Re: You Tube Video Blasts Autism Speaks

[Guest guest]

Therein lies the problem -- there are so many different versions of

autism. You have aspies, who can blog, as Kim S. so eloquently wrote,

you have those who are sometimes referred to as " lower functioning " --

and sometimes have " crapisodes. "

Nobody in their right mind with a child who is more severely impaired

would object to a cure. Those who are higher functioning take the

quest for a cure as genocide.

It's pretty easy to see where the divide in opinion comes in.

" Neurodiversity exists to defend the drug companies " -- this statement

does not sound sane to me.

> > > >

> > > > I don't care too much for the video's author, Kent , aka

> > > " Christschool. " He's a pretty

> > > > vicious fella who attacks those of us who are using biomedical

> > > interventions to try to help

> > > > our kids.

> > >

> >

>

[Guest guest]

Therein lies the problem -- there are so many different versions of

autism. You have aspies, who can blog, as Kim S. so eloquently wrote,

you have those who are sometimes referred to as " lower functioning " --

and sometimes have " crapisodes. "

Nobody in their right mind with a child who is more severely impaired

would object to a cure. Those who are higher functioning take the

quest for a cure as genocide.

It's pretty easy to see where the divide in opinion comes in.

" Neurodiversity exists to defend the drug companies " -- this statement

does not sound sane to me.

> > > >

> > > > I don't care too much for the video's author, Kent , aka

> > > " Christschool. " He's a pretty

> > > > vicious fella who attacks those of us who are using biomedical

> > > interventions to try to help

> > > > our kids.

> > >

> >

>

[Guest guest]

>

> I don't agree, Lenny. The neurodiverse have an opinion too. THEY

> HAVE AUTISM.

They DO NOT HAVE AUTISM. They have a disorder, if at all, on the

autism spectrum, most likely Asperger Syndrome. Aspergers is not

autism, it is Aspergers. It has been given a different label because

it is significantly different than core autism.

The Neurodiverse are a hate group. They demonize parents who seek

treatment and cures for bonefide autism, the disability. There is no

parent group anywhere who wants to force inhuman treatments on their

kids as their straw man propaganda spouts -- although certainly might

be individuals who do. They also want to redefine autism as something

high functioning primarily. They act as if autism the disability does

not exist. They promote their agenda at the expense of children like

mine, and adults, who are disabled and are in need of treatment and

cure, if possible. It is immoral to deny cures to the disabled.

> They have a disability too,

Aspergers is not a disability. Disability has a specific meaning. It

does not mean having high functioning disadvantages. It means that

without profound intervention and care, the individual will likely

perish. Only a small handful of HF advocates require that their

advocacy feeds off the disabled like the NDs do.

> and like it or not, they have a voice,

> they have opinions, and they want to be heard just like you.

>

You won't find me repeating their bilge in my publications. These

people do not represent the disabled and they do not even represent

those on the high end of the autism spectrum, imo. However, there are

HF advocates that do not need to operate from an agenda of hating

parent groups who seek treatments and cures. I do what I can to

support and promote their efforts.

Lenny

[Guest guest]

>

> I don't agree, Lenny. The neurodiverse have an opinion too. THEY

> HAVE AUTISM.

They DO NOT HAVE AUTISM. They have a disorder, if at all, on the

autism spectrum, most likely Asperger Syndrome. Aspergers is not

autism, it is Aspergers. It has been given a different label because

it is significantly different than core autism.

The Neurodiverse are a hate group. They demonize parents who seek

treatment and cures for bonefide autism, the disability. There is no

parent group anywhere who wants to force inhuman treatments on their

kids as their straw man propaganda spouts -- although certainly might

be individuals who do. They also want to redefine autism as something

high functioning primarily. They act as if autism the disability does

not exist. They promote their agenda at the expense of children like

mine, and adults, who are disabled and are in need of treatment and

cure, if possible. It is immoral to deny cures to the disabled.

> They have a disability too,

Aspergers is not a disability. Disability has a specific meaning. It

does not mean having high functioning disadvantages. It means that

without profound intervention and care, the individual will likely

perish. Only a small handful of HF advocates require that their

advocacy feeds off the disabled like the NDs do.

> and like it or not, they have a voice,

> they have opinions, and they want to be heard just like you.

>

You won't find me repeating their bilge in my publications. These

people do not represent the disabled and they do not even represent

those on the high end of the autism spectrum, imo. However, there are

HF advocates that do not need to operate from an agenda of hating

parent groups who seek treatments and cures. I do what I can to

support and promote their efforts.

Lenny

[Guest guest]

So my son with Aspergers doesn't have a disability? It's all in my

head?? I'm only welcome in the autism community of Lenny Schafer if

my son has a more severe form of autism?

I'm so sorry that my son is not autistic enough for you!

> >

> > I don't agree, Lenny. The neurodiverse have an opinion too. THEY

> > HAVE AUTISM.

>

> They DO NOT HAVE AUTISM. They have a disorder, if at all, on the

> autism spectrum, most likely Asperger Syndrome. Aspergers is not

> autism, it is Aspergers. It has been given a different label because

> it is significantly different than core autism.

>

> The Neurodiverse are a hate group. They demonize parents who seek

> treatment and cures for bonefide autism, the disability. There is no

> parent group anywhere who wants to force inhuman treatments on their

> kids as their straw man propaganda spouts -- although certainly might

> be individuals who do. They also want to redefine autism as something

> high functioning primarily. They act as if autism the disability does

> not exist. They promote their agenda at the expense of children like

> mine, and adults, who are disabled and are in need of treatment and

> cure, if possible. It is immoral to deny cures to the disabled.

>

>

> > They have a disability too,

>

> Aspergers is not a disability. Disability has a specific meaning. It

> does not mean having high functioning disadvantages. It means that

> without profound intervention and care, the individual will likely

> perish. Only a small handful of HF advocates require that their

> advocacy feeds off the disabled like the NDs do.

>

>

> > and like it or not, they have a voice,

> > they have opinions, and they want to be heard just like you.

> >

>

> You won't find me repeating their bilge in my publications. These

> people do not represent the disabled and they do not even represent

> those on the high end of the autism spectrum, imo. However, there are

> HF advocates that do not need to operate from an agenda of hating

> parent groups who seek treatments and cures. I do what I can to

> support and promote their efforts.

>

> Lenny

>

[Guest guest]

So my son with Aspergers doesn't have a disability? It's all in my

head?? I'm only welcome in the autism community of Lenny Schafer if

my son has a more severe form of autism?

I'm so sorry that my son is not autistic enough for you!

> >

> > I don't agree, Lenny. The neurodiverse have an opinion too. THEY

> > HAVE AUTISM.

>

> They DO NOT HAVE AUTISM. They have a disorder, if at all, on the

> autism spectrum, most likely Asperger Syndrome. Aspergers is not

> autism, it is Aspergers. It has been given a different label because

> it is significantly different than core autism.

>

> The Neurodiverse are a hate group. They demonize parents who seek

> treatment and cures for bonefide autism, the disability. There is no

> parent group anywhere who wants to force inhuman treatments on their

> kids as their straw man propaganda spouts -- although certainly might

> be individuals who do. They also want to redefine autism as something

> high functioning primarily. They act as if autism the disability does

> not exist. They promote their agenda at the expense of children like

> mine, and adults, who are disabled and are in need of treatment and

> cure, if possible. It is immoral to deny cures to the disabled.

>

>

> > They have a disability too,

>

> Aspergers is not a disability. Disability has a specific meaning. It

> does not mean having high functioning disadvantages. It means that

> without profound intervention and care, the individual will likely

> perish. Only a small handful of HF advocates require that their

> advocacy feeds off the disabled like the NDs do.

>

>

> > and like it or not, they have a voice,

> > they have opinions, and they want to be heard just like you.

> >

>

> You won't find me repeating their bilge in my publications. These

> people do not represent the disabled and they do not even represent

> those on the high end of the autism spectrum, imo. However, there are

> HF advocates that do not need to operate from an agenda of hating

> parent groups who seek treatments and cures. I do what I can to

> support and promote their efforts.

>

> Lenny

>

[Guest guest]

" Neurodiversity exists to defend the drug companies " -- this statement

> does not sound sane to me.

, If you read more ND blogs, you will see the truth in that

statement. All they do is bash anyone who tries to cure autism. The

only people who can benefit from autism not being cured are the drug

companies who caused the epidemic. Children who are cured with

chelation are evidence against the drug companies in court. That is

the last thing they want to see.

>

> > > > >

> > > > > I don't care too much for the video's author, Kent ,

aka

> > > > " Christschool. " He's a pretty

> > > > > vicious fella who attacks those of us who are using

biomedical

> > > > interventions to try to help

> > > > > our kids.

> > > >

> > >

> >

>

[Guest guest]

" Neurodiversity exists to defend the drug companies " -- this statement

> does not sound sane to me.

, If you read more ND blogs, you will see the truth in that

statement. All they do is bash anyone who tries to cure autism. The

only people who can benefit from autism not being cured are the drug

companies who caused the epidemic. Children who are cured with

chelation are evidence against the drug companies in court. That is

the last thing they want to see.

>

> > > > >

> > > > > I don't care too much for the video's author, Kent ,

aka

> > > > " Christschool. " He's a pretty

> > > > > vicious fella who attacks those of us who are using

biomedical

> > > > interventions to try to help

> > > > > our kids.

> > > >

> > >

> >

>

[Guest guest]

I do think Bill and his wife Suzanne would be

very willing to meet with some autism groups.

--- nancie f <njladygolfer57@...> wrote:

> What if we had a meeting with Bill and

> addressed our concerns?

> Anyone up for that or do you think it would be a

> waste of time?

>

> schaferatsprynet <schafer@...> wrote:

>

> This is reactionary neurodiverse twaddle. Autism

> Speaks cannot be

> defended for a few important things that they do or

> don't do, but the

> ND crowd carry no moral weight themselves to be

> making such criticisms.

>

> Given AS's love affair with big pharma and genetics

> -- and if the

> failed Pretending to Combat Autism Act is any

> example of AS's

> political prowess. . . I would prefer they stay out

> of politics. The

> scarey thing is that AS is moving heavily in that

> direction in their

> Borg effort to supplant the ASA as the voice of

> autism, amongst other

> things.

>

> Better just to ignore whining neurodiverse

> poppycock. Autism is a

> disability, not a small confederation of HF

> misanthrops.

>

> Lenny

>

>

> >

> > I don't care too much for the video's author, Kent

> , aka

> " Christschool. " He's a pretty

> > vicious fella who attacks those of us who are

> using biomedical

> interventions to try to help

> > our kids.

>

>

>

>

>

>

> ---------------------------------

> Park yourself in front of a world of choices in

> alternative vehicles.

> Visit the Auto Green Center.

________________________________________________________________________________\

____Shape in your own image. Join our Network Research Panel today!

http://surveylink./gmrs/_panel_invite.asp?a=7

[Guest guest]

I do think Bill and his wife Suzanne would be

very willing to meet with some autism groups.

--- nancie f <njladygolfer57@...> wrote:

> What if we had a meeting with Bill and

> addressed our concerns?

> Anyone up for that or do you think it would be a

> waste of time?

>

> schaferatsprynet <schafer@...> wrote:

>

> This is reactionary neurodiverse twaddle. Autism

> Speaks cannot be

> defended for a few important things that they do or

> don't do, but the

> ND crowd carry no moral weight themselves to be

> making such criticisms.

>

> Given AS's love affair with big pharma and genetics

> -- and if the

> failed Pretending to Combat Autism Act is any

> example of AS's

> political prowess. . . I would prefer they stay out

> of politics. The

> scarey thing is that AS is moving heavily in that

> direction in their

> Borg effort to supplant the ASA as the voice of

> autism, amongst other

> things.

>

> Better just to ignore whining neurodiverse

> poppycock. Autism is a

> disability, not a small confederation of HF

> misanthrops.

>

> Lenny

>

>

> >

> > I don't care too much for the video's author, Kent

> , aka

> " Christschool. " He's a pretty

> > vicious fella who attacks those of us who are

> using biomedical

> interventions to try to help

> > our kids.

>

>

>

>

>

>

> ---------------------------------

> Park yourself in front of a world of choices in

> alternative vehicles.

> Visit the Auto Green Center.

________________________________________________________________________________\

____Shape in your own image. Join our Network Research Panel today!

http://surveylink./gmrs/_panel_invite.asp?a=7

[Guest guest]

fwiw I don't think they are there to defend pharma, or are paid by it,

to me it feels they are driven solely by very low personal reasons,

things like malice, envy, jealousy... personal misery attenuated if more

people around you are suffering the same fate... schadenfreude is a nice

word here too...

Natasa

> > > > > >

> > > > > > I don't care too much for the video's author, Kent ,

> aka

> > > > > " Christschool. " He's a pretty

> > > > > > vicious fella who attacks those of us who are using

> biomedical

> > > > > interventions to try to help

> > > > > > our kids.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

fwiw I don't think they are there to defend pharma, or are paid by it,

to me it feels they are driven solely by very low personal reasons,

things like malice, envy, jealousy... personal misery attenuated if more

people around you are suffering the same fate... schadenfreude is a nice

word here too...

Natasa

> > > > > >

> > > > > > I don't care too much for the video's author, Kent ,

> aka

> > > > > " Christschool. " He's a pretty

> > > > > > vicious fella who attacks those of us who are using

> biomedical

> > > > > interventions to try to help

> > > > > > our kids.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

My 8 yo daughter with autism HATES autism. She hates the fact that

she doesn't understand things that others understand. She hates

that she can't seem to make and hold on to friends. She hates that

she is different and doesn't know how to change. She hates being

confused by life.

She does not hate herself. Autism is not who she is. So, in the ND

community, what does that make her?? She WANTS TO BE CURED.

> > > >

> > > > I don't care too much for the video's author, Kent , aka

> > > " Christschool. " He's a pretty

> > > > vicious fella who attacks those of us who are using

biomedical

> > > interventions to try to help

> > > > our kids.

> > >

> >

>

[Guest guest]

My 8 yo daughter with autism HATES autism. She hates the fact that

she doesn't understand things that others understand. She hates

that she can't seem to make and hold on to friends. She hates that

she is different and doesn't know how to change. She hates being

confused by life.

She does not hate herself. Autism is not who she is. So, in the ND

community, what does that make her?? She WANTS TO BE CURED.

> > > >

> > > > I don't care too much for the video's author, Kent , aka

> > > " Christschool. " He's a pretty

> > > > vicious fella who attacks those of us who are using

biomedical

> > > interventions to try to help

> > > > our kids.

> > >

> >

>

[Guest guest]

>

> So my son with Aspergers doesn't have a disability? It's all in my

> head??

No , it is not in your head. It is in the legal definition of

disability. Words mean things. I didn't make it up. While it does vary

from state to state, to be disabled means you are disabled. It does

not mean you are high functioning. It means, for example you are

blind, not just severly nearsighted. It means, for example, you are

deaf, not just hard of hearing. It means, more or less, that if you

are disabled, you require profound support, intervention and care

24/7. Aperger Syndrome is not a disability. Google DSM-IV.

I do not exclude the high functioning disadvantaged from my advocacy.

Why do you put other words in my mouth? For someday, I hope my son

becomes merely HF disadvantaged, and not the profoundly disabled he is

now. But I am entirely clear that my advocacy starts with the

disabled first. I resist any advocacy that comes at the expense of the

disabled. I resist any advocacy that attempts to trivialized how

horrible autism is so that some HF people can feel better about

themselves. Not at the expense of children like mine, they won't.

Lenny

[Guest guest]

>

> So my son with Aspergers doesn't have a disability? It's all in my

> head??

No , it is not in your head. It is in the legal definition of

disability. Words mean things. I didn't make it up. While it does vary

from state to state, to be disabled means you are disabled. It does

not mean you are high functioning. It means, for example you are

blind, not just severly nearsighted. It means, for example, you are

deaf, not just hard of hearing. It means, more or less, that if you

are disabled, you require profound support, intervention and care

24/7. Aperger Syndrome is not a disability. Google DSM-IV.

I do not exclude the high functioning disadvantaged from my advocacy.

Why do you put other words in my mouth? For someday, I hope my son

becomes merely HF disadvantaged, and not the profoundly disabled he is

now. But I am entirely clear that my advocacy starts with the

disabled first. I resist any advocacy that comes at the expense of the

disabled. I resist any advocacy that attempts to trivialized how

horrible autism is so that some HF people can feel better about

themselves. Not at the expense of children like mine, they won't.

Lenny

[Guest guest]

I don't know about Bill , but I don't think Bob would.

> > >

> > > I don't care too much for the video's author, Kent

> > , aka

> > " Christschool. " He's a pretty

> > > vicious fella who attacks those of us who are

> > using biomedical

> > interventions to try to help

> > > our kids.

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Park yourself in front of a world of choices in

> > alternative vehicles.

> > Visit the Auto Green Center.

>

>

>

>

________________________________________________________________________________\

____Shape

in your own image. Join our Network Research Panel today!

http://surveylink./gmrs/_panel_invite.asp?a=7

>

[Guest guest]

I don't know about Bill , but I don't think Bob would.

> > >

> > > I don't care too much for the video's author, Kent

> > , aka

> > " Christschool. " He's a pretty

> > > vicious fella who attacks those of us who are

> > using biomedical

> > interventions to try to help

> > > our kids.

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Park yourself in front of a world of choices in

> > alternative vehicles.

> > Visit the Auto Green Center.

>

>

>

>

________________________________________________________________________________\

____Shape

in your own image. Join our Network Research Panel today!

http://surveylink./gmrs/_panel_invite.asp?a=7

>

[Guest guest]

Thank you . I believe my son feels the same way, but he can't

tell me. He's 11 and he doesn't talk and he doesn't blog and he

doesn't type 120 words per minute.... I can only guess what he's

thinking. But when he is biting the permanent scar on his hand or

banging his head, I presumptously assume he's not happy...

> > > > >

> > > > > I don't care too much for the video's author, Kent ,

aka

> > > > " Christschool. " He's a pretty

> > > > > vicious fella who attacks those of us who are using

> biomedical

> > > > interventions to try to help

> > > > > our kids.

> > > >

> > >

> >

>

[Guest guest]

Thank you . I believe my son feels the same way, but he can't

tell me. He's 11 and he doesn't talk and he doesn't blog and he

doesn't type 120 words per minute.... I can only guess what he's

thinking. But when he is biting the permanent scar on his hand or

banging his head, I presumptously assume he's not happy...

> > > > >

> > > > > I don't care too much for the video's author, Kent ,

aka

> > > > " Christschool. " He's a pretty

> > > > > vicious fella who attacks those of us who are using

> biomedical

> > > > interventions to try to help

> > > > > our kids.

> > > >

> > >

> >

>

[Guest guest]

Schadenfreude: Feeling happy when someone else has a mishap. :-)

I agree with you Natasa. I don't think they're defending pharma. I

look at my own son and he's a pretty miserable person. It scares me.

(Not the one with *fake* autism, the one with real autism).

-- In EOHarm , " natasa778 " <neno@...> wrote:

>

> fwiw I don't think they are there to defend pharma, or are paid by it,

> to me it feels they are driven solely by very low personal reasons,

> things like malice, envy, jealousy... personal misery attenuated if more

> people around you are suffering the same fate... schadenfreude is a nice

> word here too...

>

> Natasa

>

>

>

[Guest guest]

Schadenfreude: Feeling happy when someone else has a mishap. :-)

I agree with you Natasa. I don't think they're defending pharma. I

look at my own son and he's a pretty miserable person. It scares me.

(Not the one with *fake* autism, the one with real autism).

-- In EOHarm , " natasa778 " <neno@...> wrote:

>

> fwiw I don't think they are there to defend pharma, or are paid by it,

> to me it feels they are driven solely by very low personal reasons,

> things like malice, envy, jealousy... personal misery attenuated if more

> people around you are suffering the same fate... schadenfreude is a nice

> word here too...

>

> Natasa

>

>

>

[Guest guest]

I think it's good that she recognizes it. My older son doesn't know

what it is. (He's 9.) I've tried explaining many, many times.

Because of the work I do with AutismLink, he thinks it's my hobby.

Although maybe I'm not giving him enough credit.

CW

>

> My 8 yo daughter with autism HATES autism. She hates the fact that

> she doesn't understand things that others understand. She hates

> that she can't seem to make and hold on to friends. She hates that

> she is different and doesn't know how to change. She hates being

> confused by life.

>

> She does not hate herself. Autism is not who she is. So, in the ND

> community, what does that make her?? She WANTS TO BE CURED.

>

>

[Guest guest]

I think it's good that she recognizes it. My older son doesn't know

what it is. (He's 9.) I've tried explaining many, many times.

Because of the work I do with AutismLink, he thinks it's my hobby.

Although maybe I'm not giving him enough credit.

CW

>

> My 8 yo daughter with autism HATES autism. She hates the fact that

> she doesn't understand things that others understand. She hates

> that she can't seem to make and hold on to friends. She hates that

> she is different and doesn't know how to change. She hates being

> confused by life.

>

> She does not hate herself. Autism is not who she is. So, in the ND

> community, what does that make her?? She WANTS TO BE CURED.

>

>

[Guest guest]

I actually hope that your son, and both of mine, make a full recovery

some day.

Cheers.

> >

> > So my son with Aspergers doesn't have a disability? It's all in my

> > head??

>

> No , it is not in your head. It is in the legal definition of

> disability. Words mean things. I didn't make it up. While it does vary

> from state to state, to be disabled means you are disabled. It does

> not mean you are high functioning. It means, for example you are

> blind, not just severly nearsighted. It means, for example, you are

> deaf, not just hard of hearing. It means, more or less, that if you

> are disabled, you require profound support, intervention and care

> 24/7. Aperger Syndrome is not a disability. Google DSM-IV.

>

> I do not exclude the high functioning disadvantaged from my advocacy.

> Why do you put other words in my mouth? For someday, I hope my son

> becomes merely HF disadvantaged, and not the profoundly disabled he is

> now. But I am entirely clear that my advocacy starts with the

> disabled first. I resist any advocacy that comes at the expense of the

> disabled. I resist any advocacy that attempts to trivialized how

> horrible autism is so that some HF people can feel better about

> themselves. Not at the expense of children like mine, they won't.

>

> Lenny

>