Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Its PA. May your pressure be low!Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism the most common cause of "Difficult/Drug Resistant High Blood Pressure". Other research interests focus on the interactions of recent evolutionary forces on the body's ability to handle salt and the effect of dietary salt on blood pressure in populations today.Listed in Best Doctors of America 2009. On Oct 20, 2009, at 7:21 PM, Chantal wrote: One last thing, I had my thyroid TSH checked but he is going to check my free T4 as well... Maybe discuss pituitary test with the dr. Although, your situation is like me. We want answers just in case it isn't PA but until we get the results we are at somewhat of a stand still. I hate the waiting game because I know something it wrong.. TTFN Chantal > > > > > > > > > > > > > > > > > > > > > > > > Also, what meds have you been on? What are you on now? Do you have > > > > > > > > > > > > children? How was your BP during pregnancy? > > > > > > > > > > > > > > > > > > > > > > > > Val > > > > > > > > > > > > > > > > > > > > > > > > From: hyperaldosteronism > > > > > > > > > > > > [mailto:hyperaldosteronism] On Behalf Of Valarie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I read your message, Bridget. Your symptoms all sound familiar > > > > > > > > > > > but they can > > > > > > > > > > > > be symptoms of many things. We need hard evidence - test results. > > > > > > > > > > > When you > > > > > > > > > > > > say "high sodium," what do you mean? When you say "low > > > > > > > > > > > potassium," what do > > > > > > > > > > > > you mean? Have you had a CT? Do you have copies of all your tests? > > > > > > > > > > > > > > > > > > > > > > > > Val > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 I dont recall what your A/R ratio and numbers are? May your pressure be low!Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism the most common cause of "Difficult/Drug Resistant High Blood Pressure". Other research interests focus on the interactions of recent evolutionary forces on the body's ability to handle salt and the effect of dietary salt on blood pressure in populations today.Listed in Best Doctors of America 2009. On Oct 20, 2009, at 7:25 PM, bridget wrote: I will do that, yes, I completely understand, I just know something is not right with my body, but everything medical is coming up normal, if it wasn't for having high blood pressure since I was 17, unexplained, I would start thinking I am crazy and it is all in my head! I have people all the time telling me to suck it up, that nothing's wrong with me! Ugh, I just want answers. Bridget > > > > > > > > > > > > > > > > > > > > > > > > > > Also, what meds have you been on? What are you on now? Do you have > > > > > > > > > > > > > children? How was your BP during pregnancy? > > > > > > > > > > > > > > > > > > > > > > > > > > Val > > > > > > > > > > > > > > > > > > > > > > > > > > From: hyperaldosteronism > > > > > > > > > > > > > [mailto:hyperaldosteronism] On Behalf Of Valarie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I read your message, Bridget. Your symptoms all sound familiar > > > > > > > > > > > > but they can > > > > > > > > > > > > > be symptoms of many things. We need hard evidence - test results. > > > > > > > > > > > > When you > > > > > > > > > > > > > say "high sodium," what do you mean? When you say "low > > > > > > > > > > > > potassium," what do > > > > > > > > > > > > > you mean? Have you had a CT? Do you have copies of all your tests? > > > > > > > > > > > > > > > > > > > > > > > > > > Val > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Dr Grim bets its in the adrenal not the pit. May your pressure be low!Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism the most common cause of "Difficult/Drug Resistant High Blood Pressure". Other research interests focus on the interactions of recent evolutionary forces on the body's ability to handle salt and the effect of dietary salt on blood pressure in populations today.Listed in Best Doctors of America 2009. On Oct 20, 2009, at 5:47 PM, Chantal wrote: I have stuffiness off and on, rhinorrhea (clear discharge) but I think it is mostly related to fragrance sensitivity/allergies and humidity change, nothing too bad. I wanted to mention though that when my potassium was at it's lowest I had a sore ear and severe vertigo, bad enough that my husband had to drive me to the ER and just the act of getting up, sitting to standing, made me quite dizzy and nausea. Once my potassium was prescribed, my serum level didn't change much but my systems improved drastically. Within a week my vertigo was gone (CT of vestibule, ears etc. was OK) and my ears didn't feel plugged. At the time I did not have a cold or anything so it couldn't be post-viral vertigo. I'm sure it was related to my potassium (intracellular) low. Sinus pressure, my optometrist asked me about this because my vision is still affected (off and on) A pituitary tumor could produce all the PA symptoms (it could affect aldosterone) and I think because it can affect the optic nerve, vision is affected and I think sinus as well... She asked about the sinus thing but my symptoms sinus-wise are not significant like your sinus symptoms. I'm awaiting a another CT or a MRI to check the pituitary. Did you have all the hormones that are regulated by the pituitary checked, ie. prolactin etc. Gotta go, kids to bed TTFN > > > > > > > > > > > > > > > > > > > > Also, what meds have you been on? What are you on now? Do you have > > > > > > > > > > children? How was your BP during pregnancy? > > > > > > > > > > > > > > > > > > > > Val > > > > > > > > > > > > > > > > > > > > From: hyperaldosteronism > > > > > > > > > > [mailto:hyperaldosteronism] On Behalf Of Valarie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I read your message, Bridget. Your symptoms all sound familiar > > > > > > > > > but they can > > > > > > > > > > be symptoms of many things. We need hard evidence - test results. > > > > > > > > > When you > > > > > > > > > > say "high sodium," what do you mean? When you say "low > > > > > > > > > potassium," what do > > > > > > > > > > you mean? Have you had a CT? Do you have copies of all your tests? > > > > > > > > > > > > > > > > > > > > Val > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Toprol doesnt do much in PA. May your pressure be low!Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism the most common cause of "Difficult/Drug Resistant High Blood Pressure". Other research interests focus on the interactions of recent evolutionary forces on the body's ability to handle salt and the effect of dietary salt on blood pressure in populations today.Listed in Best Doctors of America 2009. On Oct 20, 2009, at 5:11 PM, bridget wrote: It has been over the last year, and I have been on all different bp meds, sinus sprays, allegra, and nothing changed it, made it better, or worse. I still have it and the only thing I am taking is Toprol. Bridget > > > > > > > > > > > > > > > > > > > > > > Also, what meds have you been on? What are you on > > now? Do you have > > > > > > > > > > > children? How was your BP during pregnancy? > > > > > > > > > > > > > > > > > > > > > > Val > > > > > > > > > > > > > > > > > > > > > > From: hyperaldosteronism > > > > > > > > > > > [mailto:hyperaldosteronism] On > > Behalf Of Valarie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I read your message, Bridget. Your symptoms all > > sound familiar > > > > > > > > > > but they can > > > > > > > > > > > be symptoms of many things. We need hard evidence > > - test results. > > > > > > > > > > When you > > > > > > > > > > > say "high sodium," what do you mean? When you say > > "low > > > > > > > > > > potassium," what do > > > > > > > > > > > you mean? Have you had a CT? Do you have copies of > > all your tests? > > > > > > > > > > > > > > > > > > > > > > Val > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Messages in this topic (71) Reply (via web post) | Start a new topic > > Messages | > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Read my articles of 30 years ago which say this is spades. May your pressure be low!Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism the most common cause of "Difficult/Drug Resistant High Blood Pressure". Other research interests focus on the interactions of recent evolutionary forces on the body's ability to handle salt and the effect of dietary salt on blood pressure in populations today.Listed in Best Doctors of America 2009. On Oct 20, 2009, at 4:22 PM, soseo wrote: Val, I know you're not fond of Dr Young. )) This is getting off-topic, but out of four docs to look at my CT results, only Dr Young noticed a problem with my right adrenal. The other docs, when informed of this, said, "oh yeah, now we see that too. oops." ;-) Regardless of that, the article was a good starting point for me. -Sam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 I had a 5mm CT. That is a very, very large slice and will undoubtedly miss the small ones. Second, I had a 0.7mm and felt more confident in that. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill I do agree that something is wrong. And my doctor isn't doing much to find out what it is. I have tried to go to a non Gov. doctor and so far no luck. I don't think PA can be ruled out since the meds I am on are known to cause the test to be negative. Question what do you mean by the 5mm CT. I may well have something else other then PA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Sam, I am quite sure that Young is quite competent. I just became the loser in a pissing contest I didn't start. I am resentful about that. Sick people are sick. Val On Oct 20, 2009, at 4:22 PM, soseo wrote: Val, I know y ou're not fond of Dr Young. )) This is getting off-topic, but out of four docs to look at my CT results, only Dr Young noticed a problem with my right adrenal. The other docs, when informed of this, said, " oh yeah, now we see that too. oops. " ;-) Regardless of that, the article was a good starting point for me. -Sam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 I hadn't see the mm being used to size of CT slice. I would guess that the 5mm is on older CT machaine. There are other things besides slice size that help in finding tumors. As cost of equinment is high a health care facilities have to do a lot of CT to pay to update. > > I had a 5mm CT. That is a very, very large slice and will undoubtedly miss > the small ones. Second, I had a 0.7mm and felt more confident in that. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of Francis Bill > I do agree that something is wrong. And my doctor isn't doing much to find > out what it is. I have tried to go to a non Gov. doctor and so far no luck. > > I don't think PA can be ruled out since the meds I am on are known to cause > the test to be negative. > > Question what do you mean by the 5mm CT. > I may well have something else other then PA. > Quote Link to comment Share on other sites More sharing options...
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