New member with questions

[Guest guest]

Hi ,

Can you tell me what characteristics of oral and speech apraxia that led to

your daughter's diagnosis? I'm just curious as to how they came about the

diagnosis when she has such limited speech to sample from. Thanks for your

help.

Dee

<adams@...> wrote:

Hi,

I am mom to a 28mo. darling girl we adopted from China when she was 13

months old. She is not speaking at all, and has pretty much stopped

babbling. During the last year, she has said a few words, but uses

them only a few times and then they are gone and not repeated.

also has global developmental delays. She took her first

steps at 16mos, but had poor balance and didn't fully walk

independently until she was about 21 mos. A couple of weeks ago,

was diagnosed with speech and motor apraxia. It has taken

over a year to finally obtain these diagnoses. Her developmental

delays were at first attributed to the poor conditions of the

orphanage in which she lived in China, as well as to a lack of

stimulation, poor nutrition, abrupt language change, etc. I can't

count the times we've heard " give her some more time, " or " she'll

catch up now that she is in a nurturing environment " from all of the

supposed experts we've taken her to see. is also vision

impaired - she is blind in one eye due to microphthalmia/coloboma -

which has added another level of issues to sift through. Her motor

delays have also been partially attributed to her vision challenges.

I'm sure that the frustrations we have experienced during the months

of searching for answers are shared by many on this forum.

Now that we finally have these diagnoses of apraxia, we are searching

for the best therapies and support that we can provide for her.

Through EI, receives two hours a week of special education at

home, and 1/2 hour of ST at home. The special ed started a couple of

months ago, and the speech just started two weeks ago. EI will be

telling us this week if they will provide any OT - it seems that they

don't feel that 's motor delays are significant enough to

qualify for OT from them. We're in the process of obtaining

authorization from our insurance for private ST and OT.

My question right now has to do with EFAs. One of the first things I

did after receiving the diagnoses of apraxia was to read " The Late

Talker. " I ordered Efalex supplements for after reading the

book. However, after having found this forum, I think that most

of you are using ProEFA. Could someone please explain the difference

to me? Is ProEFA much preferred to Efalex? Is the standard initial

dosage one capsule per day? weighs about 26lbs. Any help or

suggestions anyone can provide is very much appreciated.

Thanks for reading a little bit about us, and in advance for your help.

[Guest guest]

Gerry,

Most folks undergo 2 surgeries. The second surgery is usually called a

" second look " surgery. It just means they are going in to make sure the

tumor has not returned, if it has they remove it again and decide what to do

next. It isn't unusual at all, your doc is being thorough, it means you

probably have a good doc. You don't want to reconstruct until you get the

c'toma under control. Yes, the doc could do it in one surgery, but by doing

it in 2 surgeries he is being cautious and thorough. I feel like when a doc

does it all in one surgery, he's a little cocky. lol

good luck,

Barbara

>From: " Gerry " <gerrydel@...>

>Reply-cholesteatoma

>cholesteatoma

>Subject: New Member with questions

>Date: Sun, 05 Feb 2006 17:45:23 -0000

>

>Hi all,

>

>I'm new here. I'm 37 from Fort Worth, Texas. I have a few

>questions. I'm sure that they've been covered many times in this

>forum, but in truth I'm running a little short on time. Last week

>my ENT told me that I had to have a Cholesteatoma removed from my

>right ear with a canal wall up mastoidectemy (hope I got all that

>right). He said that it would happen in 2 surgeries. The first

>would be to remove the tumor, and includes taking out the mastoid

>and two other ear bones (can't remember the name of the bones).

>Then, he said my hearing would be basically gone in the right ear

>for 6 to 12 months, and that they would go back in and ensure the

>tumor is gone, and if it's gone, reconstruct the middle ear.

>

>Then, I was talking to someone else, and they said that two

>surgeries is not a good sign. They mentioned that the good doctors

>can do this in one surgery.

>

>Is it true that it should only take one surgery? What are your

>experiences with post surgery? Can you really not hear anything out

>of the ear? What are the odds of getting the hearing back to normal

>in that ear? What's the recovery time like? How long should I take

>off work post surgery? Is it painful post surgery?

>

>I'm sure I'll have a bunch more questios. Thanks in advance.

>

>Gerry

>

>

>

>

>

>

>

>

[Guest guest]

I'm not sure if it is a sign of " good " or bad, but it was a plus to us

that the otologist we used did it in one operation. He is incredibly

good-- the very best we could find anywhere in terms of success rate,

number of operations performed, and even publications. Usually the

whole thing works well for him in one operation, but in our daughter's

case the reconstruction failed due to a fixed footplate (he knew it

and told us from the operating room). I checked some articles, and

the recurrence rate is not particularly higher within one year, so the

idea that one needs to do a second look in 6 mos to 1 year is a little

questionable-- ctoma could and does recur much later than that. So

for us it was the right choice to go with this person who does it in

one step. Just go with the best person you can find-- no matter how

many steps! It's probably mostly a matter of training.

Lynn

[Guest guest]

Hi Gerry, Two surgeries is what most surgeons recommend. As someone has mentioned, the second surgery is to make sure the c-toma has not returned. At that point, it will be decided on reconstruction. Sometimes, reconstruction can happen during the second surgery if the c-toma has not returned. I have had c-toma in both ears. I had to have a canal wall down in both ears because the c-toma was extensive. I only had one surgery on my left ear because my neurotologist and I decided to go with the canal wall down on the first surgery because of my past experience with c-toma in my right ear. Reconstruction attempts failed for me. I am now profoundly deaf in both ears. However, I have a BAHA ( bone anchored hearing aid ) for both ears and I hear very well. If you would like a recommendation of a neurotologist in the Dallas/Ft. Worth area, I would be glad to give you

the name and number of mine. Ilona Gerry <gerrydel@...> wrote: Hi all, I'm new here. I'm 37 from Fort Worth, Texas. I have a few questions. I'm sure that they've been covered many times in this forum, but in truth I'm running a little short on time. Last week my ENT told me that I had to have a Cholesteatoma removed from my right ear with a canal wall up mastoidectemy (hope I got all that right). He said that it would happen in 2 surgeries. The first would be to remove the tumor, and includes taking out the mastoid and two other ear bones (can't remember the name of the bones). Then, he said my hearing would be basically gone in the right ear for 6 to 12 months,

and that they would go back in and ensure the tumor is gone, and if it's gone, reconstruct the middle ear. Then, I was talking to someone else, and they said that two surgeries is not a good sign. They mentioned that the good doctors can do this in one surgery. Is it true that it should only take one surgery? What are your experiences with post surgery? Can you really not hear anything out of the ear? What are the odds of getting the hearing back to normal in that ear? What's the recovery time like? How long should I take off work post surgery? Is it painful post surgery?I'm sure I'll have a bunch more questios. Thanks in advance.Gerry

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Llona,

Great. Yes, you could email at gerrydel@... and I would

appreciate that very much. A neurotologist is different than the

ENT, right?

Thanks,

Gerry

> Hi all,

>

> I'm new here. I'm 37 from Fort Worth, Texas. I have a few

> questions. I'm sure that they've been covered many times in this

> forum, but in truth I'm running a little short on time. Last week

> my ENT told me that I had to have a Cholesteatoma removed from my

> right ear with a canal wall up mastoidectemy (hope I got all that

> right). He said that it would happen in 2 surgeries. The first

> would be to remove the tumor, and includes taking out the mastoid

> and two other ear bones (can't remember the name of the bones).

> Then, he said my hearing would be basically gone in the right ear

> for 6 to 12 months, and that they would go back in and ensure the

> tumor is gone, and if it's gone, reconstruct the middle ear.

>

> Then, I was talking to someone else, and they said that two

> surgeries is not a good sign. They mentioned that the good doctors

> can do this in one surgery.

>

> Is it true that it should only take one surgery? What are your

> experiences with post surgery? Can you really not hear anything

out

> of the ear? What are the odds of getting the hearing back to

normal

> in that ear? What's the recovery time like? How long should I

take

> off work post surgery? Is it painful post surgery?

>

> I'm sure I'll have a bunch more questios. Thanks in advance.

>

> Gerry

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Gerry, His name is Dr. M Owens. He has 3 different office locations I believe. I see him at his Baylor office in Dallas. That number is 214-742-2194. Yes, a neurotologist is different than an ENT. A neurotologist specializes in ears and also is trained in skull base surgery. I had other complications with my left ear besides the removal of c-toma and he did an excellent job. Recovery time varies from person to person. I have taken anywhere from 2 days to a week to recover from my various surgeries. Alot depends on the type of work you do as well. It seems that a week is a common amount of time that people are home recovering. Again, it just varies with each person. I did not have much pain during the recovery either. I typically took the prescribed pain medication for the first day or two and then over the counter

pain relievers did the trick. Please let us know if you have any other questions. Ilona Gerry <gerrydel@...> wrote: Llona,Great. Yes, you could email at gerrydel@... and I would appreciate that very much. A neurotologist is different than the ENT, right? Thanks,Gerry> Hi all, > > I'm new here. I'm 37 from Fort Worth, Texas. I have a few

> questions. I'm sure that they've been covered many times in this > forum, but in truth I'm running a little short on time. Last week > my ENT told me that I had to have a Cholesteatoma removed from my > right ear with a canal wall up mastoidectemy (hope I got all that > right). He said that it would happen in 2 surgeries. The first > would be to remove the tumor, and includes taking out the mastoid > and two other ear bones (can't remember the name of the bones). > Then, he said my hearing would be basically gone in the right ear > for 6 to 12 months, and that they would go back in and ensure the > tumor is gone, and if it's gone, reconstruct the middle ear. > > Then, I was talking to someone else, and they said that two > surgeries is not a good sign. They mentioned that the good doctors > can do this in one surgery. > > Is it

true that it should only take one surgery? What are your > experiences with post surgery? Can you really not hear anything out > of the ear? What are the odds of getting the hearing back to normal > in that ear? What's the recovery time like? How long should I take > off work post surgery? Is it painful post surgery?> > I'm sure I'll have a bunch more questios. Thanks in advance.> > Gerry> > > > > > > > > > >

[Guest guest]

Thank you Ilona.

> > Hi all,

> >

> > I'm new here. I'm 37 from Fort Worth, Texas. I have a few

> > questions. I'm sure that they've been covered many times in this

> > forum, but in truth I'm running a little short on time. Last

week

> > my ENT told me that I had to have a Cholesteatoma removed from my

> > right ear with a canal wall up mastoidectemy (hope I got all that

> > right). He said that it would happen in 2 surgeries. The first

> > would be to remove the tumor, and includes taking out the mastoid

> > and two other ear bones (can't remember the name of the bones).

> > Then, he said my hearing would be basically gone in the right ear

> > for 6 to 12 months, and that they would go back in and ensure the

> > tumor is gone, and if it's gone, reconstruct the middle ear.

> >

> > Then, I was talking to someone else, and they said that two

> > surgeries is not a good sign. They mentioned that the good

doctors

> > can do this in one surgery.

> >

> > Is it true that it should only take one surgery? What are your

> > experiences with post surgery? Can you really not hear anything

> out

> > of the ear? What are the odds of getting the hearing back to

> normal

> > in that ear? What's the recovery time like? How long should I

> take

> > off work post surgery? Is it painful post surgery?

> >

> > I'm sure I'll have a bunch more questios. Thanks in advance.

> >

> > Gerry

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Barbara:

Actually, it's not so much about how cocky the surgeon is, but rather

depends more on what kind of prothesis is being used. Older protheses

had a very high rejection rate when the ear is healing, so

reconstruction is usually done during the second surgery to make sure

the ear has healed enough to accept the prothesis. But new protheses

have a much lower rejection rate, and can be used during the first

surgery - as long as the surgeon is confident the ctoma has been

removed completely.

Here's an old post of mine to the group that discusses the issue:

cholesteatoma/message/11439

Thanks,

Dave

>

> Gerry,

> Most folks undergo 2 surgeries. The second surgery is usually

called a

> " second look " surgery. It just means they are going in to make sure the

> tumor has not returned, if it has they remove it again and decide

what to do

> next. It isn't unusual at all, your doc is being thorough, it means you

> probably have a good doc. You don't want to reconstruct until you

get the

> c'toma under control. Yes, the doc could do it in one surgery, but

by doing

> it in 2 surgeries he is being cautious and thorough. I feel like

when a doc

> does it all in one surgery, he's a little cocky. lol

> good luck,

> Barbara

>

>

>

>

> >From: " Gerry " <gerrydel@...>

> >Reply-cholesteatoma

> >cholesteatoma

> >Subject: New Member with questions

> >Date: Sun, 05 Feb 2006 17:45:23 -0000

> >

> >Hi all,

> >

> >I'm new here. I'm 37 from Fort Worth, Texas. I have a few

> >questions. I'm sure that they've been covered many times in this

> >forum, but in truth I'm running a little short on time. Last week

> >my ENT told me that I had to have a Cholesteatoma removed from my

> >right ear with a canal wall up mastoidectemy (hope I got all that

> >right). He said that it would happen in 2 surgeries. The first

> >would be to remove the tumor, and includes taking out the mastoid

> >and two other ear bones (can't remember the name of the bones).

> >Then, he said my hearing would be basically gone in the right ear

> >for 6 to 12 months, and that they would go back in and ensure the

> >tumor is gone, and if it's gone, reconstruct the middle ear.

> >

> >Then, I was talking to someone else, and they said that two

> >surgeries is not a good sign. They mentioned that the good doctors

> >can do this in one surgery.

> >

> >Is it true that it should only take one surgery? What are your

> >experiences with post surgery? Can you really not hear anything out

> >of the ear? What are the odds of getting the hearing back to normal

> >in that ear? What's the recovery time like? How long should I take

> >off work post surgery? Is it painful post surgery?

> >

> >I'm sure I'll have a bunch more questios. Thanks in advance.

> >

> >Gerry

> >

> >

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Dave,

thanks for the info. I wasn't aware of the difference in the prostethis.

Maybe I should have used " over confident " instead of cocky. lol I do think

it is a little over confident to assume the c'toma is gone on the first

shot. That just comes from my experience tho' . Our doc told us that the

c'toma is likely to recur within the first year which is why he does the 2nd

look. I did just see a post that says that isn't necessarily true, although

in our case it did return within the 1st 8 months. I guess it just goes to

show us how different all the docs are and how little concrete information

the have about the c'toma.

Barbara

>From: " Surfin Dave " <@...>

>Reply-cholesteatoma

>cholesteatoma

>Subject: Re: New Member with questions

>Date: Mon, 06 Feb 2006 20:13:24 -0000

>

>Barbara:

>

>Actually, it's not so much about how cocky the surgeon is, but rather

>depends more on what kind of prothesis is being used. Older protheses

>had a very high rejection rate when the ear is healing, so

>reconstruction is usually done during the second surgery to make sure

>the ear has healed enough to accept the prothesis. But new protheses

>have a much lower rejection rate, and can be used during the first

>surgery - as long as the surgeon is confident the ctoma has been

>removed completely.

>

>Here's an old post of mine to the group that discusses the issue:

>

>cholesteatoma/message/11439

>

>Thanks,

>

>Dave

>

>

> >

> > Gerry,

> > Most folks undergo 2 surgeries. The second surgery is usually

>called a

> > " second look " surgery. It just means they are going in to make sure the

> > tumor has not returned, if it has they remove it again and decide

>what to do

> > next. It isn't unusual at all, your doc is being thorough, it means you

> > probably have a good doc. You don't want to reconstruct until you

>get the

> > c'toma under control. Yes, the doc could do it in one surgery, but

>by doing

> > it in 2 surgeries he is being cautious and thorough. I feel like

>when a doc

> > does it all in one surgery, he's a little cocky. lol

> > good luck,

> > Barbara

> >

> >

> >

> >

> > >From: " Gerry " <gerrydel@...>

> > >Reply-cholesteatoma

> > >cholesteatoma

> > >Subject: New Member with questions

> > >Date: Sun, 05 Feb 2006 17:45:23 -0000

> > >

> > >Hi all,

> > >

> > >I'm new here. I'm 37 from Fort Worth, Texas. I have a few

> > >questions. I'm sure that they've been covered many times in this

> > >forum, but in truth I'm running a little short on time. Last week

> > >my ENT told me that I had to have a Cholesteatoma removed from my

> > >right ear with a canal wall up mastoidectemy (hope I got all that

> > >right). He said that it would happen in 2 surgeries. The first

> > >would be to remove the tumor, and includes taking out the mastoid

> > >and two other ear bones (can't remember the name of the bones).

> > >Then, he said my hearing would be basically gone in the right ear

> > >for 6 to 12 months, and that they would go back in and ensure the

> > >tumor is gone, and if it's gone, reconstruct the middle ear.

> > >

> > >Then, I was talking to someone else, and they said that two

> > >surgeries is not a good sign. They mentioned that the good doctors

> > >can do this in one surgery.

> > >

> > >Is it true that it should only take one surgery? What are your

> > >experiences with post surgery? Can you really not hear anything out

> > >of the ear? What are the odds of getting the hearing back to normal

> > >in that ear? What's the recovery time like? How long should I take

> > >off work post surgery? Is it painful post surgery?

> > >

> > >I'm sure I'll have a bunch more questios. Thanks in advance.

> > >

> > >Gerry

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

>

>

>

[Guest guest]

I have had tumor removal in one surgery and I have had it removed in a 2 stage surgery later. I think the 2 stage surgery is better because it gives time for the surgery to reoccur and it allows for your ear to heal. Sometimes the healing process can cause things to move etc.. and you may have other complications. One surgery verse 2 isn't any better or worse as far as technician skill. Gerry <gerrydel@...> wrote: Hi all, I'm new here. I'm 37 from Fort Worth, Texas. I have a few questions. I'm sure that they've been covered many times in this forum, but in truth I'm running a little short on time. Last week my ENT told me that I had to have a Cholesteatoma removed from my right ear with a canal wall up mastoidectemy (hope I got all

that right). He said that it would happen in 2 surgeries. The first would be to remove the tumor, and includes taking out the mastoid and two other ear bones (can't remember the name of the bones). Then, he said my hearing would be basically gone in the right ear for 6 to 12 months, and that they would go back in and ensure the tumor is gone, and if it's gone, reconstruct the middle ear. Then, I was talking to someone else, and they said that two surgeries is not a good sign. They mentioned that the good doctors can do this in one surgery. Is it true that it should only take one surgery? What are your experiences with post surgery? Can you really not hear anything out of the ear? What are the odds of getting the hearing back to normal in that ear? What's the recovery time like? How long should I take off work post surgery? Is it painful post

surgery?I'm sure I'll have a bunch more questios. Thanks in advance.Gerry

Brings words and photos together (easily) with PhotoMail - it's free and works with .

[Guest guest]

Hi Suzanne...

In addition to any replies you receive here, you might want to check

out the National Scoliosis Foundation's forums, where there are many

parents of kids similar to your (potential) son. Here's a link:

http://www.scoliosis.org/forum/forumdisplay.php?f=102

Regards,

>

> Hi. My name is Suzanne Jacques. I am considering adopting a 5yo boy

> from China who has scoliosis T7-T10, and most likely will require

> surgery when he comes here.

>

> I'm consulting a spine doc., but I wanted to get your " real world " view.

>

> So at 5 years old, he's diagnosed with hemivertebra; " T7-T10 vertebral

> abnormalities; T7-T9 cracked centrum. " Also, two of his back ribs are

> fused.

>

> I have two other daughters adopted from China, ages 4 and 8. I'm just

> wondering what the surgery entails, ie:

> Rods inserted, etc?

> Recovery? (how much time I'll need off work to be with him)

> How long is he casted or braced?

> Prognosis?

> Do kids this age usually need more than one surgery?

> Are the risks high?

> Will he most likely have chronic pain later in life?

>

> Thank you for any insight!

> Suzanne J. in Mich.

>

[Guest guest]

and

Your responses were very helpful! Thanks so much. , I spent some

time on the scoliosis.org forums and have learned a lot already.

Thank you!

Suzanne

[Guest guest]

is there ane treatment of hepatitis=c

mtthwoh1 <mtthwoh@...> wrote: hello i would like to know if there is a

treatment for the smaller

parasites i believe i might have them, i have low grade fevers now for

about 8 months and the doctors can't find anything also i am very

fatigued with constipation and flu like symptoms i'm hoping that a

parasite cleans would help i found some on the larger ones but nothing

about how to get rid of the smaller ones, please anyone with any info

on this please tell me, i'm tired of being sick .........thank you

[Guest guest]

Smaller parasites, including bacteria and viruses are hosted by larger ones. You

must kill the hosts to get permanent cure and then mop-up those that are

released. This only works if you stop their food source. Large parasites have a

food dependency, (the human liver fluke needs oats) while bacteria have a metal

dependency.(salmonella needs gold, mainly). The human liver fluke hosts

clostridium, which makes a chemical that causes constipation, while salmonella

is responsible for flu like symptoms.

The basic protocols need to started first - parasite cleanse and zapping. Of

course none of it really works permanently if you refuse to do the dental

cleanup. I have learned that this is the MOST essential part of the Dr

programs. But most of us move into denial about it, considering the implications

of what it involves.

Dean

new member with questions

hello i would like to know if there is a treatment for the smaller

parasites i believe i might have them, i have low grade fevers now for

about 8 months and the doctors can't find anything also i am very

fatigued with constipation and flu like symptoms i'm hoping that a

parasite cleans would help i found some on the larger ones but nothing

about how to get rid of the smaller ones, please anyone with any info

on this please tell me, i'm tired of being sick .........thank you

[Guest guest]

i'm sorry i should have mentioned in my first post that i had all

normal blood test execpt slightly elevated white blood count and stools

samples that where negative ,i'm wondering if it could be parasites

because i read where most stool samples come back negative and you can

still have them,i'm at the end of my ropes with this.

[Guest guest]

I don't think iodine would help you nearly as much as some Armour would.

Your labs show hypo.as the ranges are not correct. This is a problem we

all have to deal with with our doctors, those of us that still go to them!

--

Artistic Grooming * Hurricane, WV

My Ebay Jewelry Store http://stores.ebay.com/valeriescrystalcreations

The BEST thyroid website! http://www.stopthethyroidmadness.com

NaturalThyroidHormonesADRENALS/

[Guest guest]

Hi ,

My doctor dug her heels in over whether my thyroid was an issue. I found her

on the Armour list and expected way more than I got. I probably will have to

do this without a physician's assistance.

Thanks again!

Orelindel

>

> I don't think iodine would help you nearly as much as some Armour would.

> Your labs show hypo.as the ranges are not correct. This is a problem we

> all have to deal with with our doctors, those of us that still go to them!

>

> --

> Artistic Grooming * Hurricane, WV

> My Ebay Jewelry Store http://stores.ebay.com/valeriescrystalcreations

> The BEST thyroid website! http://www.stopthethyroidmadness.com

>

NaturalThyroidHormonesADRENALS/

>

[Guest guest]

Yes manyof the doc are on the Armour list and are just there to scapt

new patients and have no idea how to treat with Armoru, or when, much

less do they intend to! This is why I tell everyone that finds a doc on

an " Armoru List " to please question them to death before paying for a

wasted appointment.

--

Artistic Grooming * Hurricane, WV

My Ebay Jewelry Store http://stores.ebay.com/valeriescrystalcreations

The BEST thyroid website! http://www.stopthethyroidmadness.com

NaturalThyroidHormonesADRENALS/

[Guest guest]

I can see why the doctor doesn't want to give you thyroid hormone since your

TSH is so low now. Some people have gotten relief from symptoms by taking

Levoxyl or Armour anyway, but be careful. I would take a highly absorbable

form of magnesium for sleep since thyroid disease causes magnesium deficiency.

Try magnesium glycinate capsules.

I would take the Iodine only after taking the iodine loading urinalysis to be

sure you are deficient in iodine. This will also help psychologically during

the 3 month mega-dosing when side-effects arise. Mine have been mild... achy

teeth and mild fatigue off and on. Some others here cannot tolerate the

fatigue and side effects though they may be transient due to the toxins that

the iodine displaces; It helps to know the body was low on iodine and you are

purging toxins from the body i.e. bromine, fluoride. I've checked my blood

levels and thyroid every 3 weeks while I mega-dose and I show no signs of bad

effects (or thyroid function improvement for that matter). At 9 weeks I do

feel a sense of well being and certianly feel much less paranoid about mega-

dosing at 33,000 times the RDA of iodine.

Keep in mind 98% of the medical community believes that what we are doing here

is dangerous and only very few here have experienced really dramatic results

from the iodine in regards to thyroid disease. In fact only one person has

gotten off thyroid hormone altogether from this forum that I am aware of as a

result of Orthoiodosupplementation. Having said that, the importance of whole

body iodine sufficiency seems imperative to continued health and bodies ability

to fight infection and to ward off toxins that may cause cancer and other

deleterious effects.

--- orelindel <whatmattersmost@...> wrote:

> Hi Everyone,

>

> I'm new and trying to figure out what I should do. I underwent an ultrasound

> and the results revealed a thyroid nodule which is nearly one inch. My doctor

>

> checked a lot of things, so if there is something left off, please let me

> know.

> How would you interpret these? My doctor says that my symptoms of brain

> fog, cold extremities, failure to sleep through the night, hair loss on my

> lower

> legs, etc are not caused by my thyroid. She says that my thyroid is fine.

>

> Lab results:

>

> Results

> Reference

>

> T4 Free 1.12 ng /dL

> 0.61 - 1.76

> TSH 0.570 uIU/mL

> 0.350 - 5.500

> Thyroid Peroxidase (TPO) <10 IU/mL 0 - 20

> Antithyroglobulin Ab <10 IU/mL 0 -

> 40

> Triodothyronine, Free Serum 2.7 pg/mL 2.3 - 4.2

> Hemotocrit 33.9L

> 34.0 - 44.0

> Hemogloblin 11.3L %

> 11.5 - 15.0

>

> Would iodine help me?

>

> Orelindel

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi ,

I have some magnesium glycinate capsules and will give them a try tonight. I

did see some information on the iodine loading urinalysis in the FILES

section. I'm sure I'll have many questions as I work through all of this.

Thank you!

Orelindel

>

> I can see why the doctor doesn't want to give you thyroid hormone since

your

> TSH is so low now. Some people have gotten relief from symptoms by

taking

> Levoxyl or Armour anyway, but be careful. I would take a highly

absorbable

> form of magnesium for sleep since thyroid disease causes magnesium

deficiency.

> Try magnesium glycinate capsules.

>

> I would take the Iodine only after taking the iodine loading urinalysis to be

> sure you are deficient in iodine. This will also help psychologically during

> the 3 month mega-dosing when side-effects arise. Mine have been mild...

achy

> teeth and mild fatigue off and on. Some others here cannot tolerate the

> fatigue and side effects though they may be transient due to the toxins that

> the iodine displaces; It helps to know the body was low on iodine and you

are

> purging toxins from the body i.e. bromine, fluoride. I've checked my blood

> levels and thyroid every 3 weeks while I mega-dose and I show no signs of

bad

> effects (or thyroid function improvement for that matter). At 9 weeks I do

> feel a sense of well being and certianly feel much less paranoid about

mega-

> dosing at 33,000 times the RDA of iodine.

>

> Keep in mind 98% of the medical community believes that what we are

doing here

> is dangerous and only very few here have experienced really dramatic

results

> from the iodine in regards to thyroid disease. In fact only one person has

> gotten off thyroid hormone altogether from this forum that I am aware of as a

> result of Orthoiodosupplementation. Having said that, the importance of

whole

> body iodine sufficiency seems imperative to continued health and bodies

ability

> to fight infection and to ward off toxins that may cause cancer and other

> deleterious effects.

>

[Guest guest]

Now it makes sense. I felt as though I'd fallen through the looking glass.

>

> Yes manyof the doc are on the Armour list and are just there to scapt

> new patients and have no idea how to treat with Armoru, or when, much

> less do they intend to! This is why I tell everyone that finds a doc on

> an " Armoru List " to please question them to death before paying for a

> wasted appointment.

>

> --

> Artistic Grooming * Hurricane, WV

> My Ebay Jewelry Store http://stores.ebay.com/valeriescrystalcreations

> The BEST thyroid website! http://www.stopthethyroidmadness.com

>

NaturalThyroidHormonesADRENALS/

>

[Guest guest]

> From: " orelindel " whatmattersmost@...

>Hi Everyone,

>

>I'm new and trying to figure out what I should do. I underwent an

>ultrasound

>and the results revealed a thyroid nodule which is nearly one inch. My

>doctor

>checked a lot of things, so if there is something left off, please let me

>know.

>How would you interpret these? My doctor says that my symptoms of brain

>fog, cold extremities, failure to sleep through the night, hair loss on my

>lower

>legs, etc are not caused by my thyroid. She says that my thyroid is fine.

>

>Lab results:

>

> Results

> Reference

>

>T4 Free 1.12 ng /dL

> 0.61 - 1.76

>TSH 0.570 uIU/mL

> 0.350 - 5.500

>Thyroid Peroxidase (TPO) <10 IU/mL 0 - 20

>Antithyroglobulin Ab <10 IU/mL 0

>- 40

>Triodothyronine, Free Serum 2.7 pg/mL 2.3 - 4.2

>Hemotocrit 33.9L

> 34.0 - 44.0

>Hemogloblin 11.3L %

>11.5 - 15.0

>

>Would iodine help me?

You won't know unless you try.

Low thyroid can cause a multitude of symptoms. Some people with normal

labs get dramatically better with thyroid treatment. I don't see anything

in your numbers that says for certain that you have a thyroid problem. Your

TSH certainly doesn't indicate it. Someone said the doctor used the wrong

numbers, and they are probably referring to the AACE (American Association

of Clinical Endocrinologists) that stated that maybe TSH under 3.5 should be

treated. But, your TSH is under 1.0.

That doesn't mean you wouldn't improve with thyroid treatment as the lab

tests aren't perfect, but I don't see anything that indicates a thyroid

problem.

However, the low hemocrit / hemoglobin indicate some form of anemia. It

could be iron deficiency anemia, in which case iron would help. But, never

supplement iron without knowing it's actually low. That requires testing

both iron and ferritin levels. If ferritin is adeuqate, you look for

another reason for the anemia. Low thyroid can cause anemia, as can

inherited anemias like thalassemia. They can test for that.

Low adrenals can cause similar symptoms to low thyroid, and are even harder

to get a doctor to treat. The hair loss on the lower legs is one mentioned

as a low adrenal symptom. (The easiest test is probably to take the blood

pressure sitting, and then stand up and take it again. The BP should

increase. If it doesn't, an adrenal problem is extremely likely.)

That being said, when I had brain

" fog, cold extremities, failure to sleep through the night, hair loss on my

lower

legs, etc " and my doctor kept saying " it can't possibly be your thyroid as

your numbers are good " , those problems, most thankfully the sleep apnea, and

food getting stuck in my throat went away with an increase in Armour

Thyroid.

Skipper

_________________________________________________________________

Express yourself instantly with MSN Messenger! Download today - it's FREE!

http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

[Guest guest]

Even though your blood thyroid tests are in range, they are not at optimal

levels. Free T3 should be about the upper third of range, FT4 should be at

least in the upper half. Even though your TSH is low in range, the TSH is a

pituitary hormone, and it's possible your pituitary is not working working

well and producing enough TSH to get your thyroid to work harder. Your

thyroid nodules and most of your symptoms are evidence that your thyroid is

not fine. Blood tests don't tell the whole story. You can have plenty of

thyroid in the blood, but if it isn't getting into the cells, you're still

hypothyroid. Have you taken your temperature? That will tell you if your

thyroid hormone is getting taken up at the cellular level.

Your low hematocrit and low hemoglobin suggest that you might have low iron.

Iron is one of the things that need to be adequate for thyroid hormone to

get in at the cellular level. Get your serum ferritin tested - it should be

at least 70. If lower than that, you should supplement with an organic form

of iron. It's a good first step to improving thyroid uptake by the cellular

receptors.

I just joined this group, so I can't tell you about iodine.

Lynn

> Hi Everyone,

>

> I'm new and trying to figure out what I should do. I underwent an

ultrasound

> and the results revealed a thyroid nodule which is nearly one inch. My

doctor

> checked a lot of things, so if there is something left off, please let me

know.

> How would you interpret these? My doctor says that my symptoms of brain

> fog, cold extremities, failure to sleep through the night, hair loss on my

lower

> legs, etc are not caused by my thyroid. She says that my thyroid is fine.

>

> Lab results:

>

> Results

Reference

>

> T4 Free 1.12 ng /dL

0.61 - 1.76

> TSH 0.570 uIU/mL

0.350 - 5.500

> Thyroid Peroxidase (TPO) <10 IU/mL 0 - 20

> Antithyroglobulin Ab <10 IU/mL

0 - 40

> Triodothyronine, Free Serum 2.7 pg/mL 2.3 - 4.2

> Hemotocrit 33.9L

34.0 - 44.0

> Hemogloblin 11.3L %

11.5 - 15.0

>

> Would iodine help me?

>

> Orelindel

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Lynn,

I will start charting my temperature. I sleep in pajamas and use

some sort of blanket year round. I wonder if all the layers of

clothes and blankets would give me an inaccurate temperature reading

for that first temperature of the day? Whenever I have my temp

taken at a doctor's office it is normal. Does the FILES section

recommend a good organic iron supplement? I'm still exploring all

that information.

Thanks again,

Orelindel

>

> Even though your blood thyroid tests are in range, they are not at

optimal

> levels. Free T3 should be about the upper third of range, FT4

should be at

> least in the upper half. Even though your TSH is low in range,

the TSH is a

> pituitary hormone, and it's possible your pituitary is not working

working

> well and producing enough TSH to get your thyroid to work harder.

Your

> thyroid nodules and most of your symptoms are evidence that your

thyroid is

> not fine. Blood tests don't tell the whole story. You can have

plenty of

> thyroid in the blood, but if it isn't getting into the cells,

you're still

> hypothyroid. Have you taken your temperature? That will tell you

if your

> thyroid hormone is getting taken up at the cellular level.

>

> Your low hematocrit and low hemoglobin suggest that you might have

low iron.

> Iron is one of the things that need to be adequate for thyroid

hormone to

> get in at the cellular level. Get your serum ferritin tested - it

should be

> at least 70. If lower than that, you should supplement with an

organic form

> of iron. It's a good first step to improving thyroid uptake by

the cellular

> receptors.

>

> I just joined this group, so I can't tell you about iodine.

>

> Lynn

[Guest guest]

Very interesting, I have a friend who's a PA. I could ask her to

take my BP. The doctor is not going to see me until after I have a

sonogram guided FNA of the nodule. I'm putting that on hold for now

But I do have a couple of other avenues to pursue now. Thank you!

> You won't know unless you try.

>

> Low thyroid can cause a multitude of symptoms. Some people with

normal

> labs get dramatically better with thyroid treatment. I don't see

anything

> in your numbers that says for certain that you have a thyroid

problem. Your

> TSH certainly doesn't indicate it. Someone said the doctor used

the wrong

> numbers, and they are probably referring to the AACE (American

Association

> of Clinical Endocrinologists) that stated that maybe TSH under 3.5

should be

> treated. But, your TSH is under 1.0.

>

> That doesn't mean you wouldn't improve with thyroid treatment as

the lab

> tests aren't perfect, but I don't see anything that indicates a

thyroid

> problem.

>

> However, the low hemocrit / hemoglobin indicate some form of

anemia. It

> could be iron deficiency anemia, in which case iron would help.

But, never

> supplement iron without knowing it's actually low. That requires

testing

> both iron and ferritin levels. If ferritin is adeuqate, you look

for

> another reason for the anemia. Low thyroid can cause anemia, as

can

> inherited anemias like thalassemia. They can test for that.

>

> Low adrenals can cause similar symptoms to low thyroid, and are

even harder

> to get a doctor to treat. The hair loss on the lower legs is one

mentioned

> as a low adrenal symptom. (The easiest test is probably to take

the blood

> pressure sitting, and then stand up and take it again. The BP

should

> increase. If it doesn't, an adrenal problem is extremely likely.)

>

> That being said, when I had brain

> " fog, cold extremities, failure to sleep through the night, hair

loss on my

> lower

> legs, etc " and my doctor kept saying " it can't possibly be your

thyroid as

> your numbers are good " , those problems, most thankfully the sleep

apnea, and

> food getting stuck in my throat went away with an increase in

Armour

> Thyroid.

>

> Skipper

>

> _________________________________________________________________

> Express yourself instantly with MSN Messenger! Download today -

it's FREE!

> http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

>