[Guest guest]

In a message dated 2/25/07 3:16:53 P.M. Eastern Standard Time,

Csvillars@... writes:

Make a game where the goal is to drink what

you have and start with small cups and glasses and then work up to regular

size. :-)

Great idea, Carol. I think that is just what I need to do. I am going to

try that tomorrow. I received a special cordial glass that looks like a very

small wine glass. It has an M on it. I never use it. I am going to give it

to him as his special glass.

Blessings, W

in CT

homeschooling mom to AJ (12), (8), ^l^, (5,

Trisomy 18 mosaic aka syndrome) and Birgitta (age 3, adoption

finalized 2/1/05 !!, Trisomy 21 aka Down's Syndrome, Fetal Alcohol Syndrome,

Autism, SID )

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[Guest guest]

Hi ,

Yep, SA keeps growing as you have noticed, everyone does fall in love

and decides to stay. The hwys. will still not be able to accommodate

everyone as you also noticed all the construction going on.

I remember back in 1984 when I use to work out at the airport coming

from the NW side of town, early about 5:00 am in the morning, I was

about the only one on the road.

Now when I take my dh to the airport, at that hour everyone is awake

if you know what I mean? My husband has to commute to GA.

I could picture SA benefiting like those transportation that Dallas

has or in our dream like those Monorails that Las Vegas has.

I live by the medical center area (NW).

I recently told my dh that as time goes on when is out of

school we might have to move as several agencies (Adult day

program/Adult Day care/private school)are coming aboard and many

would like to have aboard as part of the pilot which I was

told as my friends and I have begun an adult support group.

This coming Thurs or Fri one of the behavior specialist would like to

meet with me to discuss further plans with this baby.

Its just wonderful that many are asking to join in to learn and hear

what parents are looking for? It is time for some changes here in SA.

Glad y'all had a nice visit and things worked out at the airport

especially while traveling with your daughter.

Yep, love the food.

Irma,18,DS/ASD

>

> Hi Irma,

>

> Me daughtrer and I had a great time in San . It has changed

so much.

> The food is still great to. We missed being there so much that we

decided to

> move back. It felt so good to be there. I think I drove over 400

miles in the

> 3 days I was there. What part of town do u live on? We should have

left

> Sunday morning but the flight was over booked so they asked us if

we wanted to

> give up our seats for a later flight and they would give us 2 free

round trip

> tickets for doing it. We did .. so now we can go back anytime we

want!!

>

>

[Guest guest]

is verbal, but just one or two words at a time never full sentences.

Viola:

Im just curious how many of you on this group have children that are TOTALLY

non-verbal??Im just curious how many of you on this group have children that

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[Guest guest]

is 7 1/2 and is totally non verbal.

Patty

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[Guest guest]

In a message dated 3/12/2007 2:08:26 PM Eastern Daylight Time,

christine1223@... writes:

Im just curious how many of you on this group have children that are TOTALLY

non-verbal???? My Haylee is five and does not say one word, just noises.

Birgitta will be 4 in April. She is pretty non verbal. She mutters a sound

(like bud-da) when we do the Itsy Bitsy Spider song so my guess is that

means spider. Other than that she has no other distinct sounds, just

ba-ba-ba-ba

all the time.

Blessings, W

in CT

homeschooling Mom to AJ (12), (8), ^l^, (5,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 3, adoption

finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome,

Autism, SID)

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[Guest guest]

In a message dated 3/12/2007 5:58:45 P.M. Eastern Daylight Time,

mthurz@... writes:

He is non-verbal. Can sometimes get out no and tries to approximate words

with soundes...such as Mommy and daddy...they sound the same..they both

come out EEEEEEEEEE.

This sounds so familiar!!! Trisha picked up on the " eeee " sound on words

like mommy, baby movie etc. We started stressing the beginning sound more to

help her hear that as without thinking we tended to stress the ending sound

more and with her hearing loss she was totally missing out on the beginning

sounds and still does for the most part unless we remember to stress the

beginning sounds as well. Some sounds she will probably never hear correctly

and we

still have to decipher which eee sounds go with what words. Oh and words

like Becky or monkey she says eeeys.

The more words she tries to say the more we are seeing processing problems.

For instance today she wanted more mashed potatoes and here is how her

request went:

Trisha: mama, mama, I, I want, I, I, I want, I, I want and then she

signs mashed potatoes. It's like she keeps repeating whatever she is trying to

say until it clicks or something.

Carol

Trishasmom

She isn't typical, She's Trisha!

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[Guest guest]

,

My little twin grandsons (Matt and Will) will be 3 August 30th and they say

NOTHING !!! When Will was about 14 months old he could count and say his ABC " S

but he has lost it all. I have never heard Matt say a word. I visited their

daycare last Tuesday and I ask their teacher if they had said anywords and she

said NOT A WORD !!!

,

Granny to Matt and Will

---------------------------------

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[Guest guest]

Hi ~

My Dylan is totally non-verbal, he is going to be 12 in May. Other than an

occasional *what sounds like* " yeah " there are no words. Just grunting &

yelling.

Becky

wrote:

Im just curious how many of you on this group have children that are

TOTALLY non-verbal???? My Haylee is five and does not say one word, just noises.

[Guest guest]

My son Colton is eight.

He is non-verbal. Can sometimes get out no and tries to approximate words

with soundes...such as Mommy and daddy...they sound the same..they both

come out EEEEEEEEEE.

stamtorch@...

Sent by:

03/12/2007 04:56 PM

Please respond to

To

cc

Subject

Re:

In a message dated 3/12/2007 2:08:26 PM Eastern Daylight Time,

christine1223@... writes:

Im just curious how many of you on this group have children that are

TOTALLY

non-verbal???? My Haylee is five and does not say one word, just noises.

Birgitta will be 4 in April. She is pretty non verbal. She mutters a sound

(like bud-da) when we do the Itsy Bitsy Spider song so my guess is that

means spider. Other than that she has no other distinct sounds, just

ba-ba-ba-ba

all the time.

Blessings, W

in CT

homeschooling Mom to AJ (12), (8), ^l^,

(5,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 3, adoption

finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol

Syndrome,

Autism, SID)

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email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

[Guest guest]

well i feel a little better knowing were not the only ones without words.

sometimes you feel alone and that youre the only one in the world that has a

child that doesnt speak.

it would be great if we all lived close to eachother!

Re:

,

My little twin grandsons (Matt and Will) will be 3 August 30th and they say

NOTHING !!! When Will was about 14 months old he could count and say his ABC " S

but he has lost it all. I have never heard Matt say a word. I visited their

daycare last Tuesday and I ask their teacher if they had said anywords and she

said NOT A WORD !!!

,

Granny to Matt and Will

---------------------------------

Need Mail bonding?

Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

[Guest guest]

In a message dated 3/12/2007 12:29:47 P.M. Central Standard Time,

ViPorier@... writes:

Im just curious how many of you on this group have children that are TOTALLY

non-verbal

nathan is 15 and prabably started really talking around 9-10 years of age,

big year that was, lol, other than echolalia he didn't talk to us but he has

since then , doesn't carry a conversation by any means but does talk, usually

no more than a few words at a time, he still echoes the tv in the evening and

occasionally echoes us when we talk to him, but when he does that i usually

change my wording so as to get an answer from him. when he is playing the xbox

with his brother, or is at the drop in center with others with disabilties,

i do believe he plays the playstation there with some other teenage disabled

boys, and they dont shut up apparently to his helper, they laugh and tease

the whole teen boy works. i may see if i can get her to tape it sometime, lol

shawna

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[Guest guest]

In a message dated 3/12/2007 5:26:07 P.M. Central Standard Time,

pastmidvale@... writes:

We get alot of hesitant speech (stuttering, repieat of partial phrase) as

well.

pronunciations are often difficult to understand, sometimes it can take a

while for use to figure out what nathan is saying, when we do we help him learn

how to say it a little clearer, and we let those who work with him know too

what that word sounds like when he says it, so he doesn't get frustrated and

shut down. shawna

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[Guest guest]

We get alot of hesitant speech (stuttering, repieat of partial phrase) as

well.

Sara - Choose to make lemonade, not complain about the lemons.

>From: Csvillars@...

>Reply-To:

>To:

>Subject: Re:

>Date: Mon, 12 Mar 2007 18:07:17 EDT

>

>

>In a message dated 3/12/2007 5:58:45 P.M. Eastern Daylight Time,

>mthurz@... writes:

>

>He is non-verbal. Can sometimes get out no and tries to approximate words

>with soundes...such as Mommy and daddy...they sound the same..they both

>come out EEEEEEEEEE.

>

>

>

>This sounds so familiar!!! Trisha picked up on the " eeee " sound on words

>like mommy, baby movie etc. We started stressing the beginning sound more

>to

>help her hear that as without thinking we tended to stress the ending

>sound

>more and with her hearing loss she was totally missing out on the

>beginning

>sounds and still does for the most part unless we remember to stress the

>beginning sounds as well. Some sounds she will probably never hear

>correctly and we

>still have to decipher which eee sounds go with what words. Oh and words

>like Becky or monkey she says eeeys.

>

>The more words she tries to say the more we are seeing processing

>problems.

>For instance today she wanted more mashed potatoes and here is how her

>request went:

>

>

>Trisha: mama, mama, I, I want, I, I, I want, I, I want and then she

>signs mashed potatoes. It's like she keeps repeating whatever she is

>trying to

>say until it clicks or something.

>

>

>Carol

>Trishasmom

>She isn't typical, She's Trisha!

><BR><BR><BR>**************************************<BR> AOL now offers free

>email to everyone. Find out more about what's free from AOL at

>http://www.aol.com.

>

>

>

[Guest guest]

One good thing - since Elie assumes everyone else is stupid, he will repeat

and repeat and repeat until we get it. (OR is that perseverative

behavior???) We like to think that this shows he is able to be patient!!!

:`)

Sara - Choose to make lemonade, not complain about the lemons.

>From: sewshawna@...

>Reply-To:

>To:

>Subject: Re:

>Date: Mon, 12 Mar 2007 22:14:19 EDT

>

>

>In a message dated 3/12/2007 5:26:07 P.M. Central Standard Time,

>pastmidvale@... writes:

>

>We get alot of hesitant speech (stuttering, repieat of partial phrase) as

>well.

>

>

>

>pronunciations are often difficult to understand, sometimes it can take a

>while for use to figure out what nathan is saying, when we do we help him

>learn

>how to say it a little clearer, and we let those who work with him know too

>what that word sounds like when he says it, so he doesn't get frustrated

>and

>shut down. shawna

><BR><BR><BR>**************************************<BR> AOL now offers free

>email to everyone. Find out more about what's free from AOL at

>http://www.aol.com.

>

>

>

[Guest guest]

>

> well i feel a little better knowing were not the only ones without

words. sometimes you feel alone and that youre the only one in the

world that has a child that doesnt speak.

> it would be great if we all lived close to eachother!

> > ---------------------------------

>

, my son is about to turn 15 and is pretty much non-

verbal. Once in a great while he says a word, then we don't hear it

again for months. We just bought him a fairly simple communications

device. He does sign a few things, but many times gets them confused

(tries one after the other until he gets the right one). Most of the

time we just hear noises.

You're definitely not alone. We live in Kansas City.

[Guest guest]

In a message dated 3/12/2007 2:08:59 P.M. Eastern Daylight Time,

christine1223@... writes:

Im just curious how many of you on this group have children that are TOTALLY

non-verbal??Im just curious how many of you on this group have children t

Hello,

My son, , age 15, DS/Autism is totally non-verbal. He uses basic sign

language and some PECS. I have learned through some body language other

needs. I'd say that he communicates rather well, however, this is mostly known

to close family members. Others outside the family wouldn't know how he

modified certain signs. I keep the school informed on these changes and all

runs

smoothly.

We took to speech therapy privately and through Wrap Around services

and Easter Seals. He never progressed during any of these sessions further

than blowing bubbles. He tried very hard and his frustrations led to bad

behaviors, all of which became a part of the therapy session. Soon, all we

were

doing is going through the motions in the session to gain control of his

behaviors.

At age 5, during one of these sessions, I was in my usual place, behind the

two-way mirror. went through his usual ritual, but near the end of the

session the therapist had him in front of the mirror, which was also his

usual place to be, and she said, " say baby " . started saying it as plain

as day. Over and over again he said it like he had been saying it for years.

He was running back and forth in front of the mirror saying this. Then she

said, " say Barney " . He did the same with that word. Then she said, " say

mommy " . He said that word also. He said these words really fast, one right

after the other. I cried like a baby.

We went home and purchased mirrors to be lined up along the wall in his toy

room. I sat for many a day saying those words over and over. He never said

them or any other word again.

I saw in that brief moment in time, that everything physically worked on

. He was able to say those words perfectly. The DS, to me is so

secondary. The autism robs my son of all the other things life could hold for

a

person with DS.

For me, accepting that my son may never actually speak for communication has

freed my time up to learn other methods for communication to help my son.

will always need to be supervised for his safety. I feel his life is

much better now that we have progressed past the " bubble blowing " days. He

seems very eager to learn new signs that really mean something to him.

We were at a birthday party recently. I was across the room and I signed

bathroom to . He shook his head " no " . Not many other mothers were able

to do that as discretely as I was able to!!

Take care,

Judy

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[Guest guest]

After reading how many of the children are totally nonverbal, I feel

grateful that speaks in one or 2 words at a time, I don't think I will

complain

as much that they are not full sentences anymore. You learn when you have a

special ed child that it could always be worse don't you? And to count your

blessings!

Viola

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[Guest guest]

my daughter is picking up signs very slowly, she is nonverbal adn we communicate

mostly through body language.

Re:

After reading how many of the children are totally nonverbal, I feel

grateful that speaks in one or 2 words at a time, I don't think I will

complain

as much that they are not full sentences anymore. You learn when you have a

special ed child that it could always be worse don't you? And to count your

blessings!

Viola

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[Guest guest]

Sara, Thanks for the wonderful compliment. I too have those days

when I want to hide under the covers and not come out.It saddens me

that all of us have to go through the things we do. Life should not

be this hard. Again thanks for the uplifting message. B

>

> : what a wonderful source of support you are!

>

> If ever there is any doubt as to what this list is about, the lsst

few days

> have proven it. To lift each other when the load is too heavy -

what better

> support can we give each other.

>

>

>

> Sara - Choose to make lemonade, not complain about the lemons.

>

>

>

>

>

> >

> >Reply-To:

> >To:

> >Subject: Re: My world is crashing in on me...

> >Date: Mon, 19 Mar 2007 12:57:28 -0000

> >

> >Liz, I know exactly how you feel.For the first 14 yrs of our

> >marriage my husband had a stable job that he could never move up

> >with.I talked him into finding another job so we could much

> >financially.Now it seems he is at a job no longer than 3-4 yrs at

a

> >time before he loses it.He was out of work 6 months in 2003 and

then

> >got typhoid fever and almost dieds.Financially we have not

recovered

> >and make to much money for any kid of assistance.I was a loan

> >officer for years and this is what I suggest with your

> >finances.Write all of your outgoing expenses down on paper.Seeing

it

> >in front of you helps visualize a strategy.See what you absolutely

> >do not have to have and get rid of it.Do not be ashamed to go to a

> >credit counsler they can help set up payments that you can afford

to

> >get you back on track.People are so afraid to file backrupt but in

> >the eyes of a lender it is no worse that repossion.In fact you

could

> >still file a chapter 13 (reorganize debts) and possibly get your

> >truck back.We had a cleaning bus. that went belly up and had to

file

> >in 1992.It took 4 yrs to pay off and a total of 7 yrs from the

date

> >it was filed to come off our credit report.Two yrs into this type

of

> >bankruptcy we bought a house buy going FHA.A letter from the

> >bankruptcy court stating we have paid everything as agreed was

used

> >to help us buy the house.As for your husband.Well " men " just seem

to

> >clam up and crawl into a shell when hell breaks loose.Good

providers

> >but not good at solving problems.I think all marriages at time go

> >through that " roommate " or " housemate " problem.All you can do is

try

> >to make the best of things and go on with your life.Marriage is a

2

> >way street and let him know how you miss the times when you were

in

> >your " honeymoon years " .Men forget that we still want to be treated

> >like girlfriends and lovers even after we become mothers.Been

there

> >done that.This morning did not want to get up and I had to

> >carry him out of his room and to the stairs.There are only a few

> >mornings that I have to get him off to school but it kills me when

> >he doe not cooperate.I told my husband and he said I do not know

> >what you want from me.I cannot be here every morning.I know this

but

> >there is going to come a day when I cannot do this with and I

> >do not what I am going to do.Life should not be this hard.Liz tie

a

> >knot in your rope and hold on.I do this almost everyday.Just know

> >you are not alone. If he is a willing soul maybe counseling would

> >help, you could try that.Have a great day. Cyndi B

> > >

> > > Please accept my apology...I know I have been absent from here

for

> >a bit. So much has been going on. And I don't want to burden you

> >all with our problems, but I need a shoulder.

> > >

> > > Our finances are the suckiest in the world still. The bank

> >repossessed my truck on the 6th...we are looking to switch Tori

over

> >to a life skills class to see if the smaller, self-contained

> >classroom does her better. I just hate life the way it is.

Anyway,

> > >

> > > Tori started bowling today with Sport for Special Kids and DH

took

> >a major nose dive on me today. He just about shut down totally on

> >me. When he finally was able to talk earlier this evening, he

> >asked " where are we going to be in 5 or 10 years? " , and are " you

> >ever happy? " " This isn't what we asked for. " OMG, I couldn't

> >believe my ears. It devastated me to no end. I told him I had to

> >take one day at a time, and that's all I can do. We don't seem to

> >have a marriage anymore, just a housemate type of relationship.

We

> >never get alone time-and if & when we do, even for a few short

> >moments, there always seems to be a crisis brewing. I am someone

> >who takes things head on and does the best I can in the situation.

> >I am outgoing and I am thankful for what I have. Mike is more of

a

> >loner, very analytical and I think that seeing the batch of kids

at

> >bowling just set him in a major depression. We talked and he says

> >we are 2 different types of people; I try to make the best of

> >everything and he just sees the worst of everything. I mentioned

> >counseling, but don't know quite sure as to what type? Family????

> >Any suggestions would be greatly appreciated. Our 2 older girls

are

> >moving on so well with their lives, and we are " stuck " as he put

> >it. I just don't know where to turn?

> > >

> > >

> > > Liz (aka MOM)

> > >

> > > " Trust your hunches. They're usually based on facts filed away

> >just below the conscious level. "

> > > - Dr. Joyce

Brothers

> > >

> > >

> > >

> > >

[Guest guest]

In a message dated 3/22/2007 12:21:26 PM Eastern Daylight Time,

mfroof@... writes:

We later realized he was traumatized at an airport restroom when they

first came out with the automatic flushing toilets

My older daughter always left the bathroom without flushing. It took some

time for us to figure out that she was afraid of the " flushing " sound.

Blessings, W

in CT

homeschooling Mom to AJ (12), (8), ^l^, (5,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 3, adoption

finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome,

Autism, SID)

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[Guest guest]

Hi Judy,

My name is Debbie and my son Trent age 6 and 1/2 is also completely

non-verbal. Trent was just dual-diagnosed almost one month ago

exactly after a whole lot of struggel, fighting and my not giving

up. It is with much happiness that I want to totally agrree with

your statement that accepting that this child will never speak for

communication can actually free up time for other forms of

communication. Yes, the DS is so secondary--- I knew in my heart

that to be true and although it was a painful and difficult journey,

so much for us and our son has changed in just the single month that

we have known for sure. I have a lot more to learn and Trent is

still so young. I am just grateful that I didnt give up and that I

am able to be part of this group so that when I need some support it

is here. I still havent posted a new introduction since the

diagnoses-- this is actually the first time I have checked in since

before Christmas.

Take care,

Debbie Olson, husband Dave,

Alysia(18), Chelsea(15), Harley(11), Kaitlyn(11),

Trent (6 1/2), Destanie (21months)

Gresham, Oregon

>

>

> In a message dated 3/12/2007 2:08:59 P.M. Eastern Daylight Time,

> christine1223@... writes:

>

> Im just curious how many of you on this group have children that

are TOTALLY

> non-verbal??Im just curious how many of you on this group have

children t

>

>

>

> Hello,

>

> My son, , age 15, DS/Autism is totally non-verbal. He uses

basic sign

> language and some PECS. I have learned through some body

language other

> needs. I'd say that he communicates rather well, however, this

is mostly known

> to close family members. Others outside the family wouldn't know

how he

> modified certain signs. I keep the school informed on these

changes and all runs

> smoothly.

>

> We took to speech therapy privately and through Wrap Around

services

> and Easter Seals. He never progressed during any of these

sessions further

> than blowing bubbles. He tried very hard and his frustrations led

to bad

> behaviors, all of which became a part of the therapy session.

Soon, all we were

> doing is going through the motions in the session to gain control

of his

> behaviors.

>

> At age 5, during one of these sessions, I was in my usual place,

behind the

> two-way mirror. went through his usual ritual, but near the

end of the

> session the therapist had him in front of the mirror, which was

also his

> usual place to be, and she said, " say baby " . started saying

it as plain

> as day. Over and over again he said it like he had been saying

it for years.

> He was running back and forth in front of the mirror saying

this. Then she

> said, " say Barney " . He did the same with that word. Then she

said, " say

> mommy " . He said that word also. He said these words really

fast, one right

> after the other. I cried like a baby.

>

> We went home and purchased mirrors to be lined up along the wall

in his toy

> room. I sat for many a day saying those words over and over. He

never said

> them or any other word again.

>

> I saw in that brief moment in time, that everything physically

worked on

> . He was able to say those words perfectly. The DS, to me

is so

> secondary. The autism robs my son of all the other things life

could hold for a

> person with DS.

>

> For me, accepting that my son may never actually speak for

communication has

> freed my time up to learn other methods for communication to help

my son.

> will always need to be supervised for his safety. I feel

his life is

> much better now that we have progressed past the " bubble blowing "

days. He

> seems very eager to learn new signs that really mean something to

him.

>

> We were at a birthday party recently. I was across the room and

I signed

> bathroom to . He shook his head " no " . Not many other

mothers were able

> to do that as discretely as I was able to!!

>

> Take care,

>

> Judy

>

>

>

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to everyone.

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>

>

>

[Guest guest]

" I am curious as to why the psych is giving Janie Seraquel and

Abilify?... "

The idea was to gradually replace the abilify with seroquel. I talked

to the psych again yesterday and she agreed to forget trying a

different atypical-antipsychotic for now and during Spring break we

will gradually work Janie off of the abilify. I told her I have to see

if we can get rid of the facial tics and I won't ever give her the

seroquel again because her reaction was so obviously bad. We will see

by removing the abilify if it was actually helping Janie or not based

on her behavior. If her behavior regresses, we can start it again or

try something else. I have not ever wanted to give her anything that

made her worse in any way. I keep a list of what she is taking, how

much, and when. I will update the list to include Janie's

reactions/responses to any changes.

My preference would be to deal with behavior issues through behavior

training, but I also realize that sometimes meds are needed in order

for the child to be calm enough to work with. I got omega-3 to try and

Rx for inositol powder. Have not found a pharmacy or health food store

around here that stocks it, so I am going to have to order it online.

Because of the cost I have not decided to try the Native Remedies

products yet. Of course the medical doctors recommend against anything

not FDA approved and tested (yet they seem to require things that

prove to have horrid longterm effects).

Aside from the meds issues, Janie will meet with her assigned behavior

therapist April 3rd. I will go prepared to ask a lot of questions

about her training, experience, and treatment plan and (Thank you,

Sara!) request a sensory evaluation. Janie is so precious I will do

whatever it takes to help her have the happiest, healthiest, and most

productive life possible.

P.

[Guest guest]

In a message dated 3/25/2007 8:27:40 PM Eastern Daylight Time,

mfroof@... writes:

I know you are worried about chemicals, but if some are depleted, then

you may have to add them back for her to function.

I am not totally against medication. My concern is that her brain has been

fried between her birth mothers alcohol and drug use. It typically takes 5

years for most of the body's systems to develop. I was hoping to hold out

until she was at least 5 (although I figure she is behind the " typical " 5

year).

But it looks like 4 will be our magic number.

Blessings, W

in CT

homeschooling Mom to AJ (12), (8), ^l^, (5,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 3, adoption

finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome,

Autism, SID)

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[Guest guest]

In a message dated 3/26/2007 9:41:26 AM Eastern Daylight Time,

mfroof@... writes:

Hi, Everyone........I forgot how young Birgitta was. I would not

put

a 5 y/o on Risperdal. 'Course, I say that, but I am not walking in your

shoes.

Take care, Everyone.

Margaret

She will be 4 next month. But she is very tiny and appears to be more like

a 1 year old. She just started getting taller and filling out.

Blessings, W

in CT

homeschooling Mom to AJ (12), (8), ^l^, (5,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 3, adoption

finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome,

Autism, SID)

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[Guest guest]

Hi All,

Hi Debbie. I live down the Gorge from you. I've been a member for

over a year, but only get to read posts every once in a while. Haven't

posted in a long time. My son Tanner is 7 and completely non-verbal. He

was diagnosed a year ago in August. I fought like mad to

get " something " . I knew he had more than just DS. I'd see other

children with DS and that mommy part of me knew Tanner was different.

Our whole world has changed since the diagnosis and the DS surely takes

a back seat to the Autism.

I've enjoyed reading your posts and so many others.

I didn't know their was a liquid melatonin. Melatonin has saved our

lives!!

Someone also mention head butting. Tanner grew out of that about 2

years ago. I'm so glad. He could really thrash his head.

Well, I think I'll check in more often. ) Lots of good info here.

Take Care,

Carollynn in WA state