Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I actually hope that your son, and both of mine, make a full recovery some day. Cheers. > > > > So my son with Aspergers doesn't have a disability? It's all in my > > head?? > > No , it is not in your head. It is in the legal definition of > disability. Words mean things. I didn't make it up. While it does vary > from state to state, to be disabled means you are disabled. It does > not mean you are high functioning. It means, for example you are > blind, not just severly nearsighted. It means, for example, you are > deaf, not just hard of hearing. It means, more or less, that if you > are disabled, you require profound support, intervention and care > 24/7. Aperger Syndrome is not a disability. Google DSM-IV. > > I do not exclude the high functioning disadvantaged from my advocacy. > Why do you put other words in my mouth? For someday, I hope my son > becomes merely HF disadvantaged, and not the profoundly disabled he is > now. But I am entirely clear that my advocacy starts with the > disabled first. I resist any advocacy that comes at the expense of the > disabled. I resist any advocacy that attempts to trivialized how > horrible autism is so that some HF people can feel better about > themselves. Not at the expense of children like mine, they won't. > > Lenny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Anyone who claims > they want to be severely disabled should be > cured for their own good. > I couldn't agree more with you. I've started my ASD toddler on the GF/CF diet with great success. My 21 Aspie is only semi-enthused about trying this, or other bio-med therapies. If he were capable to living by himself, and was self-supporting, I would agree. However, when he choses to " live with " his symptoms, especially the anxiety, it means his entire family must live with it. Now that I'm aware of what's out there, I'd be crazy to continue to live like this, or let him chose it for himself, when he can't even imagine the alternative. Kim ________________________________________________________________________________\ ____ Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. http://sims./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Anyone who claims > they want to be severely disabled should be > cured for their own good. > I couldn't agree more with you. I've started my ASD toddler on the GF/CF diet with great success. My 21 Aspie is only semi-enthused about trying this, or other bio-med therapies. If he were capable to living by himself, and was self-supporting, I would agree. However, when he choses to " live with " his symptoms, especially the anxiety, it means his entire family must live with it. Now that I'm aware of what's out there, I'd be crazy to continue to live like this, or let him chose it for himself, when he can't even imagine the alternative. Kim ________________________________________________________________________________\ ____ Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. http://sims./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I think she's confused with Bill , the AA recovery guy. Hello, my name is Lenny, I'm the recoverying parent of an autistic child. > > > > > > > > I don't care too much for the video's author, Kent > > > , aka > > > " Christschool. " He's a pretty > > > > vicious fella who attacks those of us who are > > > using biomedical > > > interventions to try to help > > > > our kids. > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Park yourself in front of a world of choices in > > > alternative vehicles. > > > Visit the Auto Green Center. > > > > > > > > > ________________________________________________________________________________\ ____Shape > in your own image. Join our Network Research Panel today! > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I think she's confused with Bill , the AA recovery guy. Hello, my name is Lenny, I'm the recoverying parent of an autistic child. > > > > > > > > I don't care too much for the video's author, Kent > > > , aka > > > " Christschool. " He's a pretty > > > > vicious fella who attacks those of us who are > > > using biomedical > > > interventions to try to help > > > > our kids. > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Park yourself in front of a world of choices in > > > alternative vehicles. > > > Visit the Auto Green Center. > > > > > > > > > ________________________________________________________________________________\ ____Shape > in your own image. Join our Network Research Panel today! > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Lenny is also headlining on the Neuro-Insane blog of Kev Leitch this evening..... Very sad people over there. And without sounding too judgemental... they are EXTREMELY judgemental. > > > > > > > > > > I don't care too much for the video's author, Kent > > > > , aka > > > > " Christschool. " He's a pretty > > > > > vicious fella who attacks those of us who are > > > > using biomedical > > > > interventions to try to help > > > > > our kids. > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > Park yourself in front of a world of choices in > > > > alternative vehicles. > > > > Visit the Auto Green Center. > > > > > > > > > > > > > > > ______________________________________________________________________ ______________Shape > > in your own image. Join our Network Research Panel today! > > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Lenny is also headlining on the Neuro-Insane blog of Kev Leitch this evening..... Very sad people over there. And without sounding too judgemental... they are EXTREMELY judgemental. > > > > > > > > > > I don't care too much for the video's author, Kent > > > > , aka > > > > " Christschool. " He's a pretty > > > > > vicious fella who attacks those of us who are > > > > using biomedical > > > > interventions to try to help > > > > > our kids. > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > Park yourself in front of a world of choices in > > > > alternative vehicles. > > > > Visit the Auto Green Center. > > > > > > > > > > > > > > > ______________________________________________________________________ ______________Shape > > in your own image. Join our Network Research Panel today! > > http://surveylink./gmrs/_panel_invite.asp?a=7 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Sorry I meant Bob.... The stress of the day. But I do have an inside connection to him.autismlink <cindy@...> wrote: I don't know about Bill , but I don't think Bob would.> > >> > > I don't care too much for the video's author, Kent> > , aka> > "Christschool." He's a pretty > > > vicious fella who attacks those of us who are> > using biomedical> > interventions to try to help > > > our kids.> > > > > > > > > > > > > > ---------------------------------> > Park yourself in front of a world of choices in> > alternative vehicles.> > Visit the Auto Green Center.> > > > __________________________________________________________Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7> Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Sorry I meant Bob.... The stress of the day. But I do have an inside connection to him.autismlink <cindy@...> wrote: I don't know about Bill , but I don't think Bob would.> > >> > > I don't care too much for the video's author, Kent> > , aka> > "Christschool." He's a pretty > > > vicious fella who attacks those of us who are> > using biomedical> > interventions to try to help > > > our kids.> > > > > > > > > > > > > > ---------------------------------> > Park yourself in front of a world of choices in> > alternative vehicles.> > Visit the Auto Green Center.> > > > __________________________________________________________Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7> Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I have a cousin with aspergers and a son with autism comparing them is like comparing apples and oranges,I would never put them in the same group. F > > > > > > I don't agree, Lenny. The neurodiverse have an opinion too. THEY > > > HAVE AUTISM. > > > > They DO NOT HAVE AUTISM. They have a disorder, if at all, on the > > autism spectrum, most likely Asperger Syndrome. Aspergers is not > > autism, it is Aspergers. It has been given a different label because > > it is significantly different than core autism. > > > > The Neurodiverse are a hate group. They demonize parents who seek > > treatment and cures for bonefide autism, the disability. There is no > > parent group anywhere who wants to force inhuman treatments on their > > kids as their straw man propaganda spouts -- although certainly might > > be individuals who do. They also want to redefine autism as something > > high functioning primarily. They act as if autism the disability does > > not exist. They promote their agenda at the expense of children like > > mine, and adults, who are disabled and are in need of treatment and > > cure, if possible. It is immoral to deny cures to the disabled. > > > > > > > They have a disability too, > > > > Aspergers is not a disability. Disability has a specific meaning. It > > does not mean having high functioning disadvantages. It means that > > without profound intervention and care, the individual will likely > > perish. Only a small handful of HF advocates require that their > > advocacy feeds off the disabled like the NDs do. > > > > > > > and like it or not, they have a voice, > > > they have opinions, and they want to be heard just like you. > > > > > > > You won't find me repeating their bilge in my publications. These > > people do not represent the disabled and they do not even represent > > those on the high end of the autism spectrum, imo. However, there are > > HF advocates that do not need to operate from an agenda of hating > > parent groups who seek treatments and cures. I do what I can to > > support and promote their efforts. > > > > Lenny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I have a cousin with aspergers and a son with autism comparing them is like comparing apples and oranges,I would never put them in the same group. F > > > > > > I don't agree, Lenny. The neurodiverse have an opinion too. THEY > > > HAVE AUTISM. > > > > They DO NOT HAVE AUTISM. They have a disorder, if at all, on the > > autism spectrum, most likely Asperger Syndrome. Aspergers is not > > autism, it is Aspergers. It has been given a different label because > > it is significantly different than core autism. > > > > The Neurodiverse are a hate group. They demonize parents who seek > > treatment and cures for bonefide autism, the disability. There is no > > parent group anywhere who wants to force inhuman treatments on their > > kids as their straw man propaganda spouts -- although certainly might > > be individuals who do. They also want to redefine autism as something > > high functioning primarily. They act as if autism the disability does > > not exist. They promote their agenda at the expense of children like > > mine, and adults, who are disabled and are in need of treatment and > > cure, if possible. It is immoral to deny cures to the disabled. > > > > > > > They have a disability too, > > > > Aspergers is not a disability. Disability has a specific meaning. It > > does not mean having high functioning disadvantages. It means that > > without profound intervention and care, the individual will likely > > perish. Only a small handful of HF advocates require that their > > advocacy feeds off the disabled like the NDs do. > > > > > > > and like it or not, they have a voice, > > > they have opinions, and they want to be heard just like you. > > > > > > > You won't find me repeating their bilge in my publications. These > > people do not represent the disabled and they do not even represent > > those on the high end of the autism spectrum, imo. However, there are > > HF advocates that do not need to operate from an agenda of hating > > parent groups who seek treatments and cures. I do what I can to > > support and promote their efforts. > > > > Lenny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Good luck trying but if their own flesh and blood daughter could not enlighten them, then I do not hold out much hope that our voices would readily prevail. > > > > > > I don't care too much for the video's author, Kent > > , aka > > " Christschool. " He's a pretty > > > vicious fella who attacks those of us who are > > using biomedical > > interventions to try to help > > > our kids. > > > > > > > > > > > > > > --------------------------------- > > Park yourself in front of a world of choices in > > alternative vehicles. > > Visit the Auto Green Center. > > > > ______________________________________________________________________ ______________Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Good luck trying but if their own flesh and blood daughter could not enlighten them, then I do not hold out much hope that our voices would readily prevail. > > > > > > I don't care too much for the video's author, Kent > > , aka > > " Christschool. " He's a pretty > > > vicious fella who attacks those of us who are > > using biomedical > > interventions to try to help > > > our kids. > > > > > > > > > > > > > > --------------------------------- > > Park yourself in front of a world of choices in > > alternative vehicles. > > Visit the Auto Green Center. > > > > ______________________________________________________________________ ______________Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I have a 15 year-old son with aspergers and an 11 year-old son with autism and I use the same biomedical interventions with both. And guess what? It works! Aspergers has its own problems. Just ask those who really want to have friends but don't know how. They are bully magnets and can't defend themselves or understand why. It can be so lonesome and confusing. Then they grow up, get together and call themselves neurodiverse and become royal pains in the ass! My aspie son can tell the differences from before I started him with interventions and now. First with the diet, which gave amazing results and then with supplements. He is a lot happier and appreciates that he now has friendships and can maintain them. He thinks the neurodiverse are a bunch of assholes who are selfish and can't see the real world with their ridiculous views. He wants his little brother healed too. My older son is fifteen 6'1" and I still can't let him ride public transportation alone because he would get hopelessly lost. He has no abilities to turn in homework or remember what he supposed to be doing without a well maintained schedule. But he is an amazing artist and very compassionate. My sons are just two different kinds of apples. Kathleen The world is not yet exhausted; let me see something tomorrow which I never saw before.- ************************************************************************* Re: You Tube Video Blasts Autism Speaks I have a cousin with aspergers and a son with autism comparing them is like comparing apples and oranges,I would never put them in the same group. F TV dinner still cooling?Check out "Tonight's Picks" on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 I have a 15 year-old son with aspergers and an 11 year-old son with autism and I use the same biomedical interventions with both. And guess what? It works! Aspergers has its own problems. Just ask those who really want to have friends but don't know how. They are bully magnets and can't defend themselves or understand why. It can be so lonesome and confusing. Then they grow up, get together and call themselves neurodiverse and become royal pains in the ass! My aspie son can tell the differences from before I started him with interventions and now. First with the diet, which gave amazing results and then with supplements. He is a lot happier and appreciates that he now has friendships and can maintain them. He thinks the neurodiverse are a bunch of assholes who are selfish and can't see the real world with their ridiculous views. He wants his little brother healed too. My older son is fifteen 6'1" and I still can't let him ride public transportation alone because he would get hopelessly lost. He has no abilities to turn in homework or remember what he supposed to be doing without a well maintained schedule. But he is an amazing artist and very compassionate. My sons are just two different kinds of apples. Kathleen The world is not yet exhausted; let me see something tomorrow which I never saw before.- ************************************************************************* Re: You Tube Video Blasts Autism Speaks I have a cousin with aspergers and a son with autism comparing them is like comparing apples and oranges,I would never put them in the same group. F TV dinner still cooling?Check out "Tonight's Picks" on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Lenny, IMO on this subject of high functioning verses diasabled versus Asperger, versus........ If my child was Mercury poisoned from vaccines, which she was, what catagory does that put her in? If she is not as disabled as anyone elses child it doesn't change the fact that she wouldn't be in ANY of these catagories if not for the assault by Pharmas. I am not sorry she isn't as bad or disabled as maybe your (anyones)child, compared to what she WOULD BE if not for the attack all of our children suffered. I will not except that we are " so lucky that she is Asperger " ....NO ONE IS LUCKY, it is just different levels of immunity. You are not unlucky and I am not lucky, we are all in this for the same reasons DAMAGE, DAMAGE DAMAGE to our kids on any part of the spectrum. Lori B > > > > So my son with Aspergers doesn't have a disability? It's all in my > > head?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Lenny, IMO on this subject of high functioning verses diasabled versus Asperger, versus........ If my child was Mercury poisoned from vaccines, which she was, what catagory does that put her in? If she is not as disabled as anyone elses child it doesn't change the fact that she wouldn't be in ANY of these catagories if not for the assault by Pharmas. I am not sorry she isn't as bad or disabled as maybe your (anyones)child, compared to what she WOULD BE if not for the attack all of our children suffered. I will not except that we are " so lucky that she is Asperger " ....NO ONE IS LUCKY, it is just different levels of immunity. You are not unlucky and I am not lucky, we are all in this for the same reasons DAMAGE, DAMAGE DAMAGE to our kids on any part of the spectrum. Lori B > > > > So my son with Aspergers doesn't have a disability? It's all in my > > head?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 You make a good point. ASDs are bad labeling to begin with. I would be happy to let the ND's have the label " autism " if we could sucessfully replace it with mercury and/or environmental poisoning or some such. Lenny > > > > > > So my son with Aspergers doesn't have a disability? It's all in my > > > head?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 You make a good point. ASDs are bad labeling to begin with. I would be happy to let the ND's have the label " autism " if we could sucessfully replace it with mercury and/or environmental poisoning or some such. Lenny > > > > > > So my son with Aspergers doesn't have a disability? It's all in my > > > head?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Kathleen, Thanks for sharing your story. Even with more healing to do with your boys, its wonderful to hear how well things are going for the older son. I hope his talents will bloom even more. And I hope the younger son does great too. Bless you guys. In EOHarm , Kathleen Anne <child_book_writer@...> wrote: > > I have a 15 year-old son with aspergers and an 11 year-old son with autism and I use the same biomedical interventions with both. And guess what? It works! Aspergers has its own problems. Just ask those who really want to have friends but don't know how. They are bully magnets and can't defend themselves or understand why. It can be so lonesome and confusing. Then they grow up, get together and call themselves neurodiverse and become royal pains in the ass! My aspie son can tell the differences from before I started him with interventions and now. First with the diet, which gave amazing results and then with supplements. He is a lot happier and appreciates that he now has friendships and can maintain them. He thinks the neurodiverse are a bunch of assholes who are selfish and can't see the real world with their ridiculous views. He wants his little brother healed too. My older son is fifteen 6'1 " and I still can't let him ride public transportation alone because he would > get hopelessly lost. He has no abilities to turn in homework or remember what he supposed to be doing without a well maintained schedule. But he is an amazing artist and very compassionate. My sons are just two different kinds of apples. > Kathleen > > > The world is not yet exhausted; let me see something tomorrow which I never saw before. > - > > ********************************************************************** *** > > > > Re: You Tube Video Blasts Autism Speaks > > > I have a cousin with aspergers and a son with autism comparing them > is like comparing apples and oranges,I would never put them in the > same group. > > > F > > > > ______________________________________________________________________ ______________ > Expecting? Get great news right away with email Auto-Check. > Try the Beta. > http://advision.webevents./mailbeta/newmail_tools.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Kathleen, Thanks for sharing your story. Even with more healing to do with your boys, its wonderful to hear how well things are going for the older son. I hope his talents will bloom even more. And I hope the younger son does great too. Bless you guys. In EOHarm , Kathleen Anne <child_book_writer@...> wrote: > > I have a 15 year-old son with aspergers and an 11 year-old son with autism and I use the same biomedical interventions with both. And guess what? It works! Aspergers has its own problems. Just ask those who really want to have friends but don't know how. They are bully magnets and can't defend themselves or understand why. It can be so lonesome and confusing. Then they grow up, get together and call themselves neurodiverse and become royal pains in the ass! My aspie son can tell the differences from before I started him with interventions and now. First with the diet, which gave amazing results and then with supplements. He is a lot happier and appreciates that he now has friendships and can maintain them. He thinks the neurodiverse are a bunch of assholes who are selfish and can't see the real world with their ridiculous views. He wants his little brother healed too. My older son is fifteen 6'1 " and I still can't let him ride public transportation alone because he would > get hopelessly lost. He has no abilities to turn in homework or remember what he supposed to be doing without a well maintained schedule. But he is an amazing artist and very compassionate. My sons are just two different kinds of apples. > Kathleen > > > The world is not yet exhausted; let me see something tomorrow which I never saw before. > - > > ********************************************************************** *** > > > > Re: You Tube Video Blasts Autism Speaks > > > I have a cousin with aspergers and a son with autism comparing them > is like comparing apples and oranges,I would never put them in the > same group. > > > F > > > > ______________________________________________________________________ ______________ > Expecting? Get great news right away with email Auto-Check. > Try the Beta. > http://advision.webevents./mailbeta/newmail_tools.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Kathleen, Your story is a good, and I believe a typical example of the hope and good will that motivates most parents of children with autism for recovery. Thanks for posting it Lenny > > I have a 15 year-old son with aspergers and an 11 year-old son with autism and I use the same biomedical interventions with both. And guess what? It works! Aspergers has its own problems. Just ask those who really want to have friends but don't know how. They are bully magnets and can't defend themselves or understand why. It can be so lonesome and confusing. Then they grow up, get together and call themselves neurodiverse and become royal pains in the ass! My aspie son can tell the differences from before I started him with interventions and now. First with the diet, which gave amazing results and then with supplements. He is a lot happier and appreciates that he now has friendships and can maintain them. He thinks the neurodiverse are a bunch of assholes who are selfish and can't see the real world with their ridiculous views. He wants his little brother healed too. My older son is fifteen 6'1 " and I still can't let him ride public transportation alone because he would > get hopelessly lost. He has no abilities to turn in homework or remember what he supposed to be doing without a well maintained schedule. But he is an amazing artist and very compassionate. My sons are just two different kinds of apples. > Kathleen > > > The world is not yet exhausted; let me see something tomorrow which I never saw before. > - > > ************************************************************************* > > > > Re: You Tube Video Blasts Autism Speaks > > > I have a cousin with aspergers and a son with autism comparing them > is like comparing apples and oranges,I would never put them in the > same group. > > > F > > > > ________________________________________________________________________________\ ____ > Expecting? Get great news right away with email Auto-Check. > Try the Beta. > http://advision.webevents./mailbeta/newmail_tools.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Kathleen, Your story is a good, and I believe a typical example of the hope and good will that motivates most parents of children with autism for recovery. Thanks for posting it Lenny > > I have a 15 year-old son with aspergers and an 11 year-old son with autism and I use the same biomedical interventions with both. And guess what? It works! Aspergers has its own problems. Just ask those who really want to have friends but don't know how. They are bully magnets and can't defend themselves or understand why. It can be so lonesome and confusing. Then they grow up, get together and call themselves neurodiverse and become royal pains in the ass! My aspie son can tell the differences from before I started him with interventions and now. First with the diet, which gave amazing results and then with supplements. He is a lot happier and appreciates that he now has friendships and can maintain them. He thinks the neurodiverse are a bunch of assholes who are selfish and can't see the real world with their ridiculous views. He wants his little brother healed too. My older son is fifteen 6'1 " and I still can't let him ride public transportation alone because he would > get hopelessly lost. He has no abilities to turn in homework or remember what he supposed to be doing without a well maintained schedule. But he is an amazing artist and very compassionate. My sons are just two different kinds of apples. > Kathleen > > > The world is not yet exhausted; let me see something tomorrow which I never saw before. > - > > ************************************************************************* > > > > Re: You Tube Video Blasts Autism Speaks > > > I have a cousin with aspergers and a son with autism comparing them > is like comparing apples and oranges,I would never put them in the > same group. > > > F > > > > ________________________________________________________________________________\ ____ > Expecting? Get great news right away with email Auto-Check. > Try the Beta. > http://advision.webevents./mailbeta/newmail_tools.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 and JUST AS SWEET.... wow.. what a story... biomedical does work... my son would not be at the point he is.. if I did not do what I did when he was first dx.. LiaSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Lenny, Hon, I have to respectfully disagree with you on this subject. I understand what you are saying, but I also think there is a lack of knowledge when it comes to Asperger's. Most attention goes to more severe cases of autism, and the only media coverage goes towards very high functioning aspergers. Asperger's has a spectrum in itself, varying from very high functioning that probably fits what you describe as being disadvantaged rather than disabled. On the other end, it is more like high functioning autism. A person would be hardpressed to find a kid with asperger's that is higher functioning than my son. BUT, he has the SAME IDENTICAL problems and symptoms as a child with autism, just on another level. He barely spoke at all as a toddler. When he did, he reversed his pronouns, did not understand language and was evaluated at 3 years of age as being 15 months behind in language development. He has profound speech disorder, auditory processing disorder and still doesn't know simple words like what an 'end table' is. He never responded to his name, ignored people, gets fixated on things and is in a constant state of confusion about life in general. His coordination problems were so bad that he could not walk in shoes. He is eleven years old and still can't use a knife to cut his own food. He couldn't skip until the age of 8 and has such severe upper body weakness that he canot even hold his baby sister without her slipping within moments. He is painfully thin, has the same food likes and dislikes as anyone else's kid here and has the same issues with not feeling all levels of pain. He gets easily frustrated, has melt downs and cries because we called him to dinner and he thinks we were yelling at him because we raised our voices. He lined up cars, just like autistic kids do. He fixated on small stones and threw them at the ground over and over again for hours, just like an autistic kid would do. He made no eye contact, curled away from touches, and so on and so on and so on. He has come a long long way and we are so proud of him, but he struggles every day of his life. And while the situations are very different, in some ways it is better and others are worse. He has to live and function in a world he does not understand. He has no aid walking around with him all day, keeping him safe and protected from noises, anxieties and bullies. He has the constant struggle of teachers with high expectations that he cannot meet. He tries to fit in and can't undersand what he does wrong. He is disabled, but with no protection. And while I am ecstatic that he is doing as well as he does, I also live with an a child who has the same issues any child here has with the exception of him having words. The only other difference is the level of disability in each area, some of which may be worse for him than for others who are considered more severe. Asperger's is autism, and the only real defining difference is that they acquired language at a normal level. It has been heavily debated as to whether or not asperger's should even be defined as different than high functioning autism since many with asperger's, my son included, DID have language development delays. Because there is a known spectrum of problems with autism, and asperger's should not be differentiated as something other than autism. It is simply a higher functioning form with its own set of individual problems. I am not trying to say that it is as bad as having classic or more severe autism. It is just different in that the same symptoms are present, but at a different level. We all are in the same boat of autism which is why we are all here. Some boats may be better than others, but the water we are treading is the same river going upstream. And yes, parents of kids with asperger's are in one boat that is definately different. We have kids that do understand what is going on, that they are different and we are raising them to be proud of themselves, to have high self esteem and to not 'feel' disabled, if we can. We struggle with telling them that it is ok to be different, that we are all different, that being who they are is ok. As they grow up, God willing, they will be proud of themselves and like who they are, despite their 'autism'. And if we can accomplish that, they will probably feel much like the neurodiverse group does. So...it is harder for us to bash them for all of their thoughts and opinions. No, we don't agree that autism is a choice. We don't agree that autism should not be cured. But, we can understand how they feel proud of themselves, despite having autism. It is a catch 22 for us and for our kids. I believe that is what was trying to convey. I am actually glad this issue came up. I think the lack of knowledge about asperger's drives a lot of people to question it. I know I have caught 'looks' a few times from people at rallys for even being there because my son was not 'autistic' enough. One woman went as far as to ask me right out why I was there. Maybe it was time for the discussion to open up so everyone can realize that parents of kids with asperger's are also dealing with plenty on our plates as well, and we are here fighting for the same reasons. Take care, all. Col > > > > So my son with Aspergers doesn't have a disability? It's all in my > > head?? > > No , it is not in your head. It is in the legal definition of > disability. Words mean things. I didn't make it up. While it does vary > from state to state, to be disabled means you are disabled. It does > not mean you are high functioning. It means, for example you are > blind, not just severly nearsighted. It means, for example, you are > deaf, not just hard of hearing. It means, more or less, that if you > are disabled, you require profound support, intervention and care > 24/7. Aperger Syndrome is not a disability. Google DSM-IV. > > I do not exclude the high functioning disadvantaged from my advocacy. > Why do you put other words in my mouth? For someday, I hope my son > becomes merely HF disadvantaged, and not the profoundly disabled he is > now. But I am entirely clear that my advocacy starts with the > disabled first. I resist any advocacy that comes at the expense of the > disabled. I resist any advocacy that attempts to trivialized how > horrible autism is so that some HF people can feel better about > themselves. Not at the expense of children like mine, they won't. > > Lenny > Quote Link to comment Share on other sites More sharing options...
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