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In a message dated 1/8/01 7:12:43 PM Eastern Standard Time,

MBeerb9414@... writes:

<< Hello,

My name is Marla mother to who is 18 annd has Down Syndrome and

Autism. I am also mother to Trey who is 10 and wife to Harold. I am so

happy to find this group. I have never met anyone with a child with the same

diagnosis as . I am open to any advice that all of you woderful parents

can share with me.

Marla >>

Hi Marla,

I am Donna, Mom to Madison (7, DS and autism). I'm also mom to 4 others

and wife to Joe. We live in Philadelphia. Where do you live?

I am glad you found us too. Although, since you have an 18 year old, I

suspect that we'll be the ones asking you questions.....:)

Welcome!!

Donna

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hey terry,

my dh hooked up dsl for me so we can all be connected and i no longer need

to pay aol.....dsl is sooooooo much FASTER!!! we are all networked so the

kids can use my printer and stuff from their rooms and keeps them OUT OF MY

OFFICE!!!!!!!!thats why i am no longer on aol....hehehe

>From: Imaddenmom@...

>Reply-egroups

>egroups

>Subject: Re: New to Group

>Date: Tue, 9 Jan 2001 00:30:20 EST

>

>Hey Leah,

>Why for the new e-mail address? When I was scanning the posts, I almost

>didn't recognize you!

>Terry

>Mom to , 13 yrs.

>

>

>

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Leah.... dsl? Sounds great! What is it? Sorry to be so " net "

illiterate...

anything that will keep everybody else (including my dh LOL) away from my

stuff is my kind of connection! LOL

Terry

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In a message dated 1/10/01 4:08:02 PM Eastern Standard Time,

okieleah@... writes:

<< hey terry,

my dh hooked up dsl for me so we can all be connected and i no longer need

to pay aol.....dsl is sooooooo much FASTER!!! we are all networked so the

kids can use my printer and stuff from their rooms and keeps them OUT OF MY

OFFICE!!!!!!!!thats why i am no longer on aol....hehehe >>

We just got dsl through AOL. DH has yet to figure it out and hook it up.

We're almost there.

Donna

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Hi Marla,

Welcome to the group. I hope that you learn, learn from some people's

personal life, and just have a good time in this group. Your son is

almost as old as me. I'm 19, and I'm in McKinney, Texas- near Dallas and

Arlington. I'm a college student majoring in early childhood education. I

know someone with Down Syndrome and she might be in middle school I'm not

sure. I can give her parent's e-mail to you if you want to. I've been

babysitting Autistic children for almost 2 years now, and I've been

babysitting for 6 years. I think I might have some questions for you about

. Trey is a cool name, it's already on my baby list.

Sincerely,

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

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welcome Lesley , Don't forget the steps in " Crossing the Abyss " . It will cement success as a result a second time. Kit

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First of all welcome to the group. Next, what's your name? Finally if it

is getting more difficult you may need a change. Change weight exercises,

change aerobic exercises, change diet. A new favorite meal. add salmon

regularly or tuna. Cut your carbs to half a portion in your last two meals

for three days. Add a cardio to your free day for a week. Take a week off.

Have an ice cream cone at lunch for the next five days. Just some thoughts.

Change helps destroy plateaus. Congratulations on your success! It's nice

to have someone join with some experience to share! What have you learned

so far that helps to keep you inspired? All the best! Kit

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My name is Bob. Thanks for the ideas, I change weight exercises every

three weeks. I use the BFL program off their webpage. I will try some

of the meal ideas you gave me. I think the early success helped to

keep me motviated at first. I exercise with a group of guys every

morning and if you miss they let you know about it the next day. I

also have a 5 year old daughter and when I started having blood

pressure problems I realized I needed to change my lifestyle so I

could be around to share in her life as she grew up. I have noticed a

lot of improvement in strength. I also have a greater deal of

endurance. It really has made a difference in my life. I found out

that I could be disciplined in my physical life. I'm 45 and never had

been disciplined before. It is a great feeling. I just want to get

healthy and look good at the same time. Again, thanks for the

response and sharing your ideas with me. Bob

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Go Bob! I have a three year old and at 49 she was a large part of my

motivation to get started and inspiration to keep going! It's nice to

physically have my life back. This is a great program! Kit

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Hi,

Theirs this family that I babsitt. They have I think

a 4th grader who doesn't have any problems, a 2nd

grader that's autistic, 2 cats and a dog. Anyhow,

they addopted a 3 yr old Russian Girl about 4 months

ago. They know that the girl has some developmental

delays and some weight and height issues- and is

dealing with stranger anxiety.

=====

Friends Till The End

__________________________________________________

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Hi

I am also new to this group and my daughters OCD also began in

December last year. My daughter is 11 and also appears to be very

mild (at this point) Apart from the initial period at the beginning

there were lots of tears then ,great distress and a great lack of

sleep, things are quite Ok now. We are doing CBT with a very caring

therapist, the " homework " for it is easy, Our daughter finds no

difficulty facing the rituals and has no anxiety being exposed to

them but she does find facing the " bad thoughts " very distressing.Her

comments to me just yesterday were, that she finds the rituals just

annoying and the thoughts are getting less. She copes at school just

fine anything that she just has to do isnt all that weird and not

noticed by anybody, so either this CBT is working, our therapist

believes we can beat this as we caught it early and we have no need

for medications. Anyway I guess time will tell. OCD is taking up more

of my time than my daughters as I spend a great deal of time on the

computer looking and searching for information. I probably havnt been

much help to you as I'm new but welcome anyway.

Regards Kerrie -

-- In @y..., OlsenGlen@a... wrote:

> Hi everyone,

>

> I have just joined this wonderful group, and wanted to introduce

> myself. My 10 yo daughter was diagnosed with OCD just 6

> weeks ago in January. She's definitely not got a severe case at

this

> time! But we have begun CBT and E/RP to try to catch OCD in its

> tracks, before it gets worse. suffers mostly from an

> exaggerated conscience (an unwillingness to answer any questions

yes

> or no because she's so afraid of lying - the testing with the

> therapist took six hours instead of three!!!Every question is " Um,

I

> don't know, I guess so, but not really, I forget.... " ), a

compulsion

> to " confess " EVERYTHING to me, whether significant or not, and

a " bad

> thought " OCD, which she won't talk to me about anymore, but seems

to

> involve a lot of sexual images. She also struggles with a

> compulsion to go to the bathroom (anybody else with this problem?)

> She had a friend over to play last weekend, and I noticed she was

> going to the bathroom every twenty minutes after the friend came.

>

> We had a " crisis period " with the OCD (I remember exactly when it

> started and when it eased off - December 25 - January 9) when she

was

> in tears almost all day long, every day, it seemed, with these bad

> thoughts, so desperate to get rid of them! That was probably what

> made me start researching and looking for help! We are also

> concerned about PANDAS because of this time, because on December 23

> and 24 she was in bed with a fever and sore throat. My

pediatrician

> says no, it wouldn't have been strep because strep really doesn't

get

> better by itself - it eventually will need treatment. I'm not so

> sure, though. It was weird how the OCD symptoms were exaggerated

so

> quickly on December 25, the day after she felt better.

>

> One more question - by any chance are there any homeschoolers in

the

> group? We homeschool ('s in 5th grade), which I think has

> been good for her OCD (it might have been worse at this point if

she

> was worrying about hiding it in school), but the therapist feels

she

> also has social phobia (She does have trouble making friends, but

I'm

> not convinced it goes that far) and wants us to put her in school

> next year. I always planned on putting her in school at some

point,

> but I did want her home another year or two.

>

> Phew, I'm sorry this was so long! I'm really enjoying all of your

> posts, and learning a lot! Thanks for " listening " .

> --Amy in NJ

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In a message dated 2/26/01 1:56:58 PM Eastern Standard Time,

usercameron7001@... writes:

<< I look forward to reading the posts, and hearing from you all.

Terri (0:

>>

Welcome Terri!

What a wonderful family!!!! You are very blessed. Looking forward to your

posts about Jordan and the gang. I'm sure you have lots of tips to share

with us too! That is, if you have time to share them! You must be kept

pretty busy. :-)

Gail

Gail, Mom to; Seth-5 ds/asd/pdd/pica, jo-8, Becky-10, -23, Jen-25,

Grandma to Errick-4

and wife to -my hero

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Hi Amy,

Welcome to the group! You will find lots of advice and support here. I know I do :o)

>One more question - by any chance are there any homeschoolers in the group?<

Yes, we are homeschoolers. We have been homeschooling for 4 years. I think we have a few other homeschoolers here too. My son was diagnosed with OCD last year.

Please feel free to post to me here on the list or off if you want to. I am still in the learning stages but will try to help if I can.

Take care,

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Hi Tara. Welcome to the group! Just curious, have you read the book

and done the Q & A in Crossing the Abyss and Focusing Your Future

Vision? That is what made the difference for me. I started and quit

twice before I stuck with it to the end last August. The only thing

I did differently was to sit down and really honestly answer those

questions. I read my goals every single day and visit this board

often to stay inspired, even 8 months later.

One other thought, if you are doing cardio every day, you may be

burning out a few weeks into it because of overtraining. A lot of

people have tweaked the program with extra cardio, and actually found

that they get better results just following the 3 days per week that

the book recommends.

As far as frozen meals that fit the right protein-to-carb ratio, just

read the labels and try to find ones that are equal in protein and

carb grams. I use frozen meals occasionally myself for convenience's

sake, but try to stick with whole foods because those frozen dinners

have an awful lot of sodium in them. :)

Good luck to you, and keep us posted on your progress!

Jen B.

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Hi Tara. Welcome to the group! Just curious, have you read the book

and done the Q & A in Crossing the Abyss and Focusing Your Future

Vision? That is what made the difference for me. I started and quit

twice before I stuck with it to the end last August. The only thing

I did differently was to sit down and really honestly answer those

questions. I read my goals every single day and visit this board

often to stay inspired, even 8 months later.

One other thought, if you are doing cardio every day, you may be

burning out a few weeks into it because of overtraining. A lot of

people have tweaked the program with extra cardio, and actually found

that they get better results just following the 3 days per week that

the book recommends.

As far as frozen meals that fit the right protein-to-carb ratio, just

read the labels and try to find ones that are equal in protein and

carb grams. I use frozen meals occasionally myself for convenience's

sake, but try to stick with whole foods because those frozen dinners

have an awful lot of sodium in them. :)

Good luck to you, and keep us posted on your progress!

Jen B.

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Dear Wayne,

You are suffering from a deficiency in vitamins and minerals, with

a toxic buildup that it plugging your lymph (causing swelling).

1) Do a liver cleanse. If you don't have the info, I will email it to you.

2) Start taking 2 oz of flax oil daily, with cottage cheese or yogurt.

3) Take 2 raw eggs daily

4) Take one brewer's yeast tablet with every meal, and niacin

5) Take B12 sublingual tablets

6) Take Flora calcium/magnesium/Vitamin D/zinc, three times per day

7) Take 2 Vitamin E capsules daily, each 400 IU

8) Juice cranberries, oranges, cantaloupe and guava and drink daily. You

might want to mix in the eggs and flax oil and make a smoothie with yogurt

9) Do ozone saunas every other day for two months

10) Eat a big salad at least once a day and put in at least 8 vegetables

besides the lettuce. Put some sunflower seeds and pecans on the top. Use

sunflower or olive oil as dressing.

10) Change doctors and throw away the poison he prescribed.

Best of Health!

Dr. Saul Pressman, DCh, LOH

new to group

> Hello group, I am a 53 y/o male, having problems getting an erection. I

had

> a heart attack in 1991, stress-related. is what the doctor said. He did an

> angiogram that showed 40% blockage in the LAD coronary artery. Since then,

> I have been taking Nitroglycerin 2.5 mg - twice daily, and a coated

aspirin

> once daily. About 6 months ago, my lower legs and ankles started swelling

> pretty bad. I went to the doctor again, and after several tests, he said I

> have the starting of congestive heart failure, which is the cause of the

> swelling in the legs and ankles. He, at that time, started me on

> Hydrochlorothiazide 10mg. - once daily. I haven't been able to get an

> erection since about 8 months ago. I have access to an ozone sauna. Is

> there a way to help this embarrassing situation?

>

> Thanks in advance,

>

> Wayne.

>

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and

other alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here

are for information and research purposes only. We are people sharing

information we believe in. If you act on ideas found here, you do so at your

own risk. Self-help requires intelligence, common sense, and the ability to

take responsibility for your own actions. By joining the list you agree to

hold yourself FULLY responsible FOR yourself. Do not use any ideas found

here without consulting a medical professional, unless you are a researcher

or health care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of

the message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

>

>

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Jim,

You are soooo right on. I have taken my health into my own hands and I swear

I know more than the average doctor out there. It's really sad when you

think about it.

I hope people realize this and stop getting themselves into worst trouble

than need be.

By the time I was 19 years old I had two shoe boxes full of medications I was

taking for various diseases. That year I luckily found the ERA clinic in

Phoenix that follows Edgar Casey treatments. I slowly got off all the drugs

and got my health back. It's been 25 years since then and I have used

allopathic doctors for the stitches, etc., but I have had my babies at home

and use ND's for illnesses over my head. I am the only woman in my family and

a lot of friends that has had easy non invasive births and I am the only one

that has not had complications...no big surprise.

The bottom line is we are responsible for educating ourselves and making

educated decisions, not trusting a medical establishment that is brain washed

and bought out by the drug companies.

Jacqui

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>Hello Fellow BLFers,

>I am new to this group. I started BFL 3 weeks ago. Today was my

>first day of week 4. So far, so good. I have a long road ahead of

>me, but I am highly motivated. My clothes are already beginning to

>get loser even though the scale hasn't moved much at all. I do have

>a few questions if anyone can help: First, if I happen to miss a

>workout (which has only happened once), should I just forget about it

>or should I try to make it up the next day? Also, is it okay to use

>Nautalis or Cybex machines for weights instead of free weights? I

>tend to have better form throughtout the workout using the

>machines. I would be grateful for your opinions about this stuff.

>Thanks.

Welcome to the group!!

If you miss a work out, you missed it. I wouldn't try to make it up. Just

pick up the next day where you left off and chalk it up to a learning

experience.

I'm not familiar with Nautalis or Cybex machines, but I " m sure they are fine

as long as you are hitting your 10s on all the muscle groups. There are a

lot of bowflex users on this list I know. I *personally* like my free

weights. A.) they are cheap and B.) I feel like I get a better work out

with them. I think it's a personal decision myself.

Good luck!

Lana

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Hi <insert name here> and welcome to the group! :) That's great

that you are already noticing your clothes becoming looser. In

answer to your questions... if you miss a workout, just go on to the

next one, don't try to make it up. If you miss one, you miss one, so

what? Just move on and keep pluggin' away at it. As far as free

weights vs. machines, just do whatever you are most comfortable

with. Machines are great to teach newbies the proper form for each

exercise, while free weights work more of the supporting

(or " stabilizing " ) muscles, which makes you stronger overall.

I used machines for about a year when I started weight training when

I was a teenager, then moved to free weights. Honestly I enjoy the

free weights much more, but that's just my opinion. :)

Jen B.

> Hello Fellow BLFers,

> I am new to this group. I started BFL 3 weeks ago. Today was my

> first day of week 4. So far, so good. I have a long road ahead of

> me, but I am highly motivated. My clothes are already beginning to

> get loser even though the scale hasn't moved much at all. I do

have

> a few questions if anyone can help: First, if I happen to miss a

> workout (which has only happened once), should I just forget about

it

> or should I try to make it up the next day? Also, is it okay to

use

> Nautalis or Cybex machines for weights instead of free weights? I

> tend to have better form throughtout the workout using the

> machines. I would be grateful for your opinions about this stuff.

> Thanks.

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Wayne,

I have to agree with Saul, get a new doctor! The one you have is

eventually going to kill you with his advice, and unable to perform, you

will die someday without one of life's few blessings. If you doubt the

truth of what I say, just look at the statistics of men in your

condition following your protocol. How many of them survive or can get

it up?

Many years ago a doctor wanted to put me on tranquilizers &

antidepressants to control migraine. I told the doc, " OK, but I have

read that long-term use of those drugs leads to impotence. I guarantee

that the very first signs of trouble in that area of my life, and I will

stop taking your pills the same day! " It did, and I did. Then, I started

out on my own health quest, and I have been doing better at it than ALL

of the DOCTORS in my life COMBINED!!

To unclog your arteries, drink 5 glasses a day of apple cider vinegar &

honey daily, do the Bragg recipe: unfiltered, unpasterurized, raw honey

& the vinegar HAS to have the " mother " in it. One tsp each in a glass of

water, to taste. Just get Bragg brand vinegar at the HFS when you buy

the UNHEATED honey. INnsist on Really Raw Honey brand, but take what you

can in the meantime. This will clean out your arteries & your kidneys in

about a year, or so. Arterial plaque buildup is a Ph thing. Your Ph has

to be WAY WAY off kilter to be depositing alkalines in the arteries!

I don't know offhand why they give nitroglycerin for heart patients, but

get something else without nitrates, even if it doesn't work as well, so

you can take Viagra, so at least you can boogie til you're well! I had

congestive heart failure and was more impotent than you are. (If the

heart doesn't pump enough blood for the brain, why would it waste any on

genitals?) Viagra is a nuisance in the sense of timing taking it. It

doesn't lend itself too well to spontanaity, but it works gangbusters

until you get your own health back on track!

Another thing I have realized about erectile function in men is this: It

ALL depends on genital micro-circulation! (that's what Viagra does) So,

when a person walks they are concentrating their exercise -- and their

blood flow -- in the nexus of that exercise: the crotch, center of the

walking experience. SO, walking/bicycling as exercise is CRITICAL for a

man to get/keep his erectile function. Need I say more?

I would advise against using herbal viagra substitutes at this point in

your health, because nothing much is known about how they affect YOUR

health condition. I am refering to the more potent ones, like yohimbe,

not adaptogens like ginseng.

A question that answered a lot for me regarding allopathic medical

practices is this: If your auto mechanic never got your car running well

any time you took your car to him, wold you keep going to him for auto

repairs. When I ask this question of people cold, they look at me like I

was crazy! " Of course not! " They invariably exclaim. But, then I ask why

they do that with an infinitely more important vehicle, one they can't

replace -- their body's health?!?!?!?????

If you break a leg, go to an allopath. If you are in a car wreck & get

busted up, go to an allopath. If you swallow an open safety pin, GO TO

AN ALLOPATH! BUT, if you get ANY common disease or disorder, you have to

be a fool to take it to an allopath, except for tests. They are great at

measuring things. They just have NO idea how or why the body works, what

makes it sick, or what can make it well!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

'Nuff said!

When you tell your doctor you can't get an erection, he doesn't really

care. He won't tell you this, because it would hurt your feelings. But,

all he REALLY cares about specifically is that you don't die of a heart

problem on his watch! He considers loss of erections to be part of the

plan for people with heart conditions on his medications. He doesn't

grasp how important orgasm itself is to human health! DOCTORS ONLY PAY

ATTENTION TO THE DISEASE THEY ARE TREATING!!! Which is why they are

almost guaranteed to fail overall.

ONLY YOU are in your body when you are miserable! Only you will be there

when you are happy. As I experience my death rattle, and hear the last

breath expell from my lungs, I want to know I didn't wind up there

because I followed SOMEONE ELSE'S FOOL ADVICE! One fool is enough in my

life!

jim :)

waynetg wrote:

>

> Hello group, I am a 53 y/o male, having problems getting an erection. I had

> a heart attack in 1991, stress-related. is what the doctor said. He did an

> angiogram that showed 40% blockage in the LAD coronary artery. Since then,

> I have been taking Nitroglycerin 2.5 mg - twice daily, and a coated aspirin

> once daily. About 6 months ago, my lower legs and ankles started swelling

> pretty bad. I went to the doctor again, and after several tests, he said I

> have the starting of congestive heart failure, which is the cause of the

> swelling in the legs and ankles. He, at that time, started me on

> Hydrochlorothiazide 10mg. - once daily. I haven't been able to get an

> erection since about 8 months ago. I have access to an ozone sauna. Is

> there a way to help this embarrassing situation?

>

> Thanks in advance,

>

> Wayne.

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

>

>

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Hi Gail, and welcome! Don't worry about your previous attempt at BFL

not working out, lots of people have tried several times before they

are successful. Remember, you are only a failure if you stop trying!

As far as workout times, I would do it whenever you are least likely

to flake out on it from being tired or stressed, which would probably

be before work, even though you work nights. Another thing to

remember, the better health you are in, the more energy you will feel

and the more quality your time with your family will have.

As far as meals go, there are lots of options. Here are a few

proteins that I use: chicken (just like you), salmon, tuna, cottage

cheese, Myoplex shakes, MRBs (meal-replacement bars like EAS' Simply

Protein, Labrada Lean Body bars, etc.), protein powder, and

*occasionally* lean hamburger, lean steak, low-sodium lunch meats.

For carbs, I stick to fruits, yogurt, milk, brown rice, and

*occasionally* whole wheat bread, whole wheat tortillas.

Keep us posted on your progress Gail and feel free to ask any other

questions you have! Hope this helps.

Jen B.

> Hi everyone

> I'm new to the group I tried the bfl program last year and because

of

> work stress I gave up. I know I broke the promise to my self and I

> didn't feel very good about that. I had lost 10 lbs,and when I gave

> up I gained 25lbs. I work nights and have a hard time sleeping and

> scheduling time with my family. I don't know if I should schedule

my

> exercise after work or before work? Anyway today I couldn't sleep

so

> I ran on the treadmill this afternoon. It's a start anyway.I am

> hoping for advice on meals. I ate a lot of chicken and wild rice

last

> time and I really need more variety.Any suggestions?I can't eat

much

> carb or I gain weight very fast.

>

> Gail

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Hi Gail, and welcome! Don't worry about your previous attempt at BFL

not working out, lots of people have tried several times before they

are successful. Remember, you are only a failure if you stop trying!

As far as workout times, I would do it whenever you are least likely

to flake out on it from being tired or stressed, which would probably

be before work, even though you work nights. Another thing to

remember, the better health you are in, the more energy you will feel

and the more quality your time with your family will have.

As far as meals go, there are lots of options. Here are a few

proteins that I use: chicken (just like you), salmon, tuna, cottage

cheese, Myoplex shakes, MRBs (meal-replacement bars like EAS' Simply

Protein, Labrada Lean Body bars, etc.), protein powder, and

*occasionally* lean hamburger, lean steak, low-sodium lunch meats.

For carbs, I stick to fruits, yogurt, milk, brown rice, and

*occasionally* whole wheat bread, whole wheat tortillas.

Keep us posted on your progress Gail and feel free to ask any other

questions you have! Hope this helps.

Jen B.

> Hi everyone

> I'm new to the group I tried the bfl program last year and because

of

> work stress I gave up. I know I broke the promise to my self and I

> didn't feel very good about that. I had lost 10 lbs,and when I gave

> up I gained 25lbs. I work nights and have a hard time sleeping and

> scheduling time with my family. I don't know if I should schedule

my

> exercise after work or before work? Anyway today I couldn't sleep

so

> I ran on the treadmill this afternoon. It's a start anyway.I am

> hoping for advice on meals. I ate a lot of chicken and wild rice

last

> time and I really need more variety.Any suggestions?I can't eat

much

> carb or I gain weight very fast.

>

> Gail

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Guest guest

Sandee:

what about the BEACH center on disabilities? I don't know if they're big

into the dual diagnosis, but it's worth a call. I think they are on or next

to the KU campus in Lawrence. Ann and Rud Turnbull are the executive

diretors and have a son with autism.

BTW, where are you in KS? I graduated from K-State while my husband was at

Fort Riley.

Are you saying that at age 23 you are seeing a regression for the first

time? What is it that you are seeing in your daughter? Chicoine and

Dennis McGuire from the Adult Down Syndrome Center cite regression as

something they see in adults as the first symptom of some sort of problem

(depression, physical problem, trouble coping with something, and so on).

So if you take her to a doctor, don't accept a glib diagnosis of

alzheimer's Disease, OK?

Let us know a little more about what's going on. Try the Beach center on

disabilities. http://www.beachcenter.org/ See if they can help you find a

direction.

(just found the address on the web page:

The University of Kansas Haworth Hall, Room 3136, 1200 Sunnyside Avenue

Lawrence, KS 66045-7534

Phone: 785-864-7600 Fax: 785-864-7605

beach@...)

Joan

At 09:08 PM 6/14/01 -0700, you wrote:

>My first attempt to send email to this group. Let me know if I'm getting

>through. I have a question for the group: all the info. I've been

>reading relates to children; do any of you know of adult onset autism.

>I'm positive that this is whats going on with my 23 year old daughter. I

>just finished reading the excellent info.from disability solutions by

>Joan and she describes my situation exactly. This is the first time I've

>found anything on whats going on with my daughter. Thanks for any

>assistance and advice. Also, we live in Kansas, does anybody know of a

>medical facility in this area thats dealing with the ds/autism spectrum?

>KU? Help!

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos

of our kids. Share favorite bookmarks, ideas, and other information by

including them. Don't forget, messages are a permanent record of the

archives for our list.

>--------------------------------------------

>

>

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Guest guest

To the new member from Kansas?

Welcome - I am more of a lurker here in Washington DC - mostly due to sheer

lack of time to devote more of it to this list, but I read it all, with my

heart joyous for the accomplishments and positive things we all so need to

hold on to and also with my heart heavy for us that have challenges and our

children most of all that have to cope with so much.

I hope you find this an informative and supportive place. As for Kansas and

resources? There may be many Kansas families out there, but from my

experience with the University of North Carolina at Chapel Hill's

Porter Graham Child Development Center? The connections and mutual respect

and admiration was great for the UK Beach Center. My old boss was and

maintains a deep friendship with Ann Turnbull at the center. Ann has an

autistic son. She and her husband have written many books and headed

research in lots of areas - support among parents and families;

family-centered care practices, etc.

I would encourage you to check out possibilities there.

Good luck and we are all thinking of you and your daughter.

-Ann in Washington, DC

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