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Hi, .

There is a program called K-12, nationally. http://www.k12.com/

Fox news has a piece on it, click on the website if you want to see the clip.

Depending on the state, K-12 may be considered a public charter school (have

access to credentialed teachers, from home or in classrooms, and a community of

friends for social stuff) or a homeschool (if the state has not yet adopted the

program). I do not believe that ND has adopted K-12, yet. So, right now, it is

probably being used as a homeschool program (pay as you go) in ND.

Some of the states, such as Nevada, are in the midst of adopting K-12 as a

public charter. I am not sure the status of ND but you might want to google

K-12 and call the admistrative office to check the status. It's a reasonable

choice for families that do not feel the " brick and mortar " schools meet their

children's needs, but they are not comfortable flying solo with homeschooling.

mom to Dani, CVID

hello

I am new to your group I have a daughter who is 4 she suffers from

Di Syndrome. She has had 3 open heart surgery's: Interrupted

Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis,

hypocalceimia, asthma, med allergies, t and b cell defincy's due to an

absent thymus gland, port, had a g-tube (that has been removed, they

are now considering IVIG therapy's, It's been an open debate. She has

hyotonia of legs, seizures and more issues to numerous to add. She is

suppose to start kindergarten in the fall now we have a Dr that we see

who say's he doesn't want her in a regular classroom to be exposed to

illnesses. I have sent for all kinds of homeschool information but I

am struggling trying to find = the best homeschool cirriculm for her

as she is developmentally delayed. We currently have a Early

Childhood Special Ed teacher that comes out to our house, Physical

therapy, Occupational therapy, speech therapy for her. Does anyone

know of a good homeschool program we are in ND. I have called our

local school and not to pleased I don't want to go through them I was

considering culvers homeschool cirriculm but am unsure. Please help

if you have any ideas of where to start. w (ND)

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

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hi,

Thanks for the help I have been trying to figure out what to do for

her next year. Is there anyone on the group that home schools their

kids and how do they do the schedule, etc.

>

> Hi, .

>

> There is a program called K-12, nationally. http://www.k12.com/

> Fox news has a piece on it, click on the website if you want to

see the clip.

>

> Depending on the state, K-12 may be considered a public charter

school (have access to credentialed teachers, from home or in

classrooms, and a community of friends for social stuff) or a

homeschool (if the state has not yet adopted the program). I do not

believe that ND has adopted K-12, yet. So, right now, it is

probably being used as a homeschool program (pay as you go) in ND.

>

> Some of the states, such as Nevada, are in the midst of adopting K-

12 as a public charter. I am not sure the status of ND but you

might want to google K-12 and call the admistrative office to check

the status. It's a reasonable choice for families that do not feel

the " brick and mortar " schools meet their children's needs, but they

are not comfortable flying solo with homeschooling.

>

>

> mom to Dani, CVID

>

>

>

> hello

>

>

> I am new to your group I have a daughter who is 4 she suffers from

> Di Syndrome. She has had 3 open heart surgery's:

Interrupted

> Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis,

> hypocalceimia, asthma, med allergies, t and b cell defincy's due

to an

> absent thymus gland, port, had a g-tube (that has been removed,

they

> are now considering IVIG therapy's, It's been an open debate. She

has

> hyotonia of legs, seizures and more issues to numerous to add. She

is

> suppose to start kindergarten in the fall now we have a Dr that we

see

> who say's he doesn't want her in a regular classroom to be exposed

to

> illnesses. I have sent for all kinds of homeschool information

but I

> am struggling trying to find = the best homeschool cirriculm for

her

> as she is developmentally delayed. We currently have a Early

> Childhood Special Ed teacher that comes out to our house, Physical

> therapy, Occupational therapy, speech therapy for her. Does

anyone

> know of a good homeschool program we are in ND. I have called our

> local school and not to pleased I don't want to go through them I

was

> considering culvers homeschool cirriculm but am unsure. Please

help

> if you have any ideas of where to start. w (ND)

>

>

>

> This forum is open to parents and caregivers of children diagnosed

with a Primary Immune Deficiency. Opinions or medical advice stated

here are the sole responsibility of the poster and should not be

taken as professional advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

/messages

>

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Hi ,

I've been homeschooling my kids (now 9 & 12) for more than 2 years. My

12 year old has CVID and I started homeschooling because he was sick all

the time from the germs being passed around public school. Homeschooling

has made an enormous difference in his health.

There are tons of curricula available. One of the best places to start

is " Homeschooling for Dummies. " It gives a great overview of what is out

there. There is very little you need to do with a 5-year-old -- probably

far less than an hour a day of traditional schooling. There are lots of

ways of learning other than textbooks, especially with the really young

kids. Some people follow an " unschooling " approach (based on the beliefs

of Holt) which means just following the child's interests and not

teaching anything formal. You can also pick and choose between more

formal and informal approaches that work for you.

I'd say that there were very few positives from having a sick kid ...

but homeschooling was definitely one of the few. I love homeschooling! I

love the time with my kids and the people we've gotten to know. I never

would have attempted it if it wasn't for my son's health problems, but

it's turned out to be an incredible blessing!

Sue in Phoenix

Mom to (12, CVID, asthma, celiac) and Angie (9, celiac)

" Education is not the filling of a pail, but the lighting of a fire. " --

Yeats

wrote:

>

> I am new to your group I have a daughter who is 4 she suffers from

> Di Syndrome. She has had 3 open heart surgery's: Interrupted

> Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis,

> hypocalceimia, asthma, med allergies, t and b cell defincy's due to an

> absent thymus gland, port, had a g-tube (that has been removed, they

> are now considering IVIG therapy's, It's been an open debate. She has

> hyotonia of legs, seizures and more issues to numerous to add. She is

> suppose to start kindergarten in the fall now we have a Dr that we see

> who say's he doesn't want her in a regular classroom to be exposed to

> illnesses. I have sent for all kinds of homeschool information but I

> am struggling trying to find = the best homeschool cirriculm for her

> as she is developmentally delayed. We currently have a Early

> Childhood Special Ed teacher that comes out to our house, Physical

> therapy, Occupational therapy, speech therapy for her. Does anyone

> know of a good homeschool program we are in ND. I have called our

> local school and not to pleased I don't want to go through them I was

> considering culvers homeschool cirriculm but am unsure. Please help

> if you have any ideas of where to start. w (ND)

>

>

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mbinpa wrote:

>

>

> I have joined this support group because my son is selective IgA

> deficient and I could use some guidance with the thoughts of what the

> future brings his way.

from Dale, Mom to Katy, CVID, age 22 married

Welcome Beth! I don't know how much research you've done so far on

IgA deficiency or how much your doctors understand about it. Doctor

proficiency in the area of PID is extremely varied. So, I want to talk

about several things, just so that you have all the information that I

know to give you.

#1 First of all, we've had some kids diagnosed with IgA deficiency

because the doctors checked their IgA and found it to be missing. What

they didn't check was their IgG and IgM. That's vitally important to

know. Have your doctors checked to make sure that his IgG and IgM are

normal.

#2 Secondly, research a few years ago showed that a lot of people with

IgA deficiency also have low subclasses of IgG. Their total number of

IgG is good, but they are missing subclasses. There are 4 subclasses of

IgG that are testable at this point. So, if that has not been checked,

I highly recommend it.

#3 Make sure that he is being re-tested at least yearly, and possibly

even every 6 months. When my daughter started losing her immune system

at age 11, her numbers were just a little low, then each time we checked

they were lower. Every 6 months they kept dropping until we started IgG

replacement. If he is just in the beginning stages of this, his numbers

may still be changing -- so you need to keep an eye on his test results

to make sure that CVID is not developing.

#4 Finally, in the testing area, has his titers been checked to his

vaccinations? In other words, does his body build a response to

pneumovax vaccine, and tetanus or diptheria? That would be important to

know -- because sometime all the numbers are okay, but the IgG just

isn't working.

Then if you've actually had all the necessary testing and are absolutely

sure that IgA is the only problem -- prophylactic antibiotics, I

believe, is the treatment of choice. Most IgA deficient patients take

antibiotics to PREVENT infections and then add more antibiotics when

there's a breakthrough infection. Also, the use of nasal rinses (I

believe several in the group use the rhinoflow machine)and other

preventative stuff can help you reach a quality of life. But it is not

unusual to have to " over protect " them from infections. Especially if

they are in a bad stage. Each infection weakens their system and if you

are just piggy-backing one infection on top of another, that's a sign

that you need to watch the outside infection possibilities. It's really

hard to isolate and it's extremely hard to watch them be socially

deprived. What I can tell you is that it seems to get easier as they

get older -- just because they can take those precautions themselves.

Finally, remember you are not alone in this. Even though there's no

treatment for low IgA and there IS for low IgG, most of our kids have

both -- so you are in the right place.

So, ask your questions. Be sure and contact the Immune Deficiency

Foundation and ask for their Patient and Family Handbook. That number

is 1-800-296-4433. That book is free and will be shipped to you at no

cost.

Hope that helps,

In His service,

dale

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,

Where are you at in ND??? I live in Mandan...I have a 4 yo with PID,

Not otherwise specified...He has an NK cell defect, hypogamm, selective

antibody deficiency.......we are doing SCIG and he has been better..

I don't post much anymore, as we are better, and I am working full

time...

Let me know if I can help with anything.

,

Mom to ...as above

igh--CAPD, cognitive issues and

Kaitlyn and Libby...healthy

hello

I am new to your group I have a daughter who is 4 she suffers from

Di Syndrome. She has had 3 open heart surgery's: Interrupted

Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis,

hypocalceimia, asthma, med allergies, t and b cell defincy's due to an

absent thymus gland, port, had a g-tube (that has been removed, they

are now considering IVIG therapy's, It's been an open debate. She has

hyotonia of legs, seizures and more issues to numerous to add. She is

suppose to start kindergarten in the fall now we have a Dr that we see

who say's he doesn't want her in a regular classroom to be exposed to

illnesses. I have sent for all kinds of homeschool information but I

am struggling trying to find = the best homeschool cirriculm for her

as she is developmentally delayed. We currently have a Early

Childhood Special Ed teacher that comes out to our house, Physical

therapy, Occupational therapy, speech therapy for her. Does anyone

know of a good homeschool program we are in ND. I have called our

local school and not to pleased I don't want to go through them I was

considering culvers homeschool cirriculm but am unsure. Please help

if you have any ideas of where to start. w (ND)

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We live in wishek. That's neat you are not too far.

Meghan has Di Syndrome, Tcell Defiency, Immune compromised, 3 open heart

surgery's

port, had g tube, DX: Lung diease, heart disease. seizures, asthma, She has

been doing ok

until we went back to the University of MN they are talking open heart surgery

again, we go back again in April for

more tests and possibly IVIG therapy. Still debating it. mom to Matt-6,

Meghan-4 1/2, Carly-3.

<lmschatz@...> wrote:

,

Where are you at in ND??? I live in Mandan...I have a 4 yo with PID,

Not otherwise specified...He has an NK cell defect, hypogamm, selective

antibody deficiency.......we are doing SCIG and he has been better..

I don't post much anymore, as we are better, and I am working full

time...

Let me know if I can help with anything.

,

Mom to ...as above

igh--CAPD, cognitive issues and

Kaitlyn and Libby...healthy

hello

I am new to your group I have a daughter who is 4 she suffers from

Di Syndrome. She has had 3 open heart surgery's: Interrupted

Aortic Arch Type B, ASD, VSD, she has pulmonary stenosis,

hypocalceimia, asthma, med allergies, t and b cell defincy's due to an

absent thymus gland, port, had a g-tube (that has been removed, they

are now considering IVIG therapy's, It's been an open debate. She has

hyotonia of legs, seizures and more issues to numerous to add. She is

suppose to start kindergarten in the fall now we have a Dr that we see

who say's he doesn't want her in a regular classroom to be exposed to

illnesses. I have sent for all kinds of homeschool information but I

am struggling trying to find = the best homeschool cirriculm for her

as she is developmentally delayed. We currently have a Early

Childhood Special Ed teacher that comes out to our house, Physical

therapy, Occupational therapy, speech therapy for her. Does anyone

know of a good homeschool program we are in ND. I have called our

local school and not to pleased I don't want to go through them I was

considering culvers homeschool cirriculm but am unsure. Please help

if you have any ideas of where to start. w (ND)

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Hey Olivia, my name is . Have I met you before? If not, HI!!!

I don't know anything about Hip Dysplasia so I will try to help out

with scoliosis!

No, not all scoliosis is progressive. The majority of infantile

scoliosis cases resolves spontaneously (without any intervention) It

is only a small number whose curves progress. There is also

congenital scoliosis, meaning the child was born with the condition.

A diagnosis for progressive scoliosis can be acheived in three months

by measuring the RVAD (Rib Vertebra Angle Difference) though no one

in Australia uses this amazing technique just yet.

Progressive Scoliosis as I understand it is not painful.

The hospital stay for a distraction is generally only one day. The

day before you will have pre-admission, get x-rays taken etc. The

kids fast approx 12 hours before, and the actual procedure takes

around 1 or 2 hours. Usually you get to go home the same day.

Hope that helps!

Love

>

> Hello ,

> I had a couple questions to ask,if anybody can help me out. I

would greatly appreciate it.

> 1.Is it harder to correct them when the baby has scoliosis and

hip dysplacia?

> 2.Is all scoliosis progressive?

> 3.Do they feel any pain with scoliosis or hip dysplacia?

> 4.How long do they have to stay in the hospital when they get a

cast put on?

>

> Thank You!

> Olivia & Atiana

>

>

>

> Love,

> Olivia G.Ruiz

>

>

> ---------------------------------

> Access over 1 million songs - Music Unlimited.

>

>

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Olivia,

Try emailing Hansen...she is Lily's mom. Lily has the hip displasia as

well. I'm in a rush and will respond to your other questions when I get back

later today.

Noelle (12-2-01)

Ian (8-15-04)

Hello

Hello ,

I had a couple questions to ask,if anybody can help me out. I would greatly

appreciate it.

1.Is it harder to correct them when the baby has scoliosis and hip dysplacia?

2.Is all scoliosis progressive?

3.Do they feel any pain with scoliosis or hip dysplacia?

4.How long do they have to stay in the hospital when they get a cast put on?

Thank You!

Olivia & Atiana

Love,

Olivia G.Ruiz

---------------------------------

Access over 1 million songs - Music Unlimited.

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Hello ,

Thank you so much for taking the time to write me back. All the little things

you and the other girls tell me are very helpful to me.I'm so new to this and I

get kinda freaked out about all of it.I wish our appointment would come sooner

I'm so tired of waiting.It seems like she kinda got a lil more crooked.Her head

is tilting a little bit more to the side now.Well again thank you so much for

your time.

Olivia & Atiana

moniquetiagarcia <moniquetiagarcia@...> wrote:

Hey Olivia, my name is . Have I met you before? If not, HI!!!

I don't know anything about Hip Dysplasia so I will try to help out

with scoliosis!

No, not all scoliosis is progressive. The majority of infantile

scoliosis cases resolves spontaneously (without any intervention) It

is only a small number whose curves progress. There is also

congenital scoliosis, meaning the child was born with the condition.

A diagnosis for progressive scoliosis can be acheived in three months

by measuring the RVAD (Rib Vertebra Angle Difference) though no one

in Australia uses this amazing technique just yet.

Progressive Scoliosis as I understand it is not painful.

The hospital stay for a distraction is generally only one day. The

day before you will have pre-admission, get x-rays taken etc. The

kids fast approx 12 hours before, and the actual procedure takes

around 1 or 2 hours. Usually you get to go home the same day.

Hope that helps!

Love

>

> Hello ,

> I had a couple questions to ask,if anybody can help me out. I

would greatly appreciate it.

> 1.Is it harder to correct them when the baby has scoliosis and

hip dysplacia?

> 2.Is all scoliosis progressive?

> 3.Do they feel any pain with scoliosis or hip dysplacia?

> 4.How long do they have to stay in the hospital when they get a

cast put on?

>

> Thank You!

> Olivia & Atiana

>

>

>

> Love,

> Olivia G.Ruiz

>

>

> ---------------------------------

> Access over 1 million songs - Music Unlimited.

>

>

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Hi Olivia, that's fine! When is the appointment? I know how helpless

it feels waiting for a specialist appointment, all the while watching

your childs spine get worse.

Have you got any exercises to strenghten the back in the meantime? If

not, I can send you some ideas that s physio arranged for

. They are fun and can be done in your lounge room. They were

designed to strenghten the back and torso. I've also got exercises to

help with torticollis. (The neck)

Let me know and I can post them to you or email.

Hang in there. You're doing wonderfully!

Love

> >

> > Hello ,

> > I had a couple questions to ask,if anybody can help me out. I

> would greatly appreciate it.

> > 1.Is it harder to correct them when the baby has scoliosis and

> hip dysplacia?

> > 2.Is all scoliosis progressive?

> > 3.Do they feel any pain with scoliosis or hip dysplacia?

> > 4.How long do they have to stay in the hospital when they get a

> cast put on?

> >

> > Thank You!

> > Olivia & Atiana

> >

> >

> >

> > Love,

> > Olivia G.Ruiz

> >

> >

> > ---------------------------------

> > Access over 1 million songs - Music Unlimited.

> >

> >

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Hi Olivia,

, Lily's mom. has experience with scoliosis and hip dysplasia. Hopefully

she'll chime in.

I'm sure everyone else has answered all the other questions for you.

Olivia Ruiz <oliviagruiz2006@...> wrote:

Hello ,

I had a couple questions to ask,if anybody can help me out. I would greatly

appreciate it.

1.Is it harder to correct them when the baby has scoliosis and hip dysplacia?

2.Is all scoliosis progressive?

3.Do they feel any pain with scoliosis or hip dysplacia?

4.How long do they have to stay in the hospital when they get a cast put on?

Thank You!

Olivia & Atiana

Love,

Olivia G.Ruiz

---------------------------------

Access over 1 million songs - Music Unlimited.

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Hi ,

My appointment isn't till next Wednesday on the 17th. No I haven't got

anything from the doctors! I would love if you could email me some excersises

to do with Atiana. I would greatly appreciate it.

Olivia & Atiana

moniquetiagarcia <moniquetiagarcia@...> wrote:

Hi Olivia, that's fine! When is the appointment? I know how helpless

it feels waiting for a specialist appointment, all the while watching

your childs spine get worse.

Have you got any exercises to strenghten the back in the meantime? If

not, I can send you some ideas that s physio arranged for

. They are fun and can be done in your lounge room. They were

designed to strenghten the back and torso. I've also got exercises to

help with torticollis. (The neck)

Let me know and I can post them to you or email.

Hang in there. You're doing wonderfully!

Love

> >

> > Hello ,

> > I had a couple questions to ask,if anybody can help me out. I

> would greatly appreciate it.

> > 1.Is it harder to correct them when the baby has scoliosis and

> hip dysplacia?

> > 2.Is all scoliosis progressive?

> > 3.Do they feel any pain with scoliosis or hip dysplacia?

> > 4.How long do they have to stay in the hospital when they get a

> cast put on?

> >

> > Thank You!

> > Olivia & Atiana

> >

> >

> >

> > Love,

> > Olivia G.Ruiz

> >

> >

> > ---------------------------------

> > Access over 1 million songs - Music Unlimited.

> >

> >

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Hi Bert,

You already know I have something to say about this...

heehee...

<<It is important as I know that while Bridget does

have Ehlers Danlos (probable) and one wedge shaped

vertebrae and a leg length difference Dr D still calls

her scoliosis idiopathic with contributing factors.>>

My guess is (this is a non-scientific, lay-person

speaking) that the wedge hemi is not the CAUSE of the

scoliosis. Bridget's scoli is a total, full spine

scoli, not just an isolated scoli caused by the wedge.

So, because the wedge is not causing the scoli, it is

idiopathic because there really isn't a cause, not

congenital. The connective tissue disorder (CTD)

means the scoli is a symptom of the CTD. Maybe to

some it could be classified as an " other " scoliosis

(not congenital nor neuromuscular, which are the two

main groups they use). Basically her scoli is just

what Dr. D said - " idiopathic with contributing

factors " that make the scoli more

prominent/pronounced. How's that for confusion?

Carmell

Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 16, GERD, and

Braydon 11, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient

#137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies,

missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96,

1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, pes cavus,

SUA, GERD, Gastroparesis, etc. http://carmellb-ivil.tripod.com/myfamily/

Congenital scoliosis support group

CongenitalScoliosisSupport/

________________________________________________________________________________\

____

Cheap talk?

Check out Messenger's low PC-to-Phone call rates.

http://voice.

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Thanks Carmell,

And, as usual, you really have a way of explaining the confusing in simple

terms. It really is just as you say and Bridget's scoliosis falls into a " grey "

area. However the combination of casting and bracing is working well for her so

far as well as exercise so we are achieving our goal of trying to avoid surgical

intervention at this stage.

Whether or not the contributing factors allow her to be permanently corrected

is still anybody's guess. We will wait and see.

OUr Summer holidays arr drawing to a close here and our new school year starts

at the end of this month. As a teacher and a mum I love school holidays, they

will soon be over.

Love Bert

Carmell Burns <cjbmom23@...> wrote:

Hi Bert,

You already know I have something to say about this...

heehee...

<<It is important as I know that while Bridget does

have Ehlers Danlos (probable) and one wedge shaped

vertebrae and a leg length difference Dr D still calls

her scoliosis idiopathic with contributing factors.>>

My guess is (this is a non-scientific, lay-person

speaking) that the wedge hemi is not the CAUSE of the

scoliosis. Bridget's scoli is a total, full spine

scoli, not just an isolated scoli caused by the wedge.

So, because the wedge is not causing the scoli, it is

idiopathic because there really isn't a cause, not

congenital. The connective tissue disorder (CTD)

means the scoli is a symptom of the CTD. Maybe to

some it could be classified as an " other " scoliosis

(not congenital nor neuromuscular, which are the two

main groups they use). Basically her scoli is just

what Dr. D said - " idiopathic with contributing

factors " that make the scoli more

prominent/pronounced. How's that for confusion?

Carmell

Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 16, GERD, and

Braydon 11, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient

#137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies,

missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96,

1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, pes cavus,

SUA, GERD, Gastroparesis, etc. http://carmellb-ivil.tripod.com/myfamily/

Congenital scoliosis support group

CongenitalScoliosisSupport/

__________________________________________________________

Cheap talk?

Check out Messenger's low PC-to-Phone call rates.

http://voice.

---------------------------------

Don't be flakey. Get for Mobile and

always stay connected to friends.

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  • 2 weeks later...

Hi Carol! Welcome to this wonderful group. You will find lots of

people to motivate you here. Knowing that you have to post your

workout makes you get up and do at least a little something.

That's wonderful that you've been married for 19 years and have 3

wonderful sons. My youngest will be graduating, this year as well,

and I have a 20 year old who is out on her own. Your son's graduation

will be so special, they all look so good in their suits and grad

gowns you feel so proud.

I've heard a lot about the Turbo Jams and that they are good workouts.

I'm so tempted to get one off eBay to see if I like it, trouble is I

probably will and will want the whole set! Walking is good exercise

too, your dog is a great workout partner for that.

Like you most of my weight is on my belly, thighs and hips, bottom

heavy I guess is what they call it. I'm not an expert, but there

aren't any specific exercises to loose abdominal fat, that needs to be

taken care of with diet. Of course weight lifting will build muscles

which will burn more calories. I found that I lost about 10 lbs a

couple of years ago, when I cut sugar out of my diet. Sorry I can't

tell you how long that took I should have kept track, but I do know

you can significantly change the way your body looks in a few months.

Good luck to you, and it's nice to meet you. I look forward to

hearing about your workouts.

Kerry

Carol wrote:

| Hi everyone!

|

| I am new to this group. I really need something to keep me on track

as

| far as working out and think this group will help.

|

| A little bit about me, I am 37, married for 19 years, and have 3

sons

| (18,15, and 6). I would like to lose 15 pounds by my sons

graduation

| in May. I have had the Turbo Jam videos for a while, but never

stuck

| to them. Yesterday I did the Ab Jam for the first time. I liked it

| and felt like I was able to keep up fairly well, although I did

follow

| the " low intensity " girls. Then I took the dog to the park and we

| walked about 3 miles. I love to walk!

|

| Most of my weight is sitting on my belly. DS6 thinks I am going to

| have a baby! Any suggestions for losing belly fat and toning up the

| abs? How often should I do the Ab Jam workout to see results. I

plan

| to keep walking at least 2 miles a day and will shoot for 3

miles--just

| depends on the weather and my schedule. Also, my abs are not sore

this

| morning, should they be?

|

| Carol

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hi carol !! welcome to the group, it is nice to meet you here. im

carolyn, age 43, in ontario canada. ive been out with a cold for

the last 4 days so im sorry that im late in welcoming you.

> Any suggestions for losing belly fat and toning up the

> abs?

it all comes down to a well-rounded health/fitness program -- burn

more calories than you consume by eating a healthy diet and doing

cardio, strength training and flexibility training. belly fat is

no different than fat anywhere else on the body. you cannot spot

reduce it.

> How often should I do the Ab Jam workout to see results.

ab jam is a good workout and is great for gaining strength in the

core and will tighten things up a bit... i would alternate the

standing and floor segments each day... or do the whole workout 3

times a week... it is hard to say what would work best for you,

everyone is different. you should experiment to see what you need

to do. also, it helps to have a variety of workouts to do. i would

get bored just doing ab jam all of the time, and after a while your

body will adjust to it.

> I plan

> to keep walking at least 2 miles a day and will shoot for 3 miles

that is very good... walking is great exercise. be sure to keep it

challenging though by increasing your pace, pumping your arms,

lengthening the duration. i enjoy using audio workouts while

walking... either fast music or coached workouts.

>Also, my abs are not sore this

> morning, should they be?

are you concentrating on holding your abs tightly while you are

doing your ab workout? think of bringing your belly button in

towards your spine and then pulling up on it a bit... attempt to

hold this for the whole workout. also tighten your abs while

walking and throughout the rest of your day.

:*carolyn.

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>

> I am new here and looking for some advice. My daughter is 2 and has

> been recieving therapy for sensory integration, speech delays and

> motor issues. She is starting to talk, but has frequent long fits

and

> is very difficult to calm down. She repeats one word over and over

and

> if I do not understand it she will have a melt down. She also seems

to

> like to bang her head and run into things. She will hit them hard

> enough to bruise and doesnt seem phased by it. She is registering a

> 6-8 month delay in most areas. Recently her OT has been commenting

> that we might want to have her evaluated for autism. I wasnt sure

how

> I go about this, my fear is that she will either be wrongly

diagnosed

> with it, or wrongly diagnosed that she doesn't have it.

>

> I guess I am just trying to see if this sounds like we might be

> dealing with autism and looking for any advice or tips. I am finding

> it so hard dealing with her daily, she requires so much attention.

> thanks!

>

I'm sure this reply is a little late to help you but I went through

something similar. When my son was 2 they tested him for everything

from deafness to a disorder where he can't feel pain. Even though

autism was not the answer we wanted at least we got an answer

finally. My prayers are with you because although the diagnoses is

hard, not knowing was harder.

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first off here is what i answered another mother worrying about having another baby after a child with autism

I AM A 35 YEAR OLD MOTHER OF 4 KIDS MY OLDEST IS AGE 15( A SON) ,MY NEXT 2 KIDS (BOTH SONS) ARE 13,11 THEY ARE BOTH HF AUTISM,MENTAL RETARDATION AND A FEW OTHER THINGS FOR THE ONE. WELL BEFORE I HAD MY 4 TH CHILD SEVERAL PEOPLE WOULD TELL ME THEIR THOUGHTS ON MY HAVING ANOTHER KID MOST WERE GOOD THOUGHTS BUT ONE STOOD OUT AT ME .SHE TOLD ME I SHOULDNT HAVE ANYMORE CUZ LOOKING AT THE 2 BOYS I WILL PROLLY HAVE ANOTHER CHILD LIKE THAT AND IT WOULD BE TO HARD TO HANDLE .I KNOW SHE MEANT WELL THINKING ABOUT ME NOT BEING ABLE TO HANDLE 3 SPECIAL NEEDS KIDS ,BUT TO FEAR HAVING ANOTHER CHILD FOR A "MAYBE" FEAR .THERE ARE NO GUARANTEES ANYONE WILL HAVE A HEALTHY PERFECT CHILD . I KNOW IT IS A WORRY I KNOW I PRAYED EVERYNIGHT PLEASE GOD DO NOT HAVE HER HAVE ANY DISORDERS WELL MY 4 TH CHILD CAME AND MY PRAYER WAS ANSWERED SHE IS DEVELOPING GOOD SHE IS 4 NOW SHE IS VERY SMART AND ALERT AND QUICK TO LEARN .IF I

WOULD OF LISTENED TO THAT WOMAN AND NOT HAVE ANOTHER I WOULD NOT KNOW THE JOYS OF HAVING MY DAUGHTER .

as to the schooling just do what you think is best for your son if that is home schooling then do it .as to long term it may get harder .not sure what to say .

you can go to a special needs school .

well you can vent all you want it is what we are here for to listen and to help if we can . good luck

Hello

Hello,I am not sure if anyone is still here that was last year. A few years ago I thought my son was Aspergers... .but the doctor diagnosed him with sensory integration disorder until 2 weeks ago. Now, he is pdd-nos. I am told that he presents as an aspergers child but that he had a speech delay....so for now he is pdd-nos.I have been homeschooling my son since November. He is 6 1/2years old.He was doing fantastic in school in September, so without changing the IEP :( they put him in recess and the cafetaria. Needless to say, he fell apart quickly. I asked the staff if a child was in need of an artificial leg....and walked well on it; do they remove it without a PPT????????? ????????? ?They never believed that he was autistic because "he knows better" and "he is so high functioning" .....should be music to my ears but it makes me sick instead. It implies that either he is "BAD" for the fun of

it or because I don't parent correctly... ..even though I have two other children who don't take off their clothes and scream when overloaded.So they wanted to place him in a small enclosed classroom that was...well, to make this short- UNBELIEVABLE.SO now we are homeschooling.Caleb(my son) is doing INCREDIBLE. Learning quickly, socializing better....fewer meltdowns and noncompliance. ....(they are almost totally gone)Me, I am a little tired.....I work 4 days a week (weekends) in a residential treatment facility for teenagers... .I have a 19 year old in college...and a 3 year old. My 15 year old foster son blew out of our house last night, taken by cops to the hospital from his extended day program. He was diagnosed bipolar and conduct disorder.... .and refuses to take his meds :) I am grieving his leaving us....we can't keep him safe when he doesn't take his meds and see his

clinician.I just found out 2 days ago that I am 5 weeks pregnant.I am very very tired.I worry about having another miscarriage, I worry about the child being autistic and more difficult than Caleb....I don't have any time to myself and would love to go out with "the girls" but with our schedule, there is never an evening free and there isn't really of group of "the girls" anymore..... over time my focus became different than theirs.I must sound like a nut, I just need to vent with people that understand.. .........Does anyone else homeschool? When I was reading about the bullying and fighting for IEP stuff, it made me exhausted. I have been fighting the school and attending PPTs since Caleb was 4....I can't fight them and have enough energy for Caleb. Homeschooling is easier for me for now...but I wonder about the long term......Did anyone else have children after a diagnoses of

autism? I have a 3 year old daughter that doesn't dislpay any symptoms so I should not worry; I just can't help it. I know that there is some kind of genetic link to autism. Should've thought about that before I got pregnant.... .....but don't get me wrong we are also happy to be adding to our family...more than we worry.thanks for letting me vent,Jane

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Hi Jane, I can see why you are exhausted. You certainly have a lot on

your plate! My son, 14, Asperger's, has been Home Schooled since he was

10. It has worked out well for us. After just a year and a half of

dealing with the Public School environment, which was never going to

work for our son, we brought him home. I had to undo lots of problems

including Ps. methods, or lack of, when it comes to math. My son can now

add or multiply numbers in the thousands, where as in fifth grade he had

to think about 4+5. Keep him home until another option opens up.

Possibly in new school will open in your area. Good luck, Gail A.

I have been homeschooling my son since November. He is 6 1/2years

old.

Does anyone else homeschool? When I was reading about the bullying

and fighting for IEP stuff, it made me exhausted. Jane

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Hi Jane, Carol and Gail

I am a mother of a 9yr old Aspie

that has current social issues going on at school. I read your post. I don’t

want to make anyone exhausted here by giving you the details etc. I merely want

your perspective. I know it’s a choice (public/home school) based individualized

and personal opinion of the child. At the same time I am keeping in the back of

my head a few things that concern me.

I also know public school

causes problems socially and works on the self esteem when in a public school.

(I know this too well). All kids with Aspergers have this problem. However, I

would like to know what your thoughts are and what ways do you get your child

into “social” environments. I have this nagging thought if I take

my son out of school, home school or private school (which is rare here) how

will he adapt to life outside school if he is home schooled? I know some home

schools have social activities but it’s not the same as a daily class

room.

I know that’s a part of Autism

and a choice everyone has the option to choose, I do not down grade it what so

ever, I am just trying to understand and clear my head of a few things that concern

me. I think if I subject him to the general public and public situations maybe

he learns to “mimic” but taking further steps in preventing just mimicking

and actually learning what it takes to make friends, keep them etc., keeping

him interested in school work. I think I would have the same issue as getting

him focused at home than being in an environment to learn. Atleast there is one

point for public school; he knows what he goes there for.

As for me, (not everyone) I think that would

be as big of a headache itself because what the teachers do is teach. Usually

the issues of school that I have found is other kids, lack of understanding

from there teachers. The key here is: getting them focused, the teachers, principle

and parents as a “team” (which is what an IEP is) to work closely

and come up with solutions and new ideas to adjust. To be honest, the first

school my son attended, the teachers did NOT get it. The teachers are part of

the general public.

Aspies need to be socially equipped

(taught) which is what all Aspies need in the long run. I also think this comes

from an outside source such as social groups, home and school. Maybe I am wrong

but, if we want our kids to be as normal as normal gets, then I say it’s

just as much work to home school. I believe the earlier the better for these

kids in social environment because if you take them out now of public schools

(again not for all Autistic kids) then how do we expect them to adapt to the

public after home school?

IN all cases, I believe having “troubles”

at school is not always the Childs fault, it’s the lack of understanding,

communication that the teachers. Which brings me to this point, if we all keep

our kids home (and I’M not saying you should or anyone else should) then

the knowledge of Aspergers/Autism still doesn’t get attention. In my

community the serious lack of knowledge is horrible! This may play a part in my

thinking to. I don’t want my son to go through horrible situations just

to make the public aware, I just think that when it comes to public schools

they need to make adjustments, such as having teachers that completely understand

autism. Public schools can be a great place if it’s handled properly and

parents and their children are the ones that start this when you sit down at a

school meeting.

My point im trying to make is not all

about public awarness but more of a question of what parents think of home

schooling vs/ public schools and if home school is the chosen factor, then what

measures are they using to become socially adapted is it better to “suffer

through” the ever ending cruelness of kids or for that matter the general

public if we hold our kids back from the public then include them in at a later

date to the public do they think that the child/adult can over come such

obstacles because now you are dealing with something new and maybe or maybe not

socially adapated. I think people adapt to their surroundings and if a person

has a problem doing so than you fix it the best way you can. I hope I am making

myself known…it’s hard what Im trying to say.

My son is aspergers with High IQ and

in all fairness if you didn’t have a child with this disorder and he

appears very smart you would hold him accountable for his actions. You would

know no better. That’s how the general public see’s these kids, at

least mine. I know that now and if weren’t for school maybe I wouldn’t

know that to this day. It works on their self esteem for sure, but I would

rather it work on there self esteem and guiding them along, getting the help

that is needed, and at the same time be in a public environment while doing so.

If it gets too much for him to handle, then I will go seek schools or home

school.

We have had our share of issues with

the school but in the long run, I see it has been beneficial as well. I believe

we would face the same problems outside of the school setting only because he

is who he is- An Aspergers child.

Yes, we had trouble in school we

moved on from that school. What troubles do you have when home schooling I

would like to out weigh the two for my own concerns.

We held a law suit and won. I at the time

didn’t know about the laws worked or even knew some existed. We were

newly diagnosed, and I found it difficult. However, if I didn’t go

through this I wouldn’t have learned a lot, it inspired me to read more,

to advocate for my child, to know what I was talking about. I was the only one

whom knew my son best. It forced us to move mountains, take action and make a

difference for him and further more the next child at that school. The school

has now become the hung It was a lot to learn and a lot to go through all at

the same time. The things I learned is that so many people didn’t know or

how to handle my son. He was different but yet highly intelligent. OF course

they thought it was a behavior problem when he didn’t do his work etc. That

alone gave me tools in how to deal with him. In other words there is a team

that is also teaching you things you didn’t even know, maybe eventually

you would have saw it, but its great to have everyone looking, grading,

expressing their concerns and it may be that are a few flogs along the way,

which you really expect after all nobody is perfect and your child is dealing,

copying with issues nobody truly understands but him/her.

I believe with my child (not everyone’s,

and at this point in our lives) it is important for him to be in public. To be

in an environment which he can learn by: and a variety of lessons being taught

with appropriate adjustments that I ask for or sometimes it’s the teacher’s

idea, principle. The school did a series of tests and determined he had

problems in first grade. I thought my son was just grieving-his father died in

K-1, I remarried and two years later he was becoming a big brother for the

first time.

We still struggle through the social

issues which we are still working on. I believe not early intervention is a key

but I also believe if our kids aren’t in an environment to also learn

from others as the same age etc. Then the kids don’t get the chance to

learn unless you take them out and have some form of social groups/school

setting environment, so that they can be with their peers. Yes it is difficult

but I think it’s one people over look. Maybe they child can’t cope

at the moment with being in a class room/public but with intervention it’s

highly possible they can reach their goals. I think it may take longer to do so,

if the setting is in the home. Only my opinion, If there is something out there

I do not know of…please fill me in. I have often wondered if I am doing the

right thing, I guess you can say I am struggling within myself. I truly want

the best for my child as any mother would.

As someone has told me before, if he is

going to have Autism, than aspergers is the thing to have, he can function and

will be able to function with these tools…..etc.

Please don’t think I am being

negative of your choice of home schooling, it’s just raised some

questions in my head I am contemplating. I am basically thinking out-loud.

Please let me know what you think. Please help my cluttered mind!!!!!

Deborah

(Gotta Love Me)

From: Autism and Aspergers Treatment

[mailto:Autism and Aspergers Treatment ] On

Behalf Of lilies@...

Sent: Monday, January 29, 2007

8:51 PM

To:

Autism and Aspergers Treatment

Subject: RE:

Hello

Hi Jane, I can see why you are exhausted. You

certainly have a lot on

your plate! My son, 14, Asperger's, has been Home Schooled since he was

10. It has worked out well for us. After just a year and a half of

dealing with the Public School environment, which was never going to

work for our son, we brought him home. I had to undo lots of problems

including Ps. methods, or lack of, when it comes to math. My son can now

add or multiply numbers in the thousands, where as in fifth grade he had

to think about 4+5. Keep him home until another option opens up.

Possibly in new school will open in your area. Good luck, Gail A.

I have been homeschooling my son since November. He is 6 1/2years

old.

Does anyone else homeschool? When I was reading about the bullying

and fighting for IEP stuff, it made me exhausted. Jane

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Sure. I will....Also, The latest issue of the open access journal- the

> Journal of Early and Intensive Behavioral Intervention is now available

> online at www.behavior-analyst-online.org It has a wonderful article on

self

> injury and childrenw ith autism.

> Joe

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Thanks for the input. I am “thinking”

and you answered a lot of my issues. We (my husband & I) are talking about we

are doing the right thing or not. My son has been going to a new school since Feb.

2005. There have not been many issues up until recently. The move here has done

wonders for my son, the new school things were super until recently. I

assumed everything was going well and I should have known better. The other

kids in the class by now know him to well and have found that wasn’t good

enough, now he is teased and bullied. Now I’m trying to figure out

how to handle this one. I just hope it’s not too late. I do not want the

same issues we had in the past at the other school. I just don’t know

what is right anymore. I don’t think he would enjoy home school and with

me it’s hard to get him to budge. It’s like pulling teeth and that

annoys me. I don’t think home school for him would do either one of us a

great deal of good. Now, if there were a tutor maybe. In our area it’s a

joke. There isn’t anything here that I know of for Aspies. The general public

has NO clue and often tells me “he isn’t autistic”. (Were

they were expecting to see rain man)?

It’s harder for my son

because of his intellect (as I am sure for many aspies) but the other things

associated with intellect is missing so they think it’s a behavior issue.

(At the old

school especially, didn’t get it, they never would because-they didn’t

have too, but if it were there kid they would want to know everything about it)

For starters I have talked to our Doctor (behavioral specialist) we

also have issues with him completing his work. Doesn’t care if he is

barely passing when I know he can make an A in each subject. “Its still

passing mom, what does it matter”? So the plan of action is we are going

on a “chip” system. We have done with this specialist before but on

a different level. Then the system was to get him to do homework, bath

and anything that we had a problem with at the time. This worked with my son,

being rewarded made him take the efforts to do so. When we moved, we moved into

a neighborhood which he had tons of friends, new school and they were great so

we soon did not need the chip system anymore nor did we go back to the behavioral

specialist. We didn’t need the doctors anymore at that time with their

blessings, the neurology doctor had written a letter for the school which read:

Devin is a nine year old young

man with long standing history of previous language difficulties, early social

delays, as well as obsessive/compulsiveness and fix table behaviors. Over time

Devin has made excellent progress and has continued to improve. It is felt that

Devin has pattern of residual mild asperger’s syndrome that, with

appropriate intervention, is progressing quite nicely. He is not taking any

medication at this time but does need ongoing modifications of services in the

classroom.

We didn’t go to his neurology doctor

(an hour away) nor did we see the local behavioral specialist due to the fact

he was doing so well. Until recently, I wanted my son to have the right social

skills and took it upon myself to make an appointment with our behavioral specialist

now that everything was calmed down and going well. So I thought, we had been

to a total of two meetings with the doctor and I find out a few thins from my

son. Now he wants to move, says everyone hates him.

The specialist now is conforming to

the school and will be adding social statements to the check off sheet which is

the same check off sheet the school is to do from class to class; he is in the

ACE program, special math and speech. My son is all over that elementary school

and sometimes that alone makes it hard. With the new chip system if he brings

home a good (this was just added to his IEP) report from EACH class, it is a

check off list the teacher fills out. Did he complete his work, did he follow

directions, did he work well in a group, did he keep his hands to himself etc. in

return he brings these home and according to his reports if they are good, then

he receives a (poker) chip this allows him time on his favorite past time-

computer. I just wondered if this is right for him and if we should continue

inside the school. If we don’t do home school than our option is put him

into a private school. Which we probably couldn’t afford and I don’t

know any here that is appropriate for his needs.

IM still just as confused….

Thank you again.

From:

Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of lilies@...

Sent: Tuesday, January 30, 2007

6:51 AM

To:

Autism and Aspergers Treatment

Subject: RE:

Hello

-----Original

Message-----

From: Autism and Aspergers Treatment

[mailto:Autism and Aspergers Treatment ] On Behalf Of Barry Hitchcock

Sent: Monday, January 29, 2007

11:17 PM

Autism and Aspergers Treatment

Subject: RE:

Hello

Hi Jane, Carol and Gail

I am a mother of a 9yr old Aspie that has current social

issues going on at school. I read your post. I don’t want to make anyone

exhausted here by giving you the details etc. I merely want your perspective.

I know it’s a choice (public/home school) based individualized and

personal opinion of the child. At the same time I am keeping in the back of my

head a few things that concern me.

I also know public school causes problems socially and

works on the self esteem when in a public school. (I know this too well). All

kids with Aspergers have this problem. However, I would like to know what your

thoughts are and what ways do you get your child into “social”

environments. I have this nagging thought if I take my son out of school, home

school or private school (which is rare here) how will he adapt to life

outside school if he is home schooled? I know some home schools have social

activities but it’s not the same as a daily class room.

***********Hi Deborah, well, if the daily classroom just

doesn’t work for an individual why leave them there to suffer, especially

a child. I spent a lot of time in daily classrooms and I wouldn’t call it

a great place to learn ‘social behavior’. Pushing, shoving, talking to loud, swearing, mimicking, negative comments.

Teaching is to the group, not the individuals needs.

Now if the classroom were 8-9 kids who wanted to learn that would be different.

My son loves to learn, is very social and academic.

Deborah wrote:.” I think

if I subject him to the general public and public situations maybe he learns to

“mimic” but taking further steps in preventing just mimicking and

actually learning what it takes to make friends, keep them etc., keeping him

interested in school work. I think I would have the same issue as getting him

focused at home than being in an environment to learn. Atleast there is one

point for public school; he knows what he goes there for. “

*******************Children learn social skills long before

stepping in a school building. I took my son to play groups as well as museums

at 2 years old. My son has had a best friend since he was 5, plus a couple

others who have come over for years. I put a lot into inviting them, picking

them up, activities (the old fashioned kind, like going for a swim in the pond)

*********My son knows when it is school time..

He might complain, but he will do what I ask. He is very well behaved, and I am

very patient.

..

Deborah said.” Public schools can be a great place if

it’s handled properly and parents and their children are the ones that

start this when you sit down at a school meeting.”

**********I’ve been part of those ‘”team”

meetings. People are late, unprepared, and forget to carry out their own

suggestions. My husband will soon be speaking to the State Board of Education

on the situation. Not for our son, he will never go back, but for others.

Deborah Said, “My point im trying to make is not all

about public awarness but more of a question of what parents think of home

schooling vs/ public schools and if home school is the chosen factor, then what

measures are they using to become socially adapted is it better to

“suffer through” the ever ending cruelness of kids or for that matter

the general public if we hold our kids back from the public then include them

in at a later date to the public do they think that the child/adult can over

come such obstacles because now you are dealing with something new and maybe or

maybe not socially adapated. I think people adapt to their surroundings and if

a person has a problem doing so than you fix it the best way you can. I hope I

am making myself known…it’s hard what Im trying to say.”

******I don’t believe in “suffering through”.

Deborah said, “ We have had our

share of issues with the school but in the long run, I see it has been

beneficial as well. I believe we would face the same problems outside of the

school setting only because he is who he is- An Aspergers child. “

********Sorry, I just don’t agree. I will say Home Schooling

is not for everyone. You must be very dedicated and patient with your child.

Mine son is 14 and a very nice boy. We are proud of how far he has come. For

social and educational activities this week he will attend a class at a

museum with 12 other Home Schooled kids, he will attend a cartooning class with

9 other Home Schooled kids, and he will attend a ‘game club’ Sat.

with a dozen others (some Home Schooled , some not) where they will play stragedy

board games. A pretty social week I’d say.

If Public School works

for your son, that is great. It just is not working for many, no matter how

involved the parent……….Gail A.

..

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-Jane, I think we all feel a little nutty..I homeschool my 15 year

old Aspergers daughter..I began homeschooling all my children after

my son was diagnosed with ADD at age of 5...We pulled him after 2nd

grade...He is now 17 and will be going to college, next year....(we

suspect he may have more than ADD)..He is very non social and has

trouble in unfamiliar situations...All I can say is that life can be

difficult, but it it so much less difficult without the public school

involved .. I know many people who would disagree, but for us I feel

this is the only solution. We get the kids involved with youth

group, and get out of the house into the " real world " when we can...I

think the diagnosis of Aspergers usually comes when they are

older...My daughter wasn't diagnosed until 12...It's always amazing

to me how the dianosis keeps getting changed for many children...I

really think you know your child the best....It sounds like life is

tough for you...I just want you to know you are not alone. There are

no easiy answers. I just keep praying and asking God for help and

guidance. I am at peace because I know that my husband and I were

entrusted with our children for a reason. We just take it one day at

a time, and research as we can, and just get up to face a new

day...Little victories are usually big in our family..they give us

hope...We would never change our daughter, she is a one of a kind!!!

God Bless,

-- In Autism and Aspergers Treatment , " Jane Majewski "

<janemajewski@...> wrote:

>

> Hello,

>

> I am not sure if anyone is still here that was last year. A few

> years ago I thought my son was Aspergers....but the doctor

diagnosed

> him with sensory integration disorder until 2 weeks ago. Now, he is

> pdd-nos. I am told that he presents as an aspergers child but that

> he had a speech delay....so for now he is pdd-nos.

>

>

> I have been homeschooling my son since November. He is 6 1/2years

> old.

>

> He was doing fantastic in school in September, so without changing

> the IEP :( they put him in recess and the cafetaria. Needless to

> say, he fell apart quickly. I asked the staff if a child was in

need

> of an artificial leg....and walked well on it; do they remove it

> without a PPT???????????????????

>

> They never believed that he was autistic because " he knows better "

> and " he is so high functioning " .....should be music to my ears but

> it makes me sick instead. It implies that either he is " BAD " for

the

> fun of it or because I don't parent correctly.....even though I

have

> two other children who don't take off their clothes and scream when

> overloaded.

>

> So they wanted to place him in a small enclosed classroom that

> was...well, to make this short- UNBELIEVABLE.

>

> SO now we are homeschooling.

>

> Caleb(my son) is doing INCREDIBLE. Learning quickly, socializing

> better....fewer meltdowns and noncompliance.....(they are almost

> totally gone)

>

> Me, I am a little tired.....

>

> I work 4 days a week (weekends) in a residential treatment facility

> for teenagers....I have a 19 year old in college...and a 3 year

old.

> My 15 year old foster son blew out of our house last night, taken

by

> cops to the hospital from his extended day program. He was

diagnosed

> bipolar and conduct disorder.....and refuses to take his meds :)

>

> I am grieving his leaving us....we can't keep him safe when he

> doesn't take his meds and see his clinician.

>

>

> I just found out 2 days ago that I am 5 weeks pregnant.

>

>

> I am very very tired.

>

> I worry about having another miscarriage, I worry about the child

> being autistic and more difficult than Caleb....

>

> I don't have any time to myself and would love to go out with " the

> girls " but with our schedule, there is never an evening free and

> there isn't really of group of " the girls " anymore.....over time my

> focus became different than theirs.

>

> I must sound like a nut, I just need to vent with people that

> understand...........

>

> Does anyone else homeschool? When I was reading about the bullying

> and fighting for IEP stuff, it made me exhausted. I have been

> fighting the school and attending PPTs since Caleb was 4....I can't

> fight them and have enough energy for Caleb. Homeschooling is

easier

> for me for now...but I wonder about the long term......

>

> Did anyone else have children after a diagnoses of autism? I have a

> 3 year old daughter that doesn't dislpay any symptoms so I should

> not worry; I just can't help it. I know that there is some kind of

> genetic link to autism. Should've thought about that before I got

> pregnant.........but don't get me wrong we are also happy to be

> adding to our family...more than we worry.

>

> thanks for letting me vent,

>

> Jane

>

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RE:

Hello

Thanks for the input. I am “thinking” and you answered

a lot of my issues. We (my husband & I) are talking about we are doing the

right thing or not. My son has been going to a new school since Feb. 2005.

There have not been many issues up until recently. The move here has done

wonders for my son, the new school things were super until recently. I

assumed everything was going well and I should have known better. The other

kids in the class by now know him to well and have found that wasn’t good

enough, now he is teased and bullied. Now I’m trying to figure out

how to handle this.

***********Hi Deborah, I feel for you, and

I really do understand that inner conflict of trying to what is best for your

son. I do think you should call the Principal, and tell them what’s going

on, and you want it handled. They can talk to the teachers and staff.

Also 9 is a tough age. Nine was when my

son crashed. Nine is when school work gets more complex, as does the social

relationships between kids. We were frantic trying to do what was best for our

son at this age. He did not attend the last month of school. In fifth grade he

went ½ days and it was still too much. If your son just can’t be in the

school, the school has to send in a tutor. Hopefully he won’t get this

down and out, I wouldn’t want to see that being necessary.

..  

 If

we don’t do home school than our option is put him into a private school.

Which we probably couldn’t afford and I don’t know any here that is

appropriate for his needs.

************Start really looking around

and visiting schools. His present school needs to get on the stick and if they

can’t meet his needs, pay for private. This is all emotionally draining.

I know. I was so glad to be rid of the whole school scene. Keep us informed and

ask any questions….Gail A.

 

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No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.432 / Virus Database: 268.17.14/657 - Release Date: 1/29/2007 9:04 AM

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