Pat

[Guest guest]

Hi, Pat. Are you taking the MTX by injection or orally (I can't remember,

sorry!). And how much if it is orally? I ask because my doctor switched me

to a schedule where I take 3 pills one day, then 2 the next. He said they do

that when a patient has a really bad reaction to taking the pills all at

once. Just thought I'd mention it if it is something ask your doctor about!

Have a good night,

[Guest guest]

> Hi Pat,

> I just read your story. I am so sorry about your loss! I can't even

> imagine the pain you must have gone through. I am glad to hear that

life

> these days is treating you well, and that you were lucky enough to

find

> love again.

>

> Redondo

,

Thankyou (and Kathi) for your caring response....one thing I'd

like to mention here.....even though it was by far the hardest

experience that I have ever faced...it was also the most growing

experience. There is a tremendous growth and strength that comes

from these sort of things happening to someone. I think you grow in

ways that would never be possible in any other way. All I can say is

hopefully I have learned any lessons it was meant to give me and also

that I have had my " share " of those types of growning

experieces....been there, done that and NEVER want to do that

again....But that time in my life was valuable in its own way. I

learned so much about myself and the responses of others. I also

learned who were my true friends and who ran the other way out of

fear of facing me (or the death experience)...you read about it all

the time..the reactions of family and friends at times like

this...it's true what they say...it scares the shit out of people

(esp. when you and your friends are all quite young)....

I think of the past and when I cried and cried at night...sometimes I

think I was mourning losing who I used to be as much as losing my

husband. I changed forever. BUT now I can see it was benificial.

Pat (not trying to bring anyone down....just sharing a little piece

of myself to anyone who might be interested...)

[Guest guest]

---Pat...I am so thankful to you for shareing this story with us.

Even though it was a painful experiance..you have shown me that it

could be gotten through and you are so strong that you did that! You

are an amazing person! And I second what Redondo said..I am so glad

you found love again. AS soon as I catch my breath from one of the

most amazing stories of triumph I have heard...I will tell my story

about my daughter's emergency room problems. But I need to just say

one more time..I think you are amazing and somene I can truly look up

to. I am so glad you got a wonderful attorney and it happened to be

your sister in laws husband! Good for you Pat! I am so glad you are

happy now too. YOu deserve a perfect life fit for a queen!!!

Kathi (who's just another name)

In , " Pat B. " <manitoufs@a...>

wrote:

>

> > Hi Pat,

> > I just read your story. I am so sorry about your loss! I can't

even

> > imagine the pain you must have gone through. I am glad to hear

that

> life

> > these days is treating you well, and that you were lucky enough

to

> find

> > love again.

> >

> > Redondo

>

> ,

> Thankyou (and Kathi) for your caring response....one thing I'd

> like to mention here.....even though it was by far the hardest

> experience that I have ever faced...it was also the most growing

> experience. There is a tremendous growth and strength that comes

> from these sort of things happening to someone. I think you grow in

> ways that would never be possible in any other way. All I can say

is

> hopefully I have learned any lessons it was meant to give me and

also

> that I have had my " share " of those types of growning

> experieces....been there, done that and NEVER want to do that

> again....But that time in my life was valuable in its own way. I

> learned so much about myself and the responses of others. I also

> learned who were my true friends and who ran the other way out of

> fear of facing me (or the death experience)...you read about it all

> the time..the reactions of family and friends at times like

> this...it's true what they say...it scares the shit out of people

> (esp. when you and your friends are all quite young)....

> I think of the past and when I cried and cried at night...sometimes

I

> think I was mourning losing who I used to be as much as losing my

> husband. I changed forever. BUT now I can see it was benificial.

> Pat (not trying to bring anyone down....just sharing a little piece

> of myself to anyone who might be interested...)

[Guest guest]

> That's great news about the suit! However, you are sounding scary

> to me. You are about the sweetest person I know and you want to

> change. Into what? Patzilla?

>

> Marta

> WHo is doomed if Pat isn't nice enough...

~~~~~~~~~~~~``

LOL, Marta the changing has to come from my mind,remember

dr.k saying he can change our bodies,we have to change our

minds, of course mine is only getting better...lol

except for the days I have that are FAT days...LOL

Pat

Who knows that Marta wouldn't have liked the old Pat..lol

[Guest guest]

Pat

Thank you so much...a victory for one is a victory for all! :-)

>From: " chocluv20 " <chocluv20@...>

>Reply-Stillsdisease

>Stillsdisease

>Subject: Re: to anyone interested(SM)

>Date: Mon, 09 Jun 2003 23:02:05 -0000

>

>Congrats...I am so happy for you, it does feel great I know(past

>experience) to be drug free..enjoy every day..and thanks for sharing.

>love Pat from MA

>

>

>

>

>

> > 9 days drug free...feeling pretty good.

> >

> >

> >

> > SM

> >

> > _________________________________________________________________

> > Help STOP SPAM with the new MSN 8 and get 2 months FREE*

> > http://join.msn.com/?page=features/junkmail

>

_________________________________________________________________

Add photos to your messages with MSN 8. Get 2 months FREE*.

http://join.msn.com/?page=features/featuredemail

[Guest guest]

> ---OH Pat..I kind of forgot to reply to you..umm yeah..sorry! I was

> soo happy with feeling better! sorry..truce! whew..now I

straightened

> it out on my end! it's all good. thanks for your post to me.

> Oh..but I did want to tell you something..you said you thought I

was

> a bfl purist when you read my post at first. well I don't really

know

> what that means..but umm....I do follow bfl in it's " pure " form I

> guess? like just meaning I don't tweak the eating part cause I

can't

> for me. but that is me and we all are different..and I appreciate

> that soo much. as long as we don't tell each other what to do..it's

> all good. I don't want someone telling me I can't eat wheat

> bread..just like no one wants me telling them they must!

lol..thanks

> Pat...did I just make sense? if purist means I am forcing someone

to

> do something..ummm..I am not that..lol

> Kathi

> WHELLOOOO from the world below!

>

>I meant " purist " as you said...going BFL in it's pure form. I am

glad we have worked out any problems we may have perceived with each

other. I like whole wheat bread too.....I just wish I could teach

myself to like cottage cheese and to dislike rum and diet cokes....I

would probably see better results...I am slowly getting beter and

better and at the same time becoming stronger...one of thee days I

might actually make it to six " perfect " days../.so far my max has

been 5 " perfect " ones...just a matter of time....sigh....

Pat

[Guest guest]

LOL...soo like..purist is not a bad thing..since like I am not

telling you guys to do it..or like holding a water gun to your head

and making you have free days..lol! right? lol..I am glad to work

this out with you..you are a wonderful encouragement Pat..I would

hate to loose support and friendship from you. thanks for that.

hey..diet cokes aren't bad..just kick out the rum part and you've got

it made there Pat!

and really I think you are doing good! give yourself more credit..I

know you must look like a babeness! i think you are doing better than

you imagine! you haven't ever posted pics though have you? oh..and I

have my days on cottage cheese..I don't like it every day for some

reason..it changes each day! weirdo huh?

Kathi

WHELLOOOO from the world below!

I meant " purist " as you said...going BFL in it's pure form. I am

> glad we have worked out any problems we may have perceived with

each

> other. I like whole wheat bread too.....I just wish I could teach

> myself to like cottage cheese and to dislike rum and diet

cokes....I

> would probably see better results...I am slowly getting beter and

> better and at the same time becoming stronger...one of thee days I

> might actually make it to six " perfect " days../.so far my max has

> been 5 " perfect " ones...just a matter of time....sigh....

> Pat

[Guest guest]

Pat,

hope that you will get rid of this cough soon, and glad that you don't have

pneumonia. I am glad to hear that you had a chest x-ray. Enjoy the cape.

Hopefully it will not rain AGAIN. Rest friend and we will talk to you when

you return.

Love, Sue #2

-- Hi Everyone

Havent been able to keep up with all the posts lately..work and

sleep I think thats all I do..anyway, wanted to let you know I will

be at the Cape rest of this week till Sun night for my daughters

dance competion(maybe Cyn will be there dancing). I have had a

terrible cough even after 10 days on antibiotic..no pneumonia

thankfully had chest xray today..hope I can enjoy some time away

from work and with my family..

hope everyone is well and those of you still stuggling, hang in

there because I do see the light at the end of the tunnel for us all

soon..we will all be tooting our horns soon to say we beat

this..Positive thinking for us all

take care

love Pat from MA

PS I wish I listened to who ever said pack a little at a time and

not all in one night like Im trying to do now..well got to go finish

[Guest guest]

> Pat

>

> 189# is fantastic! Congrats! I wish I could come over and see

the new you!

>

> Hugs

> Kristy

~~~~~~~~~~~~~~~I wish I could come over and see you!!!!

You will get to be here who knows maybe sooner than

you think.... Hope we see you again before next July

Thank you, I never thought I would ever see the day I

was at this weight again...Love this surgery...lol

God's blessings to you

Pat

[Guest guest]

> Check your mail.

>

> Green fried tomatoes? My mom used to make them. Yuck! Too sour

> for me. I love fried zucchini, though. And zucchini bread.

>

> Marta

> I need a big ol' squash right now...slurp!

~~~~~~~~~~~~~

Well now, I will see what I can do about some bread for the

pool party...lol

Pat I also love fried zucchini

[Guest guest]

Pat, at first I thought: Is she trying to sabotage my party?!?

Then I realized you meant zucchini bread!

Marta

Who ate a bagel this morning and is losing a popularity contest

right this minute!

> ~~~~~~~~~~~~~

> Well now, I will see what I can do about some bread for the

> pool party...lol

> Pat I also love fried zucchini

[Guest guest]

> Pat, at first I thought: Is she trying to sabotage my party?!?

> Then I realized you meant zucchini bread!

>

> Marta

> Who ate a bagel this morning and is losing a popularity contest

> right this minute!

>

>

>

> > ~~~~~~~~~~~~~

> > Well now, I will see what I can do about some bread for the

> > pool party...lol

> > Pat I also love fried zucchini

********************************************************************

And what makes you think that bread just because it is made with

zuchini will make any difference in the gas department?

LOL

SinO

[Guest guest]

> Pat, girl, this afternoon Bobbe brought by pictures from the pool

party.

> Girl, you are looking Gooooo-oooo-oooood!!!

>

> Jim

~~~~~~~~~~~~~~~`

Why thank you Jim,now you should see me in my new hair

color>>>> You will just have to come to the meeting and

see for yourself ....Thank you!!!! It is still hard for

me to take a comlplement...I bow my head and thank you

God and dr.k for making this happen

God bless

Pat

[Guest guest]

Good morning, Pat...when are we going to be treated to a photo of this

wonderful pink hair? I think you have style and panache, Lady! Hugs and

blessings,

Ann

[Guest guest]

In a message dated 9/2/2003 12:40:25 PM Pacific Daylight Time,

p_welborn13@... writes:

> Only if someone has a digel camera,which I don't have,,,it really

> is different,but I love it...Should have seen the shower this am

> when washing hair water was really pink...LOL

> Pat

So I guess I'll have to hope that someone takes a camera to the meeting? =0(

I wannnnnnnaaaaaaa see the hair! LOL Hugs and blessings, Ann (Hmmm, Pat

is showering in pink water...sounds sort of romantic...maybe...)

[Guest guest]

> Good morning, Pat...when are we going to be treated to a photo of

this

> wonderful pink hair? I think you have style and panache, Lady!

Hugs and blessings,

> Ann

~~~~~~~~~~~~````

Only if someone has a digel camera,which I don't have,,,it really

is different,but I love it...Should have seen the shower this am

when washing hair water was really pink...LOL

Pat

>

>

>

[Guest guest]

In a message dated 9/14/2003 1:25:30 AM Pacific Daylight Time,

p_welborn13@... writes:

> Just to let you know that they don't work on all of us..

> I ate one and it didn't do a thing for me.No sudden

> urges to the potty or anything...

> Pat

Then they probably won't work on me with my hernia right now -- I have been

eating the fattiest meals trying to change my weight loss and NOTHING happens!

Grrrrr.

LOL

Hugs and blessings, Ann

[Guest guest]

In a message dated 9/23/2003 12:02:59 PM Pacific Daylight Time,

p_welborn13@... writes:

> I am not Kym,but thank you for the beautiful update...My how

> times flys when you are having fun....Life is good and I am

> so happy for you Ann.

> You are a blessing to me and I am sure to alot of us.

> Glad you got a job,Gods blessings to you and your family

> Pat

>

> Hi Pat!

>

> Yes, time sure does pass so quickly -- I want to grab on to the hours and

> savor the moments. My job is working with junior high students in producing

> the school newspaper. Today, one of my boys was such a handful, but he ended

> up in trouble with the principal, and that bothers me. He is a sweetie, just

> less unable to cope with his impulses than the others. Anyway, the point is,

> I used to think this a difficult age group -- I just love these wonderful

> kids (is it because I have more energy to go along with their high energy

> levels)? LOL

>

> Thank you for your kind words, Pat!

>

> Hugs and blessings, Ann

[Guest guest]

In a message dated 10/25/2003 10:33:04 PM Central Standard Time,

mjs93311@... writes:

> Bye, Pat. Go for a walk to something. I hear it is supposed to be

> very hot tomorrow. Hmm..I think I will have to turn the spa on to

> recover from cleaning my kitchen!

>

> Marta

>

>

I saw you guys are getting some heat. We might get our first frost. Kind of

muggy tonight though.

in Bama

<A

HREF= " http://hometown.aol.com/mdl1031/myhomepage/profile.html " >

http://hometown.aol.com/mdl1031/myhomepage/profile.html</A>

Rny to Ds revision 12/03

Down102lbs!!

Thanks to Dr. K!

[Guest guest]

In a message dated 10/25/2003 10:33:04 PM Central Standard Time,

mjs93311@... writes:

> Bye, Pat. Go for a walk to something. I hear it is supposed to be

> very hot tomorrow. Hmm..I think I will have to turn the spa on to

> recover from cleaning my kitchen!

>

> Marta

>

>

I saw you guys are getting some heat. We might get our first frost. Kind of

muggy tonight though.

in Bama

<A

HREF= " http://hometown.aol.com/mdl1031/myhomepage/profile.html " >

http://hometown.aol.com/mdl1031/myhomepage/profile.html</A>

Rny to Ds revision 12/03

Down102lbs!!

Thanks to Dr. K!

[Guest guest]

Hi Pat, I am so sorry your saga continues...I hope they get to the bottom of

this very soon...it must be frustrating for you, as well as frightening and

tiring. You can still claim 16s & 18s for sizes! Hugs and blessings, Ann

[Guest guest]

In a message dated 11/18/2003 9:59:30 AM Pacific Standard Time,

p_welborn13@... writes:

> they just don't know what caused the bleeding,

Oh Pat, my heart goes out to you in frustration over your illness. I'm

praying for you. Hugs and blessings, Ann

[Guest guest]

Thanks for the update, Jo!

[Guest guest]

In a message dated 11/23/2003 1:53:22 PM Eastern Standard Time,

writes:

Can ya all tell me what it is like to have it done the IVIG way is

there any more riskes this way,also is due to start school (5

half day's a week)January 8th so i am also worried about that as it

is the wrong time of the year to go to school for him as he suffers

more with his chest throat more than any thing+viruses.

Any help and advise would be be great form ya all.

Pat

Pat,

My son has been recieving IVIG since he was 4 years old. He has had a port

for 3 years. We go to our local hospital to have it done, since that is what my

immunologist prefers for Kody. Since your son has recieved gammaglobin by sub

q, the risks of reactions etc would most likely be relatively low for him.

The thing is, you can premedicate if necessary, and also go at a very slow rate

t

o begin with and slowly step it up. We have discussed sub q for Kody and have

decided that it just isn't for us. He would not tolerate the needle pokes,

and the whole concept would be harder for him anxiety wise. That is just our

opinion. We go for IVIG every 3 weeks like clockwork. Kody gets to watch

cartoons

all day and be king of the remote, and I get to sit quietly and read or do

hand crafts. Not something I usually have time to do! Kody's port is awesome for

us. It is a decision that each parent has to weigh the pros and cons of with

deep consideration. For us, Kody was a very hard stick, getting his IV in was

a nightmare and he was becoming an emotional wreck over it. The port has

reduced his anxiety tremendously and has come in very handy not just for IVIG

but

for IV antibiotics as well. We are very careful about sterile feilds etc with

Kody when he gets accessed because of the port, and we watch for signs of

infection at all times. Kody's is completely under the skin, so when it isn't

accessed it is completely protected from germs etc. For us, doing IVIG is now a

way

of life, when we first started I thought, gee, do this every three weeks for

the rest of his life??? Wow. But now it's " normal " and I occasionally forget

that not everyone does this! LOL And Kody LOVES going to the hospital, says

he's there to see his " friends " , and will march around to all the desks in

admitting and announce " I'm here! " , he has friends in the gift shop, in the

cafeteria, on all the nursing floors, and most recently amongst the construction

workes working on the new Betty Ford Breast Cancer Ward. It's beeing built

adjacent to the Children's hospital, so he watches them from his window and

waves and

waves. Last time a group of the guys brought him a hard hat of his very own.

Will we ever switch to sub q? I don't know, maybe when he's much older, but

for now we'll stick to the good old IVIG!

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

[Guest guest]

> Bobbe.. thanks for the update on Ed and . Glad Pat is

feeling better after the blood, and hopefully they can quickly find

the source of her problem. Betsy

>

>