question

[Guest guest]

I have spoken to my family Dr. & Rheumy.....both think I have it, but

won't add it to my list of ailments, probably because no one really has me

figured out yet.

Every time I go to a new place I have a totally new work-up done (as I was

recommended) but all that does is rule out tons of other diseases. All of my

Dr's are 90% sure that I have Stills, but I have a few symptoms that don't

line up, according to all of them. My personal feelings is that they are

relying too much on textbooks to be honest, but if it isn't Stills, I

certainly want to know what it is!!!

Have a good one, Kirk.

>

> You might want to talk to your doctor about Fibromyalgia. There is no

> clear test that I'm aware of, but my understanding and my diagnosis was

> based on 18 trigger points that are on various parts of your body. If you

> doctor checks those out, you might get that diagnosis. I developed Fibro at

> the same time I was diagnosed with Still's. The doctor(s) told me I had two

> different disorders, but it all came at once and all felt the same. It was

> after Still's calmed down just a bit that the doctor did a really good exam

> and explained the difference....one trigger point at a time. I too can no

> longer stand for anyone to touch my back. Talk to you doc...you never know.

> Best wishes, Kathi M

>

> In a message dated 3/26/2007 8:04:55 A.M. Eastern Standard Time,

> kbonanny@... <kbonanny%40gmail.com> writes:

>

> Howdy all. I have a question I hope someone could shed some light on. I

> used to love having massages/having my back rubbed. I can no longer

> tolerate

> the pain I get whenever anything touches my back for the last year or so.

> Anyone ever hear of anything like this? Even a normal rub hurts so bad I

> can't tolerate it.

> Kirk

>

> I'm the exact same way. I have a new neighbor friend who's a toucher/light

>

> slapper when she talks and I'm going to have to say something to her cause

> it

> really hurts. And these are just very light touches. Al can't even give me

>

> back rubs anymore. I do not believe that I have fibro, I always thought I

> was

> more tender because of the steroids I've been on for what seems like

> centuries. It seems to make everything more hyper-sensitive for me it

> seems.

>

> Carole from Hollywood FL

>

> ************************************** AOL now offers free email to

> everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

>

[Guest guest]

I think this is directed at me, so I will answer. First off are the

headaches I get, the severity of them and the duration of them. I have had

as long as 47 straight days with a blinding headache, and have spent the

majority of my hospital time (25-28 weeks in under 3 years). I also have had

from the start a bright red face. I had some rashes, but this is different

and was there before meds. I also wound up with a ton of back problems,

numerous " cracked " ???? discs, inability to stand (before the morphine pump

implant) and such. I also have frequent diplopia (double vision), mainly

with the headaches but quite a few times without. There are more, but I

can't recall them all at this time. I also (this is as embarrassing as hell)

turned into a bed wetter about 4 months after this started.... I hid it as

long as I could.....every imaginable test was run and physically there is

nothing wrong. I do have a lesion on my brain and they suspected MS, but

thankfully there has been no progress to that diagnosis. I sometimes lose my

balance for no apparent reason and my body doesn't respond well to meds.

If you have any other related questions, please keep them off-list and

email me at kbonanny@... just be sure to let me know you're from the

stills group in the message or subject line.

Adios, Kirk.

>

> What are you different ailment above and beyond the textbook ones?

>

>

>

> Ruedenauer2@... <Ruedenauer2%40aol.com>

>

> Searching: O'BRIEN, RUEDENAUER, JENNINGS, MUNGENAST, (P)FREUNDSCHUH,

> EBERSOLE/EVERSOLE and misc spellings. Little information for MILLER, DAY,

> MCCORD,

> REININGER in Pa

>

> ************************************** AOL now offers free email to

> everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

>

[Guest guest]

I think this is directed at me, so I will answer. First off are the

headaches I get, the severity of them and the duration of them. I have had

as long as 47 straight days with a blinding headache, and have spent the

majority of my hospital time (25-28 weeks in under 3 years). I also have had

from the start a bright red face. I had some rashes, but this is different

and was there before meds. I also wound up with a ton of back problems,

numerous " cracked " ???? discs, inability to stand (before the morphine pump

implant) and such. I also have frequent diplopia (double vision), mainly

with the headaches but quite a few times without. There are more, but I

can't recall them all at this time. I also (this is as embarrassing as hell)

turned into a bed wetter about 4 months after this started.... I hid it as

long as I could.....every imaginable test was run and physically there is

nothing wrong. I do have a lesion on my brain and they suspected MS, but

thankfully there has been no progress to that diagnosis. I sometimes lose my

balance for no apparent reason and my body doesn't respond well to meds.

If you have any other related questions, please keep them off-list and

email me at kbonanny@... just be sure to let me know you're from the

stills group in the message or subject line.

Adios, Kirk.

>

> What are you different ailment above and beyond the textbook ones?

>

>

>

> Ruedenauer2@... <Ruedenauer2%40aol.com>

>

> Searching: O'BRIEN, RUEDENAUER, JENNINGS, MUNGENAST, (P)FREUNDSCHUH,

> EBERSOLE/EVERSOLE and misc spellings. Little information for MILLER, DAY,

> MCCORD,

> REININGER in Pa

>

> ************************************** AOL now offers free email to

> everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

>

[Guest guest]

dear Sharon,

Oooh, I get to play Ms. Social Security again.... OK. Contact your local

social security rep/office (I think you have 60 days for appeals, unlimited time

for payment plans) and tell them you want to file either a reconsideration

(if you don't agree with the overpayment, for example they have incorrect

info), or a request for a lower payment plan, or a waiver (yes, I agree I am

overpaid but I cannot afford to pay back the money). Depending how much the

overpayment is, and the cause, many times the rep will waive the overpayment.

For the waiver or the payment plan, you will have to provide figures showing

your income and the bills and why you feel you cannot pay back the

overpayment, or want a lower payment plan. DO NOT TELL THEM YOU'RE GETTING

MONEY FROM

YOUR MOM!!! THAT'S CONSIDERED INCOME. Just make your numbers make some kind

of sense if you can.

But Sharon, BE NICE!!!!! The claims representative is generally the person

making the decision. (Unless there is fraud involved or the amount is really

really high or you have a history of overpayments for the same reasons). I

remember back when I worked for SSA that I waived huge overpayments because the

people were really nice and sorry about the overpayments. Unfortunately, I

also denied them when people came in with attitudes and were incredibly

arrogant, like it was their right to have a waiver. I know that sounds bad, but

its

really hard to do nice things for nasty people.

Good luck Sharon.

Carole from Hollywood FL

In a message dated 4/8/2007 1:40:18 P.M. Eastern Daylight Time,

sharon@... writes:

I was wondering if any of you had medicare being paid for by the

state and now they took it away? I was getting ssdi checks for 640 a

month and now they are taking back 200.00 in back money and after

that my check will be 500.00. I have also been paying for some of my

meds w/ that money!!!! Does anyone have any suggestions? Has anyone

had any luck contesting this? 640 was barely enough to pay bills and

buy food !! I guess I should be thankfull, but I have had to get

money from my Mom as it is was...Thank you Love Sharon xxoo

************************************** See what's free at http://www.aol.com.

[Guest guest]

dear Sharon,

Oooh, I get to play Ms. Social Security again.... OK. Contact your local

social security rep/office (I think you have 60 days for appeals, unlimited time

for payment plans) and tell them you want to file either a reconsideration

(if you don't agree with the overpayment, for example they have incorrect

info), or a request for a lower payment plan, or a waiver (yes, I agree I am

overpaid but I cannot afford to pay back the money). Depending how much the

overpayment is, and the cause, many times the rep will waive the overpayment.

For the waiver or the payment plan, you will have to provide figures showing

your income and the bills and why you feel you cannot pay back the

overpayment, or want a lower payment plan. DO NOT TELL THEM YOU'RE GETTING

MONEY FROM

YOUR MOM!!! THAT'S CONSIDERED INCOME. Just make your numbers make some kind

of sense if you can.

But Sharon, BE NICE!!!!! The claims representative is generally the person

making the decision. (Unless there is fraud involved or the amount is really

really high or you have a history of overpayments for the same reasons). I

remember back when I worked for SSA that I waived huge overpayments because the

people were really nice and sorry about the overpayments. Unfortunately, I

also denied them when people came in with attitudes and were incredibly

arrogant, like it was their right to have a waiver. I know that sounds bad, but

its

really hard to do nice things for nasty people.

Good luck Sharon.

Carole from Hollywood FL

In a message dated 4/8/2007 1:40:18 P.M. Eastern Daylight Time,

sharon@... writes:

I was wondering if any of you had medicare being paid for by the

state and now they took it away? I was getting ssdi checks for 640 a

month and now they are taking back 200.00 in back money and after

that my check will be 500.00. I have also been paying for some of my

meds w/ that money!!!! Does anyone have any suggestions? Has anyone

had any luck contesting this? 640 was barely enough to pay bills and

buy food !! I guess I should be thankfull, but I have had to get

money from my Mom as it is was...Thank you Love Sharon xxoo

************************************** See what's free at http://www.aol.com.

[Guest guest]

I have the wheezing, but no shortness of breath unless I am having an attack. Usually I get a lot of pain in my chest. I have a cough sometimes, not always though. But I noticed that I have a cough. I used to only cough when I was sick, now I do have a cough occasionally without any cold.Donna wrote: Does anyone have Asthma without the wheezing and shortness of breath. I have asthma that presents itself with a chronic cough. Just

wondering if anyone else has this problem ...... or do most asthma sufferers have wheezing and shortness of breath. I would be very interested in hearing from anyone. I am new to the group. summertime331

No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started.

[Guest guest]

My daughter is 5 and still not even close to potty training. She will not sit on

the toilet...freaks her out.

Question

Do any of your children/teens have sensory issues, i.e. using the

restroom?

[Guest guest]

Friends,

does anybody know what is RITA 3CABG

Tarvinder 76

---------------------------------

Explore your hobbies and interests. Click here to begin.

[Guest guest]

 

in what context tarvinder?

On Wed, 19 Sep 2007 tarvinder singh uberoi wrote :

>

> Friends,

>

> does anybody know what is RITA 3CABG

>

>

> Tarvinder 76

>

>

>---------------------------------

> Explore your hobbies and interests. Click here to begin.

>

>

[Guest guest]

Hi Donna,

It's lyprinol http://www.lyprinol.com/home.htm and

http://www.medicalnewstoday.com/articles/7372.php

I recently read an article on it but have not tried it. I'm curious

as I suffer from both chronic asthma and arthritis.

>

> Has anyone in the group heard of a new medication (not prescription)

for treating arthritis ...... that has been rather successful in some

people in the treatment of asthma?

>

> I did hear the name of the medication but I cannot remember it.

>

> Thanks

> Donna

>

[Guest guest]

Hi Donna,

It's lyprinol http://www.lyprinol.com/home.htm and

http://www.medicalnewstoday.com/articles/7372.php

I recently read an article on it but have not tried it. I'm curious

as I suffer from both chronic asthma and arthritis.

>

> Has anyone in the group heard of a new medication (not prescription)

for treating arthritis ...... that has been rather successful in some

people in the treatment of asthma?

>

> I did hear the name of the medication but I cannot remember it.

>

> Thanks

> Donna

>

[Guest guest]

OPPS, It did work.

again, Sorry

Re: Question

>

>

>> Hi Donna,

>>

>> It's lyprinol http://www.lyprinol.com/home.htm and

>>

>> http://www.medicalnewstoday.com/articles/7372.php

>>

>> I recently read an article on it but have not tried it. I'm curious

>> as I suffer from both chronic asthma and arthritis.

>>

>>

>>

>>

>>>

>>> Has anyone in the group heard of a new medication (not prescription)

>> for treating arthritis ...... that has been rather successful in some

>> people in the treatment of asthma?

>>>

>>> I did hear the name of the medication but I cannot remember it.

>>>

>>> Thanks

>>> Donna

>>>

>>

>>

>>

>>

>>

>>

[Guest guest]

OPPS, It did work.

again, Sorry

Re: Question

>

>

>> Hi Donna,

>>

>> It's lyprinol http://www.lyprinol.com/home.htm and

>>

>> http://www.medicalnewstoday.com/articles/7372.php

>>

>> I recently read an article on it but have not tried it. I'm curious

>> as I suffer from both chronic asthma and arthritis.

>>

>>

>>

>>

>>>

>>> Has anyone in the group heard of a new medication (not prescription)

>> for treating arthritis ...... that has been rather successful in some

>> people in the treatment of asthma?

>>>

>>> I did hear the name of the medication but I cannot remember it.

>>>

>>> Thanks

>>> Donna

>>>

>>

>>

>>

>>

>>

>>

[Guest guest]

,

I just could not remember the name .... but that's it........Lyprinol.

Thank you

Donna

Re: Question

Hi Donna,It's lyprinol http://www.lyprinol.com/home.htm and http://www.medicalnewstoday.com/articles/7372.phpI recently read an article on it but have not tried it. I'm curiousas I suffer from both chronic asthma and arthritis.>> Has anyone in the group heard of a new medication (not prescription)for treating arthritis ...... that has been rather successful in somepeople in the treatment of asthma?> > I did hear the name of the medication but I cannot remember it.> > Thanks> Donna>

[Guest guest]

,

I just could not remember the name .... but that's it........Lyprinol.

Thank you

Donna

Re: Question

Hi Donna,It's lyprinol http://www.lyprinol.com/home.htm and http://www.medicalnewstoday.com/articles/7372.phpI recently read an article on it but have not tried it. I'm curiousas I suffer from both chronic asthma and arthritis.>> Has anyone in the group heard of a new medication (not prescription)for treating arthritis ...... that has been rather successful in somepeople in the treatment of asthma?> > I did hear the name of the medication but I cannot remember it.> > Thanks> Donna>

[Guest guest]

Both of those links worked for me.

[Guest guest]

Both of those links worked for me.

[Guest guest]

>

> Has anyone in the group heard of a new medication (not prescription)

for treating arthritis ...... that has been rather successful in some

people in the treatment of asthma?

>

> I did hear the name of the medication but I cannot remember it.

>

> Thanks

> Donna

I am Ravichandren from India(Tamilnadu).First,I don't know proper

English.I discovered and giving one different type of herbal based

(oral)treatment,freely to poor people,past 5 years on service basis.It

cures all types of psoriasis,arthritis and some types of

asthma,minimum 3 days treatment.

In last 12 years back,I was attacked with Asthma.some years I have

taked many treatments like aurveda ,Homeopathy and alopathy.But all

are only controled,not curable.So i has read many herbal linked old

books and cunsult many Tribs(who are lived in top of the hiils)for

asthma.Then I research and discovered one different type of

treatment,and I was taked.Only 3 days treatment Asthma totaly gone.So

I I gived this treatment freely to many peoples.90% peoples are cured

only 3 days treatment and some peoples are cured 6 to 10 days.

Then Iwas gived this treatment to psoriasis patients and arthritis

patients,kidney failier patients all are cured.

So I think that and my experience ,one separate virus affects the

human blood ,these diseases will be coming.

This virus affects skin,skin will became hard and loses its elasticity

and this virus affects Lungs,Lungs loses its elastisity and it

functions are not normaly.So breething problems.This same problem to

kidney.This treatment changes and cured this diseases minimum 3

days.So i think that this herbal treatment destroyed the separate

virus? I don't know.But I was giving this treatment freely to poor

people past 5 years.More details please visit our

websit:www.curewithherbs.info or condact e-mail kamalisethu@...

Thank you.This is not advertisement.Only on service basis.

[Guest guest]

>

> Has anyone in the group heard of a new medication (not prescription)

for treating arthritis ...... that has been rather successful in some

people in the treatment of asthma?

>

> I did hear the name of the medication but I cannot remember it.

>

> Thanks

> Donna

I am Ravichandren from India(Tamilnadu).First,I don't know proper

English.I discovered and giving one different type of herbal based

(oral)treatment,freely to poor people,past 5 years on service basis.It

cures all types of psoriasis,arthritis and some types of

asthma,minimum 3 days treatment.

In last 12 years back,I was attacked with Asthma.some years I have

taked many treatments like aurveda ,Homeopathy and alopathy.But all

are only controled,not curable.So i has read many herbal linked old

books and cunsult many Tribs(who are lived in top of the hiils)for

asthma.Then I research and discovered one different type of

treatment,and I was taked.Only 3 days treatment Asthma totaly gone.So

I I gived this treatment freely to many peoples.90% peoples are cured

only 3 days treatment and some peoples are cured 6 to 10 days.

Then Iwas gived this treatment to psoriasis patients and arthritis

patients,kidney failier patients all are cured.

So I think that and my experience ,one separate virus affects the

human blood ,these diseases will be coming.

This virus affects skin,skin will became hard and loses its elasticity

and this virus affects Lungs,Lungs loses its elastisity and it

functions are not normaly.So breething problems.This same problem to

kidney.This treatment changes and cured this diseases minimum 3

days.So i think that this herbal treatment destroyed the separate

virus? I don't know.But I was giving this treatment freely to poor

people past 5 years.More details please visit our

websit:www.curewithherbs.info or condact e-mail kamalisethu@...

Thank you.This is not advertisement.Only on service basis.

[Guest guest]

> I use a scarf in winter myself. It's not too bad here yet either. We've had a couple chilly days and nights but not too bad. It could be just the way the air hits your throat when you breathe. > > > > > __________________________________________________>

[Guest guest]

> I use a scarf in winter myself. It's not too bad here yet either. We've had a couple chilly days and nights but not too bad. It could be just the way the air hits your throat when you breathe. > > > > > __________________________________________________>

[Guest guest]

Hi Alana,

In addition to chronic obstructive asthma, I also have Grave's Disease -

a type of autoimmune disease that causes over-activity of the thyroid

gland, causing hyperthyroidism. Due to 2 radioactive iodine

treatments, my thyroid is basically " dead " - leaving me hypothyroid

and on thyroid meds for the rest of my life. Rheumatoid arthritis

(which runs in my family) is also an autoimmune disease causing

chronic inflammation of the joints. I haven't been tested - yet - but

show several symptoms of that, too. Type 1 diabetes, yet another

autoimmune disease, also runs in my family but I DO NOT have that.

Happy, healthy, safe, NEW YEAR!

in SE Wisconsin

>

> Does anybody here have any other auto-immune conditions?

>

>

> Alana

>

[Guest guest]

Hello,, Yes I have an auto-immune.. Rheumatoid arthritis and also reg arth,, and fibromyalgia,,, thyroid,, taking medication for it.. my dad had diabeties. Hope 2008 brings better treatment for all diseases,, and no more cases for any of us,, HAPPY NEW YEAR. Kathysea_girl111 wrote: Does anybody here have any other auto-immune

conditions?Alana

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Wow!! That is a loaded question...people will respond! Does Menopause

count?

Big smiles and hugs!!

Cindi

sea_girl111 wrote:

>

> Does anybody here have any other auto-immune conditions?

>

> Alana

>

>

[Guest guest]

I have myasthenia gravis, some arthritis  and COPD chronic bronchitis. I think they're all autoimmune.Barb B AzDoes anybody here have any other auto-immune conditions?Alana