pain

December 23, 2002

Just a quick reminder. Only about 70% of the patients on Minocin will

herx. Since I was one who did not feel any pain at all on Minocin as far as

herxing goes, I was very much afraid it was not working for me. I definitely

have RA as the fingers of my right hand slant to the side and my bloodwork

was positive for RA. I was just extraordinarily lucky that it worked like a

charm and I went into full remission. The only pain I ever had was the

ususual RA pain and aches that just slowly went away as the months passed.

It is truly a miracle for me!!! Martha

September 8, 2003

I have a friend whose son (younger than yours ) had kidney stones (also had

hypospadia surgery). The stones were apparently a result of chelation therapy -

I dont know much more than that. They gave up on chelation after the stones..

But... your son could have a urinary tract infection or something else causing

the pain.

lambschiari <sheilamsdlf@...> wrote:Hello group.

I'll try to keep this short, as if I get long, I don't get posted.

My 10yr old asd son has started wetting the bed again. Been having

periods of pain at the tip of his penis. At times burning while

urinating. He had hypospadias surgery at about 2 yrs old. I took

morning urine to dr's office. Was negative, they want to see him

tonight at 6:15. I thought for sure he had an infection??!! Can a 10

year old have stones?? He is on Houston enzymes, Mag. citrate, B6,

Eye Q.

Also, I have something called Proflvanol, from USANA. It has:

VITAMIN C (as calcium, potassium, magnesium and zinc ascorbates)

100 MG 167%

GRAPE SEED EXTRACT 30 MG

ASCORBYL PALMITATE 12 MG

other ingredients: MICROCRYSTALLINE CELLULOSE, CROSCARMELLOSE

SODIUM, PREGELATINIZED STARCH, HYDROXPROPYL METHYLCELLULOSE,

COLLOIDAL SILICON DIOXIDE.

Is this okay to give him IYO?

Next haircut, he is getting the hair elements test done FOR SURE!!

Husband finally agreed.

Thanks, any ideas? Sheila D

December 13, 2003

Long overdue thanks to Robin, Dana, Liz, and any other who responded to

my pain posts!

I am CONVINCED it's hormonally related, despite my idiot doctor's

ideas...

Several years ago I underwent treatment for endometriosis that

temporarily left my estrogen at menopause levels, though I was under 30

at the time. My guess is that breastfeeding left me similarly out of

whack.

I nixed the flaxseed oil -- just in case -- and started natural

progesterone cream, and for several days my pain was completely

gone...still needing to tweak the dose, because too much gives me

teenage acne, and I am gaining weight! But oh, to be pain-free...

I DO need omega 3s and/or 6s, though...what are good for us

autoimmune-challenged adults?

BTW, Robin, my sister has lupus and my mom has fibromyalgia, and my

son...well, he's unique! I am a great whining soundboard for whatever

ails ya!

Thanks again, everyone!

December 13, 2003

,

I am so glad you found something so helpful.

I am going to try it myself.

Thanks,

Robin

December 13, 2003

,

If your still fighting high estrogen I would suggest Cod Liver Oil

for your omega 3. I found a product that works better than the Cod

Liver Oil capsules. It is called Neuromins DHA plant source. This

product improved my mind when I was having such a bad problem with

the bath products. And It hasn't knocked my hormone levels around

any. Watch out about adding the other omega oils because many of

them we get too much of in our diet. Read up on this, it is

interesting. Seems that when we eat many fried foods, this high

omega 6 or 9 content puts the omega 3's out of commision. So we need

to supplement more of the 3's.

I think evening of primrose oil is an omega 3, double check. But it

increased estrogen with me. Some people can take it. I swear by the

fish oil.

About pain, did you catch my complaints about bath products? My

inflammation is gone now.

Do you have an idea when you need to supplement with your hormonal

cream? Like only a few weeks and which weeks, or every day like me?

I had an imbalance I corrected myself because doctors wouldn't even

look into it. I saw something on a talk show that sounded like me.

I didn't know about the cream at that time.

After my period would end, the next 3 days I would get the shakes in

my hands and feel badly jittery. The talk show mentioned that the

jitteriness was due to low estrogen. So I thought I would have to

find something to give me the hormone without the doctors. I found

liquorice root to be the source. I took it for those 3 days for

about 3 months. It actually made my symptoms go away and they didn't

come back. So this reinforced my belief that my hormones still

needed work on the rest of the month.

I got imbalanced after a 6 month try on birth control pills. Nothing

worked after that and I sunk in general health. No doctor would even

run a test, told me to go home and relax. I lost friends too over

the years. This happened to me when I was 19 and it took me until

38 to find about hormonal cream. To let you know that my hand shake

was so bad that the food on my fork wouldn't stay. It was

embarrassing eating out. My last recollection was seeing a young

girl at another table pointing to her friend to look at me eat.

Right after that I saw that program talking about womens issues and

giving me a little incite.

There is hope for your family too.

Liz D.

December 15, 2003

<<I am so glad you found something so helpful.

I am going to try it myself.

Thanks,

Robin>>

I can't find the books right now to give you the names of the authors,

but one is called " The Wisdom of Menopause " ...now I'll tell you right

now, this is written by an MD but she gets kind of wacky new-age

spiritual in it, connects symptoms to a whole bunch of life events, but

it's interesting and she's got good info in the other sections. She has

3 progesterone creams listed that she uses in her practice.

The other is called " What Your Doctor May NOT Tell You About Menopause, "

and this guy is really the pioneer in the field...he thinks progesterone

cream cures EVERYTHING! One thing he suggested was to use the cream on

parts of the body that hurt...he doesn't know why (don't you love

doctors who admit they don't know something???) but it helps the pain.

Definitely works for me! There is a list in the back of ones that have

been tested and confirmed.

Both books are not solely about menopause, they cover a wide range of

symptoms, and both stress diet and supplements and other changes also.

Pretty much goes along with what we learn/do here.

The cream I have been using is Pro-Gest Body Cream by Emerita. My hfs

said it was their best seller, and it's in both books. I am not

financially connected with them in any way! ; )

Good luck, and hope this helps!

M

December 15, 2003

Liz...

<<,

If your still fighting high estrogen I would suggest Cod Liver Oil

for your omega 3. I found a product that works better than the Cod

Liver Oil capsules. It is called Neuromins DHA plant source. This

product improved my mind when I was having such a bad problem with

the bath products.>>

Where do you get this? I will certainly look into it because that's the

next thing I have to work on, I have all the symptoms of ADD, which get

worse each time I a-d-d another kid! ; )

<<About pain, did you catch my complaints about bath products? My

inflammation is gone now.>>

Yes! I did, and found one of my bubble baths contains it, so I didn't

use it...but I rarely do anyway. Usually just the epsom salts.

<<Do you have an idea when you need to supplement with your hormonal

cream? Like only a few weeks and which weeks, or every day like me?>>

Well...I misread the box and thought I had to start on Day 2 of my

period, so I suffered through the whole week before and didn't use

it...by the time I figured out my mistake I didn't care about the

directions on the box! So for now I'm using it every day. If I use

half the recommended dose, the pain comes back, so I'm sticking to the

higher dose for now.

<<I had an imbalance I corrected myself because doctors wouldn't even

look into it.>>

My doctor wouldn't even TEST my estrogen levels, even when I told him I

thought it was related to my cycle, and my levels had been low in the

past. Damned insurance companies. I am doing this TOTALLY on my

own...though what else is new!

<<I saw something on a talk show that sounded like me.

I didn't know about the cream at that time. >>

I actually bought these books years ago because I saw something on Oprah

and was trying to help my best friend and my mother-in-law.

<<There is hope for your family too.>>

Thanks! I'm glad you found something, too. There is so much

information OUT there, I am convinced I can fix everything around here,

if I can just absorb it all...hopefully before I die! Take care!

M ; )

______________________________________________________________

December 15, 2003

,

The one I bought is from Nature's Way. Most health food stores carry

Nature's Way products. I bought mine from vitacost.com they are very

reasonable if you have a number of things to shop for and they sell

Progest very cheap there too.

Liz D.

> Liz...

>

> <<,

It is called Neuromins DHA plant source

> Where do you get this?

December 15, 2003

Thanks, .

I think we should own stock in some of these companies

Robin

December 16, 2003

What are NK cells?

Thanks,

Robin

December 16, 2003

To jump on this thread of topic. I thought I would mention, Dr. Megson suggested

another fish oil supplement labeled DHA, I researched it, and found the added

EPA over time has been shown to lower NK cells. Not what we need for our son who

is already immune compromised. So I called her office to ask for a source of DHA

without the added EPA. They were very accommodating and the neuromins came up.

It is a DHA supplement only, and they get their source of fish oil from Martek,

hope I'm spelling that right. Anyhow, Martek is supposedly screening every batch

of fish for mercury, but their fish is also raised separately. I'm going to call

and ask for their Assays. I was told this often gets companies to " come clean "

on their product and possible mercury contamination. If they do end up sending

me the assays, I'm supposed to look for PCB's and mercury. I'll let you know

what I find. My eyes are going out on me fast, usually my peripheral vision goes

first in the evening, and I've begun to experience that dry scalp flaking thing.

Sleeping every night with a heating pad was not great, but acceptable. I've been

experiencing too many little issues though for this to remain " acceptable " . Good

luck to you guys, I too believe the answers are out there, just have to find

them.

RE:pain