New Member

[Guest guest]

On Nov 29, 2011, at 9:41 AM, Coalwell wrote:

> I'm always searching for training that gives me the biggest bang for my

buck--sounds like I need to focus more on strength training.

Welcome, Jen, substitute " minutes spent " for " buck " in the above and you have it

right, in my opinion. I'm almost 74 now and hate exercise, I live on the

Internet. Never the less, with 30 minutes every week or ten days I remain in the

strongest 10% of the folks that use my gym. To me the way is to work harder, and

less.

Fair winds and happy bytes, Dave Flory, Flower Mound, TX

Speak softly and study Aikido, and you won't need to carry a big stick.

[Guest guest]

Hi shana,Jaylin our almost 5 year old just got his first cast on dec. 23, 2011.We had pictures of his spine how it was curved and how it shouldn't be, then showed him a good spine, and we got on the utube and showed him videos oh a little boy all excited and how he was jumping around. It helped us that way to let him see what to expected. We was telling him along what he had and every time he took an X-ray he new why. Now on sleeping, we had him sleep with us because when he was brought home he couldn't hardly move by himself because all this was new and it was heavier on top then the bottom part of his Body. It will take a few days for her to get used to sleeping in the cast, just have lots of patients and smaller pillows for her to pick from .I put him back in his on bed a couple of days ago and he's been doing ok.I don't know how much that helped, but jaylin is doing so much better.Live, laugh, and loveJoyOn Dec 29, 2011, at 10:39 PM, Shana <shaynab97@...> wrote:

Hello allWe recently discovered our 5 yr old daughter has a flexible 59 degree curve. After a trip to Shriners hospital in DC we decided to go with the casting. Does anyone have advice for how to explain this process to their child for the first time? Any tips for bedtime? Right now she shares a room with her 3 yr old sister and I can only imagine how tough bedtime will be. Finally, does anyone here live in the dc area? Thank you in advance for any information and your timeSincerelyShanaSent from my

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[Guest guest]

Hi Shana,My son was casted in October. He was 7 and just recently turned 8. I just explained to my son that the cast is just like a cast someone would get on their arm if they broke a bone. The doctor has you go to sleep so that your muscles are relaxed and he can get your spine straighter. Then he puts on the cast to hold the spine straighter so it will want to stay that way. As for bedtime, it was really hard to get comfortable for a the first week. I slept with him because he couldn't get up or adjust himself very easily at first. We had LOTS of pillows stuck here and there. Things are very difficult for the first few days. I'm sure there will be some tears, from you and her. But hang in there. Within a week things were

SO much easier and within two he was back to normal activities (with a few adjustments!!) . Best of luck to you. Don't be too worried (I'm sure you are!!). You can so do this!!!Best of luck, From: Shana <shaynab97@...> "infantile scoliosis treatment " <infantile scoliosis treatment > Sent: Thursday, December 29, 2011 10:39 PM Subject: New member

Hello allWe recently discovered our 5 yr old daughter has a flexible 59 degree curve. After a trip to Shriners hospital in DC we decided to go with the casting. Does anyone have advice for how to explain this process to their child for the first time? Any tips for bedtime? Right now she shares a room with her 3 yr old sister and I can only imagine how tough bedtime will be. Finally, does anyone here live in the dc area? Thank you in advance for any information and your timeSincerelyShanaSent from my

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[Guest guest]

I am just sooooo happy to see more and more older children beginning Mehta! Maybe it's a new trend? Maybe more docs are realizing potential positive treatment results? I am going to make a point to bring it up at out next apt on January 26th and see what our doc says. TameSent from my iPhoneOn Dec 30, 2011, at 10:55 AM, Mock <rjnmock@...> wrote:

Hi Shana,My son was casted in October. He was 7 and just recently turned 8. I just explained to my son that the cast is just like a cast someone would get on their arm if they broke a bone. The doctor has you go to sleep so that your muscles are relaxed and he can get your spine straighter. Then he puts on the cast to hold the spine straighter so it will want to stay that way. As for bedtime, it was really hard to get comfortable for a the first week. I slept with him because he couldn't get up or adjust himself very easily at first. We had LOTS of pillows stuck here and there. Things are very difficult for the first few days. I'm sure there will be some tears, from you and her. But hang in there. Within a week things were

SO much easier and within two he was back to normal activities (with a few adjustments!!) . Best of luck to you. Don't be too worried (I'm sure you are!!). You can so do this!!!Best of luck, From: Shana <shaynab97@...> "infantile scoliosis treatment " <infantile scoliosis treatment > Sent: Thursday, December 29, 2011 10:39 PM Subject: New member

Hello allWe recently discovered our 5 yr old daughter has a flexible 59 degree curve. After a trip to Shriners hospital in DC we decided to go with the casting. Does anyone have advice for how to explain this process to their child for the first time? Any tips for bedtime? Right now she shares a room with her 3 yr old sister and I can only imagine how tough bedtime will be. Finally, does anyone here live in the dc area? Thank you in advance for any information and your timeSincerelyShanaSent from my

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[Guest guest]

I suggest purchasing a bean bag for daytime use (maybe the first few nights too!). An egg crate mattress pad can help on the bed as well. One of the other mom's described a very good way to explain the process to your child. Also, Shiner's has a Child Life Specialist, you should be able to set up an appointment with them prior to her cast date and they can explain in "kid lingo" about the IV, etc.

We don't live in DC, we live on the other coast, but I'm sure someone will chime in soon from your area.

Jane

Grace, 5 yrs old, moderate omphalocele fully repaired, congenital scoliosis with hemi between T8 and T9, braced from 18 mo to 3 yrs of age, hemi removed 9/09 followed by almost 2 years of casting/bracing. Currently cast and brace-free to see what her spine does on its own. Next appt 1-10-11 at Portland Shriner's.

From: Shana <shaynab97@...>"infantile scoliosis treatment " <infantile scoliosis treatment > Sent: Thursday, December 29, 2011 10:39 PMSubject: New member

Hello all

We recently discovered our 5 yr old daughter has a flexible 59 degree curve. After a trip to Shriners hospital in DC we decided to go with the casting. Does anyone have advice for how to explain this process to their child for the first time? Any tips for bedtime? Right now she shares a room with her 3 yr old sister and I can only imagine how tough bedtime will be. Finally, does anyone here live in the dc area?

Thank you in advance for any information and your time

Sincerely

Shana

Sent from my

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[Guest guest]

Me too! ISOP and the docs on our Med. Advisory Board realize the

potential of casting older kiddos and will continue spreading the word on

the benefits of this gentle treatment. Proper Mehta/EDF Casting should be

offered to all children with scoli, young or old and it should be the

first option at scoli treatment. As many of us have witnessed with our

own children, proper mehta/edf casting can buy valuable growth time for

our older children who didnt get the ET opportunity. It can

correct/maintain, improve alignment, improve lung space, improve cosmetic

deformity, etc., etc., etc...

It will be dedicated ET docs and parents that make this option available

to the masses. Thats why testimonials are so important. We must share

the knowledge with other parents so they can also demand it for their

growing children with scoli.

ISOP needs testimonials from families that have experienced the many, many

benefits of continued casting with older kiddos. If anyone out there is

interested in sharing their childs casting experience, please email me at

isop06@... ~Knowledge is power~

Thanks in advance for your willingness to share this lifesaving, life

improving cast treatment secret!

HRH

> I am just sooooo happy to see more and more older children beginning

> Mehta! Maybe it's a new trend? Maybe more docs are realizing potential

> positive treatment results? I am going to make a point to bring it up at

> out next apt on January 26th and see what our doc says.

> Tame

>

> Sent from my iPhone

>

> On Dec 30, 2011, at 10:55 AM, Mock <rjnmock@...> wrote:

>

>

>

> Hi Shana,

> My son was casted in October. He was 7 and just recently turned 8.

> I just explained to my son that the cast is just like a cast someone

> would get on their arm if they broke a bone. The doctor has you go to

> sleep so that your muscles are relaxed and he can get your spine

> straighter. Then he puts on the cast to hold the spine straighter so it

> will want to stay that way. As for bedtime, it was really hard to get

> comfortable for a the first week. I slept with him because he couldn't

> get up or adjust himself very easily at first. We had LOTS of pillows

> stuck here and there. Things are very difficult for the first few days.

> I'm sure there will be some tears, from you and her. But hang in there.

> Within a week things were SO much easier and within two he was back to

> normal activities (with a few adjustments!!) . Best of luck to you.

> Don't be too worried (I'm sure you are!!). You can so do this!!!

>

> Best of luck,

>

>

> From: Shana <shaynab97@...>

> " infantile scoliosis treatment "

> <infantile scoliosis treatment >

> Sent: Thursday, December 29, 2011 10:39 PM

> Subject: New member

>

> Hello all

>

> We recently discovered our 5 yr old daughter has a flexible 59 degree

> curve. After a trip to Shriners hospital in DC we decided to go with the

> casting. Does anyone have advice for how to explain this process to their

> child for the first time? Any tips for bedtime? Right now she shares a

> room with her 3 yr old sister and I can only imagine how tough bedtime

> will be. Finally, does anyone here live in the dc area?

> Thank you in advance for any information and your time

> Sincerely

> Shana

>

> Sent from my

>

> =

>

>

>

>

>

>

[Guest guest]

Hi Everyone!

I joined a couple of weeks ago. You guys are a busy group to keep up with. I

can see I'm going to learn a lot. After looking at a VitaMix for a couple of

years, I finally splurged a few weeks ago and bought one a Costco. I was looking

forward to making a variety of whole food smoothies. I use it at least once a

day. I recently went out-of-town for a few days and had to take my machine with

me. I guess I'm still a little obsessed with it.

Rai

[Guest guest]

, I'm so glad to hear your story. My son's story is so similar to your daughters. I haven't put my story on here yet but I had to reply. My son got his first cast on June 19th. We are all in this together. Blessings to you! HicksSent from my iPhoneOn Jul 20, 2012, at 7:06 PM, "fishingurl29045" <fishingurl29045@...> wrote:

Hi everyone! My name is ! My youngest daughter, Addie, was diagnosed with infantile scoliosis in April 2011. She had her first casting on June 18, 2012. It has been a joyous but utterly scary journey! She was diagnosed at 10 months old with scoliosis, development delay, immature closure of anterior fontanel, and left-sided weakness. Her back was 47 degrees curved but with the cast its 31. She is wearing it 2 months and having a 2 days break then another goes on. She celebrated her 2nd birthday with her cast on July 1. The first week home was very overwhelming and was not sure we could do this. Now its just a part of our lives. While at the hospital, they asked if I had any concerns. I just said " A class needs to be offered on how to diaper a baby with an upper body cast." :)Addie's cast is right at her hips. I am hoping the next one will be shorter. The infantile scoliosis website has been a tremendous help to my husband and I. I am very thankful for it.

=

[Guest guest]

Hi ,My 4 year old is , nicknamed Addie.  We're in a brace right now - her curve was 57 degrees at it's worst in January 2011, when we got our first of two casts on - she is at 19 degrees as of March.

Just wanted to say hi to another parent of another .

On Fri, Jul 20, 2012 at 5:06 PM, fishingurl29045 <fishingurl29045@...> wrote:

 

Hi everyone! My name is ! My youngest daughter, Addie, was diagnosed with infantile scoliosis in April 2011. She had her first casting on June 18, 2012. It has been a joyous but utterly scary journey! She was diagnosed at 10 months old with scoliosis, development delay, immature closure of anterior fontanel, and left-sided weakness. Her back was 47 degrees curved but with the cast its 31. She is wearing it 2 months and having a 2 days break then another goes on. She celebrated her 2nd birthday with her cast on July 1. The first week home was very overwhelming and was not sure we could do this. Now its just a part of our lives. While at the hospital, they asked if I had any concerns. I just said " A class needs to be offered on how to diaper a baby with an upper body cast. " :)Addie's cast is right at her hips. I am hoping the next one will be shorter. The infantile scoliosis website has been a tremendous help to my husband and I. I am very thankful for it.

[Guest guest]

Hi ! We are in this together. Its great to have so much support while dealing with IS. I have scoli( 9degrees-no big deal) but never realized just how serious it was until Addie. I am so thankful that she has fully adjusted to her cast because I thought we were going to have to cut it off the 1st week home or get a helmet for all the falls she had. I still cry when I try to rub her back and can only do that in her lung cast hole. But we should be in a brace at the beginning of 2013 so that is what im counting down to.

From: Jess Hicks <jshicks2005@...>"infantile scoliosis treatment " <infantile scoliosis treatment > Sent: Friday, July 20, 2012 8:29 PMSubject: Re: New member

, I'm so glad to hear your story. My son's story is so similar to your daughters. I haven't put my story on here yet but I had to reply. My son got his first cast on June 19th. We are all in this together.

Blessings to you!

HicksSent from my iPhone

On Jul 20, 2012, at 7:06 PM, "fishingurl29045" <fishingurl29045@...> wrote:

Hi everyone! My name is ! My youngest daughter, Addie, was diagnosed with infantile scoliosis in April 2011. She had her first casting on June 18, 2012. It has been a joyous but utterly scary journey! She was diagnosed at 10 months old with scoliosis, development delay, immature closure of anterior fontanel, and left-sided weakness. Her back was 47 degrees curved but with the cast its 31. She is wearing it 2 months and having a 2 days break then another goes on. She celebrated her 2nd birthday with her cast on July 1. The first week home was very overwhelming and was not sure we could do this. Now its just a part of our lives. While at the hospital, they asked if I had any concerns. I just said " A class needs to be offered on how to diaper a baby with an upper body cast." :)Addie's cast is right at her hips. I am hoping the next one will be shorter. The infantile scoliosis website has been a tremendous help to my husband and I. I am very

thankful for it.=

[Guest guest]

Hi ! Addie was at 47 degrees when her cast was put on and we are now at 31. It looks like Addie will have a total of 3 casts at 8 weeks of wearing for each one. We are looking at a brace at the beginning of 2013. Its nice meeting another parent of an Addie.

From: Toney <gotmaps@...>infantile scoliosis treatment Sent: Sunday, July 22, 2012 3:40 AMSubject: Re: New member

Hi ,My 4 year old is , nicknamed Addie. We're in a brace right now - her curve was 57 degrees at it's worst in January 2011, when we got our first of two casts on - she is at 19 degrees as of March.Just wanted to say hi to another parent of another .

On Fri, Jul 20, 2012 at 5:06 PM, fishingurl29045 <fishingurl29045@...> wrote:

Hi everyone! My name is ! My youngest daughter, Addie, was diagnosed with infantile scoliosis in April 2011. She had her first casting on June 18, 2012. It has been a joyous but utterly scary journey! She was diagnosed at 10 months old with scoliosis, development delay, immature closure of anterior fontanel, and left-sided weakness. Her back was 47 degrees curved but with the cast its 31. She is wearing it 2 months and having a 2 days break then another goes on. She celebrated her 2nd birthday with her cast on July 1. The first week home was very overwhelming and was not sure we could do this. Now its just a part of our lives. While at the hospital, they asked if I had any concerns. I just said " A class needs to be offered on how to diaper a baby with an upper body cast." :)Addie's cast is right at her hips. I am hoping the next one will be shorter. The infantile scoliosis website has been a tremendous help to my husband and I. I am very

thankful for it.