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> I am new to this group - and have joined in the hopes of

> getting/giving help. I have a mere 4 weeks left and although I am

> seeing results - am not seeing all of the results I wanted. I am

> having the most trouble in my rear area - and thighs. I have

always

> had cellulite and would love to lose it once and for all -

> Does anyone else need to supplement bfl with extra cardio workouts

to

> help in that area? What has worked for you (any/all with the prob

> I'm talking about) -- any advice is much appreciated! Until then,

I

> just keep on keepin'on - and thanks! Carol

Carol,

Welcome! I remember the when I started BFl a lot of people had

amazing progress weeks 9-12. Many of them posted that suddenly " WHAM "

they noticed changes. As far as problem areas, often times I've

heard the first place we gain weight is the last place we lose it.

I'd be willing to be if you stick to it you'll see the progress

you're looking for. You can always add extra cardio if you'd like

though...I'm usually too lazy :)

Colleen

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Hi Carol,

I had the same problem areas(honestly, I am still working on them).

I do 30 minutes of cardio instead of 10, sometimes making the last

10 minutes a hiit cycle, and sometimes if I am really tired I just

keep my heart rate steady. I believe that Dr. Hussman says on his

website that if your main goal is fat loss, an extra 5-10 minutes of

cardio is helpful. I started doing this the last few weeks of my

C1, and even when I was not doing BFL (I'm now on C2W1D2) I ran like

this. I think it has helped a lot - my legs, thighs and butt are in

much better shape these days. Remember, however, not to tire

yourself out too much - if you are absolutely too sore or too tired

to do another 10, take it easy.

HTH

~~

> I am new to this group - and have joined in the hopes of

> getting/giving help. I have a mere 4 weeks left and although I am

> seeing results - am not seeing all of the results I wanted. I am

> having the most trouble in my rear area - and thighs. I have

always

> had cellulite and would love to lose it once and for all -

> Does anyone else need to supplement bfl with extra cardio workouts

to

> help in that area? What has worked for you (any/all with the prob

> I'm talking about) -- any advice is much appreciated! Until then,

I

> just keep on keepin'on - and thanks! Carol

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Hi Carol,

Welcome to the group. I have had cellulite on the backs of my legs

for a long time. Since the end of my previous challenge it has

started going away. I didn't really do extra cardio -- just keep

working on the weights (concentrating on sqeezing my butt at the top

of the movement when I do squats or dead lifts), building muscle, so

that it burns the extra fat off. It takes a while, but it will go

away.

Just remember that there's no spot reduction. : (

I have always

> had cellulite and would love to lose it once and for all -

> Does anyone else need to supplement bfl with extra cardio workouts

to

> help in that area? What has worked for you (any/all with the prob

> I'm talking about) -- any advice is much appreciated! Until then,

I

> just keep on keepin'on - and thanks! Carol

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  • 2 weeks later...
Guest guest

Hi there,

I didn't see your message but I may have missed it.

I am from the UK, 33 years old and have over 50lbs to lose. I

gained 112lbs during my pregnancy because my thyroid became

underactive. It's on the up now and I am recovered enough from my c-

section to do the program. I am in week 4.

Welcome!

> I sent a message yesterday and didn't get anything back - did I

post

> correctly???

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Guest guest

Hi there,

I didn't see your message but I may have missed it.

I am from the UK, 33 years old and have over 50lbs to lose. I

gained 112lbs during my pregnancy because my thyroid became

underactive. It's on the up now and I am recovered enough from my c-

section to do the program. I am in week 4.

Welcome!

> I sent a message yesterday and didn't get anything back - did I

post

> correctly???

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Hi n,

That is wonderful the change of diet is working so great! I live down here

in New Mexico. My son just turned 16 a couple of monthes ago. Currently,

he is not on any special diet but I do give him those Kirkman vitamins and

flax to offset I hope, the meds he started taking less than a year ago for

aggression. It was a frightening time; having tried all the alternatives, I

turned to a low dose therapy. Such a hard decision but life is so much

calmer around here! Good luck with summer camp!

Sandy

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  • 1 month later...
Guest guest

Welcome Caryn! My son, Jordan, is 4 years, 6 months... DS/ASD/ADHD/MR.

We are in the process of having a battery of testing done on Jordan. We

just got the 3rd confirm of him being ASD/ADHD by a licensed

pscychologist. The first two were from Licensed Clincal Social Workers.

I make a point of naming all of those as labels above more for me to

accept the fact of what is ahead. Up until now, I had honestly hoped

this 3rd guy was going to tell me I was wrong... that Jordan just had DS,

was a little active, but that testings show Jordan does not have ASD or

ADHD... The MR really threw me off.

I know everything will be okay in our house... hearing the news

officially, somehow makes it heaver, but all the same real. Better to

face reality early so we can get the ball rolling in the right direction.

We have not started Jordan on any meds (outside of peracitam for DS). We

are scheduled to see a psychatrist at the end of August, at which time we

will talk with him about meds for Jordan.

Please keep us informed about and the respederol. And again,

welcome.

debby

_________________________________________________________________________

________--

On Fri, 04 Jul 2003 02:06:37 -0000 " cringlis " <cringlis@...>

writes:

> Hi, Just a quick introduction. My son , 5 yo, has just been

> diagniosed with DS/ASD. I have 6 other children ages 1-13 years.

> just started on respederol (sp). I would love to hear from

> other families about their experiences.

>

> Thanks,

>

> Caryn Inglis

> Westminster, MD

>

>

>

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Hi Caryn,

Welcome to the group. It is usually a bit quiet over holidays and weekends. Lots

of kids on the Respederol. When Rochelle was dx'd the doc recommended

respederol. We have not started with medication but it is not ruled out.

Rochelle is pretty much non-verbal but compliant. We had some aggressiveness in

the past but it was probably more communication issues. We are using PECS at

home and school.

You are not to far from us. We are over in Northern Virginia.

Diane (mom to Rochelle 7-ds/asd/celiac)

>

> From: " cringlis " <cringlis@...>

> Date: 2003/07/03 Thu PM 10:06:37 EDT

>

> Subject: new to group

>

> Hi, Just a quick introduction. My son , 5 yo, has just been

diagniosed with DS/ASD. I have 6 other children ages 1-13 years.

just started on respederol (sp). I would love to hear from

other families about their experiences.

Thanks,

Caryn Inglis

Westminster, MD>>>

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Guest guest

Hi Caryn,

Welcome to the group. Just wanted to wish you luck with the med

trials. May your son show some progress with the meds. My son will

soon be 15 y/o this month and he is not on meds at this time. He

was under meds when he was younger but he was not one of those

fortuante ones to benefit out of the meds. I hated the roller-

coaster med route so we're on the alternative route. Not against it

and I'll still keep this optional when needed.

Sounds like you have an experienced physician to follow up this road

and this is a good key area with the med route. Hmm, must be Dr.

Carbone if you're in land. The list has been slow many will come

around with their side of their story.

Just wondering why is your son under meds? Was he having alot of

behavior issues? If so I hope it helps your son to focus and reduce

many issues as he gets older and a relief to your family.

Irma,14,DS/ASD

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Hello all, Wanted to know if any of your kids have been dx'd w/ ADHD,

along w/the DS and the ASD.

Jordan received that dx this week.

I guess I will not jump until I have his medical check done for the

thyroid, etc.

thanks for any replies. debby

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Hi Irma,

Thank you for writing. Basically several things had happened with

recently. has 3 older sisters and 3 younger brothers. He has been

quite abusive...pulling hair, hitting with toys etc. always has to

have an object in hishand and he likes to chant and bang the object in th

air, on the tv the table or other children. We try to make sure that it is

a stuffed toy so that no one or nothing will get hurt. Well his favorite

object is a plastic coat hanger. My 4 yo Danny was on the sofa chewing on

the curved end of Seaaans hanger and decided that he wanted it so he

pushed it into Dannys throat before pulling it out and ripped up the area in

Dannys mouth by the uvula and also bruised his tonsils and adenoids. This

happened at 730 in the morning. Danny is screaming and there is blood

everywhere and SEan is completely in his own world, not realizing that he

had even hurt Danny. Needless to say I spent the entire morning in the

emergency room. Two days later I was in the house changing the baby's

diaper and my 2 yo is screaming at the back door to get in the house because

SEan has the tool that is used to clean the grill with and he is

repetitively banging s face with it.. I t was HORRIFYING. Again

has no clue that he is doing something wrong. A few minutes alter the

phone rings , it is the pediatrician and I am freaking out. She told me to

call Kennedy Kreiger and set up an appt. When I called there Dr. Capone

sent me a questioannaire to fill out regarding DS and ASD. Then I looked

up on line the article from the Disabuilty Solutions -- from there we went

to meet with Dr. Capone who has put on the meds. I read the Disability

Solutions publication on DS and ASD and the descriptions fit to a T. I

also have several friends whose children have DS and I have felt for quite

some time that SEan was different. I am hoping that now we can deal with

SEans autism and help him to be the best that he can be.... I would be happy

if he would stop hurting the other children.

Sorry so long and I apologize for the typos.

Caryn

>From: " mum592001 " <ICANFIELD@...>

>Reply-

>

>Subject: Re: new to group

>Date: Fri, 04 Jul 2003 18:59:06 -0000

>

>Hi Caryn,

>Welcome to the group. Just wanted to wish you luck with the med

>trials. May your son show some progress with the meds. My son will

>soon be 15 y/o this month and he is not on meds at this time. He

>was under meds when he was younger but he was not one of those

>fortuante ones to benefit out of the meds. I hated the roller-

>coaster med route so we're on the alternative route. Not against it

>and I'll still keep this optional when needed.

>Sounds like you have an experienced physician to follow up this road

>and this is a good key area with the med route. Hmm, must be Dr.

>Carbone if you're in land. The list has been slow many will come

>around with their side of their story.

>Just wondering why is your son under meds? Was he having alot of

>behavior issues? If so I hope it helps your son to focus and reduce

>many issues as he gets older and a relief to your family.

>

>Irma,14,DS/ASD

>

>

>

>

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

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Guest guest

Hi Irma,

Thank you for writing. Basically several things had happened with

recently. has 3 older sisters and 3 younger brothers. He has been

quite abusive...pulling hair, hitting with toys etc. always has to

have an object in hishand and he likes to chant and bang the object in th

air, on the tv the table or other children. We try to make sure that it is

a stuffed toy so that no one or nothing will get hurt. Well his favorite

object is a plastic coat hanger. My 4 yo Danny was on the sofa chewing on

the curved end of Seaaans hanger and decided that he wanted it so he

pushed it into Dannys throat before pulling it out and ripped up the area in

Dannys mouth by the uvula and also bruised his tonsils and adenoids. This

happened at 730 in the morning. Danny is screaming and there is blood

everywhere and SEan is completely in his own world, not realizing that he

had even hurt Danny. Needless to say I spent the entire morning in the

emergency room. Two days later I was in the house changing the baby's

diaper and my 2 yo is screaming at the back door to get in the house because

SEan has the tool that is used to clean the grill with and he is

repetitively banging s face with it.. I t was HORRIFYING. Again

has no clue that he is doing something wrong. A few minutes alter the

phone rings , it is the pediatrician and I am freaking out. She told me to

call Kennedy Kreiger and set up an appt. When I called there Dr. Capone

sent me a questioannaire to fill out regarding DS and ASD. Then I looked

up on line the article from the Disabuilty Solutions -- from there we went

to meet with Dr. Capone who has put on the meds. I read the Disability

Solutions publication on DS and ASD and the descriptions fit to a T. I

also have several friends whose children have DS and I have felt for quite

some time that SEan was different. I am hoping that now we can deal with

SEans autism and help him to be the best that he can be.... I would be happy

if he would stop hurting the other children.

Sorry so long and I apologize for the typos.

Caryn

>From: " mum592001 " <ICANFIELD@...>

>Reply-

>

>Subject: Re: new to group

>Date: Fri, 04 Jul 2003 18:59:06 -0000

>

>Hi Caryn,

>Welcome to the group. Just wanted to wish you luck with the med

>trials. May your son show some progress with the meds. My son will

>soon be 15 y/o this month and he is not on meds at this time. He

>was under meds when he was younger but he was not one of those

>fortuante ones to benefit out of the meds. I hated the roller-

>coaster med route so we're on the alternative route. Not against it

>and I'll still keep this optional when needed.

>Sounds like you have an experienced physician to follow up this road

>and this is a good key area with the med route. Hmm, must be Dr.

>Carbone if you're in land. The list has been slow many will come

>around with their side of their story.

>Just wondering why is your son under meds? Was he having alot of

>behavior issues? If so I hope it helps your son to focus and reduce

>many issues as he gets older and a relief to your family.

>

>Irma,14,DS/ASD

>

>

>

>

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

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Guest guest

Diane,

What is PECS???

Caryn

>From: <diane.bennett@...>

>Reply-

>

>Subject: Re: new to group

>Date: Fri, 4 Jul 2003 8:55:42 -0400

>

>Hi Caryn,

>

>Welcome to the group. It is usually a bit quiet over holidays and weekends.

>Lots of kids on the Respederol. When Rochelle was dx'd the doc recommended

>respederol. We have not started with medication but it is not ruled out.

>Rochelle is pretty much non-verbal but compliant. We had some

>aggressiveness in the past but it was probably more communication issues.

>We are using PECS at home and school.

>

>You are not to far from us. We are over in Northern Virginia.

>Diane (mom to Rochelle 7-ds/asd/celiac)

>

>

> >

> > From: " cringlis " <cringlis@...>

> > Date: 2003/07/03 Thu PM 10:06:37 EDT

> >

> > Subject: new to group

> >

> > Hi, Just a quick introduction. My son , 5 yo, has just been

>diagniosed with DS/ASD. I have 6 other children ages 1-13 years.

> just started on respederol (sp). I would love to hear from

>other families about their experiences.

>

>Thanks,

>

>Caryn Inglis

>Westminster, MD>>>

>

>

>

>

>

>

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Guest guest

Diane,

What is PECS???

Caryn

>From: <diane.bennett@...>

>Reply-

>

>Subject: Re: new to group

>Date: Fri, 4 Jul 2003 8:55:42 -0400

>

>Hi Caryn,

>

>Welcome to the group. It is usually a bit quiet over holidays and weekends.

>Lots of kids on the Respederol. When Rochelle was dx'd the doc recommended

>respederol. We have not started with medication but it is not ruled out.

>Rochelle is pretty much non-verbal but compliant. We had some

>aggressiveness in the past but it was probably more communication issues.

>We are using PECS at home and school.

>

>You are not to far from us. We are over in Northern Virginia.

>Diane (mom to Rochelle 7-ds/asd/celiac)

>

>

> >

> > From: " cringlis " <cringlis@...>

> > Date: 2003/07/03 Thu PM 10:06:37 EDT

> >

> > Subject: new to group

> >

> > Hi, Just a quick introduction. My son , 5 yo, has just been

>diagniosed with DS/ASD. I have 6 other children ages 1-13 years.

> just started on respederol (sp). I would love to hear from

>other families about their experiences.

>

>Thanks,

>

>Caryn Inglis

>Westminster, MD>>>

>

>

>

>

>

>

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At 03:25 PM 7/5/2003 -0400, you wrote:

>What is PECS???

Picture Exchange Communication System is a method of augmentative

communication using photos, symbols, or objects.

check it out at:

www.pecs.com

Joan

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At 03:25 PM 7/5/2003 -0400, you wrote:

>What is PECS???

Picture Exchange Communication System is a method of augmentative

communication using photos, symbols, or objects.

check it out at:

www.pecs.com

Joan

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  • 4 months later...

In a message dated 11/19/2003 11:16:02 AM Pacific Standard Time,

nekrosys@... writes:

I've been told in the past,

not so subtlely, that someday my kids would resent the fact I had them,

knowing I had a degenerative neuromuscular disease

::rolls eyes:: I said it was a possiblity.

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Welcome to the group!! I am Kenya mom to three kids. My son has SMA 2

and is now 4 years old. Feel free to email m off line too if you ever

care to chat!! (wouldn't mind talking to you about your job, I am

interested in it as I am a stay at home mom) Anyways welcome and my

email is Kenya@...

Hugs

Kenya

New to group

Hello to everyone. I joined this group in hopes of meeting new people

and

joining discussion with others with similar interests. My father, who

is

58, has had SMA for about 25 years now. I can still vividly remember

when I

was around 11 years old my, father's upper left arm muscle wasted away

(it

seemed to be a very sudden progression at that time, but I don't believe

it

was that sudden). Now, 24 years later, to see him barely able to walk

and

not able to use his hands or arms at all, is so very hard. It is hard

on me

seeing him this way, but at the same time he has been such an absolute

inspiration to me and my family. His wife passed away recently and he

moved

in my house with me, my husband, and my 2 teenagers. Not only does he

have

SMA, but he is also an extremely brittle diabetic (he bounced from the

90's

to the 400's twice today), and he had a stroke this past June. To see

someone go through so much in their life and to still be thankful for

every

minute they are alive is just the most remarkable trait I have ever seen

in

a person.

Anyway, being that I am his primary caregiver and he cannot perform

ADL's,

and the fact that I am a mother of 2 teenagers (ARGGHHH!!!) and work

full

time doing medical transcription (at home - right outside of Dad's

bedroom

door), I sometimes feel trapped in this little world of mine and hearing

from others will probably do me some good. We do have an aide that

comes in

every other weekend to give us a break and I have some really great

friends

who I also try to get out with about once a month, but it is the

day-to-day

routine that just gets monotonous at times.

I've went on enough, hopefully not too much. I look forward to

participating in this group. Thank you all for allowing me to be a part

of

it.

Cheri W.

Greenville, SC

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In a message dated 11/19/2003 2:37:19 PM Central Standard Time,

DeTannous@... writes:

::rolls eyes:: I said it was a possiblity.

You really said that to her? You're a worthless human being Deena.

Amy

Mother to 2 angels

One in heaven 3/26/98, one on earth 9/18/03

Wife and friend to Will 11/03/95

My love, my life, my Olivia!

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Cheri -

I am a 33 yr old wife and mother with SMA II. It is good to hear from a

person who grew up with a parent with SMA. I've been told in the past,

not so subtlely, that someday my kids would resent the fact I had them,

knowing I had a degenerative neuromuscular disease. Especially I'm

interested in hearing how you coped with your peers reactions to your

father and other related topics. As for the day-to-day grind, the

people with SMA get pretty sick of it themselves! :)

Thanks for posting!

--

Jenn Malatesta

--------------

My web page: http://www.isoc.net/brokeninside/nekrosys/

------------------------------------------------------------

Philo of andria:

" Be kind, for everyone you meet is fighting a great battle. "

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DeTannous@... wrote:

> ::rolls eyes:: I said it was a possiblity.

Believe it or not, I wasn't referring to you. Many, many people have

inferred this throughout my life. No need to get defensive about it.

It's just people's opinions after all.

--

Jenn Malatesta

--------------

My web page: http://www.isoc.net/brokeninside/nekrosys/

------------------------------------------------------------

Philo of andria:

" Be kind, for everyone you meet is fighting a great battle. "

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I know that I am probably the very last person who should be

commenting on this, since I have no children, but I just couldn't

help myself :)

Jenn, you brought your daughters into the world with every ounce of

strength and love you have inside you, I can't see how they could

ever resent you for anything :)

Just my .02 cents

>I've been told in the past, not so subtlely, that

>someday my kids would resent the fact I had them,

>knowing I had a degenerative neuromuscular disease.

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-

Thank you very much for your kind words. I do not think my children do

resent me for being disabled. (If anything, I think they resent the

typical rules parents set for kids regarding getting adequate rest,

nuitrition and supervision. <grin>) But I know having a mom in a

wheelchair is a fairly " unique " stressor they have in their lives. (Not

that I'm saying there aren't " unique " positives to it too!) I just want

to be aware and open to their feelings. So when I saw a post from a

person that grew up with a dad with SMA I figured she'd be able to give

me a different perspective.

Take care...

wrote:

> I know that I am probably the very last person who should be

> commenting on this, since I have no children, but I just couldn't

> help myself :)

>

> Jenn, you brought your daughters into the world with every ounce of

> strength and love you have inside you, I can't see how they could

> ever resent you for anything :)

>

> Just my .02 cents

>

>

>

--

Jenn Malatesta

--------------

My web page: http://www.isoc.net/brokeninside/nekrosys/

------------------------------------------------------------

Philo of andria:

" Be kind, for everyone you meet is fighting a great battle. "

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I agree. We often get negatives from all sides. Like I said in my post

just a few minutes ago, I don't think my kids resent me (except for the

usual parenting stuff). I mostly just want to hear the perspective of

an adult who grew up with a parent with SMA. She sounds like a really

nice lady, and I wanted to get some feedback on how the father helped

her, changed her, influenced her to be the person she is today. Heck,

it sounds like she is her dad's primary care giver. That's a dedicated,

self-less, awesome kid in my book! :)

My parents thought my husband married me for my Social Security checks.

Ha Ha! What a windfall for him! After 12+ years of marriage (and two

grad kids they now have to spoil), I think they finally figured out -

" My goodness, he really loves her! "

You go, girl, and kick some butt on the GRE!

Biancucci wrote:

> Jenn (And other sma Moms),

>

> We all know that many of the choices we make (not just to become a

> parent, others as well) will not be supported by society and sometimes

> even our close family and friends.

>

> When i began college i knew people had doubt about me doing so, and i

> could tell even some family members thought it was just " nice how I

> found something to fill my time " and seriously doubted I'd finish. I

> am now done w/ college and was even on the deans list, graduated with

> honors, and am headed to grad school. Me, the " DISABLED " girl, who

> they didn't think could do it was the FIRST in my family to graduate

> from college. Now we are dealing w/ the issue of me moving out. As i

> stated in an earlier email, my parents are against the idea (they say

> because of the person I want to live with) but I know my family well

> enough to know that they arent going to be happy in any living

> situation i choose that is out of their home. in terms of dating,

> they think every man is going to take advantage of me, and i know they

> doubt ill marry. I cant imagine their thought on me having children!

>

> My point is--its unfortunate that sometimes we just dont get the

> support we need. i feel like often times im battling for everything

> in my life, and that nobody takes me seriously. I honestly believe

> that having SMA (or any disability) makes you a BETTER parent--yep,

> thats what I said. think about the lessons our disability has tought

> us, and those lessons your child will learn from you. yes there will

> be obstacles, but that is part of life and learning! you dont really

> get much outta life if there isnt a little bit of struggle. id highly

> doubt your childlren will resent you. If they do get upset, it most

> likely will be like any child gets mad at their parents, like in the

> teenage years. I think they will admire you and love you and be

> thankful they have you as parents.

>

>

--

Jenn Malatesta

--------------

My web page: http://www.isoc.net/brokeninside/nekrosys/

------------------------------------------------------------

Philo of andria:

" Be kind, for everyone you meet is fighting a great battle. "

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Hi. Sorry it took me so long to reply. I haven't been getting the

e-mail so I just went into my groups homepage and saw these posts to

me.

Anyway, to answer your question, I have no resentment towards my

dad, whatsoever. I feel, in a strange sort of way, it was a gift to

have a father like him. Not a gift that he is sick, but a gift in

the inspiration and courage that he has shown to me over and over

again, no matter how tough things get. I have learned more from him

than anyone else ever could teach me.

My dad started showing the muscle atrophy in his upper extremities

in my pre-teens, but he usually hid it in front of others by wearing

certain clothes. In my teens his lower extremities started wasting,

but he could still walk, he just had to be more careful than most of

us. But I really don't think I could speak about how it felt to

have a disabled father, in regards to my friends, because by the

time I was a teenager my parents divorced. My brother stayed with

Dad but I went to live with Mom, so my friends never really got to

know my dad.

My teenage children are actually very proud of their grandfather.

He is in a wheelchair most of the time now, and has a service dog.

They love showing off the dog to their friends and have been open

with their friends about their grandfather's health problems. They

shared quite a few tears with me before dad came to live with us,

but now that he is here they see how strong he really can be despite

all of his limitations and how much he loves life and wants to be a

part of our family.

I better get back to work. I hope I answered your questions. If

not, please let me know. It's great to meet all of you.

Cheri

>

> > I know that I am probably the very last person who should be

> > commenting on this, since I have no children, but I just couldn't

> > help myself :)

> >

> > Jenn, you brought your daughters into the world with every ounce

of

> > strength and love you have inside you, I can't see how they could

> > ever resent you for anything :)

> >

> > Just my .02 cents

> >

> >

> >

> --

> Jenn Malatesta

> --------------

> My web page: http://www.isoc.net/brokeninside/nekrosys/

> ------------------------------------------------------------

> Philo of andria:

> " Be kind, for everyone you meet is fighting a great battle. "

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