice be heard.please email me at: autismbook1gmailThanks.- Stan

[Guest guest]

When at a recent autism spectrum symposium here in Ontario, the most

respected Autism specialists was asked about his thoughts on diet

interventions and autism. His reply was that diets were and inconvenience

and not practical! (Huh? Having a child with autism is most inconvienient!)

He then suggested that the children with autism would be highly unlikely to

follow the diet as adults. (He had much information about drug

intervention.....and how often is that we here adults that are drug

dependant for neurological disorders are not taking their meds.)

So my experiences with they say that...... are the following...

They say that...

diets are inconvenient

don't worry..

lots of kids do that...(obsess over toys, spinning things, etc)

they will outgrow it

oh my brother didn't talk till he was four and he is fine now...

there is more toxins in the air they breath than in vaccines

they took thermisol out of Canadian vaccines long ago and they still have

children with autism...(ya not all of the vaccines are thermisol free and

what do they use instead?)

its a risk you have to take

your children must have a genetic predisposition

(This one came from our ped with two young sons with autism)....There is no

science behind diets and autistic behaviours (actually there are now

published studies at University of Western Ontario)

Autism is NOT reversible.......(I type this as my four year old recovered

son just asked ran and told me....Daddy, and me are going outside in

the snow. Will you miss me, while I am gone? Eight months ago before diet

intervention he could only echo a word or two.....)

I have a lot more but there's a few for you.

Thanks Stan for being a big loud voice for our kids all over the world.

Kind regards,

from Ontario, Canada

What they say...

> I'm writing a piece called " They say " that addresses some of the most

> common beliefs that

> the popular folks assert on us.

>

> What are some of the existing beliefs that rile you up?

>

> Example: (It bothers me when people say...) Vaccines are always safe. or

> Autism Treatment

> does not have enough science behind it. or Autism is genetic. or The

> rates are rising

> because of better diagnosis.

>

> Send me examples of things that have bothered you and I will include as

> many good ones as

> I can. Let your voice be heard.

>

> please email me at: autismbook1@...

>

> Thanks.

>

> - Stan

>

>

>

>

>

>

>

>

[Guest guest]

"my son does that and he's typical"

If my best friend says that one more time I'll scream

Start the year off right. Easy ways to stay in shape in the new year.

[Guest guest]

I keep reading boards and people saying things like " these kids will

be in worse shape after diet and biomeds, just wait a few years, the

autism will come back "

Our pediatrician asked us what our rational was for doing the

specific carb diet. She has never heard of special diets for asd. She

said it wouldn't do anything because autism is neurological. Uggh.

A woman on an autism board said her sister died from catching chicken

pox from an unvaccinated child. She also said " I'd rather have my

dead sister back with autism. "

>

> I'm writing a piece called " They say " that addresses some of the

most common beliefs that

> the popular folks assert on us.

>

> What are some of the existing beliefs that rile you up?

>

> Example: (It bothers me when people say...) Vaccines are always

safe. or Autism Treatment

> does not have enough science behind it. or Autism is genetic. or

The rates are rising

> because of better diagnosis.

>

> Send me examples of things that have bothered you and I will

include as many good ones as

> I can. Let your voice be heard.

>

> please email me at: autismbook1@...

>

> Thanks.

>

> - Stan

>

[Guest guest]

Wow, .

" Daddy, and me are going outside in the snow. Will you miss me,

while I am gone? "

Hearing that has to be an incredible feeling!

(...Just reading about it brought a tear to my eye.)

>

> When at a recent autism spectrum symposium here in Ontario, the most

> respected Autism specialists was asked about his thoughts on diet

> interventions and autism. His reply was that diets were and

inconvenience

> and not practical! (Huh? Having a child with autism is most

inconvienient!)

[Guest guest]

" It's just a phase, there's nothing wrong with him. " ...our then

pediatrician on my toddler son's overnight need for head pressure,

toe walking, new sensitivity (and consequent anxiety) to seams in

socks, tags etc.

" Have you tried whipping him? " ...a teaching assistant at my son's

elementary school upon watching him have a panic attack upon

entering the school. It's truly embarrassing to be living in a

community where someone would actually utter those words to a parent

whose child was slipping away, but it is a fact.

Thank you, Stan, for all you do. Those are just two of many gems

that have been said to me. While I love this forum because so often

the focus is on what works instead of dwelling on the hardships,

it's also important to raise public awareness so that things are

better for other children and their families.

Gayle

Mom to Gatlin, 14 PANDAS/PITAND

>

> When at a recent autism spectrum symposium here in Ontario, the

most

> respected Autism specialists was asked about his thoughts on diet

> interventions and autism. His reply was that diets were and

inconvenience

> and not practical! (Huh? Having a child with autism is most

inconvienient!)

> He then suggested that the children with autism would be highly

unlikely to

> follow the diet as adults. (He had much information about drug

> intervention.....and how often is that we here adults that are

drug

> dependant for neurological disorders are not taking their meds.)

>

> So my experiences with they say that...... are the following...

>

> They say that...

>

> diets are inconvenient

>

> don't worry..

>

> lots of kids do that...(obsess over toys, spinning things, etc)

>

> they will outgrow it

>

> oh my brother didn't talk till he was four and he is fine now...

>

> there is more toxins in the air they breath than in vaccines

>

> they took thermisol out of Canadian vaccines long ago and they

still have

> children with autism...(ya not all of the vaccines are thermisol

free and

> what do they use instead?)

>

> its a risk you have to take

>

> your children must have a genetic predisposition

>

> (This one came from our ped with two young sons with

autism)....There is no

> science behind diets and autistic behaviours (actually there are

now

> published studies at University of Western Ontario)

>

> Autism is NOT reversible.......(I type this as my four year old

recovered

> son just asked ran and told me....Daddy, and me are going

outside in

> the snow. Will you miss me, while I am gone? Eight months ago

before diet

> intervention he could only echo a word or two.....)

>

> I have a lot more but there's a few for you.

> Thanks Stan for being a big loud voice for our kids all over the

world.

>

> Kind regards,

> from Ontario, Canada

>

>

> What they say...

>

>

> > I'm writing a piece called " They say " that addresses some of the

most

> > common beliefs that

> > the popular folks assert on us.

> >

> > What are some of the existing beliefs that rile you up?

> >

> > Example: (It bothers me when people say...) Vaccines are always

safe. or

> > Autism Treatment

> > does not have enough science behind it. or Autism is genetic.

or The

> > rates are rising

> > because of better diagnosis.

> >

> > Send me examples of things that have bothered you and I will

include as

> > many good ones as

> > I can. Let your voice be heard.

> >

> > please email me at: autismbook1@...

> >

> > Thanks.

> >

> > - Stan

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Stan-

My all-time favorite 'what they say' applies to just about anything

out there: food additives, cleaning products, vaccines, etc.

" Oh, it's safe. Otherwise, the FDA wouldn't allow it. "

(my daughter started becoming ill at age 12 after a round of three

Hepatitis vaccines with all the gut and allergy issues seen in autism

and, at this point, cannot tolerate artificial ingredients or chemical

additives of any kind. i have a hard time believing that this is

because any of it is 'safe'.)

But, I think when it comes to autism, the biggest thing that bothers

me is the divide I've seen within the Autism community itself- and why

I've chose to hang out with you guys .

I don't understand the following statements made by some parents of

autistic children and autistic adults that I have read on other boards

and forums in the past:

" Mercury doesn't cause Autism. "

(well, then, get the FDA and the doctor's to admit that it is

mercury-poisoning. oh, but, that would bring lawsuits...)

" Autism doesn't go away. You just have to learn to live with it. "

(so, what then? just give up? just tell the kids 'sorry, it's just the

way you are. go sit in the corner.'? not a chance!)

" Autism is beautiful. You should learn to love your child just the way

they are. "

(if the autism has created a high-functioning individual, the 'beauty

of autism' is possibly true. if the child is struggling in any way

because of their autism, the 'beauty of it' escapes the situation and

your love is exactly why you are trying to improve things for him/her.

why do they assume because you are trying to change your child's

circumstances that you don't love your child?)

Even being somewhat of an outsider, these are just a few things that

have riled me.

Learning what I have about vaccines and autism, I don't see much of

anything 'beautiful' that the vaccines have caused my daughter; it

scares me to think that 5 year old my son has been vaccinated and that

I am expected to continue vaccinating him. (I will deal with that in

due time.)

I will always feel that it wouldn't have taken much for autism to

happen to us.

>

> I'm writing a piece called " They say " that addresses some of the

most common beliefs that

> the popular folks assert on us.

>

> What are some of the existing beliefs that rile you up?

[Guest guest]

- " It's the next ADHD " (meaning it's over-diagnosed)

- " The diets haven't been proven by scientific research. " Show me the

experimental design that is able to follow autistic kids for the

number of months it might take to make a difference. and follow them

so closely that they know EVERY food consumed. WHERE the food was

processed. HOW it was prepared and IF any cross contamination was

occurring. SERIOUSLY...I'm not waiting around for THAT study because

it's NEVER going to happen! Can you tell that one fires me up?!

Kari

>

> I'm writing a piece called " They say " that addresses some of the

most common beliefs that

> the popular folks assert on us.

>

> What are some of the existing beliefs that rile you up?

>

> Example: (It bothers me when people say...) Vaccines are always

safe. or Autism Treatment

> does not have enough science behind it. or Autism is genetic. or

The rates are rising

> because of better diagnosis.

>

> Send me examples of things that have bothered you and I will include

as many good ones as

> I can. Let your voice be heard.

>

> please email me at: autismbook1@...

>

> Thanks.

>

> - Stan

>

[Guest guest]

It bothers me when you take your child in to his/her pediatrician because you have concerns about their verbal skills and social skills when they are three years old and THEY SAY "Don't worry, he's just being a boy".

When my son was evaluatted by a school district's school psychologist at three and 1/2 years of age she said, after she revealed her diagnosis: "How do you feel? It's okay to be upset. It's like you are greiving the loss of your son and all the hopes and dreams you had for him" I'd like that school psych to see my son 4 years later after 4 years of biomed and see how much he has progressed. We aren't done, but we have made so much progress with our kids. I just think if I would have listened to the "doom and gloom" advice they had to give me then, then I truly would be grieving over my son now, but that is just the opposite. I am so proud of my son and all the obstacles he has overcome at such a young age. It bothers me when school psychologists say there is no hope. They really need to get educated.

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of NickersonSent: Sunday, January 06, 2008 1:12 PMTo: mb12 valtrex Subject: Re: What they say...

When at a recent autism spectrum symposium here in Ontario, the most respected Autism specialists was asked about his thoughts on diet interventions and autism. His reply was that diets were and inconvenience and not practical! (Huh? Having a child with autism is most inconvienient!) He then suggested that the children with autism would be highly unlikely to follow the diet as adults. (He had much information about drug intervention.....and how often is that we here adults that are drug dependant for neurological disorders are not taking their meds.)So my experiences with they say that...... are the following...They say that...diets are inconvenientdon't worry..lots of kids do that...(obsess over toys, spinning things, etc)they will outgrow itoh my brother didn't talk till he was four and he is fine now...there is more toxins in the air they breath than in vaccinesthey took thermisol out of Canadian vaccines long ago and they still have children with autism...(ya not all of the vaccines are thermisol free and what do they use instead?)its a risk you have to takeyour children must have a genetic predisposition(This one came from our ped with two young sons with autism)....There is no science behind diets and autistic behaviours (actually there are now published studies at University of Western Ontario)Autism is NOT reversible.......(I type this as my four year old recovered son just asked ran and told me....Daddy, and me are going outside in the snow. Will you miss me, while I am gone? Eight months ago before diet intervention he could only echo a word or two.....)I have a lot more but there's a few for you.Thanks Stan for being a big loud voice for our kids all over the world.Kind regards, from Ontario, Canada What they say...> I'm writing a piece called "They say" that addresses some of the most > common beliefs that> the popular folks assert on us.>> What are some of the existing beliefs that rile you up?>> Example: (It bothers me when people say...) Vaccines are always safe. or > Autism Treatment> does not have enough science behind it. or Autism is genetic. or The > rates are rising> because of better diagnosis.>> Send me examples of things that have bothered you and I will include as > many good ones as> I can. Let your voice be heard.>> please email me at: autismbook1gmail>> Thanks.>> - Stan>>>>>>>>

[Guest guest]

Ooops I gave the wrong address.

Please email autismbook1@... (not gmail) my mistake.

I see a lot of responses here too, I'll pick them up but feel free to email. I

don't want to

put people through extra reading.

- Stan

>

> I'm writing a piece called " They say " that addresses some of the most common

beliefs

that

> the popular folks assert on us.

>

> What are some of the existing beliefs that rile you up?

>

> Example: (It bothers me when people say...) Vaccines are always safe. or

Autism

Treatment

> does not have enough science behind it. or Autism is genetic. or The rates

are rising

> because of better diagnosis.

>

> Send me examples of things that have bothered you and I will include as many

good

ones as

> I can. Let your voice be heard.

>

> please email me at: autismbook1@...

>

> Thanks.

>

> - Stan

>

[Guest guest]

Thank you.

Can you point me to the local diet study?

Stan

>

> When at a recent autism spectrum symposium here in Ontario, the most

> respected Autism specialists was asked about his thoughts on diet

> interventions and autism. His reply was that diets were and inconvenience

> and not practical! (Huh? Having a child with autism is most inconvienient!)

> He then suggested that the children with autism would be highly unlikely to

> follow the diet as adults. (He had much information about drug

> intervention.....and how often is that we here adults that are drug

> dependant for neurological disorders are not taking their meds.)

>

> So my experiences with they say that...... are the following...

>

> They say that...

>

> diets are inconvenient

>

> don't worry..

>

> lots of kids do that...(obsess over toys, spinning things, etc)

>

> they will outgrow it

>

> oh my brother didn't talk till he was four and he is fine now...

>

> there is more toxins in the air they breath than in vaccines

>

> they took thermisol out of Canadian vaccines long ago and they still have

> children with autism...(ya not all of the vaccines are thermisol free and

> what do they use instead?)

>

> its a risk you have to take

>

> your children must have a genetic predisposition

>

> (This one came from our ped with two young sons with autism)....There is no

> science behind diets and autistic behaviours (actually there are now

> published studies at University of Western Ontario)

>

> Autism is NOT reversible.......(I type this as my four year old recovered

> son just asked ran and told me....Daddy, and me are going outside in

> the snow. Will you miss me, while I am gone? Eight months ago before diet

> intervention he could only echo a word or two.....)

>

> I have a lot more but there's a few for you.

> Thanks Stan for being a big loud voice for our kids all over the world.

>

> Kind regards,

> from Ontario, Canada

>

>

> What they say...

>

>

> > I'm writing a piece called " They say " that addresses some of the most

> > common beliefs that

> > the popular folks assert on us.

> >

> > What are some of the existing beliefs that rile you up?

> >

> > Example: (It bothers me when people say...) Vaccines are always safe. or

> > Autism Treatment

> > does not have enough science behind it. or Autism is genetic. or The

> > rates are rising

> > because of better diagnosis.

> >

> > Send me examples of things that have bothered you and I will include as

> > many good ones as

> > I can. Let your voice be heard.

> >

> > please email me at: autismbook1@...

> >

> > Thanks.

> >

> > - Stan

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

although writing it here seems therapeutic so feel free to do whichever you

prefer.

> >

> > I'm writing a piece called " They say " that addresses some of the most common

beliefs

> that

> > the popular folks assert on us.

> >

> > What are some of the existing beliefs that rile you up?

> >

> > Example: (It bothers me when people say...) Vaccines are always safe. or

Autism

> Treatment

> > does not have enough science behind it. or Autism is genetic. or The

rates are rising

> > because of better diagnosis.

> >

> > Send me examples of things that have bothered you and I will include as many

good

> ones as

> > I can. Let your voice be heard.

> >

> > please email me at: autismbook1@

> >

> > Thanks.

> >

> > - Stan

> >

>

[Guest guest]

Hi Stan,

http://www.cbc.ca/health/story/2007/09/27/autism-study.html

Here is the story from the news. I will try to locate the actual study.

Nickerson

What they say...

>>

>>

>> > I'm writing a piece called " They say " that addresses some of the most

>> > common beliefs that

>> > the popular folks assert on us.

>> >

>> > What are some of the existing beliefs that rile you up?

>> >

>> > Example: (It bothers me when people say...) Vaccines are always safe.

>> > or

>> > Autism Treatment

>> > does not have enough science behind it. or Autism is genetic. or The

>> > rates are rising

>> > because of better diagnosis.

>> >

>> > Send me examples of things that have bothered you and I will include as

>> > many good ones as

>> > I can. Let your voice be heard.

>> >

>> > please email me at: autismbook1@...

>> >

>> > Thanks.

>> >

>> > - Stan

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >

[Guest guest]

I had someone say to me...."well, you're going to be really upset, especially on holidays and his birthdays--as if he's dead and I should mourn every birthday."Chuck & Chase wrote: It bothers me when you take your child in to his/her pediatrician because you have concerns about their verbal skills and social skills when they are three years old and THEY SAY "Don't worry, he's just being a boy". When my son was evaluatted by a school district's school psychologist at three and 1/2 years of age she said, after she revealed her diagnosis: "How do you feel? It's okay to be upset. It's like you are greiving the loss of your son and all the hopes and dreams you had for him" I'd like that school psych to see my son 4 years later after 4 years of biomed and see how much he has progressed. We aren't done, but we have made so much progress with our kids. I just think if I would have listened to the "doom and gloom" advice they had to give me then, then I truly would be grieving over my son now, but that is just the opposite. I am so proud of my son and all the obstacles he has overcome at such a young age. It

bothers me when school psychologists say there is no hope. They really need to get educated. From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of NickersonSent: Sunday, January 06, 2008 1:12 PMTo: mb12 valtrex Subject: Re: What they say... When at a recent autism spectrum symposium here in Ontario, the most respected Autism specialists was asked about his thoughts on diet interventions and

autism. His reply was that diets were and inconvenience and not practical! (Huh? Having a child with autism is most inconvienient!) He then suggested that the children with autism would be highly unlikely to follow the diet as adults. (He had much information about drug intervention.....and how often is that we here adults that are drug dependant for neurological disorders are not taking their meds.)So my experiences with they say that...... are the following...They say that...diets are inconvenientdon't worry..lots of kids do that...(obsess over toys, spinning things, etc)they will outgrow itoh my brother didn't talk till he was four and he is fine now...there is more toxins in the air they breath than in vaccinesthey took thermisol out of Canadian vaccines long ago and they still have children with autism...(ya not all of the vaccines are thermisol free and what

do they use instead?)its a risk you have to takeyour children must have a genetic predisposition(This one came from our ped with two young sons with autism)....There is no science behind diets and autistic behaviours (actually there are now published studies at University of Western Ontario)Autism is NOT reversible.......(I type this as my four year old recovered son just asked ran and told me....Daddy, and me are going outside in the snow. Will you miss me, while I am gone? Eight months ago before diet intervention he could only echo a word or two.....)I have a lot more but there's a few for you.Thanks Stan for being a big loud voice for our kids all over the world.Kind regards, from Ontario, Canada What they say...> I'm writing a piece called "They say" that addresses some of the most > common beliefs that> the popular folks assert on us.>> What are some of the existing beliefs that rile you up?>> Example: (It bothers me when people say...) Vaccines are always safe. or > Autism Treatment> does not have enough science behind it. or Autism is genetic. or The > rates are rising> because of better diagnosis.>> Send me examples of things that have bothered you and I will include as > many good ones as> I can. Let your voice be heard.>> please email me at: autismbook1gmail>> Thanks.>> -

Stan>>>>>>>>

[Guest guest]

http://psychology.uwo.ca/pdfs/autism/AspireMagazine.pdf

Stan,

This is a publication by Dr. MacFabe.

Regards,

It is helpful to have on hand as back up here in Canada when you present

information that you know about autism to your childs dr and they look at

you like you have three heads!

What they say...

>>>

>>>

>>> > I'm writing a piece called " They say " that addresses some of the most

>>> > common beliefs that

>>> > the popular folks assert on us.

>>> >

>>> > What are some of the existing beliefs that rile you up?

>>> >

>>> > Example: (It bothers me when people say...) Vaccines are always safe.

>>> > or

>>> > Autism Treatment

>>> > does not have enough science behind it. or Autism is genetic. or

>>> > The

>>> > rates are rising

>>> > because of better diagnosis.

>>> >

>>> > Send me examples of things that have bothered you and I will include

>>> > as

>>> > many good ones as

>>> > I can. Let your voice be heard.

>>> >

>>> > please email me at: autismbook1@...

>>> >

>>> > Thanks.

>>> >

>>> > - Stan

>>> >

>>> >

>>> >

>>> >

>>> >

>>> >

>>> >

>>> >

[Guest guest]

>> When at a recent autism spectrum symposium here in Ontario, the most > respected Autism specialists was asked about his thoughts on diet > interventions and autism. His reply was that diets were and inconvenience > and not practical! (Huh? Having a child with autism is most inconvienient!) > He then suggested that the children with autism would be highly unlikely to > follow the diet as adults.

===>Although diets are a HUGE part of many getting autistic symptoms under control, this part about children NOT following the diet is true, and it will be true a LOT sooner than adulthood. For those of you who have never had a teenager, they don't always do what you'd like....think back to when you were a teen.

So, if part of your recovery plan doesn't include making sure that they can eat what they want when they want and your child is one who can't function or think normally when they don't follow a diet.......this IS a real problem.

Not to mention what other things teens do such as drink too much with their friends, which I'm certain none of you did or none of your children are going to do but the above is the largest reason I said that we did not consider ours recovered until she could eat anything and not react.

[Guest guest]

Hi ,

I agree with you said, however the doctor was implicating that diet verses drugs would not be beneficial in the long run,because of compliancy issues. He was discussing the latest drug treatments (the symposium was sponsored by a drug company),,,and I thought that it was an odd statement because compliancy is often an issue with required meds during teenage and adult years also. At least the diet has a chance of healing, where as many of the drugs he was promoting (antipsychotic ones) were only perhaps able to mask or suppress symptoms. The comparison to diet vs. drugs and the compliancy issue is what riled me. Neither one guarantees compliancy in later life if they are still necessary but the diet, from my experience has the edge on healing. (recovery, remission, or whatever one calls it.)

PS He was not referring to any antiviral or antifungal drug interventions. (Not even sure he was aware of any..)

and PPS Anyone who reads this and is using the antipsychotic drugs for their childs benefit, I am not saying what is right or wrong, just my experience and my thoughts.

Re: Re: What they say...

>> When at a recent autism spectrum symposium here in Ontario, the most > respected Autism specialists was asked about his thoughts on diet > interventions and autism. His reply was that diets were and inconvenience > and not practical! (Huh? Having a child with autism is most inconvienient!) > He then suggested that the children with autism would be highly unlikely to > follow the diet as adults.

===>Although diets are a HUGE part of many getting autistic symptoms under control, this part about children NOT following the diet is true, and it will be true a LOT sooner than adulthood. For those of you who have never had a teenager, they don't always do what you'd like....think back to when you were a teen.

So, if part of your recovery plan doesn't include making sure that they can eat what they want when they want and your child is one who can't function or think normally when they don't follow a diet.......this IS a real problem.

Not to mention what other things teens do such as drink too much with their friends, which I'm certain none of you did or none of your children are going to do but the above is the largest reason I said that we did not consider ours recovered until she could eat anything and not react.

[Guest guest]

Here's few I had:

A friend:

" There's been so much second-hand smoke since the 60's, that's why autism is on

the

rise.. "

An employee (wasn't aware I was related):

" ..That's what I say about autism: if the parents are screwed up, the kids will

be screwed

up... "

(I had to replace a word here...didn't replace the employee, though.....)

A teacher (I was pregnant)

" He's going to have a baby sister. The baby will put too much stress on him. He

may

benefit from a special class... "

A family member (while pregnant):

Are you sure you need another child? After the problems you had with him?

A neighbor:

" If you didn't mommy him so much, maybe he'll be more independent.. "

A teacher in a Montessori school:

" I have a deaf girl in my class who is following directions better than him "

My neurologist:

" Try whatever you want, but don't do chelation. There was a child who died.. "

(Sorry, that's exactly what I did...))

A teacher:

" ..yeah.... the biomed...but have you wondered how much of this is genetic? "

My reply: " There is nowhere in his DNA that says he's supposed to carry tons of

mercury,

is there? Intelligent and nerdy- yes, but not poisoned... "

My psychologist:

" Well, it's a common misconception to think that people who talk smart are, in

fact,

smart.. "

(Wow, that was a hit (

Principal (while replacing his term grades from A's to F's because I refused

their

evaluation)

" ...see, our school is about education, we don't teach social skills... "

I have more, I guess having an Aspie gives you the opportunity sometimes to see

the true

faces behind the so-called sympathetic smiles. While they don't know they speak

to a

mom of Autism, they could be so much more honest about their cruelty, even those

so

called " professionals " Nevertheless, I'm the stubborn mom who fought with the

system

not to have him labeled. It's a " bloody " fight, I don't recommend it, but if you

were to try,

bring a voice recorder to your IEP meeting, it turns things around

Thanks, Stan,

you're right ...it's therapeutical...I feel like detoxified )

Connie

> From: " Stan Kurtz " <stankurtzgmail (DOT) <mailto:stankurtz%40gmail.com> com>

> To: <mb12 valtrex@ <mailto:mb12 valtrex%40yahoogroups.com> yahoogroups.com>

> Sent: Sunday, January 06, 2008 2:22 PM

> Subject: What they say...

>

> > I'm writing a piece called " They say " that addresses some of the most

> > common beliefs that

> > the popular folks assert on us.

> >

> > What are some of the existing beliefs that rile you up?

> >

> > Example: (It bothers me when people say...) Vaccines are always safe. or

> > Autism Treatment

> > does not have enough science behind it. or Autism is genetic. or The

> > rates are rising

> > because of better diagnosis.

> >

> > Send me examples of things that have bothered you and I will include as

> > many good ones as

> > I can. Let your voice be heard.

> >

> > please email me at: autismbook1@ <mailto:autismbook1%40gmail.com>

> gmail.com

> >

> > Thanks.

> >

> > - Stan

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Ped: (Arrogantly) We are aware your son had Roselo as an infant and the current lab work states very accurately that it was a past infection. Mom: Then how do you explain the current High titer reading of 1:640 when the normal range is 1:10. Wouldn’t that suggest that my son has a CURRENT

infection? Ped: (Silence) Ped: There is no connection between your son’s autistic symptoms and a viral infection past or present. Note: I do not believe for one moment he truly believes this he has been calling over the past two months to check on my son’s progress with biomedicine. He is doubtful but can be converted if he witnesses improvement and/or recovery. Prominent Neurologist at Cedars Sinai: All behaviors you are describing are unique to your son. He was born this way. Irritated Disbelieving Mom: You mean to tell me that my son developed normally for 18-24 months then started to regress and lose all learned skills into the neurological disease, AUTISM that he was born with? Prominent Neurologist at Cedars Sinai: Yes, sometimes it takes awhile to show up. Irritated Flabbergasted Mom: I cannot accept that a medical professional believes this. Prominent Neurologist at Cedars Sinai: I know it’s frustrating but it appears he has a mild case. Be grateful he’s not that bad off. There is no cure otherwise all medical professionals would

follow the protocol for all patients. Dejected Mom: (Sigh..prior to finding out about biomedicine) The below conversation just occurred on 01/04/08. Regional Center Psychologist: I cannot complete the Mullen Test on your son because he is uninterested in some activities and not consistently attentive. I will diagnosis him primarily as severely Autistic and secondarily with mental retardation due to his autism impairing his interest and his inability to attend to task. I have been doing this job for 7 years and understand you must find it hard to accept. In 7 years, I have only seen one child improve, have you heard of Stan and Ethan Kurtz? The intervention therapies really seemed to help them. Determined Mom: You are right about one thing, I do not accept your diagnosis however I do intend to recover my son and prove you wrong. Then you will know of TWO child who have recovered from your definition of autism. Thanks Stan! Yes, yes I do feel better too. I never replied to the psychologist inquiry as to whether or not I had heard of Stan and Ethan Kurtz. Guess I was just to overwhelmed or incensed at the time:) constancemelman

wrote: Here's few I had:A friend:" There's been so much second-hand smoke since the 60's, that's why autism is on the rise.."An employee (wasn't aware I was related):"..That's what I say about autism: if the parents are screwed up, the kids will be screwed up..."(I had to replace a word here...didn't replace the employee, though.....)A teacher (I was pregnant)"He's going to have a baby sister. The baby will put too much stress on him. He may benefit from a special class..."A family member (while

pregnant):Are you sure you need another child? After the problems you had with him?A neighbor:"If you didn't mommy him so much, maybe he'll be more independent.."A teacher in a Montessori school:"I have a deaf girl in my class who is following directions better than him"My neurologist:"Try whatever you want, but don't do chelation. There was a child who died.."(Sorry, that's exactly what I did...))A teacher:"..yeah.... the biomed...but have you wondered how much of this is genetic?"My reply: "There is nowhere in his DNA that says he's supposed to carry tons of mercury, is there? Intelligent and nerdy- yes, but not poisoned..."My psychologist:"Well, it's a common misconception to think that people who talk smart are, in fact, smart.."(Wow, that was a hit (Principal (while replacing his term grades from A's to F's because I refused their evaluation)"...see,

our school is about education, we don't teach social skills..."I have more, I guess having an Aspie gives you the opportunity sometimes to see the true faces behind the so-called sympathetic smiles. While they don't know they speak to a mom of Autism, they could be so much more honest about their cruelty, even those so called "professionals" Nevertheless, I'm the stubborn mom who fought with the system not to have him labeled. It's a "bloody" fight, I don't recommend it, but if you were to try, bring a voice recorder to your IEP meeting, it turns things around ;)Thanks, Stan,you're right ...it's therapeutical...I feel like detoxified )Connie> From: "Stan Kurtz" <stankurtzgmail (DOT) <mailto:stankurtz%40gmail.com> com>> To: <mb12 valtrex@ <mailto:mb12 valtrex%40yahoogroups.com> yahoogroups.com>> Sent: Sunday, January 06, 2008 2:22 PM> Subject:

What they say...> > > I'm writing a piece called "They say" that addresses some of the most > > common beliefs that> > the popular folks assert on us.> >> > What are some of the existing beliefs that rile you up?> >> > Example: (It bothers me when people say...) Vaccines are always safe. or > > Autism Treatment> > does not have enough science behind it. or Autism is genetic. or The > > rates are rising> > because of better diagnosis.> >> > Send me examples of things that have bothered you and I will include as > > many good ones as> > I can. Let your voice be heard.> >> > please email me at: autismbook1@ <mailto:autismbook1%40gmail.com>> gmail.com> >> > Thanks.> >> > - Stan> >> >> >>

>> >> >> >> >

[Guest guest]

few comments re gastrointestinal problems in autism:

A leading children's hospital paediatrician upon hearing a child has

chronic constipation and when bms do happen, they are in the form of

yellow fluffy liquid: " Oh, that is just normal, some kids are just like

that " .

Upon hearing that the same child used to have constant diarrhea for the

first two years of his life, 4-5 acidic skin-burning bms per day, and

was constantly bloated and in pain: " Oh, some children are just like

that. they are born like that, there is nothing you can do " . When

reminded about the pain and screaming, she repeated: " Well, some

children are just like that. Pain is normal. There is nothing you can do

about it. "

natasa x

>

> It bothers me when you take your child in to his/her pediatrician

because

> you have concerns about their verbal skills and social skills when

they are

> three years old and THEY SAY " Don't worry, he's just being a boy " .

>

> When my son was evaluatted by a school district's school psychologist

at

> three and 1/2 years of age she said, after she revealed her diagnosis:

" How

> do you feel? It's okay to be upset. It's like you are greiving the

loss of

> your son and all the hopes and dreams you had for him " I'd like that

> school psych to see my son 4 years later after 4 years of biomed and

see how

> much he has progressed. We aren't done, but we have made so much

progress

> with our kids. I just think if I would have listened to the " doom and

> gloom " advice they had to give me then, then I truly would be grieving

over

> my son now, but that is just the opposite. I am so proud of my son

and all

> the obstacles he has overcome at such a young age. It bothers me when

> school psychologists say there is no hope. They really need to get

> educated.

>

>

>

> _____

>

> From: mb12 valtrex [mailto:mb12 valtrex ]

On

> Behalf Of Nickerson

> Sent: Sunday, January 06, 2008 1:12 PM

> To: mb12 valtrex

> Subject: Re: What they say...

>

>

>

> When at a recent autism spectrum symposium here in Ontario, the most

> respected Autism specialists was asked about his thoughts on diet

> interventions and autism. His reply was that diets were and

inconvenience

> and not practical! (Huh? Having a child with autism is most

inconvienient!)

> He then suggested that the children with autism would be highly

unlikely to

> follow the diet as adults. (He had much information about drug

> intervention.....and how often is that we here adults that are drug

> dependant for neurological disorders are not taking their meds.)

>

> So my experiences with they say that...... are the following...

>

> They say that...

>

> diets are inconvenient

>

> don't worry..

>

> lots of kids do that...(obsess over toys, spinning things, etc)

>

> they will outgrow it

>

> oh my brother didn't talk till he was four and he is fine now...

>

> there is more toxins in the air they breath than in vaccines

>

> they took thermisol out of Canadian vaccines long ago and they still

have

> children with autism...(ya not all of the vaccines are thermisol free

and

> what do they use instead?)

>

> its a risk you have to take

>

> your children must have a genetic predisposition

>

> (This one came from our ped with two young sons with autism)....There

is no

> science behind diets and autistic behaviours (actually there are now

> published studies at University of Western Ontario)

>

> Autism is NOT reversible.......(I type this as my four year old

recovered

> son just asked ran and told me....Daddy, and me are going outside

in

> the snow. Will you miss me, while I am gone? Eight months ago before

diet

> intervention he could only echo a word or two.....)

>

> I have a lot more but there's a few for you.

> Thanks Stan for being a big loud voice for our kids all over the

world.

>

> Kind regards,

> from Ontario, Canada

>

> What they say...

>

> > I'm writing a piece called " They say " that addresses some of the

most

> > common beliefs that

> > the popular folks assert on us.

> >

> > What are some of the existing beliefs that rile you up?

> >

> > Example: (It bothers me when people say...) Vaccines are always

safe. or

> > Autism Treatment

> > does not have enough science behind it. or Autism is genetic. or The

> > rates are rising

> > because of better diagnosis.

> >

> > Send me examples of things that have bothered you and I will include

as

> > many good ones as

> > I can. Let your voice be heard.

> >

> > please email me at: autismbook1@ <mailto:autismbook1%40gmail.com>

> gmail.com

> >

> > Thanks.

> >

> > - Stan

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi ,

I agree, teens are not likely to be compliant with drugs or diet. I'm not anti drug if needed, either. But his point about the limits of diet is valid (and just as true for drugs or anything else for that matter) and I think a lot of times parents might be forgetting they will not always be in control of every bite of food that their child eats. We have to look ahead. So if your child is one for whom antivirals do everything including allowing your child to eat anything and still be normal, then fine. If not, look for other treatments that will allow complete recovery, I guess this was my point, which your post springboarded.

To: mb12 valtrex

Sent: Sunday, January 06, 2008 11:55 PM

Subject: Re: Re: What they say...

Hi ,

I agree with you said, however the doctor was implicating that diet verses drugs would not be beneficial in the long run,because of compliancy issues. He was discussing the latest drug treatments (the symposium was sponsored by a drug company),,,and I thought that it was an odd statement because compliancy is often an issue with required meds during teenage and adult years also. At least the diet has a chance of healing, where as many of the drugs he was promoting (antipsychotic ones) were only perhaps able to mask or suppress symptoms. The comparison to diet vs. drugs and the compliancy issue is what riled me. Neither one guarantees compliancy in later life if they are still necessary but the diet, from my experience has the edge on healing. (recovery, remission, or whatever one calls it.)

PS He was not referring to any antiviral or antifungal drug interventions. (Not even sure he was aware of any..)

and PPS Anyone who reads this and is using the antipsychotic drugs for their childs benefit, I am not saying what is right or wrong, just my experience and my thoughts.

Re: Re: What they say...

>> When at a recent autism spectrum symposium here in Ontario, the most > respected Autism specialists was asked about his thoughts on diet > interventions and autism. His reply was that diets were and inconvenience > and not practical! (Huh? Having a child with autism is most inconvienient!) > He then suggested that the children with autism would be highly unlikely to > follow the diet as adults.

===>Although diets are a HUGE part of many getting autistic symptoms under control, this part about children NOT following the diet is true, and it will be true a LOT sooner than adulthood. For those of you who have never had a teenager, they don't always do what you'd like....think back to when you were a teen.

So, if part of your recovery plan doesn't include making sure that they can eat what they want when they want and your child is one who can't function or think normally when they don't follow a diet.......this IS a real problem.

Not to mention what other things teens do such as drink too much with their friends, which I'm certain none of you did or none of your children are going to do but the above is the largest reason I said that we did not consider ours recovered until she could eat anything and not react.

[Guest guest]

The silence is deafening. Until the rote and previously rehearsed

reply comes forth " There is no connection... " at which point we tune

out.

Gayatri

>

> Ped: (Arrogantly) We are aware your son had Roselo as an infant

and the current lab work states very accurately that it was a past

infection.

>

> Mom: Then how do you explain the current High titer reading of

1:640 when the normal range is 1:10. Wouldn't that suggest that my

son has a CURRENT infection?

>

> Ped: (Silence)

> Ped: There is no connection between your son's autistic symptoms

and a viral infection past or present.

>

[Guest guest]

Okay, this is going to be slightly off topic, but

definately therapeutic:

I have 2 sons with autism. One is 22 one is 3.

The 3 year old has had extensive biomed and no

vaccines. Unfortunately, I didn't know about

biomed for my older son, and he was fully

vaccinated.

Although they started on similar tracks, ie HFA,

the 3 year old is miles ahead of where his

brother was at this age, and I give all of the

credit to biomed, since both received traditional

therapies. Just today, when I was getting my 3

year old ready to go outside, he said " Mommy

needs gloves too. " He's connecting more and more

every day.

When he was diagnosed, last Spring, he was

approved for SSI in 10 days, based on his psych

eval. Last month, he barely made it into

developmental preschool, because he was " too

typical " .

I have a friend who also has a 3 year old son

with autism. Amoung other things, he suffered

from severe asthma, poor sleep patterns and leg

pain. The mother said they were too broke to do

biomed, so I took her a bag of epsom salts and an

OT sleep protocol.

She told me yesterday that he hasn't had an

asthma attack, and has been sleeping through the

night since she started epsom salt baths. She

also added zinc and his leg pain is resolved.

No one can tell me biomed doesn't work, so " they "

can say anything they like. I know it works,

I've seen the results.

--- Gayatri Rampal

wrote:

> The silence is deafening. Until the rote and

> previously rehearsed

> reply comes forth " There is no connection... "

> at which point we tune

> out.

>

> Gayatri

>

>

>

> >

> > Ped: (Arrogantly) We are aware your son had

> Roselo as an infant

> and the current lab work states very accurately

> that it was a past

> infection.

> >

> > Mom: Then how do you explain the current

> High titer reading of

> 1:640 when the normal range is 1:10. Wouldn't

> that suggest that my

> son has a CURRENT infection?

> >

> > Ped: (Silence)

> > Ped: There is no connection between your

> son's autistic symptoms

> and a viral infection past or present.

> >

>

>

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

[Guest guest]

Recently I took my older son to a speech

therapist to help him gain more appropriate

social speech. After the session, she said " I

think what he really needs is to be around his

peers. " I said " If being around his peers was

all he needed, wouldn't think he'd be 'cured'

after 12 years of school? "

I think many of these 'professionals' are

clueless, but don't want to say so, so they say

this stupid stuff instead.

--- Kim wrote:

> Okay, this is going to be slightly off topic,

> but

> definately therapeutic:

>

> I have 2 sons with autism. One is 22 one is 3.

>

> The 3 year old has had extensive biomed and no

> vaccines. Unfortunately, I didn't know about

> biomed for my older son, and he was fully

> vaccinated.

>

> Although they started on similar tracks, ie

> HFA,

> the 3 year old is miles ahead of where his

> brother was at this age, and I give all of the

> credit to biomed, since both received

> traditional

> therapies. Just today, when I was getting my 3

> year old ready to go outside, he said " Mommy

> needs gloves too. " He's connecting more and

> more

> every day.

>

> When he was diagnosed, last Spring, he was

> approved for SSI in 10 days, based on his psych

> eval. Last month, he barely made it into

> developmental preschool, because he was " too

> typical " .

>

> I have a friend who also has a 3 year old son

> with autism. Amoung other things, he suffered

> from severe asthma, poor sleep patterns and leg

> pain. The mother said they were too broke to

> do

> biomed, so I took her a bag of epsom salts and

> an

> OT sleep protocol.

>

> She told me yesterday that he hasn't had an

> asthma attack, and has been sleeping through

> the

> night since she started epsom salt baths. She

> also added zinc and his leg pain is resolved.

>

> No one can tell me biomed doesn't work, so

> " they "

> can say anything they like. I know it works,

> I've seen the results.

>

> --- Gayatri Rampal

> wrote:

>

> > The silence is deafening. Until the rote and

> > previously rehearsed

> > reply comes forth " There is no connection... "

> > at which point we tune

> > out.

> >

> > Gayatri

> >

> >

> >

> > >

> > > Ped: (Arrogantly) We are aware your son

> had

> > Roselo as an infant

> > and the current lab work states very

> accurately

> > that it was a past

> > infection.

> > >

> > > Mom: Then how do you explain the current

> > High titer reading of

> > 1:640 when the normal range is 1:10.

> Wouldn't

> > that suggest that my

> > son has a CURRENT infection?

> > >

> > > Ped: (Silence)

> > > Ped: There is no connection between your

> > son's autistic symptoms

> > and a viral infection past or present.

> > >

> >

> >

> >

>

>

>

>

>

________________________________________________________________________________\

____

> Looking for last minute shopping deals?

> Find them fast with Yahoo! Search.

>

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

[Guest guest]

My biggest pet peeve was….Me-”My

son stopped sleeping (after MMR) and is rolling around on the floor screaming

at night.”  Pedi- “It’s behavioral; he’s trying to gain

the power position”.  Me-“He is pooping like crazy, explosive

stools that smell horrendous”, Pedi –“I don’t know as

long as he’s pooping at least once a day he’s fine, if he wasn’t

going everyday we’d look into it”.  Me-“My son has a fever

and reacts to every vaccine”, Pedi- “most kids have slight fevers,

some even get the measles from the vaccine but there are no issues with it”,

HUH??

  With my daughter a couple of hours after

4 month vaccines….Me-“She is having trouble breathing and having

convulsive like activity.  It’s scaring the shit out of her, I can see

the fear on her face and feel it throughout her little body, she’s

injured or something”, Pedi- “She’s fine, some children hold

their breath for attention”.  Me-“I’ve been holding her constantly

and haven’t stopped giving her attention, she has never done this before

and it started 1 hour after her vaccine”.  Pedi – “Really,

she’s just holding her breath for your attention”.  Well she

continued to hold her breath for attention even in her sleep for the next 6

months.  I was afraid I would loose her to SIDS or something and woke up every ½

hour to check on her for the next year.  I’m tired of the “it’s

all behavioral” rhetoric!!  Phew, that felt good!! -

    

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Stan Kurtz

Sent: Sunday, January 06, 2008

10:42 PM

To: mb12 valtrex

Subject: Re: What

they say...

although writing it here seems therapeutic so feel

free to do whichever you prefer.

> >

> > I'm writing a piece called " They say " that addresses some

of the most common beliefs

> that

> > the popular folks assert on us.

> >

> > What are some of the existing beliefs that rile you up?

> >

> > Example: (It bothers me when people say...) Vaccines are always safe.

or Autism

> Treatment

> > does not have enough science behind it. or Autism is genetic. or The

rates are rising

> > because of better diagnosis.

> >

> > Send me examples of things that have bothered you and I will include

as many good

> ones as

> > I can. Let your voice be heard.

> >

> > please email me at: autismbook1@

> >

> > Thanks.

> >

> > - Stan

> >

>