New member with questions

[Guest guest]

http://www.colema-boards.com/ Info is there with a

VIDEO on how to use a colonic board. I just looked it

up!

I know the olive leaf extract is available at a health

food store. I have not checked on the oregano yet.

I wish you well!

Carolyn

--- bluemoon2256@... wrote:

> Hello. I am a new member and dont understand how to

> do the colonics. I read

> that I need a 5 gallon bucket and a 2qt open mouth

> enema bag . What is a

> colonic board? And how is a colonic different than

> an enema? Please tell me

> the details and directions. I promise i wont be

> embarrased. Is wild oregano

> and olive leaf extract an herb that we can get from

> a health food store or

> where can I find these things. We new members dont

> have a clue what you all

> are talking about.Thank you so much. Blue

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Np video but instructions, it's very simple, put the toilet seat up, lay the

board on and i put a stool at the other end to tilt it up with a pillow

underneath of this, a pillow for my head, i sit the bucket on a tiny child';s

chair on my bathroom counter closest to the toilet & insert the tube thru the

board ( & there is one) the tube has a clip to stop the flow at any time, you

lay on the board and insert the tube, & read a book, i massage my stomach all

over from side to side which helps. when you have the urge to have a bowel

movement go ahead and you do this till the bucket is empty, take a bath &

ALWAYS make sure you clean all the suroundings of the toilet & bucket and

hose with bleach & water and rinse the tube also with a bleach and water

solution & rinse good, before a colonic and after, any other questions? it

does not hurt. Mog

[Guest guest]

Hi ,

This is a slow virus. I was dx, (diagnosed), in 98. To the best of

my knowledge I contracted in in the early 70s. I'd get the biopsy &

all blood tests required to see where you stand. The virus may be in

it's early stage which means you can possibly live with it with

proper diet & exercise. It's tough to except living with it, but

it's not the end of the world. I was with one of the fast gun GIs

that put me on tx, (treatment), right away without even checking my

geno type or viral load. He said most cases in the US are geno type

1 & therefore he recomended going the full 48 weeks of tx. I did it

& came out a responder. To this day I still don't really know what

geno type I was, but knowing where you stand up front is important.

Don't let the scare stories frighten you. The tx affects different

people different ways. You may not even be required to go on it yet.

Eat healthy & avoid alcohol. Everything that enters your body is

filtered thru the liver. They're coming up with new drugs every year

to fight this virus. I'm sure Leighann will be along to fill you in

on more then I can. She's very knowledgable about HCV.

Good luck & take care.

rc

> Hi Everyone,

> I am new here and have been putting this off but I guess it's time

to

> introduce myself. I have just been diagnosed 4 weeks ago. I have

a

> husband and 2 children. My little girl is 7 yrs old and my baby

boy

> is only 5 months old. All have tested negative or non-reactive

with

> the exception of my baby boy. I am trying to stay positive

because

> as my doctor explains, my antibodies are still in his system and

the

> chances are pretty good that this is a false positive result. I

am

> wearing myself out with guilt and just wish I had my old life

back.

> I have always been grateful for everything I have and I guess I

still

> should be.

> Anyway, I found out on Friday that I am genotype 1 and my doctor

> tells me that I need to make some decisions. If I decide to go

with

> the treatment, the biopsy is totally up to me and he tells me in

my

> case that he would only recommend it for peace of mind. However,

he

> tells me that if I decline treatment he would definitely recommend

> the biopsy.

> My question to all of you is, how many of you are currently

receiving

> the treatment and having promising results and are genotype 1? As

I

> understand it, this genotype is the hardest to treat and only

about

> 50% of the people respond to the therapy. I'm not sure what to do

> and need to make a decision. Forgive me if I misstated anything

as

> this is all new to me and scary.

> I imagine I contracted this years and years ago. As far as

symptoms,

> I can't tell because I am a full time working mom with a new baby

at

> home and am exhausted as I'm sure many of you understand.

>

> Thank you for listening and I admire all of you for your courage

and

> strength.

>

> Take Care.

[Guest guest]

Hi ,

Yep, this is the part where you freak out - we've all been there. First, let me

tell you that the rate of transmission from mother to child is smaller than that

of HIV infected mothers, and I think that is only 5 - 7%. I contracted it when

I was 10 or 12 years old from a blood transfusion, and my kids are 34 and 33 and

are both negative, so your baby is most likely only showing your antibodies.

Oh, I know the guilt - when I was diagnosed, I thought, did I kill my whole

family? Did I give this to my husband, my two children and my five

grandchildren? I was terrified.

I'm genotype 1B. I would recommend getting the biopsy before you make any

decisions. Genotypes 1 don't respond to the therapy as well as others do. But

do *not* let your doctor do the biopsy without giving you an analgesic first -

mine gave me a lidocaine drip, and I never felt a thing, in fact, I slept right

through it. There are people on this list who can share horror stories of

doctors telling them they didn't need anything, and then suffered terrible pain

with the procedure. It doesn't need to happen.

And my goodness, how can you decide if you want to take the treatment or not

without a biopsy? Nothing tells you the condition your liver is in, except the

biopsy. If the biopsy tells you that you have no damage, or slight damage, you

don't have to do the treatment now. You can wait until science comes up with

something less toxic than what is out there now.

I was diagnosed in March, 2002. I spent a couple of months freaking out, and

then I found the wonderful people on this list who helped me through everything.

There are people more experienced than me who can tell you what you can do to

feel better in short order. Sometimes they don't respond right away because

they are going through treatment and feeling sick, or are just out and out tired

and can't respond right away. If they don't, I'll respond later to tell you

what I did (it's late for me and bedtime for Bonzo!).

Welcome to the list, there are a lot of wonderful people here who can give you

lots of support. Honey, you have the same courage and strength as we do, or

else you would have never reached out and found this list!

Marilyn

New Member with Questions

Hi Everyone,

I am new here and have been putting this off but I guess it's time to

introduce myself. I have just been diagnosed 4 weeks ago. I have a

husband and 2 children. My little girl is 7 yrs old and my baby boy

is only 5 months old. All have tested negative or non-reactive with

the exception of my baby boy. I am trying to stay positive because

as my doctor explains, my antibodies are still in his system and the

chances are pretty good that this is a false positive result. I am

wearing myself out with guilt and just wish I had my old life back.

I have always been grateful for everything I have and I guess I still

should be.

Anyway, I found out on Friday that I am genotype 1 and my doctor

tells me that I need to make some decisions. If I decide to go with

the treatment, the biopsy is totally up to me and he tells me in my

case that he would only recommend it for peace of mind. However, he

tells me that if I decline treatment he would definitely recommend

the biopsy.

My question to all of you is, how many of you are currently receiving

the treatment and having promising results and are genotype 1? As I

understand it, this genotype is the hardest to treat and only about

50% of the people respond to the therapy. I'm not sure what to do

and need to make a decision. Forgive me if I misstated anything as

this is all new to me and scary.

I imagine I contracted this years and years ago. As far as symptoms,

I can't tell because I am a full time working mom with a new baby at

home and am exhausted as I'm sure many of you understand.

Thank you for listening and I admire all of you for your courage and

strength.

Take Care.

[Guest guest]

> Hi Everyone,

> I am new here and have been putting this off but I guess it's time

to

> introduce myself. I have just been diagnosed 4 weeks ago. I have

a

> husband and 2 children. My little girl is 7 yrs old and my baby

boy

> is only 5 months old. All have tested negative or non-reactive

with

> the exception of my baby boy. I am trying to stay positive because

> as my doctor explains, my antibodies are still in his system and

the

> chances are pretty good that this is a false positive result. I am

> wearing myself out with guilt and just wish I had my old life

back.

> I have always been grateful for everything I have and I guess I

still

> should be.

> Anyway, I found out on Friday that I am genotype 1 and my doctor

> tells me that I need to make some decisions. If I decide to go

with

> the treatment, the biopsy is totally up to me and he tells me in

my

> case that he would only recommend it for peace of mind. However,

he

> tells me that if I decline treatment he would definitely recommend

> the biopsy.

> My question to all of you is, how many of you are currently

receiving

> the treatment and having promising results and are genotype 1? As

I

> understand it, this genotype is the hardest to treat and only about

> 50% of the people respond to the therapy. I'm not sure what to do

> and need to make a decision. Forgive me if I misstated anything as

> this is all new to me and scary.

> I imagine I contracted this years and years ago. As far as

symptoms,

> I can't tell because I am a full time working mom with a new baby

at

> home and am exhausted as I'm sure many of you understand.

>

> Thank you for listening and I admire all of you for your courage

and

> strength.

>

> Take Care.

[Guest guest]

Hi my name is Jan (male) I'm week 20 on the tx I'm geno

type 1A as they say up here in canada. I have a slight chance of it

working on my 3 month viral count I was positive for the virus

meaning it is not working but they asked me to continue and I agreed.

Type 1 is the hardest to treat we don't have as good as a chance as

the others. I'm on the tx cause of the severity of the virus. As a

couple already said for sure do not go on the tx until you get a

biopsy done if the doc won't go to another, you may be in early

stages and can still live a normal life until a BETTER cure comes

up.The biopsy will tell what kind of shape your liver is in and and

severity of the virus. It is touch knowing that you live with that

dragon chasing your but, it can be ok lots of people on this site are

here to help. I belong to many other groups on and msn feel

free to email--janrus2003@... my my teenager does not have it

but my 3 yr old does she lives with her mom and her mom has a lot of

guilt but she is a beautiful, happy 3 yr old she got going down the

birth canal they figure but we knew she had it at a very early stage

1 month old what is wrong with your doc fire him get a new one I

meant that with some humour. Get 2nd opinion. Any help I can give

just ask. We stick together to get us thru some of the rough spots

I'll pray for you and your family, fight back don't let the dragon

win please have the best day that you can Love Jan

[Guest guest]

> Hi Everyone,

> I am new here and have been putting this off but I guess it's time

to

> introduce myself. I have just been diagnosed 4 weeks ago. I have

a

> husband and 2 children. My little girl is 7 yrs old and my baby

boy

> is only 5 months old. All have tested negative or non-reactive

with

> the exception of my baby boy. I am trying to stay positive because

> as my doctor explains, my antibodies are still in his system and

the

> chances are pretty good that this is a false positive result. I am

> wearing myself out with guilt and just wish I had my old life

back.

> I have always been grateful for everything I have and I guess I

still

> should be.

> Anyway, I found out on Friday that I am genotype 1 and my doctor

> tells me that I need to make some decisions. If I decide to go

with

> the treatment, the biopsy is totally up to me and he tells me in

my

> case that he would only recommend it for peace of mind. However,

he

> tells me that if I decline treatment he would definitely recommend

> the biopsy.

> My question to all of you is, how many of you are currently

receiving

> the treatment and having promising results and are genotype 1? As

I

> understand it, this genotype is the hardest to treat and only about

> 50% of the people respond to the therapy. I'm not sure what to do

> and need to make a decision. Forgive me if I misstated anything as

> this is all new to me and scary.

> I imagine I contracted this years and years ago. As far as

symptoms,

> I can't tell because I am a full time working mom with a new baby

at

> home and am exhausted as I'm sure many of you understand.

>

> Thank you for listening and I admire all of you for your courage

and

> strength.

>

> Take Care.

[Guest guest]

Hi , If you had a normal delivery with few complications

your son is probably showing your antibodies in his test. Babies

are not usually tested until they are over 1 year old. The biopsy

is the 'Gold Standard' for determining liver condition and desease

progression. Nothing else will tell you if you need treatment. Ask

the dr. for Versed, wonderful stuff. Try and pinpoint when you were

infected; ie blood transfusion, accidental needle stick or

tattoo/body piercing done poorly. IV drug users usually become

infected within their first year of use. If you were infected 20 or

30 years ago and there is minimal damage to your liver, biopsy grade

3 or less, you may be able to wait for a new treatment to hit the

streets. If you were infected less than 10 years ago and there is

significant damage you may consider starting treatment fairly soon.

The decision to do or not to do treatment is yours.

Take care, Glenn

> Hi Everyone,

> I am new here and have been putting this off but I guess it's time

to

> introduce myself. I have just been diagnosed 4 weeks ago. I have

a

> husband and 2 children. My little girl is 7 yrs old and my baby

boy

> is only 5 months old. All have tested negative or non-reactive

with

> the exception of my baby boy. I am trying to stay positive

because

> as my doctor explains, my antibodies are still in his system and

the

> chances are pretty good that this is a false positive result. I

am

> wearing myself out with guilt and just wish I had my old life

back.

> I have always been grateful for everything I have and I guess I

still

> should be.

> Anyway, I found out on Friday that I am genotype 1 and my doctor

> tells me that I need to make some decisions. If I decide to go

with

> the treatment, the biopsy is totally up to me and he tells me in

my

> case that he would only recommend it for peace of mind. However,

he

> tells me that if I decline treatment he would definitely recommend

> the biopsy.

> My question to all of you is, how many of you are currently

receiving

> the treatment and having promising results and are genotype 1? As

I

> understand it, this genotype is the hardest to treat and only

about

> 50% of the people respond to the therapy. I'm not sure what to do

> and need to make a decision. Forgive me if I misstated anything

as

> this is all new to me and scary.

> I imagine I contracted this years and years ago. As far as

symptoms,

> I can't tell because I am a full time working mom with a new baby

at

> home and am exhausted as I'm sure many of you understand.

>

> Thank you for listening and I admire all of you for your courage

and

> strength.

>

> Take Care.

[Guest guest]

There is a religious exemption in KY - they have the forms/instructions at

the health dept.

new member with questions

> Hello,

>

> My name is Shari and I've recently joined this group so that I can become

more aware of the risks/dangers associated with vaccines as well as get some

specific information about certain vaccines.

>

> We've relocated to Northern Kentucky from Ontario, Canada and I've learned

that in order for my almost 5 year old to go to school that he has to have

the varicella vaccine as well as the Hepatitis B vaccine, plus of course the

other mandatory vaccines for his age. The varicella and Hepatitis B vaccine

are not mandatory in Ontario and my husband and I are having a little

trouble accepting that these are necessary vaccines for him to receive. We

feel that actually getting the chicken pox would be better as well as the

fact that the vaccine isn't 100% effective and could lead to more serious

problems later in life. As far as the Hepatitis B vaccine goes, we cannot

understand why someone, especially a child, would need it. Isn't this virus

transmitted via blood and body fluids? I know that in Ontario the vaccine

is only given to infants of high risk. I find this vaccine especially

disturbing.

>

> He has received the mandatory vaccines in Ontario as well as the two

meningitis ones - Prevnar and Menjugate. I am not completely against

vaccines, at least not at this point, but I do have my concerns about the

two I mentioned.

>

> I would like to gather as much information about these and others so that

we can be informed parents. Plus, how can we refuse these vaccines,

especially since he is vaccinated against the others?

>

> Any information would be greatly appreciated.

>

> Thank you.

>

> Shari DeAbreu

>

>

[Guest guest]

Thank you for letting me know. I'll contact them and see what I can get. My

concern however is that they will argue that since I've already vaccinated my

son with the others that I won't be able to use it as grounds again chicken pox

and Hepatitis B.

Thoughts anyone?

Thank you.

Shari

Re: new member with questions

There is a religious exemption in KY - they have the forms/instructions at

the health dept.

[Guest guest]

How do they know you've already vaccinated at all? You could just say that

you don't vaccinate and leave it at that if you are worried. Or, why not

have a change of heart and no *longer* vaccinate. You can always change your

beliefs later, right? Besides, after a little research you may discover you

aren't comfortable with any of the vaccines.

Hopefully someone in your state can give you state-specific information.

-

[Guest guest]

Well people's religious views do sometimes change over time. I know mine

have. I grew up in a conservative Christian church and now I am quite happy

and enthusiastic to be a Unitarian Universalist. I do not see why they

would have to know the history of your child's vaccinations, but rather your

current view. My son had about half of his shots on the schedule until he

lost the ability to speak/babble after the MMR and had seizurelike episodes.

Well at that point we said no more shots! We did no research before

vaccinating but simply trusted the MDs/pharmas/CDC. Needless to say that

trust was shattered when we found out that our dear infant had been injected

with mercury in the form of thimerosal. And I really do not see how, at

least in our case, that they could earn our trust back. After his reaction

to the MMR we filed a religious exemption and got a medical exemption too.

I understand your concern about their view of your selective vaccinations.

Do you plan on allowing other vaccinations in the future except the

chickenpox and Hep B? Can someone else offer an opinion here? Do health

depts. accept exemptions reflecting religious views against just certain

vaccines rather than all vaccines? Welcome to KY by the way. I live close

to Lexington.

Re: new member with questions

>

>

> There is a religious exemption in KY - they have the forms/instructions

at

> the health dept.

>

>

>

[Guest guest]

I also forgot to say that I filed a copy of the exemptions with my son's

school, the health dept., his primary physician and kept a copy for myself.

It will be helpful to look up the current wording of the KY law on vaccine

exemptions. Sorry I don't have the link. But it is (or at least it was) on

the internet.

Re: new member with questions

>

>

> There is a religious exemption in KY - they have the forms/instructions

at

> the health dept.

>

>

>

[Guest guest]

I think you can use the religious exemption on certain vaccines.... but it would

have to be something like - all vaccines that are made/grown on aborted fetal

tissue - or something along those lines.

Chelly

Re: new member with questions

>

>

> There is a religious exemption in KY - they have the forms/instructions

at

> the health dept.

>

>

>

[Guest guest]

At 11:23 PM 02/17/2004 -0500, you wrote:

>Hello,

>

>My name is Shari and I've recently joined this group so that I can become

more aware of the risks/dangers associated with vaccines as well as get

some specific information about certain vaccines.

>

>We've relocated to Northern Kentucky from Ontario, Canada and I've learned

that in order for my almost 5 year old to go to school that he has to have

the varicella vaccine as well as the Hepatitis B vaccine, plus of course

the other mandatory vaccines for his age. The varicella and Hepatitis B

vaccine are not mandatory in Ontario and my husband and I are having a

little trouble accepting that these are necessary vaccines for him to

receive. We feel that actually getting the chicken pox would be better as

well as the fact that the vaccine isn't 100% effective and could lead to

more serious problems later in life. As far as the Hepatitis B vaccine

goes, we cannot understand why someone, especially a child, would need it.

Isn't this virus transmitted via blood and body fluids? I know that in

Ontario the vaccine is only given to infants of high risk. I find this

vaccine especially disturbing.

>

>He has received the mandatory vaccines in Ontario as well as the two

meningitis ones - Prevnar and Menjugate. I am not completely against

vaccines, at least not at this point, but I do have my concerns about the

two I mentioned.

Ontario has exemptions.

I really encourage you to read and read and read as all vaccines can cause

injury and death and you don't know which one will put your child over the

edge.

So please take time to do that at my webpages and ask questions of this group.

Those of you here, please share your stories with her

Thanks

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA, Classical Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL

OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

******

" Just look at us. Everything is backwards; everything is upside down.

Doctors destroy health, lawyers destroy justice, universities destroy

knowledge, governments destroy freedom, the major media destroy information

and religions destroy spirituality " .... Ellner

[Guest guest]

At 10:50 AM 02/18/2004 -0800, you wrote:

>I think you can use the religious exemption on certain vaccines.... but it

would have to be something like - all vaccines that are made/grown on

aborted fetal tissue - or something along those lines.

>Chelly

>

No Chelly, it doesn't work like that.

People get in huge trouble trying to explain their religious views other

than in a few states that require it (but illegally require it)

Most religious exemptions just require you to sign a statement that you are

against them. no explanation, nothing

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA, Classical Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL

OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

******

" Just look at us. Everything is backwards; everything is upside down.

Doctors destroy health, lawyers destroy justice, universities destroy

knowledge, governments destroy freedom, the major media destroy information

and religions destroy spirituality " .... Ellner

[Guest guest]

No where does it say a parent can't change their mind when it comes to their

children. \

My children were fully vaxed through elementary school before I knew what danger

I had put them in. (I'm a former nurse). We also live in Northern KY (welcome

by the way!) : ) We got a religious exemption form from the health dept. So

far it hasn't even come up at their school that their both a few years late for

their first " adult " tetanus shot.

If anyone asks me about their previous shots, I'll simply say I didn't know the

dangers then. Period.

Kay in KY

*****************

My concern however is that they will argue that since I've already

vaccinated my son with the others that I won't be able to use it as grounds

again chicken pox and Hepatitis B.

Thoughts anyone?

Shari

[Guest guest]

>If anyone asks me about their previous shots, I'll simply say I didn't

know the dangers then. Period.

>

>Kay in KY

If anyone asks, you say here is the law and here is my exemption (and yes,

I forgot you could get the forms at the health dept in KY)

Don't get into a discussion about it. It is not part of the law and you

are not required to and could make problems for yourself

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA, Classical Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL

OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

******

" Just look at us. Everything is backwards; everything is upside down.

Doctors destroy health, lawyers destroy justice, universities destroy

knowledge, governments destroy freedom, the major media destroy information

and religions destroy spirituality " .... Ellner

[Guest guest]

True Sheri. I was thinking more in terms of people asking on a personal level.

When it comes to the exemptions, you're right... the basic info (the law and the

form) is all they need.

Kay

*************

>If anyone asks me about their previous shots, I'll simply say I didn't

know the dangers then. Period.

>

>Kay in KY

If anyone asks, you say here is the law and here is my exemption (and yes,

I forgot you could get the forms at the health dept in KY)

Don't get into a discussion about it. It is not part of the law and you

are not required to and could make problems for yourself

Sheri

[Guest guest]

Hi Teri,

Welcome to the group! Congratulations on the improvement you've

seen in le's headshape over the last 4 months - you must have

been very vigilant with repositioning to get such dramatic results!

We have a lot of parents here at the group currrently repo'ing their

babies. Usually repo struggles to partially correct facial

asymmetries, even in the most successful attempts, so I love hearing

that it was able to realign your daughter's ears all the way. Would

you say that they are completely aligned now? Have you taken any

progress photos of the top, side views, etc. that show the

improvement over time? They would be very encouraging for our other

repo'ing parents to see who also are challenged by ear misalignment.

I also aggressively repositioned my daughter Remy starting very late

at 5 months of age, and continuing on until about 13 months or so.

I have some progress photos of Remy's headshape here at the site if

you are interested - they are in the PHOTOS section, BEFORE AND

AFTER folder, REPOSITIONED folder. We saw the most improvement from

5 to 7 months, a little improvement from 7 to 9 months, and a teeny

tiny bit more from 9 to 11 months. Remy also did not have tort, or

any of the common other asymmetries such as ear misalignment, facial

asymmetry, or forehead bossing. Remy started sleeping on her sides

at night all on her own right when we started repo at about 5 months

of age - which was a huge contributor to repo results! We did not

use a swing or bouncie ever from 5 months on. Remy was never on her

back ever except for diaper change. She took her naps in my

opposite arm for 3 months straight, so that I could apply a holding

point on the bulging side of the back of her head. Also, Remy's

flat area never touched a seatback, whether it be high chair,

stroller, or carseat. We even had an X10 camera installed over the

crib to stream live video to our computer and living room TV to

monitor her head position at all times. We were extremely

aggressive with our daughter's repo.

Two critical aspects of our successful repo were that we took

progress photos every two weeks (to confirm that repo was actually

working) and that we set a repo deadline (in our case, with no

facial asymmetries, we felt comfortable with a deadline of 8

months.) Setting a repo deadline is so important, because it forces

you to make a timely decision about whether or not to helmet/band.

Earlier treatment generally yields the best results. It's also very

important to start the prework for a helmet/band BEFORE you reach

your repo deadline. It can take weeks to slog through all of the

appts, referrals, casting, fitting, etc. to actually get your baby

in a band, and you won't want a treatment gap. With Remy, we also

went ahead and started our helmet pre-work prior to our 8 month

deadline. The night before the casting, when she was around 8

months old, we cancelled our appt. and decided to go with repo only;

we based our decision on how her head looked that day, not what we

imagined it would improve to in the future. Have you set a deadline

for trying repo, or are you both satisfied with your daughter's

headshape as it is today if you received no further rounding?

Are you open to the idea of helmeting or banding? Does your husband

disagree with you regarding the amount of improvement realized, or

the amount of asymmetry remaining? My husband and I didn't see eye

to eye either, until we took our first photos, which we found to be

much more objective than both of us eyeballing her head and coming

up with our own opinions. Even though we didn't choose it for Remy,

we appreciated the fact that we could always quit the band if we

started using it on our daughter, but time passing could take away

our option for this effective plagio treatment if we waited too long

to exercise the helmet option. An evaluation by a specialist, or

maybe even a free consultation at Cranial Tech www.cranialtech.com ,

maker of the DOCband for example, wouldn't hurt, and might provide

you with some insight or measurements to help you all with your

decision.

Would you keep us posted on how your repo efforts with le are

going? Let me know if I can help with repo in any way. We have a

lot of repo help in the files/repo headquarters folder, and the

links/repo and tummy time folder if you would like to browse around.

Take care,

Christie (Mom to Repo'd Remy)

> Hello everyone - I was suprised and glad to see that there was a

> group to address the plagio questions/issues. I'll try to give

you a

> brief(er) background. My daughter, le, is now almost 7

months

> old. She was 1 month premature and was on a bilirubin blanket for

> jaundice for the first 3 weeks of her life - which started her

> preference to sleeping with her head facing to the right. She

> developed a flat spot on the right and at our 3 month appt the

> pediatrician basically told us that Gabi had torticollis and we

> needed to get her into PT because her plagio was pretty severe.

In

> thinking back, I'd say her ears were off centered about an inch

and a

> half and her right front temple was bulging forward a bit as well.

We

> went to about 5 sessions of PT and found out that it was just her

> habit of looking to the right and not a problem with her neck

> muscles. So, when she's in a carseat or the swing, we'll put a

rolled

> up blanket next to her head to keep her from rolling her head to

the

> right all the time. And in bed, we had her sleep on her left

side.

> Anyway, since we've been so proactive with keeping her head away

from

> the flat spot, it's gotten a ton better. Her ears have leveled out

> and her bump on the temple is not noticable to me anymore.

> The problem is that my husband is paranoid. He feels that because

her

> head isn't 100% round yet that it may never be any maybe there's

> something we should be doing (seeing a specialist and getting a

> helmet or a band, I suppose) to correct that. I'm not sure what to

> do - it has gotten so much better on its own and Gabi sleeps on

her

> belly now (by her choice) so that constant pressure on the back of

> her head at night is gone.

>

> So to make a long story end, what are your opinions? From reading

> your posts it seems that we have a whole spectrum of plagio and

> treatment options. Your advice/opinions are MORE THAN WELCOME! I

> look forward to hearing from you and thanks.

>

> Teri

[Guest guest]

Hi Teri & welcome!

Christie gave you a great detailed reply. Bottom line, would BOTH

you & your husband be satisfied IF le's head stayed how it is

today forever? If not, then perhaps you should look into a helmet or

a band.

Where are you located? With all our members, we might have someone

near you to offer local help.

I'm happy to hear how much better her head looks after your repo

efforts! Great job.

Debbie

> Hello everyone - I was suprised and glad to see that there was a

> group to address the plagio questions/issues. I'll try to give you

a

> brief(er) background. My daughter, le, is now almost 7

months

> old. She was 1 month premature and was on a bilirubin blanket for

> jaundice for the first 3 weeks of her life - which started her

> preference to sleeping with her head facing to the right. She

> developed a flat spot on the right and at our 3 month appt the

> pediatrician basically told us that Gabi had torticollis and we

> needed to get her into PT because her plagio was pretty severe. In

> thinking back, I'd say her ears were off centered about an inch and

a

> half and her right front temple was bulging forward a bit as well.

We

> went to about 5 sessions of PT and found out that it was just her

> habit of looking to the right and not a problem with her neck

> muscles. So, when she's in a carseat or the swing, we'll put a

rolled

> up blanket next to her head to keep her from rolling her head to

the

> right all the time. And in bed, we had her sleep on her left side.

> Anyway, since we've been so proactive with keeping her head away

from

> the flat spot, it's gotten a ton better. Her ears have leveled out

> and her bump on the temple is not noticable to me anymore.

> The problem is that my husband is paranoid. He feels that because

her

> head isn't 100% round yet that it may never be any maybe there's

> something we should be doing (seeing a specialist and getting a

> helmet or a band, I suppose) to correct that. I'm not sure what to

> do - it has gotten so much better on its own and Gabi sleeps on her

> belly now (by her choice) so that constant pressure on the back of

> her head at night is gone.

>

> So to make a long story end, what are your opinions? From reading

> your posts it seems that we have a whole spectrum of plagio and

> treatment options. Your advice/opinions are MORE THAN WELCOME! I

> look forward to hearing from you and thanks.

>

> Teri

[Guest guest]

Teri,

Welcome to the group! There isn't much I can add to the replies you

already have gotten. It really is a tough decision, but I've never

heard of anyone who has regretted banding. It really is tough, b/c

nobody knows for sure if her head will round out more. How would

you rate her severity now? We have graphs in the links section.

Good luck with your decision. Where are you located?

, mom to Hannah, DOC #3 3/30

Cape Cod, Ma

> Hello everyone - I was suprised and glad to see that there was a

> group to address the plagio questions/issues. I'll try to give

you a

> brief(er) background. My daughter, le, is now almost 7

months

> old. She was 1 month premature and was on a bilirubin blanket for

> jaundice for the first 3 weeks of her life - which started her

> preference to sleeping with her head facing to the right. She

> developed a flat spot on the right and at our 3 month appt the

> pediatrician basically told us that Gabi had torticollis and we

> needed to get her into PT because her plagio was pretty severe.

In

> thinking back, I'd say her ears were off centered about an inch

and a

> half and her right front temple was bulging forward a bit as well.

We

> went to about 5 sessions of PT and found out that it was just her

> habit of looking to the right and not a problem with her neck

> muscles. So, when she's in a carseat or the swing, we'll put a

rolled

> up blanket next to her head to keep her from rolling her head to

the

> right all the time. And in bed, we had her sleep on her left

side.

> Anyway, since we've been so proactive with keeping her head away

from

> the flat spot, it's gotten a ton better. Her ears have leveled out

> and her bump on the temple is not noticable to me anymore.

> The problem is that my husband is paranoid. He feels that because

her

> head isn't 100% round yet that it may never be any maybe there's

> something we should be doing (seeing a specialist and getting a

> helmet or a band, I suppose) to correct that. I'm not sure what to

> do - it has gotten so much better on its own and Gabi sleeps on

her

> belly now (by her choice) so that constant pressure on the back of

> her head at night is gone.

>

> So to make a long story end, what are your opinions? From reading

> your posts it seems that we have a whole spectrum of plagio and

> treatment options. Your advice/opinions are MORE THAN WELCOME! I

> look forward to hearing from you and thanks.

>

> Teri

[Guest guest]

Hi Teri,

Welcome to the group. I'm late on my reply to you so I'm just going

to second everything you've already been told. Please let us know

what you decide.

> Hello everyone - I was suprised and glad to see that there was a

> group to address the plagio questions/issues. I'll try to give you

a

> brief(er) background. My daughter, le, is now almost 7

months

> old. She was 1 month premature and was on a bilirubin blanket for

> jaundice for the first 3 weeks of her life - which started her

> preference to sleeping with her head facing to the right. She

> developed a flat spot on the right and at our 3 month appt the

> pediatrician basically told us that Gabi had torticollis and we

> needed to get her into PT because her plagio was pretty severe. In

> thinking back, I'd say her ears were off centered about an inch and

a

> half and her right front temple was bulging forward a bit as well.

We

> went to about 5 sessions of PT and found out that it was just her

> habit of looking to the right and not a problem with her neck

> muscles. So, when she's in a carseat or the swing, we'll put a

rolled

> up blanket next to her head to keep her from rolling her head to

the

> right all the time. And in bed, we had her sleep on her left side.

> Anyway, since we've been so proactive with keeping her head away

from

> the flat spot, it's gotten a ton better. Her ears have leveled out

> and her bump on the temple is not noticable to me anymore.

> The problem is that my husband is paranoid. He feels that because

her

> head isn't 100% round yet that it may never be any maybe there's

> something we should be doing (seeing a specialist and getting a

> helmet or a band, I suppose) to correct that. I'm not sure what to

> do - it has gotten so much better on its own and Gabi sleeps on her

> belly now (by her choice) so that constant pressure on the back of

> her head at night is gone.

>

> So to make a long story end, what are your opinions? From reading

> your posts it seems that we have a whole spectrum of plagio and

> treatment options. Your advice/opinions are MORE THAN WELCOME! I

> look forward to hearing from you and thanks.

>

> Teri

[Guest guest]

Hi Teri,

Welcome to the group! I just read your replies so far and there isn't

much else I can offer as far as advise goes (don't these girls ROCK!).

Anyway, I just wanted to welcome you to the groups and ask you to

please keep us posted on Gabi (I just LOVE that name).

, mom to Makenna LLUMC helmet grad 'o3.

> Hello everyone - I was suprised and glad to see that there was a

> group to address the plagio questions/issues. I'll try to give you

a

> brief(er) background. My daughter, le, is now almost 7

months

> old. She was 1 month premature and was on a bilirubin blanket for

> jaundice for the first 3 weeks of her life - which started her

> preference to sleeping with her head facing to the right. She

> developed a flat spot on the right and at our 3 month appt the

> pediatrician basically told us that Gabi had torticollis and we

> needed to get her into PT because her plagio was pretty severe. In

> thinking back, I'd say her ears were off centered about an inch and

a

> half and her right front temple was bulging forward a bit as well.

We

> went to about 5 sessions of PT and found out that it was just her

> habit of looking to the right and not a problem with her neck

> muscles. So, when she's in a carseat or the swing, we'll put a

rolled

> up blanket next to her head to keep her from rolling her head to

the

> right all the time. And in bed, we had her sleep on her left side.

> Anyway, since we've been so proactive with keeping her head away

from

> the flat spot, it's gotten a ton better. Her ears have leveled out

> and her bump on the temple is not noticable to me anymore.

> The problem is that my husband is paranoid. He feels that because

her

> head isn't 100% round yet that it may never be any maybe there's

> something we should be doing (seeing a specialist and getting a

> helmet or a band, I suppose) to correct that. I'm not sure what to

> do - it has gotten so much better on its own and Gabi sleeps on her

> belly now (by her choice) so that constant pressure on the back of

> her head at night is gone.

>

> So to make a long story end, what are your opinions? From reading

> your posts it seems that we have a whole spectrum of plagio and

> treatment options. Your advice/opinions are MORE THAN WELCOME! I

> look forward to hearing from you and thanks.

>

> Teri

[Guest guest]

On Fri, 20 Aug 2004, pdoty64 wrote:

> I've been reading the posts frequently and have gone through the

> files. I started the diet and am adhering to it strictly, except that

> I am still eating organic plain yogurt.

>

> I am also in the process of weaning off coffee. I refuse to do this

> cold turkey because I have tried it before and got skull shattering

> migraines.

>

Hi Pattie,

I think I mentioned this before but you may not have subscribed yet. I

have not had a headache since I started drinking 3 cups of pau d'arco tea

a day. I used to get headaches about every two weeks. Not it's been 4

months since I had one.

You may want to give that a try and see if it helps you quit the coffee.

Zack