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Welcome Sonya!

My son is 10yo with OCD, and is a NEW and IMPROVED child at the

moment thanks to ERP therapy AND medication. His life has

DRASTICALLY turned around since May now that:

1) I'm no longer enabling (or feeding) his fears by reassuring him

that he won't get sick. His therapy has helped pull me OUT of the

dependency cycle thanks to the moderators on this list (wendy, kathy

r, kathy h, etc..) and a Top Notch therapist (with a PHD in behavior

mod) who has never had an OCD patient before. was her 'guinea

pig', and she gets an A+ To give myself a little credit, I went in

to therapy with a mission-- and wasn't about to leave without what I

wanted! :)

2)We found the right medication. I'm not a fan of medicating my

child, but it has given me my life back, and restored my son's

childhood. He's taking Luvox for OCD, and Risperdal for the

moodiness. Life is GOOD!

3)I'm Back In Charge. Last year at this time, I was depressed and

hopeless. When would stay in the shower for over an hour, I

gave in and let him. I had no fight left in me. Things are so much

different this year. We stay IN FRONT of the problems, predict them

and set rules before they happen. He was late 36 times to school

last year. This year: zero.

Anyway... I'm sure you're aware of all the pitfalls of parenting a

child with OCD, so I share the above info with the GROUP (not to you

personally). 's school is totally amazed at the turn-around and

gains he's made in a few short months. I have to give ALOT of credit

to this group of amazingly strong, educated and dedicated parents!!!

Good luck and continue to keep us posted!

Joni

Mom of (20), (18, ADHD+mild OCD) and (10, OCD)

> Just wanted to take a moment and introduce myself and my family.

My

> daughter was diagnosed in January with OCD. We believe her

symptoms

> began at about age 3. She continued to go down hill until January

of

> this year and she was taken out of school. Her physician is Dr.

> at University of Florida/Shands. Her therapist is Dr.

> Lemli (he works with CBT). Her doctors believe she has

PANDAS

> OCD. My daughter is eight years old and has a younger brother who

is

> almost six. She is back in school at the moment. When she is well

> she has only a few OCD symptoms, which only require minimum CBT to

> stop. When she is ill she stops functioning. She can no longer

> write, dress herself, turn on and off light switches and faucets,

> pump soap dispensers. She has paths that she has to take around

the

> house, certain ways of getting on and off furniture and out of

> rooms. She gets stuck everywhere. We have to lift her up and

carry

> her to two tiles in our family room. She wants us to place her on

> these tiles twice, facing East. During this time she washes her

> hands often and nothing " feels right " . Her movements become odd

and

> she becomes oppositional after about 10 days after the flare up

> begins. She will hit, bite, pinch, tear up her room, etc. The

> therapist cannot offer anything but emotional support because she

> wont listen to anything he says. She has walked out on sessions

> during her flare ups. She gets very hyper and wont sit still for

> him. During her last flare up she was diving over the back of his

> couch and rolling on to the floor over and over again. She also

> can't pick up anything off the floor. She is taken out of school

at

> this time and takes tests orally and I write for her. She will say

> when she is ready to go back to school and around this time her OCD

> symptoms will start dropping off. Her therapist says it is like

> night and day...sick and well. When she is well she is a straight

A

> student and active in sports and theatre...when she is sick she

sits

> on the couch and watches I Love Lucy reruns all day. It ususally

> takes about four weeks before she is back in school again.

>

> One thing we have found with is that strep doesn't look like

> strep. No red or swollen throat, no fever, just a flare up in her

> OCD. We are checking into plasma exchange. In the meantime we use

> NAET treatments to keep her immune system built up (www.NAET.com).

> Sometimes it helps, sometimes it just speeds up the recovery time.

> There is no support group where we live and we are thankful to have

> heard about this sight. We are members of the OCD foundation. If

> you have any questions, feel free to ask. My husband and I

certainly

> understand the struggles that you go through, including school

> situations, needing to work for extra income and not being able to,

> long, long periods of not " getting out " . We look forward to

talking

> with you. Sonya Haywood

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Thanks for the information Joni, actually when is well she

does quite well with exposure and response. She is extremely easy to

work with and usually only needs a " remember what you are working on "

statment from us and she immediately stops doing the ritual. It is

when she is ill that the therapist cannot work with her. He likens

it to night and day. She goes from being very compliant and open to

working on it to a point where you can look into her eyes and tell

that she is not even there anymore. It takes about four weeks after

being on an antibiotic for the symptoms to calm down and then she is

right back to where she was before the illness.

In @y..., " Joni " <lyricaldreamer@y...> wrote:

> Welcome Sonya!

> My son is 10yo with OCD, and is a NEW and IMPROVED child at the

> moment thanks to ERP therapy AND medication. His life has

> DRASTICALLY turned around since May now that:

> 1) I'm no longer enabling (or feeding) his fears by reassuring him

> that he won't get sick. His therapy has helped pull me OUT of the

> dependency cycle thanks to the moderators on this list (wendy,

kathy

> r, kathy h, etc..) and a Top Notch therapist (with a PHD in

behavior

> mod) who has never had an OCD patient before. was

her 'guinea

> pig', and she gets an A+ To give myself a little credit, I went in

> to therapy with a mission-- and wasn't about to leave without what

I

> wanted! :)

2)We found the right medication. I'm not a fan of medicating my

> child, but it has given me my life back, and restored my son's

> childhood. He's taking Luvox for OCD, and Risperdal for the

> moodiness. Life is GOOD!

> 3)I'm Back In Charge. Last year at this time, I was depressed and

> hopeless. When would stay in the shower for over an hour, I

> gave in and let him. I had no fight left in me. Things are so

much

> different this year. We stay IN FRONT of the problems, predict

them

> and set rules before they happen. He was late 36 times to school

> last year. This year: zero.

>

> Anyway... I'm sure you're aware of all the pitfalls of parenting a

> child with OCD, so I share the above info with the GROUP (not to

you

> personally). 's school is totally amazed at the turn-around

nd

> gains he's made in a few short months. I have to give ALOT of

credit

> to this group of amazingly strong, educated and dedicated

parents!!!

>

> Good luck and continue to keep us posted!

> Joni

> Mom of (20), (18, ADHD+mild OCD) and (10, OCD)

>

>

>

>

> > Just wanted to take a moment and introduce myself and my family.

> My

> > daughter was diagnosed in January with OCD. We believe her

> symptoms

> began at about age 3. She continued to go down hill until January

> of

> > this year and she was taken out of school. Her physician is Dr.

> > at University of Florida/Shands. Her therapist is

Dr.

> > Lemli (he works with CBT). Her doctors believe she has

> PANDAS

> > OCD. My daughter is eight years old and has a younger brother

who

> is

> > almost six. She is back in school at the moment. When she is

well

> > she has only a few OCD symptoms, which only require minimum CBT

to

> > stop. When she is ill she stops functioning. She can no longer

> > write, dress herself, turn on and off light switches and faucets,

> > pump soap dispensers. She has paths that she has to take around

> > house, certain ways of getting on and off furniture and out of

> > rooms. She gets stuck everywhere. We have to lift her up and

> carry

> > her to two tiles in our family room. She wants us to place her

on

> > these tiles twice, facing East. During this time she washes her

> > hands often and nothing " feels right " . Her movements become odd

> and

> > she becomes oppositional after about 10 days after the flare up

> > begins. She will hit, bite, pinch, tear up her room, etc. The

> > therapist cannot offer anything but emotional support because she

> > wont listen to anything he says. She has walked out on sessions

> > during her flare ups. She gets very hyper and wont sit still for

> > him. During her last flare up she was diving over the back of

his

> > couch and rolling on to the floor over and over again. She also

> can't pick up anything off the floor. She is taken out of school

> at

> > this time and takes tests orally and I write for her. She will

say

> > when she is ready to go back to school and around this time her

OCD

> > symptoms will start dropping off. Her therapist says it is like

> > night and day...sick and well. When she is well she is a

straight

> A

> > student and active in sports and theatre...when she is sick she

> sits

> > on the couch and watches I Love Lucy reruns all day. It ususally

> > takes about four weeks before she is back in school again.

> >

> > One thing we have found with is that strep doesn't look >

> strep. No red or swollen throat, no fever, just a flare up in her

> > OCD. We are checking into plasma exchange. In the meantime we

use

> > NAET treatments to keep her immune system built up

(www.NAET.com).

> > Sometimes it helps, sometimes it just speeds up the recovery

time.

> > There is no support group where we live and we are thankful to

have

> > heard about this sight. We are members of the OCD foundation.

If

> > you have any questions, feel free to ask. My husband and I

> certainly

> > understand the struggles that you go through, including school

> > situations, needing to work for extra income and not being able

to,

> > long, long periods of not " getting out " . We look forward to

> talking

> > with you. Sonya Haywood

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Dear Sonya,

Welcome to our group!! I think you will find, as we all did, that

having some support helps tremendously with the stress of raising a child

with OCD. I also have a daughter with OCD. She has just turned nine. I also

have a son who will turn six next month. My daughter had a sudden onset of

OCD when she was four after a bout with encephalitis, although she was

clearly predisposed to anxiety before then. She too can have periods during

which she seems almost completely well, and then periods when she is very ill

(though not nearly as ill as your poor daughter). She fits the criteria for

PANDAS completely, except that her strep titers have always come out

negative. There is some other immune system connection which no one has

worked out yet, apparently.

You sound as if you are providing your daughter with excellent care.

The one good thing I can say about having a young child with OCD is that they

accept treatment and even if later they refuse to participate (which seems

quite common among teens) they have already learned the foundation of CBT,

which will last a lifetime. In the two years that my daughter has been in

therapy she has learned so much about dealing with OCD - she amazes me

sometimes.

Best wishes to you, and keep writing. Your story sounds so familiar, i

can't even tell you - especially the diving over the couch bit. Been there,

done that...

,

mother of Annie (9) with OCD and Ben (soon to be six, who just suffers from

having to live with a sister with OCD)

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Yes, there is definently a connection between the immune system and a

worsening of the OCD. gets worse with strep, but has also had

other illnesses that made her OCD flare up. I am not convinced the

the blood work or cultures always show the strep. When I took her

for a NAET treatment after these tests were done and were negative,

strep was still showing up. Some believe that the strep hides itself

in the body, kind of like yeast. It is in the body, but only shows

up as a yeast infection at certain times.

The problem is that it is difficult to plan anything because you

never can tell when a child is going to get sick. My husband came

home last night and said that we are running out of money (we have

put and in a private school this year. They really

work with and her OCD)from having to pay the school tuition.

He said that I need to get out there and get a job, but not a night

job. I said " Oh yeah, I can see it now. We would love to hire you

Mrs. Haywood. We are very impressed with your resume and skills.

When can you start? " " Well, I can start right away. " " By the way,

there will probably be several times a year when I will be gone for

about three to four weeks at a time to help my daughter who has OCD.

Is that OK " . I am sure that the answer will be " you look like you

could do such great work, that we are willing to make that

sacrifice " . HAHAHAHAHAHAHAHAHAHAHAHAHAHA!!!!!!!!

You just gotta laugh, keeps you sane.

Sonya mother of (8 with OCD) and (almost six and has

learned to copy 's OCD to try to get out of doing things)

> Dear Sonya,

> Welcome to our group!! I think you will find, as we all did,

that

> having some support helps tremendously with the stress of raising a

child

> with OCD. I also have a daughter with OCD. She has just turned

nine. I also

> have a son who will turn six next month. My daughter had a sudden

onset of

> OCD when she was four after a bout with encephalitis, although she

was

> clearly predisposed to anxiety before then. She too can have

periods during

> which she seems almost completely well, and then periods when she

is very ill

> (though not nearly as ill as your poor daughter). She fits the

criteria for

> PANDAS completely, except that her strep titers have always come

out

> negative. There is some other immune system connection which no one

has

> worked out yet, apparently.

> You sound as if you are providing your daughter with

excellent care.

> The one good thing I can say about having a young child with OCD is

that they

> accept treatment and even if later they refuse to participate

(which seems

> quite common among teens) they have already learned the foundation

of CBT,

> which will last a lifetime. In the two years that my daughter has

been in

> therapy she has learned so much about dealing with OCD - she amazes

me

> sometimes.

> Best wishes to you, and keep writing. Your story sounds so

familiar, i

> can't even tell you - especially the diving over the couch bit.

Been there,

> done that...

> ,

> mother of Annie (9) with OCD and Ben (soon to be six, who just

suffers from

> having to live with a sister with OCD)

>

>

>

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Hi Sonya,

Welcome to ! You mentioned in your post that there are no

OCD support groups where you live. This group does a great job of filling

that void. In terms of , perhaps she would be interested in

OCDKidsSupportGroup. It's an online support group for kids 7-12 and it

works pretty much like this list does. I am the list moderator and keep an

eye out for saftey issues, etc. If you are interested in having her

subscribe, let me know and I can give you the sub info.

Kathy

--

Kathy Mac, LICSW

email: macdonald@...

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Hi Sonja,

Yes, I know the feeling...but we do what we have to. You might try a hospital

where there are lots of employees who can fill in when you are needed at home.

Good luck to you-- (who has a full time job, two part time jobs, and teach

at my son's school so I can keep an eye on him)

Re: New Member

Yes, there is definently a connection between the immune system and a

worsening of the OCD. gets worse with strep, but has also had

other illnesses that made her OCD flare up. I am not convinced the

the blood work or cultures always show the strep. When I took her

for a NAET treatment after these tests were done and were negative,

strep was still showing up. Some believe that the strep hides itself

in the body, kind of like yeast. It is in the body, but only shows

up as a yeast infection at certain times.

The problem is that it is difficult to plan anything because you

never can tell when a child is going to get sick. My husband came

home last night and said that we are running out of money (we have

put and in a private school this year. They really

work with and her OCD)from having to pay the school tuition.

He said that I need to get out there and get a job, but not a night

job. I said " Oh yeah, I can see it now. We would love to hire you

Mrs. Haywood. We are very impressed with your resume and skills.

When can you start? " " Well, I can start right away. " " By the way,

there will probably be several times a year when I will be gone for

about three to four weeks at a time to help my daughter who has OCD.

Is that OK " . I am sure that the answer will be " you look like you

could do such great work, that we are willing to make that

sacrifice " . HAHAHAHAHAHAHAHAHAHAHAHAHAHA!!!!!!!!

You just gotta laugh, keeps you sane.

Sonya mother of (8 with OCD) and (almost six and has

learned to copy 's OCD to try to get out of doing things)

> Dear Sonya,

> Welcome to our group!! I think you will find, as we all did,

that

> having some support helps tremendously with the stress of raising a

child

> with OCD. I also have a daughter with OCD. She has just turned

nine. I also

> have a son who will turn six next month. My daughter had a sudden

onset of

> OCD when she was four after a bout with encephalitis, although she

was

> clearly predisposed to anxiety before then. She too can have

periods during

> which she seems almost completely well, and then periods when she

is very ill

> (though not nearly as ill as your poor daughter). She fits the

criteria for

> PANDAS completely, except that her strep titers have always come

out

> negative. There is some other immune system connection which no one

has

> worked out yet, apparently.

> You sound as if you are providing your daughter with

excellent care.

> The one good thing I can say about having a young child with OCD is

that they

> accept treatment and even if later they refuse to participate

(which seems

> quite common among teens) they have already learned the foundation

of CBT,

> which will last a lifetime. In the two years that my daughter has

been in

> therapy she has learned so much about dealing with OCD - she amazes

me

> sometimes.

> Best wishes to you, and keep writing. Your story sounds so

familiar, i

> can't even tell you - especially the diving over the couch bit.

Been there,

> done that...

> ,

> mother of Annie (9) with OCD and Ben (soon to be six, who just

suffers from

> having to live with a sister with OCD)

>

>

>

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Welcome Sonya,

I have a 17 year old son who was DX at age 12. He

probably had OCD at a younger age but we never could

figure it out until it got 'full blown'. He also was

unable to attend school, but for him, in 6th grade

there was a great self induced shame. So when he was

better it was hard for him to face the others at

school. He is taking Celexa and it seems to have

helped a lot. Now he is a Junior in H.S. and has been

able to attend with no problems this year. (lets hope

it stays this way!)

There are others on this list who have kids with

similar symptoms like your . It is great to feel

like folks know what you are experiencing. That was so

helpful to me when I found this list.

I will look forward to reading your posts.

Vivian in WA ST

--- sjrhaywood@... wrote:

> Just wanted to take a moment and introduce myself

> and my family. My

> daughter was diagnosed in January with OCD. We

> believe her symptoms

> began at about age 3. She continued to go down hill

> until January of

> this year and she was taken out of school. Her

> physician is Dr.

> at University of Florida/Shands. Her

> therapist is Dr.

> Lemli (he works with CBT). Her doctors

> believe she has PANDAS

> OCD. My daughter is eight years old and has a

> younger brother who is

> almost six. She is back in school at the moment.

> When she is well

> she has only a few OCD symptoms, which only require

> minimum CBT to

> stop. When she is ill she stops functioning. She

> can no longer

> write, dress herself, turn on and off light switches

> and faucets,

> pump soap dispensers. She has paths that she has to

> take around the

> house, certain ways of getting on and off furniture

> and out of

> rooms. She gets stuck everywhere. We have to lift

> her up and carry

> her to two tiles in our family room. She wants us

> to place her on

> these tiles twice, facing East. During this time

> she washes her

> hands often and nothing " feels right " . Her

> movements become odd and

> she becomes oppositional after about 10 days after

> the flare up

> begins. She will hit, bite, pinch, tear up her

> room, etc. The

> therapist cannot offer anything but emotional

> support because she

> wont listen to anything he says. She has walked out

> on sessions

> during her flare ups. She gets very hyper and wont

> sit still for

> him. During her last flare up she was diving over

> the back of his

> couch and rolling on to the floor over and over

> again. She also

> can't pick up anything off the floor. She is taken

> out of school at

> this time and takes tests orally and I write for

> her. She will say

> when she is ready to go back to school and around

> this time her OCD

> symptoms will start dropping off. Her therapist

> says it is like

> night and day...sick and well. When she is well she

> is a straight A

> student and active in sports and theatre...when she

> is sick she sits

> on the couch and watches I Love Lucy reruns all day.

> It ususally

> takes about four weeks before she is back in school

> again.

>

> One thing we have found with is that strep

> doesn't look like

> strep. No red or swollen throat, no fever, just a

> flare up in her

> OCD. We are checking into plasma exchange. In the

> meantime we use

> NAET treatments to keep her immune system built up

> (www.NAET.com).

> Sometimes it helps, sometimes it just speeds up the

> recovery time.

> There is no support group where we live and we are

> thankful to have

> heard about this sight. We are members of the OCD

> foundation. If

> you have any questions, feel free to ask. My

> husband and I certainly

> understand the struggles that you go through,

> including school

> situations, needing to work for extra income and not

> being able to,

> long, long periods of not " getting out " . We look

> forward to talking

> with you. Sonya Haywood

>

>

__________________________________________________

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Dear Sonja, I want to welcome you to this group. It sounds like you have and

still are going through the wringer! My son exhibited similar types of behavior

to your daughter when his OCD began at about age 3. At that time, we were

basically told that we were not parenting effectively and that he needed more

discipline! Thank goodness I didn't believe that diagnosis! You are correct in

saying that a strep infection does not necessarily show up on the blood tests.

Dr. Chansky, one of our professional list advisors has told me that she has seen

children who get a virus and they become symptomatic! Her book, Freeing Your

Child From Obsessive Compulsive Disorder has a good section on PANDAS. It is

wonderful that you are looking into different avenues of treatment. As most of

us on this list know and understand, what is a lifesaver for one child, may not

do anything for another. Some children experience OCD so mildly that only CBT

is necessary, others (like my child) cannot function without a combination of

medication and CBT and ERP. As you described, when my son is highly

symptomatic, life virtually stops for him and me. It stops for him for obvious

reasons, for me for not so obvious ones. When my son is in a gravely ill state,

I do not have anyone to assist in helping to care for him. School would not

keep him as his behavior is too disruptive, my husband is not as skilled as I am

in working with my son when he is like this and even my most trusted friends and

relatives would not be able to handle him. I have not felt comfortable with the

idea of going back to work, as THERE IS NO EMPLOYER who will keep your job for

you if you constantly need to take off for a family members problems. Even if

you take a leave under the family leave legislation, they will find other ways

to fire you if you are not performing the job function you were hired to do. In

this economy, in particular, it would not be looked upon favourably if a person,

particularly a new person were to take off often because of family problems. The

feelings of being trapped I have always found to be almost as difficult to deal

with as the OCD itself! I am in the process myself of starting to look for work

as my husband has been unemployed for the last 9 months, but the responsibility

for taking care of the needs of the children will still fall in my lap! Sorry

this is so long, keep posting and I know that you will find the help and

encouragement that you need at this most difficult time. Best wishes, in

Southeastern PA

sjrhaywood@... wrote: Just wanted to take a moment and introduce myself

and my family. My

daughter was diagnosed in January with OCD. We believe her symptoms

began at about age 3. She continued to go down hill until January of

this year and she was taken out of school. Her physician is Dr.

at University of Florida/Shands. Her therapist is Dr.

Lemli (he works with CBT). Her doctors believe she has PANDAS

OCD. My daughter is eight years old and has a younger brother who is

almost six. She is back in school at the moment. When she is well

she has only a few OCD symptoms, which only require minimum CBT to

stop. When she is ill she stops functioning. She can no longer

write, dress herself, turn on and off light switches and faucets,

pump soap dispensers. She has paths that she has to take around the

house, certain ways of getting on and off furniture and out of

rooms. She gets stuck everywhere. We have to lift her up and carry

her to two tiles in our family room. She wants us to place her on

these tiles twice, facing East. During this time she washes her

hands often and nothing " feels right " . Her movements become odd and

she becomes oppositional after about 10 days after the flare up

begins. She will hit, bite, pinch, tear up her room, etc. The

therapist cannot offer anything but emotional support because she

wont listen to anything he says. She has walked out on sessions

during her flare ups. She gets very hyper and wont sit still for

him. During her last flare up she was diving over the back of his

couch and rolling on to the floor over and over again. She also

can't pick up anything off the floor. She is taken out of school at

this time and takes tests orally and I write for her. She will say

when she is ready to go back to school and around this time her OCD

symptoms will start dropping off. Her therapist says it is like

night and day...sick and well. When she is well she is a straight A

student and active in sports and theatre...when she is sick she sits

on the couch and watches I Love Lucy reruns all day. It ususally

takes about four weeks before she is back in school again.

One thing we have found with is that strep doesn't look like

strep. No red or swollen throat, no fever, just a flare up in her

OCD. We are checking into plasma exchange. In the meantime we use

NAET treatments to keep her immune system built up (www.NAET.com).

Sometimes it helps, sometimes it just speeds up the recovery time.

There is no support group where we live and we are thankful to have

heard about this sight. We are members of the OCD foundation. If

you have any questions, feel free to ask. My husband and I certainly

understand the struggles that you go through, including school

situations, needing to work for extra income and not being able to,

long, long periods of not " getting out " . We look forward to talking

with you. Sonya Haywood

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Welcome !

Penny - Mom to Jacqui, 6 1/2 HFA-------------------------------------------------------- " Just remember this: Plenty of Horsepower, No Traction " - R. S. on

" If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.Let him step to the music he hears, however measured or far away. " --Henry Thoreau

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Hey , it's me cheryl or chezmark. glad you finally got on here. You

will find some interesting emails come on here. bye Cheryl

New Member

Hello all, My name is . I live in U.S. I am 22 and 1/2 years

old. I have AS. Thanks,

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Hi Sonya,

----- Original Message -----

" The problem is that it is difficult to plan anything because you

never can tell when a child is going to get sick. My husband came

home last night and said that we are running out of money "

~~~~~~~~~~~~~~~~~~~~~~~~~Don't we all know that line. I quit my job 3 1/2

years ago to help our son get better. I thought it would be six months, a year

tops. HA HA HA, think I was very delusional back then. Money and my sanity

sent me back to work part-time, with the promise of help from hubby. I work per

deim, so I have no benefits (except I make my own schedule), so when I don't

work, I don't get paid. On the other hand, hubby has 2000 hours of sick time

and about 400 hours of vacation time. That sick time can be tapped for caring

for our son (family leave). I just stayed home for 4 1/2 days taking care of

all things for Mike,(I'll post about this latter). Ok, hubby did have a good

excuse, he is in management and his post office is closed because of anthrax; I

have hardly seen him the last week because of the hours he had to work. In

jest, it seems that the anthrax was convenient for him-doesn't have to get Mike

into a day hospitalization or look for a therapeutic school...!!In my next life

I will be a dad!!!

" He said that I need to

get out there and get a job, but not a night

job. "

~~~~~~~~OF

COURSE!~~~~~~~~~~~~~~~

I said " Oh yeah, I can see it now. We

would love to hire you

Mrs. Haywood. We are very impressed with your resume and skills.

When can you start? " " Well, I can start right away. " " By the way,

there will probably be several times a year when I will be gone for

about three to four weeks at a time to help my daughter who has OCD.

Is that OK " . I am sure that the answer will be " you look like you

could do such great work, that we are willing to make that

sacrifice " . HAHAHAHAHAHAHAHAHAHAHAHAHAHA!!!!!!!!

You just gotta laugh, keeps you sane.

Sonya mother of (8 with OCD) and (almost six and has

learned to copy 's OCD to try to get out of doing things)

~~~~~~~~~~~~~~~~~~~~~I am still laughing with you Sonya!!!!!! Hubby can't be

the primary care taker as it would ruin his dependable professional reputation.

We take a job and become undependable employees, and that's ok. UGH!! I say

anyday I get to work is a good day, and it is easier than what I do at home for

free. At least I can get paid for going to work...

Hugs to you, in NJ~~~~~~~~~~~~~~~~~~~~~~

> Dear Sonya,

> Welcome to our group!! I think you will find, as we all did,

that

> having some support helps tremendously with the stress of raising a

child

> with OCD. I also have a daughter with OCD. She has just turned

nine. I also

> have a son who will turn six next month. My daughter had a sudden

onset of

> OCD when she was four after a bout with encephalitis, although she

was

> clearly predisposed to anxiety before then. She too can have

periods during

> which she seems almost completely well, and then periods when she

is very ill

> (though not nearly as ill as your poor daughter). She fits the

criteria for

> PANDAS completely, except that her strep titers have always come

out

> negative. There is some other immune system connection which no one

has

> worked out yet, apparently.

> You sound as if you are providing your daughter with

excellent care.

> The one good thing I can say about having a young child with OCD is

that they

> accept treatment and even if later they refuse to participate

(which seems

> quite common among teens) they have already learned the foundation

of CBT,

> which will last a lifetime. In the two years that my daughter has

been in

> therapy she has learned so much about dealing with OCD - she amazes

me

> sometimes.

> Best wishes to you, and keep writing. Your story sounds so

familiar, i

> can't even tell you - especially the diving over the couch bit.

Been there,

> done that...

> ,

> mother of Annie (9) with OCD and Ben (soon to be six, who just

suffers from

> having to live with a sister with OCD)

>

>

>

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Hi

Its nice to have you here. My name is Tracey and I have a 9 year old

autistic daughter named Skylar. I look forward to hearing your opinions

on some of our questions.

Tracey

lighthouses53110@... wrote:

> Hello all, My name is . I live in U.S. I am 22 and 1/2 years

> old. I have AS. Thanks,

>

>

>

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Hi Sonya, and welcome to the group! I am so very jealous, that your doctor

is . My daughter (7 now, onset at 4.11 yrs.) participated in a

study at U of F, Dr. was so very good and impressive that we

considered moving to Florida so Kel could have her as her doctor.

So much of what you've written is very familiar to me--right down to my

daughter also being an athlete and and actor! She is successful in these

areas and the positive feedback is wonderful for her self-esteem. My

daughter's OCD is more stable than yours at this point now, though she was

dysfunctional at onset and for the first few months following that. It must

be extremely difficult for you and your child to cope with the dramatic ups

and downs. I read the page you posted about NAET, it sounds a little " out

there " , but I'm glad it seems to help your child.

Again, welcome,

Kathy R. in Indiana

----- Original Message -----

From: <sjrhaywood@...>

> Just wanted to take a moment and introduce myself and my family. My

> daughter was diagnosed in January with OCD. We believe her symptoms

> began at about age 3. She continued to go down hill until January of

> this year and she was taken out of school. Her physician is Dr.

> at University of Florida/Shands. Her therapist is Dr.

> Lemli (he works with CBT). Her doctors believe she has PANDAS

> OCD. My daughter is eight years old and has a younger brother who is

> almost six. She is back in school at the moment. When she is well

> she has only a few OCD symptoms, which only require minimum CBT to

> stop. When she is ill she stops functioning. She can no longer

> write, dress herself, turn on and off light switches and faucets,

> pump soap dispensers. She has paths that she has to take around the

> house, certain ways of getting on and off furniture and out of

> rooms. She gets stuck everywhere. We have to lift her up and carry

> her to two tiles in our family room. She wants us to place her on

> these tiles twice, facing East. During this time she washes her

> hands often and nothing " feels right " . Her movements become odd and

> she becomes oppositional after about 10 days after the flare up

> begins. She will hit, bite, pinch, tear up her room, etc. The

> therapist cannot offer anything but emotional support because she

> wont listen to anything he says. She has walked out on sessions

> during her flare ups. She gets very hyper and wont sit still for

> him. During her last flare up she was diving over the back of his

> couch and rolling on to the floor over and over again. She also

> can't pick up anything off the floor. She is taken out of school at

> this time and takes tests orally and I write for her. She will say

> when she is ready to go back to school and around this time her OCD

> symptoms will start dropping off. Her therapist says it is like

> night and day...sick and well. When she is well she is a straight A

> student and active in sports and theatre...when she is sick she sits

> on the couch and watches I Love Lucy reruns all day. It ususally

> takes about four weeks before she is back in school again.

>

> One thing we have found with is that strep doesn't look like

> strep. No red or swollen throat, no fever, just a flare up in her

> OCD. We are checking into plasma exchange. In the meantime we use

> NAET treatments to keep her immune system built up (www.NAET.com).

> Sometimes it helps, sometimes it just speeds up the recovery time.

> There is no support group where we live and we are thankful to have

> heard about this sight. We are members of the OCD foundation. If

> you have any questions, feel free to ask. My husband and I certainly

> understand the struggles that you go through, including school

> situations, needing to work for extra income and not being able to,

> long, long periods of not " getting out " . We look forward to talking

> with you. Sonya Haywood

>

>

>

> You may subscribe to the Parents of Adults with OCD List at

parentsofadultswithOCD-subscribe . You may subscribe to

the OCD and Homeschooling List at

ocdandhomeschooling-subscribe . You may subscribe to the

OCD Kids Support Group at OCDKidsSupportGroup-subscribe .

You may change your subscription format or access the files, bookmarks, and

archives for our list at .

Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and

Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes,

Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy ,

Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions

may be addressed to Louis Harkins, list owner, at lharkins@... .

>

>

>

>

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  • 2 weeks later...

> My name is , and I am the parent of a 16 year

> old boy,, who has OCD.

Do

> any of you have other children that do not want to

> deal with their OCD and try to ignore it?

Hi , and welcome to this great list!

My name is Marlys, and my 16-yr old daughter has OCD, and yep,

she doesn't want to admit it's that (though she knows it's SOMETHING),

and she doesn't want me to advocate for her in school, and she doesn't

want treatment, esp. drugs! So, you and are not the only

ones trying to deal with this nasty disorder. Many of us have found

that school is the worst (most difficult) place for our kids and their

ocd - I know that's true for my daughter. I have found a lot of

support from this list, and hope that you do also. I don't have any

specific advice for you, but hope you will stick around and get

acquainted! Lots of people on this list know more than I do!

Marlys in SC

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Hi ,

I too have a 16 yr old son with OCD. When we figured out what it was, he

would acknowledge that he had it because of the emotional pain he was in,

but he refused to go for help. Being bigger than me I knew I couln't drag

him there. So we wasted 2 years before beginning treatment.

We just started meds (luvox) this past January 2001. He also hated school

and every day would tell me he wasn't going to make it there (high school)

much longer- He wasn't going to live much longer. Neither one of us could

talk about OCD until the last 3 or 4 months (denial on my part -

embarassment on his). We are just now beginning to share with others. It

is a very difficult time for our sons. Not only do they have to deal with

OCD - which has some very hard to understand and cope with symptoms - but

they have to deal with all the changes that come with adolescence as well.

A tall order for them and us! I ended up having to homeschool my kiddo this

year (lack of cooperation with the school) and the medicine is helping, but

it is a slow, uphill battle. Hang in there and know that you are not alone

- others have been there, are there now, and it is hard.

PS My son has contamination OCD.

Sharon in Oklahoma

>From: Robbins <kelrobb@...>

>Reply-

>

>Subject: New member

>Date: Tue, 20 Nov 2001 07:44:10 -0800 (PST)

>

>Hi,

>

> My name is , and I am the parent of a 16 year

>old boy,, who has OCD. His OCD is a little

>unusual in that his fear are of things poking him in

>the eyes. He normally will cover up is face or wear

>things around his face for protection. He also covers

>and moves object in our home that disturb him. He

>really has trouble with writing objects so school is

>an on going struggle. He absolutely hates school and

>it is a trigger for his OCD along with driving a car

>and other stresses. He takes 70 mg. of Prozac, but he

>feels like a Zombie. He found relief from

>exposure/response therapy. He began feeling better

>and then decided to go off meds. Bad ideal. He went

>back on meds but is struggling. He is in denial. He

>doesn't like me to speak of it b/c he thinks that

>makes it worse. I try to advocate for him at school,

>but he does a little as he can to get by. I find it

>very difficult to know if I am enabling him or not

>advocating enough for him at school. I know he is

>suffering, but he makes everything so difficult with a

>negative attitude. The only thing that keeps him in

>school is goal to be in the fishing industry. He

>absolutely loves to fish and is very good at it. Do

>any of you have other children that do not want to

>deal with their OCD and try to ignore it?

>

>Sincerely,

>

>

>

>__________________________________________________

>

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Hi & Marlys,

My name is Phyllis, and my almost 16-yr old daughter, Chelle

has TS, OCD, & ADHD. Her name gets added to the list after

and as a child who also has been in denial,

doesn't want me to advocate for her in school, doesn't want

E & RP therapy, and doesn't like me to talk about OCD because

she says that makes it worse. She says she doesn't think

about it unless I mention it. Of course, I see the behavior

that results from it that she doesn't see.

Do your kids have many friends; or, as Chelle, only one

friend? She is slowly warming up to a couple of girls in

her school, but they live about 1/2 hour away from us.

Chelle takes meds, finally after many years, without a

terrible struggle. The meds have helped tremendously with

her symptoms, especially her TS tics. I'm not sure what to

attribute it to, because she receives Dexedrine prior to

coming home from school; but she is wiped out after school

and sleeps sometimes until 7 or 8 o'clock. Needless to say,

homework rarely gets done. She's very bright but failing

school.

We did have a major breakthrough last week. Chelle went to

her first OCD support group for children and teens. There

were 6 kids there including Chelle. This was the first time

she met other kids who were diagnosed with OCD. They were

just like other kids, except for a few noticable quirks.

She got along well with them and said she wants to go back

next week. I think she felt rather safe with them. This

may give her some of the emotional security she needs with

peers.

I have found that school has been an extremely difficult

place for her since 1st grade. Middle school was the worst

you could imagine. She was teased and taunted

unmercifully. Things are not quite so bad now that she's

in 10th grade, but she's still considered a " problem child "

and her teachers are not as supportive as she needs.

Are your kids in the public schools? What kinds of

accomodations do you have on their IEP's? Chelle's

currently in an alternative school that is not working for

her. We're looking for an approved private school for her

to attend, but I don't know if that is the answer either. I

want her to be able to experience as much of a normal teen

time as possible, but I'm so concerned about her emotional

health in the public school system. I absolutely cannot

stand how our kids are treated by their peers, teachers, and

the system.

We have another IEP meeting coming up in about three weeks.

Any one have any words of wisdom for me?

Progress, not perfection

Phyllis

ppepe40@...

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Hi , welcome! I have a 12 y/o son, , who also does NOT

like to talk about his OCD or like ME to talk about it. And,

depending on my mood/patience, I'll do either! LOL

I, at times, feel like ignores it; sort of just goes along

with his OCD behavior until he can finish it. And then I feel like

he's not trying. On the other hand, when at times here/there he has

really had prolonged episodes (like having to repeat an action over &

over), I can actually see how tired he gets (tearful sometimes), just

wanting to get through it and be able to stop. (Luckily the long

ones are few and far between).

In a way I can understand it when they feel that our talking about it

makes it worse. I guess it causes anxiety/stress. Sort of like

fussing at an alcoholic about drinking and that making them (so it's

said) want a drink; or fussing at a smoker about quitting and that

making them want a cigarette and so on.... At least that's one

way " I " can look at it when I can see " tensing up " at times

when " I'm " the one talking about his OCD behaviors.

So far as school - I guess there can be 2 sides to that. I am the

worst " enabler " with (in 7th) as his OCD has sort of shut

down his being able to write at home (long story) and " I " write all

his schoolwork that he brings home. (Except for one night recently

when he actually did some of it!) Anyway, there's times I've thought

and even said to him that he'd fail his grade if I wasn't helping him

along this way. So I got him on a 504 plan at school with a few

modifications allowed. He doesn't use them all but they're there if

we need them this year.

So when you talk to the school, what does the school have to say?

Are they allowing any accommodations for him?

Keep us updated on everthing! This group is a great support and lots

of different ideas and suggestions for things. I know it takes a

load off my shoulders!

- single mom to (12) w/OCD and dysgraphia; (12-twin)

with separation anxiety; Randall (16) who has a negative attitude

with me and his brothers! -

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Dear

I just wrote an email about and meds but I

would like to speak about accommodations at school.

has an IEP with a few accommodations that he

can leave class with a pass if his OCD is out of

control and he has a resource room class where he can

do homework. I strongly feel that b/c 's

disability is so odd to staff that they do not really

believe how difficult it is for him to sit in a

classroom. I have given the school system literature

and a video on OCD and Schools, but I don't think

staff viewed it. It boils down to the school systems

special education system is under staffed and not

supported by administrative staff. I have got them to

allow to do his vocational training at a State

run fish hatchery. This is new for the school and I

feel a positive step. This all hinges on

passing his classes this term and that is

questionable.

I wish we could home school him, but I know he would

not be motivated to do the work. We keep encouraging

to make it through school so he can meet his goal of

being in the fishing industry.

Thanks,

--- @... wrote:

> Hi , welcome! I have a 12 y/o son, ,

> who also does NOT

> like to talk about his OCD or like ME to talk about

> it. And,

> depending on my mood/patience, I'll do either! LOL

>

> I, at times, feel like ignores it; sort of

> just goes along

> with his OCD behavior until he can finish it. And

> then I feel like

> he's not trying. On the other hand, when at times

> here/there he has

> really had prolonged episodes (like having to repeat

> an action over &

> over), I can actually see how tired he gets (tearful

> sometimes), just

> wanting to get through it and be able to stop.

> (Luckily the long

> ones are few and far between).

>

> In a way I can understand it when they feel that our

> talking about it

> makes it worse. I guess it causes anxiety/stress.

> Sort of like

> fussing at an alcoholic about drinking and that

> making them (so it's

> said) want a drink; or fussing at a smoker about

> quitting and that

> making them want a cigarette and so on.... At least

> that's one

> way " I " can look at it when I can see

> " tensing up " at times

> when " I'm " the one talking about his OCD behaviors.

>

>

> So far as school - I guess there can be 2 sides to

> that. I am the

> worst " enabler " with (in 7th) as his OCD has

> sort of shut

> down his being able to write at home (long story)

> and " I " write all

> his schoolwork that he brings home. (Except for one

> night recently

> when he actually did some of it!) Anyway, there's

> times I've thought

> and even said to him that he'd fail his grade if I

> wasn't helping him

> along this way. So I got him on a 504 plan at

> school with a few

> modifications allowed. He doesn't use them all but

> they're there if

> we need them this year.

>

> So when you talk to the school, what does the school

> have to say?

> Are they allowing any accommodations for him?

>

> Keep us updated on everthing! This group is a great

> support and lots

> of different ideas and suggestions for things. I

> know it takes a

> load off my shoulders!

>

>

> - single mom to (12) w/OCD and dysgraphia;

> (12-twin)

> with separation anxiety; Randall (16) who has a

> negative attitude

> with me and his brothers! -

>

>

>

>

>

>

__________________________________________________

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Dear Phyllis,

My heart goes out to your daughter. Kids can be so

mean. My son, , had always been a social child.

When he was young he had to always have friends

around. He got in trouble in the eighth grade. He

did something impulsively which changed our lives and

made his OCD hit hard. A kid brought an unloaded gun

to school and held on to it for a class.

Needless to say he was expelled for a year and this

started depression and stronger OCD. We have overcome

all that, but now doesn't hang out with a lot

of people. In fact, he just has a few friends and is

nowhere as near as social as he use to be. The

greatest thing right now for is he is dating a

very nice girl that is from a different school system.

I wish there were more educational alternatives for

kids with emotional needs. My experience with public

education has been terrible and I do not have a lot of

thoughts on different accomodations. Have you ask

your daughter what she thinks she needs to be

successful at school. Is home schooling an option? We

are home schooling my youngest son who is 11 and has a

learning disability. It has been great for him but he

is also a very motivated young man and works hard. We

do this with me working full time and my husband to be

working part-time.

Good Luck,

--- ppepe40 <ppepe40@...> wrote:

> Hi & Marlys,

>

> My name is Phyllis, and my almost 16-yr old

> daughter, Chelle

> has TS, OCD, & ADHD. Her name gets added to the

> list after

> and as a child who also has been in

> denial,

> doesn't want me to advocate for her in school,

> doesn't want

> E & RP therapy, and doesn't like me to talk about OCD

> because

> she says that makes it worse. She says she doesn't

> think

> about it unless I mention it. Of course, I see the

> behavior

> that results from it that she doesn't see.

>

> Do your kids have many friends; or, as Chelle, only

> one

> friend? She is slowly warming up to a couple of

> girls in

> her school, but they live about 1/2 hour away from

> us.

>

> Chelle takes meds, finally after many years, without

> a

> terrible struggle. The meds have helped

> tremendously with

> her symptoms, especially her TS tics. I'm not sure

> what to

> attribute it to, because she receives Dexedrine

> prior to

> coming home from school; but she is wiped out after

> school

> and sleeps sometimes until 7 or 8 o'clock. Needless

> to say,

> homework rarely gets done. She's very bright but

> failing

> school.

>

> We did have a major breakthrough last week. Chelle

> went to

> her first OCD support group for children and teens.

> There

> were 6 kids there including Chelle. This was the

> first time

> she met other kids who were diagnosed with OCD.

> They were

> just like other kids, except for a few noticable

> quirks.

> She got along well with them and said she wants to

> go back

> next week. I think she felt rather safe with them.

> This

> may give her some of the emotional security she

> needs with

> peers.

>

> I have found that school has been an extremely

> difficult

> place for her since 1st grade. Middle school was

> the worst

> you could imagine. She was teased and taunted

> unmercifully. Things are not quite so bad now that

> she's

> in 10th grade, but she's still considered a " problem

> child "

> and her teachers are not as supportive as she needs.

>

> Are your kids in the public schools? What kinds of

> accomodations do you have on their IEP's? Chelle's

> currently in an alternative school that is not

> working for

> her. We're looking for an approved private school

> for her

> to attend, but I don't know if that is the answer

> either. I

> want her to be able to experience as much of a

> normal teen

> time as possible, but I'm so concerned about her

> emotional

> health in the public school system. I absolutely

> cannot

> stand how our kids are treated by their peers,

> teachers, and

> the system.

>

> We have another IEP meeting coming up in about three

> weeks.

> Any one have any words of wisdom for me?

>

> Progress, not perfection

> Phyllis

> ppepe40@...

>

>

>

>

__________________________________________________

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:

I posted last week about a seminar I attended on treatment of mentally

ill children. The main speaker was Dr. Xavier Amador who spoke about

getting kids into treatment. If you go into the archives, you should

be able to find my post. If not, write me off-list and I will send

you a copy. Dr. Amador has written a book you may be interested in

called I'm Not Sick! I Don't Need Help! You may wish to read it. I

was very impressed with what he had to say.

Jule

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  • 2 weeks later...

Hi Carolyn

I'm glad you joined this great supportive group and to meet you here again. We

are in the middle of getting a diagnosis for Fabio - I gave them all the

Disability Solution Report on DS and Autism and told them they have to read and

study it before meeting Fabio.

http://www.disabilitysolutions.org/3-5.htm

http://www.altonweb.com/cs/downsyndrome/autism.html

http://www.altonweb.com/cs/downsyndrome/howlin.html

Hugs from Switzerland to New Zealand

with Tanja 12, Fabio 10 with DS/? and Elena 7

New Member

Hello everyone,

I am Carolyn from New Zealand. My DH Tony and I have 4 children and our

youngest 2 girls both have Ds. Emma is 5 and Nicki is 4.

My concern right now is with Emma. After and meeting with Emma's

Developmental Pediatrician, I am concerned that Emma may have Austism as well as

Ds. I have read as much as I can about what to look for and have joined this

group to find out more. I find parents a much better source of info than most

specialists since we live with it 24/7.

Emma will be assessed for Autism in the near future and I am educating myself

so I can contribute and assist with this Dx.

On the checklist Emma does jiggle socks, string and even knickers. She did

lose her speech at about age 3 and is still non verbal at 5 1/2 (she uses about

30 words spontaneously and repeats words after you say them). Her behaviour is

sometimes erratic and disruptive and she is sensitive to laughter although this

is improving since her tubes have gone in. Most of her behaviour I have put

down to frustration in her lack of language but in the past month she has

discovered the purpose of language is using her words more effectively. We have

just started using PECS which has been great. She has certain routines that we

have to follow but when does routine become ritual?

My question is: How much of the above can one put down to Emma having Ds and

when do you cross the line into the Dx of Autism?

Thanks for reading and I am thrilled to find this list!

Carolyn

Mum to on, , Emma (Ds) and Nicki (Ds)

www.geocities.com/nz_mom/sykesfamily.html

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Welcome Carolyn ,

Glad you have found this list , glad to have you on board . We are

many that can relate and your Emma does sound alot like our kids .

Glad you found out while she is young to proceed with the services

needed , if possible . I've found many of our answers through the

autism route than the Down sydrome . You are certainly correct

PARENTS are the best resources . Luck with future Assessements for

Autism and always prayers for answers .

Irma, 13,DS/ASD.

> Hello everyone,

>

> I am Carolyn from New Zealand. My DH Tony and I have 4 children

and our youngest 2 girls both have Ds. Emma is 5 and Nicki is 4.

>

> My concern right now is with Emma. After and meeting with Emma's

Developmental Pediatrician, I am concerned that Emma may have Austism

as well as Ds. I have read as much as I can about what to look for

and have joined this group to find out more. I find parents a much

better source of info than most specialists since we live with it

24/7.

>

> Emma will be assessed for Autism in the near future and I am

educating myself so I can contribute and assist with this Dx.

>

> On the checklist Emma does jiggle socks, string and even knickers.

She did lose her speech at about age 3 and is still non verbal at 5

1/2 (she uses about 30 words spontaneously and repeats words after

you say them). Her behaviour is sometimes erratic and disruptive and

she is sensitive to laughter although this is improving since her

tubes have gone in. Most of her behaviour I have put down to

frustration in her lack of language but in the past month she has

discovered the purpose of language is using her words more

effectively. We have just started using PECS which has been great.

She has certain routines that we have to follow but when does routine

become ritual?

>

> My question is: How much of the above can one put down to Emma

having Ds and when do you cross the line into the Dx of Autism?

>

> Thanks for reading and I am thrilled to find this list!

>

> Carolyn

> Mum to on, , Emma (Ds) and Nicki (Ds)

> www.geocities.com/nz_mom/sykesfamily.html

>

>

>

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Hi :

Thanks for introducing yourself and . Please tell I

have heard quite a few times about the poking in the eye obsession

so he is definitely not alone.

OUr son, Steve, only really got going on his E & RP after the third

try (begun about 9 months after the first try began). In fact the

standard research protocol of 16 weeks would definitely not have been

able to get the improvement that has been achieved after much longer

treatment. In fact E & RP is a way of life for him. From how 's

compulsions are sticking it seems that he would benefit from some more

E & RP followed up with a relapse prevention plan.

Not wanting to deal with OCD, or avoidance is just part of the

disorder. YOu can discuss this with his CBT therapist and work

together on designing suitable interventions.

When is fishing does OCD leave him alone? It is wonderful when

they have something they like as it gives us an opportunity to

reinforce their E & RP work by rewards related to their interests.

Steve likes computer games so we could use more time on the computer

or a new game as an incentive for hard E & RP. You can work out

something similar for with fishing time and equipment. Good

luck, aloha, kathy (h)

kathyh@...

> Hi,

>

> My name is , and I am the parent of a 16 year

> old boy,, who has OCD. His OCD is a little

> unusual in that his fear are of things poking him in

> the eyes. He normally will cover up is face or wear

> things around his face for protection. He also covers

> and moves object in our home that disturb him. He

> really has trouble with writing objects so school is

> an on going struggle. He absolutely hates school and

> it is a trigger for his OCD along with driving a car

> and other stresses. He takes 70 mg. of Prozac, but he

> feels like a Zombie. He found relief from

> exposure/response therapy. He began feeling better

> and then decided to go off meds. Bad ideal. He went

> back on meds but is struggling. He is in denial. He

> doesn't like me to speak of it b/c he thinks that

> makes it worse. I try to advocate for him at school,

> but he does a little as he can to get by. I find it

> very difficult to know if I am enabling him or not

> advocating enough for him at school. I know he is

> suffering, but he makes everything so difficult with a

> negative attitude. The only thing that keeps him in

> school is goal to be in the fishing industry. He

> absolutely loves to fish and is very good at it. Do

> any of you have other children that do not want to

> deal with their OCD and try to ignore it?

>

> Sincerely,

>

>

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