New Member

[Guest guest]

HI Moira

I am replying to these first as they are on top of the pile.

Firstly I want to respond to your concern re the campaigning you are doing.

I am sorry your MSc colleague feels that way but I think it reflects why we

are where we are as nurses and in the NHS. One of our big difficulties in

the NHS is peolple protect themselves rather then the role of indeed the

public. We need to speak up - I am a prime example of someone who gently

speaks her mind and it has not done me any harm. Yes there are people in

the DoH who would rather not have it but one has to ask what they achieve -

the civil service is an example of an organisation that controls - we do

need some but it so important when you believe in someting to say so. That

is one of the reasons why I could not stay as regional nurse - I felt so

controled.

Moving on to the minutes -

I actually thought Joannas minutes - thankyou for sending them - said it

all. I can understand why they cannot be ciculated that widely but do feel

that as possible they should be shown to memebrs -they really say it all.

As regards yours - I do have some suggestions and will phone you presently

to share them - gave me your number. Keep up the good work - I look

forward to meeting you on Saturday.

Regards

Margaret

new member

> Having just joined the SENATE, I realise from reading some of the previous

> entries that I am not alone in feeling suddenly overwhelmed with

> information.... as I was automatically sent the digests for June - August

> and Sept - October last year I thought I would print them off and enjoy

> some interesting bedtime reading - I think I might be in bed for a

> fortnight!! Is there anyway of accessing people's comments by theme or

> would that just create too much work for someone?

>

> I specifically joined SENATE to-day because I had heard a lot of good

> things about it and because I particularly needed to acquaint myself with

> the latest recommendations of the forthcoming Hall report -( I know there

> was a launch in July )- and access views of health visitors about it. Has

> there been any kind of debate about it's content and if so how can I

access

> that debate? Also can anyone tell me whereabouts on the internet I can

> find reference to it - I have been surfing without success for over an

hour.

>

> I would also like to know if there is anyone out there with a similar

remit

> to my own? I was appointd to the post of health visitor consultant

> (parental and child health) for Mid Essex in March of this year. I am in

> the rather strange position of being employed by the North Essex Mental

> Health Partnership NHS Trust (who do not employ health visitors in a

health

> visiting capacity although do employ h.v.'s within CFCS teams ) to promote

> emotional well-being and positive mental health in children and families,

> by acting as a sort of " go-between " between h.v.'s and CFCS / adult mental

> health. I am currently undertaking a mapping and gapping exercise which

> includes an examination of existing protocols and referral pathways and

> professional perceptions of mental health problems in both children and

> their parents. Like all nurse consultant posts, I am supposed to divide my

> time between clinical practice, leadership and consultancy, education and

> training and research and evaluation. I have also been looking at current

> involvement in parenting programmes, who's doing what in terms of

detecting

> and managing postnatal depression, I have participated in the PIPPIN pilot

> for the Home Office, am exploring with colleagues the prospect of

> delivering modifed STEP parenting programmes to special needs groups and

am

> in the process of helping to deliver an early intervention in behaviour

> problems training programme for health visitors ( based on the Solihull

> approach). I am also intersted in setting up an early intervention forum.

>

> In October I will be starting a brand new clinical doctorate programme at

> the University of Essex which will culminate in the award of Doctor of

> Nursing ( hows that for confusing terminology?) and my inital proposals

for

> research projects include an examination of professional and parental

> perceptions of need of parents and babies in neonatal units and parental

> reflections on positive and negative components of professional and social

> support in the first three years of life.

>

> From a superficial glimpse of the two digests from last year, I realise

> that there is ongoing debate about the public health role of health

> visitors and its compatibility or otherwise with the firefighting that has

> become routine health visiting practice. I also note the dichotomy of

> opinion about the current focus of health visiting on the under 5's, but I

> have to say that the more I read and understand about the importance of

> attachment and the profound impact the quality of early parent-infant

> interaction has on the structure and function of the developing brain, the

> more I am convinced of the importance of consistent, frequent, reciprocal

> health visiting input during the first three years of life so that we are

> truly able to change our focus from managing behavioural diffulties to

> preventing them, thereby reducing the prevalence of the most common and

> enduring mental health problems in children under 5 - especially conduct

> disorders - which, if prevented have implications for improving public

> health. It has been demonstrated time and time again that children with

> conduct disorders are often unable to acheive their educational poential

> because of their poor attention spans or disruptive behaviour, are less

> likely to succeed at school, are more likely to play truant or be excluded

> from school, are less likely to complete their education or achieve the

> minimum number of basic qualifications, are more likely to abuse drugs or

> alcohol, are less likely to be able to get a job and are more likely to

> indulge in criminal activity. Apart from anything else, It makes economic

> sense to intervene early and avoid all the extra expenditure that such a

> pathway would entail and yet we still have difficulty convincing

> commissioners of the value of early intervention? Promoting positive

mental

> health in children is a public health issue and seems to encapsulate, for

> me, the family centred public health role of health visitors advocated in

> so many policy documents. I would , of course, be interested to hear

others

> views on the subject or is this a debate that has passed?

>

> Looking forward to hearing from you

> Lowenhoff

>

>

>

>

>

[Guest guest]

Dear ,

Welcome to SENATE and congratulations on your Health visitor consultant

post. Hall 4 up-to-date information is to be found on

www.health-for-all-children.co.uk

You must have met Britten by now. I met him last year when I came

over to Essex to meet with himself and some of the health visitors to look

at parenting. He seemed quite evangelical about parenting then. I agree

wholeheartedly that working to prevent mental health problems in children is

a public health issue and would love to discuss this further with you.

Please do ring me if you wish on 01992 893989.

Best wishes,

new member

> Having just joined the SENATE, I realise from reading some of the previous

> entries that I am not alone in feeling suddenly overwhelmed with

> information.... as I was automatically sent the digests for June - August

> and Sept - October last year I thought I would print them off and enjoy

> some interesting bedtime reading - I think I might be in bed for a

> fortnight!! Is there anyway of accessing people's comments by theme or

> would that just create too much work for someone?

>

> I specifically joined SENATE to-day because I had heard a lot of good

> things about it and because I particularly needed to acquaint myself with

> the latest recommendations of the forthcoming Hall report -( I know there

> was a launch in July )- and access views of health visitors about it. Has

> there been any kind of debate about it's content and if so how can I

access

> that debate? Also can anyone tell me whereabouts on the internet I can

> find reference to it - I have been surfing without success for over an

hour.

>

> I would also like to know if there is anyone out there with a similar

remit

> to my own? I was appointd to the post of health visitor consultant

> (parental and child health) for Mid Essex in March of this year. I am in

> the rather strange position of being employed by the North Essex Mental

> Health Partnership NHS Trust (who do not employ health visitors in a

health

> visiting capacity although do employ h.v.'s within CFCS teams ) to promote

> emotional well-being and positive mental health in children and families,

> by acting as a sort of " go-between " between h.v.'s and CFCS / adult mental

> health. I am currently undertaking a mapping and gapping exercise which

> includes an examination of existing protocols and referral pathways and

> professional perceptions of mental health problems in both children and

> their parents. Like all nurse consultant posts, I am supposed to divide my

> time between clinical practice, leadership and consultancy, education and

> training and research and evaluation. I have also been looking at current

> involvement in parenting programmes, who's doing what in terms of

detecting

> and managing postnatal depression, I have participated in the PIPPIN pilot

> for the Home Office, am exploring with colleagues the prospect of

> delivering modifed STEP parenting programmes to special needs groups and

am

> in the process of helping to deliver an early intervention in behaviour

> problems training programme for health visitors ( based on the Solihull

> approach). I am also intersted in setting up an early intervention forum.

>

> In October I will be starting a brand new clinical doctorate programme at

> the University of Essex which will culminate in the award of Doctor of

> Nursing ( hows that for confusing terminology?) and my inital proposals

for

> research projects include an examination of professional and parental

> perceptions of need of parents and babies in neonatal units and parental

> reflections on positive and negative components of professional and social

> support in the first three years of life.

>

> From a superficial glimpse of the two digests from last year, I realise

> that there is ongoing debate about the public health role of health

> visitors and its compatibility or otherwise with the firefighting that has

> become routine health visiting practice. I also note the dichotomy of

> opinion about the current focus of health visiting on the under 5's, but I

> have to say that the more I read and understand about the importance of

> attachment and the profound impact the quality of early parent-infant

> interaction has on the structure and function of the developing brain, the

> more I am convinced of the importance of consistent, frequent, reciprocal

> health visiting input during the first three years of life so that we are

> truly able to change our focus from managing behavioural diffulties to

> preventing them, thereby reducing the prevalence of the most common and

> enduring mental health problems in children under 5 - especially conduct

> disorders - which, if prevented have implications for improving public

> health. It has been demonstrated time and time again that children with

> conduct disorders are often unable to acheive their educational poential

> because of their poor attention spans or disruptive behaviour, are less

> likely to succeed at school, are more likely to play truant or be excluded

> from school, are less likely to complete their education or achieve the

> minimum number of basic qualifications, are more likely to abuse drugs or

> alcohol, are less likely to be able to get a job and are more likely to

> indulge in criminal activity. Apart from anything else, It makes economic

> sense to intervene early and avoid all the extra expenditure that such a

> pathway would entail and yet we still have difficulty convincing

> commissioners of the value of early intervention? Promoting positive

mental

> health in children is a public health issue and seems to encapsulate, for

> me, the family centred public health role of health visitors advocated in

> so many policy documents. I would , of course, be interested to hear

others

> views on the subject or is this a debate that has passed?

>

> Looking forward to hearing from you

> Lowenhoff

>

>

>

>

>

[Guest guest]

Hi

I was talking to Liz ARmstrong from the Depression Care Training Centre in

Northampton yesterday. You probably know Liz - Hv by background but now a

primary care mental health expert.

I emntioned your post and she said she would be keen to speak with you and

share. She knows of a couple of people active in the area you are working

in in Essex - sue Chapman, and Sandy Gardiner. She would give you the

contact numbers if you ring her

Regards

Margaret

new member

> Having just joined the SENATE, I realise from reading some of the previous

> entries that I am not alone in feeling suddenly overwhelmed with

> information.... as I was automatically sent the digests for June - August

> and Sept - October last year I thought I would print them off and enjoy

> some interesting bedtime reading - I think I might be in bed for a

> fortnight!! Is there anyway of accessing people's comments by theme or

> would that just create too much work for someone?

>

> I specifically joined SENATE to-day because I had heard a lot of good

> things about it and because I particularly needed to acquaint myself with

> the latest recommendations of the forthcoming Hall report -( I know there

> was a launch in July )- and access views of health visitors about it. Has

> there been any kind of debate about it's content and if so how can I

access

> that debate? Also can anyone tell me whereabouts on the internet I can

> find reference to it - I have been surfing without success for over an

hour.

>

> I would also like to know if there is anyone out there with a similar

remit

> to my own? I was appointd to the post of health visitor consultant

> (parental and child health) for Mid Essex in March of this year. I am in

> the rather strange position of being employed by the North Essex Mental

> Health Partnership NHS Trust (who do not employ health visitors in a

health

> visiting capacity although do employ h.v.'s within CFCS teams ) to promote

> emotional well-being and positive mental health in children and families,

> by acting as a sort of " go-between " between h.v.'s and CFCS / adult mental

> health. I am currently undertaking a mapping and gapping exercise which

> includes an examination of existing protocols and referral pathways and

> professional perceptions of mental health problems in both children and

> their parents. Like all nurse consultant posts, I am supposed to divide my

> time between clinical practice, leadership and consultancy, education and

> training and research and evaluation. I have also been looking at current

> involvement in parenting programmes, who's doing what in terms of

detecting

> and managing postnatal depression, I have participated in the PIPPIN pilot

> for the Home Office, am exploring with colleagues the prospect of

> delivering modifed STEP parenting programmes to special needs groups and

am

> in the process of helping to deliver an early intervention in behaviour

> problems training programme for health visitors ( based on the Solihull

> approach). I am also intersted in setting up an early intervention forum.

>

> In October I will be starting a brand new clinical doctorate programme at

> the University of Essex which will culminate in the award of Doctor of

> Nursing ( hows that for confusing terminology?) and my inital proposals

for

> research projects include an examination of professional and parental

> perceptions of need of parents and babies in neonatal units and parental

> reflections on positive and negative components of professional and social

> support in the first three years of life.

>

> From a superficial glimpse of the two digests from last year, I realise

> that there is ongoing debate about the public health role of health

> visitors and its compatibility or otherwise with the firefighting that has

> become routine health visiting practice. I also note the dichotomy of

> opinion about the current focus of health visiting on the under 5's, but I

> have to say that the more I read and understand about the importance of

> attachment and the profound impact the quality of early parent-infant

> interaction has on the structure and function of the developing brain, the

> more I am convinced of the importance of consistent, frequent, reciprocal

> health visiting input during the first three years of life so that we are

> truly able to change our focus from managing behavioural diffulties to

> preventing them, thereby reducing the prevalence of the most common and

> enduring mental health problems in children under 5 - especially conduct

> disorders - which, if prevented have implications for improving public

> health. It has been demonstrated time and time again that children with

> conduct disorders are often unable to acheive their educational poential

> because of their poor attention spans or disruptive behaviour, are less

> likely to succeed at school, are more likely to play truant or be excluded

> from school, are less likely to complete their education or achieve the

> minimum number of basic qualifications, are more likely to abuse drugs or

> alcohol, are less likely to be able to get a job and are more likely to

> indulge in criminal activity. Apart from anything else, It makes economic

> sense to intervene early and avoid all the extra expenditure that such a

> pathway would entail and yet we still have difficulty convincing

> commissioners of the value of early intervention? Promoting positive

mental

> health in children is a public health issue and seems to encapsulate, for

> me, the family centred public health role of health visitors advocated in

> so many policy documents. I would , of course, be interested to hear

others

> views on the subject or is this a debate that has passed?

>

> Looking forward to hearing from you

> Lowenhoff

>

>

>

>

>

[Guest guest]

Hello Lowenhoffs! I have just read your very well worded account of the

health visitors role in early assessments and where necessary intervention

in relation to infant mental health. In fact I have printed it off in order

to use a paragraph at an HV meeting next week. Hope that is OK. I have a

similar post in Bristol as a specialist health visitor in infant mental

health. I too am involved in helping to implement the Solihull approach.( I

have also been on an excellent introduction to PIPPIN day which I am keeping

in mind). It would be good to link up. My work phone number is 0117 9595802.

Ros Bennet

new member

>Having just joined the SENATE, I realise from reading some of the previous

>entries that I am not alone in feeling suddenly overwhelmed with

>information.... as I was automatically sent the digests for June - August

>and Sept - October last year I thought I would print them off and enjoy

>some interesting bedtime reading - I think I might be in bed for a

>fortnight!! Is there anyway of accessing people's comments by theme or

>would that just create too much work for someone?

>

>I specifically joined SENATE to-day because I had heard a lot of good

>things about it and because I particularly needed to acquaint myself with

>the latest recommendations of the forthcoming Hall report -( I know there

>was a launch in July )- and access views of health visitors about it. Has

>there been any kind of debate about it's content and if so how can I access

>that debate? Also can anyone tell me whereabouts on the internet I can

>find reference to it - I have been surfing without success for over an

hour.

>

>I would also like to know if there is anyone out there with a similar remit

>to my own? I was appointd to the post of health visitor consultant

>(parental and child health) for Mid Essex in March of this year. I am in

>the rather strange position of being employed by the North Essex Mental

>Health Partnership NHS Trust (who do not employ health visitors in a health

>visiting capacity although do employ h.v.'s within CFCS teams ) to promote

>emotional well-being and positive mental health in children and families,

>by acting as a sort of " go-between " between h.v.'s and CFCS / adult mental

>health. I am currently undertaking a mapping and gapping exercise which

>includes an examination of existing protocols and referral pathways and

>professional perceptions of mental health problems in both children and

>their parents. Like all nurse consultant posts, I am supposed to divide my

>time between clinical practice, leadership and consultancy, education and

>training and research and evaluation. I have also been looking at current

>involvement in parenting programmes, who's doing what in terms of detecting

>and managing postnatal depression, I have participated in the PIPPIN pilot

>for the Home Office, am exploring with colleagues the prospect of

>delivering modifed STEP parenting programmes to special needs groups and am

>in the process of helping to deliver an early intervention in behaviour

>problems training programme for health visitors ( based on the Solihull

>approach). I am also intersted in setting up an early intervention forum.

>

> In October I will be starting a brand new clinical doctorate programme at

>the University of Essex which will culminate in the award of Doctor of

>Nursing ( hows that for confusing terminology?) and my inital proposals for

>research projects include an examination of professional and parental

>perceptions of need of parents and babies in neonatal units and parental

>reflections on positive and negative components of professional and social

>support in the first three years of life.

>

>From a superficial glimpse of the two digests from last year, I realise

>that there is ongoing debate about the public health role of health

>visitors and its compatibility or otherwise with the firefighting that has

>become routine health visiting practice. I also note the dichotomy of

>opinion about the current focus of health visiting on the under 5's, but I

>have to say that the more I read and understand about the importance of

>attachment and the profound impact the quality of early parent-infant

>interaction has on the structure and function of the developing brain, the

>more I am convinced of the importance of consistent, frequent, reciprocal

>health visiting input during the first three years of life so that we are

>truly able to change our focus from managing behavioural diffulties to

>preventing them, thereby reducing the prevalence of the most common and

>enduring mental health problems in children under 5 - especially conduct

>disorders - which, if prevented have implications for improving public

>health. It has been demonstrated time and time again that children with

>conduct disorders are often unable to acheive their educational poential

>because of their poor attention spans or disruptive behaviour, are less

>likely to succeed at school, are more likely to play truant or be excluded

>from school, are less likely to complete their education or achieve the

>minimum number of basic qualifications, are more likely to abuse drugs or

>alcohol, are less likely to be able to get a job and are more likely to

>indulge in criminal activity. Apart from anything else, It makes economic

>sense to intervene early and avoid all the extra expenditure that such a

>pathway would entail and yet we still have difficulty convincing

>commissioners of the value of early intervention? Promoting positive mental

>health in children is a public health issue and seems to encapsulate, for

>me, the family centred public health role of health visitors advocated in

>so many policy documents. I would , of course, be interested to hear others

>views on the subject or is this a debate that has passed?

>

>Looking forward to hearing from you

> Lowenhoff

>

>

>

>

>

[Guest guest]

Dear ,

The NHS Consultant Nurse Network is meeting at the RCN on Thursday 22

November from 9.30 am on. At the last meeting almost everyone present

worked in specialist, hospital-based, niches, but there might be some

useful tips for your new post as HV Consultant this time...

Wishing you all the very best,

Woody.

> Having just joined the SENATE, I realise from reading some of the

previous

> entries that I am not alone in feeling suddenly overwhelmed with

> information.... as I was automatically sent the digests for June -

August

> and Sept - October last year I thought I would print them off and

enjoy

> some interesting bedtime reading - I think I might be in bed for a

> fortnight!! Is there anyway of accessing people's comments by theme

or

> would that just create too much work for someone?

>

> I specifically joined SENATE to-day because I had heard a lot of

good

> things about it and because I particularly needed to acquaint myself

with

> the latest recommendations of the forthcoming Hall report -( I know

there

> was a launch in July )- and access views of health visitors about

it. Has

> there been any kind of debate about it's content and if so how can I

access

> that debate? Also can anyone tell me whereabouts on the internet I

can

> find reference to it - I have been surfing without success for over

an hour.

>

> I would also like to know if there is anyone out there with a

similar remit

> to my own? I was appointd to the post of health visitor consultant

> (parental and child health) for Mid Essex in March of this year. I

am in

> the rather strange position of being employed by the North Essex

Mental

> Health Partnership NHS Trust (who do not employ health visitors in a

health

> visiting capacity although do employ h.v.'s within CFCS teams ) to

promote

> emotional well-being and positive mental health in children and

families,

> by acting as a sort of " go-between " between h.v.'s and CFCS / adult

mental

> health. I am currently undertaking a mapping and gapping exercise

which

> includes an examination of existing protocols and referral pathways

and

> professional perceptions of mental health problems in both children

and

> their parents. Like all nurse consultant posts, I am supposed to

divide my

> time between clinical practice, leadership and consultancy,

education and

> training and research and evaluation. I have also been looking at

current

> involvement in parenting programmes, who's doing what in terms of

detecting

> and managing postnatal depression, I have participated in the PIPPIN

pilot

> for the Home Office, am exploring with colleagues the prospect of

> delivering modifed STEP parenting programmes to special needs groups

and am

> in the process of helping to deliver an early intervention in

behaviour

> problems training programme for health visitors ( based on the

Solihull

> approach). I am also intersted in setting up an early intervention

forum.

>

> In October I will be starting a brand new clinical doctorate

programme at

> the University of Essex which will culminate in the award of Doctor

of

> Nursing ( hows that for confusing terminology?) and my inital

proposals for

> research projects include an examination of professional and

parental

> perceptions of need of parents and babies in neonatal units and

parental

> reflections on positive and negative components of professional and

social

> support in the first three years of life.

>

> From a superficial glimpse of the two digests from last year, I

realise

> that there is ongoing debate about the public health role of health

> visitors and its compatibility or otherwise with the firefighting

that has

> become routine health visiting practice. I also note the dichotomy

of

> opinion about the current focus of health visiting on the under 5's,

but I

> have to say that the more I read and understand about the importance

of

> attachment and the profound impact the quality of early

parent-infant

> interaction has on the structure and function of the developing

brain, the

> more I am convinced of the importance of consistent, frequent,

reciprocal

> health visiting input during the first three years of life so that

we are

> truly able to change our focus from managing behavioural diffulties

to

> preventing them, thereby reducing the prevalence of the most common

and

> enduring mental health problems in children under 5 - especially

conduct

> disorders - which, if prevented have implications for improving

public

> health. It has been demonstrated time and time again that children

with

> conduct disorders are often unable to acheive their educational

poential

> because of their poor attention spans or disruptive behaviour, are

less

> likely to succeed at school, are more likely to play truant or be

excluded

> from school, are less likely to complete their education or achieve

the

> minimum number of basic qualifications, are more likely to abuse

drugs or

> alcohol, are less likely to be able to get a job and are more likely

to

> indulge in criminal activity. Apart from anything else, It makes

economic

> sense to intervene early and avoid all the extra expenditure that

such a

> pathway would entail and yet we still have difficulty convincing

> commissioners of the value of early intervention? Promoting positive

mental

> health in children is a public health issue and seems to

encapsulate, for

> me, the family centred public health role of health visitors

advocated in

> so many policy documents. I would , of course, be interested to hear

others

> views on the subject or is this a debate that has passed?

>

> Looking forward to hearing from you

> Lowenhoff

[Guest guest]

,

I am so glad you joined!!

Where is Lanzarote? (This is Kathy)

I will be talking to you soon.

Take care

new member

Hi,

My name is and I have a 10 year old boy named -Lee who has

. We live in the West Midlands, England.

It is so lovely to know that there are people out there sharing the same

problems and of course joy of the everyday upbringing of our children.

Hope to speak to some of you soon

[Guest guest]

HI Kathy,

Lanzarote is one of the Canary Island's just outside of Africa. Speak to

you soon

new member

>

>

> Hi,

>

> My name is and I have a 10 year old boy named -Lee who has

. We live in the West Midlands, England.

>

> It is so lovely to know that there are people out there sharing the same

problems and of course joy of the everyday upbringing of our children.

>

> Hope to speak to some of you soon

>

>

>

>

>

[Guest guest]

> Hi,

>

> My name is and I have a 10 year old boy named -Lee who

has . We live in the West Midlands, England.

>

> It is so lovely to know that there are people out there sharing the

same problems and of course joy of the everyday upbringing of our

children.

>

> Hope to speak to some of you soon

>

>

> Hi and Lee

Welcome to this group I know you will learn lots. My name is Lesley

and I live in Lanarkshire, Scotland, I also have a 10 year old boy

named who has DS-ASD?.I would like to hear how you got

Lee's diagnosis as I have found it really hard for anyone to listen

or respond to my theories? Hope to hear from you soon.

Lesley,

>

Hi to everyone else, I have been reading all the messages and have

been laughing and crying over them.I found the PICA stories funny and

the shoe situation upsetting, also takes his shoes,socks and

trousers off every chance he gets, we have tried almost everything to

get him to keep them on but nothing works.I dont think he has PICA

but he does like to chew on soft toys and his socks.

Lesley,

>

[Guest guest]

Hi linda, nice to meeet you! we should have lots in

common, my oldest, nathan, w/ds pdd add/hd, and ocd,

is also 10yrs old shawna.

--- ljpd <ljpd@...> wrote:

> Hi,

>

> My name is and I have a 10 year old boy named

> -Lee who has . We live in the West

> Midlands, England.

>

> It is so lovely to know that there are people out

> there sharing the same problems and of course joy of

> the everyday upbringing of our children.

>

> Hope to speak to some of you soon

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Welcome to the group. I hope that you learn and

that y'all share stuff with this group.

--- mashawnag <mashawnag@...> wrote:

> Hi linda, nice to meeet you! we should have lots in

> common, my oldest, nathan, w/ds pdd add/hd, and ocd,

> is also 10yrs old shawna.

> --- ljpd <ljpd@...> wrote:

> > Hi,

> >

> > My name is and I have a 10 year old boy

> named

> > -Lee who has . We live in the West

> > Midlands, England.

> >

> > It is so lovely to know that there are people out

> > there sharing the same problems and of course joy

> of

> > the everyday upbringing of our children.

> >

> > Hope to speak to some of you soon

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

In a message dated 10/13/01 6:31:00 AM Pacific Daylight Time,

ljpd@... writes:

<< Hi,

My name is and I have a 10 year old boy named -Lee who has

. We live in the West Midlands, England.

It is so lovely to know that there are people out there sharing the same

problems and of course joy of the everyday upbringing of our children.

Hope to speak to some of you soon

>>

Welcome and -Lee.

Gail :-)

[Guest guest]

Hi

Great to hear from you

I'm sorry, but I don't understand w/ds, pdd and so on, can you explain them

to me

Re: new member

>

>

> Welcome to the group. I hope that you learn and

> that y'all share stuff with this group.

>

>

>

>

>

> --- mashawnag <mashawnag@...> wrote:

> > Hi linda, nice to meeet you! we should have lots in

> > common, my oldest, nathan, w/ds pdd add/hd, and ocd,

> > is also 10yrs old shawna.

> > --- ljpd <ljpd@...> wrote:

> > > Hi,

> > >

> > > My name is and I have a 10 year old boy

> > named

> > > -Lee who has . We live in the West

> > > Midlands, England.

> > >

> > > It is so lovely to know that there are people out

> > > there sharing the same problems and of course joy

> > of

> > > the everyday upbringing of our children.

> > >

> > > Hope to speak to some of you soon

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

I don't understand.

--- ljpd <ljpd@...> wrote:

> Hi

>

> Great to hear from you

>

> I'm sorry, but I don't understand w/ds, pdd and so

> on, can you explain them

> to me

>

>

> Re: new member

>

>

> >

> >

> > Welcome to the group. I hope that you learn

> and

> > that y'all share stuff with this group.

> >

> >

> >

> >

> >

> > --- mashawnag <mashawnag@...> wrote:

> > > Hi linda, nice to meeet you! we should have lots

> in

> > > common, my oldest, nathan, w/ds pdd add/hd, and

> ocd,

> > > is also 10yrs old shawna.

> > > --- ljpd <ljpd@...> wrote:

> > > > Hi,

> > > >

> > > > My name is and I have a 10 year old boy

> > > named

> > > > -Lee who has . We live in the

> West

> > > > Midlands, England.

> > > >

> > > > It is so lovely to know that there are people

> out

> > > > there sharing the same problems and of course

> joy

> > > of

> > > > the everyday upbringing of our children.

> > > >

> > > > Hope to speak to some of you soon

> > > >

> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> > >

> __________________________________________________

> > >

[Guest guest]

What do they mean. I know mean down syndrome and autism but not

the others you mentioned. Thick are'nt I

Re: new member

> >

> >

> > >

> > >

> > > Welcome to the group. I hope that you learn

> > and

> > > that y'all share stuff with this group.

> > >

> > >

> > >

> > >

> > >

> > > --- mashawnag <mashawnag@...> wrote:

> > > > Hi linda, nice to meeet you! we should have lots

> > in

> > > > common, my oldest, nathan, w/ds pdd add/hd, and

> > ocd,

> > > > is also 10yrs old shawna.

> > > > --- ljpd <ljpd@...> wrote:

> > > > > Hi,

> > > > >

> > > > > My name is and I have a 10 year old boy

> > > > named

> > > > > -Lee who has . We live in the

> > West

> > > > > Midlands, England.

> > > > >

> > > > > It is so lovely to know that there are people

> > out

> > > > > there sharing the same problems and of course

> > joy

> > > > of

> > > > > the everyday upbringing of our children.

> > > > >

> > > > > Hope to speak to some of you soon

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > [Non-text portions of this message have been

> > > > > removed]

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > __________________________________________________

> > > >

[Guest guest]

PDD means Pervasive Developmental Disorder and sometimes they add NOS to that,

Not Otherwise Specified.

PDD-NOS is what has. It means he doesn't meet all the criteria for

autism, but he meets enough of them to be affected. He did have the diagnosis

of autism, DS, ADHD and Oppositional Defiant disorder, but when we put him on

the gluten free diet, he got rid of everything and lowered the autism down to

PDD-NOS. When we put him on the gluten free diet (no wheat barley oats or rye),

he went from preschool curriculum to 1st grade, and went from speaking in 1-2

word sentences to 5-7 word, though not grammatically correct. That was about a

year ago. Now he's even starting to get the grammar down.

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

[Guest guest]

has anyone else tried the gluten free diet, if so did it work as well as it

seems to for .

Does anyone think the MMR is responsible for autism

Re: new member

> PDD means Pervasive Developmental Disorder and sometimes they add NOS to

that, Not Otherwise Specified.

>

> PDD-NOS is what has. It means he doesn't meet all the criteria for

autism, but he meets enough of them to be affected. He did have the

diagnosis of autism, DS, ADHD and Oppositional Defiant disorder, but when we

put him on the gluten free diet, he got rid of everything and lowered the

autism down to PDD-NOS. When we put him on the gluten free diet (no wheat

barley oats or rye), he went from preschool curriculum to 1st grade, and

went from speaking in 1-2 word sentences to 5-7 word, though not

grammatically correct. That was about a year ago. Now he's even starting

to get the grammar down.

>

> Loriann

> Wife to Dewight

> Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

> , 2 years and Strong Willed

> Both homeschooled.

>

>

>

[Guest guest]

Hi a,

lovely to hear from you, how's doing?

can say a few words and he seems to understand a lot more than he lets

on. His dad told him to get the ice-cream out of the freezer the other

week and he went straight and did it. He even removed one box of ice-cream

to get at the one he preferred. I ask him to do lots of things now but he

is either ignoring me because he is not interested or it's just certain

things he understands. He is always tipping up things (mainly liquids).

It;s like once the idea has popped into his head there is no stopping him.

We noticed the other day when we were talking about his toilet training that

as soon as he heard us he wee'd himself.

Love to hear about

Re: new member

> Hi linda, nice to meeet you! we should have lots in

> common, my oldest, nathan, w/ds pdd add/hd, and ocd,

> is also 10yrs old shawna.

> --- ljpd <ljpd@...> wrote:

> > Hi,

> >

> > My name is and I have a 10 year old boy named

> > -Lee who has . We live in the West

> > Midlands, England.

> >

> > It is so lovely to know that there are people out

> > there sharing the same problems and of course joy of

> > the everyday upbringing of our children.

> >

> > Hope to speak to some of you soon

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

I think there was a discussion, that some people on

here have tried the gluten diet; but I don't know who.

=====

My turn to learn is an invaluable guide for parents and professional who share

their lives with a child with special needs.

__________________________________________________

[Guest guest]

new member

> Having just joined the SENATE, I realise from reading some of the previous

> entries that I am not alone in feeling suddenly overwhelmed with

> information.... as I was automatically sent the digests for June - August

> and Sept - October last year I thought I would print them off and enjoy

> some interesting bedtime reading - I think I might be in bed for a

> fortnight!! Is there anyway of accessing people's comments by theme or

> would that just create too much work for someone?

>

> I specifically joined SENATE to-day because I had heard a lot of good

> things about it and because I particularly needed to acquaint myself with

> the latest recommendations of the forthcoming Hall report -( I know there

> was a launch in July )- and access views of health visitors about it. Has

> there been any kind of debate about it's content and if so how can I

access

> that debate? Also can anyone tell me whereabouts on the internet I can

> find reference to it - I have been surfing without success for over an

hour.

>

> I would also like to know if there is anyone out there with a similar

remit

> to my own? I was appointd to the post of health visitor consultant

> (parental and child health) for Mid Essex in March of this year. I am in

> the rather strange position of being employed by the North Essex Mental

> Health Partnership NHS Trust (who do not employ health visitors in a

health

> visiting capacity although do employ h.v.'s within CFCS teams ) to promote

> emotional well-being and positive mental health in children and families,

> by acting as a sort of " go-between " between h.v.'s and CFCS / adult mental

> health. I am currently undertaking a mapping and gapping exercise which

> includes an examination of existing protocols and referral pathways and

> professional perceptions of mental health problems in both children and

> their parents. Like all nurse consultant posts, I am supposed to divide my

> time between clinical practice, leadership and consultancy, education and

> training and research and evaluation. I have also been looking at current

> involvement in parenting programmes, who's doing what in terms of

detecting

> and managing postnatal depression, I have participated in the PIPPIN pilot

> for the Home Office, am exploring with colleagues the prospect of

> delivering modifed STEP parenting programmes to special needs groups and

am

> in the process of helping to deliver an early intervention in behaviour

> problems training programme for health visitors ( based on the Solihull

> approach). I am also intersted in setting up an early intervention forum.

>

> In October I will be starting a brand new clinical doctorate programme at

> the University of Essex which will culminate in the award of Doctor of

> Nursing ( hows that for confusing terminology?) and my inital proposals

for

> research projects include an examination of professional and parental

> perceptions of need of parents and babies in neonatal units and parental

> reflections on positive and negative components of professional and social

> support in the first three years of life.

>

> From a superficial glimpse of the two digests from last year, I realise

> that there is ongoing debate about the public health role of health

> visitors and its compatibility or otherwise with the firefighting that has

> become routine health visiting practice. I also note the dichotomy of

> opinion about the current focus of health visiting on the under 5's, but I

> have to say that the more I read and understand about the importance of

> attachment and the profound impact the quality of early parent-infant

> interaction has on the structure and function of the developing brain, the

> more I am convinced of the importance of consistent, frequent, reciprocal

> health visiting input during the first three years of life so that we are

> truly able to change our focus from managing behavioural diffulties to

> preventing them, thereby reducing the prevalence of the most common and

> enduring mental health problems in children under 5 - especially conduct

> disorders - which, if prevented have implications for improving public

> health. It has been demonstrated time and time again that children with

> conduct disorders are often unable to acheive their educational poential

> because of their poor attention spans or disruptive behaviour, are less

> likely to succeed at school, are more likely to play truant or be excluded

> from school, are less likely to complete their education or achieve the

> minimum number of basic qualifications, are more likely to abuse drugs or

> alcohol, are less likely to be able to get a job and are more likely to

> indulge in criminal activity. Apart from anything else, It makes economic

> sense to intervene early and avoid all the extra expenditure that such a

> pathway would entail and yet we still have difficulty convincing

> commissioners of the value of early intervention? Promoting positive

mental

> health in children is a public health issue and seems to encapsulate, for

> me, the family centred public health role of health visitors advocated in

> so many policy documents. I would , of course, be interested to hear

others

> views on the subject or is this a debate that has passed?

>

> Looking forward to hearing from you

> Lowenhoff

>

>

>

>

>

[Guest guest]

In a message dated 10/20/01 9:47:27 AM Eastern Daylight Time, ct616@...

writes:

> I realize that this diet does not work for everybody but we have seen HUGE

> changes with ...very positive changes. We are amazed...and Nick is

> so much happier!!!

> Cheri

>

>

Cheri,

That's great news about !! I'm so happy you are seeing wonderful

results with this diet! Keep us posted!!

Donna

[Guest guest]

Hi all

I heard about the casein/gluten free diet when I attended a talk by Dr

Shattock, he is a famous doctor from the UK with an autistic son and swears

by the the diet. He has written a book on it. I first started by

eliminating the diary products and then began to eliminate all products that

contained gluten. He was on this diet for approx. 6 months, I didn't see any

difference. He's on a normal diet now. I still haven't ruled out trying it

again in the future. Leigh has had a constant runny nose, all seasons,

every day and the diet certainly cleared that up. His nose problems

returned about 3 months into the normal diet.

Sophie

Mum to Leigh 10 ds/autism/pica & 5

Re: new member

>

>

> > PDD means Pervasive Developmental Disorder and sometimes they add NOS to

> that, Not Otherwise Specified.

> >

> > PDD-NOS is what has. It means he doesn't meet all the criteria

for

> autism, but he meets enough of them to be affected. He did have the

> diagnosis of autism, DS, ADHD and Oppositional Defiant disorder, but when

we

> put him on the gluten free diet, he got rid of everything and lowered the

> autism down to PDD-NOS. When we put him on the gluten free diet (no wheat

> barley oats or rye), he went from preschool curriculum to 1st grade, and

> went from speaking in 1-2 word sentences to 5-7 word, though not

> grammatically correct. That was about a year ago. Now he's even starting

> to get the grammar down.

> >

> > Loriann

> > Wife to Dewight

> > Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

> > , 2 years and Strong Willed

> > Both homeschooled.

> >

> >

> >

[Guest guest]

Hi ,

I may have answered this already...have had such a crazy couple of weeks I can't

remember anything!!!

We started on this diet around March , introducing it little by little.

His diet is now completely gluten free and almost lactose and casein free. I

realize that this diet does not work for everybody but we have seen HUGE changes

with ...very positive changes. We are amazed...and Nick is so much

happier!!!

Cheri

Re: new member

> PDD means Pervasive Developmental Disorder and sometimes they add NOS to

that, Not Otherwise Specified.

>

> PDD-NOS is what has. It means he doesn't meet all the criteria for

autism, but he meets enough of them to be affected. He did have the

diagnosis of autism, DS, ADHD and Oppositional Defiant disorder, but when we

put him on the gluten free diet, he got rid of everything and lowered the

autism down to PDD-NOS. When we put him on the gluten free diet (no wheat

barley oats or rye), he went from preschool curriculum to 1st grade, and

went from speaking in 1-2 word sentences to 5-7 word, though not

grammatically correct. That was about a year ago. Now he's even starting

to get the grammar down.

>

> Loriann

> Wife to Dewight

> Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

> , 2 years and Strong Willed

> Both homeschooled.

>

>

>

[Guest guest]

In a message dated 10/20/01 7:17:17 AM Eastern Daylight Time,

smenegatos@... writes:

Loriann wrote:

> put him on the gluten free diet, he got rid of everything and lowered the

> > autism down to PDD-NOS. When we put him on the gluten free diet (no wheat

> > barley oats or rye), he went from preschool curriculum to 1st grade, and

> > went from speaking in 1-2 word sentences to 5-7 word, though not

> > grammatically correct. That was about a year ago. Now he's even starting

> > to get the grammar down.

Is on the dairyfree diet as well? or just gluten free? Did you go to a

Nutritionist or Doctor or do it on your own? Does he take vitamin

supplements? Thinking about trying the gluten-free but need more info. We

eliminated the dairy and saw some results with better sleeping through the

night but am not sure if it is coincidental. Also I understand you need to be

really strict with diet no exceptions. When did you find out had Celiac

disease? Just really interested.

Diane (mom to Rochelle ds5 & Danny 7)

[Guest guest]

is just gluten free, not casein free. I first heard about it on another

list, and that it had had good results with autistic children. I also heard

that autistic kids have trouble with a Vitamin A deficiency, that they can't use

the artificial vitamin A. So I decided to do one therapy at a time, and started

the gluten free. I first had him tested for celiac and they said he tested

negative. Because of that, we waited almost a year to start the diet. But I

went home to see my parents and in-laws (we were in Hawaii, and they were state

side). did better behaviorally at my in laws than he did at my parents.

The only difference was he got more pasta and bread at mom's house (because

that's what he would eat and we didn't feel like fighting). So when we got home

I decided to start it, testing no or not. We started with just getting rid of

the obvious offenders. We started making the bread and bought some gluten free

rice noodles so he could have his macaroni and cheese and spaghetti. After a

couple of weeks, we started reading labels and getting rid of the trace amounts.

There are some really good sites on the net for gluten free products and there

is wheat in an awful lot of things. Most soups are thickened with wheat, some

dry candy is dusted with wheat to prevent sticking.

We saw a tremendous amount of progress. So much, that his GI doctor wanted him

re-evaluated for autism. That was the problem with us. We had to take him off

the diet, first for 3 months but the biopsy wasn't conclusive, so another 4

months. The biopsy was still inconclusive, but we had a different GI (now

stateside) and he at least was willing to diagnose him wheat allergic, if not

celiac. We're supposed to reintroduce another grain in January to see if he's

sensitive to only wheat or the others as well.

And now my younger boy is showing signs of celiac (extreme irritability - in

normal toddlers, in children with a communication problem like DS it shows as

autistic behaviors - runny foul smelling bowel movements and with , a skin

rash that comes and goes and is extremely painful). I have an appointment for

him in a couple of weeks to get the blood test.

Loriann

Wife to Dewight

Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

, 2 years and Strong Willed

Both homeschooled.

[Guest guest]

Hi Sonya!

Your daughter has so many similar symptoms to my ; he's 12 and

was diagnosed a little over a year ago. So far as I know tho, it's

not the PANDAS type. I can look back to his younger years and see

his OCD-related symptoms, they just weren't a problem back then.

Last year it became a BIG problem and seemed to come on suddenly and

hard.

You wrote: She can no longer write, dress herself, turn on and off

light switches and faucets, pump soap dispensers. She has paths that

she has to take around the house, certain ways of getting on and off

furniture and out of rooms. She gets stuck everywhere. We have to

lift her up and carry her to two tiles in our family room. She wants

us to place her on these tiles twice, facing East. During this time

she washes her hands often and nothing " feels right " . Her movements

become odd...

also can't write at home (manages to at school and at OT but

most comes home); light switches, soap dispensers he doesn't touch.

The faucet he might touch, but it's an on/off repeatedly thing. He

repeats a lot of things until it " feels right. " He does get stuck a

lot - doorways or gets stuck touching something and can't let go

until it " feels right " or has to repeatedly touch until he does it

right. His " body " seems to get stuck too in various postions and has

to be " unstuck " - it's so weird. His movements look odd too. He

can't pick up anything, it has to be handed to him. He won't change

channels on the TV remote, will wait for someone else to.

His schoolwork - at home I have to write it for him. The teachers

don't notice anything at school, but then they don't know the before-

OCD ; I guess they just think " that's " as his twin,

, is in his class and he notices 's OCD behaviors. We'll

get the " why do YOU have to do this at home, he's fine at school "

remarks and then the " looks. " Also his writing took a turn for the

worse when OCD hit last year and became illegible.

His behaviors are OK but he has more of a temper. He was always my

most calm, laidback son though (hyper is never him!). Hey, since his

OCD began and putting up with it/him this past year, I'm not so

nice/patient sometimes either. He's not in any treatment program,

just " talk " with a psychologist once a month; we offered to stop this

to him but he wants to go. There's no nearby treatment for OCD where

we live. And we've been getting by without prescription meds as he

doesn't want them (we're doing the alternative stuff, which has

helped make it more mild but the OCD is still there 24/7).

Anyway, sounds like you're doing all the right stuff! Welcome to

this group and I hope you find it as enlightening as I have - it's

been my best support since this all began. Everyone is really nice

and the experiences with OCD behaviors/treatment are really helpful.

- single mom to (12) w/OCD and dysgraphia; (12)

separation anxiety; Randall (16) -

> Just wanted to take a moment and introduce myself and my family.

My

> daughter was diagnosed in January with OCD. We believe her

symptoms

> began at about age 3. She continued to go down hill until January

of

> this year and she was taken out of school. Her physician is Dr.

> at University of Florida/Shands. Her therapist is Dr.

> Lemli (he works with CBT). Her doctors believe she has

PANDAS

> OCD. My daughter is eight years old and has a younger brother who

is

> almost six. She is back in school at the moment. When she is well

> she has only a few OCD symptoms, which only require minimum CBT to

> stop. When she is ill she stops functioning. She can no longer

> write, dress herself, turn on and off light switches and faucets,

> pump soap dispensers. She has paths that she has to take around

the

> house, certain ways of getting on and off furniture and out of

> rooms. She gets stuck everywhere. We have to lift her up and

carry

> her to two tiles in our family room. She wants us to place her on

> these tiles twice, facing East. During this time she washes her

> hands often and nothing " feels right " . Her movements become odd

and

> she becomes oppositional after about 10 days after the flare up

> begins. She will hit, bite, pinch, tear up her room, etc. The

> therapist cannot offer anything but emotional support because she

> wont listen to anything he says. She has walked out on sessions

> during her flare ups. She gets very hyper and wont sit still for

> him. During her last flare up she was diving over the back of his

> couch and rolling on to the floor over and over again. She also

> can't pick up anything off the floor. She is taken out of school

at

> this time and takes tests orally and I write for her. She will say

> when she is ready to go back to school and around this time her OCD

> symptoms will start dropping off. Her therapist says it is like

> night and day...sick and well. When she is well she is a straight

A

> student and active in sports and theatre...when she is sick she

sits

> on the couch and watches I Love Lucy reruns all day. It ususally

> takes about four weeks before she is back in school again.

>

> One thing we have found with is that strep doesn't look like

> strep. No red or swollen throat, no fever, just a flare up in her

> OCD. We are checking into plasma exchange. In the meantime we use

> NAET treatments to keep her immune system built up (www.NAET.com).

> Sometimes it helps, sometimes it just speeds up the recovery time.

> There is no support group where we live and we are thankful to have

> heard about this sight. We are members of the OCD foundation. If

> you have any questions, feel free to ask. My husband and I

certainly

> understand the struggles that you go through, including school

> situations, needing to work for extra income and not being able to,

> long, long periods of not " getting out " . We look forward to

talking

> with you. Sonya Haywood