new to group

[Guest guest]

Welcome Sandee B.

Glad you've joined . Its such a relief to have found this e-group

that we can all relate . I can imagine what you've been going

through . I'm pretty sure you'll be able to share some information of

what you've been through with your daughter of 23 yrs. old . The

Disability Solutions has been the excellent information to have

opened the doors for my son 12 . You will feel at home here .

Hope you find answers for your daughter , too . No matter what age

our children are, we Love them and we would like to see them happy

growing up . So we will try to find answers to help each other . Many

Blessings .

Irma , 12 , DS/ASD .

-- In @y..., sandee brauner <momsan4@c...> wrote:

> My first attempt to send email to this group. Let me know if I'm

getting

> through. I have a question for the group: all the info. I've been

> reading relates to children; do any of you know of adult onset

autism.

> I'm positive that this is whats going on with my 23 year old

daughter. I

> just finished reading the excellent info.from disability solutions

by

> Joan and she describes my situation exactly. This is the first time

I've

> found anything on whats going on with my daughter. Thanks for any

> assistance and advice. Also, we live in Kansas, does anybody know

of a

> medical facility in this area thats dealing with the ds/autism

spectrum?

> KU? Help!

[Guest guest]

hi sande, nice to meet someone towards the middle of the US besides me,

we're in iowa, I could look up in my exceptional parent magazine, they sent

out a thick one awhile back with all the facilities of each states and the

particualar area in which they work in. I know that university of iowa

hospital is in there for most things in iowa and this is where weve been

taking nathan for years. He is now 9yrs with ds, pdd,(autism), add/hd, ocd.

I will need the weekend to dig it out again. You can also do internet

search, just put something like special needs physicians in kansas or

something to that affect and it shoul gived you at least a couple in the

state of kansas. get creative during your search, and as long as you put in

kansas it should stick to your state. shawna.

new to group

> My first attempt to send email to this group. Let me know if I'm getting

> through. I have a question for the group: all the info. I've been

> reading relates to children; do any of you know of adult onset autism.

> I'm positive that this is whats going on with my 23 year old daughter. I

> just finished reading the excellent info.from disability solutions by

> Joan and she describes my situation exactly. This is the first time I've

> found anything on whats going on with my daughter. Thanks for any

> assistance and advice. Also, we live in Kansas, does anybody know of a

> medical facility in this area thats dealing with the ds/autism spectrum?

> KU? Help!

>

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and photos

of our kids. Share favorite bookmarks, ideas, and other information by

including them. Don't forget, messages are a permanent record of the

archives for our list.

> --------------------------------------------

>

>

[Guest guest]

Hi ! I'm mom to 2 year olds Arielle (Are-ee-el-a) & Annemieke

(On-a-meek-a)(ds).

We didn't know Annemieke was ds until she was born. It was quite a shock,

but she is doing very well both with her health and her development. These

are my first children, I can't imagine having twins with 3 other kids in the

house. Though I see you have 2 teenagers, they should be a big help.

If you can we love to see pictures. I'm glad you found the group !! What

part of the country (or world) are you in ??

Look forward to hearing from you,

new to group

Hi. I'm new to this group. Last year on Mother's Day (5/14/00), I gave

birth to twins, Hannah and , and was diagnosed with Down

Syndrome. I have 3 older children, Beth-14, -13 and Kimber-7. We

are a Christian family and we are very proud to have in our

family. We have a very supportive church family also, but I would

really enjoy talking to others that truly know what we go through

everyday. I look forward to getting to know all of you in the future.

(krazmom2us)

http://DSyndrome.com/Multiples

[Guest guest]

Hi ,

I have four children. Quinn is 5, Sara and Maggie are 2, and Teddy is 9

months. Maggie has Down syndrome and is doing very well. She has no health

problems and is just doing so well-we couldn't ask for better.

Welcome to the group. You should be able to find answers to any questions

or find people who have gone or are going through the same things as you and

your family.

Looking forward to hearing about your clan.

new to group

> Hi. I'm new to this group. Last year on Mother's Day (5/14/00), I gave

> birth to twins, Hannah and , and was diagnosed with Down

> Syndrome. I have 3 older children, Beth-14, -13 and Kimber-7. We

> are a Christian family and we are very proud to have in our

> family. We have a very supportive church family also, but I would

> really enjoy talking to others that truly know what we go through

> everyday. I look forward to getting to know all of you in the future.

>

> (krazmom2us)

>

>

>

> http://DSyndrome.com/Multiples

>

>

[Guest guest]

Hi and welcome to the group!

CONGRATS! On the birth of Hannah and ! How are they doing??? They

almost share my birthday (5/29), so they must be great! Gemini! ;o)

I'm the list owner... Sara. I am a pre-medical student at U at Buffalo in

Buffalo NY. You probably already heard my intro (cause I saw you joined

when did!)... so I won't repeat it. Just welcome to the group!

Cheers!

Sara

--On Saturday, August 25, 2001, 4:03 PM -0500 slwithrow@... wrote:

> Hi. I'm new to this group. Last year on Mother's Day (5/14/00), I gave

> birth to twins, Hannah and , and was diagnosed with Down

> Syndrome. I have 3 older children, Beth-14, -13 and Kimber-7. We

> are a Christian family and we are very proud to have in our

> family. We have a very supportive church family also, but I would

> really enjoy talking to others that truly know what we go through

> everyday. I look forward to getting to know all of you in the future.

>

> (krazmom2us)

>

>

>

> http://DSyndrome.com/Multiples

>

>

[Guest guest]

Welcome to the group. Our boys are now 18 months old, born February 2000. Davey has DS. We found out before he was born during a routine twin ultrasound. We also have two older girls Amy 13, and Kelsey 11. We are very blessed to have Davey in our family. He is very healthy and quite an entertaining little guy. He is now up to three signs, "water", "horse", and "airplane". Who would guess that those would be his first. Looking forward to hearing more from your family. This is a great group. new to group Hi. I'm new to this group. Last year on Mother's Day (5/14/00), I gavebirth to twins, Hannah and , and was diagnosed with DownSyndrome. I have 3 older children, Beth-14, -13 and Kimber-7. Weare a Christian family and we are very proud to have in ourfamily. We have a very supportive church family also, but I wouldreally enjoy talking to others that truly know what we go througheveryday. I look forward to getting to know all of you in the future. (krazmom2us)

[Guest guest]

Welcome , I'm mom to 3 year old twins,

Ashton and Landon. Landon has Down syndrome and he is

a delight!! We are from South Carolina. I look forward

to hearing more about you and your family.

--- Sara Greenberg <List@...> wrote:

>

> Hi and welcome to the group!

>

> CONGRATS! On the birth of Hannah and ! How

> are they doing??? They

> almost share my birthday (5/29), so they must be

> great! Gemini! ;o)

>

> I'm the list owner... Sara. I am a pre-medical

> student at U at Buffalo in

> Buffalo NY. You probably already heard my intro

> (cause I saw you joined

> when did!)... so I won't repeat it. Just

> welcome to the group!

>

> Cheers!

> Sara

>

> --On Saturday, August 25, 2001, 4:03 PM -0500

> slwithrow@... wrote:

>

> > Hi. I'm new to this group. Last year on Mother's

> Day (5/14/00), I gave

> > birth to twins, Hannah and , and

> was diagnosed with Down

> > Syndrome. I have 3 older children, Beth-14,

> -13 and Kimber-7. We

> > are a Christian family and we are very proud to

> have in our

> > family. We have a very supportive church family

> also, but I would

> > really enjoy talking to others that truly know

> what we go through

> > everyday. I look forward to getting to know all

> of you in the future.

> >

> > (krazmom2us)

> >

> >

> >

> > http://DSyndrome.com/Multiples

> >

> >

[Guest guest]

Hi and Welcome to the group! My name is Kim, I have boy/girl twins

, who has Ds and Abigail. They will be 4 in October. I also have an

older child, Mikayla, who is 6. We live in Washington State. I glad you

joined!

Kim mom to Abbi and Ds - 31/2 and Mikayla - 6

new to group

> Hi. I'm new to this group. Last year on Mother's Day (5/14/00), I gave

> birth to twins, Hannah and , and was diagnosed with Down

> Syndrome. I have 3 older children, Beth-14, -13 and Kimber-7. We

> are a Christian family and we are very proud to have in our

> family. We have a very supportive church family also, but I would

> really enjoy talking to others that truly know what we go through

> everyday. I look forward to getting to know all of you in the future.

>

> (krazmom2us)

>

>

>

> http://DSyndrome.com/Multiples

>

>

[Guest guest]

Janice: The frustration regarding the delays in academics is a hard on

these kids with this issue. My son almost lost his mind last year

in Grade K when they wouldn't stop pushing the ABC's he has still not gotten

yet. After I took him to a psychologist for an evaluation because everytime

you mentioned the ABC'S he would run away........ he confirmed this had

a negitive impact on him emotionally all th epushing and him hard working

and it still not clicking. He recieved therapy for anxiety disorder relating

to school performance........I loved the psy. analogy.....................he

said quote "If I told you to put your head in a bucket of water and breath

and you knew you couldn't, wouldn't you become anxious?"..This is not avoidance

as we see it but self preservation!!!!!..great point he had......In therapy

he learned to relax and say I am "frustrated"....thank God he is in a special

ed program this year with a wonderful teacher, who delayed his first spelling

test on letter A because she said he was so nervous about it. She purposely

tested him on material he knew to build his esteem!!!!!!

Debbie in Pa

Janice Odynsky wrote:

hi,i

am very happy to see what i can learn from this group . my son

james,10yo, has always had an aggressive nature.....but now that he is

older and larger....he is much harder to handle during these aggressive

times. james is verbal...but definitely not always appropriately. he of

course has problems with interacting appropriately socially. he is

delayed in his academics, which really is frustrating to him. anyway just

a little intro to get me started. --- Janice Odynsky---

speacial1@...---

EarthLink: It's your Internet.

[Guest guest]

Hi all just checking if this makes it through, sent earlier and it was

sent back.....

Debra A Keegan wrote:

Janice: The frustration regarding the delays in academics

is a hard on these kids with this issue. My son almost lost his

mind last year in Grade K when they wouldn't stop pushing the ABC's he

has still not gotten yet. After I took him to a psychologist for an evaluation

because everytime you mentioned the ABC'S he would run away........ he

confirmed this had a negitive impact on him emotionally all th epushing

and him hard working and it still not clicking. He recieved therapy for

anxiety disorder relating to school performance........I loved the psy.

analogy.....................he said quote "If I told you to put your head

in a bucket of water and breath and you knew you couldn't, wouldn't you

become anxious?"..This is not avoidance as we see it but self preservation!!!!!..great

point he had......In therapy he learned to relax and say I am "frustrated"....thank

God he is in a special ed program this year with a wonderful teacher, who

delayed his first spelling test on letter A because she said he was so

nervous about it. She purposely tested him on material he knew to build

his esteem!!!!!!

Debbie in Pa

Janice Odynsky wrote:

hi,i am very happy to see

what i can learn from this group . my son james,10yo, has always

had an aggressive nature.....but now that he is older and larger....he

is much harder to handle during these aggressive times. james is verbal...but

definitely not always appropriately. he of course has problems with interacting

appropriately socially. he is delayed in his academics, which really

is frustrating to him. anyway just a little intro to get me started.

--- Janice Odynsky---

speacial1@...---

EarthLink: It's your Internet.

[Guest guest]

Janice,

Boy I miss the north (and the military) when it comes to intervention and such a great team!! You are well on your way! I see Michigan well represented when I attend conferences throughout the US. I miss our OT and speech days. I am working on it again!

ph has gone and still goes through 'the sillies' and a few other 'non-focusing' behaviors too. I do believe some of it comes with maturity; however, he is 12, and we still have those times. If we are in public (happened in church this past Sunday) I usually whisper to him telling him to think of something else or say a prayer to ask God to help him stop. If we are at home I feed on it by making him laugh harder - tickling, wrestling, playing, etc... Sounds practical, but it works for him. They need to know when it is ok and when it is inappropriate.

I notices you said your son may be ADHD. Many times Aspergers can have some behaviors and/or symptoms of an ADHD child (i.e. not focusing), so be careful.

Marilyn

Mom of ph (12 - Asbergers) and Rebekah (9)

-----Original Message-----From: J. Blessing [mailto:jjblessing@...]Sent: Tuesday, October 16, 2001 1:28 PMautism Subject: [autism] new to groupHi, I'm new to the group. I have a 6 year old sonwith Aspergers, SI Dysfunction and possible ADHD. Heis in a traditional 1st grade class with a 1:1 aidefor approx 1 hr a day with resource room assistance inclass. He also receives speech therapy for pragmaticlanguage and works with a social worker also. I alsohave a 2 year old son who I'm beginning to think hassome of the same traits. Austin (our 6 year old) hasbeen through the sillies also. It is tremendouslyfrustrating but it has seemed to subside within thepast 6 months or so. He has been doing a therapeauticlistening program and I'm not sure if this is thereason. He also does Martial Arts Therapy which hasbeen the single greatest thing he could have beensigned up for. This has helped him tremendously withhis coordination and focus and it gives his a greatfeeling of being with other kids like him. The socialthing is the most difficult, he wants to be with theother kids but doesn't understand how and since weonly received a diagnosis about 6 months ago we've hada slow start with assistance. Anyone with anysuggestions would be of great help. Sorry for goingon just glad to have found this site!Janice (White Lake MI)mom of Austin, 6 and 2__________________________________________________

[Guest guest]

Hi Janice: I am finding more and more late diagnosis. I thought I was

the

only one. My son age 6 was just diagnosed PDD/NOS in April.

I wanted to ask you about the martial arts therapy. I am interested in

this.

I have been thinking about doing something like this for . Could

you

please send me information regarding that........thank

you...........Debbie

in Pa

" J. Blessing " wrote:

> Hi, I'm new to the group. I have a 6 year old son

> with Aspergers, SI Dysfunction and possible ADHD. He

> is in a traditional 1st grade class with a 1:1 aide

> for approx 1 hr a day with resource room assistance in

> class. He also receives speech therapy for pragmatic

> language and works with a social worker also. I also

> have a 2 year old son who I'm beginning to think has

> some of the same traits. Austin (our 6 year old) has

> been through the sillies also. It is tremendously

> frustrating but it has seemed to subside within the

> past 6 months or so. He has been doing a therapeautic

> listening program and I'm not sure if this is the

> reason. He also does Martial Arts Therapy which has

> been the single greatest thing he could have been

> signed up for. This has helped him tremendously with

> his coordination and focus and it gives his a great

> feeling of being with other kids like him. The social

> thing is the most difficult, he wants to be with the

> other kids but doesn't understand how and since we

> only received a diagnosis about 6 months ago we've had

> a slow start with assistance. Anyone with any

> suggestions would be of great help. Sorry for going

> on just glad to have found this site!

>

> Janice (White Lake MI)

> mom of Austin, 6 and 2

>

> __________________________________________________

>

[Guest guest]

> Debra

The Martial Arts Therapy is conducted like a regular Karate Class

only it is for disabled children of all types. The kids learn karate

and earn belts (at their own level of course). Austin has been doing

this for approx 1 year and I have seen the greatest amount of growth

in him for focus, coordination and attitude. He feels like he can do

a sport like all the other kids. From this group we've also made

some good friends and have formed playgroups and just had a hayride

party for the kids. I would recommend something like this. They

have a website for info (http://www.martialarts-therapy.com/).

Something else that Austin just loves (and we've also had great fun

at their social events too) is Therapeautic Horseback Riding.

Depending upon your location this may be difficult to find but well

worth it.

I wanted to ask you about the martial arts therapy. I am interested in

> this.

> I have been thinking about doing something like this for .

[Guest guest]

Debra, the martialarts-therapy sounds great. Is it any where near Dallas? I think Karac would love it. My name is Pat, and I am Karac's grandmother. I have also been in charge of his ABA program for 6 years. He is now nine. Thanks so much for sharing this information. God bless, Pat K

[Guest guest]

Welcome to the group , this the right place to get help and

support. My name is Katy and I have a 4yr and 2yr twins and

Tyler. Tyler has DS. Would love to see pitures of your boys.

Katy

> hi I'm a new mom of twin boys 9-17-01. 1 has ds. Just found this

> group, having a hard time maneuvering. hope to connect with other

> twin ds parents, I think I'm in the right place. Thanks

[Guest guest]

Hello and family,

Welcome to the group. And yes you are in the right place, we all are from

different parts but we share something in common, we have a kid or a baby

with Down Syndrome, that is what makes the list very special. My name is

Mabel Comas, I'm one of the quite ones in here, I don't post often but enjoy

everybodys posts. Iam the proud mom of a 32.5 months old g-b-g, Carolina,

Cristian and a. a has d-s. Something we didn't knew until she

was born, I had a good and a healthy pregnancy. My biggest worry was how she

was going to develop and if she was going to have other major health

conditions. So far all she is been in the hospital for her ear tubes. And

two weeks ago she had her eyes checked and she needs glasses. She came to

our lives with one purpose, only God knows it, as for me Iam very happy I

have her, she is a bless. Again welcome to this list, you will find comfort

when you need it, answers and you will laugh with some of the stories. You

will also enjoy all the loving and caring people in this list. We are here

for you anytime. You take care and have a great day.

Mabel, mom to Carolina, Cristian and a-ds 32.5 months old

>From: kkkow11@...

>Reply-Multiples-DS

>Multiples-DS

>Subject: new to group

>Date: Fri, 30 Nov 2001 12:12:33 -0000

>

>hi I'm a new mom of twin boys 9-17-01. 1 has ds. Just found this

>group, having a hard time maneuvering. hope to connect with other

>twin ds parents, I think I'm in the right place. Thanks

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi , I am also the mom of twin boys. Davey and Will are 21 months. Davey has DS. I also have two girls. Amy is 14 and Kesley is 11. We live in Nevada. This is a wonderful group. You will meet a lot of great people. Looking forward to hearing more about your boys. new to group hi I'm a new mom of twin boys 9-17-01. 1 has ds. Just found thisgroup, having a hard time maneuvering. hope to connect with othertwin ds parents, I think I'm in the right place. Thanks

[Guest guest]

Hi ,

Welcome! I have girl-boy twins who just turned two. has DS, does not. We live in Washington state and I am self-employed from home about 15 hours a week. I raise the kids alone and most days life is GREAT! This is a terrific place to be, with support, answers and people who will celebrate each accomplishment with you. Ask anything and enjoy!

Casey, mom to (DS) and , 2

[Guest guest]

, Welcome to our family.. You have stumbled onto a wonderful group of

people.

I am a quiet one here but read every post. I am , DH(dear hubby),is

Rusty. We have 2 children. They are biological ours. is 8yrs old

(DS) and Dayton is 3yrs old (DS). Although my kids are not twins but 5yrs

apart, some days are like twins.

Again, welcome and if you need anything just ask. We are all here.

[Guest guest]

Hi ,

I'm and have been a member of this group since it began. I have 4

kids. Quinn is 5, Sara and Maggie are 3, and Teddy is 12 months. Maggie

has Down syndrome. She is healthy and doing very very well.

Welcome to the group!.

new to group

> hi I'm a new mom of twin boys 9-17-01. 1 has ds. Just found this

> group, having a hard time maneuvering. hope to connect with other

> twin ds parents, I think I'm in the right place. Thanks

>

>

>

> http://DSyndrome.com/Multiples

>

>

[Guest guest]

Hi and welcome to the group. You sure are in the right place to get

support, advice or some really handy tips! I'm Carolyn from New Zealand.

We don't have twins but have 2 girls with Ds. Emma (5) and Nicki (4) are

the youngest of our 4 kiddies.

Your inbox will never be the same! Congratulations on your babies and I

hope to hear more about them and your family.

Carolyn

Mum to on, , Emma (Ds) and Nicki (Ds)

www.geocities.com/nz_mom/sykesfamily.html

new to group

> hi I'm a new mom of twin boys 9-17-01. 1 has ds. Just found this

> group, having a hard time maneuvering. hope to connect with other

> twin ds parents, I think I'm in the right place. Thanks

>

>

>

> http://DSyndrome.com/Multiples

>

>

[Guest guest]

Hi ! Welcome to the list and we are so glad

you found us!! I'm Judi, Mom to Sam & , soon

to be 5 year old identical twins w/DS (yep, both of

them!).

Wow, your boys are both still very small! I know at

that age they are keeping you very busy. We love

babies, hope you can find time to post some pictures

of them.

Judi

--- kkkow11@... wrote:

> hi I'm a new mom of twin boys 9-17-01. 1 has ds.

> Just found this

> group, having a hard time maneuvering. hope to

> connect with other

> twin ds parents, I think I'm in the right place.

> Thanks

>

>

__________________________________________________

[Guest guest]

dear kristen,

welcome to the group. this group is a wonderful source of everything,

support, knowledge, laughter and appreciation that there are so many people

out there that have things so much worse. i am mom to taylor 7 1/2, triplets

brittany, alexandra, and james (ds) who just turned 2 11-23-01. i am ashamed

to say that i had a real hard time accepting downs syndrome. james was very

sick when he was born so the ds sort of was the last of my concerns. it was

almost like when i would try and help patients with a dying family member. i

was shocked, angry, extremely sad, and then i mourned. i had no help so i

didn't really have time to let it affect me. right now i am totally at peace

with it, he is the most lovable little boy that i ever saw. when i figure

out how to do it i will post his picture. the best of luck to you and your

family. there are some amazing women in this group, i don't know how they do

it, they are an inspiration to me. if i can help please let me know. julie

[Guest guest]

Hi and Family, My name is Pam Houser. I am Mom to 4 kids. My youngest 2 are identical twin girls with DS age 6. I'm glad you found us! I seen the pictures of your twins. They are SOOOO CUTE! Ahh......I remember when mine were that small.

We live in Tennessee and right now it is COLD. I got use to all the warm weather we were having. I don't like the cold much. Where did you say y'all were from? I hope all goes well with the surgery. Keep us posted. WELCOME

kkkow11@... wrote: hi I'm a new mom of twin boys 9-17-01. 1 has ds. Just found this group, having a hard time maneuvering. hope to connect with other twin ds parents, I think I'm in the right place. Thanks

[Guest guest]

Hello Pam and welcome!

This group knows alot Pam. I am fairly new and have learned quite abit. I am

sure you will get some answers to your questions. So ask away. Then I don't

look so lost and get to read all the posts.

Diane (mom to Rochelle ds-5 and Danny 7)