- Page 2 - Health, Medicine and Natural Healing 12

December 16, 2006

>>>>I can really see it, thanks for your post. 's brother is 18

months and very high pitched.

We got a call from the teacher, they ALL, ALWAYS worry about her

earing. She had gone to a conference where they talked about DS and

autism and they said don't always assume autism get hearing checked.

The teacher said they rang a bell behind her and she didn't look for

it. Well, every screen we've gone to, has the same results, they said

she's just not testable, but the ABR showed she can hear as low as 20

decibles. No one gets it. No one ever seems to think that ds and

autism can exist together. Anyways, when you pointed out the high

pitched sounds, it made sense!

Prayes for the CT results!

>>>>>

,

Do they consider that the person can have autism and ds regardless of

hearing loss? Our has high frequency hearing loss along with his other

issues. It certainly doesn't mean he doesn't have autism. Tell them the real

test

is to stand behind the person and whisper their favorite food or obsession.

Bet that would get a response.

Karyn from WI, Mom to 17, 6, r 2, 2mo.

December 30, 2006

Yes it is the hardest thing we have ever had to deal with. God is all that has

kept us going!! I know that He never puts more on us than we are able to bear

with His help. It is so hard to look at our babies and wonder if they will ever

talk OR talk again. Our little precious Will could count to 3 and say ABC at 10

months old but it all left him. The therapiest keep telling us that since he did

talk we know it is in there so we just have to WORK WORK WORK with him to pull

it back out. But he hardly ever makes a sound now. He had rather be in a room by

himself.His eyes are very bad. He has to wear glasses, but he has been great

with them. Little Matt does make alot of sounds but not really any words. They

both do the hand flapping, they chew on EVERYTHING. They both are bad about eye

gouging and their sleeping pattern is very bad. They get up before 6 in the

morning and they MIGHT take a 45 minute nap in the afternoon,then you have to

wear them down at night to get them in

the bed by 10 or 11.So far they do not do the head banging. At about 18 months

they were into the bitting their hands and arms but I have noticed they have all

but stopped that.There is alot of foods they want eat because of it's texture.We

have had a very hard time with them wanting to play in their pop. We still have

to put the shirts on them that snap in the seat. That way they can't get their

hands in their pants. As I type this my heart breaks for them. I pray every day

they will improve and I know if it is God's will He can heal them. Whether He

chooses too will be up to Him. We will just have to keep the faith. I told my

son yesterday they are PRECIOUS no matter what the outcome. Please continue to

pray for us.

Love,

Nana

__________________________________________________

January 2, 2007

Thank you Margaret. Yeah, my Haylee does have a high tolerance for pain but at

the same time she is totally non-verbal so I worry about not knowing if they was

something wrong. I just get by usually going with what my gut is telling me

Thanks again for the info.

<<im just curious - how did you find out that Gareth didnt have any hip

sockets

left? >>

Hi, Everyone.........it was by pure chance that we found it 4 yrs

ago (Gareth was 14). He had been complaining that his right thigh and knee

hurt. So, when I had him in to see his PCD for another reason....probably

ears/throat, I mentioned it to him about G's complaining his leg hurt. He had

him go next door for hip/knee X-rays. He brought the X-rays back in, shoved

them under the light, and said " Ouch " . Gareth had worn away most of the socket

on his right hip. The doc said any 'normal' person would have been on pain

meds and in a wheelchair. Gareth started complaining in Oct. but never had

the surgery till March. By the time he did get the surgery, he was in a wheel

chair all the time except for very short distances. The nerve that goes

along the hip bone runs down the front of the thigh to the knee cap....that is

why he was having the thigh and knee pain. Just something to keep in the back

of all your minds..especially if your kids can't express their feeling too

well. Also.......so many of our kids have such high pain levels (thank you,

Mr Autism) that we don't find what's wrong until it is too late. Personally,

anyone who has a kid with a dual dx should try to 'appease' that child with

some sort of mobile cart just for safety and security reasons.

Take care, Everyone.

Margaret

January 7, 2007

My sincerest apologies for " bragging " about Eleanor Margaret. I was under the

impression that's what we did here. Excuse me.

T.

Faculty

University of Phoenix

mtbclarion@...

Central Time

[Norton AntiSpam]

<<Mutilation of human beings is not my cup of tea either.

My daughter is not a puppy getting groomed for a show and having her parts

shaped.>>

Hi, Everyone.......again...there is no comparison between your

daughter and . That's like comparing apples to bananas. You are always

bragging about how smart she is and how she does this and does that...all

without

aides, etc. You have no clue how those parents feel. Your daughter is

going places in life......I am very happy for both of you.....but...............

Oh, well......like I said, some of us are one side of the

fence and others are on the other side.

Margaret

January 8, 2007

Oh ....I'm so sorry. It's just my sick sense of humor. THey've been sending

us all these flyers about joining the military when you're 18 and we laugh about

it because jamie is about 2 mentally. Didn't mean to scare you. We had joked

about sending her off to bootcamp after a particularly horrible week of

behaviors from her.

Not to worry

She's staying with General Mom

Sherry

January 8, 2007

" General Mom " I like that LMAO~~~

Guess I would be General Mom too since I require my girls answer me " yes

ma'am " and " no ma'am " when they are spoken to. LOL I do get quite a bit of

attitude from them when that happens.

Judi S.

Re:

> Oh ....I'm so sorry. It's just my sick sense of humor. THey've been

sending us all these flyers about joining the military when you're 18 and we

laugh about it because jamie is about 2 mentally. Didn't mean to scare you.

We had joked about sending her off to bootcamp after a particularly horrible

week of behaviors from her.

> Not to worry

> She's staying with General Mom

> Sherry

January 8, 2007

LOL, I can't stop giggling now, and perhaps you'll all get a kick out

of this too. Sometimes, I even amaze myself at how gullible I can be.

After I read your post, Sherry, I called my husband at work.

" Honey!!! I think they're gonna make me sign Landon up for the draft

at 18!!! What do I DO?!?! "

ROFL!

I'm so gullible.

>

> Oh ....I'm so sorry. It's just my sick sense of humor. THey've

been sending us all these flyers about joining the military when

you're 18 and we laugh about it because jamie is about 2 mentally.

Didn't mean to scare you. We had joked about sending her off to

bootcamp after a particularly horrible week of behaviors from her.

> Not to worry

> She's staying with General Mom

> Sherry

>

January 8, 2007

<< " Honey!!! I think they're gonna make me sign Landon up for the draft

at 18!!! What do I DO?!?! "

ROFL!>>

Laci

OH!!! I do indeed have to learn to keep my keyboard mouth closed. Sorry for the

scare (but laughing anyway)

Sherry

January 8, 2007

I have a dear friend who has a son with CP. She is one of those people who

laughs about things instead of letting life get to her. When her son turned 18,

she put fake tattoo's on him, spiked his hair and he went to school the star of

the day. he loved it! when she came in telling us about his day, she laughed

and said she was so excited about him turning 18. she said she didn't know what

she should do, take him out for a beer, or buy him a hooker! Of course she was

joking! She said isn't that what most boys want on their 18th? ha!

Holly

Re:

LOL, I can't stop giggling now, and perhaps you'll all get a kick out

of this too. Sometimes, I even amaze myself at how gullible I can be.

After I read your post, Sherry, I called my husband at work.

" Honey!!! I think they're gonna make me sign Landon up for the draft

at 18!!! What do I DO?!?! "

ROFL!

I'm so gullible.

>

> Oh ....I'm so sorry. It's just my sick sense of humor. THey've

been sending us all these flyers about joining the military when

you're 18 and we laugh about it because jamie is about 2 mentally.

Didn't mean to scare you. We had joked about sending her off to

bootcamp after a particularly horrible week of behaviors from her.

> Not to worry

> She's staying with General Mom

> Sherry

>

January 20, 2007

Well my local no kill shelter isnt taking any cats at this time, they currently

have over 200 cats and just dont have the room. They wont come to me either

they just patiently wait for food. Especially this orange striped cat, i just

hope she isnt pregnant. The funny thing is that none of these cats look scrawny

thats why I hope she isnt preggers so I feel bad for it. I am feeding that one

because like i said she just eats and runs but the others try to get into our

garage where kittys food is. As far as I know the others arent getting any food

but still come around every night, i wonder how long this will go on. I live on

base, my husband is military and sooner or later im sure someone will say

something. As far as my kitty goes he cant come into the house, i already have

two dogs and my five yr.old. We close the garage door at night so he will stay

warm and safe, hes already using the litter box i put out for him. Hes gone for

hours sometimes which bothers me but im hoping he will stay home more after the

neuturing. I guess my main problem right now is the orange cat. I have been

feeding it while the others just wait for food. The others have not gotten any

food at all, i make sure the orange cat eats and i shew away the others but i

wish the orange cat would stop coming around. I feel so bad for it though, do

you think if i stopped feeding the orange cat she will eventually go and the

others too? do you think the orange cat will get by without me feeding it

anymore? and if i do stop the feeding how long will they hang around?

Hi, Everyone........I just started putting out cat food for a

couple of strays that I see only in the winter time. I am sure they are

someone's

barn cats but it's hard for them to find enough mice in the winter time.

These 2-3 strays won't let me near them....they are obviously older. If there

are too many and they will let you catch them, then take them to the SPCA or

another 'no kill' society. At least that way, they will be warm and fed

properly. I wouldn't worry about hurting anyone's feelings.......they are

being

neglected. Once your cat is vaccinated and fixed, keep him as an indoor cat.

I have a VERY soft heart for cats. This one yellow tiger I feed, a male,

is beautiful. He's probably going on two yrs old. Waits for the food but

won't let me near him. I feel so bad for them on nights like tonight.....below

freezing, windy.....and they are outside looking for food/water. If it were

me. I'd take them to a 'no kill' pound and give them a chance at a better

life. It's nice to talk about something different than kids!!!

Take care, Everyone.

Margaret

January 27, 2007

In a message dated 1/27/2007 4:58:24 P.M. Eastern Standard Time,

pastmidvale@... writes:

Well, - I am closer to your view than some other peole who wrote to

you. I say, if the kid doesn't want shoes on, then take the blasted things

off!! They can be worn to and from school, and I will buy dirt colored

socks! As to nails, I cut nails weekly. Elie has had a 24 " rule in his IEp

since he was 5 and punch a teacher in the face. people need to watch their

distance and not worry about the small stuff. What is the big deal with

shoes??? Unless of course there are foot braces or need for other orthotic

correction??cor

Yeah, I agree with you on the shoe thing. seems to get so much

extra input from his feet -- I think he actually explores with the bottoms of

his

feet like most children do with their hands. I actually encourage them to

take his shoes off and let him get the input he needs. I'm not sure if the

idea came from one of you or a book, but we put a bumpy mat under Mikey's desk

and let him get that sensation while he is at his desk at school. His

teachers are all for it. The only time any one cares is if we have to go

outside.

There is so much more to address than whether his shoes are on or off. good

luck with this.

Patty

January 27, 2007

In a message dated 1/27/2007 4:56:45 P.M. Eastern Standard Time,

pastmidvale@... writes:

Well, - I am closer to your view than some other peole who wrote to

you. I say, if the kid doesn't want shoes on, then take the blasted things

off!!

I am with you both. It seems like a small battle compared to other stuff.

Blessings, W

in CT

homeschooling mom to AJ (12), (8), ^l^,

(just turned 5, Trisomy 18 mosaic aka syndrome) and Birgitta (age 3,

adoption finalized 2/1/05 !!, Trisomy 21 aka Down's Syndrome, Fetal Alcohol

Syndrome, Autism, SID )

January 27, 2007

In a message dated 1/27/2007 5:31:23 P.M. Eastern Standard Time,

hamburgpatti@... writes:

seems to get so much

extra input from his feet -- I think he actually explores with the bottoms

of his

feet like most children do with their hands.

My cousins wife started a " Magic Paintbrush " project. It began when her

girls were diagnosed with some special needs. It began as part of their PT.

They

would take off their shoes, step into various colors pf paint, and walk

along a canvas. The project has grown and is doing great. She hosts fund

raising etc. for the project. These paintings are selling like crazy.

If you google, Magic Paintbrush, you might find out some more info.

Blessings, W

in CT

homeschooling mom to AJ (12), (8), ^l^,

(just turned 5, Trisomy 18 mosaic aka syndrome) and Birgitta (age 3,

adoption finalized 2/1/05 !!, Trisomy 21 aka Down's Syndrome, Fetal Alcohol

Syndrome, Autism, SID )

January 27, 2007

Hi Sara,

I don't feel that keeping shoes off are a big deal either but only if they

keep the socks on. Ct state laws prohibit students from being barefoot.I'm not

certain what other states haves this law other than Hawaii. I know the students

that I work with whip the socks off if they do not have shoes on. The school is

very liberal with accomodations and walking around in slippers, socks etc

wouldn't even be an issue. Their motto is whatever works but barefoot is not. I

suppose if it were written into an IEP it could be an exception to the law.

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

sara cohen wrote:

Well, - I am closer to your view than some other peole who wrote

to

you. I say, if the kid doesn't want shoes on, then take the blasted things

off!! They can be worn to and from school, and I will buy dirt colored

socks! As to nails, I cut nails weekly. Elie has had a 24 " rule in his IEp

since he was 5 and punch a teacher in the face. people need to watch their

distance and not worry about the small stuff. What is the big deal with

shoes??? Unless of course there are foot braces or need for other orthotic

correction?????

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re: Vent about teacher

>Date: Fri, 26 Jan 2007 19:54:48 -0800 (PST)

>

>Hi ,

> Vent away! It's very frustrated to advocate for our kids in the sped

>world. Teachers often forget that we are the experts of our children. If

>you had asked to have the conference with the psychologist in an IEP

>meeting, the teacher would have been less apt to refuse. You have a right

>to ask to have a daily communication sheet, 1-1 para, work modified

>appropriately etc. Because you now have documentation that Janie is not

>making progress clearly you can state in an IEP meeting that her needs are

>not being met. You could request an independent educational consultant with

>expertise in autism evaluate and observe her school program and help the

>team to design a program that would meet her needs. If you are unable to

>attend An IEP meeting because of an illness or disability you do have the

>right to ask for a teleconference or speaker phone meeting.

>

> I work at an autism school and I dodge shoes and boots on a daily basis.

>It is not uncommon for a teacher to request a parent to send the student to

>school with footwear that are not too easy to remove. I can't tell you how

>much time I spend during the day putting shoes back on while carefully not

>bending my head so that my hair is not grabbed and taking care not to get

>scratched. The teachers request that all students that scratch have their

>nails cut very often. We happen to have a few nurses that will cut the

>students nails if it becomes a problem. I work with a very good teacher

>that had her faced gouged by a student last week. The student was happy and

>smiling one moment and in a second she lunged at the teacher. It happens

>all the time and is just part of the job. I don't think the teacher's

>request was unreasonable.

> Charlyne

> Mom to Zeb 14 DS/OCD/ASD?

>

>mzdaisee47 wrote:

> It's my turn to vent about a teacher.

>Janie's teacher sent home a note today telling me to cut her

>fingernails because instead of pinching she scratched today. Well, #1

>she pinches with her thumb and pointer, #2 she scratches with all 4

>fingers, and #3 her nails were cut about 4 days ago and not that

>long. It is not that easy to get her to sit still to cut them either.

>Also, the note said not to let her wear her boots to school because

>she takes them off and throws them too easily. She can get ANY shoes

>off fast and throw them including high tops with the laces double

>knotted in the back. Not only that, but her report card shows that

>she has made zero progress this year. In K-1 she progressed slowly,

>but steadily both years with a different teacher. In our district her

>current teacher has all the sped kids in her age group. This teacher

>has been cold since I first met her last spring and has failed to

>comply with requests for feedback throughout the year. (Thanks to the

>person who gave me the link for the forms). She ignored Janie's

>psychologist's offer to have a teleconference to discuss Janie's

>needs and how to deal with her aggression.

>I started to gather stuff before Christmas to request an IEP meeting,

>but put it off until now due to my surgery. Now I am back at it and

>will turn in my request tomorrow since I plan to meet with the

>principal about today's note. Janie needs a 1-on-1 aide, she needs to

>be given work appropriate for her level (not 2nd grade level), I need

>written documentation regarding her behavior issues, I need to see

>her goals being met or at least progress being made toward them. I am

>not self disciplined enough to home school her and do not want

>someone to come to our house to teach her because she needs to learn

>appropriate social behaviors. I have to find out what options are

>available in our area. We liked Janie's previous teacher so well I

>would gladly send her back to the previous school if I could.

>Tomorrow I also plan to call DSHS and find out if we have special ed

>advocates here and how to get one for Janie. You can tell I am angry

>and a bit frazzled right now. Thanks for listening!

> P.

>

January 28, 2007

In a message dated 1/27/2007 11:29:09 P.M. Eastern Standard Time,

charlyne1121@... writes:

The school is very liberal with accomodations and walking around in

slippers, socks etc wouldn't even be an issue.

Hmm, maybe getting some fun slippers might work???

Blessings, W

in CT

homeschooling mom to AJ (12), (8), ^l^,

(just turned 5, Trisomy 18 mosaic aka syndrome) and Birgitta (age 3,

adoption finalized 2/1/05 !!, Trisomy 21 aka Down's Syndrome, Fetal Alcohol

Syndrome, Autism, SID )

January 30, 2007

Hi ,

I remember those sleepless nights. I could never go through that again. I do

have a spare teenager, knows not to bother adults till morning,can change

diapers, no homestudy needed,would enjoy being homeschooled, will deliver,LOL.

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

stamtorch@... wrote:

In a message dated 1/30/2007 5:16:13 P.M. Eastern Standard Time,

epremont@... writes:

Also- we are in the process of adopting a year old girl with Down syndrome.

Hi ,

Welcome to the group. I would love to adopt again! We are in the process

of updating our homestudy. We shall see what happens. Right now, Birgitta

has my hands pretty full and she does not sleep so I have zombie mommy syndrome

But my hope is to update the study , find something that will help

Birgitta sleep and adopt again.

Blessings, W

in CT

homeschooling mom to AJ (12), (8), ^l^,

(just turned 5, Trisomy 18 mosaic aka syndrome) and Birgitta (age 3,

adoption finalized 2/1/05 !!, Trisomy 21 aka Down's Syndrome, Fetal Alcohol

Syndrome, Autism, SID )

January 31, 2007

In a message dated 1/30/2007 9:46:46 P.M. Eastern Standard Time,

charlyne1121@... writes:

I do have a spare teenager, knows not to bother adults till morning,can

change diapers, no homestudy needed,would enjoy being homeschooled, will

deliver,LOL.

Oh,oh,oh, (waving hands in the air frantically)......I'll take 'em!!!!!!!!!

Blessings, W

in CT

homeschooling mom to AJ (12), (8), ^l^,

(just turned 5, Trisomy 18 mosaic aka syndrome) and Birgitta (age 3,

adoption finalized 2/1/05 !!, Trisomy 21 aka Down's Syndrome, Fetal Alcohol

Syndrome, Autism, SID )

January 31, 2007

Hi ,

Packed and waiting,LOL. I have spent 4 hrs. working on IEP revisions! Time

better spent being with Zeb.

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

stamtorch@... wrote:

In a message dated 1/30/2007 9:46:46 P.M. Eastern Standard Time,

charlyne1121@... writes:

I do have a spare teenager, knows not to bother adults till morning,can

change diapers, no homestudy needed,would enjoy being homeschooled, will

deliver,LOL.

Oh,oh,oh, (waving hands in the air frantically)......I'll take 'em!!!!!!!!!

Blessings, W

in CT

homeschooling mom to AJ (12), (8), ^l^,

(just turned 5, Trisomy 18 mosaic aka syndrome) and Birgitta (age 3,

adoption finalized 2/1/05 !!, Trisomy 21 aka Down's Syndrome, Fetal Alcohol

Syndrome, Autism, SID )

January 31, 2007

-

Hello and welcome to the group. I have an 11 year old son with Down syndrome

and he is not diagnosed with ASD, but has many of the behaviors associated with

it. We are seeking a diagnosis in this area, but as many testify here, it is

very hard to get sometimes.

The reason I write is: my son is still in diapers. He is not able to indicate

his need to use the toilet. We have only gotten him to indicate any desires he

has recently since in the past he has just gotten what he wanted by himself,

took our hand to lead us to what he wanted or developed some kind of behavior

(mostly inappropriate) that drew our attention to what he wanted. We have been

working on PECS this past school year (tho' it is not the schoolthat has been

doing it, we have done it at home). Sadly, most of my son's school years have

been wasted, in my opinion. It is only this year, through my forcing them, that

they have gotten my son a one-on-one aide. I think because he has so many

medical needs, is fed via g-tube, comes to school with a nurse to care for his

medical needs, they were afraid/confused/stymied by him (!?) So we work on PECS

at home and have also taught him to read about 40 words and some sentences at

home as well. We hope as we go on with

teaching him to communicate that he will begin to communicate his bodily needs

as well.

I even made my son a PECS sequence story for bathroom skills. It seemed to

help. And hand-over-hand prompting of skills, fading physical prompts and only

using verbal prompts is where we find ourselves now.

He does, however, know the whole routine of toileting, ie. close the door,

pull down your pants, sit on the toilet, go pee, etc. I have toyed with the

idea of keeping him home for the several weeks it would take to teach him " dry " ,

" not dry " while wearing " big boy " underwear. Sometimes I have at times endured

comments from school personnel that toileting is not an educational issue and

should be addressed at home, but thankfully this is not the attitude of all of

my son's teachers. He works on his skills at home and at school.

So just know, there are some of us still dealing with diapers. It's nice to

meet someone else in the same spot. Having had 4 others children, I laugh when a

young mom complains about wishing their child was potty-trained. I sometimes

tell them that I have changed diapers for a total of 21 years so far - - - but

I'm sure there are others on this list who have seen more years of " diaper

duty! " ; )

It's nice to get to know you.

epremont@... wrote:

Hi Sara,

My name is Premont and I am new to the group. My 9 1/2 year old son, ,

has Down syndrome but has not been officially diagnosed with autism. His

teachers believe he fits into the autism " spectrum " . I'm trying to do my own

research by joining this group to see if I can find any parallels with other

dual diagnosis kids.

also likes to remove his shoes when indoors. We've been on numerous " shoe

hunts " as he'll even remove them when shopping. He really has a fascination with

shoes also. Especially the light up shoes. The school requested he not wear them

to school because he would not focus on anything but his shoes!

Oh yes, he does throw them also- but as he throws EVERYTHING, that is not a

surprise.

If you don't mind me asking, what exactly is the " feces regulations " in middle

school? Our 90 pound son is still in pull-ups (round the clock) and as we cannot

know when this will change, we worry about what the school will require as time

goes on. If there are other parents dealing with an older child still in

diapers- PLEASE contact me. I'd like to find others going through the same

challenges for tips/advice/support.

Also- we are in the process of adopting a year old girl with Down syndrome. Any

others out there like me?

Glad to know you all-

Kindly,

Premont

Date: 2007/01/28 Sun PM 07:43:08 CST

To:

Subject: Re: Charlyne

We have had some crazy things in IEP's over the years:

The 24 " rule- all instruction is to be given from a distance of 24 "

Intermediate GOAL: Elie will not strike anyone in the face during

classroom instruction. Final Goal: Elie will not attempt to strike anyone

in the face but will use words to express disatisfaction.

Shoes in school rule: shoes will be removed upon entering the classroom and

put in cubbie. Intermediate Goal: Elie will remove shoes on direction

without throwing them or kicking out at staff. Final Goal: Will wear shoes

without complaint in school .

Understand that these were the start and end with MANY steps in between.

But to this day we haave the 24 " rule in his IEP. And he hasn't hit anyone

in the face in almost 3 years.

I won't even list all the " Feces " regulations from middle school. That is

just too gross to live with.

>

>Reply-To:

>To:

>Subject: Re: Charlyne

>Date: Sun, 28 Jan 2007 17:31:21 -0800 (PST)

>

>Hi Sara,

> Yes your right. You have some leverage with the IEP. I don't mind if

>twit me,LOL.

> Charlyne

> Mom to Zeb DS/OCD/ASD?

>

>sara cohen wrote:

> State laws say many things. But IEP's can trump state laws.

>That's why we

>managed to get the " I " in IEP!!!

>

>And I know that you were passing info, so I am only twitting you.

>

>Sara - Choose to make lemonade, not complain about the lemons.

>

> >

> >Reply-To:

> >To:

> >Subject: Re:

> >Date: Sat, 27 Jan 2007 20:26:40 -0800 (PST)

> >

> >Hi Sara,

> > I don't feel that keeping shoes off are a big deal either but only if

> >they keep the socks on. Ct state laws prohibit students from being

> >barefoot.I'm not certain what other states haves this law other than

> >Hawaii. I know the students that I work with whip the socks off if they

>do

> >not have shoes on. The school is very liberal with accomodations and

> >walking around in slippers, socks etc wouldn't even be an issue. Their

> >motto is whatever works but barefoot is not. I suppose if it were written

> >into an IEP it could be an exception to the law.

> > Charlyne

> > Mom to Zeb 14 DS/OCD/ASD?

> >

> >sara cohen wrote:

> > Well, - I am closer to your view than some other peole who

> >wrote to

> >you. I say, if the kid doesn't want shoes on, then take the blasted

>things

> >off!! They can be worn to and from school, and I will buy dirt colored

> >socks! As to nails, I cut nails weekly. Elie has had a 24 " rule in his

>IEp

> >since he was 5 and punch a teacher in the face. people need to watch

>their

> >distance and not worry about the small stuff. What is the big deal with

> >shoes??? Unless of course there are foot braces or need for other

>orthotic

> >correction?????

> >

> >Sara - Choose to make lemonade, not complain about the lemons.

> >

> > >

> > >Reply-To:

> > >To:

> > >Subject: Re: Vent about teacher

> > >Date: Fri, 26 Jan 2007 19:54:48 -0800 (PST)

> > >

> > >Hi ,

> > > Vent away! It's very frustrated to advocate for our kids in the sped

> > >world. Teachers often forget that we are the experts of our children.

>If

> > >you had asked to have the conference with the psychologist in an IEP

> > >meeting, the teacher would have been less apt to refuse. You have a

>right

> > >to ask to have a daily communication sheet, 1-1 para, work modified

> > >appropriately etc. Because you now have documentation that Janie is not

> > >making progress clearly you can state in an IEP meeting that her needs

> >are

> > >not being met. You could request an independent educational consultant

> >with

> > >expertise in autism evaluate and observe her school program and help

>the

> > >team to design a program that would meet her needs. If you are unable

>to

> > >attend An IEP meeting because of an illness or disability you do have

>the

> > >right to ask for a teleconference or speaker phone meeting.

> > >

> > > I work at an autism school and I dodge shoes and boots on a daily

>basis.

> > >It is not uncommon for a teacher to request a parent to send the

>student

> >to

> > >school with footwear that are not too easy to remove. I can't tell you

> >how

> > >much time I spend during the day putting shoes back on while carefully

> >not

> > >bending my head so that my hair is not grabbed and taking care not to

>get

> > >scratched. The teachers request that all students that scratch have

>their

> > >nails cut very often. We happen to have a few nurses that will cut the

> > >students nails if it becomes a problem. I work with a very good teacher

> > >that had her faced gouged by a student last week. The student was happy

> >and

> > >smiling one moment and in a second she lunged at the teacher. It

>happens

> > >all the time and is just part of the job. I don't think the teacher's

> > >request was unreasonable.

> > > Charlyne

> > > Mom to Zeb 14 DS/OCD/ASD?

> > >

> > >mzdaisee47 wrote:

> > > It's my turn to vent about a teacher.

> > >Janie's teacher sent home a note today telling me to cut her

> > >fingernails because instead of pinching she scratched today. Well, #1

> > >she pinches with her thumb and pointer, #2 she scratches with all 4

> > >fingers, and #3 her nails were cut about 4 days ago and not that

> > >long. It is not that easy to get her to sit still to cut them either.

> > >Also, the note said not to let her wear her boots to school because

> > >she takes them off and throws them too easily. She can get ANY shoes

> > >off fast and throw them including high tops with the laces double

> > >knotted in the back. Not only that, but her report card shows that

> > >she has made zero progress this year. In K-1 she progressed slowly,

> > >but steadily both years with a different teacher. In our district her

> > >current teacher has all the sped kids in her age group. This teacher

> > >has been cold since I first met her last spring and has failed to

> > >comply with requests for feedback throughout the year. (Thanks to the

> > >person who gave me the link for the forms). She ignored Janie's

> > >psychologist's offer to have a teleconference to discuss Janie's

> > >needs and how to deal with her aggression.

> > >I started to gather stuff before Christmas to request an IEP meeting,

> > >but put it off until now due to my surgery. Now I am back at it and

> > >will turn in my request tomorrow since I plan to meet with the

> > >principal about today's note. Janie needs a 1-on-1 aide, she needs to

> > >be given work appropriate for her level (not 2nd grade level), I need

> > >written documentation regarding her behavior issues, I need to see

> > >her goals being met or at least progress being made toward them. I am

> > >not self disciplined enough to home school her and do not want

> > >someone to come to our house to teach her because she needs to learn

> > >appropriate social behaviors. I have to find out what options are

> > >available in our area. We liked Janie's previous teacher so well I

> > >would gladly send her back to the previous school if I could.

> > >Tomorrow I also plan to call DSHS and find out if we have special ed

> > >advocates here and how to get one for Janie. You can tell I am angry

> > >and a bit frazzled right now. Thanks for listening!

> > > P.

> > >

February 4, 2007

The district already said they will be providing a 1:1 aide. Though I wish this

made me feel more secure, it doesn't. He currently has a 1:1 aide in the ECSE

preschool he attends 3 days per week, and has at least one incident a week where

he gets out or into somewhere that is off limits. Most of the time this has been

from adults forgetting to lock doors that lead into other parts of the building

from outside and my son's ability to know when he can make a clear getaway.

His day will be ½ day, unless our state legislature funds full day Kindergarten.

I was told by the K teacher that if the funding becomes available, they will be

going full day. We should know by his IEP meeting in May. I don't see him going

a full day yet, but I will wait to see what happens between now and May.

Maybe I am going a little overboard with worry on this, but here at home our

son, at the age of 5, knows how to open the safety knobs now. Last week, much to

my surprise and horror, I watched as he put his finger between the door knob and

the plastic safety knob and turned them both to open the door. Thank goodness he

can't reach the safety chain that serves as a back-up (I have caught him

standing on a chair trying his hardest). Now we need to make a new backup to the

backup....I need some calgon and a few more hours of sleep.

<<How have you addressed these issues and how were they written into the

iep?>>

Hi, Everyone.......first choice...request a 1:1 aide for your son's

safety.....unless they can guarantee that someone will be monitoring the door

at

all times. I realize very few schools offer this but it is the law that the

district has to provide for a child according to their IEPs. Perhaps you can

negotiate a trained aide for the first part of the year and see how well

your son adapts to kindergarten. Is it all day or half day?

Take care, Everyone.

Margaret

February 5, 2007

Hi ,

If your child has a 1-1 now and he is able to get out of the classroom, I

would be asking where is the 1-1 aide. I work at a school as a sub and many

times I am 1-1. If the student is a houdini, I am glued to that student. There

is absolutely no way that student could take off out of the room during my

watch. I also ensure that that student is engaged so there is no initiative to

run. If the LEA does do full day kindergarten, you could request 1/2 days in the

IEP if the full day schedule would be too overwhelming.

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

ndepto@... wrote:

The district already said they will be providing a 1:1 aide. Though I

wish this made me feel more secure, it doesn't. He currently has a 1:1 aide in

the ECSE preschool he attends 3 days per week, and has at least one incident a

week where he gets out or into somewhere that is off limits. Most of the time

this has been from adults forgetting to lock doors that lead into other parts of

the building from outside and my son's ability to know when he can make a clear

getaway.