Re: Autism: To Vaccinate Or Not to Vaccinate

December 3, 2007

It's the same little girl. There's just a new label on

her.

Can't cure me without fundamentally changing who I am.

Unless you're doing that sloppy language thing where

you say " autism " but mean " everything that bothers me

about my kid, most of which isn't autism at all " .

Catastrophizing much? Your daughter will never tie her

shoes so this is the worst thing ever?

Perspective, it's our friend, and I hope to God that

your kid doesn't know you are so desperate for another

kid in her body.

Kassiane,

sick of being polite for the comfort of others

--- nevaehlopez6 wrote:

> I am just trying to be real... You can speak to any

> parent that has

> just found out the their child has autism and they

> can tell you that

> to THEM at the moment it is the worst thing that can

> happen and they

> want to " fix " it.

>

> For me... Autism is very different. My daughter was

> walking, talking

> smiling, blowing kisses and then EVERYTHING STOPPED!

> As a parent you

> want to get this little girl back and you try

> everything in your

> power to do that.

>

> Trust me I know now that autism is not the worst

> thing in the world,

> but it is the worst thing in my world to know that

> if something ever

> happens to me right now my daughter would not be

> able to dress

> herself in the morning or tie her shoes by herself,

> wash her hair. So

> to me in MY world it is the worst. I love my

> daughters and I wouldn't

> change them for the world, but I cannot lie to you

> and say that if

> their was a cure for autism I wouldn't be the first

> in line to get

> it. And I will do anything to prevent my 14 month

> old daughter from

> suffering like Nevaeh has.

>

> >

> > Kassi,

> >

> > Oops, sorry I focused just on that one post. But,

> I do see that

> there was a general thing going on.

> >

> > You really did touch on something that's an issue

> for parents vs.

> the person who actually has autism. Parents feel

> it's our duty

> to " fix " everything while the person affected just

> sees it as a part

> of themselves and probably would be offended

> thinking all these

> people are walking around trying to " fix " it. When

> I look at my

> girls I can see aspects of their personality that

> probably really are

> attached to their autism. And I wouldn't ever want

> those things to

> change in them. For instance, they're both so naive

> and innocent.

> It's really sweet.

> >

> > My mom has bipolar disorder and there are very

> wonderful things

> about who she is that are actually probably part of

> the disorder.

> It's hard to balance all that good with all the bad

> that comes with

> it. But in her case it's very clear that you have

> to do away with

> the bad or the quality of her life suffers terribly.

> I suppose I

> keep my eye out for those sorts of things in autism

> too.

> >

> > Re: Re: Autism: To

> Vaccinate Or Not to

> Vaccinate

> >

> > Debi isn't who I was referring to. It's the

> general

> > attitude. That wasn't even the email I was

> responding

> > to.

> >

> > [Non-text portions of this message have been

> removed]

> >

>

________________________________________________________________________________\

____

Be a better pen pal.

Text or chat with friends inside Yahoo! Mail. See how.

http://overview.mail.yahoo.com/

December 3, 2007

I am new hear so excuse me being a bit naive on this

issue.

Why does it seam like the women that have autism are

very sensitive to any words that imply like we parents

want to " change " our daughters?

To be frank, I would do anything to help my daughter

be a " typical " little girl. That doesn't mean I love

her less. I just want the best for her and for her

life. For her to have the " best " she needs to be able

to function in this world. Especially since I won't

be always here to take care of her.

Why is this such a sensitive issue?

If there was a magic pill that would help you function

NT, wouldn't you take it? You would still be the same

person underneath.

Rebekah

I just don't understand......

--- Kassi wrote:

> It's the same little girl. There's just a new label

> on

> her.

>

> Can't cure me without fundamentally changing who I

> am.

> Unless you're doing that sloppy language thing where

> you say " autism " but mean " everything that bothers

> me

> about my kid, most of which isn't autism at all " .

>

> Catastrophizing much? Your daughter will never tie

> her

> shoes so this is the worst thing ever?

>

> Perspective, it's our friend, and I hope to God that

> your kid doesn't know you are so desperate for

> another

> kid in her body.

>

> Kassiane,

> sick of being polite for the comfort of others

>

> --- nevaehlopez6 wrote:

>

> > I am just trying to be real... You can speak to

> any

> > parent that has

> > just found out the their child has autism and they

> > can tell you that

> > to THEM at the moment it is the worst thing that

> can

> > happen and they

> > want to " fix " it.

> >

> > For me... Autism is very different. My daughter

> was

> > walking, talking

> > smiling, blowing kisses and then EVERYTHING

> STOPPED!

> > As a parent you

> > want to get this little girl back and you try

> > everything in your

> > power to do that.

> >

> > Trust me I know now that autism is not the worst

> > thing in the world,

> > but it is the worst thing in my world to know that

> > if something ever

> > happens to me right now my daughter would not be

> > able to dress

> > herself in the morning or tie her shoes by

> herself,

> > wash her hair. So

> > to me in MY world it is the worst. I love my

> > daughters and I wouldn't

> > change them for the world, but I cannot lie to you

> > and say that if

> > their was a cure for autism I wouldn't be the

> first

> > in line to get

> > it. And I will do anything to prevent my 14 month

> > old daughter from

> > suffering like Nevaeh has.

> >

> > >

> > > Kassi,

> > >

> > > Oops, sorry I focused just on that one post.

> But,

> > I do see that

> > there was a general thing going on.

> > >

> > > You really did touch on something that's an

> issue

> > for parents vs.

> > the person who actually has autism. Parents feel

> > it's our duty

> > to " fix " everything while the person affected just

> > sees it as a part

> > of themselves and probably would be offended

> > thinking all these

> > people are walking around trying to " fix " it.

> When

> > I look at my

> > girls I can see aspects of their personality that

> > probably really are

> > attached to their autism. And I wouldn't ever

> want

> > those things to

> > change in them. For instance, they're both so

> naive

> > and innocent.

> > It's really sweet.

> > >

> > > My mom has bipolar disorder and there are very

> > wonderful things

> > about who she is that are actually probably part

> of

> > the disorder.

> > It's hard to balance all that good with all the

> bad

> > that comes with

> > it. But in her case it's very clear that you have

> > to do away with

> > the bad or the quality of her life suffers

> terribly.

> > I suppose I

> > keep my eye out for those sorts of things in

> autism

> > too.

> > >

> > > Re: Re: Autism: To

> > Vaccinate Or Not to

> > Vaccinate

> > >

> > > Debi isn't who I was referring to. It's the

> > general

> > > attitude. That wasn't even the email I was

> > responding

> > > to.

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

>

________________________________________________________________________________\

____

> Be a better pen pal.

> Text or chat with friends inside Yahoo! Mail. See

> how. http://overview.mail.yahoo.com/

>

Rebekah Phil 4:8 & #10084;

________________________________________________________________________________\

____

Be a better sports nut! Let your teams follow you

with Yahoo Mobile. Try it now.

http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ

December 3, 2007

I am new hear so excuse me being a bit naive on this

issue.

Why does it seam like the women that have autism are

very sensitive to any words that imply like we parents

want to " change " our daughters?

To be frank, I would do anything to help my daughter

be a " typical " little girl. That doesn't mean I love

her less. I just want the best for her and for her

life. For her to have the " best " she needs to be able

to function in this world. Especially since I won't

be always here to take care of her.

Why is this such a sensitive issue?

If there was a magic pill that would help you function

NT, wouldn't you take it? You would still be the same

person underneath.

Rebekah

I just don't understand......

--- Kassi wrote:

> It's the same little girl. There's just a new label

> on

> her.

>

> Can't cure me without fundamentally changing who I

> am.

> Unless you're doing that sloppy language thing where

> you say " autism " but mean " everything that bothers

> me

> about my kid, most of which isn't autism at all " .

>

> Catastrophizing much? Your daughter will never tie

> her

> shoes so this is the worst thing ever?

>

> Perspective, it's our friend, and I hope to God that

> your kid doesn't know you are so desperate for

> another

> kid in her body.

>

> Kassiane,

> sick of being polite for the comfort of others

>

> --- nevaehlopez6 wrote:

>

> > I am just trying to be real... You can speak to

> any

> > parent that has

> > just found out the their child has autism and they

> > can tell you that

> > to THEM at the moment it is the worst thing that

> can

> > happen and they

> > want to " fix " it.

> >

> > For me... Autism is very different. My daughter

> was

> > walking, talking

> > smiling, blowing kisses and then EVERYTHING

> STOPPED!

> > As a parent you

> > want to get this little girl back and you try

> > everything in your

> > power to do that.

> >

> > Trust me I know now that autism is not the worst

> > thing in the world,

> > but it is the worst thing in my world to know that

> > if something ever

> > happens to me right now my daughter would not be

> > able to dress

> > herself in the morning or tie her shoes by

> herself,

> > wash her hair. So

> > to me in MY world it is the worst. I love my

> > daughters and I wouldn't

> > change them for the world, but I cannot lie to you

> > and say that if

> > their was a cure for autism I wouldn't be the

> first

> > in line to get

> > it. And I will do anything to prevent my 14 month

> > old daughter from

> > suffering like Nevaeh has.

> >

> > >

> > > Kassi,

> > >

> > > Oops, sorry I focused just on that one post.

> But,

> > I do see that

> > there was a general thing going on.

> > >

> > > You really did touch on something that's an

> issue

> > for parents vs.

> > the person who actually has autism. Parents feel

> > it's our duty

> > to " fix " everything while the person affected just

> > sees it as a part

> > of themselves and probably would be offended

> > thinking all these

> > people are walking around trying to " fix " it.

> When

> > I look at my

> > girls I can see aspects of their personality that

> > probably really are

> > attached to their autism. And I wouldn't ever

> want

> > those things to

> > change in them. For instance, they're both so

> naive

> > and innocent.

> > It's really sweet.

> > >

> > > My mom has bipolar disorder and there are very

> > wonderful things

> > about who she is that are actually probably part

> of

> > the disorder.

> > It's hard to balance all that good with all the

> bad

> > that comes with

> > it. But in her case it's very clear that you have

> > to do away with

> > the bad or the quality of her life suffers

> terribly.

> > I suppose I

> > keep my eye out for those sorts of things in

> autism

> > too.

> > >

> > > Re: Re: Autism: To

> > Vaccinate Or Not to

> > Vaccinate

> > >

> > > Debi isn't who I was referring to. It's the

> > general

> > > attitude. That wasn't even the email I was

> > responding

> > > to.

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

>

________________________________________________________________________________\

____

> Be a better pen pal.

> Text or chat with friends inside Yahoo! Mail. See

> how. http://overview.mail.yahoo.com/

>

Rebekah Phil 4:8 & #10084;

________________________________________________________________________________\

____

Be a better sports nut! Let your teams follow you

with Yahoo Mobile. Try it now.

http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ

December 3, 2007

Hell no I wouldn't take it. I wouldn't be me. I'd be

off dumbing myself down fooling around with makeup,

have had much sex in high school like my " peers " ,

hidden my brains and opinions to fit the norm.

The norm was NOT A PERSON I WANT TO BE.

The norm is an intolerant human being who is taught

that a woman is an object that happens to have a

mouth. This is NOT ME. I DON'T WANT IT to be me.

If there was a magic pill that would make you a man,

would you take it? Cuz that's basically what you're

saying: " Let'sc cut out a HUGE part of your identity

and CHANGE IT to make people less uncomfortable in

certain situations and make your earning power

better! "

Sure, and let's dye the whole rainbow yellow.

Here are some blog entries my friend wrote on

the subject:

http://ballastexistenz.autistics.org/?p=218 <-Hey

Watch It, That's Attached

http://ballastexistenz.autistics.org/?p=57 <-Why Do

You Think I Must Want to Be Like You?, originally

addressed to " aspie supremacists " who feel that

everyone else is just like them with a bunch of

comorbidities, but the message rather applies to

people who assume that autistic people are defective

NTs, too.

Her whole blog is good, really. So is the info library

at autistics.org. My blog is infrequently updated, but

plainly anticure.

I don't want to be anything but what I am. If God

doesn't make junk, why are people so hellbent on

convincing me that's what I am?

Kassiane

--- Albrecht Rebekah wrote:

> I am new hear so excuse me being a bit naive on this

> issue.

>

> Why does it seam like the women that have autism are

> very sensitive to any words that imply like we

> parents

> want to " change " our daughters?

>

> To be frank, I would do anything to help my daughter

> be a " typical " little girl. That doesn't mean I

> love

> her less. I just want the best for her and for her

> life. For her to have the " best " she needs to be

> able

> to function in this world. Especially since I won't

> be always here to take care of her.

>

> Why is this such a sensitive issue?

>

> If there was a magic pill that would help you

> function

> NT, wouldn't you take it? You would still be the

> same

> person underneath.

>

> Rebekah

> I just don't understand......

> --- Kassi wrote:

>

> > It's the same little girl. There's just a new

> label

> > on

> > her.

> >

> > Can't cure me without fundamentally changing who I

> > am.

> > Unless you're doing that sloppy language thing

> where

> > you say " autism " but mean " everything that bothers

> > me

> > about my kid, most of which isn't autism at all " .

> >

> > Catastrophizing much? Your daughter will never tie

> > her

> > shoes so this is the worst thing ever?

> >

> > Perspective, it's our friend, and I hope to God

> that

> > your kid doesn't know you are so desperate for

> > another

> > kid in her body.

> >

> > Kassiane,

> > sick of being polite for the comfort of others

> >

> > --- nevaehlopez6 wrote:

> >

> > > I am just trying to be real... You can speak to

> > any

> > > parent that has

> > > just found out the their child has autism and

> they

> > > can tell you that

> > > to THEM at the moment it is the worst thing that

> > can

> > > happen and they

> > > want to " fix " it.

> > >

> > > For me... Autism is very different. My daughter

> > was

> > > walking, talking

> > > smiling, blowing kisses and then EVERYTHING

> > STOPPED!

> > > As a parent you

> > > want to get this little girl back and you try

> > > everything in your

> > > power to do that.

> > >

> > > Trust me I know now that autism is not the worst

> > > thing in the world,

> > > but it is the worst thing in my world to know

> that

> > > if something ever

> > > happens to me right now my daughter would not be

> > > able to dress

> > > herself in the morning or tie her shoes by

> > herself,

> > > wash her hair. So

> > > to me in MY world it is the worst. I love my

> > > daughters and I wouldn't

> > > change them for the world, but I cannot lie to

> you

> > > and say that if

> > > their was a cure for autism I wouldn't be the

> > first

> > > in line to get

> > > it. And I will do anything to prevent my 14

> month

> > > old daughter from

> > > suffering like Nevaeh has.

> > >

> > > >

> > > > Kassi,

> > > >

> > > > Oops, sorry I focused just on that one post.

> > But,

> > > I do see that

> > > there was a general thing going on.

> > > >

> > > > You really did touch on something that's an

> > issue

> > > for parents vs.

> > > the person who actually has autism. Parents

> feel

> > > it's our duty

> > > to " fix " everything while the person affected

> just

> > > sees it as a part

> > > of themselves and probably would be offended

> > > thinking all these

> > > people are walking around trying to " fix " it.

> > When

> > > I look at my

> > > girls I can see aspects of their personality

> that

> > > probably really are

> > > attached to their autism. And I wouldn't ever

> > want

> > > those things to

> > > change in them. For instance, they're both so

> > naive

> > > and innocent.

> > > It's really sweet.

> > > >

> > > > My mom has bipolar disorder and there are very

> > > wonderful things

> > > about who she is that are actually probably part

> > of

> > > the disorder.

> > > It's hard to balance all that good with all the

> > bad

> > > that comes with

> > > it. But in her case it's very clear that you

> have

> > > to do away with

> > > the bad or the quality of her life suffers

> > terribly.

> > > I suppose I

> > > keep my eye out for those sorts of things in

> > autism

> > > too.

> > > >

> > > > Re: Re: Autism:

> To

> > > Vaccinate Or Not to

> > > Vaccinate

> > > >

> > > > Debi isn't who I was referring to. It's the

> > > general

> > > > attitude. That wasn't even the email I was

> > > responding

> > > > to.

> > > >

> > > > [Non-text portions of this message have been

> > > removed]

> > > >

> > >

> >

>

________________________________________________________________________________\

____

> > Be a better pen pal.

> > Text or chat with friends inside Yahoo! Mail. See

> > how. http://overview.mail.yahoo.com/

> >

>

> Rebekah Phil 4:8 & #10084;

>

________________________________________________________________________________\

____

> Be a better sports nut! Let your teams follow you

> with Yahoo Mobile. Try it now.

>

http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

December 3, 2007

Hell no I wouldn't take it. I wouldn't be me. I'd be

off dumbing myself down fooling around with makeup,

have had much sex in high school like my " peers " ,

hidden my brains and opinions to fit the norm.

The norm was NOT A PERSON I WANT TO BE.

The norm is an intolerant human being who is taught

that a woman is an object that happens to have a

mouth. This is NOT ME. I DON'T WANT IT to be me.

If there was a magic pill that would make you a man,

would you take it? Cuz that's basically what you're

saying: " Let'sc cut out a HUGE part of your identity

and CHANGE IT to make people less uncomfortable in

certain situations and make your earning power

better! "

Sure, and let's dye the whole rainbow yellow.

Here are some blog entries my friend wrote on

the subject:

http://ballastexistenz.autistics.org/?p=218 <-Hey

Watch It, That's Attached

http://ballastexistenz.autistics.org/?p=57 <-Why Do

You Think I Must Want to Be Like You?, originally

addressed to " aspie supremacists " who feel that

everyone else is just like them with a bunch of

comorbidities, but the message rather applies to

people who assume that autistic people are defective

NTs, too.

Her whole blog is good, really. So is the info library

at autistics.org. My blog is infrequently updated, but

plainly anticure.

I don't want to be anything but what I am. If God

doesn't make junk, why are people so hellbent on

convincing me that's what I am?

Kassiane

--- Albrecht Rebekah wrote:

> I am new hear so excuse me being a bit naive on this

> issue.

>

> Why does it seam like the women that have autism are

> very sensitive to any words that imply like we

> parents

> want to " change " our daughters?

>

> To be frank, I would do anything to help my daughter

> be a " typical " little girl. That doesn't mean I

> love

> her less. I just want the best for her and for her

> life. For her to have the " best " she needs to be

> able

> to function in this world. Especially since I won't

> be always here to take care of her.

>

> Why is this such a sensitive issue?

>

> If there was a magic pill that would help you

> function

> NT, wouldn't you take it? You would still be the

> same

> person underneath.

>

> Rebekah

> I just don't understand......

> --- Kassi wrote:

>

> > It's the same little girl. There's just a new

> label

> > on

> > her.

> >

> > Can't cure me without fundamentally changing who I

> > am.

> > Unless you're doing that sloppy language thing

> where

> > you say " autism " but mean " everything that bothers

> > me

> > about my kid, most of which isn't autism at all " .

> >

> > Catastrophizing much? Your daughter will never tie

> > her

> > shoes so this is the worst thing ever?

> >

> > Perspective, it's our friend, and I hope to God

> that

> > your kid doesn't know you are so desperate for

> > another

> > kid in her body.

> >

> > Kassiane,

> > sick of being polite for the comfort of others

> >

> > --- nevaehlopez6 wrote:

> >

> > > I am just trying to be real... You can speak to

> > any

> > > parent that has

> > > just found out the their child has autism and

> they

> > > can tell you that

> > > to THEM at the moment it is the worst thing that

> > can

> > > happen and they

> > > want to " fix " it.

> > >

> > > For me... Autism is very different. My daughter

> > was

> > > walking, talking

> > > smiling, blowing kisses and then EVERYTHING

> > STOPPED!

> > > As a parent you

> > > want to get this little girl back and you try

> > > everything in your

> > > power to do that.

> > >

> > > Trust me I know now that autism is not the worst

> > > thing in the world,

> > > but it is the worst thing in my world to know

> that

> > > if something ever

> > > happens to me right now my daughter would not be

> > > able to dress

> > > herself in the morning or tie her shoes by

> > herself,

> > > wash her hair. So

> > > to me in MY world it is the worst. I love my

> > > daughters and I wouldn't

> > > change them for the world, but I cannot lie to

> you

> > > and say that if

> > > their was a cure for autism I wouldn't be the

> > first

> > > in line to get

> > > it. And I will do anything to prevent my 14

> month

> > > old daughter from

> > > suffering like Nevaeh has.

> > >

> > > >

> > > > Kassi,

> > > >

> > > > Oops, sorry I focused just on that one post.

> > But,

> > > I do see that

> > > there was a general thing going on.

> > > >

> > > > You really did touch on something that's an

> > issue

> > > for parents vs.

> > > the person who actually has autism. Parents

> feel

> > > it's our duty

> > > to " fix " everything while the person affected

> just

> > > sees it as a part

> > > of themselves and probably would be offended

> > > thinking all these

> > > people are walking around trying to " fix " it.

> > When

> > > I look at my

> > > girls I can see aspects of their personality

> that

> > > probably really are

> > > attached to their autism. And I wouldn't ever

> > want

> > > those things to

> > > change in them. For instance, they're both so

> > naive

> > > and innocent.

> > > It's really sweet.

> > > >

> > > > My mom has bipolar disorder and there are very

> > > wonderful things

> > > about who she is that are actually probably part

> > of

> > > the disorder.

> > > It's hard to balance all that good with all the

> > bad

> > > that comes with

> > > it. But in her case it's very clear that you

> have

> > > to do away with

> > > the bad or the quality of her life suffers

> > terribly.

> > > I suppose I

> > > keep my eye out for those sorts of things in

> > autism

> > > too.

> > > >

> > > > Re: Re: Autism:

> To

> > > Vaccinate Or Not to

> > > Vaccinate

> > > >

> > > > Debi isn't who I was referring to. It's the

> > > general

> > > > attitude. That wasn't even the email I was

> > > responding

> > > > to.

> > > >

> > > > [Non-text portions of this message have been

> > > removed]

> > > >

> > >

> >

>

________________________________________________________________________________\

____

> > Be a better pen pal.

> > Text or chat with friends inside Yahoo! Mail. See

> > how. http://overview.mail.yahoo.com/

> >

>

> Rebekah Phil 4:8 & #10084;

>

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>

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December 3, 2007

But wouldn't you want to overcome whatever disabilities came along

with the autism? I don't know how severe your autism has ever been,

but at least you can write about it and share how you feel when people

keep wanting to change you. To whatever extent autism holds you back,

wouldn't you like to be able to overcome it?

When I told my daughter about her autism, I told her it was neither

good nor bad, just a fact about herself, like having green eyes and

brown hair. But we will never stop pushing her to be the best she can

be, and that means improving her communication skills and controlling

her emotions better. To do anything less for her would be a

disservice.

December 3, 2007

But wouldn't you want to overcome whatever disabilities came along

with the autism? I don't know how severe your autism has ever been,

but at least you can write about it and share how you feel when people

keep wanting to change you. To whatever extent autism holds you back,

wouldn't you like to be able to overcome it?

When I told my daughter about her autism, I told her it was neither

good nor bad, just a fact about herself, like having green eyes and

brown hair. But we will never stop pushing her to be the best she can

be, and that means improving her communication skills and controlling

her emotions better. To do anything less for her would be a

disservice.

December 3, 2007

A lot of people can write about it. All that means is

we can write. Did you read what I posted? Click on the

link about autistic Aug Comm users and note all the

people who DON'T SPEAK who express themselves just

fine.

Severe is a stupid word in autism. I don't know left

from right. I ace standardized tests. I can't cook,

which is fine because I have food allergies. I can

ride in a plane alone. If the schedule changes, all

hell breaks loose. I've been published. My sensory

issues are to the extreme. I've won numerous

gymnastics awards. The only reason I didn't get kicked

out of school was I did so well on standardized tests

so they needed my numbers. I've got epilepsy like

woah, strabismus, migraines, piss poor fine motor

skills. I can break down gymnastics skills into their

smallest parts and explain them.

In short, taking one part out brings WHO I AM crashing

down. You think taking away perseveration would leave

the perseveration on how gymnastics works and

therefore my one consistently marketable skill if I

ever get my foot fixed? No. Because girls my age DON'T

DO GYMNASTICS anymore. People in general don't tear

basic skills apart like a frame by frame video to

improve the skill--5 gyms say they've never seen

anything like it.

That's an example.

The sensory issues--I don't get dizzy. Take that away

and you take away my easy success in tumbling, which

lead to the above. Everything is connected.

Try reading the blog I linked to, k? I don't dig stuff

up for shits and giggles, am having trouble breathing,

and am sick of having to defend my existence AND the

existence of yalls children.

ESPECIALLY SINCE NO WHERE DID I SAY DON'T HELP. I SAID

CONVINCING PEOPLE THEYRE BROKEN SUCKS.

At a conference I did not ONE autistic adult thought

they were broken. 20% of the non autistics did. None

of the adult autistics had been subjected to the

current rhetoric however.

I am not toxic, a tragedy, an epidemic, broken, junk,

garbage, a waste of resources, or in need of drastic

changes to be acceptable. Read it on that blog, read

it on 99% of autistic blogs out there.

So, I ask you, ARE WE GOD'S MISTAKES?

Cuz I was told God doesn't make mistakes.

I hope you dont see your child as a mistake. And I

hope she doesn't see herself as a mistake.

Kassiane

now go read the damn blog, I didn't dig it up for MY

health

--- Tita wrote:

> But wouldn't you want to overcome whatever

> disabilities came along

> with the autism? I don't know how severe your

> autism has ever been,

> but at least you can write about it and share how

> you feel when people

> keep wanting to change you. To whatever extent

> autism holds you back,

> wouldn't you like to be able to overcome it?

>

> When I told my daughter about her autism, I told her

> it was neither

> good nor bad, just a fact about herself, like having

> green eyes and

> brown hair. But we will never stop pushing her to

> be the best she can

> be, and that means improving her communication

> skills and controlling

> her emotions better. To do anything less for her

> would be a

> disservice.

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

December 3, 2007

A lot of people can write about it. All that means is

we can write. Did you read what I posted? Click on the

link about autistic Aug Comm users and note all the

people who DON'T SPEAK who express themselves just

fine.

Severe is a stupid word in autism. I don't know left

from right. I ace standardized tests. I can't cook,

which is fine because I have food allergies. I can

ride in a plane alone. If the schedule changes, all

hell breaks loose. I've been published. My sensory

issues are to the extreme. I've won numerous

gymnastics awards. The only reason I didn't get kicked

out of school was I did so well on standardized tests

so they needed my numbers. I've got epilepsy like

woah, strabismus, migraines, piss poor fine motor

skills. I can break down gymnastics skills into their

smallest parts and explain them.

In short, taking one part out brings WHO I AM crashing

down. You think taking away perseveration would leave

the perseveration on how gymnastics works and

therefore my one consistently marketable skill if I

ever get my foot fixed? No. Because girls my age DON'T

DO GYMNASTICS anymore. People in general don't tear

basic skills apart like a frame by frame video to

improve the skill--5 gyms say they've never seen

anything like it.

That's an example.

The sensory issues--I don't get dizzy. Take that away

and you take away my easy success in tumbling, which

lead to the above. Everything is connected.

Try reading the blog I linked to, k? I don't dig stuff

up for shits and giggles, am having trouble breathing,

and am sick of having to defend my existence AND the

existence of yalls children.

ESPECIALLY SINCE NO WHERE DID I SAY DON'T HELP. I SAID

CONVINCING PEOPLE THEYRE BROKEN SUCKS.

At a conference I did not ONE autistic adult thought

they were broken. 20% of the non autistics did. None

of the adult autistics had been subjected to the

current rhetoric however.

I am not toxic, a tragedy, an epidemic, broken, junk,

garbage, a waste of resources, or in need of drastic

changes to be acceptable. Read it on that blog, read

it on 99% of autistic blogs out there.

So, I ask you, ARE WE GOD'S MISTAKES?

Cuz I was told God doesn't make mistakes.

I hope you dont see your child as a mistake. And I

hope she doesn't see herself as a mistake.

Kassiane

now go read the damn blog, I didn't dig it up for MY

health

--- Tita wrote:

> But wouldn't you want to overcome whatever

> disabilities came along

> with the autism? I don't know how severe your

> autism has ever been,

> but at least you can write about it and share how

> you feel when people

> keep wanting to change you. To whatever extent

> autism holds you back,

> wouldn't you like to be able to overcome it?

>

> When I told my daughter about her autism, I told her

> it was neither

> good nor bad, just a fact about herself, like having

> green eyes and

> brown hair. But we will never stop pushing her to

> be the best she can

> be, and that means improving her communication

> skills and controlling

> her emotions better. To do anything less for her

> would be a

> disservice.

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

December 3, 2007

I think it's a complex issue. From what I get, and this is what I get,

people with autism who say " accept, don't change " have met

parents/people who obsess over every insignificant aspect of autism,

like freaking out when their kid flaps from excitement or makes a

guttural sound when she's enjoying a tv program. On the flip side,

some people with autism don't get that autism is not just a state of

being, it's *also* a set of clinical symptoms, such as diarrhea,

seizures, inability to speak, motor delays, cognitive processing.

The fact is, there's good & bad in every condition. My friend with

breast cancer learned to trust in God, have patience, endurance, etc.

Is breast cancer who she is? Difficult to say, it's a part of her. She

now processes information from the result of a new way of thinking

after her condition. Doe she wish she had never had breast cancer? Yes

and no. She has come to appreciate the experience and positive

changes, while wishing she looked different naked.

If metals/virus/bacteria/what ever alters the way one would have

existed, does it change who the person was? Yes. Is that person still

the same? Yes and no.

The other issue that we all need to understand, imo, is that none of

us can look at it from the back end. In other words, if when getting

my daughter's diagnosis at 23 mos I could have had a report saying if

I do/don't do the following she will be a happy, independent,

well-adjusted adult, then we could all kick back, pop a top and call

it a day. But that's not the case. When my daughter was diagnosed, I

didn't know if she would ever be potty trained. Is that the end of the

world? Well, no, but it sure is a bad thing. Not because someone who

isn't potty trained is bad, but because it makes life more difficult

for the person & everyone around them. Reasons? Odor and health. I sat

in front of an adult female with autism at an event and she stunk to

high heaven from defecating in her diaper. It wasn't about ME it is

about health. Having crap running down one's legs, chronic bladder

infection, etc, is not a good thing. And it is very isolating for

people around her, because I wouldn't want to be around someone with

fecal odor any more than someone with autism & extreme food aversions

would want to be forced to eat broccoli.

If I could know at age 8 that if I do/don't do x-y-z Allie will learn

enough math to be a functioning, independent, happy adult, then I

could kick back & follow the report. But I don't have that, so I'm

left doing what I can, doing nothing, and she will/will not learn

functional math skills.

It's parents' jobs to do this for ANY of our kids. We don't know the

future. So we must do what we can to *help* our kids. Yes, there is a

message people with autism who don't believe in treating autism need

us to hear, IMO, and that is through helping show respect and dignity

to our kids. Listen to them. As they age, allow them to have more

control over their own issues, just like we would with typical kids.

Show respect for who they are. Like with Allie, she gets IV chelation.

The ND crowd have told me I'm torturing her, abusing her, etc. Yet she

ASKS for the IV every 8 days after the last one. She was crying for it

last week. I told her going in if she would give it 3 months then we'd

stop if she didn't wanna do it any more. That's where I showed her

some respect for her body and her wishes, while helping her. She is

dumping metals like mad, and even better, has finally started growing

and getting healthy. But according to ND people, there's no way my

daughter would ever ask for such a thing or want it, I simply must be

torturing her and that I'm imagining her foot growing for the first

time in 5 yrs. What ever.

I cannot respect my child by *not* helping heal her body. And, often,

the autism decreases when the symptoms of autism are addressed. That's

not my fault, that's who she is when she's healthy.

Debi

>

> I am new hear so excuse me being a bit naive on this

> issue.

>

> Why does it seam like the women that have autism are

> very sensitive to any words that imply like we parents

> want to " change " our daughters?

>

December 3, 2007