Guest guest Report post Posted March 5, 2009 bobbie you are so kind...today i am almost 100% better. i am going back to work tomorrow. my breathing is better unless i try to do to much. the doc put me on robutussin ac and an albuterol inhaler which has helped. Thanks for your kindness love sandra ________________________________ To: Livercirrhosissupport <livercirrhosissupport > Sent: Wednesday, March 4, 2009 12:55:00 PM Subject: Re: Please get well soon. You are definately at higher risk of being exposed to germs. I believe nurses have never been paid what they should be. We as a society have it backwards, paying pro ball players millions for a few games a season, while nurses make peanuts compared. Even thos athletes will some day need a nurse. Love, BObby Sent via BlackBerry from T-Mobile I hope you get to feeling better soon.. Did they swab your mouth to find out for certain if it is pneumonia or bronk trouble? It sounds like you should of been admitted because of this.. What kind of treatment are you on? Messages in this topic (0) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Polls | Calendar Group Email: livercirrhosissupport web address: http://groups.yahoo.com/group/livercirrhosissupport/ MARKETPLACE ________________________________ From kitchen basics to easy recipes - join the Group from Kraft Foods Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Recent Activity * 5 New Members * 1 New LinksVisit Your Group Get in Shape on Yahoo! Groups Find a buddy and lose weight. Yahoo! Groups Stay healthy and discover other people who can help. Group Charity Food Bank Feeding America in tough times .. __,_.._,___ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 16, 2009 Thank you! Lots of hugs and kisses to everyone. Lyncia From: abijann <no_reply > Subject: To: livercirrhosissupport Date: Thursday, April 16, 2009, 10:30 AM My husband has been sick since he was in his early 20's. He didn't have cirrhosis at that time, but had other diseases. His freedom was taken away from him very early on...he had flu like symptoms everyday of his life and pain. It got to the point, that the only place he could go was to work and home....and it kept getting more difficult for him to even go to work. It was a shock when he was diagnosed with cirrhosis of the liver. He never smoked, drank alcohol, used street drugs, and used to walk to the top of mountains without any problem at all, very active his entire life. Now, all the dreams he had in his life disappeared. All he wanted to do and places he wanted to see...he never would. When someone comes down with this disease, it seems that their life has been put on hold and they have to come to terms with it. The only way to get around this, is to develop other dreams and hopes. My husband, to me, is one of the strongest persons I know. Where someone looks at someone else as weak because they have a disease.... I look at it as a strength. He is and has been fighting a battle all alone, cause no one else can be there to fight it for him. I can only support him in this effort. He is the one feeling the pain, he is the one who is suffering, he is the one who has to come to terms of his life situation now.... My husband was at the very top of the transplant list with a MELD score of 40 that the doctors, when they operated on him, changed it to a 41 or 42. He was within hours of passing away, maybe less. Yet, he held on and is now 5 years post transplant. My husband was very quiet about this disease. He didn't want his family to know because they were trying to deal with others in the family who had cancer and alzheimer. It was two years before we finally told his family how very sick he was and that was after his cirrhosis diagnosis and months before he almost passed away. When two of his nieces found out, both of them offered him part of their liver. It took my husband by complete surprise that they loved him so much to do this for him. What really mattered in my husband's life changed. He looked around him and saw people who truly cared and also those who really were just saying they cared. I believe this experience has completely changed his outlook on life and now he feels blest that he has gone through what he has....he has come to know what true love from someone else is and what it is not. I'm telling you this, cause you should not feel alone. So many people are going through the same thing you are. They cannot say they are going through the exact same thing or that they feel the pain you are in...they can share the experience with you. My husband met a younger fellow, a nurse in the hospital, who already had a liver transplant and then decided he wanted to be a nurse to help others. He talked with my husband and more or less told him what the experience was like for him. After that, my husband was not quite as concerned as he was before. Sometimes, friends can become more like family than your own family. That is what we have here. All people here truly grow to know and care about each other so much. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 16, 2009 Thank you for sharing-you are both remarkable people. You are right, my husband also has a new appreciate for life and the people around us. This wonderful group is the most incredible gift I have received since he was diagnosed and I am truly grateful for each and everyone of you....phyllis ________________________________ To: livercirrhosissupport Sent: Thursday, April 16, 2009 7:40:55 AM Subject: Re: Thank you! Lots of hugs and kisses to everyone. Lyncia From: abijann <no_reply@yahoogroup s.com> Subject: To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Thursday, April 16, 2009, 10:30 AM My husband has been sick since he was in his early 20's. He didn't have cirrhosis at that time, but had other diseases. His freedom was taken away from him very early on...he had flu like symptoms everyday of his life and pain. It got to the point, that the only place he could go was to work and home....and it kept getting more difficult for him to even go to work. It was a shock when he was diagnosed with cirrhosis of the liver. He never smoked, drank alcohol, used street drugs, and used to walk to the top of mountains without any problem at all, very active his entire life. Now, all the dreams he had in his life disappeared. All he wanted to do and places he wanted to see...he never would. When someone comes down with this disease, it seems that their life has been put on hold and they have to come to terms with it. The only way to get around this, is to develop other dreams and hopes. My husband, to me, is one of the strongest persons I know. Where someone looks at someone else as weak because they have a disease.... I look at it as a strength. He is and has been fighting a battle all alone, cause no one else can be there to fight it for him. I can only support him in this effort. He is the one feeling the pain, he is the one who is suffering, he is the one who has to come to terms of his life situation now..... My husband was at the very top of the transplant list with a MELD score of 40 that the doctors, when they operated on him, changed it to a 41 or 42. He was within hours of passing away, maybe less. Yet, he held on and is now 5 years post transplant. My husband was very quiet about this disease. He didn't want his family to know because they were trying to deal with others in the family who had cancer and alzheimer. It was two years before we finally told his family how very sick he was and that was after his cirrhosis diagnosis and months before he almost passed away.. When two of his nieces found out, both of them offered him part of their liver. It took my husband by complete surprise that they loved him so much to do this for him. What really mattered in my husband's life changed. He looked around him and saw people who truly cared and also those who really were just saying they cared. I believe this experience has completely changed his outlook on life and now he feels blest that he has gone through what he has....he has come to know what true love from someone else is and what it is not. I'm telling you this, cause you should not feel alone. So many people are going through the same thing you are.. They cannot say they are going through the exact same thing or that they feel the pain you are in...they can share the experience with you. My husband met a younger fellow, a nurse in the hospital, who already had a liver transplant and then decided he wanted to be a nurse to help others. He talked with my husband and more or less told him what the experience was like for him. After that, my husband was not quite as concerned as he was before. Sometimes, friends can become more like family than your own family. That is what we have here. All people here truly grow to know and care about each other so much. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 16, 2009 I know how it feels to have my life saved by a liver transplant. My whole outlook on life has changed since my transplant too. I was amazed and so touched by how many people loved and cared about me, and prayed for me. I feel so very blessed to be here on this earth. I feel like I have to give as much back as I can because there isn't enough I could do to repay for the gifted liver I received. Words can't even describe how grateful and blessed I feel. My husband, , is a blessing too. I've known I've been sick since 1983, and went through a couple of marriages until I met in 2004. I told him right away that I had Hepatitis C and he didn't run away from me. About a month after we met, I got really sick and had to go to the hospital, and he was by my side all the time. It was then that I found out I had cirrhosis. He's been by my side since and spent nearly every night with me in the hospital when I had my transplant, and still waits on me as much as I will let him. Penny > > My husband has been sick since he was in his early 20's. He didn't > have cirrhosis at that time, but had other diseases. His freedom > was taken away from him very early on...he had flu like symptoms > everyday of his life and pain. It got to the point, that the only place he could go was to work and home....and it kept getting more > difficult for him to even go to work. It was a shock when he was > diagnosed with cirrhosis of the liver. He never smoked, drank alcohol, > used street drugs, and used to walk to the top of mountains without > any problem at all, very active his entire life. > Now, all the dreams he had in his life disappeared. All he wanted > to do and places he wanted to see...he never would. > When someone comes down with this disease, it seems that their life > has been put on hold and they have to come to terms with it. > The only way to get around this, is to develop other dreams and > hopes. > > My husband, to me, is one of the strongest persons I know. Where > someone looks at someone else as weak because they have a disease.... > I look at it as a strength. He is and has been fighting a battle > all alone, cause no one else can be there to fight it for him. > I can only support him in this effort. He is the one feeling the > pain, he is the one who is suffering, he is the one who has to > come to terms of his life situation now.... > My husband was at the very top of the transplant list with a > MELD score of 40 that the doctors, when they operated on him, > changed it to a 41 or 42. He was within hours of passing away, > maybe less. Yet, he held on and is now 5 years post transplant. > > My husband was very quiet about this disease. He didn't want > his family to know because they were trying to deal with others > in the family who had cancer and alzheimer. It was two years > before we finally told his family how very sick he was and that > was after his cirrhosis diagnosis and months before he almost > passed away. When two of his nieces found out, both of them > offered him part of their liver. It took my husband by complete > surprise that they loved him so much to do this for him. > > What really mattered in my husband's life changed. He looked > around him and saw people who truly cared and also those who > really were just saying they cared. I believe this experience > has completely changed his outlook on life and now he feels > blest that he has gone through what he has....he has come > to know what true love from someone else is and what it is not. > > I'm telling you this, cause you should not feel alone. > So many people are going through the same thing you are. > They cannot say they are going through the exact same thing or that > they feel the pain you are in...they can share the experience with > you. > > My husband met a younger fellow, a nurse in the hospital, who > already had a liver transplant and then decided he wanted to be > a nurse to help others. He talked with my husband and more or > less told him what the experience was like for him. After that, > my husband was not quite as concerned as he was before. > > Sometimes, friends can become more like family than your own > family. That is what we have here. All people here truly grow > to know and care about each other so much. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 16, 2009 Penny, I am so blessed to have you in my life. To give me so much hope and wisdom. I am here fore you if you need me. Lots of hugs and kisses to everyone. Lyncia Subject: Re: To: livercirrhosissupport Date: Thursday, April 16, 2009, 4:40 PM I know how it feels to have my life saved by a liver transplant. My whole outlook on life has changed since my transplant too. I was amazed and so touched by how many people loved and cared about me, and prayed for me. I feel so very blessed to be here on this earth. I feel like I have to give as much back as I can because there isn't enough I could do to repay for the gifted liver I received. Words can't even describe how grateful and blessed I feel. My husband, , is a blessing too. I've known I've been sick since 1983, and went through a couple of marriages until I met in 2004. I told him right away that I had Hepatitis C and he didn't run away from me. About a month after we met, I got really sick and had to go to the hospital, and he was by my side all the time. It was then that I found out I had cirrhosis. He's been by my side since and spent nearly every night with me in the hospital when I had my transplant, and still waits on me as much as I will let him. Penny > > My husband has been sick since he was in his early 20's. He didn't > have cirrhosis at that time, but had other diseases. His freedom > was taken away from him very early on...he had flu like symptoms > everyday of his life and pain. It got to the point, that the only place he could go was to work and home....and it kept getting more > difficult for him to even go to work. It was a shock when he was > diagnosed with cirrhosis of the liver. He never smoked, drank alcohol, > used street drugs, and used to walk to the top of mountains without > any problem at all, very active his entire life. > Now, all the dreams he had in his life disappeared. All he wanted > to do and places he wanted to see...he never would. > When someone comes down with this disease, it seems that their life > has been put on hold and they have to come to terms with it. > The only way to get around this, is to develop other dreams and > hopes. > > My husband, to me, is one of the strongest persons I know. Where > someone looks at someone else as weak because they have a disease.... > I look at it as a strength. He is and has been fighting a battle > all alone, cause no one else can be there to fight it for him. > I can only support him in this effort. He is the one feeling the > pain, he is the one who is suffering, he is the one who has to > come to terms of his life situation now.... > My husband was at the very top of the transplant list with a > MELD score of 40 that the doctors, when they operated on him, > changed it to a 41 or 42. He was within hours of passing away, > maybe less. Yet, he held on and is now 5 years post transplant. > > My husband was very quiet about this disease. He didn't want > his family to know because they were trying to deal with others > in the family who had cancer and alzheimer. It was two years > before we finally told his family how very sick he was and that > was after his cirrhosis diagnosis and months before he almost > passed away. When two of his nieces found out, both of them > offered him part of their liver. It took my husband by complete > surprise that they loved him so much to do this for him. > > What really mattered in my husband's life changed. He looked > around him and saw people who truly cared and also those who > really were just saying they cared. I believe this experience > has completely changed his outlook on life and now he feels > blest that he has gone through what he has....he has come > to know what true love from someone else is and what it is not. > > I'm telling you this, cause you should not feel alone. > So many people are going through the same thing you are. > They cannot say they are going through the exact same thing or that > they feel the pain you are in...they can share the experience with > you. > > My husband met a younger fellow, a nurse in the hospital, who > already had a liver transplant and then decided he wanted to be > a nurse to help others. He talked with my husband and more or > less told him what the experience was like for him. After that, > my husband was not quite as concerned as he was before. > > Sometimes, friends can become more like family than your own > family. That is what we have here. All people here truly grow > to know and care about each other so much. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 30, 2009 you gave me chills...how long after finally arriving at the transplant center did he receive a liver. did they have one available the day you left your hometown hosp. to go the the transplant center? ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Thursday, April 30, 2009 11:12:37 PM Subject: It takes about three hours for us to reach our Transplant Center. The first time my husband was called for the transplant.. .we kept in touch with the Transplant Center using our cell phone on the way down. All bags and everything we needed was already in the vehicle when they called...I made sure of it. I had the vehicle inspected and full of gasoline, and also had the mechanic check it out and the tires also. When we got down there, we were informed that they had tried to get in touch with the first guy...but, could not contact him. The doctor told us that they were not going to transplant the organ because they considered it not to be any good. My husband threw up on the way down...he was very sick. On the way home, he said to me that up until that time...the transplant wasn't really a reality to him. He said it was hard to explain that he knew what was taking place around him and what was said ...but his mind really didn't comprehend it all or accept it. The second time we got the call, we were told not to come to the hospital. We were to wait until they called again. They said that another Transplant Center in that region had first chance at the organ and that if they didn't use the organ for the first patient on their list, then our Transplant Center would receive it. We waited patiently... they used the organ. He didn't make it till the third call from the transplant center. The Meld score nurse got in touch with us and told us that his Meld score was 40. She was shock that my husband wasn't in a coma. I left her talk with my husband for a brief time period. I asked her what we were to do now. She told me to get in touch with our Hepatologist right away. When I called, I about fell off my chair...the doctor answered the phone. When I told her and asked her if I should bring my husband to the Transplant Center..she said no, not until an organ is available. She told me to take him to our hometown hospital and have more blood work taken. Which I did and when they faxed the results the next morning...I got in touch with her and since some of his labs were in the critical range and his blood pressure was dropping fast... I took him to the hometown hospital and he was suppose to be transport by helicopter to the transplant hospital...but because the weather was so bad down where the Transplant Center was... they took him by ambulance instead. When he reached the transplant Center... the doctors informed him that unless they found an organ for him...he would not be returning home. The Transplant Surgeon told me that my husband was the sickest patient he has ever transplanted with an organ and that they considered him in the range of 41 or 42 when he received the donor organ. Miracles happen. That is why I tell people not to give up hope. My husband was as close to death as anyone could possibly get. When I stood back and looked at all that took place... no human could of made everything fall into place that night. It was like it was perfected to be just so. I really believe that God saw that things worked out so perfectly and they did. ............. ......... ......... ......... ......... . Usually, they don't inform a patient how many people are ahead of them, until they reach very high on the list. There may be others who have the same MELD score as you do...and the doctors will decide whether they medically need the transplant sooner than you or that you have been so compliant in what they want you to do..that they think you might be sure that the organ will last once the transplant is over, better. There may be other factors that I don't know about, also. Hope this has been of some help to you. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 30, 2009 how long did you have to stay at the center? ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Thursday, April 30, 2009 11:12:37 PM Subject: It takes about three hours for us to reach our Transplant Center. The first time my husband was called for the transplant.. .we kept in touch with the Transplant Center using our cell phone on the way down. All bags and everything we needed was already in the vehicle when they called...I made sure of it. I had the vehicle inspected and full of gasoline, and also had the mechanic check it out and the tires also. When we got down there, we were informed that they had tried to get in touch with the first guy...but, could not contact him. The doctor told us that they were not going to transplant the organ because they considered it not to be any good. My husband threw up on the way down...he was very sick. On the way home, he said to me that up until that time...the transplant wasn't really a reality to him. He said it was hard to explain that he knew what was taking place around him and what was said ...but his mind really didn't comprehend it all or accept it. The second time we got the call, we were told not to come to the hospital. We were to wait until they called again. They said that another Transplant Center in that region had first chance at the organ and that if they didn't use the organ for the first patient on their list, then our Transplant Center would receive it. We waited patiently... they used the organ. He didn't make it till the third call from the transplant center. The Meld score nurse got in touch with us and told us that his Meld score was 40. She was shock that my husband wasn't in a coma. I left her talk with my husband for a brief time period. I asked her what we were to do now. She told me to get in touch with our Hepatologist right away. When I called, I about fell off my chair...the doctor answered the phone. When I told her and asked her if I should bring my husband to the Transplant Center..she said no, not until an organ is available. She told me to take him to our hometown hospital and have more blood work taken. Which I did and when they faxed the results the next morning...I got in touch with her and since some of his labs were in the critical range and his blood pressure was dropping fast.... I took him to the hometown hospital and he was suppose to be transport by helicopter to the transplant hospital...but because the weather was so bad down where the Transplant Center was... they took him by ambulance instead. When he reached the transplant Center... the doctors informed him that unless they found an organ for him...he would not be returning home. The Transplant Surgeon told me that my husband was the sickest patient he has ever transplanted with an organ and that they considered him in the range of 41 or 42 when he received the donor organ. Miracles happen. That is why I tell people not to give up hope. My husband was as close to death as anyone could possibly get. When I stood back and looked at all that took place... no human could of made everything fall into place that night. It was like it was perfected to be just so.. I really believe that God saw that things worked out so perfectly and they did. ............. ......... ......... ......... ......... . Usually, they don't inform a patient how many people are ahead of them, until they reach very high on the list. There may be others who have the same MELD score as you do...and the doctors will decide whether they medically need the transplant sooner than you or that you have been so compliant in what they want you to do..that they think you might be sure that the organ will last once the transplant is over, better. There may be other factors that I don't know about, also. Hope this has been of some help to you. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 30, 2009 Thank you so very much for your story. I am awaiting a dual transplant and had not thought that after the call they could send you home. Luckily I am only about 30 minutes away from the transplant center. Lots of hugs and kisses to everyone. Lyncia From: abijann <no_reply > Subject: To: livercirrhosissupport Date: Thursday, April 30, 2009, 10:12 PM It takes about three hours for us to reach our Transplant Center. The first time my husband was called for the transplant.. .we kept in touch with the Transplant Center using our cell phone on the way down. All bags and everything we needed was already in the vehicle when they called...I made sure of it. I had the vehicle inspected and full of gasoline, and also had the mechanic check it out and the tires also. When we got down there, we were informed that they had tried to get in touch with the first guy...but, could not contact him. The doctor told us that they were not going to transplant the organ because they considered it not to be any good. My husband threw up on the way down...he was very sick. On the way home, he said to me that up until that time...the transplant wasn't really a reality to him. He said it was hard to explain that he knew what was taking place around him and what was said ...but his mind really didn't comprehend it all or accept it. The second time we got the call, we were told not to come to the hospital. We were to wait until they called again. They said that another Transplant Center in that region had first chance at the organ and that if they didn't use the organ for the first patient on their list, then our Transplant Center would receive it. We waited patiently... they used the organ. He didn't make it till the third call from the transplant center. The Meld score nurse got in touch with us and told us that his Meld score was 40. She was shock that my husband wasn't in a coma. I left her talk with my husband for a brief time period. I asked her what we were to do now. She told me to get in touch with our Hepatologist right away. When I called, I about fell off my chair...the doctor answered the phone. When I told her and asked her if I should bring my husband to the Transplant Center..she said no, not until an organ is available. She told me to take him to our hometown hospital and have more blood work taken. Which I did and when they faxed the results the next morning...I got in touch with her and since some of his labs were in the critical range and his blood pressure was dropping fast... I took him to the hometown hospital and he was suppose to be transport by helicopter to the transplant hospital...but because the weather was so bad down where the Transplant Center was... they took him by ambulance instead. When he reached the transplant Center... the doctors informed him that unless they found an organ for him...he would not be returning home. The Transplant Surgeon told me that my husband was the sickest patient he has ever transplanted with an organ and that they considered him in the range of 41 or 42 when he received the donor organ. Miracles happen. That is why I tell people not to give up hope. My husband was as close to death as anyone could possibly get. When I stood back and looked at all that took place... no human could of made everything fall into place that night. It was like it was perfected to be just so. I really believe that God saw that things worked out so perfectly and they did. ............. ......... ......... ......... ......... . Usually, they don't inform a patient how many people are ahead of them, until they reach very high on the list. There may be others who have the same MELD score as you do...and the doctors will decide whether they medically need the transplant sooner than you or that you have been so compliant in what they want you to do..that they think you might be sure that the organ will last once the transplant is over, better. There may be other factors that I don't know about, also. Hope this has been of some help to you. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 30, 2009 My transplant hospital is an hour away. When I had my transplant, I was already in the hospital when I got a call on my cell phone to get to the hospital because they found a match. I was only called that one time. I was on the list for 32 days when I got my liver, and spent 10 days in the hospital after the transplant before being released. I was in the hospital on the transplant floor a total of 27 days before and after the transplant. I had my umbilical hernia fixed first because it was almost ready to burst. My MELD was 29 at the time of transplant. I threw up on a daily basis several times a day for about two weeks or so before I went to the hospital. Before a match was found, the surgeon told me I would need to have a live donor to donate part of their liver to me so that I would survive long enough for a match to be found, and I would have needed two transplant surgeries because the partial liver wouldn't be good enough since I have Hepatitis C. I was lucky that a match was found later that same night that I was told about needing a live donor. The last time I saw my hepatologist in March, he told me that I could call him direct if I needed to. He told me I didn't have to go through my coordinator if I needed him. I thought I would add my experience here too, although you're all probably tired of hearing about it. I believe miracles happen too! Penny > > It takes about three hours for us to reach our > Transplant Center. The first time my husband > was called for the transplant...we kept in touch > with the Transplant Center using our cell phone > on the way down. All bags and everything we needed > was already in the vehicle when they called...I > made sure of it. I had the vehicle inspected and > full of gasoline, and also had the mechanic check > it out and the tires also. When we got down there, > we were informed that they had tried to get in touch > with the first guy...but, could not contact him. > The doctor told us that they were not going to > transplant the organ because they considered it > not to be any good. > My husband threw up on the way down...he was very > sick. On the way home, he said to me that up until > that time...the transplant wasn't really a reality to > him. He said it was hard to explain that he knew > what was taking place around him and what was said > ..but his mind really didn't comprehend it all or > accept it. > > The second time we got the call, we were told not > to come to the hospital. We were to wait until > they called again. They said that another Transplant > Center in that region had first chance at the organ > and that if they didn't use the organ for the first > patient on their list, then our Transplant Center > would receive it. We waited patiently...they > used the organ. > > He didn't make it till the third call from the > transplant center. The Meld score nurse got in > touch with us and told us that his Meld score > was 40. She was shock that my husband wasn't in > a coma. I left her talk with my husband for a > brief time period. I asked her what we were to > do now. She told me to get in touch with our > Hepatologist right away. When I called, I > about fell off my chair...the doctor answered the > phone. When I told her and asked her if I should > bring my husband to the Transplant Center..she said > no, not until an organ is available. She told me > to take him to our hometown hospital and have more > blood work taken. Which I did and when they faxed > the results the next morning...I got in touch with > her and since some of his labs were in the critical > range and his blood pressure was dropping fast... > I took him to the hometown hospital and he > was suppose to be transport by helicopter to the > transplant hospital...but because the weather was so > bad down where the Transplant Center was... > they took him by ambulance instead. > When he reached the transplant Center... > the doctors informed him that unless they found an > organ for him...he would not be returning home. > The Transplant Surgeon told me that > my husband was the sickest patient he has ever > transplanted with an organ and that they > considered him in the range of 41 or 42 when he > received the donor organ. Miracles happen. > That is why I tell people not to give up hope. > My husband was as close to death as anyone could > possibly get. > > When I stood back and looked at all that took place... > no human could of made everything fall into place > that night. It was like it was perfected to be just > so. I really believe that God saw that things worked > out so perfectly and they did. > > ................................................. > > Usually, they don't inform a patient how many people > are ahead of them, until they reach very high on the > list. There may be others who have the same MELD > score as you do...and the doctors will decide > whether they medically need the transplant sooner than you or > that you have been so compliant in what they want you > to do..that they think you might be sure that the organ > will last once the transplant is over, better. > There may be other factors that I don't know about, also. > > Hope this has been of some help to you. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 1, 2009 they told us that we would have to stay in the hospital town house for approx 1month to 6 weeks till he is well and stable enough to go home ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Friday, May 1, 2009 12:00:15 AM Subject: My husband has many medical problems. You have to take that into consideration when I tell you that he was in the hospital more than he was out of the hospital for about 1 1/2 years. He got to come home a few days and then right back in he went. I was with him right in the hospital...the nurses let me stay right with him then whether he was in the ICU or other places. We practically call that place our second home. Most transplant patients leave the hospital in two weeks and only return if the organ may start to go into rejection. The clinic appointments are once a week with the Transplant Team and they move them out as a patient becomes better, normally. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 1, 2009 your story is amazing ....question...do you know if in case of life or death and they have to use a partial do they attach to the bad one or do they just use the partial...i realize this is only temporary short term until a donor comes available... my children asked...i know to tell them some but ....just thought i would ask ....sandra ________________________________ To: livercirrhosissupport Sent: Friday, May 1, 2009 12:06:10 AM Subject: Re: My transplant hospital is an hour away. When I had my transplant, I was already in the hospital when I got a call on my cell phone to get to the hospital because they found a match. I was only called that one time. I was on the list for 32 days when I got my liver, and spent 10 days in the hospital after the transplant before being released. I was in the hospital on the transplant floor a total of 27 days before and after the transplant. I had my umbilical hernia fixed first because it was almost ready to burst. My MELD was 29 at the time of transplant. I threw up on a daily basis several times a day for about two weeks or so before I went to the hospital. Before a match was found, the surgeon told me I would need to have a live donor to donate part of their liver to me so that I would survive long enough for a match to be found, and I would have needed two transplant surgeries because the partial liver wouldn't be good enough since I have Hepatitis C. I was lucky that a match was found later that same night that I was told about needing a live donor. The last time I saw my hepatologist in March, he told me that I could call him direct if I needed to. He told me I didn't have to go through my coordinator if I needed him. I thought I would add my experience here too, although you're all probably tired of hearing about it. I believe miracles happen too! Penny > > It takes about three hours for us to reach our > Transplant Center. The first time my husband > was called for the transplant.. .we kept in touch > with the Transplant Center using our cell phone > on the way down. All bags and everything we needed > was already in the vehicle when they called...I > made sure of it. I had the vehicle inspected and > full of gasoline, and also had the mechanic check > it out and the tires also. When we got down there, > we were informed that they had tried to get in touch > with the first guy...but, could not contact him. > The doctor told us that they were not going to > transplant the organ because they considered it > not to be any good. > My husband threw up on the way down...he was very > sick. On the way home, he said to me that up until > that time...the transplant wasn't really a reality to > him. He said it was hard to explain that he knew > what was taking place around him and what was said > ..but his mind really didn't comprehend it all or > accept it. > > The second time we got the call, we were told not > to come to the hospital. We were to wait until > they called again. They said that another Transplant > Center in that region had first chance at the organ > and that if they didn't use the organ for the first > patient on their list, then our Transplant Center > would receive it. We waited patiently... they > used the organ. > > He didn't make it till the third call from the > transplant center. The Meld score nurse got in > touch with us and told us that his Meld score > was 40. She was shock that my husband wasn't in > a coma. I left her talk with my husband for a > brief time period. I asked her what we were to > do now. She told me to get in touch with our > Hepatologist right away. When I called, I > about fell off my chair...the doctor answered the > phone. When I told her and asked her if I should > bring my husband to the Transplant Center..she said > no, not until an organ is available. She told me > to take him to our hometown hospital and have more > blood work taken. Which I did and when they faxed > the results the next morning...I got in touch with > her and since some of his labs were in the critical > range and his blood pressure was dropping fast... > I took him to the hometown hospital and he > was suppose to be transport by helicopter to the > transplant hospital...but because the weather was so > bad down where the Transplant Center was... > they took him by ambulance instead. > When he reached the transplant Center... > the doctors informed him that unless they found an > organ for him...he would not be returning home. > The Transplant Surgeon told me that > my husband was the sickest patient he has ever > transplanted with an organ and that they > considered him in the range of 41 or 42 when he > received the donor organ. Miracles happen. > That is why I tell people not to give up hope. > My husband was as close to death as anyone could > possibly get. > > When I stood back and looked at all that took place.... > no human could of made everything fall into place > that night. It was like it was perfected to be just > so. I really believe that God saw that things worked > out so perfectly and they did. > > ............. ......... ......... ......... ......... . > > Usually, they don't inform a patient how many people > are ahead of them, until they reach very high on the > list. There may be others who have the same MELD > score as you do...and the doctors will decide > whether they medically need the transplant sooner than you or > that you have been so compliant in what they want you > to do..that they think you might be sure that the organ > will last once the transplant is over, better. > There may be other factors that I don't know about, also. > > Hope this has been of some help to you. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 1, 2009 Your experience is mind-boggling. I cannot imagine the emotional roller coaster that you were on. The 3-hour ride to the transplant center by yourself had to be a tough one. It is surprising how when we have to, we are able to handle so much stress and keep sane. Then later we look back and wonder how we got through it. Thankfully a miracle did happen for you and your husband and the end result was positive. This definitely is not an experience for the faint-hearted. I am glad that I discovered this group last Saturday night. It has been very insightful. I have gotten so much useful personal information, which I am very thankful for. I guess there was a reason that I was having a sleepless night and started to search the web. From: abijann <no_reply > Subject: To: livercirrhosissupport Date: Thursday, April 30, 2009, 11:12 PM It takes about three hours for us to reach our Transplant Center. The first time my husband was called for the transplant.. .we kept in touch with the Transplant Center using our cell phone on the way down. All bags and everything we needed was already in the vehicle when they called...I made sure of it. I had the vehicle inspected and full of gasoline, and also had the mechanic check it out and the tires also. When we got down there, we were informed that they had tried to get in touch with the first guy...but, could not contact him. The doctor told us that they were not going to transplant the organ because they considered it not to be any good. My husband threw up on the way down...he was very sick. On the way home, he said to me that up until that time...the transplant wasn't really a reality to him. He said it was hard to explain that he knew what was taking place around him and what was said ...but his mind really didn't comprehend it all or accept it. The second time we got the call, we were told not to come to the hospital. We were to wait until they called again. They said that another Transplant Center in that region had first chance at the organ and that if they didn't use the organ for the first patient on their list, then our Transplant Center would receive it. We waited patiently... they used the organ. He didn't make it till the third call from the transplant center. The Meld score nurse got in touch with us and told us that his Meld score was 40. She was shock that my husband wasn't in a coma. I left her talk with my husband for a brief time period. I asked her what we were to do now. She told me to get in touch with our Hepatologist right away. When I called, I about fell off my chair...the doctor answered the phone. When I told her and asked her if I should bring my husband to the Transplant Center..she said no, not until an organ is available. She told me to take him to our hometown hospital and have more blood work taken. Which I did and when they faxed the results the next morning...I got in touch with her and since some of his labs were in the critical range and his blood pressure was dropping fast... I took him to the hometown hospital and he was suppose to be transport by helicopter to the transplant hospital...but because the weather was so bad down where the Transplant Center was... they took him by ambulance instead. When he reached the transplant Center... the doctors informed him that unless they found an organ for him...he would not be returning home. The Transplant Surgeon told me that my husband was the sickest patient he has ever transplanted with an organ and that they considered him in the range of 41 or 42 when he received the donor organ. Miracles happen. That is why I tell people not to give up hope. My husband was as close to death as anyone could possibly get. When I stood back and looked at all that took place... no human could of made everything fall into place that night. It was like it was perfected to be just so. I really believe that God saw that things worked out so perfectly and they did. ............. ......... ......... ......... ......... . Usually, they don't inform a patient how many people are ahead of them, until they reach very high on the list. There may be others who have the same MELD score as you do...and the doctors will decide whether they medically need the transplant sooner than you or that you have been so compliant in what they want you to do..that they think you might be sure that the organ will last once the transplant is over, better. There may be other factors that I don't know about, also. Hope this has been of some help to you. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 1, 2009 We are sp glad that you are here. It is a wonderful group and so very informative. Welcome! Lots of hugs and kisses to everyone. Lyncia From: abijann <no_reply@yahoogroup s.com> Subject: To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Thursday, April 30, 2009, 11:12 PM It takes about three hours for us to reach our Transplant Center. The first time my husband was called for the transplant.. .we kept in touch with the Transplant Center using our cell phone on the way down. All bags and everything we needed was already in the vehicle when they called...I made sure of it. I had the vehicle inspected and full of gasoline, and also had the mechanic check it out and the tires also. When we got down there, we were informed that they had tried to get in touch with the first guy...but, could not contact him. The doctor told us that they were not going to transplant the organ because they considered it not to be any good. My husband threw up on the way down...he was very sick. On the way home, he said to me that up until that time...the transplant wasn't really a reality to him. He said it was hard to explain that he knew what was taking place around him and what was said ...but his mind really didn't comprehend it all or accept it. The second time we got the call, we were told not to come to the hospital. We were to wait until they called again. They said that another Transplant Center in that region had first chance at the organ and that if they didn't use the organ for the first patient on their list, then our Transplant Center would receive it. We waited patiently... they used the organ. He didn't make it till the third call from the transplant center. The Meld score nurse got in touch with us and told us that his Meld score was 40. She was shock that my husband wasn't in a coma. I left her talk with my husband for a brief time period. I asked her what we were to do now. She told me to get in touch with our Hepatologist right away. When I called, I about fell off my chair...the doctor answered the phone. When I told her and asked her if I should bring my husband to the Transplant Center..she said no, not until an organ is available. She told me to take him to our hometown hospital and have more blood work taken. Which I did and when they faxed the results the next morning...I got in touch with her and since some of his labs were in the critical range and his blood pressure was dropping fast... I took him to the hometown hospital and he was suppose to be transport by helicopter to the transplant hospital...but because the weather was so bad down where the Transplant Center was... they took him by ambulance instead. When he reached the transplant Center... the doctors informed him that unless they found an organ for him...he would not be returning home. The Transplant Surgeon told me that my husband was the sickest patient he has ever transplanted with an organ and that they considered him in the range of 41 or 42 when he received the donor organ. Miracles happen. That is why I tell people not to give up hope. My husband was as close to death as anyone could possibly get. When I stood back and looked at all that took place... no human could of made everything fall into place that night. It was like it was perfected to be just so. I really believe that God saw that things worked out so perfectly and they did. ............. ......... ......... ......... ......... . Usually, they don't inform a patient how many people are ahead of them, until they reach very high on the list. There may be others who have the same MELD score as you do...and the doctors will decide whether they medically need the transplant sooner than you or that you have been so compliant in what they want you to do..that they think you might be sure that the organ will last once the transplant is over, better. There may be other factors that I don't know about, also. Hope this has been of some help to you. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 1, 2009 That is something else to consider with dual listing. You do need to stay close to the center post transplant as you have so much blood work and appointments. Also of course you may have to get there quickly if any problems arise. It is not uncommon to have issues post transplant that require additional hospitalzation. I did go back in for a couple of stays and had to have bile ducts opened up with stents, receive blood, various things. My kidneys also totally shut down after a major rejection episode post transplant that kept me in the hospital 3 weeks after transplant and put me on dialysis for awhile. (They are functioning well now). There is cost associated with all that and your insurance may or may not cover out of town food and lodging. > > they told us that we would have to stay in the hospital town house for approx 1month to 6 weeks till he is well and stable enough to go home > > > > > ________________________________ > From: abijann <no_reply > > To: livercirrhosissupport > Sent: Friday, May 1, 2009 12:00:15 AM > Subject: > > > > > > My husband has many medical problems. You have to take that into > consideration when I tell you that he was in the hospital more than > he was out of the hospital for about 1 1/2 years. He got to come > home a few days and then right back in he went. I was with him > right in the hospital...the nurses let me stay right with him then > whether he was in the ICU or other places. We practically call > that place our second home. > > Most transplant patients leave the hospital in two weeks and only > return if the organ may start to go into rejection. > The clinic appointments are once a week with the Transplant Team and > they move them out as a patient becomes better, normally. > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 1, 2009 They didn't come right out and say, but I was under the impression that they would take out the old liver, and put in the partial liver until a whole liver became available. Penny > > > > It takes about three hours for us to reach our > > Transplant Center. The first time my husband > > was called for the transplant.. .we kept in touch > > with the Transplant Center using our cell phone > > on the way down. All bags and everything we needed > > was already in the vehicle when they called...I > > made sure of it. I had the vehicle inspected and > > full of gasoline, and also had the mechanic check > > it out and the tires also. When we got down there, > > we were informed that they had tried to get in touch > > with the first guy...but, could not contact him. > > The doctor told us that they were not going to > > transplant the organ because they considered it > > not to be any good. > > My husband threw up on the way down...he was very > > sick. On the way home, he said to me that up until > > that time...the transplant wasn't really a reality to > > him. He said it was hard to explain that he knew > > what was taking place around him and what was said > > ..but his mind really didn't comprehend it all or > > accept it. > > > > The second time we got the call, we were told not > > to come to the hospital. We were to wait until > > they called again. They said that another Transplant > > Center in that region had first chance at the organ > > and that if they didn't use the organ for the first > > patient on their list, then our Transplant Center > > would receive it. We waited patiently... they > > used the organ. > > > > He didn't make it till the third call from the > > transplant center. The Meld score nurse got in > > touch with us and told us that his Meld score > > was 40. She was shock that my husband wasn't in > > a coma. I left her talk with my husband for a > > brief time period. I asked her what we were to > > do now. She told me to get in touch with our > > Hepatologist right away. When I called, I > > about fell off my chair...the doctor answered the > > phone. When I told her and asked her if I should > > bring my husband to the Transplant Center..she said > > no, not until an organ is available. She told me > > to take him to our hometown hospital and have more > > blood work taken. Which I did and when they faxed > > the results the next morning...I got in touch with > > her and since some of his labs were in the critical > > range and his blood pressure was dropping fast... > > I took him to the hometown hospital and he > > was suppose to be transport by helicopter to the > > transplant hospital...but because the weather was so > > bad down where the Transplant Center was... > > they took him by ambulance instead. > > When he reached the transplant Center... > > the doctors informed him that unless they found an > > organ for him...he would not be returning home. > > The Transplant Surgeon told me that > > my husband was the sickest patient he has ever > > transplanted with an organ and that they > > considered him in the range of 41 or 42 when he > > received the donor organ. Miracles happen. > > That is why I tell people not to give up hope. > > My husband was as close to death as anyone could > > possibly get. > > > > When I stood back and looked at all that took place.... > > no human could of made everything fall into place > > that night. It was like it was perfected to be just > > so. I really believe that God saw that things worked > > out so perfectly and they did. > > > > ............. ......... ......... ......... ......... . > > > > Usually, they don't inform a patient how many people > > are ahead of them, until they reach very high on the > > list. There may be others who have the same MELD > > score as you do...and the doctors will decide > > whether they medically need the transplant sooner than you or > > that you have been so compliant in what they want you > > to do..that they think you might be sure that the organ > > will last once the transplant is over, better. > > There may be other factors that I don't know about, also. > > > > Hope this has been of some help to you. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 1, 2009 I was told because of having Hepatitis C, a partial liver wouldn't be able to regenerate like someone without Hepatitis C because the virus is stronger and faster after a transplant, and would damage the partial liver too fast, so it is just temporary. When I was in the hospital, most of the patients there had kidney transplants, and it looked to me like they put the new kidney in the front of the body. Would that be right? I don't know anything about kidney transplants. Penny > > I believe precious penny is right about them removing the old > liver even though you may need another liver later on. > When a person has a live donor, they only use part of the liver > to transplant. Both parts of the liver (part they leave in the > donor and the part that gets transplanted) will regenerate into > a whole liver in time. How effective that happens in someone with > Hepatitis C...I'm not sure about. If you find out differently, > please let us know[ that's a good question ] > > When they do kidney transplants, they let the old kidney in the > patient and place the new kidney lower down in the body. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 2, 2009 They told me that my new kidney would be below the waist to the left........wonder if they would do a tummy tuck also......just joking. Lots of hugs and kisses to everyone. Lyncia Subject: Re: To: livercirrhosissupport Date: Friday, May 1, 2009, 10:37 PM I was told because of having Hepatitis C, a partial liver wouldn't be able to regenerate like someone without Hepatitis C because the virus is stronger and faster after a transplant, and would damage the partial liver too fast, so it is just temporary. When I was in the hospital, most of the patients there had kidney transplants, and it looked to me like they put the new kidney in the front of the body. Would that be right? I don't know anything about kidney transplants. Penny > > I believe precious penny is right about them removing the old > liver even though you may need another liver later on. > When a person has a live donor, they only use part of the liver > to transplant. Both parts of the liver (part they leave in the > donor and the part that gets transplanted) will regenerate into > a whole liver in time. How effective that happens in someone with > Hepatitis C...I'm not sure about. If you find out differently, > please let us know[ that's a good question ] > > When they do kidney transplants, they let the old kidney in the > patient and place the new kidney lower down in the body. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 2, 2009 LOL,,, funny. All I wanted was a little booby lift! Did you know when you get a kidney transplant they leave the old ones intact??? Fun Facts about transplant... Smile everyone!!! Enjoy the day God gave you! > > > > I believe precious penny is right about them removing the old > > liver even though you may need another liver later on. > > When a person has a live donor, they only use part of the liver > > to transplant. Both parts of the liver (part they leave in the > > donor and the part that gets transplanted) will regenerate into > > a whole liver in time. How effective that happens in someone with > > Hepatitis C...I'm not sure about. If you find out differently, > > please let us know[ that's a good question ] > > > > When they do kidney transplants, they let the old kidney in the > > patient and place the new kidney lower down in the body. > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 2, 2009 Yes, I knew that.......my family is jealous because I will have three and they will only have two. Lots of hugs and kisses to everyone. Lyncia Subject: Re: To: livercirrhosissupport Date: Saturday, May 2, 2009, 12:31 PM LOL,,, funny. All I wanted was a little booby lift! Did you know when you get a kidney transplant they leave the old ones intact??? Fun Facts about transplant.. . Smile everyone!!! Enjoy the day God gave you! > > > > I believe precious penny is right about them removing the old > > liver even though you may need another liver later on. > > When a person has a live donor, they only use part of the liver > > to transplant. Both parts of the liver (part they leave in the > > donor and the part that gets transplanted) will regenerate into > > a whole liver in time. How effective that happens in someone with > > Hepatitis C...I'm not sure about. If you find out differently, > > please let us know[ that's a good question ] > > > > When they do kidney transplants, they let the old kidney in the > > patient and place the new kidney lower down in the body. > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 8, 2009 Did you go to see Dr. Perrillo? I just saw him a few days ago and he put me on the list. > > Hi , > > I'm on the liver transplant list at Baylor in Dallas and also All- > Saints. My meld was an 11 last I heard. I was wondering how you feel > now after the transplant. I know you must feel tremendoulsy better > but do you still have complications or symptoms. > > Thanks so much, > Roni > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 8, 2009 Hi , Congratulations! Don't you feel like they put you through the wringer? I don't remember Dr. Perrillo. I have a different doctor. I was really impressed with Baylor and the transplant team. They are very professional. How are you doing? Roni > > > > Did you go to see Dr. Perrillo? I just saw him a few days ago and he > put me on the list. > > > > > > > > Hi , > > > > I'm on the liver transplant list at Baylor in Dallas and also All- > > Saints. My meld was an 11 last I heard. I was wondering how you feel > > now after the transplant. I know you must feel tremendoulsy better > > but do you still have complications or symptoms. > > > > Thanks so much, > > Roni > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 9, 2009 They didn´t put me through the ringer. They were very nice. I was very encouraged. Perrillo told me that my case was not as serious as I had imagined it to be. I am now on the list now, but there is no need to move me up, as my priority is not very high. Hearing that was quite gratifying to me This is Dr. Perrillo: http://www.baylorhealth.com/PhysiciansLocations/physfind/Pages/Physician.aspx?pi\ d=11141707 > > > > > > Hi , > > > > > > I'm on the liver transplant list at Baylor in Dallas and also All- > > > Saints. My meld was an 11 last I heard. I was wondering how you feel > > > now after the transplant. I know you must feel tremendoulsy better > > > but do you still have complications or symptoms. > > > > > > Thanks so much, > > > Roni > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 9, 2009 They were nice. I just mean all the testing they did was exhausting. What is your meld score? Last I heard I was an 11. That's great your not high priority! Take care, Roni > > > They didn´t put me through the ringer. They were very nice. I was > very encouraged. Perrillo told me that my case was not as serious as > I had imagined it to be. I am now on the list now, but there is no > need to move me up, as my priority is not very high. Hearing that > was quite gratifying to me > > This is Dr. Perrillo: http://www.baylorhealth.com/PhysiciansLocations/physfind/Pages/Physician.aspx?pi\ d=11141707 > > > > > > > > > > > > Hi , > > > > > > > > I'm on the liver transplant list at Baylor in Dallas and also > All- > > > > Saints. My meld was an 11 last I heard. I was wondering how > you feel > > > > now after the transplant. I know you must feel tremendoulsy > better > > > > but do you still have complications or symptoms. > > > > > > > > Thanks so much, > > > > Roni > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 9, 2009 To be moved up, they should have given you a MELD score and your blood type. Boy Methodist ran me through 4 months of testing. You are lucky. I even got a letter of accepatanance for the board. I may frame that when I find it. I am so glad that you are placed on the list. Lots of hugs and kisses to everyone. Lyncia Subject: Re: To: livercirrhosissupport Date: Saturday, May 9, 2009, 8:56 AM They didn´t put me through the ringer. They were very nice. I was very encouraged. Perrillo told me that my case was not as serious as I had imagined it to be. I am now on the list now, but there is no need to move me up, as my priority is not very high. Hearing that was quite gratifying to me This is Dr. Perrillo: http://www.baylorhe alth.com/ PhysiciansLocati ons/physfind/ Pages/Physician. aspx?pid= 11141707 > > > > > > Hi , > > > > > > I'm on the liver transplant list at Baylor in Dallas and also All- > > > Saints. My meld was an 11 last I heard. I was wondering how you feel > > > now after the transplant. I know you must feel tremendoulsy better > > > but do you still have complications or symptoms. > > > > > > Thanks so much, > > > Roni > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 9, 2009 On the list you will be required to have a new blood test (for UNOS) for a new meld score every three months. Bobby and others are more knowledgeable............ Lots of hugs and kisses to everyone. Lyncia > > > They didn´t put me through the ringer. They were very nice. I was > very encouraged. Perrillo told me that my case was not as serious as > I had imagined it to be. I am now on the list now, but there is no > need to move me up, as my priority is not very high. Hearing that > was quite gratifying to me > > This is Dr. Perrillo: http://www.baylorhe alth.com/ PhysiciansLocati ons/physfind/ Pages/Physician. aspx?pid= 11141707 > > > > > > > > > > > > Hi , > > > > > > > > I'm on the liver transplant list at Baylor in Dallas and also > All- > > > > Saints. My meld was an 11 last I heard. I was wondering how > you feel > > > > now after the transplant. I know you must feel tremendoulsy > better > > > > but do you still have complications or symptoms. > > > > > > > > Thanks so much, > > > > Roni > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
