Lyme Disease

[Guest guest]

debra,

I wonder sometimes if i had lyme. But what makes me

think i did was the rashes i had 3 of them and the

symptoms were weird but i got better instantly on the

antibiotics then had the herkzimer reaction, so i

believe i had it.

then 11 years later i began to have sinus problems and

began my anti's again for almost 9 months on and off.

That was when i went to 4 doctors who each had a

different dx. 2 said it was sinus infections and

wanted to give me anit, one was totally lost and just

said to wait it out and see what happens. and the

third just based on my history and the look of my

tongue said I believe you have an over growth of yeast

from the anti's. Gave me the diet and a couple

supplements omegas, and probiotics and said read all

you can about this and stay on the diet. he was o n

the right track but i wasnt 100%.

I then went on threelac for 4 months and was totally

terrible, which i realized was killing the yeast but

my body couldnt handle the dieoff and i didnt know how

to get rid of it. They told me to take 6 metamucils a

day and just rest. they were also on the right track

but i wasnt getting better.

then i found bee and although the diet was close to

the other one i was on i found out how to deal with

the dieoff and that was when i got better. I have

been on this diet since june 06 and supplements only.

I do take coconut oil but only 3 tsp. i do not take

antifungals yet as i still deal with dieoff or

symptoms daily but i am much better than i was in

march of 06 and than i was in 05.

i believe the road is long and the journey is hard but

for me there is a light at then end...

healing and blessings to all

Thanks... Sue

________________________________________________________________________________\

____

Sponsored Link

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[Guest guest]

> Sue-

> Hi, You are very lucky that you had a doctor that knew about fungal

overgrowth. My doctor--when I was diagnosed with lyme....kept giving

me antibiotics. Then, when I had the symptoms of lyme--which were

actually candida --- he kept giving me more antibiotics. He said it

was atypical, but more should " knock it out " ..... at one time I was on

antibiotics 3 times a day for 70 days! My body was in so much

pain.....and I slept A LOT. yup---you all know what happens then,

right??????? Oh thank God that is behind me!!!!! (thanks bee !!!)

Hi Debra. Holey moley your doctor sure put you through the gears! 70

days on antibiotics? Don't doctors know when to quit? I think it's

insane. I'm so glad that is behind you my dear. You are welcome as

always.

Luv & Hugs, Bee

[Guest guest]

Thanks. Your friends...were they not diagnosed early enough? Did they try some

alternative treatments? I found a book that uses silver and it seemed to help

the patients.

Stuck <Sstuck@...> wrote: here are some links on it. i have a

few friends one s very sick and one is dying from it as it is attacking her

brain and she is only 23. it's very sad. so I am doing a lot of research on it.

the meds she is on isn't helping and she is going to the second best doctor in

the country. so not sure why not the top since he is only in NY, but hopefully

we will get some answers soon, anyway thought maybe these books might help the

ppersonw ho was asking about it. I thought it was this list. sorry if not been a

crazy day.

i goggled lyme disease natural cures if you want more links.

http://www.amazon.com/s/ref=nb_ss_b/002-3251275-6592021?url=search-alias%3Dstrip\

books & field-keywords=lyme+disease+natural+cure & Go.x=0 & Go.y=0 & Go=Go

http://www.samento.com.ec/sciencelib/medmain.html

http://www.lymeinfo.net/altbooks.html

Stuck

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[Guest guest]

You folks might want to go to the messgae board " lymenet " and go to Flash

discussion. People are very helpful there. You can read other people's questions

and answers and ask your own also. I wasn't treated for 8 years. I was told I

had yeast and Chronic Fatigue Syndrome. It got pretty well entrenced. Yes,

Silver has helped some people but everyone is different. There are also

different strains of the germ and different forms....some more resistent to

certain treatments than others

Margie

Simu B <samiii_30@...> wrote:

Thanks. Your friends...were they not diagnosed early enough? Did they

try some alternative treatments? I found a book that uses silver and it seemed

to help the patients.

Stuck <Sstuck@...> wrote: here are some links on it. i have a few

friends one s very sick and one is dying from it as it is attacking her brain

and she is only 23. it's very sad. so I am doing a lot of research on it. the

meds she is on isn't helping and she is going to the second best doctor in the

country. so not sure why not the top since he is only in NY, but hopefully we

will get some answers soon, anyway thought maybe these books might help the

ppersonw ho was asking about it. I thought it was this list. sorry if not been a

crazy day.

i goggled lyme disease natural cures if you want more links.

http://www.amazon.com/s/ref=nb_ss_b/002-3251275-6592021?url=search-alias%3Dstrip\

books & field-keywords=lyme+disease+natural+cure & Go.x=0 & Go.y=0 & Go=Go

http://www.samento.com.ec/sciencelib/medmain.html

http://www.lymeinfo.net/altbooks.html

Stuck

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http://www.avast.com

[Guest guest]

Meg,

My sister (in NY) had Lyme disease, but she was sure because she actually

found the tick and developed the rash (erythema migrans) at the site where

the tick was attached (behind her knee). She was very ill. She was treated

with doxycycline for three weeks and recovered fully.

Since the ELISA test for Lyme was negative for you, I'm not sure your

rheumatologist will pursue Lyme further, but, if you still think it could be

Lyme, you might see if he/she would be willing to start you out on 4 to 8

weeks of doxycycline or doxycycline plus methotrexate.

" Treatment of early seropositive rheumatoid arthritis: doxycycline plus

methotrexate versus methotrexate alone " :

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Retrieve & dopt=Abstra\

ctPlus & list_uids=16447240

" Doxycycline in the treatment of rheumatoid arthritis - a pilot study " :

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Retrieve & dopt=Abstra\

ctPlus & list_uids=11273473

" Lyme Disease Diagnosis " :

http://www.cdc.gov/ncidod/dvbid/lyme/ld_humandisease_diagnosis.htm

" Lyme Disease Treatment and Prognosis " :

http://www.cdc.gov/ncidod/dvbid/lyme/ld_humandisease_treatment.htm

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Lyme Disease

> Hi all.

>

> I wrote in last week to ask about sero-negative RA. My first

> rheumatologist has diagnosed me with " undifferentiated

> polyarthritis " and wants me to start on a DMARD (Plaquenil or

> Methotrexate). I am getting a second opinion from a city

> rheumatologist today.

>

> Meanwhile, several people I know are urging me to pursue a doctor

> who will agressively search for clinical or seriological signs of

> Lyme disease, which is very common in our part of Pennsylvania. We

> have a cat who brings ticks into the house from time to time, and I

> have been bitten before.

>

> I thought Lyme disease primarily affects large joints, but the woman

> I spoke to yesterday told me my symptoms (pain in hands, wrists,

> knees, ankles, balls of feet) are exactly the same as her early Lyme

> disease symptoms.

>

> I did have the ELISA test for Lyme which was negative. All of my

> blood work so far (including RF) has been completely normal, and

> xrays of hands and feet taken last week are also normal.

>

> However, I don't want to waste time pursuing a possible Lyme disease

> diagnosis and miss a " window of opportunity " for treating what could

> be early RA.

>

> Aarrgghh! I feel so confused. Has anyone in this group been

> diagnosed, correctly or incorrectly, with Lyme Disease?

>

> Meg in Pennsylvania

[Guest guest]

You may want to check out The Road Back Foundation's website. They

advocate the use of antibiotic therapy for RA. I am currently taking

minocycline under the care of my rheumatologist (on month three) but

took methotrexate, plaquenil, sulfasalzine, and arava first. I wish I

had been offered the antibiotic first. There is a bulletin board at

the website where you could ask about Lyme; I'm guessing you might

get some helpful responses there.

Sierra

--- In , " cubreportr " <cubreportr@...>

wrote:

>

> Hi all.

>

> I wrote in last week to ask about sero-negative RA. My first

> rheumatologist has diagnosed me with " undifferentiated

> polyarthritis " and wants me to start on a DMARD (Plaquenil or

> Methotrexate). I am getting a second opinion from a city

> rheumatologist today.

>

> Meanwhile, several people I know are urging me to pursue a doctor

> who will agressively search for clinical or seriological signs of

> Lyme disease, which is very common in our part of Pennsylvania. We

> have a cat who brings ticks into the house from time to time, and I

> have been bitten before.

>

> I thought Lyme disease primarily affects large joints, but the

woman

> I spoke to yesterday told me my symptoms (pain in hands, wrists,

> knees, ankles, balls of feet) are exactly the same as her early

Lyme

> disease symptoms.

>

> I did have the ELISA test for Lyme which was negative. All of my

> blood work so far (including RF) has been completely normal, and

> xrays of hands and feet taken last week are also normal.

>

> However, I don't want to waste time pursuing a possible Lyme

disease

> diagnosis and miss a " window of opportunity " for treating what

could

> be early RA.

>

> Aarrgghh! I feel so confused. Has anyone in this group been

> diagnosed, correctly or incorrectly, with Lyme Disease?

>

> Meg in Pennsylvania

>

[Guest guest]

Meg,

My husband had the rash, the flu-like symptoms that followed the rash

and then the symptoms went away for 3 months. We didn't know about

lyme disease at the time because we are in Florida and it is rare

here. The initial flares of joint pain came five months later. We

are still battling this mess and it has been a year since the first

joint pain. He had the ELISA test which was also negative and our RA

refused to do more testing towards lyme disease. After such a long

time, I finally convinced him to treat him with doxycycline for 4

weeks. He kept him on it for an additional 4 weeks because he seemed

to be doing a bit better on the doxycycline. He has been on it for 7

weeks total now and still has flare ups, but mostly feels better.

We are actually headed to the Mayo clinic in JAX at the end of

January and expect to have the western blot testing done there for

the lyme disease since no one else would try that. He has gone so

long at this point that he will have to have treatment for a longer

period of time if this is actually what he has.

It is dibilitating. He hasn't worked since September.

So... my point here is stick with trying to get a correct diagnosis.

It's very important to catch this early when the drugs will work for

you.

in FL

--- In , " cubreportr " <cubreportr@...>

wrote:

>

> Hi all.

>

> I wrote in last week to ask about sero-negative RA. My first

> rheumatologist has diagnosed me with " undifferentiated

> polyarthritis " and wants me to start on a DMARD (Plaquenil or

> Methotrexate). I am getting a second opinion from a city

> rheumatologist today.

>

> Meanwhile, several people I know are urging me to pursue a doctor

> who will agressively search for clinical or seriological signs of

> Lyme disease, which is very common in our part of Pennsylvania. We

> have a cat who brings ticks into the house from time to time, and I

> have been bitten before.

>

> I thought Lyme disease primarily affects large joints, but the

woman

> I spoke to yesterday told me my symptoms (pain in hands, wrists,

> knees, ankles, balls of feet) are exactly the same as her early

Lyme

> disease symptoms.

>

> I did have the ELISA test for Lyme which was negative. All of my

> blood work so far (including RF) has been completely normal, and

> xrays of hands and feet taken last week are also normal.

>

> However, I don't want to waste time pursuing a possible Lyme

disease

> diagnosis and miss a " window of opportunity " for treating what

could

> be early RA.

>

> Aarrgghh! I feel so confused. Has anyone in this group been

> diagnosed, correctly or incorrectly, with Lyme Disease?

>

> Meg in Pennsylvania

>

[Guest guest]

Hi Meg,

This is Steph in Virginia. What part of PA are you in? I went to Mansfield

University in NC PA. I was dx'd with seronegative RA in 1999 while in my last

semester at MU. The rheumy that dx'd me was in Sayre & Elmira, NY at the time

but now is at Geisinger (sp.) in Danville, PA (his name is Dr.

Olenginski).

I was tested for Lyme when my symptoms first began but I don't know much

about it b/c I tested negative. I don't see why your rheumy can't pursue

multiple possibilities at one time.

My RF was, & is, negative but my SED rate at CRP (C Reactive protein) were

high in the beginning. I had symptoms for 2 months B4 I was dx'd. After I was

diagnosed I started methotrexate within within 3 weeks. Dr. O helped me weigh

the risks & benefits. 6 months later I was on Enbrel & then Remicade (the 2

original biologics). I've been on Remicade for 7 years now & I'm stabilized.

Every patient with a chronic illness needs to weigh the risks vs. benefits

to determine what is best for them. I chose to take the riskier meds and I've

never regretted that decision.

Take care,

Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" Never underestimate the power of a small, dedicated group of people to change

the world -- indeed, it's the only thing that ever has. " (Margaret Mead)

AmeriCorps Alums -- We're Still Getting Things Done

__________________________________________________

[Guest guest]

Hi Faye.....that is a good question and one that I would like to know the answer

to. I think I have heard that it may help keep malaria away and babesia (which I

also have)It is a lyme coinfection that is malaria like

Margie

Faye Schwartz <pxg2001@...> wrote:

I'm not sure if it has been discussed in this forum before,

but can ingesting coconut oil help to fight the bacteria that cause

Lyme Disease or even possibly cure Lyme Disease?

Thank you.

Faye

---------------------------------

Never Miss an Email

Stay connected with on your mobile. Get started!

[Guest guest]

Hi CLH,

Here are a few links, You will find others on my website as well.

Lyme and HBOT

http://www.hbotreatment.com/Hyperbaric%20Oxygenation%20for%20Lyme.pdf

The Brain

http://www.hbot4u.com/brainanatomy1.html

Lyme and HBOT research

http://www.hbot4u.com/lyme.html

Dr Schaller ( Free Downloads on Lyme )

http://www.personalconsult.com/

On HBO and Lyme

http://www.hbot4u.com/lyme.html

Lyme assessment

http://www.mentalhealthandillness.com/neuropsychiatric_lyme_assessmen

t.htm

Lymenet.org (Flash discussions)

http://www.lymenet.org/

HBO lyme protocol by Dr Fife

http://www.lymetreatment.com/HyperbaricOxygen.html

More on Lyme and HBO

http://www.hbotoday.com/treatment/lymedisease.shtml

Feel free to contact me as most those that I treat have lyme...

Blessings,

Sudylo RN/CHT

www.juliashbot.com

>

> Hi,

>

> I am looking for protocols of patients treated for late effects of

central nervous system Lyme Disease. Testimonials would also be

welcome.

>

> CLH

>

_____________________________________________________________________

___

> AOL now offers free email to everyone. Find out more about what's

free from AOL at AOL.com.

>

>

>

[Guest guest]

Hi CLH,

Here are a few links, You will find others on my website as well.

Lyme and HBOT

http://www.hbotreatment.com/Hyperbaric%20Oxygenation%20for%20Lyme.pdf

The Brain

http://www.hbot4u.com/brainanatomy1.html

Lyme and HBOT research

http://www.hbot4u.com/lyme.html

Dr Schaller ( Free Downloads on Lyme )

http://www.personalconsult.com/

On HBO and Lyme

http://www.hbot4u.com/lyme.html

Lyme assessment

http://www.mentalhealthandillness.com/neuropsychiatric_lyme_assessmen

t.htm

Lymenet.org (Flash discussions)

http://www.lymenet.org/

HBO lyme protocol by Dr Fife

http://www.lymetreatment.com/HyperbaricOxygen.html

More on Lyme and HBO

http://www.hbotoday.com/treatment/lymedisease.shtml

Feel free to contact me as most those that I treat have lyme...

Blessings,

Sudylo RN/CHT

www.juliashbot.com

>

> Hi,

>

> I am looking for protocols of patients treated for late effects of

central nervous system Lyme Disease. Testimonials would also be

welcome.

>

> CLH

>

_____________________________________________________________________

___

> AOL now offers free email to everyone. Find out more about what's

free from AOL at AOL.com.

>

>

>

[Guest guest]

LOIS BOWEN

trojan@...

Why Wait? Move to EarthLink.

> [Original Message]

> From: <clhmaxwell@...>

> <medicaid >

> Date: 4/24/2007 1:04:30 PM

> Subject: [ ] Lyme Disease

>

> Hi,

>

> I am looking for protocols of patients treated for late effects of

central nervous system Lyme Disease. Testimonials would also be welcome.

>

> CLH

> ________________________________________________________________________

> AOL now offers free email to everyone. Find out more about what's free

from AOL at AOL.com.

>

>

>

[Guest guest]

here's another resource for you...

http://www.lymeinducedautism.com/home.html

Nora

On Apr 24, 2007, at 12:59 PM, clhmaxwell@... wrote:

> Hi,

>

> I am looking for protocols of patients treated for late effects of

> central nervous system Lyme Disease. Testimonials would also be

> welcome.

>

> CLH

> __________________________________________________________

> AOL now offers free email to everyone. Find out more about what's

> free from AOL at AOL.com.

>

>

[Guest guest]

Hello, I would be most happy to discuss the protocol that we have used since

98, May I call you? or you can call me, 909-889-7626

www.hbot4u.com

[ ] Lyme Disease

> Hi,

>

> I am looking for protocols of patients treated for late effects of central

> nervous system Lyme Disease. Testimonials would also be welcome.

>

> CLH

> ________________________________________________________________________

> AOL now offers free email to everyone. Find out more about what's free

> from AOL at AOL.com.

>

>

>

[Guest guest]

We haven't done any testing yet. but when we do I will be adding this. Our

yard is wooded and I know my neighbors young son had tested positive last year.

I also know my husband has brought ticks in on his body from hunting and

occasionally from where he is working. As far as I know there have been no

bites but those deer ticks are tiny.

-------------- Original message --------------

From: " ilizzy03 " <lizlaw@...>

Anyone's apraxic child come up positive for this?

[Guest guest]

No but I have close friends that had lyme disease for years that was

missed. The oldest daughter has it the worst and she was

misdiagnosed for over 6 years (Lyme is easy to miss because you can

have a negative test result and still have lyme disease). Her entire

nervous system has now been affected and she has permanent brain

damage from the encephalitis. The rest of the family is also

infected but they were diagnosed before the infection progressed as

far with them.

Kris

The Knitting Wannabe http://knittingwannabe.typepad.com

Sonny & Shear: The I’ve Got Ewe, Babe Yarn Shop

http://www.sonnyandshear.com

[Guest guest]

Now you have me more worried. Dyspraxic son came back positive but

daughter, negative, is the one who seems messed up. One day at a

time. We also have a family autoimmune thing that causes false

positives.

>

> No but I have close friends that had lyme disease for years that

was

> missed. The oldest daughter has it the worst and she was

> misdiagnosed for over 6 years (Lyme is easy to miss because you

can

> have a negative test result and still have lyme disease). Her

entire

> nervous system has now been affected and she has permanent brain

> damage from the encephalitis. The rest of the family is also

> infected but they were diagnosed before the infection progressed

as

> far with them.

> Kris

>

>

> The Knitting Wannabe http://knittingwannabe.typepad.com

>

> Sonny & Shear: The I've Got Ewe, Babe Yarn Shop

> http://www.sonnyandshear.com

>

>

>

>

>

>

>

>

[Guest guest]

Mosquitoes can spread it too. If son actually has it I believe it was

a mosquitoe as on vacation he had 4 welts that took weeks to go away.

Dr. Eiras, in , is the NJ Lymes Expert.

>

> We haven't done any testing yet. but when we do I will be adding

this. Our yard is wooded and I know my neighbors young son had

tested positive last year. I also know my husband has brought ticks

in on his body from hunting and occasionally from where he is

working. As far as I know there have been no bites but those deer

ticks are tiny.

>

>

>

> -------------- Original message --------------

> From: " ilizzy03 " <lizlaw@...>

> Anyone's apraxic child come up positive for this?

>

>

>

>

>

[Guest guest]

Read the information about Lyme in Dr. Shoemaker's book or website

_www.biotoxin.info_ (http://www.biotoxin.info) . You should be able to get some

good

info there.

Good Morning Everyone: After being in Texas for treatment for mold

poisoning for two years, I just got a positive reading on blood work

sent to Fry Laboratories in sdale, Arizona for Lyme Disease. Of

course the treatment is antibiotics which we are supposed to AVOID for

mycotoxicosis. Anyone here have Lyme Disease that can tell me where to

go from here? Things get more and more complicated and the treatments

seem to contradict eachother for Lyme and mold. I am so confused at

this point I dont know where to turn. Thanks- Diane

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

[Guest guest]

Google " Schardt protocol " or go to immunesupport.com to look for the

interview. It is several rounds of diflucan followed by short rounds

of penicillin. Since diflucan is antifungal and supposedly suppresses

lyme, and the penicillin is narrow spectrum and not taken for very

long you could try this.

>

> Good Morning Everyone: After being in Texas for treatment for mold

> poisoning for two years, I just got a positive reading on blood work

> sent to Fry Laboratories in sdale, Arizona for Lyme Disease. Of

> course the treatment is antibiotics which we are supposed to AVOID for

> mycotoxicosis. Anyone here have Lyme Disease that can tell me where to

> go from here? Things get more and more complicated and the treatments

> seem to contradict eachother for Lyme and mold. I am so confused at

> this point I dont know where to turn. Thanks- Diane

>

[Guest guest]

Dr. Shoemaker's book is called " Mold Warriors " , which not only

discusses mold but lyme disease also. I was on his doxy/CSM protocol

for 9 months.

www.moldwarriors.com

V

>

>

> Read the information about Lyme in Dr. Shoemaker's book or website

> _www.biotoxin.info_ (http://www.biotoxin.info) . You should be able

to get some good

> info there.

>

> Good Morning Everyone: After being in Texas for treatment for mold

> poisoning for two years, I just got a positive reading on blood

work

> sent to Fry Laboratories in sdale, Arizona for Lyme Disease.

Of

> course the treatment is antibiotics which we are supposed to AVOID

for

> mycotoxicosis. Anyone here have Lyme Disease that can tell me

where to

> go from here? Things get more and more complicated and the

treatments

> seem to contradict eachother for Lyme and mold. I am so confused

at

> this point I dont know where to turn. Thanks- Diane

>

>

>

>

>

>

> **************Create a Home Theater Like the Pros. Watch the video

on AOL

> Home.

> (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?

ncid=aolhom00030000000001)

>

>

>

[Guest guest]

,

How did Dr. Shoemaker's protocols help you?

Thanks,

> From: maribob7 <myrv@...>

> Subject: [] Re: Lyme Disease

> I was on his doxy/CSM protocol for 9 months.

> V

>

>

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Hi , all my lyme symptoms went away, but arthritic. I had mainly

burning, pricklies as I call them, numbness, tingling, and joint

pain. Also my eyes improved immensely. I can now read my digital

alarm clock at night or in the morning whereas I couldn't before. All

I saw was blurred numbers. The visual contrast sensitivity test (VCS)

that Dr. Shoemaker advocates really improved. My arthritic symptoms

now are probably autoimmune in nature or antibiotic refractory

arthritic lyme they call it. I have just started going back to the

gym to strengthen my muscles which detoriated from not being able to

work out for a while. All in all I did see a major improvement with

the protocol. Right now all I take are daily supplements....giving my

body a rest from the doxy. V

>

> > From: maribob7 <myrv@...>

> > Subject: [] Re: Lyme Disease

> > I was on his doxy/CSM protocol for 9 months.

> > V

> >

> >

>

>

>

______________________________________________________________________

______________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

[Guest guest]

,

It's great to hear about your success with Dr. Shoemaker. I'm familiar with

the csm, but what is doxy and what is it used for? Did you find that while on

the csm that you couldn't take any other supplments? If memory serves isn't

taken up to 4x/day? If you were able to take other meds or supplements, how did

you work around that? Did the csm ever give you any side effects?

Hope you don't mind the questions, I'm debating whether or not to try Dr.

Shomeaker's protocols for mold damage. But I do have some liver and intestinal

issues as well as thyroid.

What are the " burning pricklies " ? I've had something for a while on my ankles

and feet that feels like a burning, ithcing needle like snessation that sounds

similar. Drives me nuts and never had it before.

Thanks,

Sam

maribob7 <myrv@...> wrote:

Hi , all my lyme symptoms went away, but arthritic. I had mainly

burning, pricklies as I call them, numbness, tingling, and joint

pain.

---------------------------------

Like movies? Here's a limited-time offer: Blockbuster Total Access for one month

at no cost.

[Guest guest]

Sam, this isn't but I just read your post and wanted to reply. I am a

patient of Dr. Shoemaker and have taken CSM for 4 yrs. and have taken other

meds as well. You have to schedule your whole day around taking your meds. I

mixed my CSM up in a little plastic cup the night before. At about 5-6 AM I

downed the first dose with out even getting out of bed.Had an extra bottle of

water next to it. About an hr. and half later I would get up eat and take my

other meds. 11AM or so I took dose 2 and would eat and hr. & half later along

with other meds. Dose three was about 5PM followed by dinner hr. later with

any other meds. About 9 or 10 I would take the last round of CSM. I worked for

me and I didn't have any problems taking other medication or vitamins. I

took Milk of Magnesia for consipation and had some bloating at first but that

went away in a short time. I was able to tolerate the CSM without any major

problem only constipation.

I'm not sure what is referring to about the burning pricklies but I had

horrible itchy crawly skin and burning muscles. Mostly on my feet, legs and

arms. Felt like a thousand ants crawling all over but never had a rash. Felt

like my insides wanted to crawl outside!!

Before seeing Dr. Shoemaker I had Colitis some intestinal problems but that

has pretty much cleared up.

Hope that helps and good luck!

Sue

,

It's great to hear about your success with Dr. Shoemaker. I'm familiar with

the csm, but what is doxy and what is it used for? Did you find that while on

the csm that you couldn't take any other supplments? If memory serves isn't

taken up to 4x/day? If you were able to take other meds or supplements, how

did you work around that? Did the csm ever give you any side effects?

Hope you don't mind the questions, I'm debating whether or not to try Dr.

Shomeaker's protocols for mold damage. But I do have some liver and intestinal

issues as well as thyroid.

What are the " burning pricklies " ? I've had something for a while on my

ankles and feet that feels like a burning, ithcing needle like snessation that

sounds similar. Drives me nuts and never had it before.

Thanks,

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