pain

[Guest guest]

Hi Gloria,

What's this about Celebrex interfering with the antibiotic? I'm using it,

100mg twice a day. I've tried stopping it but the pain and swelling get too

bad. If it does interfere then I'll have to take the two meds at different

times. Do you (or anyone) have further information?

Gail

> From: " Gloria M. Tate " <MissGloria@...>

> Reply- " Gloria M. Tate " <missgloria@...>

> Date: Thu, 22 Mar 2001 00:21:33 -0600

> <JE_Beach@...>, <rheumatic >

> Subject: Re: rheumatic pain

>

> Dear JB,

> Have you checked into what is causing such a pain? That is a problem

> with those of us who really have a lot of pain. We tend to blame everything

> on this disease and may overlook the symptoms of something even more

> serious.

> Well, I take Celebrex, but my doctor gave me vicodin when I was herxing

> really badly with Biaxin. I still need to take it, but I take it as little

> as possible and 1/2 pill at a time. It supposedly interferes with the

> antibiotic.

> Does anyone know something better for pain than vicodin?

> Thanks,

> Gloria

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Hi Gloria-

I take one Darvocet daily. Occasionally 2 when I have a big day planned or

when I'm feeling worse than usual. I don't know if it interferes with the

antibiotic. Do you? I have also taken Vicoden (when I recently had a

wisdom tooth pulled). I will say that the Vicoden was stronger than the

Darvocet, but made me sleepy. Darvocet doesn't cut as much of my pain, but

takes the edge off for me while allowing me to feel alert. That's how it

affects me, but not everyone. Some have said it doesn't do a thing for them

pain-wise. My husband has taken my Darvocet two times (don't tell) and says

he can't even tell he's taken anything.

Love,

Re: rheumatic pain

> Dear JB,

> Have you checked into what is causing such a pain? That is a problem

> with those of us who really have a lot of pain. We tend to blame

everything

> on this disease and may overlook the symptoms of something even more

> serious.

> Well, I take Celebrex, but my doctor gave me vicodin when I was

herxing

> really badly with Biaxin. I still need to take it, but I take it as

little

> as possible and 1/2 pill at a time. It supposedly interferes with the

> antibiotic.

> Does anyone know something better for pain than vicodin?

> Thanks,

> Gloria

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

I am sorry; I must have written it incorrectly. I meant that vicodin is

supposed to interfere with the antibiotics.

I know how you feel. I take twice as much Celebrex as you do, and I

still have pain.

love,

Gloria

[Guest guest]

Roe-

Can you tolerate heat?

Edina

RE: [ ]pain

Coleen

My pain is what would be diagnosed as fibromyalgia. In fact it was diagnosed as that. it is mostly in my upper back and neck. It is constant. If I move my arms or turn my neck it is worse. I also have a brace for carpel tunnel, I woke this morning with so much pain in my hand, I actually had to check to make sure I had the brace on. It has been a long time since I have had this kind of pain. At least six months. Just when you think you got rid of a symptom, it returns and worse than before. I really hate this disease.

roeWelcome to Easy Reference:Send a blank email message to: -Unsubscribe - Unsubscribe from the list -Digest - Switch your subscription to a digest format -Normal - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic The archives can be accessed at The chat room is always open! /chat

[Guest guest]

Coleen

My pain is what would be diagnosed as fibromyalgia. In fact it was diagnosed as that. it is mostly in my upper back and neck.

It is constant. If I move my arms

or turn my neck it is worse. I also

have a brace for carpel tunnel, I woke this morning with so much pain in my

hand, I actually had to check to make sure I had the brace on. It has been a long time since I have

had this kind of pain. At least

six months. Just when you think

you got rid of a symptom, it returns and worse than before. I really hate this

disease.

roe

[Guest guest]

Not at all, I cant go out in any kind of extreme weather, hot or

cold. I hate especially the

heat. Yesterday it was 75 degrees

in NYC, I had to go to the post office, my cars air conditioner is broken, and

just the slightest amount of heat knocks me out. I guess that’s why I fell asleep at 5 pm last night. I will be in my room (with AC) for the

entire summer. Nice life! it stinks, because I really feel

isolated in the summer. I just

cant handle it. Life used to be so

easy. I think most of us are

sensitive to heat.

Roe

[Guest guest]

My husband just started taking arava 2 weeks ago. So far he hasn't noticed

any change, nor has he had any side effects. Hopefully it will work well for

you!

Krista

[Guest guest]

In a message dated 10/23/01 4:12:03 AM Central Daylight Time,

geliott@... writes:

>

Sjogrens Syndrome. For more information ask you doctor because its not just

eyes its mouth and throat also.

[Guest guest]

For Melinda Wiman re: info for cancer patient,

She may have adhesions from the surgeries. The abdomen is not the only place

adhesions may occur. It is possible a massage therapist can help her with

this. She should get an authorization from her PCP or oncologist (Whoever is

in charge of her medical care. ) If they prefer, they could try a physical

therapist first, however, from my assessment through the small amount of

information given, I strongly suggest a licensed or certified (depends on

what your state law dictates) massage therapist for pain relief. Good luck.

Please post back with results.

Best Wishes,

Lexi Simonton

[Guest guest]

Melinda,

There are many reports of marihuana smokers using the drug to reduce pain:

post-surgery pain, headache, migraine, menstrual cramps, and so on. In

particular, marihuana is becoming increasingly recognized as a drug of choice

for pain that accompanies muscle spasm. This kind of pain is often chronic and

debilitating, especially in paraplegics, quadriplegics, other victims of

traumatic nerve injury, and people suffering from multiple sclerosis or cerebral

palsy. Many of these sufferers have discovered that cannabis not only allows

them to avoid the risks of opioids for pain relief, but also reduces muscle

spasms and tremors, sometimes allowing them to leave their wheelchairs. Cannabis

may act by mechanisms different from those of other analgesics. Some new

synthetic cannabinoids might prove to be especially effective as an analgesic „

a possibility implied by the recent discovery of cannabinoid nerve receptor

sites in the brain and other organs.

http://www.rxmarihuana.com/

Rand

Melinda Wiman <wiman@...> wrote: Request from a cancer patient:

The pain is not in her bones, but in the flesh all around her left side (where

she had a lumpectomy and axially surgery). There is no physical indication of

cancer, or anything else there that would cause pain. Oncologists, and pain

specialist are stumped by the pain. She has tried, acupuncture, Reiki,

hypnotherapy, Nutrition, Celebrex and other things. The only thing that seems

to help in about 80mg daily of Oxycontin. Do you know of anyone who has had

pain of this type and what has helped them.

Thoughts for her?

Thanks,

Melinda Wiman

[Guest guest]

Trudy

Unless there is a real contraindication, I strongly suggest you give SAM-e

a try. It is the cornerstone of my improvement.

I take many small doses of Magnesium daily, this avoid the gi issue. I do

not tolerate Malic acid although two doctors include it in their protocol.

The SAM-e and Magnesium help with the muscle pain, amongst other things.

Glucosamine sulphate will help with arthritis pain. MSM can help here

too.

I do not take any homeopathic remedies regulary.

officinalis is an herbal tincture which helps with my viral

issues.... it seems to be about as effective as the anticiral

pharmaceuticals. Which reminds me I have to go outside, cut some lemon balm

and make some more.

Flaxseed oil with yoghurt or cottage cheese ought to also help with the

rheumatoid arthritis as do the cherries.

mjh

In a message dated 6/25/02 7:45:36 PM Eastern Daylight Time,

tnew@... writes:

> Hi mjh and Loren,

>

> Thanks for sharing this with us. I have been experiencing more pain

> than usual (mind you, I have been under considerable stress the past

> few months).

>

> I find that epsom salts baths are essential for pain. I have also

> found massage therapy most beneficial. (My massage students are

> finished now and there won't be any more sessions until next January.

> I just learned that our health care will cover six massages per year,

> so I will ask my doctor about this the next time I see him. I think I

> will try to get through the summer on my own and save the massage

> treatments for the fall.)

>

> My doctor has me taking most of what you are taking (with the

> exception of SAM-e and the homeopathic). I find I am experiencing a

> lot of bowel problems with the magnesium. Once I saw an iridologist

> who worked with a lot of FM patients, and he told me that the

> magnesium was no good without malic acid. On another group that I am

> on the girls mentioned that they had total relief from pain with

> Glucosamine Sulfate with Chondroitin Sulfate. I will try this and see

> if it will work for me. Right now I am taking so many supplements

> that I am starting to rebel. (I keep thinking there has to be an

> easier way.) I spoke to a girl today, who is seeing my doctor, and

> she reported that after six months with him she now has had a good

> improvement in her health by following the plan. The only thing was

> (as she pointed out) she was not as sick as I am.

>

> That is interesting that Sears recommends fish oil. So does Mercola.

> I think that he recommended fish oil over the flax seed oil.

> http://www.mercola.com/2002/may/29/cancer.htm

>

> I also have gout. My pain seems to be coming from different sources.

> So right now I am eating lots of cherries--mmm, my favorite! LOL

> ...don't you just love cherry season! ;-)

>

> Kind regards,

> Trudy

>

> Message: 4

> Date: Tue, 25 Jun 2002 01:14:32 EDT

> From: foxhillers@...

> Subject: Re: Hello

>

> What has given me pain relief and some life back in dealing with

> FMS and CFIDS are: cranialscaral therapy, SAM-e, Magnesium, MSM and a

> combo of flaxseedoil

> (instead of fish oil which did nothing for me) mixed with homade

> yoghurt plus

> officinalis tincture.

> mjh

>

[Guest guest]

Kallie

Now, that makes a lot of sense. I can drink apple juice and apple cider

with none of the problems that I had with several different brands of Malic

Acid or Magnesium Malate.

mjh

ps I like Barefoot's thinking.

In a message dated 6/25/02 8:36:59 PM Eastern Daylight Time,

4optimallife@... writes:

> Dr. Barefoot suggests in his book " The Calcium Factor " that your

> calcium, magnesium and Vit. D be taken with apple juice which contains

> malic acid. That is what I do.

>

> Kallie

>

> 4optimallife@...

> http://www.4optimallife.com

> Magnetic Sleep Pads,

[Guest guest]

Dr. Barefoot suggests in his book " The Calcium Factor " that your

calcium, magnesium and Vit. D be taken with apple juice which contains malic

acid. That is what I do.

Kallie

4optimallife@...

http://www.4optimallife.com

Magnetic Sleep Pads, Zappers,

Ionizing- Alkalizing Water Filters,

Rebounders, Energy Therapies,

Re: Hello

>

> What has given me pain relief and some life back in dealing with

> FMS and CFIDS are: cranialscaral therapy, SAM-e, Magnesium, MSM and a

> combo of flaxseedoil

> (instead of fish oil which did nothing for me) mixed with homade

> yoghurt plus

> officinalis tincture.

> mjh

>

[Guest guest]

Hi, Trudy --

In regard to this comment:

Right now I am taking so many supplements

that I am starting to rebel. (I keep thinking there has to be an

easier way.)

Boy, am I with you there! I started using Seasilver which has all enzymes,

vitamins, minerals, plus a bunch of other healthy stuff ) in it. It's in a

liquid form like a juice that tastes pretty good. It's been a great change

which has allowed me to drop many of the other supplements I needed to take that

I was about gagging on. My doctor is all for it.

I get it here:

http://www.myseasilver.com/e_world/home.html

They have some cancer testimonials somewhere at that site. Guess it even cures

cancer if you take enough of it! I'll let you know if my ovarian cancer

magically goes away! LOL! (Not trying to be too sarcastic here. I AM open to

alternative treatments. It just seems like every company out there claims they

can cure cancer. I do like this product a lot, though....)

Torie

[Guest guest]

Hi mjh,

I don't think we can get SAM-e here in Canada without a doctor's

prescription. I would have to check that out the next time I go to my

health food store.

Thanks so much for the tip on spreading the magnesium out during the

day. I have read in so many different places that people with chronic

illnesses are deficient in magnesium, that it really bothered me that

I was not able to take it. The nurse at my doctor's office suggested

that I take the supplement in the evening, so I could deal with any

bowel problems first thing in the morning. But I think I like your

idea much better. I will give it a try.

Could you please tell me more about officinalis? What is it

and how do you make it up?

I am taking the flax seed oil, but without cottage cheese or yogurt.

(...I take it straight up! ;-) LOL My doctor does not want me taking

any dairy. I must confess that I am having problems with his diet.

It is such a lifestyle change. My husband said that it seems to be

like mexican cuisine, with all the beans, lentils and corn flour. I

find I do good as long as my husband is cooking the meals, but during

the day when I am too tired to prepare meals I wind up grabbing a

bun. (...I'm not to have any wheat.) I'm going to ask him to refer

me to a dietitian to help me create a meal plan, so I can follow his

diet. Being a professional dieter, I find I work best with meal

plans. One thing I don't like about his diet is that I am not allowed

to have any potatoes. Don't you think that is going a bit far? After

all, potatoes are a vegetable!

Thanks, again, for the great tips.

Kind regards,

Trudy

From: foxhillers@a...

Date: Tue Jun 25, 2002 8:01 pm

Subject: Re: [ ] Pain

Trudy

Unless there is a real contraindication, I strongly suggest you give

SAM-e a try. It is the cornerstone of my improvement. I take many

small doses of Magnesium daily, this avoid the gi issue. I do not

tolerate Malic acid although two doctors include it in their

protocol. The SAM-e and Magnesium help with the muscle pain, amongst

other things.

Glucosamine sulphate will help with arthritis pain. MSM can help here

too. I do not take any homeopathic remedies regulary.

officinalis is an herbal tincture which helps with my viral issues....

it seems to be about as effective as the anticiral pharmaceuticals.

Which reminds me I have to go outside, cut some lemon balm and make

some more.

Flaxseed oil with yoghurt or cottage cheese ought to also help with

the rheumatoid arthritis as do the cherries. mjh

[Guest guest]

Hi Kallie,

Great tip on taking apple juice as a substitute for malic acid. Just

last week I added the liquid Liquicks, Calcium & Magnesium. It also

has zinc and vitamin D3. (The iridologist that I saw really stressed

that it can't just be any old vitamin D, but that it has to be D3. I

thought that I would add it just to use it up. Want to use it up

before it expires.)

Kind regards,

Trudy

From: " kallie miller " <4optimallife@r...>

Date: Tue Jun 25, 2002 8:33 pm

Subject: Re: [ ] Pain

Dr. Barefoot suggests in his book " The Calcium Factor " that

your calcium, magnesium and Vit. D be taken with apple juice which

contains malic acid. That is what I do.

Kallie

[Guest guest]

Hi girls,

Would eating an apple be an effective to get the malic acid as

drinking apple juice? (Don't forget to eat the seeds--B17! ;-) LOL

Kind regards,

Trudy

From: foxhillers@a...

Date: Tue Jun 25, 2002 10:26 pm

Subject: Re: [ ] Pain

Kallie

Now, that makes a lot of sense. I can drink apple juice and apple

cider with none of the problems that I had with several different

brands of Malic Acid or Magnesium Malate.

mjh

ps I like Barefoot's thinking.

[Guest guest]

Hi Torie,

I went to the site and thought that it had some interesting things to

say. Of lately, I have really been thinking about asking my doctor

about liquid vitamins. I saw one ND who had would not put me on

vitamin supplements, because he didn't think that I would absorb

anything. That is why I think I would fair better with liquid

supplements.

I only buy supplements locally, so I will have to check out and see

what is available in the way of liquid vitamins from my health food

store. I did pick up a bottle of liquid minerals from my doctor's

office. I do find the liquid so much easier to take than the

supplements.

You sure got that right about all the of companies that claim that

their product is the " miracle cure. " As I struggle along here, I find

that I am really resenting all of the marketing. ...illness is such

big business! ...even when treated with alternative treatments. (I

think it is costing me about $500 per month for all of these

supplements. And that does not include the pharmaceuticals that I

need. I sure hope my disability goes through, otherwise I won't able

to continue on.)

Kind regards,

Trudy

From: " Jay & Gunther " <the.gunthers@g...>

Date: Tue Jun 25, 2002 10:29 pm

Subject: Re: [ ] Pain

Hi, Trudy --

In regard to this comment:

Right now I am taking so many supplements that I am starting to rebel.

(I keep thinking there has to be an easier way.)

Boy, am I with you there! I started using Seasilver which has all

enzymes, vitamins, minerals, plus a bunch of other healthy stuff )

in it. It's in a liquid form like a juice that tastes pretty good.

It's been a great change which has allowed me to drop many of the

other supplements I needed to take that I was about gagging on. My

doctor is all for it.

I get it here:

http://www.myseasilver.com/e_world/home.html

They have some cancer testimonials somewhere at that site. Guess it

even cures

cancer if you take enough of it! I'll let you know if my ovarian

cancer magically goes away! LOL! (Not trying to be too sarcastic here.

I AM open to alternative treatments. It just seems like every company

out there claims they can cure cancer. I do like this product a lot,

though....)

Torie

[Guest guest]

Trudy

Because I suspect I have a malabsorption problem, I now grind all my

tablet supplements in my coffee grinder and add them to hot water and drink

that along with a digestive enzyme. Homemade liquid vitamins!

mjh

In a message dated 6/26/02 1:21:45 AM Eastern Daylight Time,

tnew@... writes:

> Hi Torie,

>

> I went to the site and thought that it had some interesting things to

> say. Of lately, I have really been thinking about asking my doctor

> about liquid vitamins. I saw one ND who had would not put me on

> vitamin supplements, because he didn't think that I would absorb

> anything. That is why I think I would fair better with liquid

> supplements.

>

> I only buy supplements locally, so I will have to check out and see

> what is available in the way of liquid vitamins from my health food

> store. I did pick up a bottle of liquid minerals from my doctor's

> office. I do find the liquid so much easier to take than the

> supplements.

>

> You sure got that right about all the of companies that claim that

> their product is the " miracle cure. " As I struggle along here, I find

> that I am really resenting all of the marketing. ...illness is such

> big business! ...even when treated with alternative treatments. (I

> think it is costing me about $500 per month for all of these

> supplements. And that does not include the pharmaceuticals that I

> need. I sure hope my disability goes through, otherwise I won't able

> to continue on.)

>

> Kind regards,

> Trudy

>

[Guest guest]

Trudy

I hope you can find all the supplements you take in liquid form..... you

can make your 'liquid form' taste a bit better by adding a bit of orange or

lemon juice concentrate.... or even cherry juice concentrate.

Thanks for the report...... I did not say it tastes good, now did I? I just

swill it down and follow with a couple glasses of water.

mjh

In a message dated 6/26/02 8:03:02 PM Eastern Daylight Time,

tnew@... writes:

> Hi mjh,

>

> This morning I took apart all of my supplements and put them in an

> ounce of hot water, and then an ounce of cold water and then drank it

> up quickly! ;-) LOL ...it must be good for me, because it tastes

> AWFUL! I must say, it was a lot easier to take all of those

> supplements in liquid form; however, I really do think that Torie's

> supplements probably taste a lot better. I should mention that there

> were still some supplements that I had to take in capsule form (i.e.

> thymus, Vitamin E).

>

> I think I will be looking for a liquid vitamin supplement that tastes

> like cherries! ;-) LOL

>

> Kind regards,

> Trudy

>

[Guest guest]

Hi mjh,

This morning I took apart all of my supplements and put them in an

ounce of hot water, and then an ounce of cold water and then drank it

up quickly! ;-) LOL ...it must be good for me, because it tastes

AWFUL! I must say, it was a lot easier to take all of those

supplements in liquid form; however, I really do think that Torie's

supplements probably taste a lot better. I should mention that there

were still some supplements that I had to take in capsule form (i.e.

thymus, Vitamin E).

I think I will be looking for a liquid vitamin supplement that tastes

like cherries! ;-) LOL

Kind regards,

Trudy

Message: 13

Date: Wed, 26 Jun 2002 06:16:17 EDT

From: foxhillers@...

Subject: Re: Re: Pain

Trudy

Because I suspect I have a malabsorption problem, I now grind all

my tablet supplements in my coffee grinder and add them to hot water

and drink that along with a digestive enzyme. Homemade liquid

vitamins!

mjh

[Guest guest]

Louise,

Thank you so much for your concern. I think that you are reading my posts

correctly. Being a nurse, you know how painful sbo are. I feel that mine is

only a partial as I am still able to get something out of my bottom. I know

once I hear nothing, it is time to run not walk to the ER.

Now as for my knee, you are right again there. He feels the big fracture in

the patella, the doc now feels that the cement that he used during the

original TKR has also cracked and that is what is causing the whole patella

to be failing. I don't know. I am just not a very happy camper right now.

I really thought that I would not see the inside of an OR for my knees for

about another 10 years. I guess a small percentage of us just have these

problems.

Once again, thank you for your concern and I will keep you updated as my

surgery date gets closer and I start to freak out! LOL

Gentle, tender, angel hugs,

Debs in FL

[Guest guest]

(((((((((((Louise))))))))))))...I'm sorry you're in pain & discouraged.

I have no experience with Kineret but I imagine someone will be able to

give you some info. It really is ok to " whine " here...facing pain &

fatigue everyday wears one down, and sometimes you just GOTTA get it

out.

I'm with you...my fancy drinks have to be 'virgin', too.

Much Love, Dear Friend...

Tess

[Guest guest]

Louise,

I'm really sorry to read that you are in so much pain. Please do not

wait until the Kineret arrives before calling your doctor for relief. If

the Ultram isn't working very well, please call about possibly

increasing the dosage or getting another med. 's suggestion about

the fentanyl patch is a great idea. Other members have had great relief

from OxyContin, too. There are many, many strategies and meds for

dealing with pain. Please don't suffer needlessly. Please call.

I believe that Fabio would be a wonderful distraction! I saw a Fabio

screen saver on sale at a store nearby and thought of you.

[ ] Pain

> I am typing with one finger because that is the only one I can use

tonight. The Kineret has been approved and the script is at the mail

order pharmacy but it has not arrived yet and I am slowing down

drastically because of this pain and fatigue. I have had one cortisone

shot to try and tide me over until the med arrives but that has worn off

also.I am on Ultram for the pain which helps a little but doesn't kill

it completely. I am sorry that I am whining tonight but I just can't

seem to help it. I hate this disease and I hate what this disease has

taken from my life.Then I think of all that Debs in Fl has gone through

with still a long road ahead of her and I think -Girl you have Nothing

to complain about. But still the pain is relentless and just wears you

down. I am so discouraged. Has anyone had any experience with Kineret

that they could share with me? Like how long is the average time until

you start to get some relief. Well enough of the whining. I wonder what

my Cabana Boy-Fabio has been doing. He sure needs to bring the Mai-TAi's

or Pina Coladas here. Ha- I'm on Methotrexate so I could look at it but

not drink it. Louise in Alabama

[Guest guest]

ann...

The first four years I had RA my bloodwork did not show anything except high normals. My doc still felt I had it and sure enough, as time went by, all my blood factors that were an indicater of RA began to rise. My pain shifted fdrom place to place...no joint was safe. One day my feet and hands were bad, later my elbows and shoulders. Sometimes a few joints, other times it seemed my whole body ached. Many a night I spent under a hot shower trying to get relief at 3:00 in the morning while everyone else slept. It is a terrible, hurtful, miserable disease.

And yes, many of us do eventually get major relief. Some of us better than others. I am in a complete remission...No pain anywhere most of the time. A bad day is a one aspirin day and I am on nothing but vitamins and minocin. Keep the faith....some people get well in a few months, others take several years. The big question is after being on this a year are you any worse or better than before??? Most people will say they are better and a few will say they are about the same. I have never heard anyone say they were WORSE!! On my regular meds it was a long downhill run. It does take persistance and patience, but keeping this disease at bay is worth the effort. Martha