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Hi Pattie,

Welcome to our group.

>>>>I've been reading the posts frequently and have gone through the

files. I started the diet and am adhering to it strictly, except that

I am still eating organic plain yogurt.

===>Well done for starting the diet Pattie. As Robin mentioned it

would be better to make your own yogurt if you are having commercial

made. Commercial yogurt lacks proper fats (the higher the fat

content the lower the lactose/sugars), often does not contain proper

bacterial cultures and is much higher in lactose because they do not

culture it long enough.

>>>>I am also in the process of weaning off coffee. I refuse to do

this cold turkey because I have tried it before and got skull

shattering migraines.

===>I hear ya. I went off coffee recently but I weaned myself

gradually. But the weekend I stopped I got a horrible migraine for

about 18 hours - thank goodness it was the weekend. I just prayed it

wouldn't last long, which it didn't. Like Zack suggested maybe having

pau d'arco tea would help you wean - it helped me a lot.

>>>>I'm how quickly die off might begin to occur, because other than

the vaginal itching, (which was not impacted at all by any of the

> suggestions I received) and two itchy spots on my arm, I feel great!

===>Like Robin says you might not have die-off symptoms on the diet

and that's a good thing. You could probably start on the antifungals

and probiotics sooner than others.

> The VYI seems to be calming down, but the outside skin is still

very itchy.

For your itching have you tried coconut oil applied directly? It is

an antifungal too and very soothing. It is important to alternate

antifungal treatment with probiotic treatment for vaginal yeast. You

could also make antifungal and probiotic creams by mixing powders in

pure cold cream and applying them directly. Also try epsom salts

baths.

>>>>Also, is there any problem with using a topical benydryl to

control itching?

===>It is better to try a more natural treatment first. Use benydryl

only for emergencies like when you are attending an important

function.

Bee

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Hi and welcome to the group!!!

Isn't it amazing how many hoops we sometimes have to go through to

get a correct diagnosis? ~hugs~ Repeat after me… " Not all

Psychologists are created equally… nor do they all understand

Aspergers! " At least you did get the school to do evaluations over

the summer and now are in a position to get appropriate care!

On my son's team (which changes from year to year) I have every

professional that is currently working with my son. That has included

his OT therapist, his PT therapist, the facilitator of his social

skills group, his counselor, the psychologist, the school

professionals working with him, as well as any extracurricular

leaders that have an interest in his educational wellbeing. Many

volunteered or were more than happy to be involved. Those that

couldn't attend a meeting wrote letters containing their observations

and concerns, which were then taken into account during the meetings.

Congratulations to a good start to the year!!! Often the starts

and " newness " is the hardest time for our kiddos, so perhaps he will

have an excellent year!!! ~hugs~

Tyler has had a lot of help with social skills and pragmatics. Though

he isn't quite " up there with the NTs " , he can hold his own now. Kids

3-5 years younger than he is adore him, looking up to him, and often

feel he understands them better than the adults and peers surrounding

them. (great improvement!) Though he is a bit behind, he is advancing

and eventually (probably as an adult) will catch up to his peer

group. Tyler was in a social skills group twice a week for three

years. He also had training 4 days a week on boundaries and

respectful behavior through martial arts training with an instructor

who had a degree in not only martial arts but also in child

psychology (and understands AS very well!!!) This training went on

for almost four years. Currently, he is on break from both, but has

learned to take social cues from the adults around him (we have

definite signals we can give him that other kids don't seem to pick

up on) and he is able to be involved in a wide variety of activities

independently… It is my hope that eventually, he won't need the cues

from the adults, but can then take the more subtle cues from his

peers as well…

As far as elastic waist pants… No worries!!! ~grins~ If he is still

needing them when he gets that big, you buy the inseam to fit and the

waist about 4 inches too big. Then you take your sewing machine and

insert your own elastic into the back. With long shirts being the

ongoing thing for high schoolers, no one will be any the wiser that

he has an expandable waistband!!! I have had to do this for kids

before and have wondered if it wouldn't be more comfortable for me (I

don't really like the look of elastic, but it sure seems like it

would be more comfortable!!!)

Good luck, and again… WELCOME!!!

~hugs~

Rabecca

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> Thanks for your response Rabecca!

,

I'm at the same point as you so I also appreciate Rabecca's

response! My son is 5 and starting kindergarten soon. I'm

worried. He's extremely smart ... I was thinking as were many of

my friends that perphaps he is gifted. I think he's just really

bright and because he can concentrate and focus so well and has an

obsession with numbers and letters, he can appear gifted. He's

certainliy my little gift though! <big grin>

I picked him up at school yesterday and he was all alone in the

sandbox while ALL the other kids were playing together. They were

all kind of loud and running around playing tag so I think he just

couldn't handle it. It took him 5 minutes to acknowledge me ... all

the other kids were going over to him saying " your mommy is

here! " over and over and he just walked in circles looking at the

ground. Breaks my heart but I guess I'm lucky that he's not like

that always. The rest of the evening alone with me and my 2.5 year

old he was engaging and " normal " ... hate to say that since it

appears I think he's not! He's a darling and I'm actually quite

fascinated by his thought process ... I just see a desperate need to

get him some socialization help ... fortunately my cousin works with

autistic kids and she's coming over tomorrow night to give me her

opinion and hopefully some techniques to use at home to give him a

headstart. I'll share whatever I learn with ya!

We don't have an official diagnosis yet ... we meet with a

neurologist September 7. Sounds like AS thought doesn't it?

Kathy

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Hi Kathy,

If possible, you might visit your son at school during recess. When my son

was in kindergarten, parents volunteered in the class. i would always stay

through recess and help my son socially on the playground. When the other

kids at their snack, i would have my son sit with the group. If another kid

had a character snack, my son liked I would point it out and saymy son likes

Scooby Doo, too. And ask my son to say something about it. Which he would

withmy promopting. If other kids said Hi to him, i would point it out to him

and suggest that he say hi back. When the kids went to play, I would walk my

son other there and have him join in. Still staying with the kids to help

him with conversation. The other kids get to know me and they talk more to

my son than they otherwise would. I continued to do this through 1st grade.

He is doing well now without me. He'll be starting third grade in two weeks.

i think this might help your son socially if you are able to go to his

school during those social time. Hope this helps.

Angels

>From: " alexosmommy " <kshear@...>

>Reply-Autism and Aspergers Treatment

>Autism and Aspergers Treatment

>Subject: Re: " New " member with questions

>Date: Wed, 25 Aug 2004 16:54:24 -0000

>

>

> > Thanks for your response Rabecca!

>

>,

>

>I'm at the same point as you so I also appreciate Rabecca's

>response! My son is 5 and starting kindergarten soon. I'm

>worried. He's extremely smart ... I was thinking as were many of

>my friends that perphaps he is gifted. I think he's just really

>bright and because he can concentrate and focus so well and has an

>obsession with numbers and letters, he can appear gifted. He's

>certainliy my little gift though! <big grin>

>

>I picked him up at school yesterday and he was all alone in the

>sandbox while ALL the other kids were playing together. They were

>all kind of loud and running around playing tag so I think he just

>couldn't handle it. It took him 5 minutes to acknowledge me ... all

>the other kids were going over to him saying " your mommy is

>here! " over and over and he just walked in circles looking at the

>ground. Breaks my heart but I guess I'm lucky that he's not like

>that always. The rest of the evening alone with me and my 2.5 year

>old he was engaging and " normal " ... hate to say that since it

>appears I think he's not! He's a darling and I'm actually quite

>fascinated by his thought process ... I just see a desperate need to

>get him some socialization help ... fortunately my cousin works with

>autistic kids and she's coming over tomorrow night to give me her

>opinion and hopefully some techniques to use at home to give him a

>headstart. I'll share whatever I learn with ya!

>

>We don't have an official diagnosis yet ... we meet with a

>neurologist September 7. Sounds like AS thought doesn't it?

>

>Kathy

>

>

>

>

_________________________________________________________________

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wrote:

> My questions for you today are:

> 1. What team of professionals do you guys have for your AS children?

> And what do each of them do specifically? I have read about

> developmental pediatricians and DAN doctors on the autism list serve I

> also joined, but I can't figure out if they relate to an asperger kid.

> 2. What have you all done in the way of teaching your AS kids social

> skills and pragmatics? My son's biggest issue is out of control

> behavior with kids and adults in the school and daycare setting. I long

> ago resigned myself to the fact that he would only wear plain t-shirts

> and elastic waist pants (though I am wondering how we will clothe him as

> he gets to be a teenager!!).

> Thanks, I am sure I will have more questions later.

When Louie was in school (and for a while thereafter), he had an OT, a

PT and an ST. His Physical Therapist helped him with his body sense,

especially the sense of his body in space. The Occupational Therapist

worked with him on manual skills, coloring, artistic expression, holding

the pencil/pen/crayon in other than a primitive manner, things like

that. The Speech Therapist helped him not only with enunciation and

prosody, but also they did social stories to help him in various social

interaction situations. You can find out about social stories online,

BTW. That person also worked with his teacher (one of them, anyway( and

then later alone on an course of Conversational English that did wonders

for his ability to identify and understand idioms and like that. He

also had a 1X1 aide since he tended to elope and to also melt down in

heavy sensory input situations (like lunch).

I'd recommend all three starting out, until you know just where you and

your son stand. :)

Annie, who loves ya annie@...

--

People are lucky and unlucky not according to what they get absolutely,

but according to the ratio between what they get and what they have been

led to expect. ~

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,

Tyler had PT to address his muscle problems. It seems, when he was a

baby, he had very poor muscle tone. When he began to move, he didn't

use all muscle evenly. Some developed and were overused due to being

used for functions they were not intended for while others didn't

develop and were sitting there basically useless. They strengthened

his weak muscles and taught him how to move to better utilize all

muscle groups rather than depending upon only a couple.

The social skills group was actually organized by a psychologist who

had noticed an extremely high population of kiddos on the spectrum at

Tyler's grade school. It was run as an " extended curriculum " for

those that needed it so that they were not pulled out of class time

to participate. Instead, they met after lunch, when most of the kids

usually hid from bullies or isolated themselves due to the over

stimulation on the playground. The kids treated it as a refuge and

none would miss it for the world after the first month (Tyler never

wanted to be sick for fear of missing)!!!

Tyler turns 14 next month. I was actually led to the program not only

by his school counselor but also by his OT. We went in and talked

extensively without Tyler before giving it a try. We initially signed

him up for 3 months. When he made such tremendous leaps forward, the

OT suggested we sign him up for the 3 year program. We did, and he

took a bit longer to complete it than some, but complete it he did

(and so proud we are!!!) I will privately send you a note I wrote

earlier this year that really tells about what we have done, how far

he has come, and what made the most differences for us… It is several

months old, so probably isn't complete any more, but it is the most

comprehensive letter I have probably written!!!

~hugs~

Rabecca

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Kathy,

Doesn't it just break your heart to want him to fit in so badly and

for his thought processes and instincts being so contradictory??? I

loved and still love listening to Tyler's thought process... and he

does WONDERFULLY well with younger children as well as one on one.

Yet, in groups, he just doesn't have the " social skills " even yet at

almost 14, and that is with lots of intervention. Yet, now that I

have Tyler as a Teen and am seeing what other parents are going

through, I think I will take my ASPIE and thank my lucky stars!!!

Though he has trouble with subtle social cues or picking up on

multiple cues or with massive stimulation... he is very bright,

happy, fairly well adjusted, and now is back on an even keel

emotionally!!! (he had trouble for the first time earlier this

summer, which has now been helped with meds)

Enjoy your son and his uniqueness... You will find his self esteem

really flurishes with it and that you will have less problems than

you would otherwise!!!

~hugs~

Rabecca

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Hi,

I read your message and was wondering if you would mind emailing me the letter you wrote that tells of the things you have done and what has worked for you. I have a ten yr. old son. He has come a long way with just my efforts, but I am having major difficulities with his school because of his different needs and there are a few other areas I would like to address with his reactions, behaviors etc. Any information you have would be greatly appreciated.

Judy

----Original Message Follows---- From: "rabecca_whalen" <rabeccawhalen@...> Reply-Autism and Aspergers Treatment Autism and Aspergers Treatment Subject: Re: "New" member with questions Date: Thu, 26 Aug 2004 03:52:43 -0000

,

Tyler had PT to address his muscle problems. It seems, when he was a

baby, he had very poor muscle tone. When he began to move, he didn't

use all muscle evenly. Some developed and were overused due to being

used for functions they were not intended for while others didn't

develop and were sitting there basically useless. They strengthened

his weak muscles and taught him how to move to better utilize all

muscle groups rather than depending upon only a couple.

The social skills group was actually organized by a psychologist who

had noticed an extremely high population of kiddos on the spectrum at

Tyler's grade school. It was run as an " extended curriculum " for

those that needed it so that they were not pulled out of class time

to participate. Instead, they met after lunch, when most of the kids

usually hid from bullies or isolated themselves due to the over

stimulation on the playground. The kids treated it as a refuge and

none would miss it for the world after the first month (Tyler never

wanted to be sick for fear of missing)!!!

Tyler turns 14 next month. I was actually led to the program not only

by his school counselor but also by his OT. We went in and talked

extensively without Tyler before giving it a try. We initially signed

him up for 3 months. When he made such tremendous leaps forward, the

OT suggested we sign him up for the 3 year program. We did, and he

took a bit longer to complete it than some, but complete it he did

(and so proud we are!!!) I will privately send you a note I wrote

earlier this year that really tells about what we have done, how far

he has come, and what made the most differences for us… It is several

months old, so probably isn't complete any more, but it is the most

comprehensive letter I have probably written!!!

~hugs~

Rabecca

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  • 3 months later...

,

Just to get you started, there are several good books on Lyme disease, and

two I have gotten from the local county library here in Houston, TX are the

one by Lang, Coping With Lyme Disease

http://www.amazon.com/exec/obidos/tg/detail/-/0805075631/qid=1102364274/sr=1

-1/ref=sr_1_1/102-2569286-1856124?v=glance & s=books

And the one by Vanderhoof Forschner, Everything You Need to Know About

Lyme...

http://www.amazon.com/exec/obidos/tg/detail/-/0471407933/qid=1102364448/sr=1

-1/ref=sr_1_1/102-2569286-1856124?v=glance & s=books

I think 's book is a little better, but founded The Lyme

Foundation.

Among good resources on the web are

http://www.lymenet.org the Lyme Disease Network

http://www.lyme.org/ 's foundations website

Among others.

You can also join the Lyme-and-rife group and be inundated with emails

by people discussing Rife machines and other aspects of treatment for this

devastating disease.

By using Google.com, I've found volumes of information on Lyme on the web.

I have yet to hear of a quick fix for late stage/chronic Lyme disease but

different people on these groups give credit to different things they have

tried: Rife machines, colloidal silver, Samento (a type of Cat's Claw herb)

and others.

Also, there is a new clinic forming called the Fibrolmyalgia and Fatigue

Centers opening up in the USA, and perhaps you can gain some knowledge

through their website. I personally believe that people with Lyme are often

diagnosed with either or both CFIDS and fibromyalgia.

http://www.fibroandfatigue.com/patient_support_resources.htm

Good luck.

Jan

[ ] new member with questions

hello,

I am a new member from the UK, are there other uk members here? I dont know

the protocol for this group so I hope nobody minds if I

just plunge straight in.

I am not certain whether I have Lyme, a naturopath I was talking to

recently suggested to me that I probably have, though.

I dont know much about it at all, and I dont know where to start. I have

been quite badly ill with M.E. (CFS, CFIDS)for nearly nine

years now, with some better periods and some worse.

I have lost my marriage and my career because of my illness, I used

to be a pretty good artist (at university level) but I have been too

ill to paint for a long time now.

The neurological symptoms are bad, I have severe cognitive problems,

difficulty understanding things or working things out, poor short

term memory and appallingly short concentration span.

I tend to link these neurological problems to my old career as a

dental chairside assistant where I was exposed to an awful lot of

mercury on a daily basis for many years, we were not as careful or

informed about it in the old days as they are in dental surgeries now.

My mother had 'fibrositis' and some mental problems too, including

anxiety and depression, my aunt has fibromyalgia syndrome and anxiety

(and she is also a dental nurse, but she is still well enough to

work), and my grandmother had 'bad rheumatism'

..

I thought I must have FMS because I get so much physical pain, and I

had been told that FMS was hereditory; but I recently saw a CFS

specialist who did an examination and some minor tests, he says he

thinks I dont have FMS, but I have CFS, because I dont only have the

pain on the FMS pressure spots, but all over.

so anyway, the Naturopath thinks we may all have had Lyme disease

from birth, my mother and her sister and my grandmother and I, and

that my 18 year old daughter may be at risk now too. she does get

sick when she overdoes things, her health holds her back a little bit

already.

My grandmother came from Mullingar in Ireland, I have no idea what

the tick situation is there.

Please, can anyone here shed some light on any of this for me, or

give me some advice?

I don't know what to do next.

I dont have much money to pay for private treatment either as I have

to exist on benefits, (although I consider myself lucky to get those). I

dont even know if British doctors are taking Lyme disease

seriously, no one has ever mentioned it to me until recently.

all the Best

Questions and/or comments can be directed to the list owner at

-Owner

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  • 1 month later...

Hi Angel,

I've had experience with a few different colon cleanses but

found " Experience " (love the name) to be effective, gentle and

convenient.

My family also has a history of bowel problems including IBS, crohn's

etc. but with a combination of " Experience " and " Synergy Defense "

(improves digestion) these problems are now under control.

Remember that your overall diet has a lot to do with it too and

juicing vegetables helps a lot.

We also take cod liver oil.

Ken

www.kenluanne.awarenesslife.com

>

>

> Hi,

> I just joined the group and am searching for a semi-easy colon

cleanse. My entire family

> has a history of constipation and various colon issues. I need to

find a method of cleansing

> my system and attempting to restore a healthy digestive system.

> Does anyone have any recommendations?

> Thank you for all your help!

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  • 3 weeks later...

You should avoid seafood for now. (Don't worry it's not a permanent thing! Only

until your

thyroid hormone level is back to normal) Seafood is rich in iodine. And normally

it's one of

the best thing to have in your diet. But for now you should avoid it. The

doctors will not

tell you this if you ask them (At least the doctors I've experienced). Yes. You

should also

avoid iodized salt. The reason you're abstaining from iodine-rich food is

because your

thyroid uses iodine in the body to produce thyroid hormone (this is commonly

known to

your doctor as thyroxine. Thyroxine is consisted of T3s and T4s.) When you have

Graves

Disease (a form of hyperthyroidism), you have excess amount of thyroxine in your

blood.

This excess of thyroxine leads to your various hyperthyroidism symptoms, such as

racing

heart, insomnia, rapid weight loss, excess phlegm, intolerance to heat, constant

sweating,

dry lips, thirst, among others.

Yes. Eating food rich in iodine such as iodized salt will affect your RAI Uptake

Scan test

results. I would not recommend this test. So if you can, please avoid this. You

should

however, ask to take a Free T3 and a Free T4 Tests. These simple blood tests

will indicate

the level of your thyroxine in your blood which reflects the severity of your

hyperthyroidism. If you have an enlarged goiter, I would recommend also taking

an

ultrasound scan of the thyroid. This test checks for nodules (bumps) in your

thyroid and

for any cancerous tissues. A TSH test is not as important but will help indicate

the

normalcy of your pituitary gland (This master gland tells the thyroid how much

thyroxine

to produce. It usually shuts down its production of TSH when you have

hyperthyroidism).

Your doctor will check your thyroid by asking you to swallow (He may have you

drink some

water beforehand) and feel your neck to gauge the size and shape of your thyroid

(which

is normally a butterfly-shaped organ).

Here are some links that you may find helpful.

http://www.thyroid-info.com/articles/hyperthyroidism-faq.htm#3

http://www.muhealth.org/~daveg/thyroid/thy_dis.html

http://thyroid.about.com/cs/newsinfo/l/bltest_values.htm

http://valkyrie.aarg.net/top20.html

http://home.velocitus.net/deecee/krista.htm

http://webhome.idirect.com/~wolfnowl/thyroid23.htm

http://www.ithyroid.com/

http://phoenity.com/diseases/goiter.html

http://www.labtestsonline.org/understanding/analytes/t4/sample.html

http://www.amarillomed.com/howto.htm

Take care.

joey

>

> Of course I have questions.. lol.. Ok last week doc said.. you have

> hyperthyroidism, we made you an appointment with the endocrinologist

> in 2 weeks. Now I am freaking out, I read all I can but still can't

> understand everything (too much too fast). Do I need to avoid iodinzed

> salt? Could eating that make a false result on the test? I have

> several signs of Graves Disease (including my eyes are 'puffy' a lot,

> I thought I was developing allergies) and my husband has made a few

> comments about my silky skin and I never use lotion or anything. Could

> there be anything else besides Graves (like a tumor or cyst) that

> still mimics Graves? I started having anxiety attacks last October and

> depression last summer, and hormonal problems over two years ago,

> could that have been the start of this then? Most importantly, what

> can I expect to happen at the endo's? Thank you for any info.

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Morning Brat,

Melody posted this to over 20 boards I sent back

a reply as well on one board. I do send out my topic posts

to a large amount of groups due to the current DEA

threat to those who practice pain management and those

who need it.

However, I did write Melody personally that her neurologist

would send her to a neuro or ortho surgeon.

Her neuro symptoms were non specific as opposed to

her test results.

God bless you losing a lung wow~

Hugs,

In a message dated 2/8/2005 10:10:09 AM Central Standard Time, OZnDOT@... writes:

HI MELODY AND GROUP,I'm sure many here can tell you better and give you the necessaryresources to look into based on the findings of your tests but Ithought I would say a little something.It sounds like the same symptoms I have had for awhile that due tomany Dr visits and Meds I have found a great deal of relief. Going tothe Neuroligist is about the best thing you can do at this point, he'sthe one that can correctly diagnose your condition.For me it was due to pinched nerves caused by arthritis in my neckcausing pinched nerves (the symptoms you describe). I also havescoliosis which is curvature of the spine and it curves at the neck aswell as the lumbar both of which causes these symptoms. In the lumbarof course it is the legs and feet which I have dealt with for years.One thing I will stress though when they offer you cortisone shots (ifthey do) they may or may not decrease the symptoms, one thing I cantell you is they WILL put the wieght on you quickly so be prepared to"exersize" or somehow deal with the cortisone so it doesnt just turninto fat.In my condition with only one lung (the other lost to Cancer) I couldnot exersize like I should have.I wish you all the luck in your diagnosis and hope you find the rightmeds to help with the discomfort of the condition.Sincerely,BRATPS> You've come to the right place!!On Mon, 07 Feb 2005 06:15:00 -0000, melodym22 <melodym22@...> wrote:> > > Hi All,> My name is Melody. I recently joined your group to try to find out> answers for my problems and to see if anyone has information or> experiences they can share with me. I have been suffering with> severe weakness, numbness and pain in my neck, back, shoulders,> shoulder blades, fingers, arms legs and feet for quite some time. I> recently had both a nerve conduction study and MRI of Cervical and> Lumbar areas. I will list the areas of concern here so if anyone has> experience with problems like this please write to me sharing your> experience of how to deal with these problems. I have an appointment> with a Neurologist tomorrow and have to ask questions of what is next> for me.> > Issues reported in my MRI Cervical are as follows:> > There is degenerative disc space narrowing at C3-C4, C4-C5, and C5-C6.> > C3-C4: There is broad based left paracentral, moderate size disc> protrusion, which indents the left anterior aspect of the cprd and> narrows the left neural foramina.> > C4-C5: Bilateral mild to moderate uncontrovertebral hypertrophy> results in bilateral neural foraminal narrowing. Spinal Stenosis is> present.> > C5-C6: A moderate and generalized disc buldge indents the anterior> aspect of the thecal sac and results in moderate spinal stenosis.> There is bilateral neural foraminal narrowing, secondary to> uncontrovertebral hypertrophy, right slightly greater than left.> > IMPRESSION: of Cervical MRI> > 1. Moderate spinal stenosis at C5-C6, secondary to a broad-based> posterior disc osteophyte complex.> 2. Mild spinal stenosis at C4-C5, with bilateral neural> foraminal narrowing, secondary to uncontrovertebral hypertrophy.> 3. Focal disc protrusion at C3-C4 just to the left of the> midline, with effacement of the left anterior aspect of the cord and> left neural foramina.> > Issues reported in MRI Lumbar Spine with out contrast.> > There is mild anterior sublaxation of L3 on L4, 3mm, secondary to> degenerative facet hypertrophy. There is degenerative disc space> narrowing at L3-L4, L4-L5, and L5-S1. Vacuum disc phenomena is> present at L4-L5 and L5-S1.> > L3-L4: A generalized disc bulge coupled with moderate degenerative> facet hypertrophy and marked redundancy of the ligamentum flavum> results in moderate to severe spinal stenosis. The inferior neural> foramina are narrowed, bilaterally.> > L4-L5: A gereralized disc bulge coupled with moderate degenerative> facet hypertrophy and redundancy of the ligamentum flavum results in> moderate spinal stenosis. The inferior neural foramina are narrowed,> bilaterally, left slightly greater than right.> > L5-S1: A mild generalized disc bulge coupled

Hallenbeck~Sikorsky~ BS,RN,UM,QCOwner-Moderator"AnGeLsInPain"I have watched heart(s)shatter, fall to the ground only to break..."OneVoiceInPain"Interqual CertifiedPublished Psychiatric ResearcherAdvocate for those in CIP, HIV, Psychologic Pain"The Lord Will NEVER push us beyond what we can endure."

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HI MELODY AND GROUP,

I'm sure many here can tell you better and give you the necessary

resources to look into based on the findings of your tests but I

thought I would say a little something.

It sounds like the same symptoms I have had for awhile that due to

many Dr visits and Meds I have found a great deal of relief. Going to

the Neuroligist is about the best thing you can do at this point, he's

the one that can correctly diagnose your condition.

For me it was due to pinched nerves caused by arthritis in my neck

causing pinched nerves (the symptoms you describe). I also have

scoliosis which is curvature of the spine and it curves at the neck as

well as the lumbar both of which causes these symptoms. In the lumbar

of course it is the legs and feet which I have dealt with for years.

One thing I will stress though when they offer you cortisone shots (if

they do) they may or may not decrease the symptoms, one thing I can

tell you is they WILL put the wieght on you quickly so be prepared to

" exersize " or somehow deal with the cortisone so it doesnt just turn

into fat.

In my condition with only one lung (the other lost to Cancer) I could

not exersize like I should have.

I wish you all the luck in your diagnosis and hope you find the right

meds to help with the discomfort of the condition.

Sincerely,

BRAT

PS> You've come to the right place!!

On Mon, 07 Feb 2005 06:15:00 -0000, melodym22 <melodym22@...> wrote:

>

>

> Hi All,

> My name is Melody. I recently joined your group to try to find out

> answers for my problems and to see if anyone has information or

> experiences they can share with me. I have been suffering with

> severe weakness, numbness and pain in my neck, back, shoulders,

> shoulder blades, fingers, arms legs and feet for quite some time. I

> recently had both a nerve conduction study and MRI of Cervical and

> Lumbar areas. I will list the areas of concern here so if anyone has

> experience with problems like this please write to me sharing your

> experience of how to deal with these problems. I have an appointment

> with a Neurologist tomorrow and have to ask questions of what is next

> for me.

>

> Issues reported in my MRI Cervical are as follows:

>

> There is degenerative disc space narrowing at C3-C4, C4-C5, and C5-C6.

>

> C3-C4: There is broad based left paracentral, moderate size disc

> protrusion, which indents the left anterior aspect of the cprd and

> narrows the left neural foramina.

>

> C4-C5: Bilateral mild to moderate uncontrovertebral hypertrophy

> results in bilateral neural foraminal narrowing. Spinal Stenosis is

> present.

>

> C5-C6: A moderate and generalized disc buldge indents the anterior

> aspect of the thecal sac and results in moderate spinal stenosis.

> There is bilateral neural foraminal narrowing, secondary to

> uncontrovertebral hypertrophy, right slightly greater than left.

>

> IMPRESSION: of Cervical MRI

>

> 1. Moderate spinal stenosis at C5-C6, secondary to a broad-based

> posterior disc osteophyte complex.

> 2. Mild spinal stenosis at C4-C5, with bilateral neural

> foraminal narrowing, secondary to uncontrovertebral hypertrophy.

> 3. Focal disc protrusion at C3-C4 just to the left of the

> midline, with effacement of the left anterior aspect of the cord and

> left neural foramina.

>

> Issues reported in MRI Lumbar Spine with out contrast.

>

> There is mild anterior sublaxation of L3 on L4, 3mm, secondary to

> degenerative facet hypertrophy. There is degenerative disc space

> narrowing at L3-L4, L4-L5, and L5-S1. Vacuum disc phenomena is

> present at L4-L5 and L5-S1.

>

> L3-L4: A generalized disc bulge coupled with moderate degenerative

> facet hypertrophy and marked redundancy of the ligamentum flavum

> results in moderate to severe spinal stenosis. The inferior neural

> foramina are narrowed, bilaterally.

>

> L4-L5: A gereralized disc bulge coupled with moderate degenerative

> facet hypertrophy and redundancy of the ligamentum flavum results in

> moderate spinal stenosis. The inferior neural foramina are narrowed,

> bilaterally, left slightly greater than right.

>

> L5-S1: A mild generalized disc bulge coupled with mild to moderate

> degenerative facet hypertrophy and redundancy of the ligamentum

> flavum results in mild spinal stenosis. The inferior neural foramina

> are mildly narrowed, bilaterally at the inferior aspects.

>

> IMPRESSION of Lumbar MRI:

>

> 1. Degenerative disc bulge and significant facet hypertrophy

> resulting in moderate to severe stenosis at L3-L4.

> 2. Moderate stenosis at L4-L5 and mild stenosis at L5-S1,

> secondary to generalized disc bulges and facet hypertrophy.

>

> Thank you for your group and your replies.

> God Bless You,

> Melody

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

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> 2) Daily Digest - sends you 25 messages in one single email for you to browse.

This is an excellent option if you receive alot of email.

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>

> --- Margaret Drabble

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

>

>

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  • 2 weeks later...

Sorry you're having such a hard time, ! I got diagnosed about 9 months

postpartum which convinced my endo it was Grave's and not thyroiditis as

thyroiditis usually turns to hypothyroidism by about 6 months postpartum. My

second endo said that my thyroid felt like Grave's in any case.

I did PTU pretty soon after I was diagnosed...it took about 2 weeks to feel a

difference (even though I was very hyper when diagnosed it didn't

actually make

me feel too bad, everyone's different). What dosage are you on? When you first

start taking it you have to both block the new thyroid hormone that's being

made and get rid of all the stored hormone in your thyroid so the

dosage should

be pretty high, about 300mg per day (100mg/3 times a day). You can

start cutting

it down at about 6 weeks, which is when all the stored thyroid should be gone.

I'm now down to 25 mg every 4-5 days.

My naturopath and doctor recommended against taking a beta blocker. Be very

careful about getting yourself off them because you can cause an arrhythmia if

you did it too quickly.

Good luck! I am sure you will start to feel better soon, and it's such

a relief

when you do. Feel free to write with more questions!

Nissa

Quoting Tucker <nicole.tucker@...>:

>

>

> Hello,

> My name is and I have recently been diagnosed with

> Hyperthyroidism. I just saw an endo for the first time last week

> after my primary care provider diagnosed me based on blood work. My

> endo is not sure if I have Graves or if this is Postpartum

> Thyroiditis. She thinks it is Graves since I am almost a year

> postpartum.

> I feel so awful I can barely stand it. My heart races (it was

> over 112 beats per minute at the doc office), I have bad insomnia,

> get out of breath, hungry and thirsty all the time and losing

> weight. The worst part of all this is how it is making me feel and

> act - so irritable and impatient with my children, husband and dogs!

> I feel out of control and scared.

> I was trying two homeopathic remedies while I was waiting for my

> appointment with the endo (I had to wait for a month) but they didn't

> seem to be helping. I don't like to take prescriptions but out of

> desperation have been taking the betablockers my regular doc gave me

> and just started an antithyroid medication (PTU) the specialist gave

> me last week. I don't feel any better yet (in fact felt somewhat

> worse the last few days but didn't know if it had to do with the

> female time of the month) A holistic practioner I work with told me

> this might be related to a hormonal imbalance of progesterone.

> I read some of the first posts on this sight and wondered if you

> all are still recommending 8mg of copper (Solgar Chelated) and 60-70

> mg of Zinc for someone starting out. I am taking a Calcium Magnesium

> supplement but wonder if I should take more. Any other suggestions

> would be great. I am scared to stop taking the meds as I need this

> to get better soon. Has anyone had success with a short run of PTU?

> I will not be doing the RAI or surgery as I am nursing. From what I

> gather they can create a new set of problems so even if I wasn't

> nursing I am not sure I would want to do either.

> What I really wish for (as I am sure we all do) is a quick

> resolution to this and to get back to the way I used to feel!

> Sincerely,

>

>

>

>

>

>

>

>

>

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  • 1 month later...
Guest guest

Hello everyone,

I am quite new on this list; it's good it exists. My name is Cathalijne (female

42 years) and I have been using ozone-therapy since 3 weeks. Because I have

Multiple Sclerosis, Crohns disease and arthritis it is quite tough to do the

ozon-sauna. In the beginning the temperature was too hot, and I suffered a lot

from increasing pain in my arteries. Got scared...

Saul adviced me to have the temperature a bit lower in the starting period (like

39 degrees), I think it s a good advice.

Now I am taking more ozonated water, but my intestinal problems seem to increase

due to this, and I have a lot of bloating, lack of appetite.

Probably candidiasis and toxic liver are the cause.

Also I experience severe burning pains, which increase after sauna or after the

ozonated water.

(Before sleep I take ozonated olive-oil.)

Could that be a result of increased use of B-vitamins? Polyneuritis...

Is it safe to use more vitamins on the same day, or just before or after

drinking ozonated water?

Who has experience with treating this kind of problems?

Thanks for helping me, thanks for any suggestion

Cathalijne (Holland, Europe)

whooping cough, ozone and other protocols?

Hi there. Just curious if others have gone through this and what

helped them through it.

My 3.5 yr old is about 3 weeks in and the baby and I are just

getting into the nasty stuff now. i am trying to stay strong to help

my kids through this!! plus i am still breastfeeding them both.

I have been doing lots of things to boost are immune system, keeping

in touch with our homeopath and we've been to see the MD/ND

Am also funnelling my chest with ozone once a day (nice nasty rash)

and breathing once a day through olive oil, drinking ozonated water

and vaginal insuffilation once.

This morning was the first real bad experience for me as i coughed

and coughed and then when you try to catch your breath it feels like

the windpipe is partially blocked with glue. essentially true i

guess. hard to imagine this is just the beginning. i so want this to

be over.

any thoughts or tips would be appreciated.

warmly

wendy

OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

THERE IS NO MEDICAL ADVICE HERE!

This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

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oxyplus-normalonelist - switch your subscription to normal mode.

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Guest guest

Cathalijne, If I were you, I would do a several master cleanses and many liver

cleanses. Probably will be better to do the liver cleanse first. I believe it

would be better to take stuff out of your system rather than adding more to it.

Of course, you should carefully monitor your nutritional needs and do not

mistake healing crises for a problem with your choices. Sometimes this is

difficult to do but with research you will find a way. Good luck!

Best wishes and much love, Ken

Ken Gullan

Institute for Research Integration (IRI), San Diego, CA 92106-2424

IRI is a 501C(3) non-profit corporation established to help children with

developmental difficulties.

To contact me off-list use kengullan@... or call 619-222-1104

whooping cough, ozone and other protocols?

Hi there. Just curious if others have gone through this and what

helped them through it.

My 3.5 yr old is about 3 weeks in and the baby and I are just

getting into the nasty stuff now. i am trying to stay strong to help

my kids through this!! plus i am still breastfeeding them both.

I have been doing lots of things to boost are immune system, keeping

in touch with our homeopath and we've been to see the MD/ND

Am also funnelling my chest with ozone once a day (nice nasty rash)

and breathing once a day through olive oil, drinking ozonated water

and vaginal insuffilation once.

This morning was the first real bad experience for me as i coughed

and coughed and then when you try to catch your breath it feels like

the windpipe is partially blocked with glue. essentially true i

guess. hard to imagine this is just the beginning. i so want this to

be over.

any thoughts or tips would be appreciated.

warmly

wendy

OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

THERE IS NO MEDICAL ADVICE HERE!

This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

oxyplus-unsubscribeegroups

oxyplus-normalonelist - switch your subscription to normal mode.

------------------------------------------------------------------------------

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  • 5 weeks later...
Guest guest

Read the files section.

You will find that most listmates chelate

on Andy's protocol.

For example, to start, 25 mg/dose DMSA

every 4 hours around the clock for 3 days,

11 days off.

--- " Sherri H. " <slhardegree@...> wrote:

> Hi everyone, I just joined this group thanks to a

> lady in another of

> my autism groups (elaine). My name is Sherri and my

> son Eddie is 13

> with moderate to partially severe autism. We have

> been through so

> much in 13 years - loss of speech at 18 months, the

> leaky gut syndrome

> for almost 5 years before we found a doctor who told

> us what was

> actually going on, behavior issues with his

> grandparents, and now

> puberty! Ugh. So... after all this, I figured that

> he was too old to

> chelate. I have since found out that it may take

> longer, but it can

> be successful.

>

> I have no idea where to start. Can anyone help?

>

> Sherri

>

>

>

>

>

>

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Guest guest

Sherri~

I immersed myself in the files here. Here are some links that I have found

very helpful.

http://f3.grp.fs.com/v1/MPhnQoX2GKKZBbmeovZFI4h-8NWpx9BGwKCQ5ZbyJQZwvgquGFF\

UkI7RiBe8IkS3NIik77RG-WeL5jHj-eZD1KBpD20k/Mercury-Autism%20FAQ

http://home.earthlink.net/~moriam/Glossary.html

http://home.earthlink.net/~moriam/LOVE_LETTERS.html

http://www.danasview.net/supps.htm

http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

http://www.danasview.net/parent3.htm#supplements

http://home.earthlink.net/~moriam/HOW_TO_find_doctor.html

Hope this helps~ Jackie----

> Hi everyone, I just joined this group thanks to a lady in another of

> my autism groups (elaine). My name is Sherri and my son Eddie is 13

> with moderate to partially severe autism. We have been through so

> much in 13 years - loss of speech at 18 months, the leaky gut syndrome

> for almost 5 years before we found a doctor who told us what was

> actually going on, behavior issues with his grandparents, and now

> puberty! Ugh. So... after all this, I figured that he was too old to

> chelate. I have since found out that it may take longer, but it can

> be successful.

>

> I have no idea where to start. Can anyone help?

>

> Sherri

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  • 5 months later...

Contact Joyce Attis near Ontario, try this # (416) 636-6618.

Let me know if that is not right, I can track her down for you.

Lynda

At 11:25 AM 10/17/2005, you wrote:

>Hi,

>I will apologize in advance for this post being very long.Please be

>patient with me as I am barely computer literate and have come to

>this site feeling desperate.I am 29 years old and have had saline

>implants for the past 7 years.Before the implants I was definately

>overly active.Almost immediately after recieving the implants I

>began to feel really tired all the time.I am not the type of person

>to see a doctor frequently, in fact I do not even have a family

>doctor.Immediatly after surgery I experienced numbness in my arms

>and hands that has continued to come and go.My right breast began to

>noticably harden about 6 months after getting implants.As time went

>on I also started have sharp chest and rib pain.Muscles on my entire

>upper left side feel tight.If I lift or move the wrong way I am

>often left with debilatating neck and back pain that has lasted for

>as long as a week leaving me bed ridden.My joints are incrediably

>sore and stiff.My muscles are weak.I have swollen lymph nodes in my

>neck and underarms.My memory is terrible and quite often I can not

>remember what has happened the day before.One implant is noticably

>higher than the other and seems to continue to climb upwards.I pick

>up every cold and flu that comes around.Even after hours of

>ininterupted sleep, I am never refreshed.I also have frequent head

>aches.I was never sick before the implants.I have for a long time

>attributed my poor health to the implants but have been too

>embarassed to see a doctor.I have decided now to do so as I am

>frequently too tired to function.I am also terrified of having

>another attack that leaves me stuck in bed crying in pain.My

>questions are as follows;

>

>1.Is removal covered in Ontario, Canada?Also is any reconstructive

>surgery to remove excess skin ect covered?

>

>

>2.Is there information I can print out to show my doctor linking my

>symptoms to the implants?

>

>3.My implants are above muscle 375cc, will I be deformed after

>removal?

>

>4. What have your personal experiences been after having implants

>removed?Has your health returned to normal?

>

>5.What is the recovery time needed?

>

>6.Is there a site where I can view realistic pictures of explants

>without replacement?

>

>7.Are there things I can do now to help my body prepare for surgery?

>

>8.Are there things I can do now to feel better before the implants

>are removed?

>

>Thank you all in advance.

>

>

>

>

>

>

>

>

>

>Opinions expressed are NOT meant to take the place of advice given by

>licensed health care professionals. Consult your physician or licensed

>health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

>Find out what the facts are, and make your own decisions about how to live

>a happy life and how to work for a better world. " - Linus ing,

>two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>

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> >Hi,

> >I will apologize in advance for this post being very long.Please

be

> >patient with me as I am barely computer literate and have come to

> >this site feeling desperate.I am 29 years old and have had saline

> >implants for the past 7 years.Before the implants I was definately

> >overly active.Almost immediately after recieving the implants I

> >began to feel really tired all the time.I am not the type of

person

> >to see a doctor frequently, in fact I do not even have a family

> >doctor.Immediatly after surgery I experienced numbness in my arms

> >and hands that has continued to come and go.My right breast began

to

> >noticably harden about 6 months after getting implants.As time

went

> >on I also started have sharp chest and rib pain.Muscles on my

entire

> >upper left side feel tight.If I lift or move the wrong way I am

> >often left with debilatating neck and back pain that has lasted

for

> >as long as a week leaving me bed ridden.My joints are incrediably

> >sore and stiff.My muscles are weak.I have swollen lymph nodes in

my

> >neck and underarms.My memory is terrible and quite often I can not

> >remember what has happened the day before.One implant is noticably

> >higher than the other and seems to continue to climb upwards.I

pick

> >up every cold and flu that comes around.Even after hours of

> >ininterupted sleep, I am never refreshed.I also have frequent head

> >aches.I was never sick before the implants.I have for a long time

> >attributed my poor health to the implants but have been too

> >embarassed to see a doctor.I have decided now to do so as I am

> >frequently too tired to function.I am also terrified of having

> >another attack that leaves me stuck in bed crying in pain.My

> >questions are as follows;

> >

> >1.Is removal covered in Ontario, Canada?Also is any reconstructive

> >surgery to remove excess skin ect covered?

> >

> >

> >2.Is there information I can print out to show my doctor linking

my

> >symptoms to the implants?

> >

> >3.My implants are above muscle 375cc, will I be deformed after

> >removal?

> >

> >4. What have your personal experiences been after having implants

> >removed?Has your health returned to normal?

> >

> >5.What is the recovery time needed?

> >

> >6.Is there a site where I can view realistic pictures of explants

> >without replacement?

> >

> >7.Are there things I can do now to help my body prepare for

surgery?

> >

> >8.Are there things I can do now to feel better before the implants

> >are removed?

> >

> >Thank you all in advance.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >Opinions expressed are NOT meant to take the place of advice

given by

> >licensed health care professionals. Consult your physician or

licensed

> >health care professional before commencing any medical treatment.

> >

> > " Do not let either the medical authorities or the politicians

mislead you.

> >Find out what the facts are, and make your own decisions about

how to live

> >a happy life and how to work for a better world. " - Linus

ing,

> >two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> >

> >

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She is one of the original breast implant group leaders from Canada, I met

her many, many years ago. I have been involved for 15 years. There are

several Canadian support groups.

Lynda

At 02:24 PM 10/17/2005, you wrote:

>

> > >Hi,

> > >I will apologize in advance for this post being very long.Please

>be

> > >patient with me as I am barely computer literate and have come to

> > >this site feeling desperate.I am 29 years old and have had saline

> > >implants for the past 7 years.Before the implants I was definately

> > >overly active.Almost immediately after recieving the implants I

> > >began to feel really tired all the time.I am not the type of

>person

> > >to see a doctor frequently, in fact I do not even have a family

> > >doctor.Immediatly after surgery I experienced numbness in my arms

> > >and hands that has continued to come and go.My right breast began

>to

> > >noticably harden about 6 months after getting implants.As time

>went

> > >on I also started have sharp chest and rib pain.Muscles on my

>entire

> > >upper left side feel tight.If I lift or move the wrong way I am

> > >often left with debilatating neck and back pain that has lasted

>for

> > >as long as a week leaving me bed ridden.My joints are incrediably

> > >sore and stiff.My muscles are weak.I have swollen lymph nodes in

>my

> > >neck and underarms.My memory is terrible and quite often I can not

> > >remember what has happened the day before.One implant is noticably

> > >higher than the other and seems to continue to climb upwards.I

>pick

> > >up every cold and flu that comes around.Even after hours of

> > >ininterupted sleep, I am never refreshed.I also have frequent head

> > >aches.I was never sick before the implants.I have for a long time

> > >attributed my poor health to the implants but have been too

> > >embarassed to see a doctor.I have decided now to do so as I am

> > >frequently too tired to function.I am also terrified of having

> > >another attack that leaves me stuck in bed crying in pain.My

> > >questions are as follows;

> > >

> > >1.Is removal covered in Ontario, Canada?Also is any reconstructive

> > >surgery to remove excess skin ect covered?

> > >

> > >

> > >2.Is there information I can print out to show my doctor linking

>my

> > >symptoms to the implants?

> > >

> > >3.My implants are above muscle 375cc, will I be deformed after

> > >removal?

> > >

> > >4. What have your personal experiences been after having implants

> > >removed?Has your health returned to normal?

> > >

> > >5.What is the recovery time needed?

> > >

> > >6.Is there a site where I can view realistic pictures of explants

> > >without replacement?

> > >

> > >7.Are there things I can do now to help my body prepare for

>surgery?

> > >

> > >8.Are there things I can do now to feel better before the implants

> > >are removed?

> > >

> > >Thank you all in advance.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >Opinions expressed are NOT meant to take the place of advice

>given by

> > >licensed health care professionals. Consult your physician or

>licensed

> > >health care professional before commencing any medical treatment.

> > >

> > > " Do not let either the medical authorities or the politicians

>mislead you.

> > >Find out what the facts are, and make your own decisions about

>how to live

> > >a happy life and how to work for a better world. " - Linus

>ing,

> > >two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> > >

> > >

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Yes, she is a wonderful lady. I am glad you connected. I am sure she can

help you a lot.

Lynda

At 04:04 PM 10/17/2005, you wrote:

>Thank you!I spoke to her today already.What a truly lovely, understanding

>sweet soul.She asked that I also thank you for referring me.

>

>Lynda <coss@...> wrote:

>She is one of the original breast implant group leaders from Canada, I met

>her many, many years ago. I have been involved for 15 years. There are

>several Canadian support groups.

>

>Lynda

>

>At 02:24 PM 10/17/2005, you wrote:

> >

> > > >Hi,

> > > >I will apologize in advance for this post being very long.Please

> >be

> > > >patient with me as I am barely computer literate and have come to

> > > >this site feeling desperate.I am 29 years old and have had saline

> > > >implants for the past 7 years.Before the implants I was definately

> > > >overly active.Almost immediately after recieving the implants I

> > > >began to feel really tired all the time.I am not the type of

> >person

> > > >to see a doctor frequently, in fact I do not even have a family

> > > >doctor.Immediatly after surgery I experienced numbness in my arms

> > > >and hands that has continued to come and go.My right breast began

> >to

> > > >noticably harden about 6 months after getting implants.As time

> >went

> > > >on I also started have sharp chest and rib pain.Muscles on my

> >entire

> > > >upper left side feel tight.If I lift or move the wrong way I am

> > > >often left with debilatating neck and back pain that has lasted

> >for

> > > >as long as a week leaving me bed ridden.My joints are incrediably

> > > >sore and stiff.My muscles are weak.I have swollen lymph nodes in

> >my

> > > >neck and underarms.My memory is terrible and quite often I can not

> > > >remember what has happened the day before.One implant is noticably

> > > >higher than the other and seems to continue to climb upwards.I

> >pick

> > > >up every cold and flu that comes around.Even after hours of

> > > >ininterupted sleep, I am never refreshed.I also have frequent head

> > > >aches.I was never sick before the implants.I have for a long time

> > > >attributed my poor health to the implants but have been too

> > > >embarassed to see a doctor.I have decided now to do so as I am

> > > >frequently too tired to function.I am also terrified of having

> > > >another attack that leaves me stuck in bed crying in pain.My

> > > >questions are as follows;

> > > >

> > > >1.Is removal covered in Ontario, Canada?Also is any reconstructive

> > > >surgery to remove excess skin ect covered?

> > > >

> > > >

> > > >2.Is there information I can print out to show my doctor linking

> >my

> > > >symptoms to the implants?

> > > >

> > > >3.My implants are above muscle 375cc, will I be deformed after

> > > >removal?

> > > >

> > > >4. What have your personal experiences been after having implants

> > > >removed?Has your health returned to normal?

> > > >

> > > >5.What is the recovery time needed?

> > > >

> > > >6.Is there a site where I can view realistic pictures of explants

> > > >without replacement?

> > > >

> > > >7.Are there things I can do now to help my body prepare for

> >surgery?

> > > >

> > > >8.Are there things I can do now to feel better before the implants

> > > >are removed?

> > > >

> > > >Thank you all in advance.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >Opinions expressed are NOT meant to take the place of advice

> >given by

> > > >licensed health care professionals. Consult your physician or

> >licensed

> > > >health care professional before commencing any medical treatment.

> > > >

> > > > " Do not let either the medical authorities or the politicians

> >mislead you.

> > > >Find out what the facts are, and make your own decisions about

> >how to live

> > > >a happy life and how to work for a better world. " - Linus

> >ing,

> > > >two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

> > > >

> > > >

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Hi Kim

I am glad that you found our site. Your symptoms are very very

similar to those suffered by many of us with implant autoimmune

sickness. I am glad that you will be seeing a doctor about removing

them. It is important to go to a plastic surgeon who has done many

explants and knows the importance of removing them properly. It

will be necessary to remove the capsule your body formed around the

implant as well as to remove the implant intact. The capsule can

contain toxins from pathogens, shed silicone particles, as well as

toxic metals that might have been in the silicone shell. I see that

Lynda has given you a name of someone you can contact in Canada.

Often, when

you go to see doctors,they will refuse to believe that your implants

are the problem. Many times bloodwork is normal despite feeling very

sick. Sometimes doctors will try to convince you that taking out

your implants will be a mistake and that you will be deformed if you

do. None of these things is true. A good ps can usually produce a

very satisfactory result.

My experience with explant was that it went well and I recovered

quickly with no complications. I started feeling better quickly

after explant. Some symptoms improved right away, and others I have

fought much longer. All in all I am significantly recovered. It is

hard to give someone a timeline when they will get well. It is very

variable. Some women notice improvements almost right away and feel

really good within weeks to months. Others may feel an initial

burst of wellness, followed by a return of symptoms but to a lesser

degree. Others may not notice anything right away. But eventually,

the vast majority of women get alot better, if not completely well.

Often women must also detox their bodies of candida and other

pathogens and toxins. This can be a gradual process. For many

women it is also important to change their diet to eating more raw

foods and cutting out refined sugar, baked goods and convenience

food, and even eating organic if they can afford it. There is alot

of information on this site pertaining to healing modalities. Right

now you can work on improving your diet, drinking lots of water to

help detox, and working on eliminating yeast, etc. These are

helpful now, but many women don't notice alot of improvement until

they are explanted. After explant, we really recommend a more

concerted effort to detox. Feel free to ask any other questions you

might have.

hugs, kathy

--- In , " kimc7622 " <kimc7622@y...>

wrote:

>

> Hi,

> I will apologize in advance for this post being very long.Please

be

> patient with me as I am barely computer literate and have come to

> this site feeling desperate.I am 29 years old and have had saline

> implants for the past 7 years.Before the implants I was definately

> overly active.Almost immediately after recieving the implants I

> began to feel really tired all the time.I am not the type of

person

> to see a doctor frequently, in fact I do not even have a family

> doctor.Immediatly after surgery I experienced numbness in my arms

> and hands that has continued to come and go.My right breast began

to

> noticably harden about 6 months after getting implants.As time

went

> on I also started have sharp chest and rib pain.Muscles on my

entire

> upper left side feel tight.If I lift or move the wrong way I am

> often left with debilatating neck and back pain that has lasted

for

> as long as a week leaving me bed ridden.My joints are incrediably

> sore and stiff.My muscles are weak.I have swollen lymph nodes in

my

> neck and underarms.My memory is terrible and quite often I can not

> remember what has happened the day before.One implant is noticably

> higher than the other and seems to continue to climb upwards.I

pick

> up every cold and flu that comes around.Even after hours of

> ininterupted sleep, I am never refreshed.I also have frequent head

> aches.I was never sick before the implants.I have for a long time

> attributed my poor health to the implants but have been too

> embarassed to see a doctor.I have decided now to do so as I am

> frequently too tired to function.I am also terrified of having

> another attack that leaves me stuck in bed crying in pain.My

> questions are as follows;

>

> 1.Is removal covered in Ontario, Canada?Also is any reconstructive

> surgery to remove excess skin ect covered?

>

>

> 2.Is there information I can print out to show my doctor linking

my

> symptoms to the implants?

>

> 3.My implants are above muscle 375cc, will I be deformed after

> removal?

>

> 4. What have your personal experiences been after having implants

> removed?Has your health returned to normal?

>

> 5.What is the recovery time needed?

>

> 6.Is there a site where I can view realistic pictures of explants

> without replacement?

>

> 7.Are there things I can do now to help my body prepare for

surgery?

>

> 8.Are there things I can do now to feel better before the implants

> are removed?

>

> Thank you all in advance.

>

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Not much to add to Kathy's response except, (IMO) from my own

experience, get exactly what you want done in writing, so there is no

confusion on your or the dr's part on what and how you want your

surgery done. Example: Explantation EnBloc w/complete capsulectomy.

Just a helpful hint that I learned from all the experienced women on

this site and from not having done exactly what I wanted in my own

surgery.

Hope this helps you...good luck on your journey to health!

Cheryl

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