Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Hi I am at present on 9 MXT per week but am also taking either Diclofenac or Indocid depending on what I can get my hands on (Am a pharmacist) as well as the South Afican generic of Doloxene Co. I do not see any problem with the addition of other drugs with your MXT as long as your liver function tests are fine. Mine have ranged in the 20's for both AST & ALT for 10 years or more. The problem is that the majority of the medical profession do not have a great deal of experience with MXT..they read the insert and are scared to death of the information inside. At present I am on a high but decreasing dose of prednisone as am having a flare. Incidently I also have 2 to 3 drinks of alcohol a week without any affect on my liver function. Just do not drink on day am having MXT or day after. I like my Red wine living in the Cape. Regards Graham Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 I've taken Tylenol Arthritis in the beginning...now I take Hydrocodone for the stronger pain. Good luck, I know it's difficult managing pain. Carla and The Fur Kids cklaesch@... Windows Messenger (Only) claesch@... ID/Email prayingkitty@... Hotmail Email cjss4@... Our Personal Web Page www.geocities.com/prayingkitty My Avon Web Page www.youravon.com/claesch Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Thanks so much for the info Graham. I had been on Methotrexate and Enbrel in the past but due to elevated LFT, he stopped the MXT. It was really the only thing that seemed to help. My PA started in my right knee and middle finger of the right hand. I have since had both knees scoped and was told last week that the right knee is now " bone on bone " . I also developed some weird pain in my left arm that was diagnosed as synovitis. My rheumatologist told me that that was part of the PA but the knees was now an orthopedic probem! My pain is mostly in my knees now. It feels like someone is driving a hot railroad tie through my ourside joint. I was on Darvocet N-100 from the ortho but the rheumatologist told me not to take it - not to even take any Tylenol! He must not know what pain is! Anyway, I apprecaite your reply and advise. I will go to him with the names of these meds and see if I can get anywhere. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2005 Report Share Posted August 21, 2005 Hi, I started off on Tylenol arthritis and hydrocodone, but now am on Fentynal Patch with the hydrocodone for breakthrough pain. I went on the patch because I didn't care for the ups and downs of taking hydrocodone it also seemed to wear off sooner and the patch I change once every 3 days. However, you do have to be careful of the patch and I know my doctor tried other forms of pain relief prior to using the patch. It is working well for me. I also have Fibro, osteo,DDD and COPD. I would talk to your doctor about pain relief because I was told that pain itself increases stress and stress and anxiety can increase pain. Pat > Is anyone taking an pain medication in addition to Methotrexate? My RA > doesn't want to give me any because of liver involvement but I have > got to have some relief from all the pain I am in. > Thanks for the help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 > Is anyone taking an pain medication in addition to Methotrexate? My RA > doesn't want to give me any because of liver involvement but I have > got to have some relief from all the pain I am in. > Thanks for the help. I take my metho by injection once a week. I also take folic acid every day. Also, Darvocet for pain. Have been doing this 4 years now. By the way, I do have blood work done once per month to check liver and kidneys. I have just been diagnosed with Fibromyalgia and started on Doxepin. You do need a pain med to help with your pain. Good Luck Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2005 Report Share Posted September 5, 2005 Try, diet for your blood type. It works for me I went from total pain to none within two months. It's been over two and a half years. or just try elimination diet. turn your body from acid to alkiline. Joanne <jem515@...> wrote: > Is anyone taking an pain medication in addition to Methotrexate? My RA > doesn't want to give me any because of liver involvement but I have > got to have some relief from all the pain I am in. > Thanks for the help. I take my metho by injection once a week. I also take folic acid every day. Also, Darvocet for pain. Have been doing this 4 years now. By the way, I do have blood work done once per month to check liver and kidneys. I have just been diagnosed with Fibromyalgia and started on Doxepin. You do need a pain med to help with your pain. Good Luck Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 , What you are most likely experiencing is called a Herximer effect . . . A temporary worsening of symptoms. It's a good indication that what you're doing is effective. The trick is to learn how to recognize a herx and to learn how to control it so they don't get so bad that you will quit. Some people (like Kathy) have really bad herxes to everything - at least initially. As time goes by, they herx less and less. When starting a new program, it's usually best to start slow, giving yourself a few days between new starts so you'll know how you react. . . If you'll keep a journal of what you're doing and how you feel, it will be easier to identify what helps. It will also allow you to look back and see how far you've come on those days that seems like you're going backwards. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Hi Sheng Lin, Where is your mother experiencing pain? Aletha Re: [low dose naltrexone] Four Months on LDN Report > Thank you for your update. My Mom has been on LDN for > almost a month. She has been without her norcotic > pain killder med and it hasn't been easy. Your update > gives me hope. Kind regards, Sheng Lin > > --- gigi held <georgina374@...> wrote: > >> Friday, February 24, 2006 ~ 8:36:00 AM >> >> COMPLETED MY FOURTH MONTH ON " HOME-MADE " LDN ~ >> Breif history of chronic illness pre-LDN, then, >> (without further medical tests) my subjective >> observation/account today: >> As informed by doctors following a variety >> ofmedical testing: >> Unilateral slipped capital femoral epiphysis - >> Reductions and full body spika cast x 2, 8mos. then >> 6mos., no invasive surgery in either event. 1961 >> Prognosis ~ (Orthopedist stated, " unknown, but >> arthritis is certain later in life " ). >> Arthritis - degenerative disc/joints - Osteo and >> early rheumatoid - pain for 30 plus years - >> Osteoporosis - (lost 3 " from height, 5'8 " to 5'5 " ) >> >> Narcolepsy/Cataplexy ~ EDS noted as young teen; >> but dx took till 1993 (30 years), Rx'd meds did not >> work, (1995 began trial of Modafinil study/now >> called Provigil) stabilized, (noted, " pain relief " , >> during trial of this med as well as alertness). >> (This observation could not be documented since it >> was a double blind test trial specifically for use >> in Narcolepsy)....Provigil has since been also used >> as an " off lable " pain relief, etc., and med is >> widely Rx'd by doctors. >> Seasonal, Mold, and Med. Allergies >> Hypertension >> COPD >> Multiple Sclerosis - 6/9/05 diagnosis ~ (Falls >> noted since 1975) >> Cardiomegally - resulted from (multiple allergic >> reactions/angio edema over two years of receiving >> wrong BP med) >> Arterial plaques - left leg, doppler diagnosis - >> Constant pain in all major joints, intermittently >> and increasingly frequent in fingers and toes, >> chronic back pain, lost of most cartilage left hip >> and both knees, falls, choking, lost voice for two >> months, lost eyesight (white field only) several >> times on awakening...returned within 5 to 20 >> minutes, shooting (electrical) pains through legs, >> arms, neck, or other areas, cannot stand for 30 >> minutes (abdominal tightness and stabbing pain), >> dropping things, frequent slurred speech, >> occasionally drool (eeeewwwww!), depressed, unable >> to concentrate well (foggy brain), dizzy, >> palpitations, nausea, extremely fatigued and >> sleepiness more often poorly controlled by Provigil, >> bowel and bladder problems, unable to sleep through >> night often waking 4 or 5 times - often from pain, >> usually for bthrm, frequent UTI and sinus >> infections. Walking is slow, stiff and require >> assist from a cane, pain and exhaustion made me feel >> useless taking a long time with rests to perform >> activities of daily living. >> Initial MRI report October 04 eluded to MS as most >> probable. Began to wean from arthritis, allergy, and >> pain meds I thought might be causing edema and >> unstable BP. Increased vitamin/mineral and amino >> acid inake, used mostly asperin and muscle rubs for >> pain. >> Started LDN last weekend in October 05, increased >> calcium, mag., zinc, selenium, CoQ10, BVitamins, >> Fish and Flax oil, Folic, Betacarotene, Vit C, >> 2pkts. Knox gelatin daily in juice, and whatever >> other supplements I can afford - >> Best explanation of personal LDN effectiveness: On >> a pain/problem scale of " 10 " being the worst >> (above), then my present level of pain/problems >> after four months on LDN would be a " 6 " , with the >> most significant benefits in increased energy, >> better concentration, weight loss, and with the >> addition of " soap " , finally, better sleep!!! I'm >> sure there is something I haven't covered but >> considering the improvement I've felt I think LDN is >> GREAT and I intend to stay the course with patience. >> >> I would like to add some form of physical therapy >> but do not have the financial resources to do so, >> and insurance has cut back on coverage of meds and >> services. Have not heard from my neuro since I >> refused the LP he scheduled last summer to determine >> level of CRAB meds he wanted me to take, so I do not >> think he'd be willing to suggest anything else >> beneficial covered by Ins.or not. He did not Rx my >> LDN. >> Sorry this isn't as brief as I'd planned, but it >> is as complete as I could get it. >> Gigi Held >> >> >> >> >> >> >> >> >> --------------------------------- >> >> Use Photomail to share photos without annoying > attachments. > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Hi Aletha: My mother experiences pain all over. She has rheumatoid arthritis for many years (at least 30 years if not longer). She also has MS symptoms. She is basically bed bound. She started LDN about one month ago because of the immune boosting theory. She is taking antibiotic (also, low dose for about 9 months and beyond)for her RA and using LDN to boost her immune system. She has to go without her narcotic pain meds since starting LDN. This has been very hard on her. She has severe pain on her hips, lower back, knees, shoulders, etc. She has abodominal cramps and difficulties with urine and BM controls. She has fatique and needling pains up and donw her legs. Right now she taking Advil and Tylenol in turn. She sometimes find her pain overwhelming. But she is determined to tough it through. Regards, Sheng --- Aletha Wittmann <Aletha@...> wrote: > Hi Sheng Lin, > > Where is your mother experiencing pain? > > Aletha > Re: [low dose naltrexone] Four Months on LDN > Report > > > > Thank you for your update. My Mom has been on LDN > for > > almost a month. She has been without her norcotic > > pain killder med and it hasn't been easy. Your > update > > gives me hope. Kind regards, Sheng Lin > > > > --- gigi held <georgina374@...> wrote: > > > >> Friday, February 24, 2006 ~ 8:36:00 AM > >> > >> COMPLETED MY FOURTH MONTH ON " HOME-MADE " LDN ~ > >> Breif history of chronic illness pre-LDN, then, > >> (without further medical tests) my subjective > >> observation/account today: > >> As informed by doctors following a variety > >> ofmedical testing: > >> Unilateral slipped capital femoral epiphysis - > >> Reductions and full body spika cast x 2, 8mos. > then > >> 6mos., no invasive surgery in either event. 1961 > >> Prognosis ~ (Orthopedist stated, " unknown, but > >> arthritis is certain later in life " ). > >> Arthritis - degenerative disc/joints - Osteo > and > >> early rheumatoid - pain for 30 plus years - > >> Osteoporosis - (lost 3 " from height, 5'8 " to > 5'5 " ) > >> > >> Narcolepsy/Cataplexy ~ EDS noted as young teen; > >> but dx took till 1993 (30 years), Rx'd meds did > not > >> work, (1995 began trial of Modafinil study/now > >> called Provigil) stabilized, (noted, " pain > relief " , > >> during trial of this med as well as alertness). > >> (This observation could not be documented since > it > >> was a double blind test trial specifically for > use > >> in Narcolepsy)....Provigil has since been also > used > >> as an " off lable " pain relief, etc., and med is > >> widely Rx'd by doctors. > >> Seasonal, Mold, and Med. Allergies > >> Hypertension > >> COPD > >> Multiple Sclerosis - 6/9/05 diagnosis ~ (Falls > >> noted since 1975) > >> Cardiomegally - resulted from (multiple > allergic > >> reactions/angio edema over two years of receiving > >> wrong BP med) > >> Arterial plaques - left leg, doppler diagnosis > - > >> Constant pain in all major joints, > intermittently > >> and increasingly frequent in fingers and toes, > >> chronic back pain, lost of most cartilage left > hip > >> and both knees, falls, choking, lost voice for > two > >> months, lost eyesight (white field only) several > >> times on awakening...returned within 5 to 20 > >> minutes, shooting (electrical) pains through > legs, > >> arms, neck, or other areas, cannot stand for 30 > >> minutes (abdominal tightness and stabbing pain), > >> dropping things, frequent slurred speech, > >> occasionally drool (eeeewwwww!), depressed, > unable > >> to concentrate well (foggy brain), dizzy, > >> palpitations, nausea, extremely fatigued and > >> sleepiness more often poorly controlled by > Provigil, > >> bowel and bladder problems, unable to sleep > through > >> night often waking 4 or 5 times - often from > pain, > >> usually for bthrm, frequent UTI and sinus > >> infections. Walking is slow, stiff and require > >> assist from a cane, pain and exhaustion made me > feel > >> useless taking a long time with rests to perform > >> activities of daily living. > >> Initial MRI report October 04 eluded to MS as > most > >> probable. Began to wean from arthritis, allergy, > and > >> pain meds I thought might be causing edema and > >> unstable BP. Increased vitamin/mineral and amino > >> acid inake, used mostly asperin and muscle rubs > for > >> pain. > >> Started LDN last weekend in October 05, > increased > >> calcium, mag., zinc, selenium, CoQ10, BVitamins, > >> Fish and Flax oil, Folic, Betacarotene, Vit C, > >> 2pkts. Knox gelatin daily in juice, and whatever > >> other supplements I can afford - > >> Best explanation of personal LDN effectiveness: > On > >> a pain/problem scale of " 10 " being the worst > >> (above), then my present level of pain/problems > >> after four months on LDN would be a " 6 " , with the > >> most significant benefits in increased energy, > >> better concentration, weight loss, and with the > >> addition of " soap " , finally, better sleep!!! I'm > >> sure there is something I haven't covered but > >> considering the improvement I've felt I think LDN > is > >> GREAT and I intend to stay the course with > patience. > >> > >> I would like to add some form of physical > therapy > >> but do not have the financial resources to do so, > >> and insurance has cut back on coverage of meds > and > >> services. Have not heard from my neuro since I > >> refused the LP he scheduled last summer to > determine > >> level of CRAB meds he wanted me to take, so I do > not > >> think he'd be willing to suggest anything else > >> beneficial covered by Ins.or not. He did not Rx > my > >> LDN. > >> Sorry this isn't as brief as I'd planned, but > it > >> is as complete as I could get it. > >> Gigi Held > >> > >> > >> > >> > >> > >> > >> > >> > >> --------------------------------- > >> > >> Use Photomail to share photos without annoying > > attachments. > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 > > Hi Aletha: My mother experiences pain all over. She > has rheumatoid arthritis for many years (at least 30 > years if not longer). She also has MS symptoms. She > is basically bed bound. She started LDN about one > month ago because of the immune boosting theory. She > is taking antibiotic (also, low dose for about 9 > months and beyond)for her RA and using LDN to boost > her immune system. She has to go without her narcotic > pain meds since starting LDN. This has been very hard > on her. She has severe pain on her hips, lower back, > knees, shoulders, etc. She has abodominal cramps and > difficulties with urine and BM controls. She has > fatique and needling pains up and donw her legs. > Right now she taking Advil and Tylenol in turn. She > sometimes find her pain overwhelming. But she is > determined to tough it through. Regards, Sheng ======= Try your mom on two glasses of Red Tart Cherry Juice Concentrate daily for her RA pain. Ditch the antibiotic therapy if it's for RA...years of continual antibiotic use destroys the immune system. She's probably eaten up with candida due to the antibiotics and candida makes RA much worse. See the posts with the candida check link in them and test your mom for candida. See tart cherry info below. Brownwood Acres Red Tart Cherry Juice Concentrate. Health Benefits of Tart Cherries. Tart Cherries | Cherry Juice | Concentrate | Health Benefits | Gout | Relief | http://www.fruitinstitute.org/cherries.htm Good for cancer, has a natural chemotherapy agent. Brownwood Acres Red Tart Cherry Juice Concentrate. http://www.brownwoodacres.com/cherry_health3.htm My mom and grandma are on this for cancer along with their LDN. The combo of tart cherries and 4.5mg LDN has gotten rid of my grandma's many skin cancers in less than a year...they're hardly even noticeable. A friend is on it for rheumatoid arthritis and is having very good results in reducing her pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Hi Sheng Lin, Oh, your poor Mother. I can't imagine how difficult that must be. I read the post from Bren. She might be right in that the antibiotic might be causing other problems. Perhaps the tart juices would be a good idea to try. Also, there has been a lot of talk about putting soap in ones bed at night to help with the pain. Someone recently reported that grating ivory soap and putting it in a mesh material and then up against the skin in the areas where there is pain seemed to help a lot. Sounds strange I know, but it is worth trying. I would just pick 2 areas and see if they work and then increase the areas if it is working. That way it is easier to gauge. Hopefully the tart juice will have an effect. I think I would get her off of the antibiotics, but I am not a doctor and I don't know what negative effects might be in store. My daughter is at a college and her medial center puts her on antibiotics for anything. Nothing was getting better for her, just worse (ear infections and bladder infections). I finally went up there and got her on a bunch of immune boosters from Longs Drug store (Zink with Echinacea, acidophilus & garlic) and told here to alternate between them each day. Also for bladder infections she is now taking cranberry juice and she is doing much better than she did on the antibiotics. I hope this helps. Aletha Re: [low dose naltrexone] Four Months on LDN >> Report >> >> >> > Thank you for your update. My Mom has been on LDN >> for >> > almost a month. She has been without her norcotic >> > pain killder med and it hasn't been easy. Your >> update >> > gives me hope. Kind regards, Sheng Lin >> > >> > --- gigi held <georgina374@...> wrote: >> > >> >> Friday, February 24, 2006 ~ 8:36:00 AM >> >> >> >> COMPLETED MY FOURTH MONTH ON " HOME-MADE " LDN ~ >> >> Breif history of chronic illness pre-LDN, then, >> >> (without further medical tests) my subjective >> >> observation/account today: >> >> As informed by doctors following a variety >> >> ofmedical testing: >> >> Unilateral slipped capital femoral epiphysis - >> >> Reductions and full body spika cast x 2, 8mos. >> then >> >> 6mos., no invasive surgery in either event. 1961 >> >> Prognosis ~ (Orthopedist stated, " unknown, but >> >> arthritis is certain later in life " ). >> >> Arthritis - degenerative disc/joints - Osteo >> and >> >> early rheumatoid - pain for 30 plus years - >> >> Osteoporosis - (lost 3 " from height, 5'8 " to >> 5'5 " ) >> >> >> >> Narcolepsy/Cataplexy ~ EDS noted as young teen; >> >> but dx took till 1993 (30 years), Rx'd meds did >> not >> >> work, (1995 began trial of Modafinil study/now >> >> called Provigil) stabilized, (noted, " pain >> relief " , >> >> during trial of this med as well as alertness). >> >> (This observation could not be documented since >> it >> >> was a double blind test trial specifically for >> use >> >> in Narcolepsy)....Provigil has since been also >> used >> >> as an " off lable " pain relief, etc., and med is >> >> widely Rx'd by doctors. >> >> Seasonal, Mold, and Med. Allergies >> >> Hypertension >> >> COPD >> >> Multiple Sclerosis - 6/9/05 diagnosis ~ (Falls >> >> noted since 1975) >> >> Cardiomegally - resulted from (multiple >> allergic >> >> reactions/angio edema over two years of receiving >> >> wrong BP med) >> >> Arterial plaques - left leg, doppler diagnosis >> - >> >> Constant pain in all major joints, >> intermittently >> >> and increasingly frequent in fingers and toes, >> >> chronic back pain, lost of most cartilage left >> hip >> >> and both knees, falls, choking, lost voice for >> two >> >> months, lost eyesight (white field only) several >> >> times on awakening...returned within 5 to 20 >> >> minutes, shooting (electrical) pains through >> legs, >> >> arms, neck, or other areas, cannot stand for 30 >> >> minutes (abdominal tightness and stabbing pain), >> >> dropping things, frequent slurred speech, >> >> occasionally drool (eeeewwwww!), depressed, >> unable >> >> to concentrate well (foggy brain), dizzy, >> >> palpitations, nausea, extremely fatigued and >> >> sleepiness more often poorly controlled by >> Provigil, >> >> bowel and bladder problems, unable to sleep >> through >> >> night often waking 4 or 5 times - often from >> pain, >> >> usually for bthrm, frequent UTI and sinus >> >> infections. Walking is slow, stiff and require >> >> assist from a cane, pain and exhaustion made me >> feel >> >> useless taking a long time with rests to perform >> >> activities of daily living. >> >> Initial MRI report October 04 eluded to MS as >> most >> >> probable. Began to wean from arthritis, allergy, >> and >> >> pain meds I thought might be causing edema and >> >> unstable BP. Increased vitamin/mineral and amino >> >> acid inake, used mostly asperin and muscle rubs >> for >> >> pain. >> >> Started LDN last weekend in October 05, >> increased >> >> calcium, mag., zinc, selenium, CoQ10, BVitamins, >> >> Fish and Flax oil, Folic, Betacarotene, Vit C, >> >> 2pkts. Knox gelatin daily in juice, and whatever >> >> other supplements I can afford - >> >> Best explanation of personal LDN effectiveness: >> On >> >> a pain/problem scale of " 10 " being the worst >> >> (above), then my present level of pain/problems >> >> after four months on LDN would be a " 6 " , with the >> >> most significant benefits in increased energy, >> >> better concentration, weight loss, and with the >> >> addition of " soap " , finally, better sleep!!! I'm >> >> sure there is something I haven't covered but >> >> considering the improvement I've felt I think LDN >> is >> >> GREAT and I intend to stay the course with >> patience. >> >> >> >> I would like to add some form of physical >> therapy >> >> but do not have the financial resources to do so, >> >> and insurance has cut back on coverage of meds >> and >> >> services. Have not heard from my neuro since I >> >> refused the LP he scheduled last summer to >> determine >> >> level of CRAB meds he wanted me to take, so I do >> not >> >> think he'd be willing to suggest anything else >> >> beneficial covered by Ins.or not. He did not Rx >> my >> >> LDN. >> >> Sorry this isn't as brief as I'd planned, but >> it >> >> is as complete as I could get it. >> >> Gigi Held >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> --------------------------------- >> >> >> >> Use Photomail to share photos without annoying >> > attachments. >> > >> > >> > __________________________________________________ >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Hi Aletha: Thank you for the email. I have been reading about the soap in bed and will try that for my mother. I will also try some of the other remedies you suggested. My Mom is using antibiotic protocol at a very low dose as oppose to the immune suppressive/biologic meds that have very serious side effects. We need to supplement with beneficial bacteria so to counter the fungus problem. With auto-immune illness, there are few real " cures " from the medical profession. We all have to find alternative ways to manage the illness and hopefully to stop the progression of the disease somehow. Take care. Kind regards, Sheng Lin --- Aletha Wittmann <Aletha@...> wrote: > Hi Sheng Lin, > > Oh, your poor Mother. I can't imagine how difficult > that must be. I read > the post from Bren. She might be right in that the > antibiotic might be > causing other problems. Perhaps the tart juices > would be a good idea to > try. Also, there has been a lot of talk about > putting soap in ones bed at > night to help with the pain. Someone recently > reported that grating ivory > soap and putting it in a mesh material and then up > against the skin in the > areas where there is pain seemed to help a lot. > Sounds strange I know, but > it is worth trying. I would just pick 2 areas and > see if they work and then > increase the areas if it is working. That way it is > easier to gauge. > Hopefully the tart juice will have an effect. I > think I would get her off > of the antibiotics, but I am not a doctor and I > don't know what negative > effects might be in store. > > My daughter is at a college and her medial center > puts her on antibiotics > for anything. Nothing was getting better for her, > just worse (ear > infections and bladder infections). I finally went > up there and got her on > a bunch of immune boosters from Longs Drug store > (Zink with Echinacea, > acidophilus & garlic) and told here to alternate > between them each day. > Also for bladder infections she is now taking > cranberry juice and she is > doing much better than she did on the antibiotics. > > I hope this helps. > > Aletha > > > Re: [low dose naltrexone] Four Months on > LDN > >> Report > >> > >> > >> > Thank you for your update. My Mom has been on > LDN > >> for > >> > almost a month. She has been without her > norcotic > >> > pain killder med and it hasn't been easy. Your > >> update > >> > gives me hope. Kind regards, Sheng Lin > >> > > >> > --- gigi held <georgina374@...> wrote: > >> > > >> >> Friday, February 24, 2006 ~ 8:36:00 AM > >> >> > >> >> COMPLETED MY FOURTH MONTH ON " HOME-MADE " LDN > ~ > >> >> Breif history of chronic illness pre-LDN, > then, > >> >> (without further medical tests) my subjective > >> >> observation/account today: > >> >> As informed by doctors following a variety > >> >> ofmedical testing: > >> >> Unilateral slipped capital femoral epiphysis > - > >> >> Reductions and full body spika cast x 2, 8mos. > >> then > >> >> 6mos., no invasive surgery in either event. > 1961 > >> >> Prognosis ~ (Orthopedist stated, " unknown, but > >> >> arthritis is certain later in life " ). > >> >> Arthritis - degenerative disc/joints - Osteo > >> and > >> >> early rheumatoid - pain for 30 plus years - > >> >> Osteoporosis - (lost 3 " from height, 5'8 " to > >> 5'5 " ) > >> >> > >> >> Narcolepsy/Cataplexy ~ EDS noted as young > teen; > >> >> but dx took till 1993 (30 years), Rx'd meds > did > >> not > >> >> work, (1995 began trial of Modafinil study/now > >> >> called Provigil) stabilized, (noted, " pain > >> relief " , > >> >> during trial of this med as well as > alertness). > >> >> (This observation could not be documented > since > >> it > >> >> was a double blind test trial specifically for > >> use > >> >> in Narcolepsy)....Provigil has since been also > >> used > >> >> as an " off lable " pain relief, etc., and med > is > >> >> widely Rx'd by doctors. > >> >> Seasonal, Mold, and Med. Allergies > >> >> Hypertension > >> >> COPD > >> >> Multiple Sclerosis - 6/9/05 diagnosis ~ > (Falls > >> >> noted since 1975) > >> >> Cardiomegally - resulted from (multiple > >> allergic > >> >> reactions/angio edema over two years of > receiving > >> >> wrong BP med) > >> >> Arterial plaques - left leg, doppler > diagnosis > >> - > >> >> Constant pain in all major joints, > >> intermittently > >> >> and increasingly frequent in fingers and toes, > >> >> chronic back pain, lost of most cartilage left > >> hip > >> >> and both knees, falls, choking, lost voice for > >> two > >> >> months, lost eyesight (white field only) > several > >> >> times on awakening...returned within 5 to 20 > >> >> minutes, shooting (electrical) pains through > >> legs, > >> >> arms, neck, or other areas, cannot stand for > 30 > >> >> minutes (abdominal tightness and stabbing > pain), > >> >> dropping things, frequent slurred speech, > >> >> occasionally drool (eeeewwwww!), depressed, > >> unable > >> >> to concentrate well (foggy brain), dizzy, > >> >> palpitations, nausea, extremely fatigued and > >> >> sleepiness more often poorly controlled by > >> Provigil, > >> >> bowel and bladder problems, unable to sleep > >> through > >> >> night often waking 4 or 5 times - often from > >> pain, > >> >> usually for bthrm, frequent UTI and sinus > >> >> infections. Walking is slow, stiff and require > >> >> assist from a cane, pain and exhaustion made > me > >> feel > >> >> useless taking a long time with rests to > perform > >> >> activities of daily living. > >> >> Initial MRI report October 04 eluded to MS > as > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 > > LDN gave me complete relief from spondolitis pain right from the first dose, > but then seemed to become less and less effective, until I once again had > constant pain in my hip. Following 's advice, I tested for Candida and then > took a two week course of Diflucan. Knocking out the yeast let the LDN do > it's job, and I'm feeling OK again. Thanks, ! > ========= , I can't remember but do you have Ankylosing Spondolitis? Now you may want to get on a low carb diet to keep the candida at bay. My LDN website address is below. Low Dose Naltrexone Forum http://ldn.proboards3.com/index.cgi? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 HELLO IM BONNIE FIBRO IS A MISERABLE THING I UNDERSTAND 299 PERCENT I FIND A SHOWER MUCH BETTER THAN A BATH YOU CAN HIT THE AREA OF PAIN MUCH MORE EFFECTIVELY ULTRAM DOESNT WORK FOREVER ITS NOT A STRONG PAIN KILLER THE DR MAY EVEN TRY ULTRASET THE DISEASE THE SYNDROME BRINGS OTHER THINGS WITH IT I DONT KNOW IF YOU ARE AWARE OF THAT. DO YOU SEE A RHEUMY OR IS YOUR FAMILY DR TREATING YOU? PLEASE IF YOU ARENT GOING TO A RHUEMOTOLOGIST GET TO ONE A.S.A.P SOMETIMES HEAT ISNT THE ANSWER. I HAVE SLEPT WITH A BAG FROZEN ( ARE YOU READY) LIMA BEANS ON THE AREA ,,USUALLY THE HIP.. THAT IS GIVING THE WORST PAIN. WHY LIMA BEANS? WELL 2 REASONS ONE IS THEY CAN BE PUSHED AROUND TILL THEY ARE IN THE RIGHT SPOT AND 2 IS IT WAS THE ONLY FROZEN VEGGIE I HAD THE TIME I DECIDED TO TRY IT. DRS SOMETIME GUESS THEY DONT KNOW IT ALL, WE HAVE TO DEVISE SOMETHINGS ON OUR OWN YOU DID THE BEST THING POSSIBLE BY PUTTING THE QUESTION OUT THERE MAYBE IF YOU LOOK CLOSE ENOUGH TO MIDDLETOWN NY I WILL CATCH YOU IN THE FROZEN VEGETABLE AISLE IM THE LITTLE LADY BUYING THE FROZEN LIMA BEANS FIBRO ROBS YOU OF YOUR SLEEP, IT IS PART OF THE SYNDROME, DISEASE, SPEAK TO YOUR DR. HE MAY PRESCRIBE A MILD SLEEPING PILL AMBIEN OR SOMETHING LIKE THAT DONT WORRY IT ALL WORKS OUT YOU ARE PROBABLY GOING THROUGH A BAD FLARE UP NOW HAS THE FIBRO FOG HIT YET??? MINE GETS NUTS I FOUND MY SHOE IN THE UNDERWEAR DRAWER AND MY MILK IN THE CABINET AND I HAVE NO RECOLLECTION HOW THEY GOT WHERE THEY DID....I LIVE ALONE SO WHO ELSE CAN I BLAME?????? YOU HAVE THE BEST DAY POSSIBLE\ BONNIE SUE --------------------------------- Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 > > Im new to the group so forgive if this has been covered adnauseum. Ive had fibro for ten > years. Just now is the pain so unbearable that its impossible to funtion or sleep. Not good for > the self esteem. Trying hot baths, good teas, Ultram... exhausted and starting to fear the > future with this disease. Any ideas for the pain? > > Thanks, > > Merrill > Welcome to the group Merrill. I too have firbo and RA for the pain to get under controll you have to get rest and limit you stress. they are both make your fribo worse. have your DR. give you something to help you sleep at night. try Heating pads or Ice pack to help with the pain also I use pain pill when it get to bad good luck to you and hope you get some pain under controll Janet IN IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 Welcome Merrill, I am sorry to hear your in so much pain with the Fibro. We can all relate to pain. You will find great information, tips, and support here. Looking forward to getting to know you, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 You should talk with your doctor about your sleeping problems. My rhuemy told me most people with cronic pain have sleeping issues, and she gave my Sonata to use as needed. But I also like to use a new OC product called simply sleep, it works as well for me as prescription and much much cheaper. in WI jan <smokey61080@...> wrote: > > Im new to the group so forgive if this has been covered adnauseum. Ive had fibro for ten > years. Just now is the pain so unbearable that its impossible to funtion or sleep. Not good for > the self esteem. Trying hot baths, good teas, Ultram... exhausted and starting to fear the > future with this disease. Any ideas for the pain? > > Thanks, > > Merrill > Welcome to the group Merrill. I too have firbo and RA for the pain to get under controll you have to get rest and limit you stress. they are both make your fribo worse. have your DR. give you something to help you sleep at night. try Heating pads or Ice pack to help with the pain also I use pain pill when it get to bad good luck to you and hope you get some pain under controll Janet IN IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2006 Report Share Posted August 11, 2006 - I have been where you are...many of us have. First of all-you need to let your doc know how much pain you are in and request (demand) to be treated. During my worst days I needed Vicodin or Percocet to function. (I don't anymore) Any doc who will not treat your pain is negligent. I dumped a very prominant AP doc because he would NOT address my pain issues. Sleep issues also go hand in hand with these diseases. Ask for some sleeping medicine if needed. I still deal with sleep issues even though my arthritis is in remission. But our bodies need restorative sleep to heal themselves, so look at it as a temporary investment in your health. Ambien CR is the only thing that works for me. That said...if you haven't already, it's time to find a doc who will get to the source of your problem and treat you with the only thing that will give you a hope of getting better...antibiotics. Both the roadback Foundation website and Rheumatic support, as well as some of the folks here, can connect you with a doc near you. I had a severe, rapid onset of RA in 2001. I started on abx. pretty much right away...in 6 months I was beginning to feel human, and in 8-9 months I was in clinical remission and have stayed there (although dealing with a few other issues at the moment). Antibiotic therapy is the ONLY treatment out there which will taret the source of the RA...and infection which has screwed up the immune system. Please visit the Roadback website or Rheumatic Support for tons more info. The sooner you start the better/sooner your recovery. But please force your doc to deal with the pain/sleep issues...both of those things just wear on you and make recovery even harder...those you can deal with right away. Abx. take time, and often make you worse before you get better (but that is a good sign). Good luck...peggy > > I was recently diagnosed with R.A. and have endured many treatments > thus far but nothing is helping. Since Oct. 2005 they have tried me on > 8 different meds and I am DESPERATE to relieve the pain and actually > sleep through the night,PLEASE help!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 LDN is to slow or halt disease progression. Any symptomatic relief is a bonus but doesn't happen to eveyone. Marcie C <covo@...> wrote: This is forwarded from someone on our PLS-FRIENDS group (for people with Primary Lateral Sclerosis) who really wants to try LDN but is in so much pain that he is prescribed opiate type drugs to diminish it. He said without those that he would be in a wheelchair, so is wondering how many people have found that LDN has reduced severe pain.While I am at it I may as well ask for him if anybody has any recommendations for non opiate drugs which will work on severe pain and allow him to get onto LDN.Thanks,Is there anyone out there on LDN who has experienced a reduction in pain ?Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Jerry, No, I don't. Luckily, I have a high tolerance to pain, but that doesn't mean I don't hurt. I do. I wish there was something that would work. Marcie "Jerry ( aka Dillon )" <jerrysimmons@...> wrote: so then do you take anything for pain Marcie? Re: [low dose naltrexone] Jerry, I haven't seen anywhere that LDN will CERTAINLY ease any pain. Maybe some people get relief, but I have not. Marcie "Jerry ( aka Dillon )" <jerrysimmonsbellsouth (DOT) net> wrote: hello my name is Jerry and I have pls and cervical neropathy.I am on narcotic meds for severe pain.but would give them if LDN would help with my symptoms. Has anyone in the group have benificial pain reliefe by useing LDN in place of narcodics or in conjunction with a non-narcartic pain med. Thank You Jerry No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 i also did i worked as a correction officer my whole adult life taught karate and judo so i have no dellussions about pain and tolerence.The pain I am talking about is a crippleing pain.and if not for strong meds I would be wheel a chair .My choice is to walk on my feet ontil layed out in a casket if I can help it. Re: [low dose naltrexone] Jerry, I haven't seen anywhere that LDN will CERTAINLY ease any pain. Maybe some people get relief, but I have not. Marcie "Jerry ( aka Dillon )" <jerrysimmonsbellsouth (DOT) net> wrote: hello my name is Jerry and I have pls and cervical neropathy.I am on narcotic meds for severe pain.but would give them if LDN would help with my symptoms. Has anyone in the group have benificial pain reliefe by useing LDN in place of narcodics or in conjunction with a non-narcartic pain med. Thank You Jerry No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006 No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Jerry, I have been in a wheelchair for 7 years, Constant pain, 24/7. Narcotics may help with pain but can't be taken with LDN. They would probably make me too weak to pull myself up anyway. All I can do is live with it. I, too, know about crippling pain, I'm there. MS is a crazy condition. Marcie "Jerry ( aka Dillon )" <jerrysimmons@...> wrote: i also did i worked as a correction officer my whole adult life taught karate and judo so i have no dellussions about pain and tolerence.The pain I am talking about is a crippleing pain.and if not for strong meds I would be wheel a chair .My choice is to walk on my feet ontil layed out in a casket if I can help it. Re: [low dose naltrexone] Jerry, I haven't seen anywhere that LDN will CERTAINLY ease any pain. Maybe some people get relief, but I have not. Marcie "Jerry ( aka Dillon )" <jerrysimmonsbellsouth (DOT) net> wrote: hello my name is Jerry and I have pls and cervical neropathy.I am on narcotic meds for severe pain.but would give them if LDN would help with my symptoms. Has anyone in the group have benificial pain reliefe by useing LDN in place of narcodics or in conjunction with a non-narcartic pain med. Thank You Jerry No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006 No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Mike, I'm sorry it took me so long to respond to you. I don't use my computer daily. No, Mike, I never will the pain away. That has never worked for me and why do we feel like we must do that? We did not ask for this to happen to us, and we should never suffer in pain. Call your doctor, and if he doesn't help, call another doctor. If this medicine doesn't work, try another one. I was using the duragesic patch (I can't remember the dosage), taking actiq (the suckers with meds) 4x daily, doxepin 100mg a day, neurontin 5600mg a day, and I was still hurting. Finally my doctor put me on suboxone and all the pain went away. I still use Doxepin 100 a day, neurontin 4800mg a day. If I had heard my story from someone else, I would have thought that they were looney. But, I am not looney, I am happy!!!! And, I pray daily that we all get relief from pain and can become happy. Mike, if you are not pain free and happy-DON'T GIVE UP, I KNOW YOU WILL BE PAIN FREE ALSO. I KNOW YOU WILL BE HAPPY. On the days that you feel like giving up, remember that there are people in the world that know you will be well. in general, and myself,, in particular. Hang in there, and take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 I'm on Methotrexate, Remicade, and Lodine (antiinflammatory). I have good days and bad days. Lately, it's been mostly good. When I have bad days, it helps me understand how good the good days really are, and how bad it used to be. - ===================================================== Stein WEBSITE: http://www.noblefusion.com/astein BLOG: http://www.livejournal.com/users/astein142/ ----------------------------------------------------- ________________________________________________________________________________\ ____ Sponsored Link Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate Click now to apply http://.degrees.info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 For those of you on medicines that are helping you like the DMARDS and the Biologics(Enbrel, Humira, Remicade) are you guys still experiencing pain even when you are on these medicines, or are you completely pain free. Do you still have painful mornings? I would not say I am COMPLETELY pain-free, since my back was already somewhat damaged/degenerated prior to starting the Methotrexate, as were my feet; and my hands/wristswere beginning to ache just prior to adding the Enbrel to my regimen. (BTW, regarding foot pain, you're right.....the proper shoes for arthritic feet make ALL the difference!) The hip, of course, was so far gone (80% bone loss I was limping around with!) before starting the Methotrexate and Enbrel that only the hip replacement resolved that pain. However, I do feel that the Methotrexate and Enbrel helped prevent FURTHER damage to the back and hips and hands....I'm certain WITHOUT the Methotrexate and Enbrel I would be in much WORSE shape. Just being off the MTX and Enbrel for almost 2 months (a month preop and a month postop) for the hip replacement surgery has caused me to feel increased discomfort in the back and hands/wrists since. (The feet feel slightly better since I started wearing the Crocs Relief shoes and the Crocs Nurse shoes for hard-working and ailing feet, LOL.) But, I will say, that ESPECIALLY since the hip replacement, I have become aware of how much better I feel on these meds. I have more energy. Instead of taking 1500 mg Aleve, and and extra 800 of Ibuprofen as well as Tramadol and Lidocaine patches every day just to function, I now take 800-1000 mg of Aleve ONLY. (No more Tramadol, no more extra Ibuprofen, no more Lidocaine. I also don't have to ask for the Medrol dose-paks as much either.) Hope this helped. Take care of yourself. I will say that despite ANY meds, excessive stress (be it emotional stress, or physical stress) definitely increases my pain. For example, two-three weeks ago, I had to take my dd to get her college course supplies at the campus bookstore. Neither of us knew any better; we parked by the entrance she uses to go to class. Turned out the bookstore was at the totally opposite side of the campus. By the time we walked over there and back to the car again, I could scarcely move. Another example, we've been short-handed at work since one nurse moved away, and another nurse has been in the hospital. Normally, I work 72 hours in a 2 week pay period (my job considers 64 hours and above to be a full- time position) as I found 80 hours made me far too fatigued. Well, over the past pay period, I pushed it, and worked in EXCESS of 80 hours. Suffice to say, I am now paying for it. Blessings to you, Wanda Quote Link to comment Share on other sites More sharing options...
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