(No subject)

August 25, 1999

Hi Everyone,

This is a great site. I am excited to hear about all of you.

We, Dean and , have 3 children. Our son, Quinn, is 3 and our twins,

Sara and Maggie, are nine months. Somedays are crazy and some days are

insane, but overall we are having a lot of fun.

Maggie was not diagnosed with Down syndrome until she was three months old.

This is strange because she saw many doctors when she was born. Sara's

water bag broke at 32 weeks and I went on strict (hospital) bedrest for the

next month. They were born at 36 weeks and were pronounced healthy and we

were sent home. I noticed that Maggie was " floppier " than her sister but

figured if anything was wrong with her the pediatrician would tell us. At 2

1/2 months I asked the doctor about it and he casually mentioned doing a

chromosome analysis. Two weeks later we were told our daughter had that

extra chromosome. Happily Maggie has no health problems, hasn't been sick

but for a cold early in the spring, and eats like a champ. She has been

sitting up since about 7 months and is now getting ready to crawl, she is

getting up on all fours and rocking. She is a delight!

More later,

Stauffer

(no subject)

From: Shellhutch@...

HI! My name is and I just joined this list. I have 4 year old

triplet boys and a 2 year old girl. One of my triplets has DS. Their names

are (he has DS) , , and Alec. And my daughter's name is

Hunter. We live in land. Last year the boys all went to preschool

together and we are hoping to do the same this year. I have just gone back

to

college to become a nurse. We just finished our first summer of swim lessons

and was the best out of the 3! We are getting ready to start him

on Piracetam and possibly Nutrivine(sp?) So we will let know how that goes.

We are finally making progress in the potty training area (YEAH) so I am

hopeful we will be done with diapers soon. never had any heart

problems but he did have a lot of airway problems and had a tracheotomy from

1 & 1/2 until he was 3 & 1/2. But thankfully he is doing much better now.

I am looking forward to hearing from others on this list!

---------------------------

October 6, 1999

Kim33920@... wrote:

>

> From: Kim33920@...

>

> Hi all,

> We just celebrated 's and Abbi's 2nd Birthday today!!!! It has been an

> adventure. We all had fun and now everyone is napping. We are going to do the

> Chuckie Cheese Pizza thing Sat. and invite all their friends. I never thought

> we ( I ) could make the 2 year mark, it has gone by sooo fast! Well better go

> and get a quick nap too!!

>

> Kim Abigail and ds - 2 YEARS OLD TODAY! and Mikayla - 4

>

> > http://DSyndrome.com/Multiples

Happy Birthday

Abigail and !!!!! have fun being TWO

Gail mom to Bobby-5, Jillian-3, and Tara{Ds}6 months

October 6, 1999

Happy Birthday Abbi and !! Kim, I can't believe

they are already two.

mom to Landon(DS) and Ashton - 16 months

--- Kim33920@... wrote:

> Hi all,

> We just celebrated 's and Abbi's 2nd Birthday

> today!!!! It has been an

> adventure. We all had fun and now everyone is

> napping. We are going to do the

> Chuckie Cheese Pizza thing Sat. and invite all their

> friends. I never thought

> we ( I ) could make the 2 year mark, it has gone by

> sooo fast! Well better go

> and get a quick nap too!!

>

> Kim Abigail and ds - 2 YEARS OLD TODAY! and

> Mikayla - 4

>

------------------------------------------------------------------------

> http://DSyndrome.com/Multiples

>

<HR>

<html>

>

=====

October 7, 1999

Congratulations Kim!

Happy Birthday to Abigail and !

~,moma to (DS) and Sloan {17 months,as of yesterday}

October 7, 1999

Congratulations and Happy 2nd Birthay and

Abbi!!!!

Judi & the Boys

--- Kim33920@... wrote:

> Hi all,

> We just celebrated 's and Abbi's 2nd Birthday

> today!!!! It has been an

> adventure. We all had fun and now everyone is

> napping. We are going to do the

> Chuckie Cheese Pizza thing Sat. and invite all their

> friends. I never thought

> we ( I ) could make the 2 year mark, it has gone by

> sooo fast! Well better go

> and get a quick nap too!!

>

> Kim Abigail and ds - 2 YEARS OLD TODAY! and

> Mikayla - 4

>

------------------------------------------------------------------------

> http://DSyndrome.com/Multiples

>

<HR>

<html>

>

=====

January 1, 2000

Happy New Year Girls!

>

> >> TO ALL MY SMART WOMEN FRIENDS:

> >> > >

> >> > > > 1. I'm not offended by all the

> dumb blonde jokes

> >> > > > because I know I'm not dumb ...

> and I also know that

> >> > > > I'm not blonde. -Dolly Parton-

> >> > > >

> >> > > > 2. You see a lot of smart guys

> with dumb women, but you

> >> > > > hardly ever see a smart woman with

> a dumb guy.

> >> > > > -a Jong-

> >> > > >

> >> > > > 3. I want to have children, but my

> friends scare me.

> >> > > > One of my friends told me she was

> in labor for 36

> >> > > > hours. I don't even want to do

> anything that feels good

> >> > > > for 36 hours. -Rita Rudner-

> >> > > >

> >> > > > 4. I've been on so many blind

> dates, I should get a

> >> > > > free dog. - Liebman-

> >> > > >

> >> > > > 5. Never lend your car to anyone

> to whom you have given

> >> > > > birth. -Erma Bombeck-

> >> > > >

> >> > > > 6. If high heels were so

> wonderful, men would still be

> >> > > > wearing them. - Sue Grafton-

> >> > > >

> >> > > > 7. I'm not going to vacuum 'til

> Sears makes one you can

> >> > > > ride on. -Roseanne Barr-

> >> > > >

> >> > > > 8. I think-therefore I'm single.

> -Lizz Winstead-

> >> > > >

> >> > > > 9. When women are depressed they

> either eat or go

> >> > > > shopping. Men invade another

> country. -Elayne Boosler-

> >> > > >

> >> > > > 10. Behind every successful man is

> a surprised woman.

> >> > > > -on Pearson-

> >> > > >

> >> > > > 11. I base most of my fashion

> taste on what doesn't

> >> > > > itch. -Gilda Radner-

> >> > > >

> >> > > > 12. In politics, if you want

> anything said, ask a man;

> >> > > > if you want anything done, ask a

> woman.

> >> > > > -Margaret Thatcher-

> >> > > >

> >> > > > 13. I have yet to hear a man ask

> for advice on how to

> >> > > > combine marriage and a career.

> -Gloria Steinhem-

> >> > > >

> >> > > > 14. I never married because there

> was no need. I have

> >> > > > three pets at home which answer

> the same purpose as a

> >> > > > husband. I have a dog which

> growls every morning, a

> >> > > > parrot which swears all afternoon

> and a cat that comes

> >> > > > home late at night -Marie

> Corelli-

> >> > > >

> >> > > > 15. Nagging is the repetition of

> unpalatable truths.

> >> > > > -Baroness Edith

> Summerskill

> >> > > >

> >> > > > 16. If men can run the world, why

> can't they stop

> >> > > > wearing neckties? How

> intelligent is it to start the

> >> > > > day by tying a little noose around

> your neck?

> >> > > > - Ellerbee

> >> > > >

> >> > > > 17. I am a marvelous housekeeper.

> Every time I leave a

> >> > > > man, I keep his house. -Zsa Zsa

> Gabor-

> >> > > >

>

__________________________________________________

February 2, 2000

> THE SMARTER SEX

> > A woman and a man are involved in a car accident;

> it's

> > a bad one.

> > Both of their cars are totally demolished

> > but amazingly neither of them are hurt.

> > After they crawl out of their cars, the woman

> says,

> > " So you're a man, that's interesting. I'm a woman.

> > Wow, just look at our cars!

> > There's nothing left, but fortunately we are

> unhurt.

> > This must be a sign from God that we should meet

> and

> > be friends and live together in peace for the rest

> of

> > our days.

> > The man replied, " I agree with you completely.

> > " This must be a sign from God! " The woman

> continued,

> > " And look at this, here's another miracle.

> > My car is completely demolished but this bottle of

> > wine didn't break.

> > Surely God wants us to drink this wine and

> celebrate

> > our good fortune. "

> >

> > Then she hands the bottle to the man,

> > The man nods his head in agreement, opens it and

> > drinks half the bottle and then hands it back to

> the

> > woman.

> > The woman takes the bottle, immediately puts the

> cap

> > back on,

> > and hands it back to the man.

> > The man asks, " Aren't you having any? "

> > The woman replies, " No. I think I'll just wait for

> the

> > police... "

> >

> >oooooooooooooooooooooooooh...she so bad!

> >

>

__________________________________________________

March 8, 2000

I'm here, I just have 2 sick kids. And is a real pain when he's sick.

Actually, this was better than it has been in the past. Don't know whether it's

being older, or the GF diet. I imagine a little of both.

isn't worrying me as much anymore. I guess it's just him being normal. I

think his tummy hurts. But a lady that watches him on Wednesday mornings

mentioned about him " going stiff " in her words, the arching when you try to put

him down on the floor. I think it's just that sick/clingy thing.

Loriann

Wife to Dewight (who will be playing with the Seal Team every other night all

next week)

Mom to , 9 years, DS-ASD, ADHD, ODD

and , 8.5 months

March 8, 2000

It sounds like Ashton and you will be going to mediation. As far as I am aware,

the parent is supposed to have the last say. Sounds like a money thing to me.

Loriann

March 8, 2000

hello gail, we are here... i am finally caught up on my emails. 483 was the

record, DH almost wet himself....hhehe well everyone has been in my prayers adn

thoughts just have been so busy with ashton and this god awful school system. we

found a mi/mo program as i had earlier mentioned that we liked for ashton. well

i faxed her iep to the dir. of sp. ed. the stupid witch had the nerve to send it

to a school and tell them ashton was starting today. i hadnt looked at that

school and have heard nothing but negative things about it. so me and dh

went...... he didnt even wait to meet teacher, appearances were enough,. so we

left. we called the spec ed dir. adn said we want ashton to go to the other

school, she says she doesnt think so. she feels ashton would be better off at

the nasty one with bad reputation. so PLEASE SOMEONE TELL ME WHAT TO DO. i have

been balling for three days regretting buying this house and moving off post to

have some peace and quiet adn room to breath. this!

lady is hellbent on election to have her say. but what about us the parents. i

am so upset, and frustrated adn dh is of LITTLE HELP. i called parent advocate

and she said we'll probably end up in mediation because this lady is such a

witch. whats the prob. the good school is closer,, better program, lesso f a bus

ride for ashton, great teacher, IKKKKKEEEEEESSSSSSSSSSSS......... SO

March 9, 2000

I hear ya! Seth has an iep meeting tomorrow at 3 and no one told me about

it. His teacher said " see you friday at the meeting " so I called and they

said sorry, we sent you a letter. NOT!!! What would happen if they held it

without me? Is that legal? If Seth didn't have such a great teacher and

classroom, I would tell them all to get out of our lives and leave us alone.

They are the ones with the major problems!

fuming Gail

March 9, 2000

Loriann,

Hope and feel better soon.

Gail

March 9, 2000

Looks like you have a fight on your hands.

I would make the points about the bus ride being too long at the other

school, and the one you want is closer. Be sure and get copies of the

special ed laws, highlight them where you need to, and use them. Use the

phrases from the laws. For instance " We want Aston in the Least

Restrictive Environment. This school is closer to us, (would it be your

home school? What school would she attend if she didnt' have a

disability?), and that makes it more of a LRE. She cannot tolerate the

long bus ride to the other school. " What did you not like about the

other school? Was the class room too noisy? Would it be distracting? I

think you would have a case for LRE just based on the distance factor. Do

you have a copy of " Negotiating the Special Education Maze " ? If not, get

it. IT really helps. It may even be cost effective to find a lawyer to

come with you to the meeting, they tend to listen more.

Let us know how things are going. Don't give up. We are pulling for you.

S

On Thu, 9 Mar 2000 01:01:26 EST okieleah@... writes:

> From: okieleah@...

>

> hello gail, we are here... i am finally caught up on my emails. 483

> was the record, DH almost wet himself....hhehe well everyone has

> been in my prayers adn thoughts just have been so busy with ashton

> and this god awful school system. we found a mi/mo program as i had

> earlier mentioned that we liked for ashton. well i faxed her iep to

> the dir. of sp. ed. the stupid witch had the nerve to send it to a

> school and tell them ashton was starting today. i hadnt looked at

> that school and have heard nothing but negative things about it. so

> me and dh went...... he didnt even wait to meet teacher, appearances

> were enough,. so we left. we called the spec ed dir. adn said we

> want ashton to go to the other school, she says she doesnt think so.

> she feels ashton would be better off at the nasty one with bad

> reputation. so PLEASE SOMEONE TELL ME WHAT TO DO. i have been

> balling for three days regretting buying this house and moving off

> post to have some peace and quiet adn room to breath. this!

> lady is hellbent on election to have her say. but what about us the

> parents. i am so upset, and frustrated adn dh is of LITTLE HELP. i

> called parent advocate and she said we'll probably end up in

> mediation because this lady is such a witch. whats the prob. the

> good school is closer,, better program, lesso f a bus ride for

> ashton, great teacher, IKKKKKEEEEEESSSSSSSSSSSS......... SO

>

------------------------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9%

> Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

> 1/936/5/_/691668/_/952581693/

>

------------------------------------------------------------------------

>

March 10, 2000

Gail,

They have to let you know 10 days prior to the meeting unless you wave this.

Our Notification of EIP has an additional sheet stating that I will/will

not attend, I am bringing ----to advocate for me, or this is not convient,

need to reschedule.

IEP should always be held with the parent there, after all you have to sign

your approval or not sign.

& Garry, parents of (9), (8), JJ (6), (5), and

Esther (3). All adopted & with Down Syndrome.

March 22, 2000

Janet,

I'm glad you found us. I think, from what I can tell, most of us have

similar stories about wondering why our kid(s) with DS are so different

than other kids. THe running and hiding from company, flapping things,

videos (We have almost out grown Barney-in place are " Kid's Songs "

" Sesame Street " (Elmo-Palooza right now-6 times a day!) " Blue's Clues "

and my personal favorite " Veggie-Tales " . The end will come. Help it

along) etc....

Thanks for sharing your story.

S

________________________________________________________________

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Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

March 28, 2000

Welcome! I'm rather new here myself although I have been on the

Question for TQ board for a year now. I am also a stay-at-home mom and

living in a town of 1500 (until June) so I know that feeling - and why

I write so much in my messages. This is a great group of people.

Taebo is such a wonderful thing. It not only is a great, fun workout -

it has also given me a wonderful circle of friends.

le

March 28, 2000

mmsd99,

Welcome to our group! What's your name? Where are you from? What do

you do? LOL Do tell!

;-)

F

mmsd99-@... wrote:

original article:tae-bo_on/?start=16068

> Hello Everyone!!! This is my first message to everyone. I was

referred by

> Barb to join this e-mail group. I " met " Barb on the official Tae-Bo

web

> site via the message board. I am completly new to e-mail groups so

hopefully

> I'll do this right!!.

> I am not a stranger to Tae-Bo, I purchased the " original " set of

tapes about

> 1 1/2yrs. ago. I tried them a few times but my heart and mind weren't

into

> doing them so I put them away in the closet (what a loss for me!!).

I'm so

> happy that there has been this resurrgence of Tae-Bo because I have

now made

> the " connection " and I'm going strong!!. I have been doing the

pay-per-view

> workouts for 2 1/2 weeks now and I love it!!. Don't get me wrong, it

was

> sheer pain and soreness at first but its been well worth it. I have

been

> working very hard to change my eating habits (with the wonderful help

and

> wisdom of Barb!!) and of course doing my Tae-Bo at least six days a

week. I

> had started a 21 day challenge last Monday but I strained my hip

flexor doing

> front knee raises and kicks so I'll have to start over again when I'm

> healed!!. I am still doing my workouts though, I did the advanced

workout

> today(minus the front knee raises and kicks) and i still got a really

good

> workout. I basically just compensated those kicks with some side

kicks and

> roundhouse kicks and it worked really well!!. Well as you can all see

I love

> to gab!! I'm a full time stay at home Mom for now so I don't get out

much

> (can you tell!! ha,ha).

> Well I must be going for now, I really look forward to hearing from

anyone!!

> and I hope that in the process I will make new friends, learn lots of

new

> things and even be able to help someone else!!! Bye for now and

remember:

> NEVER EVER QUIT!!!

March 28, 2000

mmsd99-@... wrote:

original article:tae-bo_on/?start=16068

> Hello Everyone!!! This is my first message to everyone. I was

referred by

> Barb to join this e-mail group. I " met " Barb on the official Tae-Bo

web

> site via the message board. I am completly new to e-mail groups so

hopefully

> I'll do this right!!.

Welcome to the group! What's your name? I'm glad you got back into

tae-bo and have found that " connection " ! This group is so wonderful

and supportive....I'm sure you'll love it here! I am a stay at home

mom, too. My daughter, Skylar is 15 months old! Can't wait to hear

more from you

March 29, 2000

MMsd999@... wrote:

>

> Hello Everyone!!! This is my first message to everyone. I was referred

> by

> Barb to join this e-mail group. I " met " Barb on the official Tae-Bo

> web

> site via the message board. I am completly new to e-mail groups so

> hopefully

> I'll do this right!!.

> I am not a stranger to Tae-Bo, I purchased the " original " set of tapes

> about

> 1 1/2yrs. ago. I tried them a few times but my heart and mind weren't

> into

> doing them so I put them away in the closet (what a loss for me!!).

> I'm so

> happy that there has been this resurrgence of Tae-Bo because I have

> now made

> the " connection " and I'm going strong!!. I have been doing the

> pay-per-view

> workouts for 2 1/2 weeks now and I love it!!. Don't get me wrong, it

> was

> sheer pain and soreness at first but its been well worth it. I have

> been

> working very hard to change my eating habits (with the wonderful help

> and

> wisdom of Barb!!) and of course doing my Tae-Bo at least six days a

> week. I

> had started a 21 day challenge last Monday but I strained my hip

> flexor doing

> front knee raises and kicks so I'll have to start over again when I'm

> healed!!. I am still doing my workouts though, I did the advanced

> workout

> today(minus the front knee raises and kicks) and i still got a really

> good

> workout. I basically just compensated those kicks with some side kicks

> and

> roundhouse kicks and it worked really well!!

Welcome to the group! I have strained my right hamstring several times

doing the front kick. I have to keep remembering to lift my knee up

high before kicking. When it's bad, I modify too, like you do.

Sometimes, I'll just do a knee raise with that leg. That's great that

you have learned to modify so quickly (in fact you answered our

" Question of the Week " without realizing it-- What moves can't you do

and how have you worked around it, or something to that effect).

Elena

March 31, 2000

In a message dated 3/28/00 8:01:42 PM Central Standard Time, MMsd999@...

writes:

<<

Hello Everyone!!! This is my first message to everyone. I was referred by

Barb to join this e-mail group. I " met " Barb on the official Tae-Bo web

site via the message board. I am completly new to e-mail groups so hopefully

I'll do this right!!. >>

WELCOME YOU WILL ENJOY BEING PART OF THIS E GROUP ITS GREAT I AM FAIRLY NEW

HERE TOO AND I LOVE BEING INSOIRED BY ALL THESE WONDERFUL PEOPLE THEY ARE

GREAT

ROMIE

April 1, 2000

There are varying levels of autism. In fact, one of the problems we had

initially in getting the autism specialist to believe Ian's diagnosis was

that she worked with patients, trying to get them to where Ian was already.

Ian is communicative, he interacts well. His main problems are with

inflexibility and routine rigidity. We know that as far as this dual

diagnosis goes, we're very lucky.

CK,

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

April 1, 2000

At 01:06 AM 4/1/00 EST, you wrote:

>Hi all. I was wondering if anyone here had their child diagnosed with

>autism, then find out they don't have it? Seth has all the characteristics,

>but I felt like he wasn't autistic from everything I have read on Autism. I

>don't understand how the Down Syndrome effects the Autism.

Gail:

" Stim " behaviors, spinning, shaking things, and other oddities that are

outward that are usually associated with autism do not necessarily equate

to a diagnosis of autism. There is a separate category for stereotypic

movement disorder, for instance, which basically means kids dangle stuff

but don't have autism. There are three primary domains for autism:

communication, social, and inappropriate object use (those are them,

right?). If there are not characteristics in all three domains, then most

likely your child does not have autistic spectrum disorder along with Down

syndrome.

Kids with DS and autistic spectrum *tend* to be stronger (have better

skills)in the social category than is associated with autism in general. At

the same time, they have a greater tendency to be lost in " inappropriate

object use " than typical kids with autism. My take is that ds/asd looks

something like, " I have more trouble with communication--don't understand

how it works " than kids with ds and am similar to kids with autism; I'm not

a social butterfly like kids with DS, but I look like it compared to kids

wiht autism only; I just LOVE to dangle stuff and it takes on a life of

it's own--and is a greater problem for me than kids with autism only or ds

only "

That's how I see it in a global sense.

The actual label isn't NEARLY as important as effective teaching/education

for your son. If Seth's team doesn't " box " kids into teaching methods, then

you're fine. Use whatever works: discrete trial, whatever.

Hope this helps a little.

Joan

April 1, 2000

Gail,

Kids can overcome the autism, although it is rare. There is so little

known especially with the interplay between DS and autism. Jen's

phychiatrist said he believed she would " outgrow " it. If autism is an

autoimmune disease (my belief that it is in at least some kids), then there

are remissions one would expect to see. Also, if he is on meds, that could

explain it. I do believe that if they allow some of the world in and it is

good to them, they start to let more in.

BTW - could there be any better news than your kid doesn't seem to look

autistic anymore? Congrats.

>communicating and is becoming very social with the other kids. She has

>suggested I have him retested because, as we both agree, he is not the same

>child he was 7 months ago. Is there anything else that has the symptoms of

>Autism, that I should be looking for, or that is common in Downs? He still

>does all the spinning and stimming things, but not as much. He is starting

>to be aware of everything and one around him and is even initiating play

with

>us now. Is it possible to be improving this much, this fast with Autism?

>When she asked me how I felt about the possibility of him not being

Autistic,

>I froze. That is almost a scary thought. We will be back to knowing

>something is wrong but not know what it is again. I am very confused. Any

>and all help welcome here!

>Gail

>

>------------------------------------------------------------------------

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>

April 19, 2000

Hi : Yes, I know all about the RISE school (for

any of you who've read " Another Season " , this is the

Dallas version of the RISE school that Gene Stallings

helped start in Alabama). The Dallas Down Syndrome

Guild hold's it's quarterly New Parent Coffee's at the

school. Unfortunately, the location and the hours

(and the cost) just wouldn't work out for us. The are

located at the Tollway & Royal (north Dallas) and we

are in Duncanville (not close at all). Also, their

hours are only from 9:00-2:30. I'd still have to find

a daycare that would pick them up from school for a

few hrs. Just didn't work out logistically. Cost

wise, I had heard it was expensive, but they have a

very generous scholarship program. They have several

benefactors, one of them being the Dallas Cowboys.

The Cowboys have a program called " First Downs for

Down Syndrome " . Every time the get a first down,

money is donated to the school. Pretty neat, eh?

There is another school in Dallas for developmentally

delayed children called " Notre Dame " . Again, the

logistics just didn't make it work. Plus, I think we

wanted to give the Duncanville ISD a shot. Unlike

dealing w/the Dallas ISD, I've heard nothing bad about

Duncanville.

Appreciate you thinking of me tho! Tell your sister

thanks!

--- lesfevr21@... wrote:

> Hi Judi -

>

> I was talking to my sister last nite ( she lives in

> Dallas) and she told me

> that her church has a non-denominational DS school

> for toddlers & up. They

> also encourage siblings!! Thought you might be

> interested if you didnt

> already know about it. The name of the school is

> Rise and it (for the

> moment) is located at St Lukes Episcopal Church on

> Royal Ln. If you have

> any questions she said she would be more than happy

> for you to call her and

> she could give you any info you needed. Just email

> me at lesfevr21@...

> if you want her phone number.

> Also, I dont remember who said that their child

> has eczema but my

> sister's son also suffers from this. He has

> suffered horribly with it but

> she now has him in a test group for a new treatment

> that has literally worked

> miracles. If any of you are interested in the

> clinic or have questions

> please let me know. My sister is a wonderful person

> is would very much be

> willing to share any info she can.

> 1

>

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