Weight

[Guest guest]

Yes definitely. It would seem that the metabolism for a number of people begins working more properly. My mother was having a hard time gaining weight with Parkinson's and she was only 107pounds for over 2 years. Within the first 3 weeks of taking LDN she gained 5 pounds. She also stopped needing naps and her voice is intermittently stronger.

Aletha

[low dose naltrexone] Weight

Is there any correlation between LDN use and weight gain or loss that anyone is aware of?

[Guest guest]

Hi

I have been able to convince more than 25 people to try LDN in the last

year. In that group, all of whom were pretty sick with a range of

illnesses, had a very consistent experience with regards to weight gain:

On steroids: LOST weight on LDN

No steroids: gained some weight on LDN, particularly if GI-

related symptoms or multiple infections.

My own experience was that I gained some weight after about a month on

the LDN and then have ended up almost two years later at a stable

weight less than where I started.

Victor

>

> Is there any correlation between LDN use and weight gain or loss that

> anyone is aware of?

>

[Guest guest]

Interesting. I only know my own results.

I was 135 when I was researching LDN. Started LDN 04/17/03.

11/03 I was 124.

11/04 I was 127, so, stable.

07/05 I was suddenly 114.

03/06 I lost more, was 110.

04/26/06, stopped smoking cigarettes, was down more, 108.

05/06, a month later I was 129.

Now, 129-131 range.

Not sure LDN's part, but was pretty much 130-140 range prior to LDN.

fwiw

[low dose naltrexone] Re: Weight

HiI have been able to convince more than 25 people to try LDN in the last year. In that group, all of whom were pretty sick with a range of illnesses, had a very consistent experience with regards to weight gain: On steroids: LOST weight on LDN No steroids: gained some weight on LDN, particularly if GI-related symptoms or multiple infections.My own experience was that I gained some weight after about a month on the LDN and then have ended up almost two years later at a stable weight less than where I started.Victor

[Guest guest]

Hello Amand ~

How are you doing???? I have a question, I am alittle confused. Your boyfriend was normal weight, then he gained some to almost obese, then he lost it again, quickly ? How long of a process was that?

Is a kilo 2 1/4 lbs? Does he have any more symptoms that he is dealing with? I hope you are feeling good. Let me know more about it and I will answer best I can. Love the kitty on a swing ! Hugs ! DedeSee what's free at AOL.com.

[Guest guest]

Patty, thank you, I just read something about that in this last week. Most of what I have been reading is all about the adrenals, thyroid and just whole endocrin-metabolism arena. I just cant remember. Would you call that muscle wasting? It is so hard to know without knowing other things.

~ I am sorry.......I just dont know........and looking it up, it could be so many things........I believe he should see someone.

Blessings ~ DSee what's free at AOL.com.

[Guest guest]

Crohn's disease - Wikipedia, the free encyclopedia

~ It almost sounds like he is having some malabsorption problems and the diarrhea contributed to it more. This site explains alot, but I would think he should go see his doctor, and have blood testing to be sure he is not too off on those. He may need to do some dietary adjustments.

If he is having malabsorption problems they can take care of that.

Keep me posted, and I will keep him in my prayers.

Hugs ~ DedeSee what's free at AOL.com.

[Guest guest]

Dede, What I understand to have said is that he gained BODY FAT, not necessarily weight, to the point of obese. Like he lost alot of muscle strength and tone and now has alot of body fat. , I have some clues, but I'm not sure. PattyDGRAHAMA@... wrote: Hello Amand ~ How are you doing???? I have a

question, I am alittle confused. Your boyfriend was normal weight, then he gained some to almost obese, then he lost it again, quickly ? How long of a process was that? Is a kilo 2 1/4 lbs? Does he have any more symptoms that he is dealing with? I hope you are feeling good. Let me know more about it and I will answer best I can. Love the kitty on a swing ! Hugs ! Dede See what's free at AOL.com.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

, Crohn's Disease is what got Rubin started . . . He was near death when his father brought him some dirt to eat that contained beneficial organisms. Within a few months, he was on his way to health. . . Check out "The Maker's Diet" . . . Love, Rogene

[Guest guest]

I hasve gsined 80 pounds....can not be acxtive twas size 8 all my life...hate th

shame

ci_sme <rileyheart1296@...> wrote: Does anyone else with RA feel

too bad to exercise? I have gained a

substantial amount of weight in the past 2yrs because I simply don't

feel like exercising. I ache and hurt, and am tired from the meds I

am on. Because of the weight gain and feeling lousy, I get depressed

and then I end up eating... Does anyone else have this problem, or

does anyone have any advice?

Raniolo

[Guest guest]

>> Does anyone else with RA feel too bad to exercise? I have gained a

> substantial amount of weight in the past 2yrs because I simply don't

> feel like exercising. I ache and hurt, and am tired from the meds I

> am on. Because of the weight gain and feeling lousy, I get depressed

> and then I end up eating... Does anyone else have this problem, or

> does anyone have any advice?

I feel the same way on most days-in fact due to other non-RA problems

it's worse. Gotta fight through those days you don't want to move

about-turns out it's the best thing going. As for the depression, it

took me close to 5 years to come to grips with the fact that I did not

have to live like that-it took the help of my GP to make me

understand. Depression comes with RA-mentally and because you feel

that you are not what you used to be-and you can't to what you used to

do-THERE IS NO SHAME IN TAKING ANTIDEPRESSANTS!!!!!Should I repeat that?

Good luck and god bless.

>

[Guest guest]

i agree with the other comment about excercising , some days you do have to

force yourself to do it and then you do feel much better . also my local YMCA

has arthritic excercise swimming classes. these are great the movement and

excercise in a pool gives you flexability without putting stress on your tender

joints. do consider looking into it , they work all parts of your body in these

clasees including fingers and wrists etc. its really a great form of excercise

and since its a class there are other people there and you may also make some

new friends

brooklyn90278 <brooklyn90278@...> wrote:

>> Does anyone else with RA feel too bad to exercise? I have gained a

> substantial amount of weight in the past 2yrs because I simply don't

> feel like exercising. I ache and hurt, and am tired from the meds I

> am on. Because of the weight gain and feeling lousy, I get depressed

> and then I end up eating... Does anyone else have this problem, or

> does anyone have any advice?

I feel the same way on most days-in fact due to other non-RA problems

it's worse. Gotta fight through those days you don't want to move

about-turns out it's the best thing going. As for the depression, it

took me close to 5 years to come to grips with the fact that I did not

have to live like that-it took the help of my GP to make me

understand. Depression comes with RA-mentally and because you feel

that you are not what you used to be-and you can't to what you used to

do-THERE IS NO SHAME IN TAKING ANTIDEPRESSANTS!!!!!Should I repeat that?

Good luck and god bless.

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

>

> Does anyone else with RA feel too bad to exercise? I have gained a

> substantial amount of weight in the past 2yrs because I simply don't

> feel like exercising. I ache and hurt, and am tired from the meds I

> am on. Because of the weight gain and feeling lousy, I get depressed

> and then I end up eating... Does anyone else have this problem, or

> does anyone have any advice?

>

I can't offer advice, but I can join you in the weight gain club and I

have the exact same problem. My meds make me so fatigued over the

already fatigued body from RA/AS. SO, I don't exercise either. I am

nearly 50 and diagnosed a little over a year ago. I have never had a

weight problem in my life. Now, it's a constant struggle to maintain

the weight I have gained and not gain more. I live in a rural area

and there are no swimming pools that I could go to and exercise

because I was told that swimming would be the best form of exercise

for my health.

So, if there are suggestions out there, I'd be interested in hearing too.

Take care,

Les

[Guest guest]

I'm in a rural area too... There is no pool here either. My parents have one I

can use during summer, but I'm out of luck the rest of the time. I don't know

how people, especially doctors, say " Just work through the pain. Exercise

through the pain. It'll be better later if you keep exercising. " I have news

for people, they haven't got the poly RA I have. There is no way to exercise

through it. My joints never quit hurting. They never feel better. I've tried

the exercising; it's never made it better. Don't mean to rant...

I'm on plaquenil, aspirin, and neurotin. Anyone else on these meds?

<leslielick777@...> wrote:

--- In , " ci_sme " <rileyheart1296@...>

wrote:

>

> Does anyone else with RA feel too bad to exercise? I have gained a

> substantial amount of weight in the past 2yrs because I simply don't

> feel like exercising. I ache and hurt, and am tired from the meds I

> am on. Because of the weight gain and feeling lousy, I get depressed

> and then I end up eating... Does anyone else have this problem, or

> does anyone have any advice?

>

I can't offer advice, but I can join you in the weight gain club and I

have the exact same problem. My meds make me so fatigued over the

already fatigued body from RA/AS. SO, I don't exercise either. I am

nearly 50 and diagnosed a little over a year ago. I have never had a

weight problem in my life. Now, it's a constant struggle to maintain

the weight I have gained and not gain more. I live in a rural area

and there are no swimming pools that I could go to and exercise

because I was told that swimming would be the best form of exercise

for my health.

So, if there are suggestions out there, I'd be interested in hearing too.

Take care,

Les

---------------------------------

Get easy, one-click access to your favorites. Make your homepage.

[Guest guest]

I am right there with you, rileyheart. I've put on about 35 lbs since the onset

of symptoms, over the course of about 16 months. It's heartbreaking, isn't it? I

had been a heavy girl all my life and was finally in a healthy state, execising

and look good (and feeling good about it!). Now, it is really depressing. Esp.

since I have no energy to work out, even for a long walk. Sucks.

I've started yoga, which I had done a few years back and really enjoyed. While

regular yoga (Hatha) can be pretty hard on the body, find a yoga studio that

offers kundalini yoga and/or even restorative yoga classes. Both are very

forgiving on your body and allow you to use props to support what your own body

can't. Kundalini also promotes healing from within and one of it's purposes is

to heal and boost the immune system.

The good thing about yoga is once you get going with classes, your body will

change and you will see the pounds fall off. Plus you'll hopefully build up

energy to do other things you enjoy as well.

Best of luck to you.

________________________________________________________________________________\

____

Be a better pen pal.

Text or chat with friends inside . See how.

http://overview.mail./

[Guest guest]

I certainly don't exercise when i'm in pain. I eat! but then I feel

like I have to be chewing on something - an anxiety thing. So I eat

some good things (celery & Peanut butter) and some not so good things

(choc chip cookies, licorice) At this time I don't know how much I've

gained, but it's just enough to make my jeans tight!

>

> Does anyone else with RA feel too bad to exercise? I have gained a

> substantial amount of weight in the past 2yrs because I simply don't

> feel like exercising. I ache and hurt, and am tired from the meds I

> am on. Because of the weight gain and feeling lousy, I get

depressed

> and then I end up eating... Does anyone else have this problem, or

> does anyone have any advice?

>

[Guest guest]

I have the exact same problem that you do. Since I found out I had RA,

my weight has sky rocketed. The meds that I am on doesn't help matters

either. During the summer I found that swimming helped somewhat since

it didn't effect my joints as much.

I know my rheumatologist and primary get on me about excersising, but

when you feel lousy, you feel lousy. Your not the only one.

>

> Does anyone else with RA feel too bad to exercise? I have gained a

> substantial amount of weight in the past 2yrs because I simply don't

> feel like exercising. I ache and hurt, and am tired from the meds I

> am on. Because of the weight gain and feeling lousy, I get depressed

> and then I end up eating... Does anyone else have this problem, or

> does anyone have any advice?

>

[Guest guest]

Thanks, I'm glad I'm not the only one.

<man_u8@...> wrote: I have the exact same problem that you

do. Since I found out I had RA,

my weight has sky rocketed. The meds that I am on doesn't help matters

either. During the summer I found that swimming helped somewhat since

it didn't effect my joints as much.

I know my rheumatologist and primary get on me about excersising, but

when you feel lousy, you feel lousy. Your not the only one.

>

> Does anyone else with RA feel too bad to exercise? I have gained a

> substantial amount of weight in the past 2yrs because I simply don't

> feel like exercising. I ache and hurt, and am tired from the meds I

> am on. Because of the weight gain and feeling lousy, I get depressed

> and then I end up eating... Does anyone else have this problem, or

> does anyone have any advice?

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

I have found this group extremely helpfull. People here understand

what your going through and it's refreshing to know that others here

support you and offer advice. My husband tells me he understands, but

he doesn't have RA or fibro and it's hard for him to understand some

days you can't take a shower and have trouble dressing yourself.

Just keep in touch.

> >

> > Does anyone else with RA feel too bad to exercise? I have gained

a

> > substantial amount of weight in the past 2yrs because I simply

don't

> > feel like exercising. I ache and hurt, and am tired from the meds

I

> > am on. Because of the weight gain and feeling lousy, I get

depressed

> > and then I end up eating... Does anyone else have this problem,

or

> > does anyone have any advice?

> >

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

[Guest guest]

I honestly wish I had a husband that didn't understand.

RA is making it very difficult to date. lol. Enough feeling sorry for myself

today though. Thanks to everyone for their advice and understanding.

<man_u8@...> wrote: I have found this group extremely

helpfull. People here understand

what your going through and it's refreshing to know that others here

support you and offer advice. My husband tells me he understands, but

he doesn't have RA or fibro and it's hard for him to understand some

days you can't take a shower and have trouble dressing yourself.

Just keep in touch.

> >

> > Does anyone else with RA feel too bad to exercise? I have gained

a

> > substantial amount of weight in the past 2yrs because I simply

don't

> > feel like exercising. I ache and hurt, and am tired from the meds

I

> > am on. Because of the weight gain and feeling lousy, I get

depressed

> > and then I end up eating... Does anyone else have this problem,

or

> > does anyone have any advice?

> >

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

[Guest guest]

If you are any type of steriod, you will gain weight. I have been on prednisone

for 6 years, I have gone from 145 lbs to 210. I am now coming off the prednisone

and I am starting to drop the weight. I do exercise at least 3 times a week.

Even if it is just walking, walking is good for you. If you get a dog it makes

the walking even more easier. Eat smaller portions and really watch what you

eat, sugar is and soda is so bad for you. Jean

SHANEY DALE <rileyheart1296@...> wrote: Thanks, I'm glad I'm not

the only one.

<man_u8@...> wrote: I have the exact same problem that you do.

Since I found out I had RA,

my weight has sky rocketed. The meds that I am on doesn't help matters

either. During the summer I found that swimming helped somewhat since

it didn't effect my joints as much.

I know my rheumatologist and primary get on me about excersising, but

when you feel lousy, you feel lousy. Your not the only one.

>

> Does anyone else with RA feel too bad to exercise? I have gained a

> substantial amount of weight in the past 2yrs because I simply don't

> feel like exercising. I ache and hurt, and am tired from the meds I

> am on. Because of the weight gain and feeling lousy, I get depressed

> and then I end up eating... Does anyone else have this problem, or

> does anyone have any advice?

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

I also have found this group supportive. Each day is a

trial for me as the pain makes doing everything

difficult. My husband understands but many times I

feel as if I am a burden to him.

I try not to think about the RA and try to function as

best as possible. But when I do think about it and the

damage it has brought on, I start to feel sorry for

myself and have a good cry. After that, I am good for

a week or more and continue to do the best I can.

There are many adjustments which I have had to make

such as I can't put my makeup on with my right hand

anymore as my elbow won't bend that far so I have to

use my left hand; it is difficult to put on socks; it

is difficult to shower each day; it is easier to stay

home so I don't have to get dressed to go out because

it is painful to get dressed; it is difficult to work

in the kitchen because things are heavy or I am unable

to open jars or cans; and so forth. Many things I have

been able to adjust to and work around as most of you

have had to do because life goes on. I sometimes think

about the children who have RA - they must suffer so

much also.

There is not much mentioned about RA in the real world

- not like some things such as breast cancer, MS, or

other diseases. I wonder if there is any support for

finding a cure for RA as there other medical problems.

Whew, that was a vent but I just wanted to thank all

of you for sharing problems, hopes, ideas and support.

Perhaps someday a cure will be found.

--- <man_u8@...> wrote:

> I have found this group extremely helpfull. People

> here understand

> what your going through and it's refreshing to know

> that others here

> support you and offer advice. My husband tells me he

> understands, but

> he doesn't have RA or fibro and it's hard for him to

> understand some

> days you can't take a shower and have trouble

> dressing yourself.

> Just keep in touch.

>

>

>

>

> > >

> > > Does anyone else with RA feel too bad to

> exercise? I have gained

> a

> > > substantial amount of weight in the past 2yrs

> because I simply

> don't

> > > feel like exercising. I ache and hurt, and am

> tired from the meds

> I

> > > am on. Because of the weight gain and feeling

> lousy, I get

> depressed

> > > and then I end up eating... Does anyone else

> have this problem,

> or

> > > does anyone have any advice?

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

[Guest guest]

Does anyone here have APLAS? That's what brought on my RA.

Joanne Dubnicka <windey99@...> wrote: I also have found this

group supportive. Each day is a

trial for me as the pain makes doing everything

difficult. My husband understands but many times I

feel as if I am a burden to him.

I try not to think about the RA and try to function as

best as possible. But when I do think about it and the

damage it has brought on, I start to feel sorry for

myself and have a good cry. After that, I am good for

a week or more and continue to do the best I can.

There are many adjustments which I have had to make

such as I can't put my makeup on with my right hand

anymore as my elbow won't bend that far so I have to

use my left hand; it is difficult to put on socks; it

is difficult to shower each day; it is easier to stay

home so I don't have to get dressed to go out because

it is painful to get dressed; it is difficult to work

in the kitchen because things are heavy or I am unable

to open jars or cans; and so forth. Many things I have

been able to adjust to and work around as most of you

have had to do because life goes on. I sometimes think

about the children who have RA - they must suffer so

much also.

There is not much mentioned about RA in the real world

- not like some things such as breast cancer, MS, or

other diseases. I wonder if there is any support for

finding a cure for RA as there other medical problems.

Whew, that was a vent but I just wanted to thank all

of you for sharing problems, hopes, ideas and support.

Perhaps someday a cure will be found.

--- <man_u8@...> wrote:

> I have found this group extremely helpfull. People

> here understand

> what your going through and it's refreshing to know

> that others here

> support you and offer advice. My husband tells me he

> understands, but

> he doesn't have RA or fibro and it's hard for him to

> understand some

> days you can't take a shower and have trouble

> dressing yourself.

> Just keep in touch.

>

>

>

>

> > >

> > > Does anyone else with RA feel too bad to

> exercise? I have gained

> a

> > > substantial amount of weight in the past 2yrs

> because I simply

> don't

> > > feel like exercising. I ache and hurt, and am

> tired from the meds

> I

> > > am on. Because of the weight gain and feeling

> lousy, I get

> depressed

> > > and then I end up eating... Does anyone else

> have this problem,

> or

> > > does anyone have any advice?

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

[Guest guest]

can i just say that feeling sorry for yourself must be allowed for

people with RA! it's a terrible disease. No one should live with such

constant and horrible pain all the time like we do. And people really

don't understand. Probably they think we are just complaining.

we are thinking about leaving NY after 14 years here. i hear that warm

and dry weather really help RA. is that really true? because all the

places that we are interested in are cold or wet or both.

thanks and hang in there everyone!

lixuan

[Guest guest]

Brooklyn90278,

I know exactly what you are talking about. I have the same problem.

It's like a new inflammation comes to my attention when I make up my

mind to start exercising. This is so frustrating. I don't want to

be this way. The heels on my feet hurt all the time now.

I have high chlorestrol and blood pressure. I am taking medicine for

each. Not to mention all the other medicines I take that have caused

me to gain weight. I have gained 50 lbs in the last 2 years due to

medicine.

I think the biologics make us feel more tired just being on them.

There are days I pray I can wake up from my nap and get things

cleaned around the house.

I don't have an answer for you, but if I find one, I'll let you

know.

Thanks!

Rhonda

> >> Does anyone else with RA feel too bad to exercise? I have

gained a

> > substantial amount of weight in the past 2yrs because I simply

don't

> > feel like exercising. I ache and hurt, and am tired from the

meds I

> > am on. Because of the weight gain and feeling lousy, I get

depressed

> > and then I end up eating... Does anyone else have this problem,

or

> > does anyone have any advice?

>

> I feel the same way on most days-in fact due to other non-RA

problems

> it's worse. Gotta fight through those days you don't want to move

> about-turns out it's the best thing going. As for the depression,

it

> took me close to 5 years to come to grips with the fact that I did

not

> have to live like that-it took the help of my GP to make me

> understand. Depression comes with RA-mentally and because you feel

> that you are not what you used to be-and you can't to what you used

to

> do-THERE IS NO SHAME IN TAKING ANTIDEPRESSANTS!!!!!Should I repeat

that?

> Good luck and god bless.

>

> >

>

[Guest guest]

You have to take it one day at a time. I'm 30 and I am in the

process of getting on SSDI because I can't hold down a job anymore.

Taking a shower is hard for me, (washing my hair is the worst), doing

laundry, cooking etc. I do feel like I am a huge burden on my

husband. He's younger then me and I feel that he should be with

someone who can do things w/ him like hike and play sports. We've

only been married 4 years and we have the rest of our lives

together. He says he's in it for the long haul and will help me and

take care of me on my best days and my worst days.

I think the part of my depression from my RA/fibro. You just have to

take it day by day. On my good days, I can go for a walk and I try

to take advantage of it.

> > > >

> > > > Does anyone else with RA feel too bad to

> > exercise? I have gained

> > a

> > > > substantial amount of weight in the past 2yrs

> > because I simply

> > don't

> > > > feel like exercising. I ache and hurt, and am

> > tired from the meds

> > I

> > > > am on. Because of the weight gain and feeling

> > lousy, I get

> > depressed

> > > > and then I end up eating... Does anyone else

> > have this problem,

> > or

> > > > does anyone have any advice?

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Never miss a thing. Make your homepage.

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> >

> >

> >

> >