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Re: You Tube Video Blasts Autism Speaks

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I actually hope that your son, and both of mine, make a full recovery

some day.

Cheers.

> >

> > So my son with Aspergers doesn't have a disability? It's all in my

> > head??

>

> No , it is not in your head. It is in the legal definition of

> disability. Words mean things. I didn't make it up. While it does vary

> from state to state, to be disabled means you are disabled. It does

> not mean you are high functioning. It means, for example you are

> blind, not just severly nearsighted. It means, for example, you are

> deaf, not just hard of hearing. It means, more or less, that if you

> are disabled, you require profound support, intervention and care

> 24/7. Aperger Syndrome is not a disability. Google DSM-IV.

>

> I do not exclude the high functioning disadvantaged from my advocacy.

> Why do you put other words in my mouth? For someday, I hope my son

> becomes merely HF disadvantaged, and not the profoundly disabled he is

> now. But I am entirely clear that my advocacy starts with the

> disabled first. I resist any advocacy that comes at the expense of the

> disabled. I resist any advocacy that attempts to trivialized how

> horrible autism is so that some HF people can feel better about

> themselves. Not at the expense of children like mine, they won't.

>

> Lenny

>

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Anyone who claims

> they want to be severely disabled should be

> cured for their own good.

>

I couldn't agree more with you. I've started my

ASD toddler on the GF/CF diet with great success.

My 21 Aspie is only semi-enthused about trying

this, or other bio-med therapies.

If he were capable to living by himself, and was

self-supporting, I would agree. However, when he

choses to " live with " his symptoms, especially

the anxiety, it means his entire family must live

with it.

Now that I'm aware of what's out there, I'd be

crazy to continue to live like this, or let him

chose it for himself, when he can't even imagine

the alternative.

Kim

________________________________________________________________________________\

____

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Games.

http://sims./

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Anyone who claims

> they want to be severely disabled should be

> cured for their own good.

>

I couldn't agree more with you. I've started my

ASD toddler on the GF/CF diet with great success.

My 21 Aspie is only semi-enthused about trying

this, or other bio-med therapies.

If he were capable to living by himself, and was

self-supporting, I would agree. However, when he

choses to " live with " his symptoms, especially

the anxiety, it means his entire family must live

with it.

Now that I'm aware of what's out there, I'd be

crazy to continue to live like this, or let him

chose it for himself, when he can't even imagine

the alternative.

Kim

________________________________________________________________________________\

____

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Games.

http://sims./

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I think she's confused with Bill , the AA recovery guy.

Hello, my name is Lenny,

I'm the recoverying parent

of an autistic child.

> > > >

> > > > I don't care too much for the video's author, Kent

> > > , aka

> > > " Christschool. " He's a pretty

> > > > vicious fella who attacks those of us who are

> > > using biomedical

> > > interventions to try to help

> > > > our kids.

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Park yourself in front of a world of choices in

> > > alternative vehicles.

> > > Visit the Auto Green Center.

> >

> >

> >

> >

>

________________________________________________________________________________\

____Shape

> in your own image. Join our Network Research Panel today!

> http://surveylink./gmrs/_panel_invite.asp?a=7

> >

>

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Guest guest

I think she's confused with Bill , the AA recovery guy.

Hello, my name is Lenny,

I'm the recoverying parent

of an autistic child.

> > > >

> > > > I don't care too much for the video's author, Kent

> > > , aka

> > > " Christschool. " He's a pretty

> > > > vicious fella who attacks those of us who are

> > > using biomedical

> > > interventions to try to help

> > > > our kids.

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Park yourself in front of a world of choices in

> > > alternative vehicles.

> > > Visit the Auto Green Center.

> >

> >

> >

> >

>

________________________________________________________________________________\

____Shape

> in your own image. Join our Network Research Panel today!

> http://surveylink./gmrs/_panel_invite.asp?a=7

> >

>

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Lenny is also headlining on the Neuro-Insane blog of Kev Leitch this

evening.....

Very sad people over there. And without sounding too judgemental...

they are EXTREMELY judgemental.

> > > > >

> > > > > I don't care too much for the video's author, Kent

> > > > , aka

> > > > " Christschool. " He's a pretty

> > > > > vicious fella who attacks those of us who are

> > > > using biomedical

> > > > interventions to try to help

> > > > > our kids.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Park yourself in front of a world of choices in

> > > > alternative vehicles.

> > > > Visit the Auto Green Center.

> > >

> > >

> > >

> > >

> >

>

______________________________________________________________________

______________Shape

> > in your own image. Join our Network Research Panel

today!

> > http://surveylink./gmrs/_panel_invite.asp?a=7

> > >

> >

>

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Lenny is also headlining on the Neuro-Insane blog of Kev Leitch this

evening.....

Very sad people over there. And without sounding too judgemental...

they are EXTREMELY judgemental.

> > > > >

> > > > > I don't care too much for the video's author, Kent

> > > > , aka

> > > > " Christschool. " He's a pretty

> > > > > vicious fella who attacks those of us who are

> > > > using biomedical

> > > > interventions to try to help

> > > > > our kids.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Park yourself in front of a world of choices in

> > > > alternative vehicles.

> > > > Visit the Auto Green Center.

> > >

> > >

> > >

> > >

> >

>

______________________________________________________________________

______________Shape

> > in your own image. Join our Network Research Panel

today!

> > http://surveylink./gmrs/_panel_invite.asp?a=7

> > >

> >

>

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Sorry I meant Bob.... The stress of the day. But I do have an inside connection to him.autismlink <cindy@...> wrote: I don't know about Bill , but I don't think Bob would.> > >> > > I don't care too much for the video's author, Kent> > , aka> > "Christschool." He's a pretty > > > vicious fella who attacks those of us who are> > using biomedical> > interventions to try to help > > > our kids.> > > > > > > > > > > > > > --------------------------------->

> Park yourself in front of a world of choices in> > alternative vehicles.> > Visit the Auto Green Center.> > > > __________________________________________________________Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7>

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

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Sorry I meant Bob.... The stress of the day. But I do have an inside connection to him.autismlink <cindy@...> wrote: I don't know about Bill , but I don't think Bob would.> > >> > > I don't care too much for the video's author, Kent> > , aka> > "Christschool." He's a pretty > > > vicious fella who attacks those of us who are> > using biomedical> > interventions to try to help > > > our kids.> > > > > > > > > > > > > > --------------------------------->

> Park yourself in front of a world of choices in> > alternative vehicles.> > Visit the Auto Green Center.> > > > __________________________________________________________Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7>

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

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I have a cousin with aspergers and a son with autism comparing them

is like comparing apples and oranges,I would never put them in the

same group.

F

> > >

> > > I don't agree, Lenny. The neurodiverse have an opinion too.

THEY

> > > HAVE AUTISM.

> >

> > They DO NOT HAVE AUTISM. They have a disorder, if at all, on the

> > autism spectrum, most likely Asperger Syndrome. Aspergers is not

> > autism, it is Aspergers. It has been given a different label

because

> > it is significantly different than core autism.

> >

> > The Neurodiverse are a hate group. They demonize parents who seek

> > treatment and cures for bonefide autism, the disability. There is

no

> > parent group anywhere who wants to force inhuman treatments on

their

> > kids as their straw man propaganda spouts -- although certainly

might

> > be individuals who do. They also want to redefine autism as

something

> > high functioning primarily. They act as if autism the disability

does

> > not exist. They promote their agenda at the expense of children

like

> > mine, and adults, who are disabled and are in need of treatment

and

> > cure, if possible. It is immoral to deny cures to the disabled.

> >

> >

> > > They have a disability too,

> >

> > Aspergers is not a disability. Disability has a specific

meaning. It

> > does not mean having high functioning disadvantages. It means that

> > without profound intervention and care, the individual will likely

> > perish. Only a small handful of HF advocates require that their

> > advocacy feeds off the disabled like the NDs do.

> >

> >

> > > and like it or not, they have a voice,

> > > they have opinions, and they want to be heard just like you.

> > >

> >

> > You won't find me repeating their bilge in my publications. These

> > people do not represent the disabled and they do not even

represent

> > those on the high end of the autism spectrum, imo. However,

there are

> > HF advocates that do not need to operate from an agenda of hating

> > parent groups who seek treatments and cures. I do what I can to

> > support and promote their efforts.

> >

> > Lenny

> >

>

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I have a cousin with aspergers and a son with autism comparing them

is like comparing apples and oranges,I would never put them in the

same group.

F

> > >

> > > I don't agree, Lenny. The neurodiverse have an opinion too.

THEY

> > > HAVE AUTISM.

> >

> > They DO NOT HAVE AUTISM. They have a disorder, if at all, on the

> > autism spectrum, most likely Asperger Syndrome. Aspergers is not

> > autism, it is Aspergers. It has been given a different label

because

> > it is significantly different than core autism.

> >

> > The Neurodiverse are a hate group. They demonize parents who seek

> > treatment and cures for bonefide autism, the disability. There is

no

> > parent group anywhere who wants to force inhuman treatments on

their

> > kids as their straw man propaganda spouts -- although certainly

might

> > be individuals who do. They also want to redefine autism as

something

> > high functioning primarily. They act as if autism the disability

does

> > not exist. They promote their agenda at the expense of children

like

> > mine, and adults, who are disabled and are in need of treatment

and

> > cure, if possible. It is immoral to deny cures to the disabled.

> >

> >

> > > They have a disability too,

> >

> > Aspergers is not a disability. Disability has a specific

meaning. It

> > does not mean having high functioning disadvantages. It means that

> > without profound intervention and care, the individual will likely

> > perish. Only a small handful of HF advocates require that their

> > advocacy feeds off the disabled like the NDs do.

> >

> >

> > > and like it or not, they have a voice,

> > > they have opinions, and they want to be heard just like you.

> > >

> >

> > You won't find me repeating their bilge in my publications. These

> > people do not represent the disabled and they do not even

represent

> > those on the high end of the autism spectrum, imo. However,

there are

> > HF advocates that do not need to operate from an agenda of hating

> > parent groups who seek treatments and cures. I do what I can to

> > support and promote their efforts.

> >

> > Lenny

> >

>

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Good luck trying but if their own flesh and blood daughter could not

enlighten them, then I do not hold out much hope that our voices

would readily prevail.

> > >

> > > I don't care too much for the video's author, Kent

> > , aka

> > " Christschool. " He's a pretty

> > > vicious fella who attacks those of us who are

> > using biomedical

> > interventions to try to help

> > > our kids.

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Park yourself in front of a world of choices in

> > alternative vehicles.

> > Visit the Auto Green Center.

>

>

>

>

______________________________________________________________________

______________Shape in your own image. Join our Network

Research Panel today!

http://surveylink./gmrs/_panel_invite.asp?a=7

>

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Guest guest

Good luck trying but if their own flesh and blood daughter could not

enlighten them, then I do not hold out much hope that our voices

would readily prevail.

> > >

> > > I don't care too much for the video's author, Kent

> > , aka

> > " Christschool. " He's a pretty

> > > vicious fella who attacks those of us who are

> > using biomedical

> > interventions to try to help

> > > our kids.

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Park yourself in front of a world of choices in

> > alternative vehicles.

> > Visit the Auto Green Center.

>

>

>

>

______________________________________________________________________

______________Shape in your own image. Join our Network

Research Panel today!

http://surveylink./gmrs/_panel_invite.asp?a=7

>

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I have a 15 year-old son with aspergers and an 11 year-old son with autism and I use the same biomedical interventions with both. And guess what? It works! Aspergers has its own problems. Just ask those who really want to have friends but don't know how. They are bully magnets and can't defend themselves or understand why. It can be so lonesome and confusing. Then they grow up, get together and call themselves neurodiverse and become royal pains in the ass! My aspie son can tell the differences from before I started him with interventions and now. First with the diet, which gave amazing results and then with supplements. He is a lot happier and appreciates that he now has friendships and can maintain them. He thinks the neurodiverse are a bunch of assholes who are selfish and can't see the real world

with their ridiculous views. He wants his little brother healed too. My older son is fifteen 6'1" and I still can't let him ride public transportation alone because he would get hopelessly lost. He has no abilities to turn in homework or remember what he supposed to be doing without a well maintained schedule. But he is an amazing artist and very compassionate. My sons are just two different kinds of apples.

Kathleen

The world is not yet exhausted; let me see something tomorrow which I never saw before.- *************************************************************************

Re: You Tube Video Blasts Autism Speaks

I have a cousin with aspergers and a son with autism comparing them is like comparing apples and oranges,I would never put them in the same group. F

TV dinner still cooling?Check out "Tonight's Picks" on TV.

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I have a 15 year-old son with aspergers and an 11 year-old son with autism and I use the same biomedical interventions with both. And guess what? It works! Aspergers has its own problems. Just ask those who really want to have friends but don't know how. They are bully magnets and can't defend themselves or understand why. It can be so lonesome and confusing. Then they grow up, get together and call themselves neurodiverse and become royal pains in the ass! My aspie son can tell the differences from before I started him with interventions and now. First with the diet, which gave amazing results and then with supplements. He is a lot happier and appreciates that he now has friendships and can maintain them. He thinks the neurodiverse are a bunch of assholes who are selfish and can't see the real world

with their ridiculous views. He wants his little brother healed too. My older son is fifteen 6'1" and I still can't let him ride public transportation alone because he would get hopelessly lost. He has no abilities to turn in homework or remember what he supposed to be doing without a well maintained schedule. But he is an amazing artist and very compassionate. My sons are just two different kinds of apples.

Kathleen

The world is not yet exhausted; let me see something tomorrow which I never saw before.- *************************************************************************

Re: You Tube Video Blasts Autism Speaks

I have a cousin with aspergers and a son with autism comparing them is like comparing apples and oranges,I would never put them in the same group. F

TV dinner still cooling?Check out "Tonight's Picks" on TV.

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Lenny,

IMO on this subject of high functioning verses diasabled versus

Asperger, versus........ If my child was Mercury poisoned from

vaccines, which she was, what catagory does that put her in? If she is

not as disabled as anyone elses child it doesn't change the fact that

she wouldn't be in ANY of these catagories if not for the assault by

Pharmas. I am not sorry she isn't as bad or disabled as maybe your

(anyones)child, compared to what she WOULD BE if not for the attack all

of our children suffered. I will not except that we are " so lucky that

she is Asperger " ....NO ONE IS LUCKY, it is just different levels of

immunity. You are not unlucky and I am not lucky, we are all in this

for the same reasons DAMAGE, DAMAGE DAMAGE to our kids on any part of

the spectrum.

Lori B

> >

> > So my son with Aspergers doesn't have a disability? It's all in my

> > head??

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Lenny,

IMO on this subject of high functioning verses diasabled versus

Asperger, versus........ If my child was Mercury poisoned from

vaccines, which she was, what catagory does that put her in? If she is

not as disabled as anyone elses child it doesn't change the fact that

she wouldn't be in ANY of these catagories if not for the assault by

Pharmas. I am not sorry she isn't as bad or disabled as maybe your

(anyones)child, compared to what she WOULD BE if not for the attack all

of our children suffered. I will not except that we are " so lucky that

she is Asperger " ....NO ONE IS LUCKY, it is just different levels of

immunity. You are not unlucky and I am not lucky, we are all in this

for the same reasons DAMAGE, DAMAGE DAMAGE to our kids on any part of

the spectrum.

Lori B

> >

> > So my son with Aspergers doesn't have a disability? It's all in my

> > head??

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You make a good point. ASDs are bad labeling to begin with. I would

be happy to let the ND's have the label " autism " if we could

sucessfully replace it with mercury and/or environmental poisoning or

some such.

Lenny

> > >

> > > So my son with Aspergers doesn't have a disability? It's all in my

> > > head??

>

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You make a good point. ASDs are bad labeling to begin with. I would

be happy to let the ND's have the label " autism " if we could

sucessfully replace it with mercury and/or environmental poisoning or

some such.

Lenny

> > >

> > > So my son with Aspergers doesn't have a disability? It's all in my

> > > head??

>

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Kathleen,

Thanks for sharing your story. Even with more healing to do with your

boys, its wonderful to hear how well things are going for the older

son. I hope his talents will bloom even more.

And I hope the younger son does great too.

Bless you guys.

In EOHarm , Kathleen Anne <child_book_writer@...>

wrote:

>

> I have a 15 year-old son with aspergers and an 11 year-old son

with autism and I use the same biomedical interventions with both.

And guess what? It works! Aspergers has its own problems. Just ask

those who really want to have friends but don't know how. They are

bully magnets and can't defend themselves or understand why. It can

be so lonesome and confusing. Then they grow up, get together and

call themselves neurodiverse and become royal pains in the ass! My

aspie son can tell the differences from before I started him with

interventions and now. First with the diet, which gave amazing

results and then with supplements. He is a lot happier and

appreciates that he now has friendships and can maintain them. He

thinks the neurodiverse are a bunch of assholes who are selfish and

can't see the real world with their ridiculous views. He wants his

little brother healed too. My older son is fifteen 6'1 " and I still

can't let him ride public transportation alone because he would

> get hopelessly lost. He has no abilities to turn in homework or

remember what he supposed to be doing without a well maintained

schedule. But he is an amazing artist and very compassionate. My sons

are just two different kinds of apples.

> Kathleen

>

>

> The world is not yet exhausted; let me see something tomorrow which

I never saw before.

> -

>

>

**********************************************************************

***

>

>

>

> Re: You Tube Video Blasts Autism Speaks

>

>

> I have a cousin with aspergers and a son with autism comparing them

> is like comparing apples and oranges,I would never put them in the

> same group.

>

>

> F

>

>

>

>

______________________________________________________________________

______________

> Expecting? Get great news right away with email Auto-Check.

> Try the Beta.

> http://advision.webevents./mailbeta/newmail_tools.html

>

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Guest guest

Kathleen,

Thanks for sharing your story. Even with more healing to do with your

boys, its wonderful to hear how well things are going for the older

son. I hope his talents will bloom even more.

And I hope the younger son does great too.

Bless you guys.

In EOHarm , Kathleen Anne <child_book_writer@...>

wrote:

>

> I have a 15 year-old son with aspergers and an 11 year-old son

with autism and I use the same biomedical interventions with both.

And guess what? It works! Aspergers has its own problems. Just ask

those who really want to have friends but don't know how. They are

bully magnets and can't defend themselves or understand why. It can

be so lonesome and confusing. Then they grow up, get together and

call themselves neurodiverse and become royal pains in the ass! My

aspie son can tell the differences from before I started him with

interventions and now. First with the diet, which gave amazing

results and then with supplements. He is a lot happier and

appreciates that he now has friendships and can maintain them. He

thinks the neurodiverse are a bunch of assholes who are selfish and

can't see the real world with their ridiculous views. He wants his

little brother healed too. My older son is fifteen 6'1 " and I still

can't let him ride public transportation alone because he would

> get hopelessly lost. He has no abilities to turn in homework or

remember what he supposed to be doing without a well maintained

schedule. But he is an amazing artist and very compassionate. My sons

are just two different kinds of apples.

> Kathleen

>

>

> The world is not yet exhausted; let me see something tomorrow which

I never saw before.

> -

>

>

**********************************************************************

***

>

>

>

> Re: You Tube Video Blasts Autism Speaks

>

>

> I have a cousin with aspergers and a son with autism comparing them

> is like comparing apples and oranges,I would never put them in the

> same group.

>

>

> F

>

>

>

>

______________________________________________________________________

______________

> Expecting? Get great news right away with email Auto-Check.

> Try the Beta.

> http://advision.webevents./mailbeta/newmail_tools.html

>

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Guest guest

Kathleen,

Your story is a good, and I believe a typical example of the hope and

good will that motivates most parents of children with autism for

recovery. Thanks for posting it

Lenny

>

> I have a 15 year-old son with aspergers and an 11 year-old son with

autism and I use the same biomedical interventions with both. And

guess what? It works! Aspergers has its own problems. Just ask those

who really want to have friends but don't know how. They are bully

magnets and can't defend themselves or understand why. It can be so

lonesome and confusing. Then they grow up, get together and call

themselves neurodiverse and become royal pains in the ass! My aspie

son can tell the differences from before I started him with

interventions and now. First with the diet, which gave amazing results

and then with supplements. He is a lot happier and appreciates that he

now has friendships and can maintain them. He thinks the neurodiverse

are a bunch of assholes who are selfish and can't see the real world

with their ridiculous views. He wants his little brother healed too.

My older son is fifteen 6'1 " and I still can't let him ride public

transportation alone because he would

> get hopelessly lost. He has no abilities to turn in homework or

remember what he supposed to be doing without a well maintained

schedule. But he is an amazing artist and very compassionate. My sons

are just two different kinds of apples.

> Kathleen

>

>

> The world is not yet exhausted; let me see something tomorrow which

I never saw before.

> -

>

>

*************************************************************************

>

>

>

> Re: You Tube Video Blasts Autism Speaks

>

>

> I have a cousin with aspergers and a son with autism comparing them

> is like comparing apples and oranges,I would never put them in the

> same group.

>

>

> F

>

>

>

>

________________________________________________________________________________\

____

> Expecting? Get great news right away with email Auto-Check.

> Try the Beta.

> http://advision.webevents./mailbeta/newmail_tools.html

>

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Guest guest

Kathleen,

Your story is a good, and I believe a typical example of the hope and

good will that motivates most parents of children with autism for

recovery. Thanks for posting it

Lenny

>

> I have a 15 year-old son with aspergers and an 11 year-old son with

autism and I use the same biomedical interventions with both. And

guess what? It works! Aspergers has its own problems. Just ask those

who really want to have friends but don't know how. They are bully

magnets and can't defend themselves or understand why. It can be so

lonesome and confusing. Then they grow up, get together and call

themselves neurodiverse and become royal pains in the ass! My aspie

son can tell the differences from before I started him with

interventions and now. First with the diet, which gave amazing results

and then with supplements. He is a lot happier and appreciates that he

now has friendships and can maintain them. He thinks the neurodiverse

are a bunch of assholes who are selfish and can't see the real world

with their ridiculous views. He wants his little brother healed too.

My older son is fifteen 6'1 " and I still can't let him ride public

transportation alone because he would

> get hopelessly lost. He has no abilities to turn in homework or

remember what he supposed to be doing without a well maintained

schedule. But he is an amazing artist and very compassionate. My sons

are just two different kinds of apples.

> Kathleen

>

>

> The world is not yet exhausted; let me see something tomorrow which

I never saw before.

> -

>

>

*************************************************************************

>

>

>

> Re: You Tube Video Blasts Autism Speaks

>

>

> I have a cousin with aspergers and a son with autism comparing them

> is like comparing apples and oranges,I would never put them in the

> same group.

>

>

> F

>

>

>

>

________________________________________________________________________________\

____

> Expecting? Get great news right away with email Auto-Check.

> Try the Beta.

> http://advision.webevents./mailbeta/newmail_tools.html

>

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and JUST AS SWEET.... wow.. what a story... biomedical does work... my son would not be at the point he is.. if I did not do what I did when he was first dx.. LiaSee what's free at AOL.com.

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Lenny,

Hon, I have to respectfully disagree with you on this subject.

I understand what you are saying, but I also think there is a lack of knowledge

when it

comes to Asperger's. Most attention goes to more severe cases of autism, and the

only

media coverage goes towards very high functioning aspergers.

Asperger's has a spectrum in itself, varying from very high functioning that

probably fits

what you describe as being disadvantaged rather than disabled. On the other end,

it is

more like high functioning autism.

A person would be hardpressed to find a kid with asperger's that is higher

functioning

than my son. BUT, he has the SAME IDENTICAL problems and symptoms as a child

with

autism, just on another level.

He barely spoke at all as a toddler. When he did, he reversed his pronouns, did

not

understand language and was evaluated at 3 years of age as being 15 months

behind in

language development. He has profound speech disorder, auditory processing

disorder

and still doesn't know simple words like what an 'end table' is. He never

responded to his

name, ignored people, gets fixated on things and is in a constant state of

confusion about

life in general.

His coordination problems were so bad that he could not walk in shoes. He is

eleven years

old and still can't use a knife to cut his own food. He couldn't skip until the

age of 8 and

has such severe upper body weakness that he canot even hold his baby sister

without her

slipping within moments. He is painfully thin, has the same food likes and

dislikes as

anyone else's kid here and has the same issues with not feeling all levels of

pain.

He gets easily frustrated, has melt downs and cries because we called him to

dinner and

he thinks we were yelling at him because we raised our voices.

He lined up cars, just like autistic kids do. He fixated on small stones and

threw them at

the ground over and over again for hours, just like an autistic kid would do. He

made no

eye contact, curled away from touches, and so on and so on and so on.

He has come a long long way and we are so proud of him, but he struggles every

day of

his life. And while the situations are very different, in some ways it is better

and others are

worse. He has to live and function in a world he does not understand. He has no

aid

walking around with him all day, keeping him safe and protected from noises,

anxieties

and bullies. He has the constant struggle of teachers with high expectations

that he

cannot meet. He tries to fit in and can't undersand what he does wrong.

He is disabled, but with no protection. And while I am ecstatic that he is doing

as well as

he does, I also live with an a child who has the same issues any child here has

with the

exception of him having words. The only other difference is the level of

disability in each

area, some of which may be worse for him than for others who are considered more

severe.

Asperger's is autism, and the only real defining difference is that they

acquired language

at a normal level. It has been heavily debated as to whether or not asperger's

should even

be defined as different than high functioning autism since many with asperger's,

my son

included, DID have language development delays. Because there is a known

spectrum of

problems with autism, and asperger's should not be differentiated as something

other

than autism. It is simply a higher functioning form with its own set of

individual problems.

I am not trying to say that it is as bad as having classic or more severe

autism. It is just

different in that the same symptoms are present, but at a different level. We

all are in the

same boat of autism which is why we are all here. Some boats may be better than

others,

but the water we are treading is the same river going upstream.

And yes, parents of kids with asperger's are in one boat that is definately

different. We

have kids that do understand what is going on, that they are different and we

are raising

them to be proud of themselves, to have high self esteem and to not 'feel'

disabled, if we

can. We struggle with telling them that it is ok to be different, that we are

all different, that

being who they are is ok.

As they grow up, God willing, they will be proud of themselves and like who they

are,

despite their 'autism'. And if we can accomplish that, they will probably feel

much like the

neurodiverse group does. So...it is harder for us to bash them for all of their

thoughts and

opinions. No, we don't agree that autism is a choice. We don't agree that autism

should

not be cured. But, we can understand how they feel proud of themselves, despite

having

autism.

It is a catch 22 for us and for our kids. I believe that is what was

trying to convey.

I am actually glad this issue came up. I think the lack of knowledge about

asperger's drives

a lot of people to question it. I know I have caught 'looks' a few times from

people at rallys

for even being there because my son was not 'autistic' enough. One woman went as

far as

to ask me right out why I was there.

Maybe it was time for the discussion to open up so everyone can realize that

parents of

kids with asperger's are also dealing with plenty on our plates as well, and we

are here

fighting for the same reasons.

Take care, all.

Col

> >

> > So my son with Aspergers doesn't have a disability? It's all in my

> > head??

>

> No , it is not in your head. It is in the legal definition of

> disability. Words mean things. I didn't make it up. While it does vary

> from state to state, to be disabled means you are disabled. It does

> not mean you are high functioning. It means, for example you are

> blind, not just severly nearsighted. It means, for example, you are

> deaf, not just hard of hearing. It means, more or less, that if you

> are disabled, you require profound support, intervention and care

> 24/7. Aperger Syndrome is not a disability. Google DSM-IV.

>

> I do not exclude the high functioning disadvantaged from my advocacy.

> Why do you put other words in my mouth? For someday, I hope my son

> becomes merely HF disadvantaged, and not the profoundly disabled he is

> now. But I am entirely clear that my advocacy starts with the

> disabled first. I resist any advocacy that comes at the expense of the

> disabled. I resist any advocacy that attempts to trivialized how

> horrible autism is so that some HF people can feel better about

> themselves. Not at the expense of children like mine, they won't.

>

> Lenny

>

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