new bp med.

[Guest guest]

And in future messages refer to this file if needed. We really need a good EMR here for PA. May your pressure be low!Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism the most common cause of "Difficult/Drug Resistant High Blood Pressure". Other research interests focus on the interactions of recent evolutionary forces on the body's ability to handle salt and the effect of dietary salt on blood pressure in populations today.Listed in Best Doctors of America 2009. On Oct 18, 2009, at 4:22 PM, Valarie wrote: Bridget, there are so many messages, most people cannot remember what you said a few days ago. How to put your story in the files: Write your story in any manner you choose. If it is easier for you, just copy your messages you have already sent to the list, add Dr. Grim’s comments (if any) and paste them all to a Word file and save. Remember where you saved your story on your computer. On the Hyperaldosteronism main page, click on “Files” on the left Find the folder called “Conns Stories.” Click on “Add File” at the bottom right. Click “Browse” to find it on your computer. Type in a short description like “Joe’s story.” Click on the box to send a message to the group to notify them of the addition. 8. Click on “Upload File.” If you want to update your information, do the additions/corrections in the file on your computer. Then delete the file you previously uploaded to and re-upload per the instructions above. Only the original author can delete your story. If you try to upload your story with the same file name, won't allow a duplicate. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of bridget I did post my story a few days ago, not just the symptoms..... > > It is much better to get the patients complete story rather than just > symptoms. > > Only way to know if they relate is to see if the go away with Rx once > Dx is made.

[Guest guest]

Val and Dr. Grim, I know, I wasn't being rude or anything. Thank you, I will

post it on there.

Bridget

> >

> > It is much better to get the patients complete story rather than just

> > symptoms.

> >

> > Only way to know if they relate is to see if the go away with Rx once

> > Dx is made.

>

[Guest guest]

Sorry, I think I just posted it on the message board, just seeing if anyone

could tell me if they thought I had conn's or not. I am having my blood

renin/aldo test tomorrow, after that I will post the results and my story. Thank

you, and I am sorry for the confusion

Bridget

> > > > > > > > > >

> > > > > > > > > > thank you, that's what I kind of thought...

> > > > > > > > > > Bridget

> > > > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Not sure if this will work but this should link to her first posting

hyperaldosteronism/message/16640

> > > > > > > > > >

> > > > > > > > > > thank you, that's what I kind of thought...

> > > > > > > > > > Bridget

> > > > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I think by time we get to this group many of us have run out of patiences. It is

also hard to keep up with things at first. It gets better once we learn a few

things. It doesn't help when the brain fog gets it the way.

> > >

> > > It is much better to get the patients complete story rather than just

> > > symptoms.

> > >

> > > Only way to know if they relate is to see if the go away with Rx once

> > > Dx is made.

> >

>

[Guest guest]

I agree! Thank you, I forgot to add the brain fog... it's like I can't think or

concentrate.

Bridget

> > > >

> > > > It is much better to get the patients complete story rather than just

> > > > symptoms.

> > > >

> > > > Only way to know if they relate is to see if the go away with Rx once

> > > > Dx is made.

> > >

> >

>

[Guest guest]

Thank You! :-)

> > > > > > > > > > >

> > > > > > > > > > > thank you, that's what I kind of thought...

> > > > > > > > > > > Bridget

> > > > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

TVM Chantal,

Good idea. I've not had those low K symptoms yet.

I do eat a lot of K, like 4 gms.

Regards

Re: new bp med.

You'll know when:If it is low, most likely the test can come back "normal" but you'llprobably have a hard time walking any distance and you may even notice your muscles visibly twitching. You'll may have leg cramps from simply activities like driving the car. You'll know, you'll see/feel the difference. I couldn't miss it when it happened to me, I couldn't maintain my daily routine/household.Again, running 10Km to having a hard time to keep up with the kids. You'll know if it is happening....don't doubt test, listen to your body, you'll see.chores.nism , "jwwright" <jwwright@...> wrote:>> How do we know K is low if we doubt the blood test?>

..

__________ NOD32 4389 (20090902) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com

[Guest guest]

I think you have a mix of symptoms, some may be food allergies.

You might try avoiding wheat, excess citric acid, eg.

Canned fish, cheese, chocolate, wine, beer, have tyramines which give

migraines - nothing to do with HTN.

Regards

Re: new bp med.

Many of your SX are the sams as others have that have PA. now T havent

read every thing that may be on this site. And PA can have other SX. Some of

what you have listed need a closer look by others that have PA. Here is her

list of SX Do they all relate to PA?

restless leg syndrome

facial flushing

ear pain/plugged/popping

high blood pressure not controllable with meds.

sinus tachycardia (fast heart rate)

nasal swelling/pressure

daily headaches

migraines

acne

tired all the time

fatigue

ringing in my ears (tinnitus)

dizziness

blurred vision

low potassium levels (still in normal range)

high sodium levels (still in normal range)

[Guest guest]

We awAit Bridgit's story. U can't give us too much detailTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 18, 2009, at 4:42 PM, bridget <blueyes7648@...> wrote:

Val and Dr. Grim, I know, I wasn't being rude or anything. Thank you, I will post it on there.

Bridget

> >

> > It is much better to get the patients complete story rather than just

> > symptoms.

> >

> > Only way to know if they relate is to see if the go away with Rx once

> > Dx is made.

>

[Guest guest]

I read your message, Bridget. Your symptoms all sound familiar but

they can be symptoms of many things.

We need hard evidence - test results. When you say " high sodium, " what

do you mean? When you say " low

potassium, " what do you mean?

Have you had a CT? Do you

have copies of all your tests?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of bridget

Thank You! :-)

>

> Not sure if this will work but this should link to her first posting

> hyperaldosteronism/message/16640

>

[Guest guest]

Also, what meds have you been on? What are you on now? Do you have children? How was your BP during pregnancy?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Valarie

I read your message, Bridget. Your

symptoms all sound familiar but they can be symptoms of many things. We

need hard evidence - test results. When you say " high sodium, "

what do you mean? When you say " low potassium, " what do you

mean? Have you had a CT? Do you have copies of all your tests?

Val

[Guest guest]

I have been on lisiniprol, nifidepine, toprol, propanelol. I am currently on

toprol 150 mg, and it isnt helping, it just helps my tachycardia. I do have one

child, and in the beginning of my pregnancy my bp was good, but I ended up

having to be induced because she had stopped growing at 24 weeks due to my bp

and only weighed 1 pound 12 ounces. That is another reason I am really trying to

figure out my bp, I want to have more kids and don't want to go through that

again.

Bridget

>

> Also, what meds have you been on? What are you on now? Do you have

> children? How was your BP during pregnancy?

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Valarie

>

> I read your message, Bridget. Your symptoms all sound familiar but they can

> be symptoms of many things. We need hard evidence - test results. When you

> say " high sodium, " what do you mean? When you say " low potassium, " what do

> you mean? Have you had a CT? Do you have copies of all your tests?

>

> Val

>

[Guest guest]

The potassium range is 3.4-5.3 and mine is usually around 3.5, and the sodium

range is 133-144 and mine is usually in the 140's. I know nothing about all of

this, I am just trying to figure out what is wrong with me and ask people that

are knowledgable on the subject. I have had an MRI of the brain and the kidneys

and they both came back normal, they checked for arterial stenosis and also said

that my adrenal glands are " unremarkable "

Bridget

> >

> > Not sure if this will work but this should link to her first posting

> > hyperaldosteronism/message/16640

> >

>

[Guest guest]

CT and MRI scans are only as good is the equipment the do them with. Older equipment doesn't always show things in as much detail as today equipment does. Also as only as good as persons skills that read the scan.

From: bridget <blueyes7648@...>Subject: Re: new bp med.hyperaldosteronism Date: Monday, October 19, 2009, 3:09 PM

The potassium range is 3.4-5.3 and mine is usually around 3.5, and the sodium range is 133-144 and mine is usually in the 140's.. I know nothing about all of this, I am just trying to figure out what is wrong with me and ask people that are knowledgable on the subject. I have had an MRI of the brain and the kidneys and they both came back normal, they checked for arterial stenosis and also said that my adrenal glands are "unremarkable"Bridget> >> > Not sure if

this will work but this should link to her first posting> > hyperaldosteronism/message/16640> >>------------------------------------

[Guest guest]

You have failed all the drugs that don't work in PA as you will note in my article.Was the failure do to the fact they did not work or were the stopped because of side effects?Classic story here. Be sure you add these details to your own "story" in our files.Good reporting. Most Drs don't recognize this.Please take my article to all Drs who have had trouble controlling your BP. This will help future patients.CE Grim MDOn Oct 19, 2009, at 9:58 AM, bridget wrote: I have been on lisiniprol, nifidepine, toprol, propanelol. I am currently on toprol 150 mg, and it isnt helping, it just helps my tachycardia. I do have one child, and in the beginning of my pregnancy my bp was good, but I ended up having to be induced because she had stopped growing at 24 weeks due to my bp and only weighed 1 pound 12 ounces. That is another reason I am really trying to figure out my bp, I want to have more kids and don't want to go through that again. Bridget > > Also, what meds have you been on? What are you on now? Do you have > children? How was your BP during pregnancy? > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of Valarie > > I read your message, Bridget. Your symptoms all sound familiar but they can > be symptoms of many things. We need hard evidence - test results. When you > say "high sodium," what do you mean? When you say "low potassium," what do > you mean? Have you had a CT? Do you have copies of all your tests? > > Val >

[Guest guest]

Adrenal bumps only show up in advanced cases of PA. Your story is classic for PA-I never consider a K of 3.5 as normal. CE Grim MDOn Oct 19, 2009, at 10:09 AM, bridget wrote: The potassium range is 3.4-5.3 and mine is usually around 3.5, and the sodium range is 133-144 and mine is usually in the 140's. I know nothing about all of this, I am just trying to figure out what is wrong with me and ask people that are knowledgable on the subject. I have had an MRI of the brain and the kidneys and they both came back normal, they checked for arterial stenosis and also said that my adrenal glands are "unremarkable" Bridget > > > > Not sure if this will work but this should link to her first posting > > hyperaldosteronism/message/16640 > > >

[Guest guest]

Also bumps must be big enough to see.CE Grim MDOn Oct 19, 2009, at 10:21 AM, Bill wrote: CT and MRI scans are only as good is the equipment the do them with. Older equipment doesn't always show things in as much detail as today equipment does. Also as only as good as persons skills that read the scan. From: bridget <blueyes7648 >Subject: Re: new bp med.hyperaldosteronism Date: Monday, October 19, 2009, 3:09 PM The potassium range is 3.4-5.3 and mine is usually around 3.5, and the sodium range is 133-144 and mine is usually in the 140's.. I know nothing about all of this, I am just trying to figure out what is wrong with me and ask people that are knowledgable on the subject. I have had an MRI of the brain and the kidneys and they both came back normal, they checked for arterial stenosis and also said that my adrenal glands are "unremarkable"Bridget> >> > Not sure if this will work but this should link to her first posting> > hyperaldosteronism/message/16640> >>------------------------------------

[Guest guest]

I had a CT with contrast, which is the second best test (the first being AVS).

Bindner

Web Directory (links to my sites and blogs):

http://www.geocities.com/mikeybdc/index.html

http://mikeybdc.blogspot.com

From: bridget <blueyes7648@...>Subject: Re: new bp med.hyperaldosteronism Date: Monday, October 19, 2009, 11:09 AM

The potassium range is 3.4-5.3 and mine is usually around 3.5, and the sodium range is 133-144 and mine is usually in the 140's. I know nothing about all of this, I am just trying to figure out what is wrong with me and ask people that are knowledgable on the subject. I have had an MRI of the brain and the kidneys and they both came back normal, they checked for arterial stenosis and also said that my adrenal glands are "unremarkable"Bridget> >> > Not sure if this will work but this should link to her first posting> > http://health. groups.. com/group/ hyperaldosteroni sm/message/ 16640> >>

[Guest guest]

both because they weren't working well and side affects, they would work for a

few days and have to be upped again and again. Is 150 mg toprol a lot for a 27

year old female weighing 145 lbs?

Bridget

> > >

> > > Also, what meds have you been on? What are you on now? Do you have

> > > children? How was your BP during pregnancy?

> > >

> > > Val

> > >

> > > From: hyperaldosteronism

> > > [mailto:hyperaldosteronism ] On Behalf Of Valarie

> >

> > >

> > > I read your message, Bridget. Your symptoms all sound familiar

> > but they can

> > > be symptoms of many things. We need hard evidence - test results.

> > When you

> > > say " high sodium, " what do you mean? When you say " low

> > potassium, " what do

> > > you mean? Have you had a CT? Do you have copies of all your tests?

> > >

> > > Val

> > >

> >

> >

>

[Guest guest]

Not likely to do much for BP. Take my art to ur teaM. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 19, 2009, at 12:59 PM, bridget <blueyes7648@...> wrote:

both because they weren't working well and side affects, they would work for a few days and have to be upped again and again. Is 150 mg toprol a lot for a 27 year old female weighing 145 lbs?

Bridget

> > >

> > > Also, what meds have you been on? What are you on now? Do you have

> > > children? How was your BP during pregnancy?

> > >

> > > Val

> > >

> > > From: hyperaldosteronism

> > > [mailto:hyperaldosteronism ] On Behalf Of Valarie

> >

> > >

> > > I read your message, Bridget. Your symptoms all sound familiar

> > but they can

> > > be symptoms of many things. We need hard evidence - test results.

> > When you

> > > say "high sodium," what do you mean? When you say "low

> > potassium," what do

> > > you mean? Have you had a CT? Do you have copies of all your tests?

> > >

> > > Val

> > >

> >

> >

>

[Guest guest]

If you remember please add the details of meds, doses and side effects to ur story. With dateS as well as ode as u can get. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 19, 2009, at 12:59 PM, bridget <blueyes7648@...> wrote:

both because they weren't working well and side affects, they would work for a few days and have to be upped again and again. Is 150 mg toprol a lot for a 27 year old female weighing 145 lbs?

Bridget

> > >

> > > Also, what meds have you been on? What are you on now? Do you have

> > > children? How was your BP during pregnancy?

> > >

> > > Val

> > >

> > > From: hyperaldosteronism

> > > [mailto:hyperaldosteronism ] On Behalf Of Valarie

> >

> > >

> > > I read your message, Bridget. Your symptoms all sound familiar

> > but they can

> > > be symptoms of many things. We need hard evidence - test results.

> > When you

> > > say "high sodium," what do you mean? When you say "low

> > potassium," what do

> > > you mean? Have you had a CT? Do you have copies of all your tests?

> > >

> > > Val

> > >

> >

> >

>

[Guest guest]

Hi, how did your test go after all?

I've read your symptoms and I have almost all of your symptoms except a

couple... I don't have restless leg but (Get this though -my son has restless

leg big time and my daughter has benign sleep myoclonus-jerky hand/feet motions

in first stage of sleep, pretty scary we had an EEG done to rule out seizures) -

I wonder if there is a connection - my legs are more twitchy, isolated muscles

and crampy. Often times my right calf and my left quad... Crazy isn't it?

sometimes I feel like frankenstein, twitching -where is it going to pop up next,

cheek, intestines, diaphragm... Weird stuff

All the other symptoms are bang on except I don't get the headaches daily.

RE. ACNE though- the first month that I really had life-changing change in my

symptoms (Stage 2-3 to Stage 4) from not feeling well to not able to function

at all .. My potassium was at 3.5.. I had the worse case of acne ever right

before. I don't normally have the full-blown acne but my face is rarely

clear... I joke with my husband because he never has break outs but I always

do.. I think this may be aldosterone related esp. if we have PA. (I think the

food we eat and stress play a role as well, hormones etc. but my face was so bad

that month and then, poof, so dizzy, vertigo, hypokalemia..)

So

TTFN

Hope you are feeling better...

Don't forget to try lowering your salt intake/add potassium-No salt to your

foods (let your doctor know) and eat lots of potassium rich food, tomatoes, OJ,

oranges, cantalope, bananas- I eat at least 2-3 bananas a day, an orange, OJ

glass, a smoothie with oj and banana with flax etc. potatoes with skin ... all

this and still need 4-5 k-dur... BTW, my blood work was at 3.5 and even with all

this I can't get it above 4.0 typically..

> > > >

> > > > Also, what meds have you been on? What are you on now? Do you have

> > > > children? How was your BP during pregnancy?

> > > >

> > > > Val

> > > >

> > > > From: hyperaldosteronism

> > > > [mailto:hyperaldosteronism ] On Behalf Of Valarie

> > >

> > > >

> > > > I read your message, Bridget. Your symptoms all sound familiar

> > > but they can

> > > > be symptoms of many things. We need hard evidence - test results.

> > > When you

> > > > say " high sodium, " what do you mean? When you say " low

> > > potassium, " what do

> > > > you mean? Have you had a CT? Do you have copies of all your tests?

> > > >

> > > > Val

> > > >

> > >

> > >

> >

>

[Guest guest]

It went okay, I know it sounds sad, but I really hope they find something wrong

with me, like PA, I am just so sick of feeling like this! Have you been

diagnosed with PA? What are the stages you are talking about? In this last year

I went from feeling like crap to not being able to function at all as well, I

used to love cleaning the house and playing with my daughter and shopping for

the house and stuff, but don't even have the energy to do the dishes barely! I

just have to find out an answer. I think the test is going to come back wrong

either way, the cardio didn't realize I shouldn't be on a beta blocker bp med

while having the test. I am going to an endo next week either way so

hopefully.....

Hope you get some answers on yours soon and good luck to you! I hope it doesn't

take too long to get the results, the wait everytime is killing me.

Bridget

> > > > >

> > > > > Also, what meds have you been on? What are you on now? Do you have

> > > > > children? How was your BP during pregnancy?

> > > > >

> > > > > Val

> > > > >

> > > > > From: hyperaldosteronism

> > > > > [mailto:hyperaldosteronism ] On Behalf Of Valarie

> > > >

> > > > >

> > > > > I read your message, Bridget. Your symptoms all sound familiar

> > > > but they can

> > > > > be symptoms of many things. We need hard evidence - test results.

> > > > When you

> > > > > say " high sodium, " what do you mean? When you say " low

> > > > potassium, " what do

> > > > > you mean? Have you had a CT? Do you have copies of all your tests?

> > > > >

> > > > > Val

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Oh, I just thought of something, I have had this weird twitching in my stomach

for a long time, like my intestines were twitching, and sometimes I feel like I

have a baby in my uterus moving! I thought I was going nuts, but if I do have

PA, I bet it was just the muscle twitching everyone talks about.... weird

> > > > >

> > > > > Also, what meds have you been on? What are you on now? Do you have

> > > > > children? How was your BP during pregnancy?

> > > > >

> > > > > Val

> > > > >

> > > > > From: hyperaldosteronism

> > > > > [mailto:hyperaldosteronism ] On Behalf Of Valarie

> > > >

> > > > >

> > > > > I read your message, Bridget. Your symptoms all sound familiar

> > > > but they can

> > > > > be symptoms of many things. We need hard evidence - test results.

> > > > When you

> > > > > say " high sodium, " what do you mean? When you say " low

> > > > potassium, " what do

> > > > > you mean? Have you had a CT? Do you have copies of all your tests?

> > > > >

> > > > > Val

> > > > >

> > > >

> > > >

> > >

> >

>