[Guest guest]

Hi : Love that there is ANOTHER adopted family on the list.

My son Elie, was adopted by us at age 3. We had him from age 9 mo. Elie is

now 22yo. HE wasn't dx with asd until he was over 10 altho we knew his

behavior was unusual by age 3. Especially the OCD part! He is now drug

free altho he still has OCD behaviors. I have used drigs in the past to

help with behavior issues. We are working on finding a new psych in our

area to work with us on OCD issues which are getting in his way. (His

current fetish is pulling his shirt absolutely straight. He will stop

getting in the car, sitting in a chair, walking, etc to straighten out his

shirt.

We are located in North Ga in the montains. Where are you??

> <<My name is and I adopted a little girl with ds about 4 years ago.

> She

> is 6 now. As soon as I got her, I realized that her behavior certainly was

> more severe that ds. and after several specialists found her to be on the

> autism spectrum. Ebonie is her name. She is such the cutie. Anyway, poor

> little Eb has been on every known medicine. Anafranil was tried recently.

> She

> acted like a wild wild wild maniac. They tried that in effort to help the

> OCD.

> I was so so happy to find this group. I belong to a ds group, but this

> one just covers what Ebs life is like. I will look forward to talking with

> all of you. >>

>

> Hi, Everyone........welcome to the group. Love the name Ebonie. Where

> do you live....there may be someone close to you. My son, Gareth, is 19

> and

> has been on Risperdal & SSRI's since he was 10y/o. He's also very

> OCD....on

> top of the DS and autism!!! I have tried repeatedly during the summer

> times

> to try and wean him off meds but never been able to.

> Take care, Everyone.

> Margaret

>

> ************************************** See what's new at

> http://www.aol.com

>

>

[Guest guest]

welcome mary and ebonie!!! shawna

************************************** See what's new at http://www.aol.com

[Guest guest]

thanks so much shawna, glad to be apart of this group. Some real

knowledgeable people.

************************************** See what's new at http://www.aol.com

[Guest guest]

Wellllllllllllllllllll He got the t-shirt and the sleeper off!! LIttle houdini

strikes again...

I will have to try another idea. The backwards sleeper idea sounds good, but

he would have to have the feet reworked with some sewing. And he is independent

on zipping his jammies up. Wish he understood that he will get cold with them

off. He just seems to try to wrap himself around his pillow for warmth - never

has used covers, though they are there for him to use. I sometimes, after he is

asleep, go in and put him in the sleeping bag I use for his covers. He

sometimes wakes up with it still on, but ONLY if I've put him in it after he is

asleep and only if he sleeps soundly. Oh, well.... I'll have to try something

else.

We are potty training this vacation, so I have my hands full with other

things.

Hugs,

Donnell

Soracco wrote:

Judi,

I did find some dairy free ones!!!! Here is a link

http://www.economycandy.com/store/product1.aspx?SID=1 & Product_ID=17 & Category_ID=\

32

Donnell,

The tshirt idea is great! Did you try it? How did it work???

[Guest guest]

Donnell,You should not have to do any sewing to turn the feet backwards, unless

you have a very very unusual brand of sleeper. Just twist the feet forward as

you put the sleeper on backwards. I've never had that not work. Sleepers tend to

be pretty soft and " flexible. " As for reworking the feet, if you like to sew,

you may be able to reinforce them. Sleepers worked great when my son was young,

but once he was up and walking, he wore the feet out too easily. If your son

always wants to take his sleeper off and won't sleep under the covers, that

could be a sign that he is dehydrated (and therefore feels hot). My son used to

love to sleep on the floor, because it was cooler than the bed. To make sure

your son better hydrated, you need to start early in the day with the drinking

and taper off toward evening. (Constantly needing to go to urinate can keep you

awake, so the urine needs to be through him by bedtime.) The general rule is one

ounce for each two pounds of weight. 25 oz. for a 50 lb. child. If he is in

school, you will have to be more diligent, maybe a big glass of water when he

gets up and another as soon as he gets home. You could even try to get the

school to give him a certain amount to drink each day. You could try sending it

with him and asking them to get it down him. Sensitivity to touch can be a

symptom of dehydration. He could be both warm and not like the feel of having on

a sleeper. That may be why he wants it off. I struggled with these issues for

years, since my son had feeding problems and I had a hard time getting him to

drink.  After years of observation, I can say for sure that dehydration was a

major factor in many of his behaviors. I could see the changes day to day,

depending upon how much he was willing to drink. Fortunately, he eventually

outgrew his feeding problems and likes to drink now.JaniceSorry everyone for

leaving the whole post below. My computer is acting really weird and won't allow

me to select it and erase!Re:

Posted by: " Donnell Kenworthy "

donnellkenworthy@...

 

donnellkenworthy

Mon Dec 31, 2007 11:49 am (PST)

Wellllllllllllllllllll He got the t-shirt and the sleeper off!!

LIttle houdini strikes again...

I will have to try another idea. The backwards sleeper idea sounds

good, but he would have to have the feet reworked with some sewing. And

he is independent on zipping his jammies up. Wish he understood that he

will get cold with them off. He just seems to try to wrap himself

around his pillow for warmth - never has used covers, though they are

there for him to use. I sometimes, after he is asleep, go in and put

him in the sleeping bag I use for his covers. He sometimes wakes up

with it still on, but ONLY if I've put him in it after he is asleep and

only if he sleeps soundly. Oh, well.... I'll have to try something

else.

We are potty training this vacation, so I have my hands full with other

things.

Hugs,

Donnell

[Guest guest]

Elie would never tolerate the feet on the sleeper. When he was young, I

solved this problem by cutting off the feet. Then the sleeper could go on

backwards with no problem.

BTW - he now sleeps - winter and summer with a t-shirt and knit boxers

only. He does have a sheet and quilt on his bed which he sometimes sleep

under.

Wonder how many of our kids sleep faace down with nose in pillow???? Since

Elie had his sleep apnea surgery (before that he slept on his back only), he

sleeps face down.

> Donnell,You should not have to do any sewing to turn the feet backwards,

> unless you have a very very unusual brand of sleeper. Just twist the feet

> forward as you put the sleeper on backwards. I've never had that not work.

> Sleepers tend to be pretty soft and " flexible. " As for reworking the feet,

> if you like to sew, you may be able to reinforce them. Sleepers worked great

> when my son was young, but once he was up and walking, he wore the feet out

> too easily. If your son always wants to take his sleeper off and won't sleep

> under the covers, that could be a sign that he is dehydrated (and therefore

> feels hot). My son used to love to sleep on the floor, because it was cooler

> than the bed. To make sure your son better hydrated, you need to start early

> in the day with the drinking and taper off toward evening. (Constantly

> needing to go to urinate can keep you awake, so the urine needs to be

> through him by bedtime.) The general rule is one ounce for each two pounds

> of weight. 25 oz. for a 50 lb. child. If he is in school, you will have to

> be more diligent, maybe a big glass of water when he gets up and another as

> soon as he gets home. You could even try to get the school to give him a

> certain amount to drink each day. You could try sending it with him and

> asking them to get it down him. Sensitivity to touch can be a symptom of

> dehydration. He could be both warm and not like the feel of having on a

> sleeper. That may be why he wants it off. I struggled with these issues for

> years, since my son had feeding problems and I had a hard time getting him

> to drink. After years of observation, I can say for sure that dehydration

> was a major factor in many of his behaviors. I could see the changes day to

> day, depending upon how much he was willing to drink. Fortunately, he

> eventually outgrew his feeding problems and likes to drink

now.JaniceSorryeveryone for leaving the whole post below. My computer is acting

really

> weird and won't allow me to select it and erase!Re:

>

> Posted by: " Donnell Kenworthy "

> donnellkenworthy@... <donnellkenworthy%40sbcglobal.net>

>

>

> donnellkenworthy

>

>

>

> Mon Dec 31, 2007 11:49 am (PST)

>

> Wellllllllllllllllllll He got the t-shirt and the sleeper off!! LIttle

> houdini strikes again...

> I will have to try another idea. The backwards sleeper idea sounds

> good, but he would have to have the feet reworked with some sewing. And

> he is independent on zipping his jammies up. Wish he understood that he

> will get cold with them off. He just seems to try to wrap himself

> around his pillow for warmth - never has used covers, though they are

> there for him to use. I sometimes, after he is asleep, go in and put

> him in the sleeping bag I use for his covers. He sometimes wakes up

> with it still on, but ONLY if I've put him in it after he is asleep and

> only if he sleeps soundly. Oh, well.... I'll have to try something

> else.

>

> We are potty training this vacation, so I have my hands full with other

> things.

>

> Hugs,

> Donnell

>

>

[Guest guest]

mfroof@... wrote:

>

> <<Just cathcing up on emails and saw that your husband has

> deployed. May I ask how long he will be gone and what Branch he

> serves? My husband will be leaving next month for 10 months to Iraq, we

> live in Ft. Walton Beach, FL and he works on Hurlburt Field.>>

>

> Hi, Everyone........it is Jayne's husband who is leaving on

> Saturday. I would love to add your hubby to the list for sending

> goodies to. Is

> there anyone else out there who has a DH or son serving in Iraq or

> Afghanistan?

> Take care, Everyone.

> Margaret

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004

> <http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004>)

>

>

[Guest guest]

Good idea Margaret! We should add file with addresses so any of us who would

like to send stuff can. Would also love to know what are the good things to

send. The things they miss the most, etc.

Holly

<<Just cathcing up on emails and saw that your husband has

deployed. May I ask how long he will be gone and what Branch he

serves? My husband will be leaving next month for 10 months to Iraq, we

live in Ft. Walton Beach, FL and he works on Hurlburt Field.>>

Hi, Everyone........it is Jayne's husband who is leaving on

Saturday. I would love to add your hubby to the list for sending goodies to.

Is

there anyone else out there who has a DH or son serving in Iraq or

Afghanistan?

Take care, Everyone.

Margaret

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

Holly Giglio wrote:

>

> Good idea Margaret! We should add file with addresses so any of us who

> would like to send stuff can. Would also love to know what are the

> good things to send. The things they miss the most, etc.

> Holly

>

>

>

> <<Just cathcing up on emails and saw that your husband has

> deployed. May I ask how long he will be gone and what Branch he

> serves? My husband will be leaving next month for 10 months to Iraq, we

> live in Ft. Walton Beach, FL and he works on Hurlburt Field.>>

>

> Hi, Everyone........it is Jayne's husband who is leaving on

> Saturday. I would love to add your hubby to the list for sending

> goodies to. Is

> there anyone else out there who has a DH or son serving in Iraq or

> Afghanistan?

> Take care, Everyone.

> Margaret

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004

> <http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004>)

>

>

[Guest guest]

: Welcome! We were dead set against meds until we went for 6 months

without sleep and then enough was enough. We started Tori on Melatonin to help

her sleep which worked really well, but to get the other behaviors somewhat in

check (head-banging; stimming) we went the med route. The cocktail she takes

works for her. She is on Prozac, Depakote, Risperdal. She will be 8 in Feb.

Liz

Hi, Everyone.......I don't know how I missed your new post, but

'sorry.' Welcome to the group!!! You are right in saying that it is a

difficult

choice to medicate or not. We had to do something with Gareth because of his

head banging. Man.....one day he did it on the tile floor and never even

cried or winced. I didn't want the kid brain damaged from that!!! That is when

he went on the Risperdal and hasn't head banged since. Risperdal also makes

him sleep through the night....some thing that we had to rely on Benadryl on

before that.

Happy Birthday, !!!

Take care, Everyone.

Margaret

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Thanks, Margaret, our local developmental ped. concurs with you. Thanks so much

for all of the OT ideas too- he receives a sensory diet daily both at school and

at home. Hips are fine, orthotics are required for pronation. loves the

pool and bath time. I really think it's a continuation of all of these things

and time for the walking to " click " . -

To: @...: mfroof@...: Fri, 18 Jan 2008 20:56:10

-0500Subject:

Hi, Everyone........just my two cents worth, but I think 4 y/o is awful

young for anti-anxiety meds. Has an OT tried to work with ? Does he act

differently inside on carpet as oppose to tile, grass, etc? Is there any place

that he seems more comfortable walking....indoors vs outdoors? Has anyone used

incentives/rewards to get him to go on his own? What about a pool......I know at

that age (and still) Gareth was scared to death of pools. Will he wade in a

pool? Are his ankles and hips OK? Just some ideas.....sorry I am not much

help?Donna...prayers coming your way. As St Padre Pio would say " Pray, hope and

do not worry. " Take care, Everyone.Margaret**************Start the year off

right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489[Non-text

portions of this message have been removed]

[Guest guest]

,

Just one more thought. Our Logan did much better after we gave up on

orthotics. Logan uses his feel to get extra input. He loves to walk

barefoot or on his toes (not continually), but with SMO's he couldn't'

" feel " with his feet when he was walking.

_____

From: [mailto: ] On Behalf

Of McDonnell

Sent: Saturday, January 19, 2008 9:07 AM

To:

Subject: RE:

Thanks, Margaret, our local developmental ped. concurs with you. Thanks so

much for all of the OT ideas too- he receives a sensory diet daily both at

school and at home. Hips are fine, orthotics are required for pronation.

loves the pool and bath time. I really think it's a continuation of

all of these things and time for the walking to " click " . -

To: @yahoogrou <mailto:%40yahoogroups.comFrom> ps.comFrom:

mfroof@... <mailto:mfroof%40AOL.comDate> : Fri, 18 Jan 2008 20:56:10

-0500Subject:

Hi, Everyone........just my two cents worth, but I think 4 y/o is

awful young for anti-anxiety meds. Has an OT tried to work with ? Does

he act differently inside on carpet as oppose to tile, grass, etc? Is there

any place that he seems more comfortable walking....indoors vs outdoors? Has

anyone used incentives/rewards to get him to go on his own? What about a

pool......I know at that age (and still) Gareth was scared to death of

pools. Will he wade in a pool? Are his ankles and hips OK? Just some

ideas.....sorry I am not much help?Donna...prayers coming your way. As St

Padre Pio would say " Pray, hope and do not worry. " Take care,

Everyone.Margaret**************Start the year off right. Easy ways to stay

in shape. http://body.

<http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489>

aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489[Non-text portions

of this message have been removed]

[Guest guest]

,

That is so interesting- we were told by the orthopedist and PT that will

not always need the SMOs, but for now he does because his pronation is so

pronounced.

So, we try to balance it with having after school and weekends off from

orthotics. does like the feel of different floor textures now (hard wood,

linoleum, carpet), and will walk holding one hand hesitantly, just like with the

orthotics.

Thanks for the input! -

To: @...: melissad@...: Sat, 19 Jan

2008 13:54:40 -0600Subject: RE:

,Just one more thought. Our Logan did much better after we gave up

onorthotics. Logan uses his feel to get extra input. He loves to walkbarefoot or

on his toes (not continually), but with SMO's he couldn't' " feel " with his feet

when he was walking._____ From:

[mailto: ] On BehalfOf McDonnellSent: Saturday,

January 19, 2008 9:07 AMTo: @...: RE:

Thanks, Margaret, our local developmental ped. concurs with you. Thanks

somuch for all of the OT ideas too- he receives a sensory diet daily both

atschool and at home. Hips are fine, orthotics are required for pronation.

loves the pool and bath time. I really think it's a continuation ofall of these

things and time for the walking to " click " . -To: @yahoogrou

<mailto:%40yahoogroups.comFrom> ps.comFrom:mfroof@...

<mailto:mfroof%40AOL.comDate> : Fri, 18 Jan 2008 20:56:10-0500Subject:

Hi, Everyone........just my two cents worth, but I think

4 y/o isawful young for anti-anxiety meds. Has an OT tried to work with ?

Doeshe act differently inside on carpet as oppose to tile, grass, etc? Is

thereany place that he seems more comfortable walking....indoors vs outdoors?

Hasanyone used incentives/rewards to get him to go on his own? What about

apool......I know at that age (and still) Gareth was scared to death ofpools.

Will he wade in a pool? Are his ankles and hips OK? Just someideas.....sorry I

am not much help?Donna...prayers coming your way. As StPadre Pio would say

" Pray, hope and do not worry. " Take care,Everyone.Margaret**************Start the

year off right. Easy ways to stayin shape.

http://body.<http://body.aol.com/fitness/winter-exercise?NCID=aolcmp003000000024\

89>aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489[Non-text portionsof

this message have been removed] [Non-text portions of this message have been

removed]

[Guest guest]

Hi margaret,

I am in Northeastern PA

[Guest guest]

We're in Sullivan County, NY on the NY/PA border. Kayla does

hippotherapy at G.A.I.T. in Milford, PA (a wonderful program!) and

her great-grandparents are in an assisted living facility near

Honesdale, PA.

We're often at the Chuck E Cheese near Scranton, PA because they are

the BEST with special needs kids. The first time I went there the

greeter told me she volunteers every year at Special Olympics and the

second time we went there a whole bus of Life Skills classes were

there. And they were treated so well. None of that eye rolling or

negative under the breath comments that you sometimes hear from young

people working at ChuckE. We always go there even though it's a 1 1/2

hour drive and there is one 30 minutes closer.

Ecki

Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01)

http://oppositekids.blogspot.com/

>

>

> Hi margaret,

> I am in Northeastern PA

>

>

>

[Guest guest]

Ecki,

I am in WilkesBarre, about 1/2 hour from that Chuck E Cheese in

Dickson City. We've been there, and it is one of the bigger and nicer

ones. Our local Chuck E Cheese is only about half as big.

[Guest guest]

,

I am in southern york county, pa!

Holly

[Guest guest]

Thanks Margaret, that sounds like a good idea. We are all doing well.

Gavin is doing GREAT in school. He had gotten a new TSS worker at the

end of the year last year, and she is incredible!!! We moved over the

summer AGAIN. Gavin has a very hard time with it a first. It took

several months before he was back on track again.

We have talked about moving to Lititz, in fact Traci has been looking

to buy a house there, but we would have to rent, and it is just so

darn expensive there for what we need.

Traci is doing well. She is so busy with her job that she has not

been as involved with Gavin. It puts more pressure on me, and

the " breaks " I get are so few and far between that sometimes I just

want to crawl in a hole, or run away from home!

I just read about your new " retirement " home. Where is it? And lucky

for you that Gareth is taking the step to be on his own... Must be a

relief, but yet a very hard adjustment. It's been so long since we

talked... catch me up on all the details.

>

> Hi, Everyone.........so glad to hear from you!!! How is

Gavin doing

> in school? How is Traci? As for the toilet, when Gareth was

younger, he had

> issues too. How about a two quart, plastic milk container cut out

and used as

> a splash guard. They cut easily with scissors. Cut it so that

you keep the

> handle part for him to hold on to. After you cut it out and it

works OK,

> you can take a file board to the edges so they aren't so rough.

When Gavin sits

> down (Gareth still sits) he can grab it and place it between him

and the

> toilet seat.

> Take care, Everyone.

> Margaret

>

>

>

> **************Biggest Grammy Award surprises of all time on AOL

Music.

> (http://music.aol.com/grammys/pictures/never-won-a-grammy?

NCID=aolcmp003000000025

> 48)

>

>

>

[Guest guest]

When I get the “you

have your hands full” with the sour face look, when my kids are being, shall we

say, expressive – I used to let it roll off me, even though it set my teeth on

edge. I now say (with a gentle smile) “Better me than you!” If they are

bright and quick, they figure out while I am still there that I what I just

said, but most of the time they just look a bit confused. I guess my kids are

the ones that are kinder and gentler.

Sheila

From:

Multiples-DS [mailto:Multiples-DS ] On Behalf Of Verisimo

Sent: Thursday, October 23, 2008

8:14 PM

To: Multiples-DS

Subject: Re:

Love it!

We go with velcro, since they are easier to put back on!

On Oct

23, 2008, at 6:08 PM,

mrsimoffshoreaol wrote:

It's

funny that you brought up " wearing shoes " as an issue. My boys

both love to be barefoot. School has had problems keeping their shoes

on. Anyway, with all the issues and concerns for the boys, I decided to

compromise on this one and agreed to buy lace up ankle boots for

(because the teacher thought they would stay on). Well today was his

first day to wear his new boots to school and he removed them two or three

times (and this was with the laces double knotted). When there's a will

there's a way!!! You just have to love his spirit.

a

" You are one lucky lady "

To: Multiples-DS

Date: Sunday, October

19, 2008, 11:18 AM

Last Friday I took a to her speech therapy session. When I was

getting the girls out of the car I noticed this other car parking

beside me. I see an elderly couple and a young boy getting out of the

car.

I usually look like a Christmas tree by the time I'm ready to move,

caring a backpack, having a purse dangling around my neck and caring

2 infant car seats. If you're ever looking to spark a conversation

with complete strangers, this is " the look " you need. It never

fails.Ha!

Anyways, to make a long story short, we get into the building (a

house) and all of us end up in this small hallway. There is a daycare

on the main floor and this is where the boy was coming. He was a

handsome 5 years old and gave a lot of attention to both girls.

The couple I mentioned were his grandparents.

At one point the grandmother looks at the girls, and when she saw

a she said VERY excited " She has Down Syndrome! " ,then comes,

gives me a BIG hug and says in the warmest and most caring voice " You

are one lucky lady! You know that! Right? "

Her little man was 5 and had DS. He was adopted when he was 2 years

old and there were not enough words for her to describe how much joy

he had brought to their family.

I wish for all of you to bump into " my angel " one day. On Friday

she

took the shape of a grandmother and made my day.

I am one lucky lady...

Mommy to

Alyssa (Jun 2004)

a (T21) & Tianna (Nov 2007)

__________________________________________________

[Guest guest]

That is priceless!When I get the “you have your hands full” with the sour face look, when my kids are being, shall we say, expressive – I used to let it roll off me, even though it set my teeth on edge. I now say (with a gentle smile) “Better me than you!” If they are bright and quick, they figure out while I am still there that I what I just said, but most of the time they just look a bit confused. I guess my kids are the ones that are kinder and gentler. Sheila From: Multiples-DS [mailto:Multiples-DS ]On Behalf Of VerisimoSent: Thursday, October 23, 2008 8:14 PMTo: Multiples-DS Subject: Re: Love it! We go with velcro, since they are easier to put back on! On Oct 23, 2008, at 6:08 PM, mrsimoffshoreaol wrote:It's funny that you brought up "wearing shoes" as an issue. My boys both love to be barefoot. School has had problems keeping their shoes on. Anyway, with all the issues and concerns for the boys, I decided to compromise on this one and agreed to buy lace up ankle boots for (because the teacher thought they would stay on). Well today was his first day to wear his new boots to school and he removed them two or three times (and this was with the laces double knotted). When there's a will there's a way!!! You just have to love his spirit.a "You are one lucky lady"To: Multiples-DS Date: Sunday, October 19, 2008, 11:18 AMLast Friday I took a to her speech therapy session. When I was getting the girls out of the car I noticed this other car parking beside me. I see an elderly couple and a young boy getting out of the car.I usually look like a Christmas tree by the time I'm ready to move, caring a backpack, having a purse dangling around my neck and caring 2 infant car seats. If you're ever looking to spark a conversation with complete strangers, this is "the look" you need. It never fails.Ha!Anyways, to make a long story short, we get into the building (a house) and all of us end up in this small hallway. There is a daycare on the main floor and this is where the boy was coming. He was a handsome 5 years old and gave a lot of attention to both girls.The couple I mentioned were his grandparents.At one point the grandmother looks at the girls, and when she saw a she said VERY excited "She has Down Syndrome!" ,then comes, gives me a BIG hug and says in the warmest and most caring voice "You are one lucky lady! You know that! Right?"Her little man was 5 and had DS. He was adopted when he was 2 years old and there were not enough words for her to describe how much joy he had brought to their family. I wish for all of you to bump into "my angel" one day. On Friday she took the shape of a grandmother and made my day.I am one lucky lady...Mommy toAlyssa (Jun 2004)a (T21) & Tianna (Nov 2007)__________________________________________________

[Guest guest]

My , who seems to be too busy these days to keep up with these posts, gets the same comments and usually replies, "Better having my hands full than having my hands empty." I had eight children, all typical and nonetheless often unruly, and especially when they were little I used to get the same sour faces and withering stares.

Joyce , Texas grandmother to Vaughan's 9, 6 (today!), and Will (DS) and Jake newly 4.

From: ansial2004 <ansial2004yahoo (DOT) com>Subject: "You are one lucky lady"To: Multiples-DS@ yahoogroups. comDate: Sunday, October 19, 2008 , 11:18 AM

Last Friday I took a to her speech therapy session. When I was getting the girls out of the car I noticed this other car parking beside me. I see an elderly couple and a young boy getting out of the car.I usually look like a Christmas tree by the time I'm ready to move, caring a backpack, having a purse dangling around my neck and caring 2 infant car seats. If you're ever looking to spark a conversation with complete strangers, this is "the look" you need. It never fails.Ha!Anyways, to make a

long story short, we get into the building (a house) and all of us end up in this small hallway. There is a daycare on the main floor and this is where the boy was coming. He was a handsome 5 years old and gave a lot of attention to both girls.The couple I mentioned were his grandparents.At one point the grandmother looks at the girls, and when she saw a she said VERY excited "She has Down Syndrome!" ,then comes, gives me a BIG hug and says in the warmest and most caring voice "You are one lucky lady! You know that! Right?"Her little man was 5 and had DS. He was adopted when he was 2 years old and there were not enough words for her to describe how much joy he had brought to their family. I wish for all of you to bump into "my angel" one day. On Friday she took the shape of a grandmother and made my day.I am one lucky lady...Mommy toAlyssa (Jun 2004)a (T21) & Tianna (Nov 2007)

____________ _________ _________ _________ _________ __

[Guest guest]

Happy Birthday,

!

From:

Multiples-DS [mailto:Multiples-DS ] On Behalf Of Joyce

Sent: Sunday, October 26, 2008 7:15 PM

To: Multiples-DS

Subject: Re:

My , who seems to be too busy these days to

keep up with these posts, gets the same comments and usually replies,

" Better having my hands full than having my hands

empty. " I had eight children, all typical and nonetheless often

unruly, and especially when they were little I used to get the same sour

faces and withering stares.

Joyce , Texas

grandmother to Vaughan's 9, 6 (today!), and Will

(DS) and Jake newly 4.

From:

ansial2004 <ansial2004yahoo (DOT) com>

Subject: " You are one lucky lady "

To: Multiples-DS@ yahoogroups. com

Date: Sunday, October 19, 2008

, 11:18 AM

Last Friday I took a to her speech therapy session. When I was

getting the girls out of the car I noticed this other car parking

beside me. I see an elderly couple and a young boy getting out of the

car.

I usually look like a Christmas tree by the time I'm ready to move,

caring a backpack, having a purse dangling around my neck and caring

2 infant car seats. If you're ever looking to spark a conversation

with complete strangers, this is " the look " you need. It never

fails.Ha!

Anyways, to make a long story short, we get into the building (a

house) and all of us end up in this small hallway. There is a daycare

on the main floor and this is where the boy was coming. He was a

handsome 5 years old and gave a lot of attention to both girls.

The couple I mentioned were his grandparents.

At one point the grandmother looks at the girls, and when she saw

a she said VERY excited " She has Down Syndrome! " ,then comes,

gives me a BIG hug and says in the warmest and most caring voice " You

are one lucky lady! You know that! Right? "

Her little man was 5 and had DS. He was adopted when he was 2 years

old and there were not enough words for her to describe how much joy

he had brought to their family.

I wish for all of you to bump into " my angel " one day. On Friday

she

took the shape of a grandmother and made my day.

I am one lucky lady...

Mommy to

Alyssa (Jun 2004)

a (T21) & Tianna (Nov 2007)

____________ _________ _________ _________ _________ __

[Guest guest]

I get that regularly too... of course mine is generally just from

looking at the triple stroller, no matter the behavior at the moment.

I always smile back and say " In a good way! " and often people just

reply with a smile of their own. After all, if I'm loving it

(regardless, again, of their behavior) then where do they get their

ammo? And yes, my kids can stress me out and send me in a spin as

well (and I'm sure this will be even more so as they get older) but...

The smile and reaction always takes people initially and makes them

realize that we'll make the best of things.

Meredith

>

>

> Subject: " You are one lucky lady "

> To: Multiples-DS

> Date: Sunday, October 19, 2008, 11:18 AM

>

>

> Last Friday I took a to her speech therapy session. When I was

> getting the girls out of the car I noticed this other car parking

> beside me. I see an elderly couple and a young boy getting out of the

> car.

>

> I usually look like a Christmas tree by the time I'm ready to move,

> caring a backpack, having a purse dangling around my neck and caring

> 2 infant car seats. If you're ever looking to spark a conversation

> with complete strangers, this is " the look " you need. It never

> fails.Ha!

>

> Anyways, to make a long story short, we get into the building (a

> house) and all of us end up in this small hallway. There is a daycare

> on the main floor and this is where the boy was coming. He was a

> handsome 5 years old and gave a lot of attention to both girls.

> The couple I mentioned were his grandparents.

>

> At one point the grandmother looks at the girls, and when she saw

> a she said VERY excited " She has Down Syndrome! " ,then comes,

> gives me a BIG hug and says in the warmest and most caring voice " You

> are one lucky lady! You know that! Right? "

>

> Her little man was 5 and had DS. He was adopted when he was 2 years

> old and there were not enough words for her to describe how much joy

> he had brought to their family.

>

> I wish for all of you to bump into " my angel " one day. On Friday she

> took the shape of a grandmother and made my day.

>

> I am one lucky lady...

>

> Mommy to

>

> Alyssa (Jun 2004)

> a (T21) & Tianna (Nov 2007)

>

>

> __________________________________________________

>

[Guest guest]

All ended well we passed DeLand around 6 pm sat night and hit 95north to ville and headed home we met up with friend in daytona and was home by 1 am sunday morning. We will be back in march next year so have to plan it then!Sent from my Verizon Wireless BlackBerryFrom: "igercak" Date: Mon, 8 Dec 2008 22:09:47 -0500To: <Multiples-DS >Subject: I just opened my email and saw your message I guess we'll get together next time. My daughterand I were in Fort lauderdale for a shower and visiting old friends (we use to live there before moving to DeLand). Hope you had a great trip. Irene Update Wanted to say we are still around. I am married to Rusty of 15yrs. We have 2 biological children and 1 adopted son. is 15yrs with DS, Dayton is 10yrs with DS and Autism and is 6yr with DS and CP and FTT . We live southern part of GA USA! Right now we are in sunny Orlando FL at Disney leaving tomorrow for Daytona FL then home on Sun . Irene if u get this email me mabey we can see yall again while we r down here.Sent from my Verizon Wireless BlackBerry

[Guest guest]

Down in south west about hour from Columbus, Macon and 2-3 hours from Valdosta and Atlanta. Where @ in AL are ya? Sent from my Verizon Wireless BlackBerryDate: Tue, 13 Oct 2009 11:28:07 -0500To: multiples-ds <multiples-ds >Subject: RE: where in gA do you live? Im over in AL. We have 4 little ones left at home and 3 of them have DS. Life is never dull around here for sure.Rita Wife to wonderful Hubby for 20 yrsMom to Lyndsey, homegrown twin- 20yrs , homegrown twin - 20yrs Giovanna GRACE, Guatemala, DS - 7 yrsla JOY, Colombia, DS - 7 yrsLilyanna HOPE, Colombia - 6 yrsIsabella FAITH, domestic/ INDIA 4.5 yrs Family blog site with pictures:http://andrewscrew.blogspot.com/To: Multiples-DS From: igercakcfl (DOT) rr.comDate: Tue, 13 Oct 2009 12:05:59 -0400Subject: Hi ,Glad to read an update from you, does seem like you are living the hectic life right now!Sorry to hear about marriage problems, but the kiddos seem to be doing well. We havesome puberty preteen attitude here too so you are not alone.Sounds like a great plan for nursing career who better than you!!!Take it easy.Irene in FLJake 13Zack, , Nick 11 Check-in Day!, 10/5/2009, 12:00 amReminder from: Multiples-DS Yahoo! Group Title: Check-in Day! Date: Monday October 5, 2009Time: All Day Repeats: This event repeats every other month on the first Monday.Notes: If you haven't posted in over 8 weeks - you are now at risk for being removed from Multiples-DS! Please check-in with the group by posting to the group -- even a small update! Lurking is NO longer allowed on this group!!Thanks! Get reminders on your mobile, Yahoo! Messenger, and email.Edit reminder optionsCopyright © 2009 Yahoo! Inc. All Rights Reserved | Terms of Service | Privacy Policy __________ Information from ESET NOD32 Antivirus, version of virus signature database 4483 (20091006)__________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Hotmail: Powerful Free email with security by Microsoft. Get it now.