Guest guest Report post Posted October 30, 2008 i still cant go to the group Jade Re: hi Hey, Jade! I'm glad you logged on. This is a great group of people from all over the place. As for calling me bossy...she's just sore cuz I kick her butt more often than not in Scrabble. ;-) I think you'll find this to be a good place to ask questions about growing into adulthood, building a career, raising a family...all with a disability. It's helped me a lot and I've made some good friends. Love you...now do your homework before I get in trouble with your dad for distracting you! ;-) > > hey jade, > your aunt is soooooooooo bossy ;-) > i am 45 and have sma 2, and live with one poodle, two hens, and two men in > england > linda > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2008 Hi Jade - I'm old, my son Bryce has SMA - he's 8 - your Aunt rocks so I'm figuring you're pretty cool too! Mitch ________________________________ From: Jade Theriault <radiofinger@...> Sent: Thursday, October 30, 2008 7:52:22 PM Subject: hi Hello, my name is Jade and I'm 14 with SMA 2. My aunt referred me here so I have no idea what I'm doing lol. So...HI!!!! Jade Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2008 Hi Jade, welcome to the list - have fun! Camilla > > > > > > Hello, my name is Jade and I'm 14 with SMA 2. My aunt referred me here so I have no idea what I'm doing lol. So...HI!!!! > > > > > > > > > > Jade > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2008 Hey Jade, I've seen you around a few times - from power soccer or just hanging at your aunt's house. Glad you've taken the initiative to find us here. Welcome to the group! <3Kendra > > > > > > Hello, my name is Jade and I'm 14 with SMA 2. My aunt referred me here so I have no idea what I'm doing lol. So...HI!!!! > > > > > > > > > > Jade > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2008 Hi Jade, Welcome to the group! My name is Kimi and I'm 30yrs old w/SMA 3 but functionally a weak to mild type 2 from PA. Where are you from? Tell us a little about yourself . Kimi }i{ Visit my myspace page and blogs: _www.myspace.com/ksmile96_ (http://www.myspace.com/ksmile96) }i{ " When you're gone, the pieces of my heart are missing you. When you're gone, the face I used to know is missing too. When you're gone all the words I need to hear to always get me thru the day and make it ok. I miss you. " -Avril Lavigne In a message dated 10/30/2008 7:52:58 P.M. Eastern Daylight Time, radiofinger@... writes: Hello, my name is Jade and I'm 14 with SMA 2. My aunt referred me here so I have no idea what I'm doing lol. So...HI!!!! Jade [Non-text portions of this message have been removed] **************Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! (http://pr.atwola.com/promoclk/100000075x1212416248x1200771803/aol?redir=http://\ travel.aol.com/discount-travel?ncid=emlcntustrav00000001) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2008 Heya Jade, my name's Tammia I'm 23 and I have SMA type 2. I love love love music, video games, shopping, and going to the movies =] »-(¯`v´¯)-»†åMmÌå ÄlÈxÄñÃêR»-(¯`v´¯)-» ________________________________ From: Jade Theriault <radiofinger@...> Sent: Thursday, October 30, 2008 7:05:39 PM Subject: Re: hi dang! that was a fast response! i thought itd take days! Jade Re: hi Hi Jade! I'm Amy, 29, type I/II, and mama of two kiddos age 5 and almost 3. I'm a latte addict, love music, and being outside. amy On Oct 30, 2008, at 7:52 PM, Jade Theriault wrote: > > > > Hello, my name is Jade and I'm 14 with SMA 2. My aunt referred me > here so I have no idea what I'm doing lol. So...HI!!!! > > Jade > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 1, 2008 i luuuv videogames! Jade Re: hi Hi Jade! I'm Amy, 29, type I/II, and mama of two kiddos age 5 and almost 3. I'm a latte addict, love music, and being outside. amy On Oct 30, 2008, at 7:52 PM, Jade Theriault wrote: > > > > Hello, my name is Jade and I'm 14 with SMA 2. My aunt referred me > here so I have no idea what I'm doing lol. So...HI!!!! > > Jade > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 1, 2008 im from los gatos ca. i like to write poetry im in choir at my school im agnostic hmmmm...thats all i can think of right now lol Jade Re: hi Hi Jade, Welcome to the group! My name is Kimi and I'm 30yrs old w/SMA 3 but functionally a weak to mild type 2 from PA. Where are you from? Tell us a little about yourself . Kimi }i{ Visit my myspace page and blogs: _www.myspace.com/ksmile96_ (http://www.myspace.com/ksmile96) }i{ " When you're gone, the pieces of my heart are missing you. When you're gone, the face I used to know is missing too. When you're gone all the words I need to hear to always get me thru the day and make it ok. I miss you. " -Avril Lavigne In a message dated 10/30/2008 7:52:58 P.M. Eastern Daylight Time, radiofinger@... writes: Hello, my name is Jade and I'm 14 with SMA 2. My aunt referred me here so I have no idea what I'm doing lol. So...HI!!!! Jade [Non-text portions of this message have been removed] **************Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! (http://pr.atwola.com/promoclk/100000075x1212416248x1200771803/aol?redir=http://\ travel.aol.com/discount-travel?ncid=emlcntustrav00000001) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 1, 2008 thank you! Jade Re: hi Hey Jade, I've seen you around a few times - from power soccer or just hanging at your aunt's house. Glad you've taken the initiative to find us here. Welcome to the group! <3Kendra > > > > > > Hello, my name is Jade and I'm 14 with SMA 2. My aunt referred me here so I have no idea what I'm doing lol. So...HI!!!! > > > > > > > > > > Jade > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 6, 2008 Amy and anyone interested: Damian had a T/A on November 3rd at Mayo Clinic. His doctor said he was recently at a conference that stated the recovery they are seeing from a T/A are 100%, although he said he is a bit skeptical it is 100%. I have a healthy 3 year old and a one year old that is following his brother's footsteps in getting sick a lot as a toddler. Perhaps it's nothing. How many people have more than one child with ? Just curious. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 7, 2008 Hi Our pediatrician also attended the conference. He promised to pay close attention to the topic, he said there are usually a few talks on the topic. Anyhow, he actually texted me during the conference basically to say that he is convinced that T & A will be 100% effective. Please be aware that when I mentioned the T & A to him several months ago (after reading about it on this forum) he looked at me like I had 10 heads!! He also said that he learned that there is a study being done with using higher dose of singulair (30mg), that seems to be effective. He told us that he reccommends that we hold off on the medications until the summer, and he really wants us to consider doing the T & A (especially since will be starting kindergarten next September). Also, when I mentioned that we will be trying the prednisone (as that was rheumotologist's reccommendation to try it a few times), he stressed to us to be sure that it was an actual episode and not a bacterial infection, as there could be complications and cause and an abcsess. Just thought I would mention that as I believe that it is important information. just had an episode and we used the pred. for the first time, he offered to see to be sure it wasn't an infection, but we were confident that it was an episode!! Lckily, the prednisone worked!! Olga Caserta Staten Island, NY Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 22, 2008 > Is there a more superior base which can be used? 190-proof grape or grain alcohol. I like grape alcohol for home and body stuff, and grain alcohol for perfume. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 22, 2008 Hewitt wrote: > Hello my name is and I am a new member to your group. I am new to > aromatherapy and will be doing a cert. 1V in aromatherapy next year. > I have been dabbling with Essential Oils during this last year and now > would like to learn more, hence the cert 1V and also joining this group. > I have made my own body lotions using E Oils and other beautiful oils > and extracts, also a very basic perfume in a Jojoba oil base, which I > use myself. I have read a few books on aromatherapy and can't wait > to start my course next year.. > I was wondering, apart from an oil base for perfume what else can > be used? I have read that you can use vodka. Is there a more superior > base which can be used? > > Hi, ..... Welcome to the Natural Perfumery List. While Aromatherapyand Natural Perfumery (NP) are related, this list is focused on NP, primarily.... You will find, for example, that many of the essences used in NP are *unacceptable* for use in AT....at least as many people teach AT.... While related, AT and NP are a different Way....... As far as a perfume base, ethanol is used more than fixed oil bases in NP........ Ethanol = Ethyl Alcohol = C2H5OH = Booze <G>..... Vodka is ethanol, but as usually sold, its water content is too high for successful dilution of many of the essences. You need at least 150 proof (which is 75%).... 190 proof (95%) is better... I'm not sure how readily that's available to you in Oz..... Anyway....NP concerns the principles of perfumery, under the auspices of *natural* essences, hence the designation 'Natural Perfumery'.... You'd be surprised, but there's a number of folks out there that think for some reason they're doing NP, even though they incorporate synthetic fragrance oils here and there in their work.... I can't figure out whether it's ignorance or deceit..... Anyway, for an NP'er, created or nature-as or any of the other bogus labels for those synthetic essences, by definition, are not Natural Perfumery...or AT,for that matter... I think the differences of NP/AT will clear up for you, when you take your Cert IV in AT.... You will find that aspects of AT and NP coincide....Folks are opinionated about this....some feel they coincide more, and others less... Again...welcome to the NP List.....! -- W. Bourbonais L'Hermite Aromatique A.J.P. (GIA) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 5, 2009 You really are not understanding me here. First off you haven't gotten people in an uproar I don't want anybody mad all of the time. Kindness is a great thing. I'm all for it. > > Just wanted to say sorry for getting everybody in an uproar. i haven't checked my email in a few days so I didn't know what was going on. I was sick over the weekend but doing much better now. Amy, we are just going to have to agree to disagree because I refuse to live my life mad at everybody. Maybe I don't always express mysewlf correctly but I don't think there's anything wrong with showing a fellow human being kindness and to treat them beter than they have treated us. I hope everybody had a great New Year and let's get 2009 off to a great start. Buy someone a drink or dessert. Just kidding! > > > Kemp > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 5, 2009 I hope you are feeling better. Happy New Year to you and Doug as well! Lori > > Just wanted to say sorry for getting everybody in an uproar. i haven't checked my email in a few days so I didn't know what was going on. I was sick over the weekend but doing much better now. Amy, we are just going to have to agree to disagree because I refuse to live my life mad at everybody. Maybe I don't always express mysewlf correctly but I don't think there's anything wrong with showing a fellow human being kindness and to treat them beter than they have treated us. I hope everybody had a great New Year and let's get 2009 off to a great start. Buy someone a drink or dessert. Just kidding! > > > Kemp > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 10, 2009 it is really harder on the caregiver. Sounds like you deserve a break. Jo Lynne Hi Just wanted to check in to let you all know things are going okay for me. My grandma is doing a little better, we finally got her nausea under control. She's still got a lot of problems though. I also wanted to let you know that I will be leaving the group soon. I am turning over taking care of my grandma to my uncle and his wife. I will still be involved, just not living here with her anymore. It has just become more than I can handle. My grandma is a sweet lady, but taking care of her 24/7 with practically no help has been more stress than I can deal with. Over the last couple of months I've begun having a lot of insomnia, I've been eating too much, I've found myself at times getting irritated at her (though I try not to let her know) and I feel I am missing out on life. I'm not saying any of this is her fault- it's not, but I just can't continue to do this. I will be moving out of her house in about 2 or 3 weeks; I will be living with my parents again. I also plan to get a job after taking a couple of months off to recuperate.I will remain in the group for about another week- I'm cutting back all of my online activities to give me more time for other things.It's been good getting to know all of you- you've helped me a lot through a very difficult time in my life. I really appreciate the concern and information I've gotten here. Anyone from here that has my email and wants to stay in touch, feel free to write...I'll answer. Anyone who doesn't have it and wants it, just ask.Bye for now. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 10, 2009 it is really harder on the caregiver. Sounds like you deserve a break. Jo Lynne Hi Just wanted to check in to let you all know things are going okay for me. My grandma is doing a little better, we finally got her nausea under control. She's still got a lot of problems though. I also wanted to let you know that I will be leaving the group soon. I am turning over taking care of my grandma to my uncle and his wife. I will still be involved, just not living here with her anymore. It has just become more than I can handle. My grandma is a sweet lady, but taking care of her 24/7 with practically no help has been more stress than I can deal with. Over the last couple of months I've begun having a lot of insomnia, I've been eating too much, I've found myself at times getting irritated at her (though I try not to let her know) and I feel I am missing out on life. I'm not saying any of this is her fault- it's not, but I just can't continue to do this. I will be moving out of her house in about 2 or 3 weeks; I will be living with my parents again. I also plan to get a job after taking a couple of months off to recuperate.I will remain in the group for about another week- I'm cutting back all of my online activities to give me more time for other things.It's been good getting to know all of you- you've helped me a lot through a very difficult time in my life. I really appreciate the concern and information I've gotten here. Anyone from here that has my email and wants to stay in touch, feel free to write...I'll answer. Anyone who doesn't have it and wants it, just ask.Bye for now. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 10, 2009 it is really harder on the caregiver. Sounds like you deserve a break. Jo Lynne Hi Just wanted to check in to let you all know things are going okay for me. My grandma is doing a little better, we finally got her nausea under control. She's still got a lot of problems though. I also wanted to let you know that I will be leaving the group soon. I am turning over taking care of my grandma to my uncle and his wife. I will still be involved, just not living here with her anymore. It has just become more than I can handle. My grandma is a sweet lady, but taking care of her 24/7 with practically no help has been more stress than I can deal with. Over the last couple of months I've begun having a lot of insomnia, I've been eating too much, I've found myself at times getting irritated at her (though I try not to let her know) and I feel I am missing out on life. I'm not saying any of this is her fault- it's not, but I just can't continue to do this. I will be moving out of her house in about 2 or 3 weeks; I will be living with my parents again. I also plan to get a job after taking a couple of months off to recuperate.I will remain in the group for about another week- I'm cutting back all of my online activities to give me more time for other things.It's been good getting to know all of you- you've helped me a lot through a very difficult time in my life. I really appreciate the concern and information I've gotten here. Anyone from here that has my email and wants to stay in touch, feel free to write...I'll answer. Anyone who doesn't have it and wants it, just ask.Bye for now. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 22, 2009 In a message dated 1/22/2009 8:11:25 A.M. Eastern Standard Time, stuart.mills@... writes: Hi everyone, Just a quick email to introduce myself. I'm Stuart Mills and I am an Information Officer for the UK Down's Syndrome Association (DSA). I have been working for the UK DSA for ten years. Best Wishes Stuart Nice to meet you Stuart. Welcome! **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 11, 2009 Hi , I am LMay livinf in Kansas for now. I was told I had early stage Parkinsons on my birthday in "99" at the age of 49 I had uncles that had it but no aunts so I thought that I was safe. Parkinsons can be in the family with out realizing it. Like a hand twitches or a leg twitches. I have a brother that has it too. And we have had it from birth and had the signs of it just nobody connected the dots. I have just started med's for mine. I do know that you will have to exercise to keep your muscles in the right shape and to eat smaller meals just more often. Good to meet you. may From: cape_may_ocean <cape_may_ocean@...>Subject: Hi Date: Tuesday, March 10, 2009, 10:01 AM Hi I am ,I was dianossed with Parkinsons disease in August of 2003. I was 34 when I was diagnossed. I am currently on meds. I am looking for people to talk to that have the disease since I am the only one in my family that has it. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2009 hi nicole, i dont have what you have, but wanted to say hi, and i hope you find what you are looking for...God Bless From: cape_may_ocean <cape_may_ocean@...>Subject: Hi Date: Tuesday, March 10, 2009, 10:01 AM Hi I am , I was dianossed with Parkinsons disease in August of 2003. I was 34 when I was diagnossed. I am currently on meds. I am looking for people to talk to that have the disease since I am the only one in my family that has it.------------------------------------~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2009 I'm probly way to far away in Ramona,CA.. I'm planning on starting a milk share next year..I have dairy goats..LJPS hi Hi all,My name is Lenny Yoranouw lyoranouwI live in Santa Clara County, California.My family has been buying raw milk, cream and kefir from Organic pastures from wholefood market, I am looking for people in the area who would be interested in forming a coop to buy raw milk direct. If we have enough people, then we can buy wholesale price.Or,is there a coop established in the area already?Thanks.Sincerely,Lenny Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2009 There is a Ramona in San Diego county and one in Sacramento county. Are you in northern or southern California?CarolI'm probly way to far away in Ramona,CA..I'm planning on starting a milk share next year..I have dairy goats..LJPS hiHi all,My name is Lenny Yoranouw lyoranouwI live in Santa Clara County, California.My family has been buying raw milk, cream and kefir from Organic pastures from wholefood market, I am looking for people in the area who would be interested in forming a coop to buy raw milk direct. If we have enough people, then we can buy wholesale price.Or,is there a coop established in the area already?Thanks.Sincerely,Lenny Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2009 There is a Ramona in San Diego county and one in Sacramento county. Are you in northern or southern California?CarolI'm probly way to far away in Ramona,CA..I'm planning on starting a milk share next year..I have dairy goats..LJPS hiHi all,My name is Lenny Yoranouw lyoranouwI live in Santa Clara County, California.My family has been buying raw milk, cream and kefir from Organic pastures from wholefood market, I am looking for people in the area who would be interested in forming a coop to buy raw milk direct. If we have enough people, then we can buy wholesale price.Or,is there a coop established in the area already?Thanks.Sincerely,Lenny Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2009 Hi Carol,I am in northern California.Thanks.-LennyTo: RawDairy Sent: Wednesday, May 20, 2009 10:08:15 AMSubject: Re: hi There is a Ramona in San Diego county and one in Sacramento county. Are you in northern or southern California?CarolI'm probly way to far away in Ramona,CA..I'm planning on starting a milk share next year..I have dairy goats..LJPS hiHi all,My name is Lenny Yoranouw lyoranouwyahoo (DOT) comI live in Santa Clara County, California.My family has been buying raw milk, cream and kefir from Organic pastures from wholefood market, I am looking for people in the area who would be interested in forming a coop to buy raw milk direct. If we have enough people, then we can buy wholesale price.Or,is there a coop established in the area already?Thanks.Sincerely,Lenny Quote Share this post Link to post Share on other sites
