Guest guest Report post Posted November 10, 2005 Hi Lula, I seldom miss the reruns of . For me it comic relief for the lives we have all led. One episode I just about split my sides on is when the two brothers get into a fight about who will have to take care of the mom if the dad dies. Marie(the mother) is sooooooo intrusive and so manipulative that to me it is a hoot. I know some here who have posted previously can't take watching it. But for me it is hilarious. Where I live it is opposite the news at 10:00 and I'd rather laugh before sleep than see the sorry state of the world anyway so it's an easy choice for me.She is such a borderline nada. is her split white kid and is the loser split black. Of course, most of it is fairly harmless, or is presented as funny. I guess to some KO's even watching it would be painful. The family dynamics are like real life and I think real things are the funniest. Dee Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 24, 2008 Hi guys, Just back from the hospital for now and am going to shower and head to UVA. has already been transported there. We didn't go to the hospital till the next day, because didn't want to, and we should have listened to you guys. Even though he only vomited small amounts of blood twice, twelve hours apart, by the next morning it was coming out in his stool. By the time we got to the hospital his H and H were 7.7 and 30, by that evening his BMs were completely old blood. He was bleeding out into his stomach. He received 4 units of packed red cells and his h & h had fallen to 10 and 20 by the time they scoped him this am at 8:00 am. They were giving him sandostatin and something else to constrict the blood vessels throughout the night along with the red cells and had him in ICU in case he had a large bleed. The scope showed very large varices, some of the esophageal varices actually extended into the stomach and it was one of these that was causing the bleed. They said they were not equipped to handle these as you couldn't do a simple banding process on them, but they found a bed for him at the University of Virginia Medical ICU and he has been transported. I am at the house packing a few things. I hope to have my laptop getting wi-fi when I get up there so I will try to stay in touch. I am thankful for all of you guys! How is your husband doing? I just got on here and assumed that you already took him to the hospital by what you posted. Please let us know how things turned out...I sure hope that he is doing okay. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 24, 2008 , I am so thankful you got him to the ER. I pray they will be able to get the bleed stopped and that will be feeling better very soon. I just told my own husband that this should be a lesson to him. Whether it will or not, I cannot say. I know this is a frightening time for you. Please know I am lifting you up to the Lord and praying His strength for you. Hugs.......... Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, December 24, 2008 6:17:40 PM Subject: Re: Hi guys, Just back from the hospital for now and am going to shower and head to UVA. has already been transported there. We didn't go to the hospital till the next day, because didn't want to, and we should have listened to you guys. Even though he only vomited small amounts of blood twice, twelve hours apart, by the next morning it was coming out in his stool. By the time we got to the hospital his H and H were 7.7 and 30, by that evening his BMs were completely old blood. He was bleeding out into his stomach. He received 4 units of packed red cells and his h & h had fallen to 10 and 20 by the time they scoped him this am at 8:00 am. They were giving him sandostatin and something else to constrict the blood vessels throughout the night along with the red cells and had him in ICU in case he had a large bleed. The scope showed very large varices, some of the esophageal varices actually extended into the stomach and it was one of these that was causing the bleed. They said they were not equipped to handle these as you couldn't do a simple banding process on them, but they found a bed for him at the University of Virginia Medical ICU and he has been transported. I am at the house packing a few things. I hope to have my laptop getting wi-fi when I get up there so I will try to stay in touch. I am thankful for all of you guys! How is your husband doing? I just got on here and assumed that you already took him to the hospital by what you posted. Please let us know how things turned out...I sure hope that he is doing okay. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 24, 2008 I wanted to tell you that with Ardis, she had almost the same thing. Almost nothing in the way of blood in the vomit, but she had sprung a leak in her lower esophagus. They could never quite find the damn thing, but she almost died of anemia twice. I am not sure if I said that or not. At any rate, I want the take home message for members of this group to be this, a warning from ol Chief Little Eagle- diagnosed Portal hypertension plus the appearance of ANY amount of oral blood, or black tarry stools unless you are absolutely sure it is a chapped lip or too many oreos, , means a trip to the ER. For me, it is always a debate weather or not to go to the ER, but I think it is important to go in this kind of case. Let them turn you away, and be embarrassed, and pay the unfordable co pay, but the consequences are too great to do otherwise. Our thoughts and prayers are with you and tonight, . I hope that they can help him out with this. Please drive carefully, and try to take care of your self too. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Wednesday, December 24, 2008 5:17:40 PM Subject: Re: Hi guys, Just back from the hospital for now and am going to shower and head to UVA. has already been transported there. We didn't go to the hospital till the next day, because didn't want to, and we should have listened to you guys. Even though he only vomited small amounts of blood twice, twelve hours apart, by the next morning it was coming out in his stool. By the time we got to the hospital his H and H were 7.7 and 30, by that evening his BMs were completely old blood. He was bleeding out into his stomach. He received 4 units of packed red cells and his h & h had fallen to 10 and 20 by the time they scoped him this am at 8:00 am. They were giving him sandostatin and something else to constrict the blood vessels throughout the night along with the red cells and had him in ICU in case he had a large bleed. The scope showed very large varices, some of the esophageal varices actually extended into the stomach and it was one of these that was causing the bleed. They said they were not equipped to handle these as you couldn't do a simple banding process on them, but they found a bed for him at the University of Virginia Medical ICU and he has been transported. I am at the house packing a few things. I hope to have my laptop getting wi-fi when I get up there so I will try to stay in touch. I am thankful for all of you guys! How is your husband doing? I just got on here and assumed that you already took him to the hospital by what you posted. Please let us know how things turned out...I sure hope that he is doing okay. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 11, 2009 i am so sorry it is not his blood pressure (bp) but blood sugar (bs) he does not take meds for encephalopathy some time i think his " foggy headedness if from low blood sugar hypoglycemia...well any way come the end of the month the team will know all about him ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Sunday, January 11, 2009 4:33:29 PM Subject: What is the cause of his blood pressure dropping so low...is he dehydrated or his electrolytes are off? Are his kidney tests showing his kidneys are alright? Is the medication he is taking for his encephalopathy working? I hope, when your sister has the test, that it turns out to be something they can treat and cure. It sure becomes a roller coaster ride when you are trying so hard to take care of almost everyone around you...you need to take care of yourself. They say that caregivers need to have their own caregiver... that is so true. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 11, 2009 all is good ...i have been reading on hypoglycemia and i am advocating a diet for my husband stricter then ever. he needs to have low glycemic index foods.... complex carbs...such as whole wheat most fruits ect...this is slower to metabolize and have better body usage. and eating more frequent...the other day the bs dropped within 4 hours of eating. i have a nurse friend who is diabetic she told me to have my husband eat an apple after meals. i looked this up and saw it is recommended to eat 2 small apples with skin after each meal. this is to sustain the glucose longer. ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Sunday, January 11, 2009 11:09:30 PM Subject: That is my fault, I looked at it wrong. My husband blood pressure (bp)started to drop fast right before his transplant.. .his sodium level dropped down too low, well below normal range. I got him to the hospital very fast. My mind tends to get stuck sometimes in what I see. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 11, 2009 I have been a diabetic for over 40 years and the two applles would drive my bs up so so so so so high..........Be careful of what people tell you and use a blood monitoring machine instead. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! Subject: Re: To: livercirrhosissupport Date: Sunday, January 11, 2009, 10:24 PM all is good ...i have been reading on hypoglycemia and i am advocating a diet for my husband stricter then ever. he needs to have low glycemic index foods.... complex carbs...such as whole wheat most fruits ect...this is slower to metabolize and have better body usage. and eating more frequent...the other day the bs dropped within 4 hours of eating. i have a nurse friend who is diabetic she told me to have my husband eat an apple after meals. i looked this up and saw it is recommended to eat 2 small apples with skin after each meal. this is to sustain the glucose longer. ____________ _________ _________ __ From: abijann <no_reply@yahoogroup s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, January 11, 2009 11:09:30 PM Subject: That is my fault, I looked at it wrong. My husband blood pressure (bp)started to drop fast right before his transplant.. .his sodium level dropped down too low, well below normal range. I got him to the hospital very fast. My mind tends to get stuck sometimes in what I see. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 11, 2009 advise taken ...thanks ________________________________ To: livercirrhosissupport Sent: Sunday, January 11, 2009 11:47:34 PM Subject: Re: I have been a diabetic for over 40 years and the two applles would drive my bs up so so so so so high........ ..Be careful of what people tell you and use a blood monitoring machine instead. Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: sandra <sgonz48yahoo (DOT) com> Subject: Re: To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Sunday, January 11, 2009, 10:24 PM all is good ...i have been reading on hypoglycemia and i am advocating a diet for my husband stricter then ever. he needs to have low glycemic index foods.... complex carbs...such as whole wheat most fruits ect...this is slower to metabolize and have better body usage. and eating more frequent...the other day the bs dropped within 4 hours of eating. i have a nurse friend who is diabetic she told me to have my husband eat an apple after meals. i looked this up and saw it is recommended to eat 2 small apples with skin after each meal. this is to sustain the glucose longer. ____________ _________ _________ __ From: abijann <no_reply@yahoogrou p s.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, January 11, 2009 11:09:30 PM Subject: That is my fault, I looked at it wrong. My husband blood pressure (bp)started to drop fast right before his transplant.. .his sodium level dropped down too low, well below normal range. I got him to the hospital very fast. My mind tends to get stuck sometimes in what I see. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 18, 2009 , I have been on the waiting list since November. Before I was on the list my MELD score was in the mid 20's but now it is 14 so I am low on the list of over 150 at my liver institute only transplants the highest MELD scores.. I cannot work because they willl not allow me to drive here in Texas. I was in very bad shape last July when I lived in Florida. I moved back to Texas (Still had my house of 30 years here in Texas....still owe on it also...........salary readlly dropped .... stilll figuring finances out. ) I probably have a long waiting time unless I get really get my new kidney and liver. I hope I don't have to go on dialysis. I have been able to travel to see family while my MELD has been low and I want to go to Taos NM to see family and do fun things while I still feel good. My son drives me so that makes it easy. Lyncia From: diane chandler <dianechandler@ att.net> Subject: Re: Bleeding To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Sunday, January 18, 2009, 7:20 PM My uncle had cirrohsis and had this exact problem. They finally decided that he was seeping blood from his intestinal lining, but had no sores visible. The blood was just so thin it could not be contained within the vessels. I don't know that his outcome is the same as for all, but yes, it was over for him within a couple of weeks. I'm sorry, I don't want to upset you, but that is what happened with him. I'm praying for your husband, for you and for your family. Hugs........ .... Diane ____________ _________ _________ __ From: sexylovelymum <palmerfamily10@ hotmail.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, January 18, 2009 4:16:11 PM Subject: Bleeding Sorry I dont get on and comment very often, I sought of lurk in the background and learn from you all. As you may know my husband has stage 4 cirrhosis and renal failure, so here is the question. For the past 2 weeks he has been in hospital bleeding somewhere internally, it comes out when he does a bowel motion. He has had a camera put up his bottom and down his throat, has had an angiagram and xrays and they cant find where he is bleeding from. The doctors have given him all the drugs possible to try and thicken his blood to stop the bleeding but nothing seems to work, did I mention he is anaemic? Has anyone else been through this, is this the end for him? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 20, 2009 wished i had a copy of his last labs...i wonder if and how the numbers will change with the addition of serum sodium..could this prevent his listing next week ________________________________ From: abijann <no_reply > To: livercirrhosissupport Sent: Tuesday, January 20, 2009 6:22:27 PM Subject: Most patients are placed on a low sodium diet when they have cirrhosis and are also given diuretics. However, when the doctor tells some of these patients...they tend to think of no sodium in the diet than low sodium. [And that is also true of drinking fluids, also] This is something they really have to keep a closer eye on when they are on the transplant list. If they don't catch that level going below normal range, a patients blood pressure will start to drop fast and it can cause the heart to beat out of rhythm....they could easily die before ever going for the transplant then. I'm glad they finally added that on. They already considered this at most transplant centers in the year, 2003. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 30, 2009 I know it's hard to laugh when all you feel is pain and depression . We laugh at strange things that come along now including the problems with the lactulose he takes daily. If we didn't laugh we'd probably cry!! One day he said look at me==and he was standing with his shirt off and his thin arms with skin hanging and his ribs showing and his pot belly with the fluid filling in again and was doing the muscle stance with his arms up and his fists clenched. It was so sad for me to see that and I know how sad it makes him to look like that but for some reason we both got to laughing. He's always had a good phsyical body shape and was always a joker. Havent' been able to joke around this past year so to laugh at this was a release for both of us. ________________________________ To: livercirrhosissupport Sent: Friday, January 30, 2009 6:07:51 PM Subject: Re: New member welcome bryant,glad to have you here with us ,hopefully we can help lift your spirits. we are here to listen and understand considering we are all in the same sinking ship :)we are a pretty tight knit group more like a family and you are welcomed with open arms. if ya need to talk vent or just be heard one of us is always here.. my husband also has esld from hep c. its been a crazy ride, hows your wife holding up threw it all? i do know all to well about the bills as all of us do here,just pay what you can and file the rest ,thats pretty much all we can do. i wish you the best and dont worry about those pesty old mirrors just hang a towel over it. i tend to avoid them these days and just picture myself looking 30 again hahahaha ,have a great evening barby > > Hi everyone, > > I just joined this group. I didn't realize that I had been accepted as > a member until just now because I messed up and used my default e- mail > address at Yahoo which I can't even access because I lost the password > years ago. I just changed it so that I can get mail now. > > I have a huge swollen liver that is very uncomfortable. It has caused > me to have a huge hernia in my navel, and the whole thing looks just > terrible. I can hardly stand to look at myself in the mirror. > > I had no idea that I had cirrhosis until about a year ago when I threw > up a lot of blood and was taken to the hospital, where I was diagnosed > with this and told that it was brought on by having hep C. I can't > work, but my company, even though I am not getting paid, keeps me on > the roster so that I can keep my company insurance. The insurance does > not pay everything, however, and I have a huge amount of debt due to > that. My wife still works, but she doesn't make enough to pay all of > these bills. I wish I could get out there and do something, but I have > no strength or stamina, and I mostly just stay at home and watch TV, > surf the net, and sleep. I am always fighting off depression. I > consider it unbecoming. I have always tried to be very stoic and > accept reality without letting it beat me down, but lately that has > been hard to do. > > Thanks for listening to my complaints. > > Holman > Presidio, Texas > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 30, 2009 Bonnie, that's really sad to think about. In the end we all end up in the same condition. Worn out, all of our " redundancy " used up, putt-putt-putting along on two and a half cylindars. Wiser, but weary. But I can relate. You have to find a way to laugh, and enjoy. Which tonight , I am. Love, Bobby Sent via BlackBerry from T-Mobile Re: New member welcome bryant,glad to have you here with us ,hopefully we can help lift your spirits. we are here to listen and understand considering we are all in the same sinking ship :)we are a pretty tight knit group more like a family and you are welcomed with open arms. if ya need to talk vent or just be heard one of us is always here.. my husband also has esld from hep c. its been a crazy ride, hows your wife holding up threw it all? i do know all to well about the bills as all of us do here,just pay what you can and file the rest ,thats pretty much all we can do. i wish you the best and dont worry about those pesty old mirrors just hang a towel over it. i tend to avoid them these days and just picture myself looking 30 again hahahaha ,have a great evening barby > > Hi everyone, > > I just joined this group. I didn't realize that I had been accepted as > a member until just now because I messed up and used my default e- mail > address at Yahoo which I can't even access because I lost the password > years ago. I just changed it so that I can get mail now. > > I have a huge swollen liver that is very uncomfortable. It has caused > me to have a huge hernia in my navel, and the whole thing looks just > terrible. I can hardly stand to look at myself in the mirror. > > I had no idea that I had cirrhosis until about a year ago when I threw > up a lot of blood and was taken to the hospital, where I was diagnosed > with this and told that it was brought on by having hep C. I can't > work, but my company, even though I am not getting paid, keeps me on > the roster so that I can keep my company insurance. The insurance does > not pay everything, however, and I have a huge amount of debt due to > that. My wife still works, but she doesn't make enough to pay all of > these bills. I wish I could get out there and do something, but I have > no strength or stamina, and I mostly just stay at home and watch TV, > surf the net, and sleep. I am always fighting off depression. I > consider it unbecoming. I have always tried to be very stoic and > accept reality without letting it beat me down, but lately that has > been hard to do. > > Thanks for listening to my complaints. > > Holman > Presidio, Texas > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2009 Don't be discouraged if you are turned down for disability........Starting to fight that battle next week....... Lyncia In life family and friends take us on all kinds of adventures, God helps us choose our path....Enjoy your journey! From: abijann <no_reply > Subject: To: livercirrhosissupport Date: Friday, January 30, 2009, 4:43 PM Welcome to the group and I hope you will feel right at home. The people here have become more than friends, they are like family. Some are caregivers, others have lost loved ones, and many have the disease for many different reasons...some don't even know the reason they have it. If you need information, here, we can help. People with Cirrhosis, no matter what their age is, can try and sign up for Social Security Disability Income Benefits by contacting their local Social Security office who may send the forms to you to fill out through the mail, if you cannot go there to get them. After you are approved for this, then later you can apply for Medicare coverage.. If you are very low income, below the standard level, you may also be able to get Social Security Supplemental Income (SSI) and maybe even Medicaid. IF you get Medicare or medicaid...you have to be very careful whether or not you want this coverage...as it can interfere with any medical insurance you have through the company you work for. But, in some situations, the company may give you something that will go as a secondary insurance to Medicare and then you will have total coverage for everything. This is just some information I thought you might like to look into, if you haven't already. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 1, 2009 Praying for you and for . Pamela From: abijann <no_reply > Subject: To: livercirrhosissupport Date: Sunday, February 1, 2009, 4:07 PM Please keep us posted on how is doing. It sure is a hard thing to watch someone go through so much. May God watch over you and him. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 2, 2009 , I totally understand if you don't post at this time. I just wanted you to know that you are on my mind and in my heart and I'm continuing to pray for you. I know you will give us an update on when you can. Love you sweetie! Many warm hugs................. Diane Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 3, 2009 I stopped in at church this morning after taking my grandson to work. Tues and Thurs a bunch of ladies make quilts for the Veterans home and others who need them. One of the ladies who was there today has alzheimers. Last year it was really bad, she couldn't remember how to do anything, but the other ladies were willing to put up with the problems that caused just so she could get out of the house and her husband could have a break. I had heard she was doing better, but hadn't really had a chance to talk to her. Then a couple of weeks ago, we had a drama at our church put on by a Christian College. When it came time for the free will offering, she got up and took one aisle. Did very well at it. Today she was tying quilts again and you would never guess there was anything wrong with her. They have changed her medication. And it has made a whale of a difference. So great to see. Not sure if it will lengthen her life, but sure is increasing the quality. It seems that we always have new hurdles to jump. Some people used to be afraid to be around someone with cancer because they were afraid they would catch it. Tonight, at my Bible Study, one of the members asked for prayers for someone who is in the end stages of cirrhosis, sounds like it came on quickly, or he never told anyone. And the lady who mentioned him said, " and he doesn't even drink " They had me sitting there but they still think cirrhosis means drinking. I keep telling people it isn't even the number 1 reason any more. I read somewhere that more people have cirrhosis from Hep C. So, I informed them there are many reasons people can get it, and the last one on the list is unknown. Lots of educating to do in lots of areas. Jan H On Tue, Feb 3, 2009 at 4:54 PM, abijann <no_reply > wrote: > I really believe people should take their time to try to understand > what it is like if they were in others shoes. My husband had > suffered so...I saw it, even if the outside world did not. > I've also seen people who had Alzheimers and how people look at > them when, even though they knew that the disease effects their minds, > would give them a look like they were crazy or get very upset and > angry at them. Sometimes you have to look through a dark glass to > see any light at all. I tend to look directly at a persons eyes > when I am talking to them...you can tell alot of what they are going > through by doing this. Even if they have a smile on their face... > the tiredness in their eyes still shows through. > > Some people have an idea that if your are depressed, you are > mentally ill. That is so far from the truth. Life situations > can make you feel down, especially if you are not feeling well > and unable to sleep well, also. > > > -- Jan H Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 4, 2009 hi group i really have had a rough night and as a matter of fact a real bad 2 days. my husband is really swollen. his legs and feet and thighs and face is all swollen. and he has been very mean to me. i donot know if anyone goes through this. but all i do is get curse out and scream at all day. i just feel like why do i need to stay around and get abuse. all i do is help him and do everything. does anyone have any suggestions. thanks linda From: abijann <no_reply > Subject: To: livercirrhosissupport Date: Wednesday, February 4, 2009, 5:08 PM Our loved ones never truly leave us, they live on in our hearts with the kindness they showed, the sweetness of their actions, and the love they gave us to pass onto others. Death can take our loved ones from us...but, it cannot steal away the memories.... that is embedded in our minds forever. May Our Father send the comforter to be with you and your family. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 4, 2009 , I am so sorry you have to face this every day. Is this a change of attitude for your husband? Did he treat you this way before the disease process started? If the answer is no, then it's not him sweetie, it's the disease messin with his brain chemistry. If the answer is yes, then that is a totally different situation. Terry would never curse me or scream at me, but he did get much more difficult to please or help at times. He was more impatient and insisted that it was me who was having the memory problems. He did one time right near the end tell me quite matter-of-factly that I was an ignorant woman! However, I knew it wasn't him, it was the disease. Is your husband on lactulose for encephalopathy? If not, it seems to me he definitely needs to be. Also, he may need something to help him relax a bit. Not so much an anti-depressant as an anti-anxiety medication. These are things you should discuss with his doctor. My heart goes out to you sweetie. I am praying. Warm hugs............ Diane ________________________________ To: livercirrhosissupport Sent: Wednesday, February 4, 2009 8:27:04 PM Subject: Re: hi group i really have had a rough night and as a matter of fact a real bad 2 days. my husband is really swollen. his legs and feet and thighs and face is all swollen. and he has been very mean to me. i donot know if anyone goes through this. but all i do is get curse out and scream at all day. i just feel like why do i need to stay around and get abuse. all i do is help him and do everything. does anyone have any suggestions. thanks linda From: abijann <no_reply@yahoogroup s.com> Subject: To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, February 4, 2009, 5:08 PM Our loved ones never truly leave us, they live on in our hearts with the kindness they showed, the sweetness of their actions, and the love they gave us to pass onto others. Death can take our loved ones from us...but, it cannot steal away the memories.... that is embedded in our minds forever. May Our Father send the comforter to be with you and your family. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 4, 2009 How do you respond when he curses or gets angry at you? Is this the encephalopathy? Or is this his anger due to the disease or his personality? Do you cry in front of him when he acts badly? Not that you want to manipulate him, but if he sees you hurting, does it soften him? Some times heaping coals upon his head might help...being extra sweet when he is ugly. Telling him " I LOVE YOU " after he is mean to you, or telling him, " your being mean to me right now doesn't change the fact THAT I LOVE YOU. " I will pray for wisdom for you, this is not an easy time. Lord bless you!!! Pamela From: abijann <no_reply@yahoogroup s.com> Subject: To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, February 4, 2009, 5:08 PM Our loved ones never truly leave us, they live on in our hearts with the kindness they showed, the sweetness of their actions, and the love they gave us to pass onto others. Death can take our loved ones from us...but, it cannot steal away the memories.... that is embedded in our minds forever. May Our Father send the comforter to be with you and your family. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 5, 2009 It is not him who is yelling at you. It is a rockhard scarred up liver who has taken over. Livers do not have any manners to speak of, and no social skilles either. Please do not take anything personal. All you can do is try with all your might to be sweet. Love, Bobby, your friend Sent via BlackBerry from T-Mobile To: livercirrhosissupport Date: Wednesday, February 4, 2009, 5:08 PM Our loved ones never truly leave us, they live on in our hearts with the kindness they showed, the sweetness of their actions, and the love they gave us to pass onto others. Death can take our loved ones from us...but, it cannot steal away the memories.... that is embedded in our minds forever. May Our Father send the comforter to be with you and your family. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2009 , My name is Pamela, I was caregiver to my mother in her last 6 months of life. We found out that the fish oil really helped her itching skin as well.. I'm sorry your friend is moving out. Is there someone else who can help you? Bless your heart, you've been through alot!! I hope you find support here in this group! I sure have. Pamela From: crazygirlmcc <CrazygirlMCC@ hotmail.com> Subject: Re: lactulose - Lyncia To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, February 4, 2009, 9:32 AM well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 8, 2009 Pamela , I have family that lives near by but it isn't the same as having someone in the house all the time. Its very comforting. Mabe I will luck up and something will happen. I am glad I found this group when I did. From: crazygirlmcc <CrazygirlMCC@ hotmail.com> Subject: Re: lactulose - Lyncia To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, February 4, 2009, 9:32 AM well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 8, 2009 Abijann, How do folks keep finding a reason to get out of bed each day. I can go days at a time and don't go out. Is anyone else out their haveing to be there own caretaker?? From: abijann <no_reply > Subject: To: livercirrhosissupport Date: Saturday, February 7, 2009, 5:07 PM Welcome to this group. I wish you had at least someone there that could be with you now. It sounds like you have gone through quite a lot. If you have any questions at all, please ask us. All questions are very important. I tell others that their questions might give an answer to those who just read the posts here and doesn't post themselves. You never know who else you might be helping. I'm glad you found us and I hope you enjoy being here. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 8, 2009 , I understand what you mean. I sometimes feel so very lonely. Even with the boys here, they have their own lives. Lyncia My life is really different now, but it is my life. God helps us choose our path! From: crazygirlmcc <CrazygirlMCC@ hotmail.com> Subject: Re: lactulose - Lyncia To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, February 4, 2009, 9:32 AM well, is 45ml a lot? I started yesterday afternoon so i had 30 ml, now I take another 15ml three different times today. Still no bowel movement but i do have abdominal pain and feel pretty nauseous. I also was prescribed vitamin d and told to start taking calcium. My brain is definately not itself yet. It's really the worst when I just wake up or start getting more tired than normal for me. My husband notices it much more than me and when i'm " clear headed " he will tell me what questions i was asking out of left field. My conversational skills are pretty affected cuz when I'm in the middle of talking my whole brain will get swiped clean and I don't know what I was saying. I also had alot of trouble yesterday with trying to balance my checkbook, it was so hard for me to transfer things from my computer into my checkbook. Last night I asked, did I go to the doctors today? I knew that I went to the doctors but had no details to tell. I just forget stuff all the time. I applied for ssi and they said I qualify but have to wait 5 months to know if I get accepted. When I try to remember stuff I will sit and think for a long time. I've started writing down when I take my pills and I set the alarm in my phone for three different times to take the lactulose. How much do you all take? does this mean i'm getting sicker? when should i expect it to start moving my bowels? how bad is it? On a side note, I cried when in the doctors office. It's very scary to be aware... like I'm fighting away a dumber me but I don't always win. I hope that makes sense. I would appreciate hearing everyones answers to the questions to know if I am similar to others. > > From: diane chandler <dianechandler@ ...> > Subject: Re: lactulose > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Tuesday, February 3, 2009, 8:41 PM > > > > > > > Oh, , I'm so sorry you had to go through that. I do think you'll be feeling much better very soon. The 'crap flood' isn't a welcome event, but the clearer head surely is! I'm continuing to pray for you sweetie! Love you! > > Diane > > ____________ _________ _________ __ > From: crazygirlmcc <CrazygirlMCC@ hotmail.com> > To: livercirrhosissuppo rtyahoogroups (DOT) com > Sent: Tuesday, February 3, 2009 7:29:44 PM > Subject: lactulose > > The hopital started me on 45ml a day for now and will increase if they > need to. I was so confused this morning when folding a shirt to put it > away I just stopped and stared at the shirt thinking " what am i doing " > I just put the shirt down and walked away. I took a shower and two > hours later asked if i had taken a shower. it was scary to be so out > of it, i'm waiting for the crap flood to take place now lol. > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 8, 2009 Sometimes I feel that way. The kids are now arguing whos turn it is to take me somewhere. I wish I were closes and could help you because I surely understand you. Lyncia My life is really different now, but it is my life. God helps us choose our path! From: abijann <no_reply@yahoogroup s.com> Subject: To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Saturday, February 7, 2009, 5:07 PM Welcome to this group. I wish you had at least someone there that could be with you now. It sounds like you have gone through quite a lot. If you have any questions at all, please ask us. All questions are very important. I tell others that their questions might give an answer to those who just read the posts here and doesn't post themselves. You never know who else you might be helping. I'm glad you found us and I hope you enjoy being here. Quote Share this post Link to post Share on other sites
