New member with questions

Report post · July 24, 2008

With the anxiety I've suffered over the last few years I think I could

write a book on trying different things! At the moment I take the

occasional epam, which I do very reluctantly as they ultimately

make me feel worse, when it's really bad (ie. I think I'm actually

dying). I keep the intake very much under control (only a few mg over

the last few months) and on a " as needed " basis.

Over the years I've tried CBT (currently seeing a psychologist for

anxiety based CBT), epam, meditation (great but I never,

ironically, seem to find the time), breathing techniques, beta

blockers (make me nauseous and wheezy), massages (work wonders but can

only afford one a week), yoga (still do this, marvellous), St. 's

Wort (doesn't seem to work for me), distraction techniques, giving up

wheat, self hypnosis (never really worked for me), drinking (not

helpful!), smoking pot (for many years), chamomile tea (this seems to

work quite well short term), giving up caffeine, giving up smoking

(although this is still a struggle) and lots of counselling.

Many have worked in some degree but even though I go through sometimes

months without significant anxiety, it always comes back.

I'm hoping that sorting my thyroid and/or adrenals might provide a

solution, I'm kind of running out of options. Anxiety, when it's bad,

controls my life from the moment I wake to the moment I put my head on

the pillow, and sometimes during the night. I'd be happy to see it

gone permanently.

At the moment when I feel good (not anxious) I feel really good, but

when the anxiety hits it's really bad (I have to leave work sometimes,

luckily I have a reasonably sympathetic boss).

It's one huge roller-coaster, let's hope I can get off it soon!

Thanks,

>

> Hi ,

> Are you doing anything to help with the anxiety? You may find that

> once you sort out your thyroid that things may improve, but until

> then have you got any strategies in place to help with the anxiety?

Report post · July 24, 2008

Many thanks to you all for all the advice and support -- it feels

great to realise that I'm not alone in this and that there are people

who are happy to give real, honest and useful advice.

I'll keep you posted after I see the endocrinologist.

Cheers,

>

> Hi all, I was recently diagnosed with under-active thyroid and joined

> your group to try and work out what it was all about!

Report post · July 24, 2008

Hello ,

When I was in the UK I used to take a 1000mg vitamin C tablets by

Biocare....... http://www.biocare.co.uk/

They were recommended to me by a homeopath and I would certainly

recommend these to you.

If you go to their website you should be able to hunt around and see

which ones they have - they do have different types and combos. Some

are on sale and you can normally get a much better deal from some of th

online stores than Boots.

Its worth a try - best of luck. You could probably find a good multi B-

vit as well. Could well save you money in the long run.

M.

> >

> > Hi again

> > You really need to make sure you are taking a good dose and a good

> brand of vits, some arent even worth taking, NAE is good for that. Vit

> C needs to be 1000mg or more...

>

Report post · July 24, 2008

Hi ,

My altdoc once told me to take 3 st johns wort first thing & no more during the day. Never take them in the evening or they can make things worse. Also make sure that each one contains 300mg hypericum as some don't (get good ones) & these can not be expected to work.

I have used hypnosis tapes together with books to great effect when I had bad anxiety & panic attacks (1980s). I used the ones by Dr Roet - back in the days of cassette tapes, and attended a couple of his 1 day things which certainly helped, but even without if you follow the books & tapes they are so useful. I have used others since (Soozi Holbeche, and others) but I believe that these original ones are simple & really worked.

Just thought this might help.

Val

St. 'sWort (doesn't seem to work for me)

Report post · July 24, 2008

Sounds like you have tried lots of things!

P

>

> With the anxiety I've suffered over the last few years I think I

could

> write a book on trying different things!

Report post · July 25, 2008

Hi , have you tried hypnotherapy, maybe instead of a massage

each week? Could also help with stopping smoking? A good

hypnotherapist would take the time to assess you and come up with a

personal plan tailored to your needs. My husband is currently

training to be a hypnotherapist and a counseller, you could find

someone that does both. He is also a spiritual medium and does alot

of teaching and led meditation so you could say I know a bit about it

(especially as I have to type out all his essays for him ha ha). You

said the meditation helps so the hypnotherapy will help you relax and

having an appointment will mean you will HAVE to find the time :-),

you could even find a meditation group. Do you feel the anxiety is

down to emotional stuff, perhaps your circumstances or physical or

both? I imagine you to be a highly sensitive person? I get upset over

ridiculous things and have to make a real effort to stay away from

negativity (media, negative people) because I find that I soak it up

like a sponge. It's also important for me to spend time on my own

each day else I go mad, I can't 'give' all the time. Maybe this is

something you could try? Also getting out in the fresh air somewhere

quiet might help you? Even if you're working, you may have somewhere

to go in your lunch hour? Also animals are brilliantly calming to

have around, especially cats :-) (one of the most calming images I

think is a cat curled up fast asleep) and guinea pigs will happily

sit on your lap and 'talk' to you :-). Hope this helps, hugs, Ruth x

PS if meditation helps you then find the time, get one of these led-

meditation cd's, even if you lie there before going to sleep

listening to it.

> >

> > Hi ,

> > Are you doing anything to help with the anxiety? You may find

that

> > once you sort out your thyroid that things may improve, but until

> > then have you got any strategies in place to help with the

anxiety?

>

Report post · July 26, 2008

Hey

Welcome to TPA and another past panic anxiety sufferer.

Mine I found (after all these years) was down to adrenalin surges due

to low cortisol and hypoglycemia. I rub 1% hc cream on my wrists

(about 1/3 of an inch) where it is veiny and after a short while bye

bye anxiety, its magic. Don't do this too regularly if you intend

having an adrenal saliva test or any adrenal test though as I feel it

stays in the system a while if u do it a lot and skews the results.

Also don't forget if it works to find other areas to rub it, it thins

the skin.

lotsa luv

Dawnx

Report post · July 26, 2008

HI Dawn

I am/used to be an anxiety sufferer and its awful isnt it?

I see you mention HC cream, do you need a prescription for this or can you buy it somewhere? I wouldnt mind giving it a go as I do still suffer but not as bad as I used to.

Is it safe to use?

From: blondiethefirstuk <whitbywitchuk@...>Subject: Re: New member with questionsthyroid treatment Date: Saturday, 26 July, 2008, 1:02 PM

Hey Welcome to TPA and another past panic anxiety sufferer.Mine I found (after all these years) was down to adrenalin surges dueto low cortisol and hypoglycemia. I rub 1% hc cream on my wrists(about 1/3 of an inch) where it is veiny and after a short while byebye anxiety, its magic. Don't do this too regularly if you intendhaving an adrenal saliva test or any adrenal test though as I feel itstays in the system a while if u do it a lot and skews the results.Also don't forget if it works to find other areas to rub it, it thinsthe skin.lotsa luvDawnx

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Report post · July 26, 2008

Hi

Well it works for me. It was the Adrenal forum's Val who told me

about it when I was drifting into a morbid anxiety panic state. It

works and I believe it is safe unless you are doing it a LOT. I think

the message is if you are needing to do this you need adrenal support.

It is 1% hydrocortisone cream the type you buy for itchiness ezcema

over the counter such as HC 45. I use it about once a day at the mo

when my current inadequate adrenal support fails me. I am starting new

stuff at the beginning of next week so hopefully I won't need to do

this as much. It is an excellent reassuring thing to know for me

though. I don't get afraid of going into a prolonged anxiety state any

more . I hope it works for you too.

lotsa luv

Dawnx

Report post · July 26, 2008

So I can go in the chemist and just ask for it can I ? I used to be a member of th adrenal site too! But got far too many emails and had helped my adrenals so I removed myself

From: blondiethefirstuk <whitbywitchuk@...>Subject: Re: New member with questionsthyroid treatment Date: Saturday, 26 July, 2008, 9:35 PM

Hi Well it works for me. It was the Adrenal forum's Val who told meabout it when I was drifting into a morbid anxiety panic state. Itworks and I believe it is safe unless you are doing it a LOT. I thinkthe message is if you are needing to do this you need adrenal support.It is 1% hydrocortisone cream the type you buy for itchiness ezcemaover the counter such as HC 45. I use it about once a day at the mowhen my current inadequate adrenal support fails me. I am starting newstuff at the beginning of next week so hopefully I won't need to dothis as much. It is an excellent reassuring thing to know for methough. I don't get afraid of going into a prolonged anxiety state anymore . I hope it works for you too.lotsa luvDawnx

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Report post · July 26, 2008

So I can go in the chemist and just ask for it can I ? I used to be a member of th adrenal site too! But got far too many emails and had helped my adrenals so I removed myself

From: blondiethefirstuk <whitbywitchuk@...>Subject: Re: New member with questionsthyroid treatment Date: Saturday, 26 July, 2008, 9:35 PM

Hi Well it works for me. It was the Adrenal forum's Val who told meabout it when I was drifting into a morbid anxiety panic state. Itworks and I believe it is safe unless you are doing it a LOT. I thinkthe message is if you are needing to do this you need adrenal support.It is 1% hydrocortisone cream the type you buy for itchiness ezcemaover the counter such as HC 45. I use it about once a day at the mowhen my current inadequate adrenal support fails me. I am starting newstuff at the beginning of next week so hopefully I won't need to dothis as much. It is an excellent reassuring thing to know for methough. I don't get afraid of going into a prolonged anxiety state anymore . I hope it works for you too.lotsa luvDawnx

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Report post · July 27, 2008

ï»¿

- and anybody else who frequent forums. If you are getting too many emails, it is because you opted to receive all messages via 'Individual Emails'. There are other options - you can choose to receive a Daily Digest in which you get up to 25 messages in ONE Email or you can opt to receive No emails and read and write directly from the website. If you go to the Home Page of whatever support forum are a member of, click on 'Edit membership' just above the broad bar at the top of the page, towards the left hand side, click on that, and you can change your option on how you wish to receive messages.

Hope that helps.

luv - Sheila

So I can go in the chemist and just ask for it can I ? I used to be a member of th adrenal site too! But got far too many emails and had helped my adrenals so I removed myself---

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Report post · July 27, 2008

Yes

Just go in and ask for a tube of HC45 (not E45 for nappy rash lol)

lotsa luv

Dawnx

Report post · December 22, 2008

Bee,

Thanks for youe help. I am wondering about the possibility of an

ulcer as well. Is that something I need to be tested for or is there

a way I can self-diagnose? I once was told by a ND to take

Betaine/HCL for stomach pains and when I took it I had really bad

burning. Does this mean ulcer? I often get a burning sensation just

below where my ribs meet, and at times of stress when I hold my

daughter or anything pushes against it, it burns.

What do you think?

> >

> > Hello,

> > My name is . I read through the articles, even printed

> them

> > out for future reference.

> > I plan on starting the diet after the holidays. I have been

> eating

> > pretty good for 1.5 years now, on Candex for 3 months, enzymes

for

> > 1.5 years, very sugar restricted and no wheat, little grains.

But

> > whenever I eat any sugar or dairy my ears instantly itch, my

> nipples

> > itch and TMI WARNING I get lots of discharge within the next 15-

30

> > minutes. Could this be from just the yeast or is there something

> > else to worry about.

> > Also, I'm going to have a bunch of tests done before my new

> > deductible hits and was hoping you might have some

recommendations

> > for what I should get tested.

>

> +++Hi . Welcome to our group. That's great you've decided

to

> do this program. You can't go wrong giving your body the nutrients

> it needs so it can heal itself.

>

> +++Your reactions to sugar and dairy are because they both feed

> candida, so it is due to yeast overgrowth.

>

> +++I do not recommend any laboratory tests, since they aren't

> accurate and most are inconclusive for the presence of candida.

The

> only reliable test is Dr. Crook's Candida Questionnaire, and this

> articles also explains about other tests:

> http://www.healingnaturallybybee.com/articles/intro3.php

>

> The best in health, Bee

>

Report post · December 23, 2008

>

> Bee,

> Thanks for youe help. I am wondering about the possibility of an

> ulcer as well. Is that something I need to be tested for or is

there

> a way I can self-diagnose? I once was told by a ND to take

> Betaine/HCL for stomach pains and when I took it I had really bad

> burning. Does this mean ulcer? I often get a burning sensation

just

> below where my ribs meet, and at times of stress when I hold my

> daughter or anything pushes against it, it burns.

> What do you think?

+++Hi . That burning pain is in the esophagus which cannot

handle stomach acid, but the valve to the esophagus needs to close

properly. When it doesn't close like it should stomach acid burns

the sensitive lining of the esophagus.

There are a couple of reasons the valve to the esophagus doesn't

close properly:

1) If you have a Hiatal Hernia, which is when a part of the stomach

is pushed up between the diaphragm and the esophagus, it will push

against the esophagus keeping the valve open.

2) Having enough stomach acid keeps the valve to the esophagus closed.

This can cause a conflicting situation since taking HCl increases

stomach acid, yet if the valve to the esophagus isn't closing even

very small amounts of stomach acid (low enough to not digest food

properly) will burn the esophagus.

It is very common for candida sufferers to have a Hiatal Hernia, and

also to have very low stomach acid. Here's Hiatal Hernia adjustment

you can do:

http://www.healingnaturallybybee.com/articles/menu4_2_2.php

You would need to take betaine HCl properly too - see this article:

http://www.healingnaturallybybee.com/articles/dig5.php

However, instead of HCl you can eat a good " unpasteurized " sauerkraut

with every meal. Sauerkraut is amazing since it stabilizes stomach

acid: if stomach acid is too high it lowers it; if stomach acid is

to low it increases it. Eat 1/4 to 1/2 cup with complete meals, and

whenever you feel burning also. Or when you feel burning in your

esophagus you can take 1/4 tsp. of baking soda in a little water; sip

until the burning stops; but don't take it very often since it is

high in sodium which will throw off mineral balances.

The hope that helps,

Bee

Report post · July 20, 2009

Hi Patty,> 1. Can LDN suppress markers of inflammation such as CRP and Sed Rates?I haven't personally tested my CRP and Sed Rates since starting LDN but it falls to reason that LDN can help reduce inflammation so it may help reduce the CRP and SED rate inflammation markers. I did measure my TPO (antibodies) which is also an inflammation marker and I do credit LDN with helping to reduce my TPO. >> 2. Should I try to go back on it? If so:>> 3. Take it in the morning> 4. Take it at bedtime but every other day> 5. Decrease the dose to 3mg and take at bedtimePersonally, when I had 6wks of sleep disturbance I decided to change today-time dosing and took my 3mg LDN at 9am. I used this schedule for4-5mos and it was when I had the biggest reductions in my antibodies. Quality sleep is such an important aspect of helping our immune systems heal, so I would do whatever you can do to achieve that. > 6. Should I have seen some results in nearly 4 months such as less fatigue and decreased pain or am I expecting too much?If you had experienced better sleep quality during these 4mos I would have to say that you should have experienced at least some improvement. But a lot of what you're feeling could be related to your adrenals having to do all this extra work to make up for the lackof good sleep. ??? ~who knows for sure --??You're just going to have to experiment with the dosing and schedule to see what works best for you. I think its great that you are using CRP and SED as a measurable indicator of LDN benefits...but you also need to factor in your sense of 'well being'. And you'll never experience a sense of well-being if you're exhausted.Best wishes,Jann

Report post · July 20, 2009

you should take something like melatonine to be anle to sleep.

ldn brings down crp.

people with cfs are almost always full of viruses.you should help your body

fight it.something like vit c up to bowl tolerance.the ldn alone is not

enough.it looks to me that the ala was very high,better buy the good brand

recommende by berkson and try to clean your heavy metals

>

> Hi, a few people from the adrenal group suggested I come here to ask a few

questions. I started LDN toward the end of March for CFS and an inflammatory

arthritis. After the first dose, I basically didn't sleep for at least 48

hours. The doc put me straight on 4.5mg. Another friend told me you should

ramp up, so I went down to 1mg and worked back up over about a month. I still

cannot sleep with it. If I don't take it at least 3 hours before bedtime, I

don't go to sleep at all. I don't have the weird dreams or anything, I just

don't sleep. I started taking it about 9PM, going to bed at midnight and fall

asleep between 2 and 4 am which is not leaving me much sleep. This same doc

also put me on 300mg ALA 4X/day and I stopped that about 2 weeks ago because it

was really messing with my ability to think and function.

>

> My pain has also worsened in that time. I don't know if that is LDN or just a

cycle but usually this time of year is when I have the least pain. I don't

take any pain meds, nothing that could interfere with the LDN. The only meds I

take are hydrocortisone (30mg/day) and Cytomel (T3, 75mcg/day). I am

hypothyroid but do not have Hashi's; at least in 25 years, antibodies have never

shown up. I have now developed probable temporal arteritis (inflammation of the

temporal artery) and desperate for sleep, stopped the LDN a few days ago. The

last 2 nights I've been asleep before midnight. Here are my questions:

> 1. Can LDN suppress markers of inflammation such as CRP and Sed Rates?

>

> 2. Should I try to go back on it? If so:

>

> 3. Take it in the morning

> 4. Take it at bedtime but every other day

> 5. Decrease the dose to 3mg and take at bedtime

> 6. Should I have seen some results in nearly 4 months such as less fatigue

and decreased pain or am I expecting too much?

>

> Any and all suggestions welcome. Thank you.

> Patty

>

Report post · November 23, 2009

Hi I am new to this group also. I have not been on Humira, but I am on Enbrel.

Have also tried Remicade and Orencia, both of them did not help me. Enbrel so

far has helped the best. I am also on MTX, Plaquenil, Klonopin (anxiety),

Vicodin (pain) and Lyrica (fibromyalgia). I get stressed very easy and it

doesn't help my RA at all. Stresss agrevates RA symptoms.

Sheila

Â

________________________________

From: jvanvelsor <jvanvelsor@...>

Sent: Mon, November 23, 2009 11:00:36 AM

Subject: [ ] new member with questions

I am new to this group and new to auto immune diseases as mine began in the

spring of last year. I am taking methtrexate and Celebrex and Norco for pain,

but have so far not been able to get good control over symptoms or blood work

signs of inflammation. My Dr. is not sure yet what auto immune disease I have,

but is beginning to think it is evolving into RA. He has now prescribed Humira

and I am going though the pre approval process with my health plan. I would so

appreciate any information about your experiences with Humira. The potential

side effects are very scary, and I don't know if I am being foolish to take the

drug or foolish not to seek the potential help it might offer.

thank you in advance for any help

Joan in Fair Oaks

Report post · November 23, 2009

Hi Sheila:

Â Â Â Â Welcome to our wonderful group.Â Nice to meet you.Â I am glad that

Enbrel works well for you.Â That is good news.

Â Â Â Yes, stress is so bad for us with RA.Â I too take something for

stress.Â It does work well for me.

Â Â Â Â Have a good day, and again, welocme here.

Â

Hugs,

Â

Barbara

From: Sheila Toby <sheilatoby@...>

Subject: Re: [ ] new member with questions

Date: Monday, November 23, 2009, 11:15 AM

Â

Hi I am new to this group also. I have not been on Humira, but I am on Enbrel.

Have also tried Remicade and Orencia, both of them did not help me. Enbrel so

far has helped the best. I am also on MTX, Plaquenil, Klonopin (anxiety),

Vicodin (pain) and Lyrica (fibromyalgia) . I get stressed very easy and it

doesn't help my RA at all. Stresss agrevates RA symptoms.

Sheila

Â

____________ _________ _________ __

From: jvanvelsor <jvanvelsor (DOT) com>

@gro ups.com