Re: You Tube Video Blasts Autism Speaks

May 24, 2007

A new video uploaded to You Tube blasts Autism Speaks for theirnegative portrayal of families affected by autism in the "AutismEvery Day" video.****************************************************************************************************http://www.youtube.com/watch?v=46LYd4Xe63YDescription: You won't find McElwain's story on the AutismSpeaks website. You won't find any videos of autistic children unlessthey further Autism Speaks hopelessness and pity message.You won't find anything written by an autistic person, save a verycontroversial letter written by a member of Grasp.You won't find any autistic employees among the 130 employees ofAutism Speaks. There aren't any autistic board members. Unlike othercharities such as The National Down's Syndrome Society, Autism Speakswill not allow autistic people to serve in any capacity, not that wewould want to, but it might be a nice gesture to be invited.You won't find any autistic speakers at Autism Speaks rallies. I knowfor a fact that autistic people have offered to speak at rallies andevents. But, we have been summarily rejected and told that therallies and events are not a proper "venue" for us to speak at.You also won't find Bob , Suzanne or ,seeking any type of input or even enlightenment from autistic adults.You see, we are invisible to them.You won't find Autism Speaks spending a dime on helping change thelaws of medical insurance, worker accommodation, employment, ordevices that could help improve the lives of autistic people. What Autism Speaks will offer you is hopelessness, pity, and researchto find a cure for future generations of autistic people so we won'texist anymore. If you believe Autism Speaks will help your childright now, you are wrong. Autism Speaks is governed by a board made up mainly of the "SuperRich". You know, the people who have wedding announcements in Town & Country magazine. The people who purchase exotic cars like theFerrari P4/5 so they can demoralize their neighbors with theirpersonal extravagance. You'll also find two board members whom have stated to the publicthat they have wished their child were dead.If you feel generous, please give to the National Down's SyndromeSociety. The NDSS has board members with down's syndrome and thesociety actively encourages positive images of DS people. The Societyalso fights for the civil rights and dignity of people with DS.Until Autism Speaks changes its message and includes autistic peopleon their Executive Committee and Board, please

See what's free at AOL.com.

May 24, 2007

can we have the link to this you tubeblessingsx10@... wrote: A new video uploaded to You Tube blasts Autism Speaks for theirnegative portrayal of families affected by autism in the "AutismEvery Day"

video.****************************************************************************************************http://www.youtube.com/watch?v=46LYd4Xe63YDescription: You won't find McElwain's story on the AutismSpeaks website. You won't find any videos of autistic children unlessthey further Autism Speaks hopelessness and pity message.You won't find anything written by an autistic person, save a verycontroversial letter written by a member of Grasp.You won't find any autistic employees among the 130 employees ofAutism Speaks. There aren't any autistic board members. Unlike othercharities such as The National Down's Syndrome Society, Autism Speakswill not allow autistic people to serve in any capacity, not that wewould want to, but it might be a nice gesture to be invited.You won't find any autistic speakers at Autism Speaks rallies. I

knowfor a fact that autistic people have offered to speak at rallies andevents. But, we have been summarily rejected and told that therallies and events are not a proper "venue" for us to speak at.You also won't find Bob , Suzanne or ,seeking any type of input or even enlightenment from autistic adults.You see, we are invisible to them.You won't find Autism Speaks spending a dime on helping change thelaws of medical insurance, worker accommodation, employment, ordevices that could help improve the lives of autistic people. What Autism Speaks will offer you is hopelessness, pity, and researchto find a cure for future generations of autistic people so we won'texist anymore. If you believe Autism Speaks will help your childright now, you are wrong. Autism Speaks is governed by a board made up mainly of the "SuperRich". You know, the people who have wedding announcements in

Town & Country magazine. The people who purchase exotic cars like theFerrari P4/5 so they can demoralize their neighbors with theirpersonal extravagance. You'll also find two board members whom have stated to the publicthat they have wished their child were dead.If you feel generous, please give to the National Down's SyndromeSociety. The NDSS has board members with down's syndrome and thesociety actively encourages positive images of DS people. The Societyalso fights for the civil rights and dignity of people with DS.Until Autism Speaks changes its message and includes autistic peopleon their Executive Committee and Board, please See what's free at AOL.com.

Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when.

May 24, 2007

I don't care too much for the video's author, Kent , aka " Christschool. "

He's a pretty

vicious fella who attacks those of us who are using biomedical interventions to

try to help

our kids.

He has gone so far as to compare me to Charlie Manson and use expletives against

me. All

the while attempting to remain anonymous.

He doesn't want you to know that his real name is Kent . He doesn't want

you to

know that his son's name is .

But he'll gladly call any of us to the carpet by name... and tell us off from

the comfort of

his anonymity. Well phooey to that.

I give nothing he says credence. While many of us may criticize Autism Speaks

for not

doing what we believe in... he's criticising for different reasons. And they're

not my

reasons.

>

> A new video uploaded to You Tube blasts Autism Speaks for their

> negative portrayal of families affected by autism in the " Autism

> Every Day " video.

> ******************************************************************************

> **********************

>

> http://www.youtube.com/watch?v=46LYd4Xe63Y

>

> Description: You won't find McElwain's story on the Autism

> Speaks website. You won't find any videos of autistic children unless

> they further Autism Speaks hopelessness and pity message.

>

> You won't find anything written by an autistic person, save a very

> controversial letter written by a member of Grasp.

>

> You won't find any autistic employees among the 130 employees of

> Autism Speaks. There aren't any autistic board members. Unlike other

> charities such as The National Down's Syndrome Society, Autism Speaks

> will not allow autistic people to serve in any capacity, not that we

> would want to, but it might be a nice gesture to be invited.

>

> You won't find any autistic speakers at Autism Speaks rallies. I know

> for a fact that autistic people have offered to speak at rallies and

> events. But, we have been summarily rejected and told that the

> rallies and events are not a proper " venue " for us to speak at.

>

> You also won't find Bob , Suzanne or ,

> seeking any type of input or even enlightenment from autistic adults.

> You see, we are invisible to them.

>

> You won't find Autism Speaks spending a dime on helping change the

> laws of medical insurance, worker accommodation, employment, or

> devices that could help improve the lives of autistic people.

>

> What Autism Speaks will offer you is hopelessness, pity, and research

> to find a cure for future generations of autistic people so we won't

> exist anymore. If you believe Autism Speaks will help your child

> right now, you are wrong.

>

> Autism Speaks is governed by a board made up mainly of the " Super

> Rich " . You know, the people who have wedding announcements in Town &

> Country magazine. The people who purchase exotic cars like the

> Ferrari P4/5 so they can demoralize their neighbors with their

> personal extravagance.

>

> You'll also find two board members whom have stated to the public

> that they have wished their child were dead.

>

> If you feel generous, please give to the National Down's Syndrome

> Society. The NDSS has board members with down's syndrome and the

> society actively encourages positive images of DS people. The Society

> also fights for the civil rights and dignity of people with DS.

>

> Until Autism Speaks changes its message and includes autistic people

> on their Executive Committee and Board, please

>

> ************************************** See what's free at http://www.aol.com.

>

May 24, 2007

Watch this one:

http://www.youtube.com/watch?v=liAuBpJYckc

A new video uploaded to You

Tube blasts Autism Speaks for their

> negative portrayal of families affected by autism in the " Autism

> Every Day " video.

>

********************************************************************************\

********************

>

> http://www.youtube.com/watch?v=46LYd4Xe63Y

>

> Description: You won't find McElwain's story on the Autism

> Speaks website. You won't find any videos of autistic children unless

> they further Autism Speaks hopelessness and pity message.

>

> You won't find anything written by an autistic person, save a very

> controversial letter written by a member of Grasp.

>

> You won't find any autistic employees among the 130 employees of

> Autism Speaks. There aren't any autistic board members. Unlike other

> charities such as The National Down's Syndrome Society, Autism Speaks

> will not allow autistic people to serve in any capacity, not that we

> would want to, but it might be a nice gesture to be invited.

>

> You won't find any autistic speakers at Autism Speaks rallies. I know

> for a fact that autistic people have offered to speak at rallies and

> events. But, we have been summarily rejected and told that the

> rallies and events are not a proper " venue " for us to speak at.

>

> You also won't find Bob , Suzanne or ,

> seeking any type of input or even enlightenment from autistic adults.

> You see, we are invisible to them.

>

> You won't find Autism Speaks spending a dime on helping change the

> laws of medical insurance, worker accommodation, employment, or

> devices that could help improve the lives of autistic people.

>

> What Autism Speaks will offer you is hopelessness, pity, and research

> to find a cure for future generations of autistic people so we won't

> exist anymore. If you believe Autism Speaks will help your child

> right now, you are wrong.

>

> Autism Speaks is governed by a board made up mainly of the " Super

> Rich " . You know, the people who have wedding announcements in Town &

> Country magazine. The people who purchase exotic cars like the

> Ferrari P4/5 so they can demoralize their neighbors with their

> personal extravagance.

>

> You'll also find two board members whom have stated to the public

> that they have wished their child were dead.

>

> If you feel generous, please give to the National Down's Syndrome

> Society. The NDSS has board members with down's syndrome and the

> society actively encourages positive images of DS people. The Society

> also fights for the civil rights and dignity of people with DS.

>

> Until Autism Speaks changes its message and includes autistic people

> on their Executive Committee and Board, please

>

> ---------------------------------

> See what's free at AOL.com.

>

> ---------------------------------

> Sick sense of humor? Visit TV's Comedy with an Edge to see

what's on, when.

>

May 24, 2007

You don't care for him because he blasts biomedical, that's

understandable. But the part where Tepper Singer keeps saying

she would have driven off of a bridge if it wasn't for her TYPICAL

daughter rings true.

You may not get along with him or like him, but what he says rings

true to me in that particular instance.

> >

> > A new video uploaded to You Tube blasts Autism Speaks for their

> > negative portrayal of families affected by autism in the " Autism

> > Every Day " video.

> >

******************************************************************************

> > **********************

> >

> > http://www.youtube.com/watch?v=46LYd4Xe63Y

> >

> > Description: You won't find McElwain's story on the Autism

> > Speaks website. You won't find any videos of autistic children unless

> > they further Autism Speaks hopelessness and pity message.

> >

> > You won't find anything written by an autistic person, save a very

> > controversial letter written by a member of Grasp.

> >

> > You won't find any autistic employees among the 130 employees of

> > Autism Speaks. There aren't any autistic board members. Unlike other

> > charities such as The National Down's Syndrome Society, Autism Speaks

> > will not allow autistic people to serve in any capacity, not that we

> > would want to, but it might be a nice gesture to be invited.

> >

> > You won't find any autistic speakers at Autism Speaks rallies. I know

> > for a fact that autistic people have offered to speak at rallies and

> > events. But, we have been summarily rejected and told that the

> > rallies and events are not a proper " venue " for us to speak at.

> >

> > You also won't find Bob , Suzanne or ,

> > seeking any type of input or even enlightenment from autistic adults.

> > You see, we are invisible to them.

> >

> > You won't find Autism Speaks spending a dime on helping change the

> > laws of medical insurance, worker accommodation, employment, or

> > devices that could help improve the lives of autistic people.

> >

> > What Autism Speaks will offer you is hopelessness, pity, and research

> > to find a cure for future generations of autistic people so we won't

> > exist anymore. If you believe Autism Speaks will help your child

> > right now, you are wrong.

> >

> > Autism Speaks is governed by a board made up mainly of the " Super

> > Rich " . You know, the people who have wedding announcements in Town &

> > Country magazine. The people who purchase exotic cars like the

> > Ferrari P4/5 so they can demoralize their neighbors with their

> > personal extravagance.

> >

> > You'll also find two board members whom have stated to the public

> > that they have wished their child were dead.

> >

> > If you feel generous, please give to the National Down's Syndrome

> > Society. The NDSS has board members with down's syndrome and the

> > society actively encourages positive images of DS people. The Society

> > also fights for the civil rights and dignity of people with DS.

> >

> > Until Autism Speaks changes its message and includes autistic people

> > on their Executive Committee and Board, please

> >

> > ************************************** See what's free at

http://www.aol.com.

> >

>

May 24, 2007

I'm not a fan of Singer, either. She's part of what's really wrong with

A.S.

> > >

> > > A new video uploaded to You Tube blasts Autism Speaks for their

> > > negative portrayal of families affected by autism in the " Autism

> > > Every Day " video.

> > >

> ******************************************************************************

> > > **********************

> > >

> > > http://www.youtube.com/watch?v=46LYd4Xe63Y

> > >

> > > Description: You won't find McElwain's story on the Autism

> > > Speaks website. You won't find any videos of autistic children unless

> > > they further Autism Speaks hopelessness and pity message.

> > >

> > > You won't find anything written by an autistic person, save a very

> > > controversial letter written by a member of Grasp.

> > >

> > > You won't find any autistic employees among the 130 employees of

> > > Autism Speaks. There aren't any autistic board members. Unlike other

> > > charities such as The National Down's Syndrome Society, Autism Speaks

> > > will not allow autistic people to serve in any capacity, not that we

> > > would want to, but it might be a nice gesture to be invited.

> > >

> > > You won't find any autistic speakers at Autism Speaks rallies. I know

> > > for a fact that autistic people have offered to speak at rallies and

> > > events. But, we have been summarily rejected and told that the

> > > rallies and events are not a proper " venue " for us to speak at.

> > >

> > > You also won't find Bob , Suzanne or ,

> > > seeking any type of input or even enlightenment from autistic adults.

> > > You see, we are invisible to them.

> > >

> > > You won't find Autism Speaks spending a dime on helping change the

> > > laws of medical insurance, worker accommodation, employment, or

> > > devices that could help improve the lives of autistic people.

> > >

> > > What Autism Speaks will offer you is hopelessness, pity, and research

> > > to find a cure for future generations of autistic people so we won't

> > > exist anymore. If you believe Autism Speaks will help your child

> > > right now, you are wrong.

> > >

> > > Autism Speaks is governed by a board made up mainly of the " Super

> > > Rich " . You know, the people who have wedding announcements in Town &

> > > Country magazine. The people who purchase exotic cars like the

> > > Ferrari P4/5 so they can demoralize their neighbors with their

> > > personal extravagance.

> > >

> > > You'll also find two board members whom have stated to the public

> > > that they have wished their child were dead.

> > >

> > > If you feel generous, please give to the National Down's Syndrome

> > > Society. The NDSS has board members with down's syndrome and the

> > > society actively encourages positive images of DS people. The Society

> > > also fights for the civil rights and dignity of people with DS.

> > >

> > > Until Autism Speaks changes its message and includes autistic people

> > > on their Executive Committee and Board, please

> > >

> > > ************************************** See what's free at

> http://www.aol.com.

> > >

> >

>

May 24, 2007

I just re-read my post and I don't think I was clear.

What I was trying to say is -- the guy who produced the video is

CORRECT in several of his assertions about AS, such as the part where

Singer said she'd drive off the bridge, etc. And that they portray

autism as this hopeless chasm of despair. They showed these kids at

their worst moments to make everyone feel sorry for them so they'd

garner more monetary support.

To think that I used to be one of their supporters makes me wonder

where the hell my brain was for 7 years. I'm a reformed sheeple.

> > >

> > > A new video uploaded to You Tube blasts Autism Speaks for their

> > > negative portrayal of families affected by autism in the " Autism

> > > Every Day " video.

> > >

>

******************************************************************************

> > > **********************

> > >

> > > http://www.youtube.com/watch?v=46LYd4Xe63Y

> > >

> > > Description: You won't find McElwain's story on the Autism

> > > Speaks website. You won't find any videos of autistic children

unless

> > > they further Autism Speaks hopelessness and pity message.

> > >

> > > You won't find anything written by an autistic person, save a very

> > > controversial letter written by a member of Grasp.

> > >

> > > You won't find any autistic employees among the 130 employees of

> > > Autism Speaks. There aren't any autistic board members. Unlike

other

> > > charities such as The National Down's Syndrome Society, Autism

Speaks

> > > will not allow autistic people to serve in any capacity, not

that we

> > > would want to, but it might be a nice gesture to be invited.

> > >

> > > You won't find any autistic speakers at Autism Speaks rallies.

I know

> > > for a fact that autistic people have offered to speak at

rallies and

> > > events. But, we have been summarily rejected and told that the

> > > rallies and events are not a proper " venue " for us to speak at.

> > >

> > > You also won't find Bob , Suzanne or ,

> > > seeking any type of input or even enlightenment from autistic

adults.

> > > You see, we are invisible to them.

> > >

> > > You won't find Autism Speaks spending a dime on helping change the

> > > laws of medical insurance, worker accommodation, employment, or

> > > devices that could help improve the lives of autistic people.

> > >

> > > What Autism Speaks will offer you is hopelessness, pity, and

research

> > > to find a cure for future generations of autistic people so we

won't

> > > exist anymore. If you believe Autism Speaks will help your child

> > > right now, you are wrong.

> > >

> > > Autism Speaks is governed by a board made up mainly of the " Super

> > > Rich " . You know, the people who have wedding announcements in

Town &

> > > Country magazine. The people who purchase exotic cars like the

> > > Ferrari P4/5 so they can demoralize their neighbors with their

> > > personal extravagance.

> > >

> > > You'll also find two board members whom have stated to the public

> > > that they have wished their child were dead.

> > >

> > > If you feel generous, please give to the National Down's Syndrome

> > > Society. The NDSS has board members with down's syndrome and the

> > > society actively encourages positive images of DS people. The

Society

> > > also fights for the civil rights and dignity of people with DS.

> > >

> > > Until Autism Speaks changes its message and includes autistic

people

> > > on their Executive Committee and Board, please

> > >

> > > ************************************** See what's free at

> http://www.aol.com.

> > >

> >

>

May 24, 2007

Why must it be one or the other??

I'm not a fan of the neurodiverse either. They spew forth hatred for

anything different than what they are. Kind of ironic when you

consider they want to be accepted for who they are....but I digress.

They consistently rip parents to shreds who have chosen biomedical

interventions for their children or for those who have supported the

finding of a cure. If a cure were found, I'd choose to administer it

in a New York minute.

On the other side of the coin, the $60 million ship..... depends on

who is steering it. It could be the Poseidon.

> >

> > I'm not a fan of Singer, either. She's part of what's really

> wrong with A.S.

> >

>

May 24, 2007

This is reactionary neurodiverse twaddle. Autism Speaks cannot be

defended for a few important things that they do or don't do, but the

ND crowd carry no moral weight themselves to be making such criticisms.

Given AS's love affair with big pharma and genetics -- and if the

failed Pretending to Combat Autism Act is any example of AS's

political prowess. . . I would prefer they stay out of politics. The

scarey thing is that AS is moving heavily in that direction in their

Borg effort to supplant the ASA as the voice of autism, amongst other

things.

Better just to ignore whining neurodiverse poppycock. Autism is a

disability, not a small confederation of HF misanthrops.

Lenny

>

> I don't care too much for the video's author, Kent , aka

" Christschool. " He's a pretty

> vicious fella who attacks those of us who are using biomedical

interventions to try to help

> our kids.

May 24, 2007

What if we had a meeting with Bill and addressed our concerns? Anyone up for that or do you think it would be a waste of time?schaferatsprynet <schafer@...> wrote: This is reactionary neurodiverse twaddle. Autism Speaks cannot bedefended for a few important things that they do or don't do, but theND crowd carry no moral weight themselves to be making such criticisms.Given AS's love affair with big pharma and genetics -- and if

thefailed Pretending to Combat Autism Act is any example of AS'spolitical prowess. . . I would prefer they stay out of politics. Thescarey thing is that AS is moving heavily in that direction in theirBorg effort to supplant the ASA as the voice of autism, amongst otherthings. Better just to ignore whining neurodiverse poppycock. Autism is adisability, not a small confederation of HF misanthrops.Lenny>> I don't care too much for the video's author, Kent , aka"Christschool." He's a pretty > vicious fella who attacks those of us who are using biomedicalinterventions to try to help > our kids.

Park yourself in front of a world of choices in alternative vehicles.Visit the Auto Green Center.

May 24, 2007

What if we had a meeting with Bill and addressed our concerns? Anyone up for that or do you think it would be a waste of time?schaferatsprynet <schafer@...> wrote: This is reactionary neurodiverse twaddle. Autism Speaks cannot bedefended for a few important things that they do or don't do, but theND crowd carry no moral weight themselves to be making such criticisms.Given AS's love affair with big pharma and genetics -- and if

thefailed Pretending to Combat Autism Act is any example of AS'spolitical prowess. . . I would prefer they stay out of politics. Thescarey thing is that AS is moving heavily in that direction in theirBorg effort to supplant the ASA as the voice of autism, amongst otherthings. Better just to ignore whining neurodiverse poppycock. Autism is adisability, not a small confederation of HF misanthrops.Lenny>> I don't care too much for the video's author, Kent , aka"Christschool." He's a pretty > vicious fella who attacks those of us who are using biomedicalinterventions to try to help > our kids.

Park yourself in front of a world of choices in alternative vehicles.Visit the Auto Green Center.

May 24, 2007

I don't agree, Lenny. The neurodiverse have an opinion too. THEY

HAVE AUTISM. Just like your kid, just like my two. I realize that

they are difficult to deal with but, uhm, truth be told they are like

my all grown up.

I can see him saying, " don't change me. " " I am not a puzzle. " " I

don't need a cure. "

Waving them off and dismissing them is like dismissing your own child.

They have a disability too, and like it or not, they have a voice,

they have opinions, and they want to be heard just like you.

They may not agree with biomedical interventions and call us (parents)

murders and tell us we're abusing our kids by doing the things we do,

but they HAVE AN OPINION and you are just dismissing that opinion.

Yes, many of them are difficult. Yes, many of them spout off things

you don't want to hear. They have that right. My " Do Not Engage "

light goes off when that happens. I try not to engage them. (God it's

hard though.) Let them speak, and listen, and take it FWIW.

They may be misanthropes, but so is my kid.

> >

> > I don't care too much for the video's author, Kent , aka

> " Christschool. " He's a pretty

> > vicious fella who attacks those of us who are using biomedical

> interventions to try to help

> > our kids.

>

May 24, 2007