Guest guest Report post Posted March 22, 2005 Hi , Thank you for the reply. My diagnosis came last summer as well. I first got hit on day 1 of a vacation and was down for about 6 weeks. I had minor flares off and on until January of this year. Do you continue to have any other symptons? Thanks, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 23, 2005 Hi Ok long story short so as not to bore you with too many details: My original symptoms were extremely swollen glands in my neck, wicked evil sore throat, fever of 104+ in the afternoons, sweating buckets -this weird kinda sweat that had a sweet sugary scent, nausea, throwing up even when I hadn't eaten in days, and the pain, oh my god the muscle pain. It felt like I had run a marathon and didn't stretchout afterwards and then got runover by a bus. I was bedridden, absolutely couldn't move bcuz the pain and weakness was so unreal. I have a high tolerance for pain, especially being sore because I trained in martial arts for years. I was very straong and I couldn't lift my head. Ok but so other than that I didn't have joint pain or any arthritis type symptoms. My blood tests came back with the obscene sed rate and crp rate and all that jazz. But I never got real specific joint pain until three months or so later. I was misdiagnosed with just a rare manifestation of RA in august but I knew that I didn't have just normal RA so I got a 2nd opinion and that RD knew right away that I had Still's. I had hidden injury in my foot/ankle from running. The inflamation exaserbated the injury and for weeks I was on crutches or crawling on my hands n knees to get around. Yeah, I know, that's hot. But so anyways I went to a foot doc and he gave me a steroid shot in my ankle and after a while the pain is only 10-15% of what it was. I responded to treatments until december and onver the NewYears holiday I had my second official flare after I had been off of prednisone for a week. It was too soon apparently and my body let me know it. I was right back to where I started from. It's not easy to get down to 2.5 mg of pred when you started at 80mg! Don't mess with anythign that could effect your lower dose of pred, I swear because it takes forever to get off the stuff. You might already know that though....ok so I was sick againin January and I'm still fighting that same flare. I am on 25mg of MTX injections, Kineret daily injections, 15mg and pred still dammit, and you know the rest folic acid blah blah...As the months pass I get more and more of the srthritis symptoms like pain and swellingin the little joints and my wrists and knees. And on bad days my bad ankle. I get so tired so fast, but then there are times when I couldn't sleep if you paid me. I am a workaholic and a super active person...or ...I WAS that way. I pushed myself to get off pred too quickly because I didn't believe I really had Still's and if I did have it I was convinced that it would go away. I truly believed that it was just going to go away. I only really really accepted that I actually have this thing a couple weeks ago when I decided to start Kineret. I know immediately when I'm starting to get sick because I feel it in my throat. I could guess my sed rate within one point with almost flawless accuracy. You really get to listen to your body when you're sick like this. I can eat a tootsi roll and within 10 mins I feel it in my joints. Sugar seems to be a trigger for me. And I not a health nut. I should be but I'm all about hotdogs and icecream sundaes. If I eat salt I will absolutely gain weight. The worst things I'd say are the pain and the weight gain. I was thick when I got sick but damn if I'm not a prize heiffer now! I feel like the farmer is gettin me ready for the county fair. Blue ribbon here I come. But I'm not annoyed about it because I'm vain, it's straight up uncomfortable. I hate that stiff tightskin bloated stretched out feeling. Some days I don't recognize myself in the mirror. Anyways...wow this is longer than I intended...long story short-toooooo late- I am slowly learning to roll with the punches. Some people go into remission and I still think maybe I might be one of them...I am young healthy and strong, but there are days when I feel nothing short of old, ill, and weak as hell. I'm not one to cry but wow has this made me cry. But, this is where the weird part comes in, I almost don't mind having Still's. Yeah I know it's nuts. There are so many worse things. I have to remind myself of that. I mean so my hair's falling out...eh, I cut it short because I'm cute like that. So what I got fatter, I can work it. Curves are sexy, yeah? So...I don't know. I don't have a religious mindset so I can't say that I'm all about giving it up to God like some people can. I don't find solice in all that. If you do, then more power to ya, pray on man. But you know what's good about having Still's? You can get a handicap parkin placard and park for free in the city (at least you can in Chicago) and you always get that rock star parking spot. That's the answer. We are all just secret rockstars. Sorry to ramble.It's an I-can't-sleep- night. But so now it's your turn. What's your story man? How do you feel today? What are your meds/symptoms/emotions? I seriously wanna know. Love xoxo aim =HelloLovah yahoo=ChillerLovah email=melissacalabrese@... Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 23, 2005 Hi , I hope you are getting some sleep today. Well I guess I should have kept my big mouth shut! I'm getting hit pretty hard today. Sore throat, my entire body hurts and I woke up this morning with a large swollen rash on my side. First sign of rash in about 3 months. I will try and reply back later tonight with better detail on my story later. I am leaving work and going to the doctors for lab work. Talk to you later, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 24, 2005 I save up about 10 gallons of milk well now there it is...I've only used 2 at the most and gotten so very little Thanks- Jolynn Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 24, 2005 I save up about 10 gallons of milk well now there it is...I've only used 2 at the most and gotten so very little Thanks- Jolynn Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 29, 2005 That's amazing. It's totally legal here for people to sell cakes and cookies outside the grocery stores for different causes. And the roach coaches keep rolling along (LMAO). K.C. From Farm Show, vol. 29, No. 2: Outlawing Potluck Dinners It is now illegal for churches in some parts of North America to hold potluck dinners. Several states have passed regulations outlawing them, turning church ladies into a new class of criminal. However, the backlash from hungry church-goers might help turn back the tide of ridiculous regulations. Citizens in Washington state raised such a stink after such community meals were banned, that a new law exempting potlucks from state food safety laws was passed. Potlucks will be legal again this May. Minnesota also had to pass a law recently to exempt churches and schools from anti-potluck laws. In Canada, church fundraising potlucks and bake sales are being cancelled across the country, according to recent magazine reports. The issue came to a head last year at the Rosy Rhubarb Festival in Shedden, Ontario, when a person selling pies was told to stop because the kitchen where the pies had been baked had not been inspected by the health authorities. Witnesses reported that the ensuing discussion turned ugly, with pies being hurled at the inspector. www.MajestyFarm.com The true danger is when liberty is nibbled away, for expedients, and by parts. Edmund Burke (1729-1797) PLEASE BE KIND AND TRIM YOUR POSTS WHEN REPLYING!Visit our Raw Dairy Files for a wealth of information!http://groups.yahoo.com/group/RawDairy/files/Archive search: http://onibasu.com Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 29, 2005 That's amazing. It's totally legal here for people to sell cakes and cookies outside the grocery stores for different causes. And the roach coaches keep rolling along (LMAO). K.C. From Farm Show, vol. 29, No. 2: Outlawing Potluck Dinners It is now illegal for churches in some parts of North America to hold potluck dinners. Several states have passed regulations outlawing them, turning church ladies into a new class of criminal. However, the backlash from hungry church-goers might help turn back the tide of ridiculous regulations. Citizens in Washington state raised such a stink after such community meals were banned, that a new law exempting potlucks from state food safety laws was passed. Potlucks will be legal again this May. Minnesota also had to pass a law recently to exempt churches and schools from anti-potluck laws. In Canada, church fundraising potlucks and bake sales are being cancelled across the country, according to recent magazine reports. The issue came to a head last year at the Rosy Rhubarb Festival in Shedden, Ontario, when a person selling pies was told to stop because the kitchen where the pies had been baked had not been inspected by the health authorities. Witnesses reported that the ensuing discussion turned ugly, with pies being hurled at the inspector. www.MajestyFarm.com The true danger is when liberty is nibbled away, for expedients, and by parts. Edmund Burke (1729-1797) PLEASE BE KIND AND TRIM YOUR POSTS WHEN REPLYING!Visit our Raw Dairy Files for a wealth of information!http://groups.yahoo.com/group/RawDairy/files/Archive search: http://onibasu.com Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 29, 2005 , You asked for my story so here you go. I am 46, married with 4 children. We live in Spring Texas, a community just north of Houston. I first became sick in June of 04. My symptoms were severe rash that started on the bottom of my feet and the palms of my hands. The rash continued to grow daily and progressed to my trunk. I suffered from severe muscle and joint pain and a very sore throat. The lymph nodes on the back of my neck became the size of golf balls. I also would get lumps on the top of my head. Is that weird or what! I also suffered from severe fatigue. I had only a low-grade fever at the beginning and really no fever or night sweats at all since. I was hospitalized and went through tests for everything imaginable. I saw Internal Medicine, Infectious Disease, Urologist Cardiologist and Rheumatologist. The Urologist was for a kidney stone that I was passing at the same time. Glad that went fast! I started on meds for tick born illnesses while labs were being completed. After not responding to the meds and negative blood tests I was started on Prednisone. I was showing some improvement, but I didn't know if it was the meds or what ever I had just running its course. I continued on the pred and was diagnosed with AOSD around December. At the time of the diagnosis my doc started weaning me off of the pred and started me on methotrexate. I had been feeling much better with the only problem coming from doing physical activity. I would swell and get extremely sore for about a day after doing any kind of physical activity. At the beginning of March I went back to the doc for a follow up and we decided coming of the meds. I really wanted to see if the meds were working or, if what ever I had just ran its course. Well I am very sad too say that my symptoms returned last week. I broke out with a rash that was one big spot about 5 " around on my side that was bright red and very swollen. I had a sore throat that started the day before and I was extremely sore all over. I spoke with my doc and back on the pred and methotrexate I go. I am now taking 20mg of pred daily and 15mg of mtx a week. Since going back on the meds I have had two other days that I have not felt well. I guess that I am finally coming to the realization that Still was the proper diagnosis. Early on when I was on the meds I would also suffer from chest pains and being short of breathe. That seemed to improve as I came off the pred. Now that I am back on it the chest pains have returned. Is that a side effect of prednisone??? Well I guess I rambled on long enough but you asked for my story so there it is. I really did appreciate your reply and I did respond to it last week but it never showed up in the posts. I'm a rookie to groups so I must have done something wrong. Anyway I look forward to talking to you again and I hope you are feeling well. Thanks for your support. Yahoo messenger: unkjohn AIM: Bigerjohn E-Mail unkjohn@... > > Hi > > Ok long story short so as not to bore you with too many details: > My original symptoms were extremely swollen glands in my neck, > wicked evil sore throat, fever of 104+ in the afternoons, sweating > buckets -this weird kinda sweat that had a sweet sugary scent, > nausea, throwing up even when I hadn't eaten in days, and the pain, > oh my god the muscle pain. It felt like I had run a marathon and > didn't stretchout afterwards and then got runover by a bus. I was > bedridden, absolutely couldn't move bcuz the pain and weakness was > so unreal. I have a high tolerance for pain, especially being sore > because I trained in martial arts for years. I was very straong and > I couldn't lift my head. Ok but so other than that I didn't have > joint pain or any arthritis type symptoms. My blood tests came back > with the obscene sed rate and crp rate and all that jazz. But I > never got real specific joint pain until three months or so later. I > was misdiagnosed with just a rare manifestation of RA in august but > I knew that I didn't have just normal RA so I got a 2nd opinion and > that RD knew right away that I had Still's. I had hidden injury in > my foot/ankle from running. The inflamation exaserbated the injury > and for weeks I was on crutches or crawling on my hands n knees to > get around. Yeah, I know, that's hot. But so anyways I went to a > foot doc and he gave me a steroid shot in my ankle and after a while > the pain is only 10-15% of what it was. I responded to treatments > until december and onver the NewYears holiday I had my second > official flare after I had been off of prednisone for a week. It was > too soon apparently and my body let me know it. I was right back to > where I started from. It's not easy to get down to 2.5 mg of pred > when you started at 80mg! Don't mess with anythign that could effect > your lower dose of pred, I swear because it takes forever to get off > the stuff. You might already know that though....ok so I was sick > againin January and I'm still fighting that same flare. I am on 25mg > of MTX injections, Kineret daily injections, 15mg and pred still > dammit, and you know the rest folic acid blah blah...As the months > pass I get more and more of the srthritis symptoms like pain and > swellingin the little joints and my wrists and knees. And on bad > days my bad ankle. I get so tired so fast, but then there are times > when I couldn't sleep if you paid me. I am a workaholic and a super > active person...or ...I WAS that way. I pushed myself to get off > pred too quickly because I didn't believe I really had Still's and > if I did have it I was convinced that it would go away. I truly > believed that it was just going to go away. I only really really > accepted that I actually have this thing a couple weeks ago when I > decided to start Kineret. I know immediately when I'm starting to > get sick because I feel it in my throat. I could guess my sed rate > within one point with almost flawless accuracy. You really get to > listen to your body when you're sick like this. I can eat a tootsi > roll and within 10 mins I feel it in my joints. Sugar seems to be a > trigger for me. And I not a health nut. I should be but I'm all > about hotdogs and icecream sundaes. If I eat salt I will absolutely > gain weight. The worst things I'd say are the pain and the weight > gain. I was thick when I got sick but damn if I'm not a prize > heiffer now! I feel like the farmer is gettin me ready for the > county fair. Blue ribbon here I come. But I'm not annoyed about it > because I'm vain, it's straight up uncomfortable. I hate that stiff > tightskin bloated stretched out feeling. Some days I don't recognize > myself in the mirror. Anyways...wow this is longer than I > intended...long story short-toooooo late- I am slowly learning to > roll with the punches. Some people go into remission and I still > think maybe I might be one of them...I am young healthy and strong, > but there are days when I feel nothing short of old, ill, and weak > as hell. I'm not one to cry but wow has this made me cry. But, this > is where the weird part comes in, I almost don't mind having > Still's. Yeah I know it's nuts. There are so many worse things. I > have to remind myself of that. I mean so my hair's falling out...eh, > I cut it short because I'm cute like that. So what I got fatter, > I can work it. Curves are sexy, yeah? So...I don't know. I don't > have a religious mindset so I can't say that I'm all about giving it > up to God like some people can. I don't find solice in all that. If > you do, then more power to ya, pray on man. But you know what's good > about having Still's? You can get a handicap parkin placard and park > for free in the city (at least you can in Chicago) and you always > get that rock star parking spot. That's the answer. We are all > just secret rockstars. Sorry to ramble.It's an I-can't-sleep- > night. But so now it's your turn. What's your story man? How do you > feel today? What are your meds/symptoms/emotions? I seriously wanna > know. > > Love > xoxo > aim =HelloLovah > yahoo=ChillerLovah > email=melissacalabrese@w... Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 30, 2005 Yes, this is true. Our local community hall had to be reinspected because, get this-they didn't have a proper paper towel holder in the bar! (one that holds the paper towels enclosed and hangs on the wall!). And no, we can't have any baked goods at the Christmas craft sale! And we call Canada a free country........ From Farm Show, vol. 29, No. 2: Outlawing Potluck Dinners It is now illegal for churches in some parts of North America to hold potluck dinners. Several states have passed regulations outlawing them, turning church ladies into a new class of criminal. However, the backlash from hungry church-goers might help turn back the tide of ridiculous regulations. Citizens in Washington state raised such a stink after such community meals were banned, that a new law exempting potlucks from state food safety laws was passed. Potlucks will be legal again this May. Minnesota also had to pass a law recently to exempt churches and schools from anti-potluck laws. In Canada, church fundraising potlucks and bake sales are being cancelled across the country, according to recent magazine reports. The issue came to a head last year at the Rosy Rhubarb Festival in Shedden, Ontario, when a person selling pies was told to stop because the kitchen where the pies had been baked had not been inspected by the health authorities. Witnesses reported that the ensuing discussion turned ugly, with pies being hurled at the inspector. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 30, 2005 Yes, this is true. Our local community hall had to be reinspected because, get this-they didn't have a proper paper towel holder in the bar! (one that holds the paper towels enclosed and hangs on the wall!). And no, we can't have any baked goods at the Christmas craft sale! And we call Canada a free country........ From Farm Show, vol. 29, No. 2: Outlawing Potluck Dinners It is now illegal for churches in some parts of North America to hold potluck dinners. Several states have passed regulations outlawing them, turning church ladies into a new class of criminal. However, the backlash from hungry church-goers might help turn back the tide of ridiculous regulations. Citizens in Washington state raised such a stink after such community meals were banned, that a new law exempting potlucks from state food safety laws was passed. Potlucks will be legal again this May. Minnesota also had to pass a law recently to exempt churches and schools from anti-potluck laws. In Canada, church fundraising potlucks and bake sales are being cancelled across the country, according to recent magazine reports. The issue came to a head last year at the Rosy Rhubarb Festival in Shedden, Ontario, when a person selling pies was told to stop because the kitchen where the pies had been baked had not been inspected by the health authorities. Witnesses reported that the ensuing discussion turned ugly, with pies being hurled at the inspector. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 30, 2005 What a fun post - thanks. Needed that. All right everyone - what's good about having stils??? * we can also park free anywhere in Hollywood FL with a handicap card * If I don't feel like going to work, my boss NEVER questions it * I can get people to bring me a soft drink or snack - cuz I have Stills (bad Carole) * I don't have to shave my legs nearly as often with mtx * I look better than I feel most of the time and when I don't look well, people assume its the stills, not just a bad hair day or whatever! * ALL THE WONDERFUL PEOPLE ON STILLIGAN'S ISLAND!!!!! In a message dated 3/29/2005 9:10:12 PM Eastern Standard Time, unkjohn@... writes: But you know what's good > about having Still's? You can get a handicap parkin placard and park > for free in the city (at least you can in Chicago) and you always > get that rock star parking spot. That's the answer. We are all > just secret rockstars. Feel good everybody! Carole From Hollywood FL Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 30, 2005 Dear ARGC, Thank you SO much for your post...it brought the tears!!! Today has been pretty rough so I am really ready for tomorrow. Thank you for caring so much...I deeply hope you are better. You've been on my mind quite a bit last night and all day. Please don't despair...its hard in these times...but we will get through them...I firmly believe that!!! Talk to you tomorrow. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 30, 2005 Yes...We WILL make it!! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 3, 2005 In a message dated 4/3/2005 6:02:03 A.M. Eastern Daylight Time, tracy.wright@... writes: i'm not 100% sure she's right but we'll know by whether the fluconazole makes it go away! Hi , Isn't fluconazole the generic form of Flagyl? If it is, then it will take care of Candidae. When I was on oral steroids, I got a wicked case of thrush in my mouth. It was awful. I had it all through my mouth and down my throat, despite the fact that I rinsed my mouth after using the various inhalers. At that time I believe it was Serevent that caused the probelm. Anyhow, it was very painful, not to mention, nasty looking. Flagyl is what was prescribed along with a prescription to swish and swallow and I was fine within 24 hours. I hope you get to feeling better. Much love, Terry Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 7, 2005 ((((((((((((((((((((((((((((((((())))))))))))))))))))))))))))))) you needed a big hug today. It is a hard thing to deal with at times, but you learn that having good days and bad days isn't just about having the pain.. Its part of the emotional rollercoaster as well. People who don't go threw something as bad or life alerting as this just dont get it at all.. If you ever need to talk, please know that I am always there for you. on Yahoo I am kellekn.. Its okay to vent, here it is a totally safe place. It is hard to loose friends because of this disease, I only have one friend that has been there since we grew up together that has stuck thru this with me. She has actually learned with me about this illness. My other best friend in Canada has learned alot about this as well.. If everyone was like them we would all be blessed. My friend in Canada actually met in Pogo and was asking him questions, and it totally helped her to understand a lot more than reading and looking everything up as well. You really learn who your friends are when you go thru something as horrific as something like this, as sad as that is it is so true. I have rambled enough. Please know that we are all here for you and it is totally okay to break down and cry. If you cry, you are letting the stress out and not letting the dragon get a better gripe at you. Love and HUGSSSSSSS Kelley in Colorado -- Larry/Marilynn/Patty & Everyone ) I haven't been here in a few days so Im' tryin to catch up. I've got responces to a bunch of you all here instead of writing a slew of responces and crowding the message board. First I'd like to thank everyone for all the birthday wishes!!!! It made my day when I read them all. I want you all to know that I thank you ) And now for the responces: Patty, I get a strange " sore " throat too. I have noticed that my throat is my major indicator of a flare coming on. I hope yours gets better for you. I have always been under the idea that it's from swollen lymph glands. Who knows. Marilynn, thank you so much for posting those articles about medicine and abbreviations! I love learning new things like that. I always try to understand what's going on with meds because it's so important. When I was in the hospital last summer I was given the wrong medicine twice and I was given a second dose of a once a day medicine three hours after I took the first. If i hadn't been aware of my meds and their proper dosages I would've gotten sicker than a dog. I had to stand my ground and actually move to a different room on a different floor because it was the same nurse who always gave me the wrong meds. It was uncomfortable and whatever, but I know how much I'm worth, you know? I wasn't about to let someone's carelessness endanger me. I get VERY defensive of myself when I'm sick and I simply don't care what people think. Larry, that was a really good point about being happy with what we do have. I try to think about it whenever I feel like puking from the MTX. I know two people right now going through real chemotherapy and I can only imagine how it feels. I mean, we all get a taste of it when we're on high MTX doses, but imagine taking 20 times that amount! I can sympathize, but unless you have experienced it, you can't understand how it must feel. I do get sad about my mobility. I have been taking it easy trying to allow my foot to heal because I had an injury that got exaserbated by the inflamation of still's It was 90% better and i've been off crutches for months. Then the other day I was all excited and I did the eliptical for about ten mins. After ten mins my foot hurt and I knew that I was in trouble. The next day confirmed it and I had reinjured my ankle/ foot. I was so P!$$# & I could've spit nails. But I kept thinking that no matter what, I can still walk. If I was in a wheelchair I'd most likely give anything to be able to walk, no matter the pain. Who knows. So yeah....you're right. ) Sometimes I think I say that too much though and I fail to validate the suffereing that we do go through because " it coul be worse " . So there are two sides to every view I suppose. I hold back too much because I don't wanna be THAT GIRL who complains about being sick when she can still walk and talk and laugh and go to school...I feel like Still's is a disease of opposition. The biggest opposition I'm fighting right now is to acknowledge the pain I'm in and the sadness I feel as real and valid WITHOUT ending up in a deppression and wallowing in self pity. It s easy to become comforted by our own self pity (I think) because it's SO HARD for anyone else to be sympathetic because our disease is invisible. At least thats how I feel. I had a really necessary cry today after I left the doctors office. Its the first time I ever cried in front of her though. Oh god I was trying SO hard not to break down. I almost was gonna make it through but then she asked me if I was " ok with all this " and I just couldn't stop the tears from flowing. I gathered myself quickly because I know she was busy. She said all my new symptoms are jsut side effects of all the meds. I've been having these horrible dizzy spells and it's hard to breathe, like i'm wearing a corset. And I've been getting double vision and my sleep habits alone are enough to kill someone. She gave me some sleeping pills that are new and that don't interact wth any meds, so we'll see how those work.. They're called Luna- something...Anyways I got in my car and started balling. I'm just in one of those days where I'm tired of missing out on everything good in life. And Im so linely since I lost my friends. I have never been a lonely type person, but lately I have really felt the sting of losing my " best friend " back in January. I know I'm better off without her, but that doesn't make life any less lonely with out her. It's hard to go from having someone to call 24 hours a day and someone who wants to call you 24 hrs a day and someone who you know you'll be with on the weekends and you're a team to absoultely nothing and never hearing from them or seeing them ever again. I have a lot of friends but I don't have a best friend and it's a terribly empty feeling...at least today it is. Next week I'll proably be back to my old self and happy as a lark. ok I've rambled and wandered my way through yet another long winded post.... I do hope everyone is well. And if you need to cry, I say do it! save yourself the frustration that will build up from holding back. I feel at least 50% better now that I let that all go. Glass is half full right? xoxox melissa Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 2, 2005 " Ramble " any time, Gayle--it's all helpful!! And what your wrote reminds me that it's time for me to stop making excuses about not finishing that book I started to write so long ago :>) Blessings, Theresa Re: > posted a long note and rather than repeating it; I thought I would > just respond. > > Hurrah for you, . You have done what most of us are striving for - > making the world around you more accommodating and taking advantages of > help wherever it is offered. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 22, 2005 Thia made me get deja vu... Ella was on nutramigen formula and had a huge regression at 14 months right after her MMR shot. I can look back and say sure maybe Ella was autistic at birth, but not that I noticed. She made weird grunting noises, slept horribly, had bad gas and stomache issues, but that sounds like a baby to me. It was only after her MMR that I saw other kids surpass her in developement. Then the eye contact got worse and worse, and she seemed almost deaf. I cant say what the future holds for Ella, but I know something changed her...made her condition worse. I know I am doing all I can, but still I feel like its not enough! I didnt even drink caffine in my pregnancy, no fish, hardley and fast food, I was so careful, its so frustrating....When I ponder these things tears just come...I cant help it. What would she have been like, what could she have been like, But I love her like this, I love my Ella bella and every little thing she does is special and unique! Aimee Sagginario wrote: Hi , Thanks so much for your reply. I too want so badly to know why this has happened to our children. I can see pieces of nna (PDD) in each of your descriptions but mostly your youngest. She loves Barney and can sing all of the songs and can learn a song instantly. I began taking her to a mommy and me when she was 6 mos old. She sang many songs before she said any words which is why I didn't really think there was a problem. I thought well she can speak she's just not using her words functionally yet. Finally at age 2 I decided to get her tested thinking it was a speech delay. They brought up eye contact many times which I hadn't noticed and some OT muscle tone issues. First time mom, just thought she was a content baby. We got nna's diagnosis at age 3, one year ago. I'm still grieving. I could cry on a drop of a dime. My husband gets teary eyed (usually a tough guy) when telling anyone of her diagnosis and how tough life is for our beautiful girl. As she does progress more and more each day she's still living in a world that is so hard for her. Potty training has been so tough! She'll go on the potty but so inconsistently. She does not care if she's wet or dirty, doesn't bother her. As far as the academics that is what Juilanna loves too... numbers, letters, shapes, now some words. She's getting more and more spontaneous each day but usually requests or labels of items she sees. She doesn't inquire about the world around her, like why? or who? questions... She doens't really stim (some screaming but mostly attention seeking) but is very complusive with certain things. Such as anything to do with a stick...like a flag, straw, pinwheel, flower, drumstick, lollipops, even umbrellas.She does play differently with each and mostly appropriately but can't get passed it if she can't have the item or has to move on to something different. She loves musical instruments too. When nna decides she wants something its torture to get her passed it if she can't have it. She goes to reg preschool with a 1:1 shadow. She went to a spec ed school but I wasn't happy with the setup with no true models of kids higher functioning. She loves school only thing is how to approach and keep a friend without conversation and her complusive issues. Shadow helps a lot. She also gets home ABA daily, speech and OT. My youngest daugther is 14 months old. I pray each day for her and for me. She is very social with saying " hi " to everyone she sees and " byebye. " Her eye contact is good but that's hard to judge b/c nna's eye contact was good with people she was familiar with. She does say several functional words thank god. She seems to be sponging right now and can repeat a lot of what we say and teach her. I've been teaching her to say, " What's that? " as she says, " Whassdat? " I sometimes wonder if she's devolping typically or is it just b/c I work with her. Everytime I give her a snack I am constantly saying, " more, more " before giving her more. Now she says, " mo. " But is that just typical or me doing an early ABA program??? Who knows!! What shot did you give your dd at 15 months that you regret? We have not given the MMR shot yet. Anyway thanks for letting me babble to you... Take care and keep in touch. Jen teach413@... Re: Re: Allie at VBS In a message dated 7/20/2005 10:44:25 PM Central Daylight Time, teach413@... writes: , I noticed you wrote that two of your daughter's have PDD and one has autism. My dd is 4 and her diagnosis was PDD also. How are your three daugther's different as far as to make the difference in the diagnosis? What age did your youngest get diagnosised? My one year old in my eyes Hi Jen, My son, Hayden, was diagnosed at age 2.5yrs. I was then pregnant with my youngest, Savannah. He stimmed a lot...had no language...many sensory issues, etc....after 2 yrs of aba he is now going into a typical kindergarten (he did great in a typical preschool and awful at the ECSE preschool thru the school district)...Reagan is 3.5 yrs...she is severe...she was diagnosed with PDD but the pediatric neuro changed her diagnosis to autism just last month after her 1 year follow up with him....she has no spontaneous language, although she is now repeating some words and i did " catch " her singing itsy bitsy spider the other day...she is a very controlling child and has been our toughest one by far with behavior issues...she stims A LOT...she is just now starting to make eye contact...she's more in her own world than my son ever was...oh, a side note, my son was always very social and still is...he LOVES playing with other kids...he's just not always sure how to initiate or respond appropriately....ok, then there is savannah, my youngest...i KNEW in my heart she wasn't autistic...two pediatricians, therapists, even my ABA consultant said there is NO WAY this child is autistic (this was when she was age 12 months-15 months)....she was very typical...and like i said, as her mom, i JUST KNEW she wasn't...at her 15 month well baby visit i told the ped i was getting nervous b/c she wasn't saying any real true words...ped said it could be b/c her older siblings didn't have language and that her sister would push her away b/c reagan doesn't like much physical contact...so she suggested i send her to mother's day out 2 days a week...so i did....and STUPID me allowed her to get one shot at this well visit exam....2 weeks later, she was staring at the clock and temperature display in my car and would do so immediately when i put her in her car seat...i can still remember the day as if it happened yesterday...as soon as i saw her gaze fix on those numbers and i could not get her to respond to me when i called her name, i ran in the house and threw up....MY WORST nightmare came true...i knew at that very moment she too had autism...2 days later she was diagnosed PDD...savannah can sing EVERY barney song from beginning to end...if she hears a song only once, she's got it memorized...she is FIXATED on counting...forward, backward, any time, any where...she LOVES to dance...yet she will come up to me and say " open " when she wants picked up...she knows her colors, animals, their sounds, all shapes, etc...it's amazing...yet when i ask her where's mommy, she still points to herself...she's not as lovey as my other kids and doesn't like being tickled like my other 2 kids...she's so " different " than what my older 2 kids were at 2 yrs...another side note, i did my own little case study on mercury...since my oldest was diagnosed when i was pregnant, i had my OB order a mercury free Rhogam shot, i didn't breastfeed her, we gave her only nutramigen formula, no shots til she was 6 months old and only then she got one every 8 weeks...everytime i was going to get her a shot she was sick or something came up, so she's only had 3 immuniz. her entire life...i ate no tuna fish while i was pregnant with her...and out of all 3 of my kids, she is my least severe at this age...i have no idea what she will be like a year from now, and even though my son has made HUGE gains, at 2 he couldn't say a word, etc....hubby (who is an MD) and i (an RN) are just now looking into the whole mercury/autism connection...we're having their hair tested this week...and we're really not sure where to go with all of this...there is NO family history on either side of autism/aspergers/ even quirky family members...we're STUNNED this happend 3 times to us...the pediatric geneticist was even baffled that all 3 of our kids are affected and that 2 of them are girls...leave it to my family to beat the odds huh??? sorry this got so long-winded...any other questions, just ask...i'm more than happy to share whatever i can...especially knowing it might help another...but i am in no way wanting to scare u...i know SO MANY families that have just one child with autism and then have other children that are " typical " ...i actually only know of one other family personally, that both kids are affected (one boy, one girl)...but other than that, like i said, all others i know only have one child with autism...I'D GIVE ANYTHING to find out why this happened to all 3 of our kids...i am still grieving over all of this...to get 3 diagnoses in under 2 yrs has been overwhelming to say the least...and caring for 3 kids with this disorder under the age of 5 is anything less than pure chaos....but I LOVE THEM TO DEATH!!!! 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Guest guest Report post Posted July 22, 2005 Thia made me get deja vu... Ella was on nutramigen formula and had a huge regression at 14 months right after her MMR shot. I can look back and say sure maybe Ella was autistic at birth, but not that I noticed. She made weird grunting noises, slept horribly, had bad gas and stomache issues, but that sounds like a baby to me. It was only after her MMR that I saw other kids surpass her in developement. Then the eye contact got worse and worse, and she seemed almost deaf. I cant say what the future holds for Ella, but I know something changed her...made her condition worse. I know I am doing all I can, but still I feel like its not enough! I didnt even drink caffine in my pregnancy, no fish, hardley and fast food, I was so careful, its so frustrating....When I ponder these things tears just come...I cant help it. What would she have been like, what could she have been like, But I love her like this, I love my Ella bella and every little thing she does is special and unique! Aimee Sagginario wrote: Hi , Thanks so much for your reply. I too want so badly to know why this has happened to our children. I can see pieces of nna (PDD) in each of your descriptions but mostly your youngest. She loves Barney and can sing all of the songs and can learn a song instantly. I began taking her to a mommy and me when she was 6 mos old. She sang many songs before she said any words which is why I didn't really think there was a problem. I thought well she can speak she's just not using her words functionally yet. Finally at age 2 I decided to get her tested thinking it was a speech delay. They brought up eye contact many times which I hadn't noticed and some OT muscle tone issues. First time mom, just thought she was a content baby. We got nna's diagnosis at age 3, one year ago. I'm still grieving. I could cry on a drop of a dime. My husband gets teary eyed (usually a tough guy) when telling anyone of her diagnosis and how tough life is for our beautiful girl. As she does progress more and more each day she's still living in a world that is so hard for her. Potty training has been so tough! She'll go on the potty but so inconsistently. She does not care if she's wet or dirty, doesn't bother her. As far as the academics that is what Juilanna loves too... numbers, letters, shapes, now some words. She's getting more and more spontaneous each day but usually requests or labels of items she sees. She doesn't inquire about the world around her, like why? or who? questions... She doens't really stim (some screaming but mostly attention seeking) but is very complusive with certain things. Such as anything to do with a stick...like a flag, straw, pinwheel, flower, drumstick, lollipops, even umbrellas.She does play differently with each and mostly appropriately but can't get passed it if she can't have the item or has to move on to something different. She loves musical instruments too. When nna decides she wants something its torture to get her passed it if she can't have it. She goes to reg preschool with a 1:1 shadow. She went to a spec ed school but I wasn't happy with the setup with no true models of kids higher functioning. She loves school only thing is how to approach and keep a friend without conversation and her complusive issues. Shadow helps a lot. She also gets home ABA daily, speech and OT. My youngest daugther is 14 months old. I pray each day for her and for me. She is very social with saying " hi " to everyone she sees and " byebye. " Her eye contact is good but that's hard to judge b/c nna's eye contact was good with people she was familiar with. She does say several functional words thank god. She seems to be sponging right now and can repeat a lot of what we say and teach her. I've been teaching her to say, " What's that? " as she says, " Whassdat? " I sometimes wonder if she's devolping typically or is it just b/c I work with her. Everytime I give her a snack I am constantly saying, " more, more " before giving her more. Now she says, " mo. " But is that just typical or me doing an early ABA program??? Who knows!! What shot did you give your dd at 15 months that you regret? We have not given the MMR shot yet. Anyway thanks for letting me babble to you... Take care and keep in touch. Jen teach413@... Re: Re: Allie at VBS In a message dated 7/20/2005 10:44:25 PM Central Daylight Time, teach413@... writes: , I noticed you wrote that two of your daughter's have PDD and one has autism. My dd is 4 and her diagnosis was PDD also. How are your three daugther's different as far as to make the difference in the diagnosis? What age did your youngest get diagnosised? My one year old in my eyes Hi Jen, My son, Hayden, was diagnosed at age 2.5yrs. I was then pregnant with my youngest, Savannah. He stimmed a lot...had no language...many sensory issues, etc....after 2 yrs of aba he is now going into a typical kindergarten (he did great in a typical preschool and awful at the ECSE preschool thru the school district)...Reagan is 3.5 yrs...she is severe...she was diagnosed with PDD but the pediatric neuro changed her diagnosis to autism just last month after her 1 year follow up with him....she has no spontaneous language, although she is now repeating some words and i did " catch " her singing itsy bitsy spider the other day...she is a very controlling child and has been our toughest one by far with behavior issues...she stims A LOT...she is just now starting to make eye contact...she's more in her own world than my son ever was...oh, a side note, my son was always very social and still is...he LOVES playing with other kids...he's just not always sure how to initiate or respond appropriately....ok, then there is savannah, my youngest...i KNEW in my heart she wasn't autistic...two pediatricians, therapists, even my ABA consultant said there is NO WAY this child is autistic (this was when she was age 12 months-15 months)....she was very typical...and like i said, as her mom, i JUST KNEW she wasn't...at her 15 month well baby visit i told the ped i was getting nervous b/c she wasn't saying any real true words...ped said it could be b/c her older siblings didn't have language and that her sister would push her away b/c reagan doesn't like much physical contact...so she suggested i send her to mother's day out 2 days a week...so i did....and STUPID me allowed her to get one shot at this well visit exam....2 weeks later, she was staring at the clock and temperature display in my car and would do so immediately when i put her in her car seat...i can still remember the day as if it happened yesterday...as soon as i saw her gaze fix on those numbers and i could not get her to respond to me when i called her name, i ran in the house and threw up....MY WORST nightmare came true...i knew at that very moment she too had autism...2 days later she was diagnosed PDD...savannah can sing EVERY barney song from beginning to end...if she hears a song only once, she's got it memorized...she is FIXATED on counting...forward, backward, any time, any where...she LOVES to dance...yet she will come up to me and say " open " when she wants picked up...she knows her colors, animals, their sounds, all shapes, etc...it's amazing...yet when i ask her where's mommy, she still points to herself...she's not as lovey as my other kids and doesn't like being tickled like my other 2 kids...she's so " different " than what my older 2 kids were at 2 yrs...another side note, i did my own little case study on mercury...since my oldest was diagnosed when i was pregnant, i had my OB order a mercury free Rhogam shot, i didn't breastfeed her, we gave her only nutramigen formula, no shots til she was 6 months old and only then she got one every 8 weeks...everytime i was going to get her a shot she was sick or something came up, so she's only had 3 immuniz. her entire life...i ate no tuna fish while i was pregnant with her...and out of all 3 of my kids, she is my least severe at this age...i have no idea what she will be like a year from now, and even though my son has made HUGE gains, at 2 he couldn't say a word, etc....hubby (who is an MD) and i (an RN) are just now looking into the whole mercury/autism connection...we're having their hair tested this week...and we're really not sure where to go with all of this...there is NO family history on either side of autism/aspergers/ even quirky family members...we're STUNNED this happend 3 times to us...the pediatric geneticist was even baffled that all 3 of our kids are affected and that 2 of them are girls...leave it to my family to beat the odds huh??? sorry this got so long-winded...any other questions, just ask...i'm more than happy to share whatever i can...especially knowing it might help another...but i am in no way wanting to scare u...i know SO MANY families that have just one child with autism and then have other children that are " typical " ...i actually only know of one other family personally, that both kids are affected (one boy, one girl)...but other than that, like i said, all others i know only have one child with autism...I'D GIVE ANYTHING to find out why this happened to all 3 of our kids...i am still grieving over all of this...to get 3 diagnoses in under 2 yrs has been overwhelming to say the least...and caring for 3 kids with this disorder under the age of 5 is anything less than pure chaos....but I LOVE THEM TO DEATH!!!! 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Guest guest Report post Posted July 22, 2005 Thia made me get deja vu... Ella was on nutramigen formula and had a huge regression at 14 months right after her MMR shot. I can look back and say sure maybe Ella was autistic at birth, but not that I noticed. She made weird grunting noises, slept horribly, had bad gas and stomache issues, but that sounds like a baby to me. It was only after her MMR that I saw other kids surpass her in developement. Then the eye contact got worse and worse, and she seemed almost deaf. I cant say what the future holds for Ella, but I know something changed her...made her condition worse. I know I am doing all I can, but still I feel like its not enough! I didnt even drink caffine in my pregnancy, no fish, hardley and fast food, I was so careful, its so frustrating....When I ponder these things tears just come...I cant help it. What would she have been like, what could she have been like, But I love her like this, I love my Ella bella and every little thing she does is special and unique! Aimee Sagginario wrote: Hi , Thanks so much for your reply. I too want so badly to know why this has happened to our children. I can see pieces of nna (PDD) in each of your descriptions but mostly your youngest. She loves Barney and can sing all of the songs and can learn a song instantly. I began taking her to a mommy and me when she was 6 mos old. She sang many songs before she said any words which is why I didn't really think there was a problem. I thought well she can speak she's just not using her words functionally yet. Finally at age 2 I decided to get her tested thinking it was a speech delay. They brought up eye contact many times which I hadn't noticed and some OT muscle tone issues. First time mom, just thought she was a content baby. We got nna's diagnosis at age 3, one year ago. I'm still grieving. I could cry on a drop of a dime. My husband gets teary eyed (usually a tough guy) when telling anyone of her diagnosis and how tough life is for our beautiful girl. As she does progress more and more each day she's still living in a world that is so hard for her. Potty training has been so tough! She'll go on the potty but so inconsistently. She does not care if she's wet or dirty, doesn't bother her. As far as the academics that is what Juilanna loves too... numbers, letters, shapes, now some words. She's getting more and more spontaneous each day but usually requests or labels of items she sees. She doesn't inquire about the world around her, like why? or who? questions... She doens't really stim (some screaming but mostly attention seeking) but is very complusive with certain things. Such as anything to do with a stick...like a flag, straw, pinwheel, flower, drumstick, lollipops, even umbrellas.She does play differently with each and mostly appropriately but can't get passed it if she can't have the item or has to move on to something different. She loves musical instruments too. When nna decides she wants something its torture to get her passed it if she can't have it. She goes to reg preschool with a 1:1 shadow. She went to a spec ed school but I wasn't happy with the setup with no true models of kids higher functioning. She loves school only thing is how to approach and keep a friend without conversation and her complusive issues. Shadow helps a lot. She also gets home ABA daily, speech and OT. My youngest daugther is 14 months old. I pray each day for her and for me. She is very social with saying " hi " to everyone she sees and " byebye. " Her eye contact is good but that's hard to judge b/c nna's eye contact was good with people she was familiar with. She does say several functional words thank god. She seems to be sponging right now and can repeat a lot of what we say and teach her. I've been teaching her to say, " What's that? " as she says, " Whassdat? " I sometimes wonder if she's devolping typically or is it just b/c I work with her. Everytime I give her a snack I am constantly saying, " more, more " before giving her more. Now she says, " mo. " But is that just typical or me doing an early ABA program??? Who knows!! What shot did you give your dd at 15 months that you regret? We have not given the MMR shot yet. Anyway thanks for letting me babble to you... Take care and keep in touch. Jen teach413@... Re: Re: Allie at VBS In a message dated 7/20/2005 10:44:25 PM Central Daylight Time, teach413@... writes: , I noticed you wrote that two of your daughter's have PDD and one has autism. My dd is 4 and her diagnosis was PDD also. How are your three daugther's different as far as to make the difference in the diagnosis? What age did your youngest get diagnosised? My one year old in my eyes Hi Jen, My son, Hayden, was diagnosed at age 2.5yrs. I was then pregnant with my youngest, Savannah. He stimmed a lot...had no language...many sensory issues, etc....after 2 yrs of aba he is now going into a typical kindergarten (he did great in a typical preschool and awful at the ECSE preschool thru the school district)...Reagan is 3.5 yrs...she is severe...she was diagnosed with PDD but the pediatric neuro changed her diagnosis to autism just last month after her 1 year follow up with him....she has no spontaneous language, although she is now repeating some words and i did " catch " her singing itsy bitsy spider the other day...she is a very controlling child and has been our toughest one by far with behavior issues...she stims A LOT...she is just now starting to make eye contact...she's more in her own world than my son ever was...oh, a side note, my son was always very social and still is...he LOVES playing with other kids...he's just not always sure how to initiate or respond appropriately....ok, then there is savannah, my youngest...i KNEW in my heart she wasn't autistic...two pediatricians, therapists, even my ABA consultant said there is NO WAY this child is autistic (this was when she was age 12 months-15 months)....she was very typical...and like i said, as her mom, i JUST KNEW she wasn't...at her 15 month well baby visit i told the ped i was getting nervous b/c she wasn't saying any real true words...ped said it could be b/c her older siblings didn't have language and that her sister would push her away b/c reagan doesn't like much physical contact...so she suggested i send her to mother's day out 2 days a week...so i did....and STUPID me allowed her to get one shot at this well visit exam....2 weeks later, she was staring at the clock and temperature display in my car and would do so immediately when i put her in her car seat...i can still remember the day as if it happened yesterday...as soon as i saw her gaze fix on those numbers and i could not get her to respond to me when i called her name, i ran in the house and threw up....MY WORST nightmare came true...i knew at that very moment she too had autism...2 days later she was diagnosed PDD...savannah can sing EVERY barney song from beginning to end...if she hears a song only once, she's got it memorized...she is FIXATED on counting...forward, backward, any time, any where...she LOVES to dance...yet she will come up to me and say " open " when she wants picked up...she knows her colors, animals, their sounds, all shapes, etc...it's amazing...yet when i ask her where's mommy, she still points to herself...she's not as lovey as my other kids and doesn't like being tickled like my other 2 kids...she's so " different " than what my older 2 kids were at 2 yrs...another side note, i did my own little case study on mercury...since my oldest was diagnosed when i was pregnant, i had my OB order a mercury free Rhogam shot, i didn't breastfeed her, we gave her only nutramigen formula, no shots til she was 6 months old and only then she got one every 8 weeks...everytime i was going to get her a shot she was sick or something came up, so she's only had 3 immuniz. her entire life...i ate no tuna fish while i was pregnant with her...and out of all 3 of my kids, she is my least severe at this age...i have no idea what she will be like a year from now, and even though my son has made HUGE gains, at 2 he couldn't say a word, etc....hubby (who is an MD) and i (an RN) are just now looking into the whole mercury/autism connection...we're having their hair tested this week...and we're really not sure where to go with all of this...there is NO family history on either side of autism/aspergers/ even quirky family members...we're STUNNED this happend 3 times to us...the pediatric geneticist was even baffled that all 3 of our kids are affected and that 2 of them are girls...leave it to my family to beat the odds huh??? sorry this got so long-winded...any other questions, just ask...i'm more than happy to share whatever i can...especially knowing it might help another...but i am in no way wanting to scare u...i know SO MANY families that have just one child with autism and then have other children that are " typical " ...i actually only know of one other family personally, that both kids are affected (one boy, one girl)...but other than that, like i said, all others i know only have one child with autism...I'D GIVE ANYTHING to find out why this happened to all 3 of our kids...i am still grieving over all of this...to get 3 diagnoses in under 2 yrs has been overwhelming to say the least...and caring for 3 kids with this disorder under the age of 5 is anything less than pure chaos....but I LOVE THEM TO DEATH!!!! 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Guest guest Report post Posted August 19, 2005 I don't tolerate heat well and our weather lately has been hot and humid,YUCK!!! I also don't tolerate really cold air, and wear a scarf in winter. If I get a cold, I almost always end up with bronchitis so I have to be careful. I've had my share of attacks over getting sick. Take care, Cherry Tenmatay wrote: thanks ... im one of the luckier ones that dont haveallergies...just the weather change bothers me... its a no-no for meto have a cold.. that will be asthma at the end. i have attacks 2times a year at the most... Ive been hospitalized once. when phuemoniasets in with the the asthma. i just use the nebulizer (ventolin). i just have to be careful when it becomes too cold or warm...bye for now.. more power to the group!*cherry*Message: 12 Date: Thu, 18 Aug 2005 11:50:49 -0700 (PDT) Subject: Re: weather triggered asthma...Hi Cherry,Weather changes can trigger me. They have in the past, but I do havesome allergies and have to be careful. I use Albuterol in an inhalerand nebulizer as needed, Advair 250/50, and Singulair 10 mg.Cherry Tenmatay wrote:hello everyone... anyone who as weather triggered asthma..(attacksdepends on weather change and not allergies)?May i know what medications u take?Thanks.... *cherry*God bless you!__________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 19, 2005 I don't tolerate heat well and our weather lately has been hot and humid,YUCK!!! I also don't tolerate really cold air, and wear a scarf in winter. If I get a cold, I almost always end up with bronchitis so I have to be careful. I've had my share of attacks over getting sick. Take care, Cherry Tenmatay wrote: thanks ... im one of the luckier ones that dont haveallergies...just the weather change bothers me... its a no-no for meto have a cold.. that will be asthma at the end. i have attacks 2times a year at the most... Ive been hospitalized once. when phuemoniasets in with the the asthma. i just use the nebulizer (ventolin). i just have to be careful when it becomes too cold or warm...bye for now.. more power to the group!*cherry*Message: 12 Date: Thu, 18 Aug 2005 11:50:49 -0700 (PDT) Subject: Re: weather triggered asthma...Hi Cherry,Weather changes can trigger me. They have in the past, but I do havesome allergies and have to be careful. I use Albuterol in an inhalerand nebulizer as needed, Advair 250/50, and Singulair 10 mg.Cherry Tenmatay wrote:hello everyone... anyone who as weather triggered asthma..(attacksdepends on weather change and not allergies)?May i know what medications u take?Thanks.... *cherry*God bless you!__________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 19, 2005 I don't tolerate heat well and our weather lately has been hot and humid,YUCK!!! I also don't tolerate really cold air, and wear a scarf in winter. If I get a cold, I almost always end up with bronchitis so I have to be careful. I've had my share of attacks over getting sick. Take care, Cherry Tenmatay wrote: thanks ... im one of the luckier ones that dont haveallergies...just the weather change bothers me... its a no-no for meto have a cold.. that will be asthma at the end. i have attacks 2times a year at the most... Ive been hospitalized once. when phuemoniasets in with the the asthma. i just use the nebulizer (ventolin). i just have to be careful when it becomes too cold or warm...bye for now.. more power to the group!*cherry*Message: 12 Date: Thu, 18 Aug 2005 11:50:49 -0700 (PDT) Subject: Re: weather triggered asthma...Hi Cherry,Weather changes can trigger me. They have in the past, but I do havesome allergies and have to be careful. I use Albuterol in an inhalerand nebulizer as needed, Advair 250/50, and Singulair 10 mg.Cherry Tenmatay wrote:hello everyone... anyone who as weather triggered asthma..(attacksdepends on weather change and not allergies)?May i know what medications u take?Thanks.... *cherry*God bless you!__________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 7, 2005 ....and here is the redlined version of SB882. The strikethrough lines show what was deleted from the old version, and, the underlined sections show what was added. Peacefully, Jeff Sell, Esq. Director of Chapters & Membership Autism Society of America 7910 Woodmont Ave., Suite 300 Bethesda, MD 20814-3067 ext. 104 (office) (cell) (fax) (e-fax) www.autism-society.org <http://www.autism-society.org/> jzsell@... jsell@... ****************************************** NOTICE: This message is confidential, intended for the named recipient(s) and may contain information that is (i) proprietary to the sender, and/or, (ii) privileged, confidential and/or otherwise exempt from disclosure under applicable Texas and federal law, including, but not limited to, privacy standards imposed pursuant to the Health Insurance Portability and Accountability Act ( " HIPAA " ). Receipt by anyone other than the named recipient(s) is not a waiver of any applicable privilege. If you have received this email in error, please delete it immediately. Thank you in advance for your compliance with this notice. _____ From: Jeff Sell Sent: Wednesday, September 07, 2005 1:36 PM To: Kim (pkstew2@...) Cc: Texas-Autism-Advocacyyahoogroups (DOT) com (Texas-Autism-Advocacy ) Subject: Hi Kim: Here is the Senate Report detailing the changes as a result of SB882. Hope this helps. Peacefully, Jeff Sell, Esq. Director of Chapters & Membership Autism Society of America 7910 Woodmont Ave., Suite 300 Bethesda, MD 20814-3067 ext. 104 (office) (cell) (fax) (e-fax) www.autism-society.org <http://www.autism-society.org/> jzsell@... jsell@... ****************************************** NOTICE: This message is confidential, intended for the named recipient(s) and may contain information that is (i) proprietary to the sender, and/or, (ii) privileged, confidential and/or otherwise exempt from disclosure under applicable Texas and federal law, including, but not limited to, privacy standards imposed pursuant to the Health Insurance Portability and Accountability Act ( " HIPAA " ). Receipt by anyone other than the named recipient(s) is not a waiver of any applicable privilege. If you have received this email in error, please delete it immediately. Thank you in advance for your compliance with this notice. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 7, 2005 Jeff, thanks. What I'm looking for is an updated copy of that entire chapter on the Texas Council on Autism. I'm looking at the original statute (before SB 882) and then looking at the SB 882 changes/additions (only showing those sections changed/added, not everything in the statute)....I guess I was thinking that by now there'd be a clean copy of the entire statute? > ...and here is the redlined version of SB882. The strikethrough lines show > what was deleted from the old version, and, the underlined sections show > what was added. > > Peacefully, > Jeff Sell, Esq. > Director of Chapters & Membership > Autism Society of America > 7910 Woodmont Ave., Suite 300 > Bethesda, MD 20814-3067 > ext. 104 (office) > (cell) > (fax) > (e-fax) > www.autism-society.org <http://www.autism-society.org/> > jzsell@j... > jsell@a... > ****************************************** > NOTICE: This message is confidential, intended for the named recipient(s) > and may contain information that is (i) proprietary to the sender, and/or, > (ii) privileged, confidential and/or otherwise exempt from disclosure under > applicable Texas and federal law, including, but not limited to, privacy > standards imposed pursuant to the Health Insurance Portability and > Accountability Act ( " HIPAA " ). Receipt by anyone other than the named > recipient(s) is not a waiver of any applicable privilege. If you have > received this email in error, please delete it immediately. Thank you in > advance for your compliance with this notice. > > > _____ > > From: Jeff Sell [mailto:jzsell@j...] > Sent: Wednesday, September 07, 2005 1:36 PM > To: Kim (pkstew2@c...) > Cc: Texas-Autism-Advocacyyahoogroups (DOT) com > (Texas-Autism-Advocacy ) > Subject: > > > Hi Kim: > > Here is the Senate Report detailing the changes as a result of SB882. Hope > this helps. > > Peacefully, > Jeff Sell, Esq. > Director of Chapters & Membership > Autism Society of America > 7910 Woodmont Ave., Suite 300 > Bethesda, MD 20814-3067 > ext. 104 (office) > (cell) > (fax) > (e-fax) > www.autism-society.org <http://www.autism-society.org/> > jzsell@j... > jsell@a... > ****************************************** > NOTICE: This message is confidential, intended for the named recipient(s) > and may contain information that is (i) proprietary to the sender, and/or, > (ii) privileged, confidential and/or otherwise exempt from disclosure under > applicable Texas and federal law, including, but not limited to, privacy > standards imposed pursuant to the Health Insurance Portability and > Accountability Act ( " HIPAA " ). Receipt by anyone other than the named > recipient(s) is not a waiver of any applicable privilege. If you have > received this email in error, please delete it immediately. Thank you in > advance for your compliance with this notice. > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 7, 2005 Hi listmates--I will post the docs that I just sent to Kim later tonight if y'all want me to--I realize the attachments went to Kim and not the entire list...gotta run now... My best... Jeff Hi Kim: Here is the Senate Report detailing the changes as a result of SB882. Hope this helps. Peacefully, Jeff Sell, Esq. Director of Chapters & Membership Autism Society of America 7910 Woodmont Ave., Suite 300 Bethesda, MD 20814-3067 ext. 104 (office) (cell) (fax) (e-fax) www.autism-society.org <http://www.autism-society.org/> jzsell@... jsell@... ****************************************** NOTICE: This message is confidential, intended for the named recipient(s) and may contain information that is (i) proprietary to the sender, and/or, (ii) privileged, confidential and/or otherwise exempt from disclosure under applicable Texas and federal law, including, but not limited to, privacy standards imposed pursuant to the Health Insurance Portability and Accountability Act (HIPAA). Receipt by anyone other than the named recipient(s) is not a waiver of any applicable privilege. If you have received this email in error, please delete it immediately. Thank you in advance for your compliance with this notice. Quote Share this post Link to post Share on other sites