Guest guest Report post Posted February 13, 2009 We are going to eat at Sizzler's tonight, you are all welcome to come join us in Blythe, CA. you understand this is dutch treat? [?] Lots of night I don't have energy for cooking for two or three, When more are around, they have to pitch in. Jan H > Me too! What time...???? > > Lyncia > > My life is really different now, but it is my life. God helps us choose > our path! > > > > > > > > > > > > > > > > > > From: abijann <no_reply@yahoogrou p s.com> > > > > > > > > Subject: > > > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > Date: Saturday, February 7, 2009, 5:07 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Welcome to this group. I wish you had at least someone there that > > > > > > > > could be with you now. It sounds like you have gone through quite > > > > > > > > a lot. If you have any questions at all, please ask us. > > > > > > > > All questions are very important. I tell others that their > > > > > > > > questions might give an answer to those who just read the > > > > > > > > posts here and doesn't post themselves. You never know who > > > > > > > > else you might be helping. I'm glad you found us and I hope > > > > > > > > you enjoy being here. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 13, 2009 thx so much. I did fix the Tilpia in reg oven with ovoo & lemon juice along with Mrs Dash original. It was so bad I thought I would barf. I hid my disgust as I needed my husband to eat it as it is healthy for him. Perhaps that is the trick a convection toaster oven, I have a toaster oven maybe I will try that next time instead of oven, seems like it would be better as it is closer to source of heat. Still, not sure if I will try it for awhile , the taste is still in my mouth and bec it isn't brown, I kept thinking, YUK it isn't cooked. Love you guys, I can hardly wait to get on the computer, wish I had more time but we live in a house and all chores fall on my shoulders and I'm no spring chicken either. But I am not complaining, other than HBP and a bit of arthritis I am ok. I pray nightly for the pain to subside for him and the entire group. Peace to all. Phyllis ________________________________ To: livercirrhosissupport Sent: Friday, February 13, 2009 12:25:38 PM Subject: Re: The convection toaster oven is SO usefull for a person with liver disease because you can use so much less oils to achieve a kind of eating which is really tasty, like for instance, broiled salmon, tilapia, you can make those corn chips like I described, by using only a slight spray of olive oil pam, you can make salt free corn chips. This means when every one else is enjoying chips and salsa during a football game, you need not suffer and long for some. By employing a superduper convection toaster oven, you gain the ability to roast any thing, and it will turn many things fresh again. Like things you cannot reheat any other way. We eat pizza twice a month, and when we order a pizza, it will make 5 meals. One piece contains 750 Mg of sodium, but I eat nothing during the day that has sodium any way. I never have a hard time keeping in my sodium budget. These re-heat meals are pizza and a salad, and you just put that piece of pizza on the toaster oven rack, and turn it on low, like 200, or 250, and in 15 minutes, it looks and tastes EXACTLY like it did when it first came out of the pizza oven. There is no steam like a microwave, or even conventional oven, a convection oven uses a fan to distribute heat all around the food. You can bake a small pan of muffins in 5 minutes. Cookies take 6 minutes. Toast, toasted bagels, anything you want browned, a convection toaster oven does what a regular oven cant. A corningware full of asparagus sprigs, a slight spray of the olive oil pam, and a sprinkle of ms dash, and some fresh ground pepper is so so tasty. I LOVE Ardis super duper convection oven by cuisinart. It is my prize possession she left us. Love, Bobby ____________ _________ _________ __ From: Jan Holman <janholmangmail (DOT) com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Tuesday, February 10, 2009 7:20:21 PM Subject: Re: Bob - did you forget to mention the convection toaster oven?[?] Why is it especially useful for someone with liver disease? On Tue, Feb 10, 2009 at 5:04 PM, Bob Aragon <robwalkingeagle@ yahoo.com>wrote: > Phyllis, I have a suggestion. Lightly sprayed with olive oil pam, nd > sprinkled with various mrs Dash, then broiled in a convection toaster oven. > Serve on a bed of steamed rice, and garnish with also broiled asparagus > sprigs. If anyone does not have a convection toaster oven, for liver disease > , it is a must. You can make very low fat, NO salt corn chips. Cut the soft > fresh corn tortilla into quarters, and lightly spray with olive oil pam, and > broil under the elements of a convection toaster oven. Did I mention how > nice it is to have a toaster oven if you have liver disease, or your loved > one does? I inherited Ardis' toaster oven. We call it the > " superduperconvecti on oven " . It toastes, roastes, and convects. Better than > any other method. Nothing will reheat as good as this thing. Love, Bobby > > long life, old age, everything good-Apache prayer > > ____________ _________ _________ __ > From: Phyllis Delgado <pdelgado354@ yahoo.com <pdelgado354% 40yahoo.com> > > To: livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosiss upp ort%40yahoogroup s.com> > Sent: Tuesday, February 10, 2009 7:40:54 AM > Subject: Re: > > hey Jan, how do you fix the talpia? > Phyllisi > > ____________ _________ _________ __ > From: diane chandler <dianechandler@ att.net> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 10, 2009 6:32:32 AM > Subject: Re: > > Oh, me too! I could never remember all my passwords and I'm scared to death > to use the same on twice! > > Hugs........ ..... > Diane > > ____________ _________ _________ __ > From: Jill <jillkstewart@ yahoo.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 10, 2009 8:26:17 AM > Subject: Re: > > I confess...I use a cheat sheet. .I have a list of my different > passwords..If I would ever loose it, I'm in big trouble. I don't use the same > one for everything because I'm afraid if someone hacks into my PC, then hell > have access to everything I do. I pay bills online etc. It probably comes > from being married to a cop for so long!! LOL I learned last night how to > instant message on facebook. I was messaging with my daughter-in- law and my > pastor at the same time. FUN !! > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > > > > > > > > > > > > > From: abijann <no_reply@yahoogrou p s.com> > > > > > > Subject: > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > Date: Saturday, February 7, 2009, 5:07 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Welcome to this group. I wish you had at least someone there that > > > > > > could be with you now. It sounds like you have gone through quite > > > > > > a lot. If you have any questions at all, please ask us. > > > > > > All questions are very important. I tell others that their > > > > > > questions might give an answer to those who just read the > > > > > > posts here and doesn't post themselves. You never know who > > > > > > else you might be helping. I'm glad you found us and I hope > > > > > > you enjoy being here. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 13, 2009 Thanks, but I am ready for bed....not sleepy.......Stop in Waxahahchie, TX anytime and I will take you to 's Steakhouse. Have a great evening. Lyncia My life is really different now, but it is my life. God helps us choose our path! > > > > > > > > > > > > > > > > From: abijann <no_reply@yahoogrou p s.com> > > > > > > > > Subject: > > > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > > > Date: Saturday, February 7, 2009, 5:07 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Welcome to this group. I wish you had at least someone there that > > > > > > > > could be with you now. It sounds like you have gone through quite > > > > > > > > a lot. If you have any questions at all, please ask us. > > > > > > > > All questions are very important. I tell others that their > > > > > > > > questions might give an answer to those who just read the > > > > > > > > posts here and doesn't post themselves. You never know who > > > > > > > > else you might be helping. I'm glad you found us and I hope > > > > > > > > you enjoy being here. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 13, 2009 OMG, that soiunds awwful. I learned from taking care of Ardis that sick people need small, not too spicy, yet colorful and interesting meals. She had celiac sprue disease on top of her liver disease,which is an allergy to wheat and oats and barly and rye, so she weighed almost nothing when she died. NO matter if she was in the hospital, or the nursing home, the staff could not prevent her from eating wheat gluten, and for some hospitals, special means " tasteless, and cardboard like " . Liver diseasers need not be sentenced to a lifetime of bland and yucky food. For instance, a Guamanian style of fixing fish is to grill it , or convection toaser oven broil it, and smother with " finidine " . I spoke of " finidine " last year. Finidine is a sort of salsa, but Guamainian. Start with the juice of 9 lemmons, add one finely chopped onion, and 1 or 2 tablespoons of Kikkoman low sodium soy sauce. This will contain salt, but it will be managable, if you use in moderation. Add the soy sauce, and finely minced chili peppers to taste. Now, the authentic peppers to use are found in Asian markets, and are colorful, and tiny. They are usually no bigger than an inch long, and slender. They come from Thialand, Vietnam, Philipines, Maylasia, Singapore, and are used in all of those cultures. My mom uses chopped cherry tomatoes to add pizass to the finidine, because my ex wife (grew up in Guam) taught her to. MY best friend Tom is half Guamanian, (his mother is from Guam) and that family uses finidine in which all of the onions, and peppers are so finely minced, you hardly see them. More of a slurry. THis " salsa " is very lemony, but also salty, and hot. A little over any kind of fish is awesom. Use one ounce of finly chopped cooked chicken, and a half a finely chopped onion, and shred 2 or 3 tabelspoons of fresh coconut meat, and add all together, squeeze a lemon over all, and serve on a bowel of short grain rice, with finidine, and you have " chicken kelleguin " a staple food of Guam. Low in sodium, low in fat, meduim in protien, but you can use a small portion of meat, and. ANY kind of meat. The hard core version involves " cooking " veneson, or beef, thinly sliced, in the lemon juice, and mixing it all up with the coconut, and onions, and add minced habanero pepper-- ouch!! That is tartare, authentic Guamanian kelleguin. Hope you enjoy your Guamanian dinner Hafa-Adai! Bobby Sent via BlackBerry from T-Mobile > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > Date: Saturday, February 7, 2009, 5:07 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Welcome to this group. I wish you had at least someone there that > > > > > > could be with you now. It sounds like you have gone through quite > > > > > > a lot. If you have any questions at all, please ask us. > > > > > > All questions are very important. I tell others that their > > > > > > questions might give an answer to those who just read the > > > > > > posts here and doesn't post themselves. You never know who > > > > > > else you might be helping. I'm glad you found us and I hope > > > > > > you enjoy being here. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 14, 2009 thank you, I printed info and will hunt down peppers and finidine. Do you drink coffee? Is it really bad for patients with liver disease? My poor baby has do few choices.......I hate to take away his coffee too. ________________________________ To: Livercirrhosissupport <livercirrhosissupport > Sent: Friday, February 13, 2009 6:22:39 PM Subject: Re: OMG, that soiunds awwful. I learned from taking care of Ardis that sick people need small, not too spicy, yet colorful and interesting meals. She had celiac sprue disease on top of her liver disease,which is an allergy to wheat and oats and barly and rye, so she weighed almost nothing when she died. NO matter if she was in the hospital, or the nursing home, the staff could not prevent her from eating wheat gluten, and for some hospitals, special means " tasteless, and cardboard like " . Liver diseasers need not be sentenced to a lifetime of bland and yucky food. For instance, a Guamanian style of fixing fish is to grill it , or convection toaser oven broil it, and smother with " finidine " . I spoke of " finidine " last year. Finidine is a sort of salsa, but Guamainian. Start with the juice of 9 lemmons, add one finely chopped onion, and 1 or 2 tablespoons of Kikkoman low sodium soy sauce. This will contain salt, but it will be managable, if you use in moderation. Add the soy sauce, and finely minced chili peppers to taste. Now, the authentic peppers to use are found in Asian markets, and are colorful, and tiny. They are usually no bigger than an inch long, and slender. They come from Thialand, Vietnam, Philipines, Maylasia, Singapore, and are used in all of those cultures. My mom uses chopped cherry tomatoes to add pizass to the finidine, because my ex wife (grew up in Guam) taught her to. MY best friend Tom is half Guamanian, (his mother is from Guam) and that family uses finidine in which all of the onions, and peppers are so finely minced, you hardly see them. More of a slurry. THis " salsa " is very lemony, but also salty, and hot. A little over any kind of fish is awesom. Use one ounce of finly chopped cooked chicken, and a half a finely chopped onion, and shred 2 or 3 tabelspoons of fresh coconut meat, and add all together, squeeze a lemon over all, and serve on a bowel of short grain rice, with finidine, and you have " chicken kelleguin " a staple food of Guam. Low in sodium, low in fat, meduim in protien, but you can use a small portion of meat, and. ANY kind of meat. The hard core version involves " cooking " veneson, or beef, thinly sliced, in the lemon juice, and mixing it all up with the coconut, and onions, and add minced habanero pepper-- ouch!! That is tartare, authentic Guamanian kelleguin. Hope you enjoy your Guamanian dinner Hafa-Adai! Bobby Sent via BlackBerry from T-Mobile > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > Date: Saturday, February 7, 2009, 5:07 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Welcome to this group. I wish you had at least someone there that > > > > > > could be with you now. It sounds like you have gone through quite > > > > > > a lot. If you have any questions at all, please ask us. > > > > > > All questions are very important. I tell others that their > > > > > > questions might give an answer to those who just read the > > > > > > posts here and doesn't post themselves. You never know who > > > > > > else you might be helping. I'm glad you found us and I hope > > > > > > you enjoy being here. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 14, 2009 Phyllis, before I get into my opinion on coffe, please let me warn you_ I am not a doctor-I have no degree-I am a layperson, each and every one must decide for themselves -if the risks outweigh the benefits. With any thing you eat and drink, even alcohol, tobacco, you name it. I used to drink only one cup of coffee a day, at work in the morning. After I got sick, I started doing my own research about coffee and how it affects the liver. My background is in chemistry, and pathology, I was a master gardener in the Colorado State University master gardener program. So, trying to be as scientific as I could, I read every thing I could find about coffee. So far here is what I have found- Most if not all the information I have found online says that coffee is beneficial. Most of the information says that tha benefit goes up with the amount of coffee you consume. A lot of people will see this and relying on everthing previously said aboit how bad coffee is for you, will disagree, and maybe even say I am a fool, and that I have been duped by the coffee industry. BUt here's how I view this- I used to drink beer. Lots and lots of beer. I did not do any research into weather this was harmful, or not. I just did it. NOw I find out that there was a lot of information out there regarding the dangers of alcohol. SO, with that brand new BOB lesson installed on my brain's harddrive, I keep lookiing every day for that one bad snippet to say that coffee is really bad after all, BUt I just don't find it. In fact, the medical field is studying if coffee can help cirrhosis patients avoid a liver tumor, HCC. So far research suggests a benefit from coffee, the more you drink, the more the benefit. It helps protect the liver from alcohol if you don't have cirrhosis, and it helps the liver if you do have cirrhosis. I really like Starbuck's house blend in regular, for the morning pot, and decaf for the afternoon pot. Love, Bobby Sent via BlackBerry from T-Mobile > > > > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > > > > Date: Saturday, February 7, 2009, 5:07 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Welcome to this group. I wish you had at least someone there that > > > > > > could be with you now. It sounds like you have gone through quite > > > > > > a lot. If you have any questions at all, please ask us. > > > > > > All questions are very important. I tell others that their > > > > > > questions might give an answer to those who just read the > > > > > > posts here and doesn't post themselves. You never know who > > > > > > else you might be helping. I'm glad you found us and I hope > > > > > > you enjoy being here. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 18, 2009 Wise words!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Lyncia My life is really different now, but it is my life to redefine. From: abijann <no_reply > Subject: To: livercirrhosissupport Date: Wednesday, February 18, 2009, 7:57 PM It is such a relief to know when someone is placed on the transplant list. Then you know for sure that he will be watched much closer than he would with his other regular doctors. As they go up the list, the more frequently they will have blood work done. It seems like patients want to go up the list cause they believe their chance for a liver is much better...but really they are sicker and the farther up the list they go...the harder it is to recover when they have the transplant. My husband hit the very top of the list and the doctors even said he was over the top...he would have faired much better if he had gotten a transplant when he was about half way up the list...I truly believe this. I hope your experiences will be much better than ours and that he comes through it with flying colors. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 19, 2009 thank abijann your words made me feel better. how is your husband today? and how are you? ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Wednesday, February 18, 2009 8:57:24 PM Subject: It is such a relief to know when someone is placed on the transplant list. Then you know for sure that he will be watched much closer than he would with his other regular doctors. As they go up the list, the more frequently they will have blood work done. It seems like patients want to go up the list cause they believe their chance for a liver is much better...but really they are sicker and the farther up the list they go...the harder it is to recover when they have the transplant. My husband hit the very top of the list and the doctors even said he was over the top...he would have faired much better if he had gotten a transplant when he was about half way up the list...I truly believe this. I hope your experiences will be much better than ours and that he comes through it with flying colors. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 20, 2009 very good advise abijann, i too feel stuck in this OMG state of mind, but yes today the sun is shining, what a blessing to behold. its good to be reminded that in the mist of what is to come, we still deserve to live a sun filled life thank you!!!! > > My husband is considered stabilized but still very much disabled. > He has many different medical problems that are not associated with > his liver. At times he may be fine and then, without warning, I'm > getting in touch with his doctors. Such is life. > > You learn so much being a caregiver and the experience of this all > is like a trip that you are forced to take in order for you to > realize and come to terms with things that you never, at one time, > thought you would. I know I'm not the same person now that I was > before all this took place. > > I read an article, just recently, and in there it says that stress > of life can become so hard that people won't take the time to > look at a sunrise or a sunset and maybe even forget to realize that > there is the sun outside of their windows. They forget to look > at the beauty around them and think only about the heartache, > frustrations, disappointments, and tiredness that they now feel. > Caregivers need to know how very special they are and the patients > need to know that their lives mean something special to all their > loved ones. > > I'm getting soupy, so I think I'll stop here. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 21, 2009 thanks for sharing that story. love sandra ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Friday, February 20, 2009 8:00:54 PM Subject: She was a very special person. I don't believe she was with a gastroenterologist or hepatologist at the time. To me it sounded like her primary care physician was telling her this. I encouraged her to go to a doctor that knew more about the liver. He should decide whether it was right for her or not. She also had insurance problems. Apparently, she had other medical problems that I did not know about. For she told me that her insurance would not allow her to switch to go to a different transplant facility then that one, even though the doctor at the one facility stated it would be better if she went to this other one because of another medical condition that they could handle better there. I don't know if it ever got worked out to go to this other facility or not. She was so excited about getting evaluated for her transplant. You could tell it in her posts how happy she was. He kept telling me how much she wanted to be with her family and that she wanted a new liver to do this. She never lost hope. I think she was getting pretty nervous about all the testing to be done...so I told her to keep her mind on the God's creation outside and try to relax. Her last post to me before the transplant stated that she had been listed for a transplant and the same day they called her for one. A friend of hers, that was able to be with her there, took over and told me how she was doing.. She came through the transplant fine. Apparently, something happened where she had to go into the hospital again that had to do with her bile not draining well. She came home again and then ended up back in the hospital again and must of developed an infection in the hospital, of which the doctors sent her home. It was hard to believe that they would send any transplant patient home with an infection and being on anti rejection drugs unless she would of had a home nurse come in an set up an IV with antibiotics. ..but, it seems that wasn't the case. However, her husband got in touch with the nurse at the doctors office and informed her of what was happening to her. The nurse told him she would call back...but never did. Her husband took her to the emergency room, but it was too late to save her. The nurse told him that he didn't go through proper channels. Scarey, huh! That is why I state to everyone here...to be sure to know who to contact if something should take place and if in doubt...go to the emergency room right away and " don't " rely on them. (I was also in an emergency situation and had to go over the secretary's head in order to get my husband the proper care) Anyhow, her girl friend, then informed me that she passed away. It was horrible what her family went through. I told myself that she must of been really bad to be placed on the transplant list and called the same day for the transplant. She would of been above everyone else on the list. I think about her often and how much hope she had and how sweet a person she was...it is heart rendering to know that her dream didn't happen for her. I don't know how her family is doing now. Her husband used to be on this group site and posted a little while after she passed away. Her friend told me that she really cared about me...I cried my heart out when I found out that she was no longer with us and it still brings tears to my eyes. She isn't suffering anymore. God is the one that gives us the breath of life and he is the only one that can sustain it. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 21, 2009 Hi Everyone, Shirley here. I would like to say Thank you to pinkmeetsblue for what you wrote about stress. It sure helped me to see things differently. My Health since my transplant has been doing great. I think I may have mentioned before, that I have passed my first anniversary. The stress I am under right now has nothing to do with my transplant. However I am working really hard to keep it that way. Even though I have gained 10 pounds, (which I don't need) I am determined to not let it get to me and lose it again. *( I eat when I get stressed out)* I wish everyone could have the same good luck that I have had. I think about all of you often, & try to keep up withthe posts. Wishing everyone the best of luck and remember to KEEP as tomorrows another day. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 21, 2009 hi shirley congats on the anniversary sweety!! i think the thanks for the stress post goes to our wonderful abijann, shes such a blessing to us all!!! i hope your stress levels come down i too am an emotional eater, and packing a few extra pounds around you will find it thru the dark days babe and remember we are all routing for you stay well, much love barby > > Hi Everyone, Shirley here. > I would like to say Thank you to pinkmeetsblue for what you wrote about stress. It sure helped me to see things differently. My Health since my transplant has been doing great. I think I may have mentioned before, that I have passed my first anniversary. The stress I am under right now has nothing to do with my transplant. However I am working really hard to keep it that way. Even though I have gained 10 pounds, (which I don't need) I am determined to not let it get to me and lose it again. *( I eat when I get stressed out) * > > I wish everyone could have the same good luck that I have had. I think about all of you often, & try to keep up withthe posts. Wishing everyone the best of luck and remember to KEEP as tomorrows another day. > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 21, 2009 Statistics are of more use to doctors and researchers than they are to individual patients in my opinion. I never follow the average in anything. If I am given a drug, I don't react as most people do. Read down in the list of possible reactions until you get to the very end of them where it says " Rarely do people experience the following " and those are the ones I am going to get if I get any. I am allergic to two asthma medications that I know of. These are two medications which are supposed to control asthma, and if I were to take them without having asthma already, they would induce it. If I am having an asthma attack, they would aggravate it. * *I have learned to be aware of my own body and then know when something has changed. Anytime you have a curve as all statistics do, there are people at all the different points on that curve. So, when I was having all the angiograms/angioplasties with stent procedures, I knew that statistically there was a chance something could go wrong. I had no problems with the first few. Driving to the hospital for another angioplasty procedure, the question entered my mind: Having had no problems with the previous ones, does that mean I am one who doesn't have problems, or are my chances of having a problem with this one more since I haven't had problems before. I decided that it really didn't make any difference, I needed to have it. If there weren't any problems with this procedure, sooner or later there would come a time in my life when I would have a fatal problem with something, and with all my medical problems, I have no idea what it will be. So, I figured the only constructive thing I could do was to start praying. I was fine that time, and all the other times since, for angiograms and bypass, lung problems, etc. I thank God for that. And I thank him for all the days I have lived in comparative comfort and for the days I have left to live, however many or few they may be. And I thank God for all the people on this list who are such a big support to everyone who needs it. Jan H On Sat, Feb 21, 2009 at 10:52 AM, abijann <no_reply > wrote: > I have a real problem when it comes to documenting statistics. > I looked at some of the statistics that are posted about different > trials being done and different diseases. Many of them do give > someone an idea of what to look ahead for. > > Statistic really only give a hint of the results, in general. > Some statistic only show a certain number of people that they follow > up on in a certain time period. You could say, for example, that they > followed up on 100 people and 75% of these people lived pass one > year time period. If they said they followed these people for only > one year...you might think that gives the whole picture. What the > statistics don't show is if these people were faithful each day > of taking their anti rejection drugs, if they died of other causes > besides the liver rejection problem, if they ate or did not eat, > if they exercised alot or were couch potatoes, if they turned back to > their old habits of drinking or overdosing on medications, and so > much more. What if they followed 1000 people and said that they only > followed them for 1/2 a year and then multiplied that by 2 to get an > idea about the whole year....how would those results change? Would > it be the same percent? > > I like statistics that show a large amount of people being observed > over very long times periods...I believe they are more accurate in > stating what may truly be the results even if they don't state more > about their deaths and their causes in the long run. > > How they can accurately keep track of everyone who had certain things > done is beyond my imagination. It might be easier with a transplant > cause they are a special operation and you have to at least see > the transplant team once a year...but with other operations it > would be alot harder. People change doctors, hospitals, places > where they live, places where they work, etc. Unless they > specifically are active in letting someone follow them throughout > their life...how can they be sure of this to give a true picture > of what they are documenting. > > You can tell me what you think of the statistics, also. > Maybe you have a different point of view on this and can show > more benefits of it. To me statistics do have a benefit, but > unless they are broken down into many catagories...it just gives > a glimpse of what may be. > > > -- Jan H Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 21, 2009 , I'm so very sorry about your sister and your husband. I wish I had words to comfort you or to help you. Do you have hospice there to assist you and your dh? I wish I could come over and help you some how, just hug you or bring you a meal. Take a few hours to sit with your dh so you could rest if possible. I know you are carrying a heavy load. Please know you have many people here who love you and are praying for you. Weeping with you, Pamela From: sandra <sgonz48yahoo (DOT) com> Subject: Re: Re: we are listed To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, February 18, 2009, 6:01 PM thank Penny and Barby. i am happy i guess. feeling some what apprehensive though. what are the survival rates and what about the virus coming back. and it concerns me that the surgeon said we don't treat for the virus after transplant. he was wrong ____________ _________ _________ __ From: pinkmeetsblue <itsabnbthing@ bellsouth. net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wednesday, February 18, 2009 12:19:39 PM Subject: Re: we are listed yippppeeeeeeeeee i am so glad for you both!!!! > > > > they called us last week but i did not receive the call and no > message was left. i called today and was told they are definitely > listing him just finishing up the paper work . we will most likely > start labs this week. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 22, 2009 linda i have myself composed enough to respond now, i am so sorry my love i know the pain of losing someone so close to you,i pray your dear sisters crossing over was peaceful.i know you are sad, turn to our heavenly father to carry you thru this moment in time honey. i hope you have people with you to help and support you.i wish i was there with you also.please do try to get hospice in there with you and your husband,they can help you honey.they can help him,be more comfortable if it is his time to go home.please dont try to do this alone, we all have our breaking point and i dont want you being there alone sweety.i want you to know you are loved and you and your husband and sister and entire family are in my thoughts and prayers!! its a heavy load to carry love reach out and ask for help please,all my love barby > > I wish there was something I could say to lighten the ache in your > heart now. I'm so hoping that other family members are there with > you and your husband. You need someone there to help you take > a break so that you can rest. You have been through so very much. > May God be with you and your family. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 22, 2009 Praying for you ! I'm so sorry about your sister. Pamela From: sandra <sgonz48yahoo (DOT) com> Subject: Re: Re: we are listed To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, February 18, 2009, 6:01 PM thank Penny and Barby. i am happy i guess. feeling some what apprehensive though. what are the survival rates and what about the virus coming back. and it concerns me that the surgeon said we don't treat for the virus after transplant. he was wrong ____________ _________ _________ __ From: pinkmeetsblue <itsabnbthing@ bellsouth. net> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Wednesday, February 18, 2009 12:19:39 PM Subject: Re: we are listed yippppeeeeeeeeee i am so glad for you both!!!! > > > > they called us last week but i did not receive the call and no > message was left. i called today and was told they are definitely > listing him just finishing up the paper work . we will most likely > start labs this week. > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 22, 2009 , I am so sorry for the pain in your life right now. For what it's worth you are very much in my thoughts and prayers. What you are going through is not fair, and it's scary, and it shouldn't have to happen. Sometimes God really is a mystery. I know he won't put you through more you can bare. Nobody is strong enough to endure what you are right now and it is really not possible with surrendering it to God and continuing to pray for strength. And if you just can't pray and can't find hope know that I will pray and hope for you that you will be ok. I am so sorry. Love > > > > > > they called us last week but i did not receive the call and no > > message was left. i called today and was told they are definitely > > listing him just finishing up the paper work . we will most likely > > start labs this week. > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 22, 2009 Sorry I typed it's not possible with surrendering and I meant without surrendering, sometimes my fingers cant keep up with my brain > , I am so sorry for the pain in your life right now. For what > it's worth you are very much in my thoughts and prayers. What you are > going through is not fair, and it's scary, and it shouldn't have to > happen. Sometimes God really is a mystery. I know he won't put you > through more you can bare. Nobody is strong enough to endure what you > are right now and it is really not possible with surrendering it to > God and continuing to pray for strength. And if you just can't pray > and can't find hope know that I will pray and hope for you that you > will be ok. I am so sorry. Love > > > > > > > > > > they called us last week but i did not receive the call and no > > > message was left. i called today and was told they are definitely > > > listing him just finishing up the paper work . we will most likely > > > start labs this week. > > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 22, 2009 , What a precious post! You have such a gift for encouraging people. God bless you sweetie! Warm Hugs........... Diane http://auntdisexperimentallife.blogspot.com/ ________________________________ To: livercirrhosissupport Sent: Sunday, February 22, 2009 8:50:40 PM Subject: Re: , I am so sorry for the pain in your life right now. For what it's worth you are very much in my thoughts and prayers. What you are going through is not fair, and it's scary, and it shouldn't have to happen. Sometimes God really is a mystery. I know he won't put you through more you can bare. Nobody is strong enough to endure what you are right now and it is really not possible with surrendering it to God and continuing to pray for strength. And if you just can't pray and can't find hope know that I will pray and hope for you that you will be ok. I am so sorry. Love > > > > > > they called us last week but i did not receive the call and no > > message was left. i called today and was told they are definitely > > listing him just finishing up the paper work . we will most likely > > start labs this week. > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 23, 2009 My prayers are with you so God will help you deal with the sadness in your life right now. I am praying with you as is everyone else. ________________________________ To: livercirrhosissupport Sent: Sunday, February 22, 2009 7:28:52 PM Subject: Re: , What a precious post! You have such a gift for encouraging people. God bless you sweetie! Warm Hugs........ ... Diane http://auntdisexper imentallife. blogspot. com/ ____________ _________ _________ __ From: crazygirlmcc <CrazygirlMCC@ hotmail.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, February 22, 2009 8:50:40 PM Subject: Re: , I am so sorry for the pain in your life right now. For what it's worth you are very much in my thoughts and prayers. What you are going through is not fair, and it's scary, and it shouldn't have to happen. Sometimes God really is a mystery. I know he won't put you through more you can bare. Nobody is strong enough to endure what you are right now and it is really not possible with surrendering it to God and continuing to pray for strength. And if you just can't pray and can't find hope know that I will pray and hope for you that you will be ok. I am so sorry. Love > > > > > > they called us last week but i did not receive the call and no > > message was left. i called today and was told they are definitely > > listing him just finishing up the paper work . we will most likely > > start labs this week. > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 24, 2009 we had a lab order when we went for the evaluation for the hiv test but they neglected to draw for it...the ppd is the skin test for TB. i am positive that all these were done at some point over the last few years but who knows who hold the records. just as well to have it done again. as far as the dental goes we started. should have a clearance letter in 2 weeks. then he will be on the list when we get these 3 things. WE have been stalled. i guess i am a little miffed at the insurance cause they should have told me or somebody about this criteria cause we have been in constant contact. but oh well i am not complaining i am just trying to jump as instructed. and all of this is good things as you said. by the way his meld was 18 last count...he is feeling well...he is itching more and welting up from the itching and scratching. i have noticed some bruising on his stomach he said was from scratching does not look like that to me. i have also noticed an enlarged/swelled area from lower sternum to navel just in this middle area. i feel that it is an increased enlargement of liver or something. love sandra ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Tuesday, February 24, 2009 6:45:21 PM Subject: This is normal procedure to have this testing done before transplant. They check all transplant patients for Hepatitis virus and HIV... usually the patient has to sign a release form for the HIV to be done. Dental work is also very important. People who have alot of dental problems can end up with heart complications from it.. I don't know what you mean by ppd....to me that stands for post partum depression.. .it may stand for something else that I do not know about or dont remember. I do know that the psychologist usually asked a transplant patient to take a test to see how well their minds are working and also to check to see if they are telling the truth about not drinking, smoking, or using street drugs, etc. This is a little strange to me. These had to be done on my husband before he was placed on the transplant list. It might be because your husband isn't as high up on the MELD score, as mine was, that they can wait till after he was on the list. I used to get frustrated with all the testing. You would think that when they know a patient needs an organ, that the testing would not matter. However, the more I thought about it...they want to be sure no problems occur after the transplant, that the organ would be well taken care of, and that the patient will have the best follow up doctors available to him if a problem does happen afterwards. I really miss the transplant team...they handled " all " my husband's medical problems by just seeing them, and they also saw he had coordinated care, where the doctors worked all together. That has been all lost now. He sees many different doctors for each thing that is wrong with him and I have to coordinated all his care. Even setting up the tests he has to have done, if we can get them done here at our home instead of the transplant center and then seeing the doctors get the results. It is really something. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 25, 2009 thanks for the advise and about the window washing tip i am going to get some today ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Tuesday, February 24, 2009 8:02:10 PM Subject: I forgot about the test for TB, thanks for telling me that. Is he on any medication to help his bile flow better? My husband was on Ursodiol, also known as ursodeoxycholic acid. If he isn't now, he may be on that drug after the transplant is over. We had thought my husband was on the transplant list, also. Then we found out he still had to see the social worker and the phycologist before he would be placed. Hang in there, it gets even more interesting as things go on. If you have his blood work done at your hometown lab...double check to see that this is faxed to the transplant center when it is done. You would be surprised that you think this is being done and they don't get it. He can be rated as being non compliant if they do not get the results. Too often I have gone to the doctors office and it wasn't till I got there that they had to call the lab for the results of my own lab work...so they need to know, at the lab, that it is crucial that the transplant center receives these results as soon as possible for his placement on the list. This is just a suggestion. (A tip for today) Tired of washing window to have them streak. Go to the " automotive " department of the store and look for a cleaner called " Invisible Glass " . I use this and it cleans them, leaves them shining, and no streaks at all. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 25, 2009 hahha Abijann--love the tip-you are too much--you're the light at the end of the tunnel. This site is the best thing that ever happened to me. I have met some very strong men & women who so unselfishly share their stories and experiences. I no longer feel alone and know when needed I have the support of you all. ________________________________ To: livercirrhosissupport Sent: Wednesday, February 25, 2009 2:25:22 AM Subject: Re: thanks for the advise and about the window washing tip i am going to get some today ____________ _________ _________ __ From: abijann <no_reply@yahoogroup s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Tuesday, February 24, 2009 8:02:10 PM Subject: I forgot about the test for TB, thanks for telling me that. Is he on any medication to help his bile flow better? My husband was on Ursodiol, also known as ursodeoxycholic acid. If he isn't now, he may be on that drug after the transplant is over. We had thought my husband was on the transplant list, also. Then we found out he still had to see the social worker and the phycologist before he would be placed. Hang in there, it gets even more interesting as things go on. If you have his blood work done at your hometown lab...double check to see that this is faxed to the transplant center when it is done. You would be surprised that you think this is being done and they don't get it. He can be rated as being non compliant if they do not get the results. Too often I have gone to the doctors office and it wasn't till I got there that they had to call the lab for the results of my own lab work...so they need to know, at the lab, that it is crucial that the transplant center receives these results as soon as possible for his placement on the list. This is just a suggestion. (A tip for today) Tired of washing window to have them streak. Go to the " automotive " department of the store and look for a cleaner called " Invisible Glass " . I use this and it cleans them, leaves them shining, and no streaks at all. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 4, 2009 thanks for your kindness and concern ...they did swab. nothing came up. off the cuff diagnosis was some sort of infectious bronchitis. My husband tried to get me to the ER but i would not go. he took care of me even fed me hot soup. I was worried about him getting sick but so far so good. you know working in a hosp and thursday i went into lots of patient rooms....no telling. and i am on zithromax. love sandra ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Tuesday, March 3, 2009 6:21:51 PM Subject: I hope you get to feeling better soon. Did they swab your mouth to find out for certain if it is pneumonia or bronk trouble? It sounds like you should of been admitted because of this. What kind of treatment are you on? Messages in this topic (0) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Polls | Calendar Group Email: livercirrhosissupport web address: http://groups.yahoo.com/group/livercirrhosissupport/ MARKETPLACE ________________________________ From kitchen basics to easy recipes - join the Group from Kraft Foods Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Recent Activity * 5 New Members * 1 New LinksVisit Your Group Get in Shape on Yahoo! Groups Find a buddy and lose weight. Yahoo! Groups Stay healthy and discover other people who can help. Group Charity Food Bank Feeding America in tough times .. __,_.._,___ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 4, 2009 Please get well soon. You are definately at higher risk of being exposed to germs. I believe nurses have never been paid what they should be. We as a society have it backwards, paying pro ball players millions for a few games a season, while nurses make peanuts compared. Even thos athletes will some day need a nurse. Love, BObby Sent via BlackBerry from T-Mobile I hope you get to feeling better soon. Did they swab your mouth to find out for certain if it is pneumonia or bronk trouble? It sounds like you should of been admitted because of this. What kind of treatment are you on? Messages in this topic (0) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Polls | Calendar Group Email: livercirrhosissupport web address: http://groups.yahoo.com/group/livercirrhosissupport/ MARKETPLACE ________________________________ From kitchen basics to easy recipes - join the Group from Kraft Foods Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Recent Activity * 5 New Members * 1 New LinksVisit Your Group Get in Shape on Yahoo! Groups Find a buddy and lose weight. Yahoo! Groups Stay healthy and discover other people who can help. Group Charity Food Bank Feeding America in tough times .. __,_.._,___ Quote Share this post Link to post Share on other sites
