Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 Hmmm....come to think of it, maybe mine's not either... To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, May 1, 2012 9:19 AM Subject: Re: I give up...... My son hisses when he's mad, but he's not pretending to be a cat To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, May 1, 2012 6:34 AM Subject: Re: I give up...... My ten yr old boy with PDD-NOS has been obsessed with cats since a year old. Until this year his room was covered in cat pix and posters. He keeps all his birthday cards, etc with cats on them. His favorite stuffy was a cat. Now he has advanced to having an ocelot poster on his wall! But he meows and hisses, still. To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 Sara, I would totally look into have him allergy tested via blood and stool for sure (posssibly skin prick too). Two of my four brothers were violent head bangers, late talkers and cried constantly until they were about 4. My mom had them tested and sure enough, they had quite a few allergies. The more violent head banger also had sensory issues that seemed to get better with a stricter diet. He is now very successful in his job and family but has quite a few " quirks " , although none that interfere with his daily life. My other brother has not been strict with his diet and has devloped diverticulitis unfortunately. My son and I also have food allergies but it presents differently in us. This may also be the reason your son is rubbing his nose because of allergies. Someone mentioned hypoallergenic formula but truly nothing can be hypoallergenic because various people react to different things. If the formula is dairy based, he could have a dairy intolerance and not be able to handle it. If it's soy or corn based, same thing. The best way to do it is use the allergy tests as tools and eliminate those things from his diet. You may want to join the yahoo group " foodlab " . Everyone on there has a story to tell and some may be similar to yours. On a different note, cranial sacral therapy (or even just basic chiropractic manipulation) can do wonders for some people. My aspie/sensory ds and I have received it for the past few years and really has helped us. Best, > > >Poor Colton. The world is just too much for him. Sensory overload. That is why he is happy in his crib all alone. > > > >Sent from my iPhone > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 Well the formula is for my 3 month old, he has a milk allergy. But as far as my other son he is 20 months and he eats normal food.... Sometimes. Sometimes he eats baby food because he has a hard time chewing. But all the dr. he has seen they all think he def has a sensory issue. But Coltons entire diet consists of like 5 things. Because he just completely hates food now. And will only eat gluten free steel cut oatmeal. Brown rice, and gluten free pasta. ------------------------------ >Sara, >I would totally look into have him allergy tested via blood and stool for sure (posssibly skin prick too). Two of my four brothers were violent head bangers, late talkers and cried constantly until they were about 4. My mom had them tested and sure enough, they had quite a few allergies. The more violent head banger also had sensory issues that seemed to get better with a stricter diet. He is now very successful in his job and family but has quite a few " quirks " , although none that interfere with his daily life. My other brother has not been strict with his diet and has devloped diverticulitis unfortunately. > >My son and I also have food allergies but it presents differently in us. This may also be the reason your son is rubbing his nose because of allergies. Someone mentioned hypoallergenic formula but truly nothing can be hypoallergenic because various people react to different things. If the formula is dairy based, he could have a dairy intolerance and not be able to handle it. If it's soy or corn based, same thing. The best way to do it is use the allergy tests as tools and eliminate those things from his diet. You may want to join the yahoo group " foodlab " . Everyone on there has a story to tell and some may be similar to yours. > >On a different note, cranial sacral therapy (or even just basic chiropractic manipulation) can do wonders for some people. My aspie/sensory ds and I have received it for the past few years and really has helped us. > >Best, > > > >> >> >Poor Colton. The world is just too much for him. Sensory overload. That is why he is happy in his crib all alone. >> > >> >Sent from my iPhone >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 I have thought about doing that but he shares a room with his older brother. So there is no way I could take everything out and there is a lot of stuff that he could get into on the changing table. Its hard only havin 3 bedrooms and 4 kids. 3 of which are boys. I cant wait to move, ugh!! ------------------------------ >I would try a quite room (not in his crib) with very limited toys, colors, items, etc for periods of time. Â As soon as he is overwhelmed, I would move him to his crib. Â I would try a compression vest. Â I would try a ball pit or a trampoline. Â Does he have an OT? Â How many things are in his room? Maybe if you could take everything out but just a ball pit or a 1 person trampoline or some balls or something or even a swing? Â Just keep it very simple and see if he can be calm in those environments. Â I would try to add myself into the mix for short periods of time but don't make major demands on him. Â Just be with him.... >Lori > >Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! > >https://www.facebook.com/BoycottMovie21JumpStreetForAutism > > > >> > >> >No, ha ha, no meowing! Thank goodness! > >> > > >> > > >> > > >> > > >> > > >> > > >> >________________________________ > >> > > >> >To: " autism-aspergers " <autism-aspergers > > >> >Sent: Friday, April 27, 2012 3:22 PM > >> >Subject: Re: I give up...... > >> > > >> > > >> > > >> >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > >> > > >> > > >> >________________________________ > >> > From: R. Tucker < > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up......> >> >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over>>>________________________________> From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 A friend of mine has a son who is I think about 8 and he plays with his logos in the closet. To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up......> >> >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over>>>________________________________> From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 I need some help before I lose my mind. My 26 yr. old son is having a lot of trouble sleeping.Meletonin never worked for him. He has taken Trazadone for years but it seems to have stopped working. The doc has tried a new med that has worked for a lot of people. Didn't work for my son. The doc also tried Lunesta. No help. He hasn't tried Ambien but said he doesn't want to give it to my son. His insommnia is horrible. He is getting very depressed. He feels hopeless.He never knows when he will sleep. It seems the doc has given up on him. He told me to put my son in a facility here in Orlando. I checked into it to see if he could be there a short while until he gets the sleep cycle back. The place was mostly scitsophrenics (sorry, don't know how to spell it and spell check wasnt a big help tonight.) So, there was no way my son was going in there.My husband also suggested the same thing as the doctor. My husband said we can't do anything with our friends because my son is 24/7. My son has no one else. And he isn't 24/7. He can live on his own. He just needs help. We are supposed to go on a month long cruise in October and I'm already dreddng it. I was afraid to tell my husband no. It's not even a place I want to go to but our friends are going and that was enough for my husband. Back to the subject. Does anyone know if they would be able to help him if I took him to the ER? We spoke with his primary care doctor but he said that's the phsyciatrist's job. I am supposed to leave Orlando Tuesday of next week that also makes me crazy.Thanks.Eileen To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up......> >> >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over>>>________________________________> From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Has he tried Klonipan (not sure of the spelling)? It is the only thing that helps my grown daughter sleep. Also, I understand your fears of leaving him on his own while you are away. Is there a family member that can check in on him? There are also caretakers for hire that would stay with him, part-time or full-time. (care.com) To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 12:59 AM Subject: Re: I give up...... I need some help before I lose my mind. My 26 yr. old son is having a lot of trouble sleeping.Meletonin never worked for him. He has taken Trazadone for years but it seems to have stopped working. The doc has tried a new med that has worked for a lot of people. Didn't work for my son. The doc also tried Lunesta. No help. He hasn't tried Ambien but said he doesn't want to give it to my son. His insommnia is horrible. He is getting very depressed. He feels hopeless.He never knows when he will sleep. It seems the doc has given up on him. He told me to put my son in a facility here in Orlando. I checked into it to see if he could be there a short while until he gets the sleep cycle back. The place was mostly scitsophrenics (sorry, don't know how to spell it and spell check wasnt a big help tonight.) So, there was no way my son was going in there.My husband also suggested the same thing as the doctor. My husband said we can't do anything with our friends because my son is 24/7. My son has no one else. And he isn't 24/7. He can live on his own. He just needs help. We are supposed to go on a month long cruise in October and I'm already dreddng it. I was afraid to tell my husband no. It's not even a place I want to go to but our friends are going and that was enough for my husband. Back to the subject. Does anyone know if they would be able to help him if I took him to the ER? We spoke with his primary care doctor but he said that's the phsyciatrist's job. I am supposed to leave Orlando Tuesday of next week that also makes me crazy.Thanks.Eileen To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Has your Psych dr tried Clonidine? Just checking.... To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 7:29 AM Subject: Re: I give up...... Has he tried Klonipan (not sure of the spelling)? It is the only thing that helps my grown daughter sleep. Also, I understand your fears of leaving him on his own while you are away. Is there a family member that can check in on him? There are also caretakers for hire that would stay with him, part-time or full-time. (care.com) To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 12:59 AM Subject: Re: I give up...... I need some help before I lose my mind. My 26 yr. old son is having a lot of trouble sleeping.Meletonin never worked for him. He has taken Trazadone for years but it seems to have stopped working. The doc has tried a new med that has worked for a lot of people. Didn't work for my son. The doc also tried Lunesta. No help. He hasn't tried Ambien but said he doesn't want to give it to my son. His insommnia is horrible. He is getting very depressed. He feels hopeless.He never knows when he will sleep. It seems the doc has given up on him. He told me to put my son in a facility here in Orlando. I checked into it to see if he could be there a short while until he gets the sleep cycle back. The place was mostly scitsophrenics (sorry, don't know how to spell it and spell check wasnt a big help tonight.) So, there was no way my son was going in there.My husband also suggested the same thing as the doctor. My husband said we can't do anything with our friends because my son is 24/7. My son has no one else. And he isn't 24/7. He can live on his own. He just needs help. We are supposed to go on a month long cruise in October and I'm already dreddng it. I was afraid to tell my husband no. It's not even a place I want to go to but our friends are going and that was enough for my husband. Back to the subject. Does anyone know if they would be able to help him if I took him to the ER? We spoke with his primary care doctor but he said that's the phsyciatrist's job. I am supposed to leave Orlando Tuesday of next week that also makes me crazy.Thanks.Eileen To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Yes, he has tried Clonidine. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 8:33 AM Subject: Re: I give up...... Has your Psych dr tried Clonidine? Just checking.... To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 7:29 AM Subject: Re: I give up...... Has he tried Klonipan (not sure of the spelling)? It is the only thing that helps my grown daughter sleep. Also, I understand your fears of leaving him on his own while you are away. Is there a family member that can check in on him? There are also caretakers for hire that would stay with him, part-time or full-time. (care.com) From: E dillon To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 12:59 AM Subject: Re: I give up...... I need some help before I lose my mind. My 26 yr. old son is having a lot of trouble sleeping.Meletonin never worked for him. He has taken Trazadone for years but it seems to have stopped working. The doc has tried a new med that has worked for a lot of people. Didn't work for my son. The doc also tried Lunesta. No help. He hasn't tried Ambien but said he doesn't want to give it to my son. His insommnia is horrible. He is getting very depressed. He feels hopeless.He never knows when he will sleep. It seems the doc has given up on him. He told me to put my son in a facility here in Orlando. I checked into it to see if he could be there a short while until he gets the sleep cycle back. The place was mostly scitsophrenics (sorry, don't know how to spell it and spell check wasnt a big help tonight.) So, there was no way my son was going in there.My husband also suggested the same thing as the doctor. My husband said we can't do anything with our friends because my son is 24/7. My son has no one else. And he isn't 24/7. He can live on his own. He just needs help. We are supposed to go on a month long cruise in October and I'm already dreddng it. I was afraid to tell my husband no. It's not even a place I want to go to but our friends are going and that was enough for my husband. Back to the subject. Does anyone know if they would be able to help him if I took him to the ER? We spoke with his primary care doctor but he said that's the phsyciatrist's job. I am supposed to leave Orlando Tuesday of next week that also makes me crazy.Thanks.Eileen To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 yeah that sounds like Colton, lol To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 12:34 AM Subject: Re: I give up...... A friend of mine has a son who is I think about 8 and he plays with his logos in the closet. To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Well I don't leave him in there for a long time but like in the mornings when he wakes up if you go in there to get him he wants nothin to do with you. So I always just walk out and leave him in there to play for about an hour and come back to see if he's ready to come out and some times he is and sometimes he isn't. And periodically during the day if he is really stimming way to much or having a lot of meltdowns I will put him in there and he immediately is happy. and I'll leave him in there for about an hour and come check on him to see if he's ready to come out. His bed has absolutely nothing in it except a sheet. Which is blue. For the most part he is outside of his crib, but he seems to be so much happier in his crib but I don't like putting him in there cause then I feel like a bad mom. But that is where he is happy. To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up......> >> >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over>>>________________________________> From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Have you tried just taking him to a different Dr. for a second opinion? I think I would try that. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 12:59 AM Subject: Re: I give up...... I need some help before I lose my mind. My 26 yr. old son is having a lot of trouble sleeping.Meletonin never worked for him. He has taken Trazadone for years but it seems to have stopped working. The doc has tried a new med that has worked for a lot of people. Didn't work for my son. The doc also tried Lunesta. No help. He hasn't tried Ambien but said he doesn't want to give it to my son. His insommnia is horrible. He is getting very depressed. He feels hopeless.He never knows when he will sleep. It seems the doc has given up on him. He told me to put my son in a facility here in Orlando. I checked into it to see if he could be there a short while until he gets the sleep cycle back. The place was mostly scitsophrenics (sorry, don't know how to spell it and spell check wasnt a big help tonight.) So, there was no way my son was going in there.My husband also suggested the same thing as the doctor. My husband said we can't do anything with our friends because my son is 24/7. My son has no one else. And he isn't 24/7. He can live on his own. He just needs help. We are supposed to go on a month long cruise in October and I'm already dreddng it. I was afraid to tell my husband no. It's not even a place I want to go to but our friends are going and that was enough for my husband. Back to the subject. Does anyone know if they would be able to help him if I took him to the ER? We spoke with his primary care doctor but he said that's the phsyciatrist's job. I am supposed to leave Orlando Tuesday of next week that also makes me crazy.Thanks.Eileen To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Don't feel guilt. I had to do that too with Chase. He was so unhappy in the morning. I remember being sad every morning. Most kids want to see you in the am...not Chase-he use to scream!Sent from my iPhone Well I don't leave him in there for a long time but like in the mornings when he wakes up if you go in there to get him he wants nothin to do with you. So I always just walk out and leave him in there to play for about an hour and come back to see if he's ready to come out and some times he is and sometimes he isn't. And periodically during the day if he is really stimming way to much or having a lot of meltdowns I will put him in there and he immediately is happy. and I'll leave him in there for about an hour and come check on him to see if he's ready to come out. His bed has absolutely nothing in it except a sheet. Which is blue. For the most part he is outside of his crib, but he seems to be so much happier in his crib but I don't like putting him in there cause then I feel like a bad mom. But that is where he is happy. To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up......>> >>>> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!)>>>>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet.>>>>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet.>>>>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming....>>>>Lori>>>>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism!>>https://www.facebook.com/BoycottMovie21JumpStreetForAutism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Yep that is how Colton is too. He's ok til I open the door then he immediately starts rocking and looks straight down and I put my hands out to grab him and refuses to even look at me. Sometime he will even crawl to the back of the crib (cause I'm only 5 foot) so that I can't reach him. So I just leave him there and he goes back to doing what ever he was doin. It's kinda creepy though because he sits in there and laughs like someone else is in the room with him. It's like a hard belly laugh and it's kinda eerie. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 2:08 PM Subject: Re: I give up...... Don't feel guilt. I had to do that too with Chase. He was so unhappy in the morning. I remember being sad every morning. Most kids want to see you in the am...not Chase-he use to scream!Sent from my iPhone Well I don't leave him in there for a long time but like in the mornings when he wakes up if you go in there to get him he wants nothin to do with you. So I always just walk out and leave him in there to play for about an hour and come back to see if he's ready to come out and some times he is and sometimes he isn't. And periodically during the day if he is really stimming way to much or having a lot of meltdowns I will put him in there and he immediately is happy. and I'll leave him in there for about an hour and come check on him to see if he's ready to come out. His bed has absolutely nothing in it except a sheet. Which is blue. For the most part he is outside of his crib, but he seems to be so much happier in his crib but I don't like putting him in there cause then I feel like a bad mom. But that is where he is happy. To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up......>> >>>> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!)>>>>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet.>>>>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet.>>>>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming....>>>>Lori>>>>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism!>>https://www.facebook.com/BoycottMovie21JumpStreetForAutism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 I will be doing that when we return to St. Louis.Thanks,Eileen To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 1:54 PM Subject: Re: I give up...... Have you tried just taking him to a different Dr. for a second opinion? I think I would try that. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 12:59 AM Subject: Re: I give up...... I need some help before I lose my mind. My 26 yr. old son is having a lot of trouble sleeping.Meletonin never worked for him. He has taken Trazadone for years but it seems to have stopped working. The doc has tried a new med that has worked for a lot of people. Didn't work for my son. The doc also tried Lunesta. No help. He hasn't tried Ambien but said he doesn't want to give it to my son. His insommnia is horrible. He is getting very depressed. He feels hopeless.He never knows when he will sleep. It seems the doc has given up on him. He told me to put my son in a facility here in Orlando. I checked into it to see if he could be there a short while until he gets the sleep cycle back. The place was mostly scitsophrenics (sorry, don't know how to spell it and spell check wasnt a big help tonight.) So, there was no way my son was going in there.My husband also suggested the same thing as the doctor. My husband said we can't do anything with our friends because my son is 24/7. My son has no one else. And he isn't 24/7. He can live on his own. He just needs help. We are supposed to go on a month long cruise in October and I'm already dreddng it. I was afraid to tell my husband no. It's not even a place I want to go to but our friends are going and that was enough for my husband. Back to the subject. Does anyone know if they would be able to help him if I took him to the ER? We spoke with his primary care doctor but he said that's the phsyciatrist's job. I am supposed to leave Orlando Tuesday of next week that also makes me crazy.Thanks.Eileen To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Wow...brings back memories..Chase had long conversations with himself -babbling, humming, etc in his crib.He would scream at us if he didn't want to leave the safety of his crib. He was in his crib until he was 4 1/2. Only crawled out ( fell out actually) one time and that was when he was 3!Sent from my iPhone Yep that is how Colton is too. He's ok til I open the door then he immediately starts rocking and looks straight down and I put my hands out to grab him and refuses to even look at me. Sometime he will even crawl to the back of the crib (cause I'm only 5 foot) so that I can't reach him. So I just leave him there and he goes back to doing what ever he was doin. It's kinda creepy though because he sits in there and laughs like someone else is in the room with him. It's like a hard belly laugh and it's kinda eerie. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, May 3, 2012 2:08 PM Subject: Re: I give up...... Don't feel guilt. I had to do that too with Chase. He was so unhappy in the morning. I remember being sad every morning. Most kids want to see you in the am...not Chase-he use to scream!Sent from my iPhone Well I don't leave him in there for a long time but like in the mornings when he wakes up if you go in there to get him he wants nothin to do with you. So I always just walk out and leave him in there to play for about an hour and come back to see if he's ready to come out and some times he is and sometimes he isn't. And periodically during the day if he is really stimming way to much or having a lot of meltdowns I will put him in there and he immediately is happy. and I'll leave him in there for about an hour and come check on him to see if he's ready to come out. His bed has absolutely nothing in it except a sheet. Which is blue. For the most part he is outside of his crib, but he seems to be so much happier in his crib but I don't like putting him in there cause then I feel like a bad mom. But that is where he is happy. To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up......>> >>>> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!)>>>>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet.>>>>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet.>>>>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming....>>>>Lori>>>>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism!>>https://www.facebook.com/BoycottMovie21JumpStreetForAutism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 We all need somewhere to hide sometimes. If he is happy, how can it possibly make you a bad mother?  Well I don't leave him in there for a long time but like in the mornings when he wakes up if you go in there to get him he wants nothin to do with you. So I always just walk out and leave him in there to play for about an hour and come back to see if he's ready to come out and some times he is and sometimes he isn't. And periodically during the day if he is really stimming way to much or having a lot of meltdowns I will put him in there and he immediately is happy. and I'll leave him in there for about an hour and come check on him to see if he's ready to come out. His bed has absolutely nothing in it except a sheet. Which is blue. For the most part he is outside of his crib, but he seems to be so much happier in his crib but I don't like putting him in there cause then I feel like a bad mom. But that is where he is happy. From: Muehleisen Family To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up......  What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful?  http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3  To begin with, maybe find a large box. See if he will pay in that.  That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.      Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -------Original Message-------  From: Lori Yurtin Date: 5/1/2012 12:25:39 PM To: autism-aspergers Subject: Re: I give up......   Poor Colton.  The world is just too much for him.  Sensory overload.  That is why he is happy in his crib all alone. Sent from my iPhone On May 1, 2012, at 12:14 PM, sara degeer wrote:  Wow, Well Colton has been getting worse with the head banging. Just in 3 weeks he's had 2 black eyes and the giant knot on his forehead. I'm so worried about him getting seriously injured because I know he's not. I really worry about his face and his teeth. His teeth are so perfect. Colton doesn't chew his tongue but he sucks on it. I personally because of my anxiety I chew the inside of my mouth to the point that it bleeds. I hate when I get like that. Since this past weekend Colton has been absolutely awful. He has been in bed for almost 2 days because every time I let him out he is so violent and just walks around screaming and crying. But when he's in his crib all alone he's all smiles. But he's happy, I don't know what to do. From: "sandradaniels2001@..." To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up......  My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself.  Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next day Sent from my HTC smartphone on the Now Network from Sprint! ----- Reply message ----- From: "Ashton" To: <autism-aspergers > Subject: I give up...... Date: Sun, Apr 29, 2012 11:48 pm  My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ >On Sat, Apr 28, 2012 9:45 AM EDT R. Tucker wrote: > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> From: sara degeer >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> From: R. Tucker >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> From: sara degeer >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE:  He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> From: Lori Yurtin >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth.  He would stare at bright lights, trees moving and anything that spun.  He never turned to our voices like his twin sister did from a very early age.  I told his Ped that he had autism during a 7/8week well care visit!  Yes, things got worse before they got better.  Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head.  We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back.  Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset.  He would also rub the back of his hand against his lips.  Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >>--- On Thu, 4/26/12, sara degeer wrote: >> >> >>>From: sara degeer >>>Subject: Re: I give up...... >>>To: "autism-aspergers " <autism-aspergers > >>>Date: Thursday, April 26, 2012, 12:07 PM >>> >>> >>> >>>Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really  paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >> everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >>> >>> >>> >>>________________________________ >>> From: Ashton S >>>To: autism-aspergers >>>Sent: Wednesday, April 25, 2012 6:10 PM >>>Subject: Re: I give up...... >>> >>> >>> >>>Hi Sara, >>> >>>You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >>> >>>I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >>> >>>My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >>> >>>My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." >>> >>>Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >>> >>>Ashton (Aspie Mom with 2 Autistic sons) >>> >>> >>>On Tue, Apr 24, 2012 at 10:48 AM, sara degeer wrote: >>> >>> >>> >>>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can >> receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >>> >>> >>> >>> >>>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >>> >>> >>> >> >> >> >> >> >> >>  Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol ------------------------------ On Sat, Apr 28, 2012 9:45 AM EDT R. Tucker wrote: >No, ha ha, no meowing! Thank goodness! > > > > > > >________________________________ > From: sara degeer >To: "autism-aspergers " <autism-aspergers > >Sent: Friday, April 27, 2012 3:22 PM >Subject: Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > From: R. Tucker <  No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1913 / Virus Database: 2425/4976 - Release Date: 05/03/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Agreed! ;)Sent from my iPhone We all need somewhere to hide sometimes. If he is happy, how can it possibly make you a bad mother? Well I don't leave him in there for a long time but like in the mornings when he wakes up if you go in there to get him he wants nothin to do with you. So I always just walk out and leave him in there to play for about an hour and come back to see if he's ready to come out and some times he is and sometimes he isn't. And periodically during the day if he is really stimming way to much or having a lot of meltdowns I will put him in there and he immediately is happy. and I'll leave him in there for about an hour and come check on him to see if he's ready to come out. His bed has absolutely nothing in it except a sheet. Which is blue. For the most part he is outside of his crib, but he seems to be so much happier in his crib but I don't like putting him in there cause then I feel like a bad mom. But that is where he is happy. From: Muehleisen Family To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -------Original Message------- From: Lori Yurtin Date: 5/1/2012 12:25:39 PM To: autism-aspergers Subject: Re: I give up...... Poor Colton. The world is just too much for him. Sensory overload. That is why he is happy in his crib all alone. Sent from my iPhone On May 1, 2012, at 12:14 PM, sara degeer wrote: Wow, Well Colton has been getting worse with the head banging. Just in 3 weeks he's had 2 black eyes and the giant knot on his forehead. I'm so worried about him getting seriously injured because I know he's not. I really worry about his face and his teeth. His teeth are so perfect. Colton doesn't chew his tongue but he sucks on it. I personally because of my anxiety I chew the inside of my mouth to the point that it bleeds. I hate when I get like that. Since this past weekend Colton has been absolutely awful. He has been in bed for almost 2 days because every time I let him out he is so violent and just walks around screaming and crying. But when he's in his crib all alone he's all smiles. But he's happy, I don't know what to do. From: "sandradaniels2001@..." To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 A bad mother wouldn't worry as much as you do. And, you need the break too! If you worry about spending time with him, maybe after things have calmed down, you could hang out in his room for part of the time he is in there. Just being in the same room might feel good? I think it is just like our older children chilling out in their rooms, my 9 year old loves to be in his room completely under the covers. I let him spend the time he needs like that. Like said, if he is happy and safe then you are doing things right. Be easy on yourself.Sent from my Verizon Wireless BlackBerrySender: autism-aspergers Date: Thu, 3 May 2012 16:09:54 -0700To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... Agreed! ;)Sent from my iPhone We all need somewhere to hide sometimes. If he is happy, how can itpossibly make you a bad mother? Well I don't leave him in there for a long timebut like in the mornings when he wakes up if you go inthere to get him he wants nothin to do with you. So Ialways just walk out and leave him in there to playfor about an hour and come back to see if he's readyto come out and some times he is and sometimes heisn't. And periodically during the day if he is reallystimming way to much or having a lot of meltdowns Iwill put him in there and he immediately is happy. andI'll leave him in there for about an hour and comecheck on him to see if he's ready to come out. His bedhas absolutely nothing in it except a sheet. Which isblue. For the most part he is outside of his crib, buthe seems to be so much happier in his crib but I don'tlike putting him in there cause then I feel like a badmom. But that is where he is happy. From:Muehleisen Family To:autism-aspergers Sent:Thursday, May 3, 2012 12:03 AMSubject:Re: I give up...... What about a small tent that hecould play quietly in. It wouldgive him the enclosed feeling heneeds and he could come and go ashe wanted to. I'd get one that'snot too big and not colorful(maybe a dark blue, not red). Putit in a room that you want himin. Little or no noise would bebest at first. If you get one thatyou can connect to others via atube, you would be able to add toit when he gets older. The problemmight be the super bight colors.Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find alarge box. See if he will pay inthat. That would be more sociallyacceptable that keeping him in thebed. I completely understand andagree with you. He needs to beable to live his life outside ofhis crib but if he is happy in hisbed then let him be in hiscrib...but it needs to be limitedso he can grow. However, if youtell the drs that you keep him inhis bed for extended periods, CPSmight get involved. None of thosepeople understand so it could bebad. Onlytwo defining forces have everoffered to die for you;JesusChrist and the AmericanSoldier.Onedied for your soul; the otherfor your freedom.-------OriginalMessage------- From: LoriYurtinDate:5/1/2012 12:25:39 PMTo: autism-aspergers Subject:Re: I giveup...... Poor Colton. The world isjust too much for him. Sensoryoverload. That is why he ishappy in his crib all alone.Sent from my iPhoneOn May 1, 2012, at 12:14 PM,sara degeer wrote: Wow, Well Colton hasbeen getting worse withthe head banging. 3 weeks he's had 2black eyes and the giantknot on his forehead.I'm so worried about himgetting seriouslyinjured because I knowhe's not. I really worryabout his face and histeeth. His teeth are soperfect. Colton doesn'tchew his tongue but hesucks on it. Ipersonally because of myanxiety I chew theinside of my mouth tothe point that itbleeds. I hate when Iget like that. Sincethis past weekend Coltonhas been absolutelyawful. He has been inbed for almost 2 daysbecause every time I lethim out he is so violentand just walks aroundscreaming and crying.But when he's in hiscrib all alone he's allsmiles. But he's happy,I don't know what to do.From:"sandradaniels2001@..."To:autism-aspergers Sent:Monday, April 30,2012 8:44 AMSubject:Re: I give up...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Sometimes we just have to not listen to the thoughts in our heads. I have two kids with AS. When they are going through a bad time, I don't just feel bad for them, I feel responsible as they inherited it from me. Getting depressed about it does no good for them or me. We just have to deal with life as it is and make the best of it. If we go blaming ourselves for things we can't change, we just make things worse. We can't always stop our thoughts, but we can choose to focus on doing what we can to make things work better. Life gets bad at times, but there are also good times as well. Perspective is important. If our kids are safe and happy, then things are much better than they could have been.  A bad mother wouldn't worry as much as you do. And, you need the break too! If you worry about spending time with him, maybe after things have calmed down, you could hang out in his room for part of the time he is in there. Just being in the same room might feel good? I think it is just like our older children chilling out in their rooms, my 9 year old loves to be in his room completely under the covers. I let him spend the time he needs like that. Like said, if he is happy and safe then you are doing things right. Be easy on yourself. Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 3 May 2012 16:09:54 -0700 To: autism-aspergers <autism-aspergers > ReplyTo: autism-aspergers Subject: Re: I give up......  Agreed!  Sent from my iPhone On May 3, 2012, at 4:03 PM, Riley wrote:  We all need somewhere to hide sometimes. If he is happy, how can it possibly make you a bad mother?  Well I don't leave him in there for a long time but like in the mornings when he wakes up if you go in there to get him he wants nothin to do with you. So I always just walk out and leave him in there to play for about an hour and come back to see if he's ready to come out and some times he is and sometimes he isn't. And periodically during the day if he is really stimming way to much or having a lot of meltdowns I will put him in there and he immediately is happy. and I'll leave him in there for about an hour and come check on him to see if he's ready to come out. His bed has absolutely nothing in it except a sheet. Which is blue. For the most part he is outside of his crib, but he seems to be so much happier in his crib but I don't like putting him in there cause then I feel like a bad mom. But that is where he is happy. From: Muehleisen Family To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up......  What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful?  http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3  To begin with, maybe find a large box. See if he will pay in that.  That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.      Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -------Original Message-------  From: Lori Yurtin Date: 5/1/2012 12:25:39 PM To: autism-aspergers Subject: Re: I give up......   Poor Colton.  The world is just too much for him.  Sensory overload.  That is why he is happy in his crib all alone. Sent from my iPhone On May 1, 2012, at 12:14 PM, sara degeer wrote:  Wow, Well Colton has been getting worse with the head banging. Just in 3 weeks he's had 2 black eyes and the giant knot on his forehead. I'm so worried about him getting seriously injured because I know he's not. I really worry about his face and his teeth. His teeth are so perfect. Colton doesn't chew his tongue but he sucks on it. I personally because of my anxiety I chew the inside of my mouth to the point that it bleeds. I hate when I get like that. Since this past weekend Colton has been absolutely awful. He has been in bed for almost 2 days because every time I let him out he is so violent and just walks around screaming and crying. But when he's in his crib all alone he's all smiles. But he's happy, I don't know what to do. From: "sandradaniels2001@..." To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up......  No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1913 / Virus Database: 2425/4976 - Release Date: 05/03/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Listen- if it keeps him safe- do what works- and listen to your heart and what he needs.I worked for our cps- Dcf- Connecticut- I don't know where you live but no social worker in their right mind would remove a kid for a mother keeping him safe! There's no law here against keeping a young child in a crib too long- he's fed? Changed? Omg don't worry about cps- even the crappy ones don't want your child! There's no where to put them! I say that but honestly- unless he's sitting in poop for two days or not fed- keep your son safe!If he were my child- and I'm not telling you to walk down my path- id keep him there- but contact a sensory based OT to help you find out what is triggering him! He could hear a noise like your frige running that is so much louder to these kids.My son is 11. Through the years I've let others talk me into "pushing"Him- giving in against my better judgement is the only regret I have in my raising him. Now? I listen to his needs- whether it's for space or quiet or down time- and I feelBetter- he feels better and life is happier for my entire family!Sent from my iPhone Agreed! ;)Sent from my iPhone We all need somewhere to hide sometimes. If he is happy, how can it possibly make you a bad mother? Well I don't leave him in there for a long time but like in the mornings when he wakes up if you go in there to get him he wants nothin to do with you. So I always just walk out and leave him in there to play for about an hour and come back to see if he's ready to come out and some times he is and sometimes he isn't. And periodically during the day if he is really stimming way to much or having a lot of meltdowns I will put him in there and he immediately is happy. and I'll leave him in there for about an hour and come check on him to see if he's ready to come out. His bed has absolutely nothing in it except a sheet. Which is blue. For the most part he is outside of his crib, but he seems to be so much happier in his crib but I don't like putting him in there cause then I feel like a bad mom. But that is where he is happy. From: Muehleisen Family To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -------Original Message------- From: Lori Yurtin Date: 5/1/2012 12:25:39 PM To: autism-aspergers Subject: Re: I give up...... Poor Colton. The world is just too much for him. Sensory overload. That is why he is happy in his crib all alone. Sent from my iPhone On May 1, 2012, at 12:14 PM, sara degeer wrote: Wow, Well Colton has been getting worse with the head banging. Just in 3 weeks he's had 2 black eyes and the giant knot on his forehead. I'm so worried about him getting seriously injured because I know he's not. I really worry about his face and his teeth. His teeth are so perfect. Colton doesn't chew his tongue but he sucks on it. I personally because of my anxiety I chew the inside of my mouth to the point that it bleeds. I hate when I get like that. Since this past weekend Colton has been absolutely awful. He has been in bed for almost 2 days because every time I let him out he is so violent and just walks around screaming and crying. But when he's in his crib all alone he's all smiles. But he's happy, I don't know what to do. From: "sandradaniels2001@..." < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012  you might give the melatonin another try our doc says to take 1mg about 5pm and then to take a larger pill about an hour before bed the extra one early triggers the body like natural light does does he get exercise? some vigorous exercise mid afternoon might help also turn off all things that have little lights or cover the lights plays with your brain no TV or computer about an hour before bed helps also good luck no sleep sucks and make arrangements for someone to check on your son go on the trip have a good time and recharge your energy and your relationship with hubby both are important Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Agreed! What calms a child and a parent- do it! We are all good parents, that is why this is so hard. If we were bad parents we wouldn't care.Sent from my Verizon Wireless BlackBerrySender: autism-aspergers Date: Thu, 3 May 2012 19:51:24 -0400To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... Listen- if it keeps him safe- do what works- and listen to your heart and what he needs.I worked for our cps- Dcf- Connecticut- I don't know where you live but no social worker in their right mind would remove a kid for a mother keeping him safe! There's no law here against keeping a young child in a crib too long- he's fed? Changed? Omg don't worry about cps- even the crappy ones don't want your child! There's no where to put them! I say that but honestly- unless he's sitting in poop for two days or not fed- keep your son safe!If he were my child- and I'm not telling you to walk down my path- id keep him there- but contact a sensory based OT to help you find out what is triggering him! He could hear a noise like your frige running that is so much louder to these kids.My son is 11. Through the years I've let others talk me into "pushing"Him- giving in against my better judgement is the only regret I have in my raising him. Now? I listen to his needs- whether it's for space or quiet or down time- and I feelBetter- he feels better and life is happier for my entire family!Sent from my iPhone Agreed! ;)Sent from my iPhone We all need somewhere to hide sometimes. If he is happy, how can itpossibly make you a bad mother? Well I don't leave him in there for a long timebut like in the mornings when he wakes up if you go inthere to get him he wants nothin to do with you. So Ialways just walk out and leave him in there to playfor about an hour and come back to see if he's readyto come out and some times he is and sometimes heisn't. And periodically during the day if he is reallystimming way to much or having a lot of meltdowns Iwill put him in there and he immediately is happy. andI'll leave him in there for about an hour and comecheck on him to see if he's ready to come out. His bedhas absolutely nothing in it except a sheet. Which isblue. For the most part he is outside of his crib, buthe seems to be so much happier in his crib but I don'tlike putting him in there cause then I feel like a badmom. But that is where he is happy. From:Muehleisen Family To:autism-aspergers Sent:Thursday, May 3, 2012 12:03 AMSubject:Re: I give up...... What about a small tent that hecould play quietly in. It wouldgive him the enclosed feeling heneeds and he could come and go ashe wanted to. I'd get one that'snot too big and not colorful(maybe a dark blue, not red). Putit in a room that you want himin. Little or no noise would bebest at first. If you get one thatyou can connect to others via atube, you would be able to add toit when he gets older. The problemmight be the super bight colors.Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find alarge box. See if he will pay inthat. That would be more sociallyacceptable that keeping him in thebed. I completely understand andagree with you. He needs to beable to live his life outside ofhis crib but if he is happy in hisbed then let him be in hiscrib...but it needs to be limitedso he can grow. However, if youtell the drs that you keep him inhis bed for extended periods, CPSmight get involved. None of thosepeople understand so it could bebad. Onlytwo defining forces have everoffered to die for you;JesusChrist and the AmericanSoldier.Onedied for your soul; the otherfor your freedom.-------OriginalMessage------- From: LoriYurtinDate:5/1/2012 12:25:39 PMTo: autism-aspergers Subject:Re: I giveup...... Poor Colton. The world isjust too much for him. Sensoryoverload. That is why he ishappy in his crib all alone.Sent from my iPhoneOn May 1, 2012, at 12:14 PM,sara degeer wrote: Wow, Well Colton hasbeen getting worse withthe head banging. 3 weeks he's had 2black eyes and the giantknot on his forehead.I'm so worried about himgetting seriouslyinjured because I knowhe's not. I really worryabout his face and histeeth. His teeth are soperfect. Colton doesn'tchew his tongue but hesucks on it. Ipersonally because of myanxiety I chew theinside of my mouth tothe point that itbleeds. I hate when Iget like that. Sincethis past weekend Coltonhas been absolutelyawful. He has been inbed for almost 2 daysbecause every time I lethim out he is so violentand just walks aroundscreaming and crying.But when he's in hiscrib all alone he's allsmiles. But he's happy,I don't know what to do.From:"sandradaniels2001@..."< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 My son told me when he was about 16 that he was afraid of the trash truck when he was little. He didn't show it. When we went to Florida when he was about 5, he wanted one of those alligator heads that all the trinket shops carried. We bought one. He also told me not too long ago it scared him at night. He never showed any fear or talked about it when he was little. Maybe he couldn't. I don't know. To: autism-aspergers Sent: Thursday, May 3, 2012 9:54 PM Subject: Re: I give up...... Agreed! What calms a child and a parent- do it! We are all good parents, that is why this is so hard. If we were bad parents we wouldn't care.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 3 May 2012 19:51:24 -0400To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... Listen- if it keeps him safe- do what works- and listen to your heart and what he needs.I worked for our cps- Dcf- Connecticut- I don't know where you live but no social worker in their right mind would remove a kid for a mother keeping him safe! There's no law here against keeping a young child in a crib too long- he's fed? Changed? Omg don't worry about cps- even the crappy ones don't want your child! There's no where to put them! I say that but honestly- unless he's sitting in poop for two days or not fed- keep your son safe!If he were my child- and I'm not telling you to walk down my path- id keep him there- but contact a sensory based OT to help you find out what is triggering him! He could hear a noise like your frige running that is so much louder to these kids.My son is 11. Through the years I've let others talk me into "pushing"Him- giving in against my better judgement is the only regret I have in my raising him. Now? I listen to his needs- whether it's for space or quiet or down time- and I feelBetter- he feels better and life is happier for my entire family!Sent from my iPhone Agreed! ;)Sent from my iPhone We all need somewhere to hide sometimes. If he is happy, how can it possibly make you a bad mother? Well I don't leave him in there for a long time but like in the mornings when he wakes up if you go in there to get him he wants nothin to do with you. So I always just walk out and leave him in there to play for about an hour and come back to see if he's ready to come out and some times he is and sometimes he isn't. And periodically during the day if he is really stimming way to much or having a lot of meltdowns I will put him in there and he immediately is happy. and I'll leave him in there for about an hour and come check on him to see if he's ready to come out. His bed has absolutely nothing in it except a sheet. Which is blue. For the most part he is outside of his crib, but he seems to be so much happier in his crib but I don't like putting him in there cause then I feel like a bad mom. But that is where he is happy. From: Muehleisen Family To: autism-aspergers Sent: Thursday, May 3, 2012 12:03 AM Subject: Re: I give up...... What about a small tent that he could play quietly in. It would give him the enclosed feeling he needs and he could come and go as he wanted to. I'd get one that's not too big and not colorful (maybe a dark blue, not red). Put it in a room that you want him in. Little or no noise would be best at first. If you get one that you can connect to others via a tube, you would be able to add to it when he gets older. The problem might be the super bight colors. Is is his crib colorful? http://www.amazon.com/Pacific-Play-Tents-Safari-Tunnel/dp/B00083DD4O/ref=sr_1_3?s=toys-and-games & ie=UTF8 & qid=1336017388 & sr=1-3 To begin with, maybe find a large box. See if he will pay in that. That would be more socially acceptable that keeping him in the bed. I completely understand and agree with you. He needs to be able to live his life outside of his crib but if he is happy in his bed then let him be in his crib...but it needs to be limited so he can grow. However, if you tell the drs that you keep him in his bed for extended periods, CPS might get involved. None of those people understand so it could be bad.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -------Original Message------- From: Lori Yurtin Date: 5/1/2012 12:25:39 PM To: autism-aspergers Subject: Re: I give up...... Poor Colton. The world is just too much for him. Sensory overload. That is why he is happy in his crib all alone. Sent from my iPhone On May 1, 2012, at 12:14 PM, sara degeer wrote: Wow, Well Colton has been getting worse with the head banging. Just in 3 weeks he's had 2 black eyes and the giant knot on his forehead. I'm so worried about him getting seriously injured because I know he's not. I really worry about his face and his teeth. His teeth are so perfect. Colton doesn't chew his tongue but he sucks on it. I personally because of my anxiety I chew the inside of my mouth to the point that it bleeds. I hate when I get like that. Since this past weekend Colton has been absolutely awful. He has been in bed for almost 2 days because every time I let him out he is so violent and just walks around screaming and crying. But when he's in his crib all alone he's all smiles. But he's happy, I don't know what to do. From: "sandradaniels2001@..." < Quote Link to comment Share on other sites More sharing options...
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