Guest guest Report post Posted February 6, 2000 I don't think he has ANY brain fog! Simone Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 6, 2000 I don't think he has ANY brain fog! Simone Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 7, 2000 Dear Marty: We cannot judge each other.....You are a courageous husband.....It sounds that what you did regarding keeping the genotype from your wife was done out of love.....It wouldn't have worked for me because I get in there and find out the facts myself, take a proactive role myself, and my husband, although he tries to be supportive, has never looked up any information on this disease....he prefers to hide his head in the sand......I'm the kind of person who wants to know as much as I can.....Sometimes I forget that I'm not the only person in my family with hep c......because I have it, all family members have to deal with it .... " have " it, in a sense....sometimes I forget that it's affecting everyone because I get so wrapped up in what's happening to ME.......i believe everything happens for a reason and that the true peace of God doesn't depend on our circumstances.....What a learning experience this is! Take care, Diane Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 7, 2000 Dear Marty: We cannot judge each other.....You are a courageous husband.....It sounds that what you did regarding keeping the genotype from your wife was done out of love.....It wouldn't have worked for me because I get in there and find out the facts myself, take a proactive role myself, and my husband, although he tries to be supportive, has never looked up any information on this disease....he prefers to hide his head in the sand......I'm the kind of person who wants to know as much as I can.....Sometimes I forget that I'm not the only person in my family with hep c......because I have it, all family members have to deal with it .... " have " it, in a sense....sometimes I forget that it's affecting everyone because I get so wrapped up in what's happening to ME.......i believe everything happens for a reason and that the true peace of God doesn't depend on our circumstances.....What a learning experience this is! Take care, Diane Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 14, 2002 Hi Louise, Marty's hearing was today. He may not know what the judge's decision is for 2-4 months. Of course sometimes the judge will tell on the same day. Depends on the judge I guess. Marty's probably on his way back to California. Hopefully he checks in with us tomorrow with the " scoop. " Your friend, tricia -- Marty Has anyone heard how Marty's SSD hearing went? I thought it was supposed to be yesterday? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 4, 2002 Dearest Marty, thank you so much friend for thinking about me and being kind and considerate during your own troubled times. Marty, we all think about you and pray for your happiness and better health. It is always so nice to see your name on the screen. Thank you friend. Love, Sue #2 -- Re: dear friends dear Sue #2 ; I am sorry to here that you are down again I will keep you in my prayers as you are one of the many very speacel friends I have on this sight so take care of your self your friend Marty Man Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 12, 2002 Hi Marty Man the New Man, How wonderful to receive such good news and all in such a close time. I'll bet your feet still haven't touched the ground. I guess the saying " Hang in there " really pertains to you as you really have been hanging on by a thread and its good to read that you are happy again. Two women fighting over you........can it even get better????? ) ) I smell a winning lotto ticket..... ) Keep in touch when you move so we can keep in touch....okay? xxoo Carmen Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 10, 2003 Marty, so sorry to hear of your sad loss. Sometimes you wonder whether these specialists really do know what they are doing. Not once have any of the doctors/specialists etc have mentioned about health remedies or whatever, even what diet you should be on. Whether just fresh fruit and vegies or even to avoid certain foods - just absolutely not one of them have said anything. Makes you wonder if they are really helping you or not doesn't it. It is a shame really. I am sure we all on this list are thinking of you at this moment. Janette Marty wrote: >Hi Steve. >My girlfriend, , just passed away one week ago at >26 after a year and a half long battle with Ewing's >Sarcoma. She chose the to take the chemo. She was >given regimen of doxorubicin (a.k.a Andriamycin), >Etoposide, Ifosfamide and I think cyclophosfamide >(spelling?). I immediately did my homework on all of >them and the both Ifosfamide and Doxorubicin are >extremely toxic to the reproductive system but en more >so to the heart. I found several sources that strongly >advised taking CoenzymeQ10 especially with the >doxorubicin. It was shown to protect the heart or at >least slow the damage from the chemo. Eventually, >died from congestive heart failure. Her heart was >working at 15% function at the end and her lungs kept >filling with fluids (they thought it was pneumonia!). >When I initially said I wanted to give her CoQ10, her >oncologist said he didn't feel comfortable with it >since he didn't know enough about it and that it might >interfere with her treatment. What a jackass. All I >could think at the time was: why don't you know about >it, since i knew and I'm not a doctor! I strongly >recommend getting a book by Ralph Moss, I think its >called Antioxidants Against Cancer. The whole book >deals with what supplements are not only safe to mix >with chemo, but which ones are crucial. I found my >copy at & Noble. The other important supplement >to take that reduced most of the nasty side effects is >get a good brand of pancreatic (digestive) enzymes, >such as WobezymN. There is a huge selection at The >Vitamin Shoppe. Not only do these help with the >nausea, but also it is proven to help remove the > " protective " coating around the tumor masses. In doing >so, the tumors respond better to the chemo when they >are exposed. was on that chemo for a full year >and had a fantastic response. Her original tumor was >about 11 cm long and was resting on top of her left >kidney and she many mets to her lungs and liver and >lymph nodes. After a year, her host tumor was down to >ony 2cm and her mets were clear on a PET scan, showing >no activity. They started talking about a bone marrow >transplant (big bucks!) and then suddenly, the chemo >stopped being effective. They tried topotecan, didn't >work. They tried a trial with Gleevec, didn't work at >all. And then just days before she'd died, they gave >her gemcidabime. Just remember, if this chemo works >for a time, be prepared with a true alternative (not a >nother chemo) for when it doesn't work. DO NOT TRY >OTHER CHEMOS. The tumor is too smart for them at that >point. Try something like the East Klinic in Ireland >or the Burzinski Clinic in Houston when the chemo >stops working. >Good luck to you and your wife. Stay strong and >positive for her. >Marty > _________________________________________________________________ Help STOP SPAM: Try the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 12, 2003 Thank you for the Happy Mothers Day wish friend. I miss you on the site and still think of you so often. We love you Marty, very much. We will always be here for you. Love, Sue #2 -- hello all well hello all and mostly to all you mothers,mothers to be and granmothers and greatgranmothers i just wanted to stop in an say hasppy mothers day to every one and say i am okay as best as can be for now still living on couches as we still do not have a aprtment yet hope soon as just can not do this a nother year any way the dragon is behaving just reminds me now and then but that is all i did find out one thing as most know i was forced to leave myex and funny thing we all know what stress dose to us well my stress leveal is also down ya think the two have some thing to do with each other ex wife gone stress gone hay she could not live with the dragon at lest she could chouse but we the strong survive and that is all of us and the ones that stand with us so with that love to all and happy mothers day ya even you dads know it so treat them to breakfast in bed the out to dinner as lodin the dish washer dose not mean getting the wife drunk well at lest on this mothers day monday new story LOL take care all Marty the man and red neck dragon hunter Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 20, 2003 Thanks, Jan. I surely hope you are right. Also, Marty is a pretty name and there was no offense taken. I definitely been called worse. Lovingly Just Marcy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 29, 2003 Marty, What is a EGD? When you were first dx in 1989 with AIH were you put on meds? Did you have a liver biospy ? Are you on any kinds of meds now? When my mom was flown by helicoptor to WV hospital many liver doctors talked to us. They said she had to have 25% of her liver to live. She didn't. But you do or otherwise you wouldn't be here. I guess when they do those living donor transplants they must take 25% of the donor's liver to transplant into the patient. I don't really know how it works but seems to make sense. I do know that you have to be very careful with infection. As soon as you feel you are coming down with something-you must call your doctor and get on a antibodic. Please don't feel doomed. You are not. You just need to take really good care of yourself. -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 29, 2003 : Thanks for your reply. To answer some of your questions: yes, I have been on Prednisone since 1989 and Imuran since about 1992. The combination has kept my liver enzymes within normal limits, but in spite of that I have developed cirrhosis. There were no symptoms of the cirrhosis other than extreme fatigue and pale stools. It took me a while to convince my GI that something was wrong. Finally he ordered a CAT Scan and biopsy which showed the cirrhosis, enlarged liver and spleen. Yes, my liver is still functioning quite well compared to many people. I guess my doctor feels I should be evaluated now so that in the future if I need transplantation I will be a known person to the team. I don't know if EGD is the right term, but I am having an endoscopy to check for esophageal/stomach/intestinal varicosities and to band them if there are any that require it. I am sure I will get over this "doomed" feeling, but right now things seem bleak. I need to focus on what I have and what I can do-which is a lot!!! Love, Marty P.S. The tomatoes are fine! No tomatoe worms yet - I hate those things-did you know they make noise? I would love to hear about the trench planting of the tomatoes. I have only been somewhat successful with my tomatoes in the past. I am hoping for a better turn out this year. We just had 24 hours of rain which helped a lot! Re: [ ] Marty Marty, What is a EGD? When you were first dx in 1989 with AIH were youput on meds? Did you have a liver biospy ? Are you on any kinds of medsnow? When my mom was flown by helicoptor to WV hospital many liverdoctors talked to us. They said she had to have 25% of her liver to live.She didn't. But you do or otherwise you wouldn't be here. I guess whenthey do those living donor transplants they must take 25% of the donor'sliver to transplant into the patient. I don't really know how it worksbut seems to make sense. I do know that you have to be very careful withinfection. As soon as you feel you are coming down with something-youmust call your doctor and get on a antibodic. Please don't feel doomed.You are not. You just need to take really good care of yourself. -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 2, 2003 Marty, Hope you are feeling well. Finished work early today so it's a good time to try and catch up on some of the posts. I want to tell you about the tomato plant my Dad grew. My Dad has always been into veggie gardens. He loves doing it. The spring after my mom died he just didn't want to do a garden at all! He said he will never garden again. Kept talking to him about it but he just wouldn't. Then one night he mentioned that he is thinking about planting one early girl for my mom. He had promised her that they would do early girls the following spring. He planted it. That plant grew like you wouldn't believe. Huge! It spread out all over the place! He picked 789 tomatoes from it! That doesn't even count the ones at the very end when the season was over. He was giving them away to everybody! He was even mailing them to everyone he knew! Also there was a double tomato that he picked near the end of the season that looked like the tomatoes were kissing. He still has it in his freezer. I have pictures he sent me of the plant as it grew so big and of the kissing tomato. He was so happy. (I believe my mom had something to do with it!) Since this, he now plants everything he use to. I call that a miracle! Take care! -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 2, 2003 Yeppers!! Now, that was a miracle! I loved it! Had to send it on to my family members...they are all country people and always got a garden. They will enjoy your story and will agree....your mom and the Good Lord had something to do with such a wonderful miracle. Love Just Marcy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 2, 2003 I would call that a miracle as well. What a wonderful story! I bet your Dad gave that one plant so much love and attention! Now I am inspired to get out there and cultivate! I haven't weeded in several days and it is time for more "Miracle Grow". Thanks for sharing that story. Marty Re: [ ] Marty Marty, Hope you are feeling well. Finished work early today so it's agood time to try and catch up on some of the posts. I want to tell youabout the tomato plant my Dad grew. My Dad has always been into veggiegardens. He loves doing it. The spring after my mom died he just didn'twant to do a garden at all! He said he will never garden again. Kepttalking to him about it but he just wouldn't. Then one night he mentionedthat he is thinking about planting one early girl for my mom. He hadpromised her that they would do early girls the following spring. Heplanted it. That plant grew like you wouldn't believe. Huge! It spreadout all over the place! He picked 789 tomatoes from it! That doesn't evencount the ones at the very end when the season was over. He was givingthem away to everybody! He was even mailing them to everyone he knew! Also there was a double tomato that he picked near the end of the seasonthat looked like the tomatoes were kissing. He still has it in hisfreezer. I have pictures he sent me of the plant as it grew so big and ofthe kissing tomato. He was so happy. (I believe my mom had something todo with it!) Since this, he now plants everything he use to. I call thata miracle! Take care! -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 2, 2003 , What a wonderful story! Thanks, your story brought tears to my eyes. Patty -----Original Message-----From: msaire [mailto:msaire@...] Sent: Wednesday, July 02, 2003 10:57 PM Subject: Re: [ ] Marty I would call that a miracle as well. What a wonderful story! I bet your Dad gave that one plant so much love and attention! Now I am inspired to get out there and cultivate! I haven't weeded in several days and it is time for more "Miracle Grow". Thanks for sharing that story. Marty Re: [ ] Marty Marty, Hope you are feeling well. Finished work early today so it's agood time to try and catch up on some of the posts. I want to tell youabout the tomato plant my Dad grew. My Dad has always been into veggiegardens. He loves doing it. The spring after my mom died he just didn'twant to do a garden at all! He said he will never garden again. Kepttalking to him about it but he just wouldn't. Then one night he mentionedthat he is thinking about planting one early girl for my mom. He hadpromised her that they would do early girls the following spring. Heplanted it. That plant grew like you wouldn't believe. Huge! It spreadout all over the place! He picked 789 tomatoes from it! That doesn't evencount the ones at the very end when the season was over. He was givingthem away to everybody! He was even mailing them to everyone he knew! Also there was a double tomato that he picked near the end of the seasonthat looked like the tomatoes were kissing. He still has it in hisfreezer. I have pictures he sent me of the plant as it grew so big and ofthe kissing tomato. He was so happy. (I believe my mom had something todo with it!) Since this, he now plants everything he use to. I call thata miracle! Take care! -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 3, 2003 What an amazing story ! How totally awesome, and I DO believe your Mom had something to do with that "kissing" tomatoe! How awesome! Thanks for sharing!!! Debby Re: [ ] Marty Marty, Hope you are feeling well. Finished work early today so it's agood time to try and catch up on some of the posts. I want to tell youabout the tomato plant my Dad grew. My Dad has always been into veggiegardens. He loves doing it. The spring after my mom died he just didn'twant to do a garden at all! He said he will never garden again. Kepttalking to him about it but he just wouldn't. Then one night he mentionedthat he is thinking about planting one early girl for my mom. He hadpromised her that they would do early girls the following spring. Heplanted it. That plant grew like you wouldn't believe. Huge! It spreadout all over the place! He picked 789 tomatoes from it! That doesn't evencount the ones at the very end when the season was over. He was givingthem away to everybody! He was even mailing them to everyone he knew! Also there was a double tomato that he picked near the end of the seasonthat looked like the tomatoes were kissing. He still has it in hisfreezer. I have pictures he sent me of the plant as it grew so big and ofthe kissing tomato. He was so happy. (I believe my mom had something todo with it!) Since this, he now plants everything he use to. I call thata miracle! Take care! -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 9, 2003 Marty Oops! I gave you the wrong home phone number. It's 208-323-7608. Talk to you soon. Bridget Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 22, 2003 Marty, I agree with Carole. It's been awhile since you had your bx. It doesn't hurt to call and check it out. Tell them about the itching too. When I think back, I was itching all over two years before I was dx with AIH. Felt like I had little spiders crawling all over me! I told different doctors when I would go and they would just look at me like I was nuts. Probably wrote down in the file that I was! When we had to drive to VA for my mom I was itching like crazy at the hospital. I figured there was something wrong with the chairs I were sitting on. No one else had that problem. I don't know if stress brings that out or not. Only get it now once in a while. My palms and fingers drive me crazy with the itching. I should look into the meds and use it for that. Sometimes it keeps me from been able to sleep. Take care! -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 23, 2003 Marty, I just looked up itching in the Palmer book . I just remember that itching (Pruritus) had something to do with bile flow. It says itching can occur in any liver disease complicated by cholestasis-impairment or failure of bile flow. There's more and more in chapter 15. Do you still have the book? I think you said you got it from the library. How's that for memory???? -NH PS-Since you said you were dx in 89 with AIH and you are now just getting itching you should probably tell your doctor. I don't really understand the bile flow stuff. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 2, 2003 Marty, It sounds like you had good results with your cherry tomatoes. My Dad had a good laugh about your dogs eating them off the vine! I don't know if you can drop a net over them or not. People do that for blueberries and raspberries to keep the birds from getting them. Sorry about your other tomatoes plants. My Dad has had the same trouble with a few of his. Did you use replace the dirt with new stuff when you put your tomato plants in the pots? That sometimes helps. He told me something about the tomato seeds could be infected or bad which can cause the bottom leaves to dye. I don't understand all that stuff. He said sometimes it happen and there isn't to much you can do. But, his celebrity tomatoes are doing really good and his peppers. Cukes aren't growing well for him this year. He said the cukes get to be about one inch and then that's it. He's working on the situation. Are your walnut trees black walnut? My Dad said you can't plant anything near black walnut. I have a good recipe for black walnut cake. I guess you can use regular walnuts too. My Mom made this for my Dad because he loves black walnuts. I never knew there black walnuts?? Walnuts are walnuts to me. I can send you this recipe, but, you can't forget the butter on this one!!!(LOL) Let me know. Can't remember if I asked you this before. What's the mg on the ambien that you take? Are you feeling better? Take Care! -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 2, 2003 : I take Ambien 5 mg. at bed time and I repeat the dose if I can't sleep or if I want to make sure I am going to sleep. That usually does the trick. I don't even hear my husband snoring any more. When I put the tomatoes in pots I used half new soil and half what they were already in. I am thinking it would have been a good idea to completely change the soil. All that potting was a really hard job though and I don't have enough energy to do anything else if this fails. We never use our black walnuts because they are too hard to get out of their shells. The squirrels know how to do it! I am having a lot of pain under my ribs on the right side, rotating around to the back. It hurts when I take a deep breath. This has been going on for 3 weeks. I will call the doctor on Monday if it persists. Meanwhile I have been getting by with Darvocet that my mother had left over. Does anyone know if Darvocet is harmful to the liver? Have a great week end everyone. Love, Marty -- Re: [ ] Re: Marty Marty, It sounds like you had good results with your cherry tomatoes. MyDad had a good laugh about your dogs eating them off the vine! I don'tknow if you can drop a net over them or not. People do that forblueberries and raspberries to keep the birds from getting them. Sorryabout your other tomatoes plants. My Dad has had the same trouble with afew of his. Did you use replace the dirt with new stuff when you putyour tomato plants in the pots? That sometimes helps. He told mesomething about the tomato seeds could be infected or bad which can causethe bottom leaves to dye. I don't understand all that stuff. He saidsometimes it happen and there isn't to much you can do. But, hiscelebrity tomatoes are doing really good and his peppers. Cukes aren'tgrowing well for him this year. He said the cukes get to be about oneinch and then that's it. He's working on the situation. Are your walnuttrees black walnut? My Dad said you can't plant anything near blackwalnut. I have a good recipe for black walnut cake. I guess you can useregular walnuts too. My Mom made this for my Dad because he loves blackwalnuts. I never knew there black walnuts?? Walnuts are walnuts to me. I can send you this recipe, but, you can't forget the butter on thisone!!!(LOL) Let me know. Can't remember if I asked you this before.What's the mg on the ambien that you take? Are you feeling better? Take Care! -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 2, 2003 Marty, They gave me darvocets for pain after I had my liver cysts drained and partly deroofed. Have a nice day, Lynmsaire <msaire@...> wrote: .. Meanwhile I have been getting by with Darvocet that my mother had left over. Does anyone know if Darvocet is harmful to the liver? Have a great week end everyone. Love, Marty -- Re: [ ] Re: Marty Marty, It sounds like you had good results with your cherry tomatoes. MyDad had a good laugh about your dogs eating them off the vine! I don'tknow if you can drop a net over them or not. People do that forblueberries and raspberries to keep the birds from getting them. Sorryabout your other tomatoes plants. My Dad has had the same trouble with afew of his. Did you use replace the dirt with new stuff when you putyour tomato plants in the pots? That sometimes helps. He told mesomething about the tomato seeds could be infected or bad which can causethe bottom leaves to dye. I don't understand all that stuff. He saidsometimes it happen and there isn't to much you can do. But, hiscelebrity tomatoes are doing really good and his peppers. Cukes aren'tgrowing well for him this year. He said the cukes get to be about oneinch and then that's it. He's working on the situation. Are your walnuttrees black walnut? My Dad said you can't plant anything near blackwalnut. I have a good recipe for black walnut cake. I guess you can useregular walnuts too. My Mom made this for my Dad because he loves blackwalnuts. I never knew there black walnuts?? Walnuts are walnuts to me. I can send you this recipe, but, you can't forget the butter on thisone!!!(LOL) Let me know. Can't remember if I asked you this before.What's the mg on the ambien that you take? Are you feeling better? Take Care! -NH Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 3, 2003 Marty, Darvocet has acetamenaphin (tylenol) in it. Tylenol is okay occasionally in small doses, but should not be taken on a regular basis by anyone with liver disease. I was taking Lortab, which has tylenol and hydrocodone, when I was diagnosed with AIH in January. My pain mgmt doc switched me to oxycodone immediately. There are not a lot of oral pain meds that do not have tylenol. According to my pharmacist, the main pain meds without tylenol are oxycodone and morphine. W Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 4, 2003 Marty, It sounds to me like that radiating pain could be your pancreas. I had lots of trouble with my pancreas when I was real sick. Doctors don't seem to know what causes it. Blood work is tricky. Sometimes they come out normal and other times it comes out high, but, never ignore that pain. Make sure you contact your doctor today! It's best to have both test- Amylase and Lipase. Lipase can be high when amylase is normal. They don't always check the lipase. As for black walnuts - My Dad uses a square piece of wood and a hammer. He just smacks the walnut once with the hammer to open it. He said you can use a vise too. It is hard to believe squirrels can open them! (Maybe you should watch them and find out their secret) My Dad says the Health food stores sell the walnuts (already cracked) by the pound. $8.00 a lb!! A way to make some extra cash. Or bake some black walnut cakes to sell to restaurants. Do you collect all the nuts and keep them for year round? In this book I have it says: Black walnuts aids in digestion and promotes healing of mouth or throat sores. Cleanses the body of some types of parasites. Good for bruising, fungal infection, herpes, poison ivy, and warts. When boiled, the hulls produce a dye that is used to dye wool. Take Care! -NH Quote Share this post Link to post Share on other sites
